UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive...

17
UvA-DARE is a service provided by the library of the University of Amsterdam (http://dare.uva.nl) UvA-DARE (Digital Academic Repository) Treating fatigue in post-polio syndrome Koopman, F.S. Link to publication Citation for published version (APA): Koopman, F. S. (2016). Treating fatigue in post-polio syndrome. General rights It is not permitted to download or to forward/distribute the text or part of it without the consent of the author(s) and/or copyright holder(s), other than for strictly personal, individual use, unless the work is under an open content license (like Creative Commons). Disclaimer/Complaints regulations If you believe that digital publication of certain material infringes any of your rights or (privacy) interests, please let the Library know, stating your reasons. In case of a legitimate complaint, the Library will make the material inaccessible and/or remove it from the website. Please Ask the Library: https://uba.uva.nl/en/contact, or a letter to: Library of the University of Amsterdam, Secretariat, Singel 425, 1012 WP Amsterdam, The Netherlands. You will be contacted as soon as possible. Download date: 22 Nov 2020

Transcript of UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive...

Page 1: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

UvA-DARE is a service provided by the library of the University of Amsterdam (http://dare.uva.nl)

UvA-DARE (Digital Academic Repository)

Treating fatigue in post-polio syndrome

Koopman, F.S.

Link to publication

Citation for published version (APA):Koopman, F. S. (2016). Treating fatigue in post-polio syndrome.

General rightsIt is not permitted to download or to forward/distribute the text or part of it without the consent of the author(s) and/or copyright holder(s),other than for strictly personal, individual use, unless the work is under an open content license (like Creative Commons).

Disclaimer/Complaints regulationsIf you believe that digital publication of certain material infringes any of your rights or (privacy) interests, please let the Library know, statingyour reasons. In case of a legitimate complaint, the Library will make the material inaccessible and/or remove it from the website. Please Askthe Library: https://uba.uva.nl/en/contact, or a letter to: Library of the University of Amsterdam, Secretariat, Singel 425, 1012 WP Amsterdam,The Netherlands. You will be contacted as soon as possible.

Download date: 22 Nov 2020

Page 2: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

Curriculum Vitae / Portfolio

Page 3: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

CurriculumVitae/Portfolio

252

FiekeSophiaKoopmanwasbornonApril7th1980inGroningen,theNetherlands.In1998shegraduated from secondary school at the Maartens College in Haren. Between 1998 and 2002 shestudiedHumanMovementSciencesattheUniversityofGroningen.DuringthisperiodsheparticipatedintheAdaptedPhysicalActivitystudentmobilityprogramattheCatholicUniver-sityofLeuven,Belgium.AftershereceivedherMaster’sdegree,FiekestudiedMedicineattheUniversityofGroningenforwhichshereceivedherMedicaldegreein2008. Inthatyearshestartedworkingasatrainee inrehabilitationmedicineandresearch(AIOSKO)atthedepart-ment of RehabilitationMedicine of theAcademicMedical Center in Amsterdam and ReadeCenterforRehabilitationandRheumatology.DuringthistimeshecarriedoutherPhDproject‘Treatingfatigueinpost-poliosyndrome’whichwassupervisedbyprof.dr.FransNollet,prof.dr. Marianne de Visser, dr. Anita Beelen and dr. Merel Anne Brehm and resulted in the current doctoralthesis.FromNovember2015sheworksasaconsultantinRehabilitationMedicineandresearcherat thedepartmentofRehabilitationMedicineof theAcademicMedicalCenter inAmsterdam.

FiekeliveswithHerbertSmeenk,theirsonJob(2013)anddaughterJulie(2016).

Page 4: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

253

PhD student: Fieke Sophia KoopmanPhDperiod: April2008–March2016PhD supervisor: Prof. dr. F. Nollet Prof. dr. M. de Visser

1. PhD Training

Year Workload (Hours/ECTS)

Courses

DevelopingaCochraneSystematicReview.DutchCochraneCentreAmsterdam.

2008 8/0.3

Epidemiologischonderzoek:opzeteninterpretatie.EpidM,Depart-mentofEpidemiologyandBiostatistics,VUUniversityMedicalCenter,Amsterdam

2009 30/1.1

Principes van epidemiologische data-analyse. EpidM, Department of EpidemiologyandBiostatistics,VUUniversityMedicalCenter,Amster-dam

2009 30/1.1

OralpresentationinEnglish.AMCGraduateschool 2009 22/0.8

Systematischereviewsenmeta-analyse.EpidM,DepartmentofEpide-miologyandBiostatistics,VUUniversityMedicalCenter,Amsterdam

2009 17/0.6

PhD-school:OutcomemeasuresinRehabilitationResearch,Universityof Southern Denmark, Copenhagen, Denmark

2009 32/1.1

Basiccourseinlegislationandorganizationforclinicalresearchers.AMCGraduateschool

2013 26/0.9

MixedModels.EpidM,DepartmentofEpidemiologyandBiostatistics,VU University Medical Center, Amsterdam

2014 32/1.1

Presentations

Research meetings, AMC

Exercisetherapyandcognitivebehaviouraltherapyonfatigue,dailyactivitiesandhealthrelatedqualityoflifeinpatientswithPPS.Re-searchproposal[oral]

2008 14/0.5

Exercisetherapyandcognitivebehaviouraltherapyonfatigue,dailyactivitiesandhealthrelatedqualityoflifeinpatientswithPPS.Re-searchproposal[oral]

2009 14/0.5

Page 5: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

CurriculumVitae/Portfolio

254

TrainingsintensiteitbijNMA.RefereerbijeenkomstrevalidatieartsenregioNoord-Holland[oral]

2009 14/0.5

Exercisetherapyandcognitivebehaviouraltherapyonfatigue,dailyactivitiesandhealthrelatedqualityoflifeinpatientswithPPS.Prog-ressreport[oral]

2010 14/0.5

Exercisetherapyandcognitivebehaviouraltherapyonfatigue,dailyactivitiesandhealthrelatedqualityoflifeinpatientswithPPS.Prog-ressreport[oral]

2011 14/0.5

Contentcomparisonandreliabilityoftwofatiguequestionnaires[oral] 2013 14/0.5

Exercisetherapyandcognitivebehaviouraltherapyonfatigue,dailyactivitiesandhealthrelatedqualityoflifeinpatientswithPPS.Prog-ressreportandCriticalAppraisalofaTopic[oral]

2014 14/0.5

Exercisetherapyandcognitivebehaviouraltherapyonfatigue,dailyactivitiesandhealthrelatedqualityoflifeinpatientswithPPS.Finalreport[oral]

2014 14/0.5

Plenary sessions FACTS-2-NMD study group

Spotlightontheinterventions:exercisetherapyintheFACTS-2-PPStrial[oral]

2009 14/0.5

OutcomemeasuresintheFACTS-2-NMDstudy[oral] 2012 14/0.5

ResultsoftheFACTS-2-PPStrial[oral] 2014 14/0.5

Patient conferences and meetings

Exercisetherapyandcognitivebehaviouraltherapyinpost-poliosyn-drome: The FACTS-2-PPS study. Spierziektecongres VSN, Barneveld, the Netherlands[oral].

2010 14/0.5

Fysieketrainingencognitievegedragstherapiebijneuromusculaireaandoeningen;effectenopactiviteitenenkwaliteitvanleven.Spier-ziektecongresVSN,Veldhoven,theNetherlands[poster].

2013 14/0.5

Fysieketrainingencognitievegedragstherapiebijpost-poliosyn-drome;effectenopvermoeidheid,activiteitenenkwaliteitvanleven.SpierziektecongresVSN,Veldhoven,theNetherlands[poster].

2014 14/0.5

Fysieketrainingencognitievegedragstherapiebijpost-poliosyn-drome;resultatenvandeFACTS-2-PPStrial.Mini-symposiumpartici-pantsFACTS-2-PPStrial,AMC,theNetherlands[oral].

2014 14/0.5

(Inter)national conferences

Exercisetherapyandcognitivebehaviouraltherapyinpost-poliosyn-drome:PhD-schoolDenmark.Copenhagen,Denmark[poster]

2009 14/0.5

Treatment for post-polio syndrome: results from a Cochrane Review. 1stEuropeanpolioconference,August31–September2,2011,Copen-hagen,Denmark[oral]

2011 14/0.5

Researchmethodology.1stEuropeanpolioconference,August31–September2,2011,Copenhagen,Denmark[oral]

2011 14/0.5

Page 6: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

255

Exercisetherapyandcognitivebehaviouraltherapyinpost-poliosyn-drome: The FACTS-2-PPS study. 1st European polio conference, August 31–September2,2011,Copenhagen,Denmark[poster]

2011 14/0.5

Measuringfatigueinpoliosurvivors:thecomparabilityoftheChecklistIndividualStrengthwiththeFatigueSeverityScale.DutchCongressofRehabilitationMedicine,Arnhem,theNetherlands[poster]

2012 14/0.5

BestPracticesforPost-PolioSyndrome.2ndEuropeanpolioconfer-ence,June25–27,2014,Amsterdam,theNetherlands[oral]

2014 14/0.5

Exercisetherapyandcognitivebehaviouraltherapytoimprovefatiguein post-polio syndrome: preliminary results of a randomized controlled trial.2ndEuropeanpolioconference,June25–27,2014,Amsterdam,theNetherlands[oral]

2014 14/0.5

RCTonexercisetherapyandcognitivebehaviouraltherapytoreducefatigueinpost-poliosyndrome.DutchCongressofRehabilitationMedi-cine,Rotterdam,theNetherlands[oral]

2014 14/0.5

Exercisetherapyandcognitivebehavioraltherapyarebothnotef-fectiveinreducingfatigueinpost-poliosyndrome:resultsofanRCT.InternationalCongressonNeuroRehabilitationandNeuralRepair,Maastricht,theNetherlands[oral]

2015 14/0.5

RCTonexercisetherapyandcognitivebehaviouraltherapytoreducefatigueinpost-poliosyndrome.9thInternationalSocietyofPhysicalandRehabilitationMedicineWorldCongress,Berlin,Germany[oral]

2015 14/0.5

Attended (Inter)national conferences

InternationalConferenceonAmbulatoryMonitoringofPhysicalActivi-tyandMovement,May21-24,2008,Rotterdam,TheNetherlands

2008 24 / 0.9

DutchCongressofRehabilitationMedicine,October30-312008,Erme-lo, the Netherlands

2008 16 / 0.6

Nordic Conference on Post-polio, November 20-21, 2008, Upplands Väsby, Sweden

2008 16 / 0.6

10thInternationalConference:LivingwithPoliointhe21stCentury,Post-PolioHealthInternational,April23-25,WarmSprings,GA,UnitedStates

2009 24 / 0.9

DutchCongressofRehabilitationMedicine,November11-122010,Ermelo, the Netherlands

2010 16 / 0.6

1stEuropeanpolioconference,August31–September2,2011,Copen-hagen, Denmark

2011 24 / 0.9

DutchCongressofRehabilitationMedicine,November1-2,2012,Noor-dwijkerhout, the Netherlands

2012 16 / 0.6

DutchCongressofRehabilitationMedicine,October31-November12013, Noordwijkerhout, the Netherlands

2013 16 / 0.6

Page 7: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

CurriculumVitae/Portfolio

256

2ndEuropeanpolioconference,June25–27,2014,Amsterdam,theNetherlands

2014 24 / 0.9

DutchCongressofRehabilitationMedicine,November6-7,2014,Rot-terdam, the Netherlands

2014 16 / 0.6

InternationalCongressonNeuroRehabilitationandNeuralRepair,Maastricht, May 21-22, 2015, the Netherlands

2015 8 / 0.3

9thInternationalSocietyofPhysicalandRehabilitationMedicineWorldCongress,June19-23,2015,Berlin,Germany

2015 32 / 1.2

2. Teaching

Year Workload (Hours/ECTS)

Supervising/mentoring graduate thesis student Medicine, Academic Medical Center Amsterdam the Netherlands. Title: Determining An-aerobic Threshold in persons with post-polio syndrome. August 2008- April 2009

2009 58/2.0

Supervising/mentoring graduate thesis student Human Movement Sciences, VU University, Amsterdam, the Netherlands. Title: Anaerobic ThresholdinPPSpatients.August2009-March2011

2011 58/2.0

3. Parameters of esteem

Year

Cytokinelevelsandassociationwithphysicaldeclineover10yearsinpost-polio syndrome. Best poster award, 2nd European polio confer-ence, Amsterdam, the Netherlands.

2014

Page 8: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

257

4. Publications

KoopmanFS,BrehmMA,BeelenAetal.Cognitivebehavioraltherapyforreducingfatigueinpost-poliosyndromecomparedtofacioscapulohumeraldystrophy:theroleoffatigue-relatedcognitions.Submitted.

VoornEL,KoopmanFS,BrehmMAetal.Aerobicexercisetraininginpost-poliosyndrome:pro-cessevaluationofanRCT.Submitted.

BakkerM,SchipperK,KoopmanFS,NolletF,AbmaTA.Experiencesandperspectivesofpatientswithpost-poliosyndromeandtherapistswithexerciseandcognitivebehaviouraltherapy.BMCNeurol.2016;16:23.

KoopmanFS,VoornEL,BeelenA,etal.NoReductionofSevereFatigueinPatientsWithPostpolioSyndromebyExerciseTherapyorCognitiveBehavioralTherapy:ResultsofanRCT.NeurorehabilNeuralRepair.2015;[Epubaheadofprint].

KoopmanFS,BeelenA,GilhusNE,deVisserM,NolletF.Treatmentforpostpoliosyndrome(firstupdate)CochraneDatabaseSystRev.2015;5:CD007818.

KoopmanFS,BrehmMA,HeerkensYF,NolletF,BeelenA.Measuringfatigueinpoliosurvivors:contentcomparisonandreliabilityoftheFatigueSeverityScaleandtheChecklistIndividualStrength.JRehabilMed.2014;46:761-767.

VoornEL,GerritsKH,KoopmanFS,NolletF,BeelenA.Determiningtheanaerobicthresholdinpostpoliosyndrome:comparisonwithcurrentguidelinesfortrainingintensityprescription.ArchPhysMedRehabil2014;95:935-940.

Tersteeg IM, Koopman FS, Stolwijk-Swuste JM, Beelen A, Nollet F. A 5-year longitudinal studyoffatigueinpatientswithlate-onsetsequelaeofpoliomyelitis.ArchPhysMedRehabil2011;92:899-904.

KoopmanFS,UegakiK,GilhusNE,BeelenA,deVisserM,NolletF.Treatmentforpostpoliosyn-drome. Cochrane Database Syst Rev 2011:CD007818.

KoopmanFS,BeelenA,GerritsKHetal.Exercisetherapyandcognitivebehaviouraltherapytoimprovefatigue,dailyactivityperformanceandqualityoflifeinpostpoliomyelitissyndrome:theprotocoloftheFACTS-2-PPStrial.BMCNeurol2010;10:8.

SteenstraIA,KoopmanFS,KnolDLetal.Prognosticfactorsfordurationofsickleaveduetolow-backpainindutchhealthcareprofessionals.Journalofoccupationalrehabilitation.2005;15:591-605.

KoopmanFS,EdelaarM,SlikkerR,ReyndersK,vanderWoudeLH,HoozemansMJ.Effectivenessofamultidisciplinaryoccupationaltrainingprogramforchroniclowbackpain:aprospectivecohortstudy.AmJPhysMedRehabil.2004;83:94-103.

Page 9: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life
Page 10: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

Contribution of authors

Page 11: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

Contributionsofauthors

260

Chapter 2:KoopmanFS,BrehmMA,HeerkensYF,NolletF,BeelenA.Measuringfatigueinpoliosurvivors: content comparisonand reliabilityof theFatigueSeverity Scaleand theChecklistIndividualStrength.JRehabilMed.2014;46:761-767.FKwasresponsiblefortheconductofthestudy,thedesignofthe(statistical)analyticplan,the(statistical)analysis,interpretationofthedata,draftingandrevisionofthemanuscript.MBcontributedtotheconceptualizationofthestudy,(statistical)analysis, interpretationofthedata,andtherevisionofthemanuscript.YHandABcontributedtotheinterpretationofthedata,andtherevisionofthemanuscript.FNcontributed to the revision of the manuscript.

Chapter 3: Tersteeg IM, Koopman FS, Stolwijk-Swuste JM, Beelen A, Nollet F. A 5-year lon-gitudinalstudyoffatigueinpatientswithlate-onsetsequelaeofpoliomyelitis.ArchPhysMedRehabil2011;92:899-904.ITwasresponsiblefortheconductofthestudy,thedesignofthesta-tisticalanalyticplan,thestatisticalanalysis,interpretationofthedata,draftingandrevisionofthe manuscript. FK contributed to the revision of the manuscript. JS contributed to the conduct ofthestudy,andrevisionofthemanuscript.ABcontributedtoconceptualizationofthestudy,thedesignofthestatisticalanalyticplan,thestatisticalanalysis,interpretationofthedata,andrevisionofthemanuscript.FNcontributedtotheconceptualizationandconductofthestudy,interpretationofthedata,andrevisionofthemanuscript.

Chapter 4:KoopmanFS,BeelenA,GilhusNE,deVisserM,NolletF.Treatmentforpostpoliosyndrome(firstupdate)CochraneDatabaseSystRev.2015;5:CD007818.FKwasresponsibleforwritingoftheprotocolandreview,screeningoftitlesandabstracts,assessmentforinclusion,’Riskofbias’assessment,dataextraction,dataentryintoRevMan,dataanalysis,assessmentofqualityofevidence,andinterpretationofresults.ABcontributedtowritingoftheprotocolandreview,screeningoftitlesandabstracts,assessmentforinclusion,’Riskofbias’assessment,dataextraction,dataanalysis,assessmentofqualityofevidence,andinterpretationofresults.NEGcontributedtowritingoftheprotocolandreview,interpretationofresults,andwasre-sponsiblefordisagreementresolution.MdVandFNcontributedtowritingoftheprotocolandreview,andinterpretationofresults.

Chapter 5:KoopmanFS,BeelenA,GerritsKH,BleijenbergG,AbmaTA,deVisserM,NolletF.Exercisetherapyandcognitivebehaviouraltherapytoimprovefatigue,dailyactivityperfor-manceandqualityoflifeinpostpoliomyelitissyndrome:theprotocoloftheFACTS-2-PPStrial.BMCNeurol2010;10:8.FKcontributedtothedevelopmentofthestudydesignandwrotethemanuscript.AB,KG,GB,TA,MdVandFNoriginatedtheideaofthestudy,developedtheoverallstudy design, and contributed to the revision of the manuscript.

Chapter 6:KoopmanFS,VoornEL,BeelenA,BleijenbergG,deVisserM,BrehmMA,NolletF.NoReductionofSevereFatigue inPatientsWithPostpolioSyndromebyExerciseTherapyorCognitiveBehavioralTherapy:ResultsofanRCT.NeurorehabilNeuralRepair.2015; [Epubaheadofprint].FKwasresponsiblefortheconductofthestudy,thedesignofthestatistical

Page 12: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

261

analyticplan,thestatisticalanalysis,interpretationofthedata,anddraftingandrevisionofthemanuscript.EVcontributedtotheconductofthestudy,interpretationofthedata,andrevisionofthemanuscript.ABcontributedtotheconceptualizationofthestudy,designedthestatis-ticalanalyticplan,oversawanalyses,interpreteddata,andcontributedtotherevisionofthemanuscript.GBandMdVcontributedtotheconceptualizationofthestudy,interpretationofthe data, and revision of the manuscript. MB contributed to the conduct of the study, oversaw all aspects of the conduct of the study, interpreted data, and contributed to the revision of the manuscript.FNcontributedtotheconceptualizationandconductofthestudy,interpretationofthe data, and revision of the manuscript.

Chapter 7:VoornEL,KoopmanFS,BrehmMA,BeelenA,deHaanA,GerritsKHL,NolletF.Aerobicexercisetraininginpost-poliosyndrome:processevaluationofanRCT.Submitted.ELwasresponsiblefortheconductofthestudy,thedesignofthestatisticalanalyticplan,thestatisticalanalysis,interpretationofthedata,draftingandrevisionofthemanuscript.FKwasresponsible for the conduct of the study, and contributed to the revision of the manuscript. MB oversaw all aspects of the conduct of the study, and contributed to the revision of the manu-script.ABcontributedtotheconceptualizationofthestudy,oversawallaspectsoftheconductof the study, oversaw analyses, interpreted data, and contributed to the revision of the manu-script.AdHandKGcontributedtotheconceptualizationofthestudy,interpretationofthedata,andtherevisionofthemanuscript.FNcontributedtotheconceptualizationandconductofthestudy,interpretationofthedata,andrevisionofthemanuscript.

Chapter 8:KoopmanFS,BrehmMA,BeelenA,VoetN,BleijenbergG,GeurtsA,NolletF.Cognitivebehavioraltherapyforreducingfatigueinpost-poliosyndromecomparedtofacios-capulohumeraldystrophy:theroleoffatigue-relatedcognitions.Submitted.FKwasresponsiblefortheconductofthestudy,thedesignofthestatisticalanalyticplan,thestatisticalanalysis,interpretationofthedata,draftingandrevisionofthemanuscript.MBandABcontributedtotheconceptualizationofthestudy,oversawallaspectsoftheconductofthestudy,oversawanalyses, interpreted data, and contributed to the revision of the manuscript. NV contributed totheconductofthestudy,andtherevisionofthemanuscript.GBcontributedtotheconcep-tualizationofthestudy,interpretationofthedata,andtherevisionofthemanuscript.AGcon-tributedtotherevisionofthemanuscript.FNcontributedtotheconceptualizationandconductofthestudy,interpretationofthedata,andrevisionofthemanuscript.

Page 13: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life
Page 14: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

Dankwoord

Page 15: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

Dankwoord

264

IndeeersteplaatswilikallemensenmetPPSdiehebbenmeegewerktaande,inditproefschriftopgenomen, onderzoeken bedanken. Het waren intensieve onderzoeken. Jullie waren bereid jeopen te stellen voor verschillendebehandelingendiedoormiddel van loting toegewezenwerden. Deelname aan de onderzoeken betekende vele bezoeken aan de behandelcentra, in-tensievemetingenenhetinvullenvanlangevragenlijsten.Hetisvakergezegd,maarhetisuniekhoebetrokkendeNederlandsePPS-populatieisbijzorgenonderzoek.Datisonmisbaarvoorhet verbeteren van de kwaliteit van de zorg.

Mijn(co)-promotoresProf.dr.F.Nollet,Prof.dr.M.deVisser,Dr.J.A.J.M.Beelen,Dr.M.A.Brehmdankikvoorhunbegeleidingtijdensdetotstandkomingvanditproefschrift.

Frans, het was begin 2008 dat ik op reis in Australië vroeg in de ochtend een telefoontje vanjeontving.IkwasaangenomenvooreenAIOSKO-functiebinnenhetOOR-AMC.EenmooiervervolgopmijnnetafgerondeopleidingGeneeskundehadiknietkunnenbedenken.Decom-binatievanpromoverenendespecialisatietotrevalidatieartswasafentoebestpittig,maarikhebmetijdensdittrajectenormgesteundgevoeld.Ikbenjedankbaarvoorhetvertrouwenenalle kansen die je mij hebt gegeven.

Marianne,dankdatjijjekennisoverdelategevolgenvanpolioenjejarenlangeexpertiseopwetenschappelijk vlak vanuit een neurologische invalshoek met mij hebt willen delen. Ik hoop dat de nauwe samenwerking met de Neurologie ook na jouw emeritaat voortgezet zal worden omdat het van zoveel meerwaarde is voor het PPS-onderzoek en de PPS-zorg.

Anita, onderzoeker in hart en nieren. Er is geen vraag waar ik niet mee bij je aan kon klop-pen.Enjeantwoordenzijnaltijdvergezeldvaneenkritischeenuitvoerigeonderbouwing.Dankvooralletijddiejehebtgemaaktomvelevandeartikeleninditproefschriftnaareenhogerplantetillen.

Merel,destabielefactor.Jouwdoelgerichtheidenstandvastigheidhebbenmijgeholpen.Als ik weer eens een paadje links of rechtsaf was ingeslagen of verdwaald was zorgde jij dat ik in no-timeweerterugwasopdewegrichtingheteinddoelvandezepromotie.DaarnaastontlasttejemijendeandereonderzoekersvandeFACTS-2-NMDstudiedoordeprojectcoördinatieopjetenemen.Eentaakwaarjeenormveeltijdinhebtgestokenenwatjealtijdtotindepuntjesgeregeld had. Veel dank daarvoor.

Kimi, op deze plek wil ik ook jou bedanken voor je steun als mijn dagelijks begeleider en projectcoördinator van de FACTS-2-NMD studie toen deze nog in de kinderschoenen stond. Mooie herinneringen heb ik aan onze samenwerking voor de Cochrane review in de tuinen van Warm Springs.

Eric, mijn begeleidingsgroep had bedacht dat de FACTS-2-PPS studiegroep niet versterkt ging worden met een onderzoeksassistent maar met een tweede promovendus. Een week voor ik ging starten met mijn opleiding heb ik jou ingewerkt om vervolgens een belangrijk deel van

Page 16: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

265

mijn‘levenswerk’uithandentegeven.Ikmoesteropvertrouwendatjij,versuitdeschoolban-ken, het stokje kon overnemen. Het duurde niet lang voordat je mij met 200km per uur voorbij stoofopwegnaardepromotie-eindstreep.Dankvooralhetwerkdat jehebtverzetomdeFACTS-2-PPSstudiedraaiendetehoudentijdensdeperiodendatikminderaanwezigkonzijn.Jewaseenfijnonderzoeksmaatjewaarmeeiknietalleenoverdeinhoudkondiscussiërenmaarwaarmeeookminderinspirerendeonderzoeksklussenineenmumvantijdgeklaardwarenenwaarmee ik enorm heb kunnen lachen.

GraagdankikookderevalidatieartsenvandedeelnemendeUMC’senrevalidatiecentradiebetrokkenwarenbijdeinclusievandepatiëntenvoordeFACTS-2-PPSstudie:AcademischMe-disch Centrum Amsterdam, Radboud Universitair Medisch Centrum Nijmegen, Sint Maartensk-liniekNijmegen,RevalidatiecentrumRoessinghEnschede,RevalidatiecentrumdeTrappenberg,MeremHuizen,LibraRevalidatie;locatieLeijparkTilburg,UniversitairMedischCentrumRotter-dam en Universitair Medisch Centrum Utrecht.

DefysiotherapeutenenpsychologendiebetrokkenwarenbijdeinterventiesvandeFACTS-2-PPS studie dank ik voor hun onmisbare bijdrage aan dit project. Mijn speciale dank gaat uit naarSandradeMoréediemijgeholpenheeftdekleurlozeonderzoeksgetallenverkregenron-domdeCGT-interventiebetertebegrijpen.Anne-CarienBeishuizenenTonSassen,dankvoorjullie waardevolle input bij de uitwerking van de protocollen voor de fysieke trainingsinterven-tie.

Annerieke van Groenestijn, Nicole Voet enMinne Bakker, mede-promovendi binnen deFACTS-2-NMDstudie.Hetwasfijnomafentoemetjullietekunnensparren.Wegaanelkaarongetwijfeld weer tegenkomen.

GraagbedankikdeledenvandepromotiecommissieProf.dr.I.N.vanSchaik,Prof.dr.R.H.H.Engelbert,Prof.dr.P.M.M.Bossuyt,Prof.dr.F.J.Snoek,Prof.dr.A.C.H.Geurtsvoorhetbeoor-delenvanditproefschrift.

Promoverenis‘likepullingteeth’(A.B.,2014).Echternietsisminderwaaralsjefijnemensenomjeheenhebt.Lieve(ex)-onderzoekscollega’s,ikhebjulliemeerderekerentijdelijkmoetenmissen om elders een stukje opleiding te volbrengen. Maar wat een feest was het steeds om weer terug te komen!

Danktenslotteaanmijnvriendenenfamiliedieeraltijdvoormijzijn.Mijnvriendendieintijdendaterhardgeholdmoetworden,hetlevenmeerkleurgeven.Mijn(schoon)familievoorjulliebetrokkenheidensteun.GekeenLieke,mijngrotezusenvriendinnetje.Julliebegrijpenmij als geen ander. Mijn pappa en mamma, voor zoveel liefde en zorg waarmee jullie mij heb-

Page 17: UvA-DARE (Digital Academic Repository) Treating fatigue in ... · Exercise therapy and cognitive behavioural therapy on fatigue, daily activities and health related quality of life

Dankwoord

266

ben gemaakt tot wie ik ben. Tijdens de totstandkoming van dit boekje is mijn leven verrijkt met dekomstvandrielieflijkeplekjesaanmijnzijde.LievekleineJobenJulie.‘Beinghappyfornoreason’.Julliemakenhetlevenmooi.LieveHerb.Jijgafmijonvoorwaardelijkesteunenvertrou-wen. Ik ben zo dankbaar dat je er bent.