Using Seizure Tracker to Keep Doctors Updated

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Using Seizure Tracker to Keep Doctors Updated

May 15, 2020

Robert MossCo-Founder/President of SeizureTracker.comFather to Evan who lives with TSC

2020 © SeizureTracker.com

Mission:Dedicated to providing patients and doctors with free comprehensive tools to help understand the relationship between seizure activity and anti-epileptic treatments.

Empowering patients to take a more active role in their own health care.


Past

Present


Free OnlineLaunched in 2007

30,000+ Global Users250+ New Monthly

2,200,000+ Events Logged1000 Events Daily

62,000+ Medication Entries

Features…Medication ManagementEvent Time, Length and TypeMedication Blood LevelsMenstrual CycleGlucose LevelsKetone LevelsDaily NotesVNS Magnet SwipeRescue MedicationsDaily Variables


Points of Access

www.SeizureTracker.comAndroid MobileApple Mobile/Watch (NCH Collaboration)Alexa Home/Wearables/Etc.


Rescue Medication Recording

Rescue Medications (admin date /time)Event Time Time Length

Website Data Features…

Within a Single Event vs. Cluster (Acute Repetitive Seizure)


Mobile Rescue Medication Recording

Within a single event

Timer

Rescue Med Administration Button

Alert Timer

Mobile Quick Capture

Within a Cluster (Acute Repetitive Seizure)


Mobile Rescue Medication RecordingWithin a Cluster

Navigate toRescue

Medication Tool

Manually record admin details

Add Rescue Medication Manually


Seizure Tracker Reports

Profile InformationSeizure Counts By Month/WeekEmail or Print ReportsMultiple Graph TypesCustomizableInclude All Textual DataVideo Icon Links to Video PlayerMedication / Treatment HistoryFlagged Seizure Activity


Valet Management System

Manage Multiple User AccountsAccess Level Choices Email Invites

Clinical DashboardView inside/outside clinic visitLeverages Data VisualizationsConnect through MyChart exchange

Electronic Health Record Integration

Epic -> Cerner - > Etc.Nationwide Children’s Hospital (primary development partner) PELHS collaboration

Seizure Frequency

Stores in EHRStandardized data (PELHS)Pushed from STResearch potential


New Collaborations

Natural History Database Data Sharing

Dynamic population representationsTSC/Epilepsy specific treatment infoSSY found on the Seizure Tracker home page “Resources” tab

Webpage Content

Link your Seizure Tracker data with the TS Alliance Natural History Database and Bio-sample Repository

Using Seizure Tracker to Keep Doctors Updated

Documents

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