United Nations Economic Commission for Europe Statistical Division Measuring Disability...

United Nations Economic Commission for EuropeStatistical DivisionUnited Nations Economic Commission for EuropeStatistical Division

Measuring Disability Statistically

A Challenging Task!

Angela Me, Chief Social and Demographic Statistics Section

- UNECE Statistical DivisionBishkek, 13-15 December 2006

Slide 2

Disability in Central Asia (1999)

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Kazakhstan Kyrkyzstan Uzbekistan Azerbaijan

New registered cases of disability per 100,000 population Source: Highlights on Health, WHO-Europe


Slide 3

Disability in Central Asia (Tajikistan)


Slide 4

Disability in Central Asia (Uzbekistan)


Slide 5

Disability in SEE and CIS countries

Source: Children and disability in transition in CEE/CIS and Baltic States, UNICEF 2005


Slide 6


Statistician in Georgia:

“Formerly families tried to hide cases of disability, while at the present time they hope to gain help by registering their children”

Source: Children and disability in transition in CEE/CIS and Baltic States, UNICEF 2005


Slide 7


Disability statistics focus on people who are registered:

• in social security records• Disability registers • Medical records

The Soviet concept of disability relied upon a set list of medical conditions for defining

disability


Slide 8


Institutions that deal with disability are mostly:• Ministries of health • Ministries that manage Social Security

System

Why should National Statistical Office be concerned about disability statistics?

What role can National Statistical Offices have to improve disability statistics?


Slide 9

Disability rates in the world

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Singapore (1985)

Pakistan (1981)

Brazil (1991)

Philippines (1995)

Thailand

Colom

bia (1993)

Kyrgyzstan (2002)

Sri Lanka (1986)

Gaza Strip (1996)

India (2001)

Uzbekistan (2001)

Turkey (2002)

Egypt (1996)

Korea (Republic of) 2005

Malta (1995)

Italy (1994)

China (1987)

Japan (2002)

Poland (1988)

Netherlands (1986)

Sweden (1988)

Spain (1986)

Australia (2003)

Norw

ay (1991)


Slide 10

Concept of disability in CIS countries

Countries around the world use a different definition of disability

Who is a person with disability?

Tajikistan: a person is defined as a person with physical, intellectual or mental abnormality

Uzbekistan: a person who is in need of aid because he/she has physical or mental problems. Daily activities such as moving, orientation, speech, behavioural control, and/or work on one’s own are completely or partially limited.


Slide 11

Concept of disability in the world


Netherlands: a person who is limited in his or her functioning as a result of a physical or mental impairment. Such limitation is of a lasting or permanent nature, which means that people with disability are threatened in their personal development

Sweden: a person with a permanent physical, mental or intellectual limitation of a person’s functional capacity that is a consequence of an injury or illness that existed at birth, arose thereafter or may be expected to arise.


Slide 12



United Kingdom: a person who has a physical or mental impairment which has a substantial and long-term adverse effect on his ability to carry out normal day-to day activities.


Slide 13



UN Convention (2006): Persons with disabilities include those who have long-term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participation in society on an equal basis with others.


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There are no right or wrong definitions of disability (they depend on the purpose)

What a society define as “disability” reflects its conception of a normal and socially

functional human being

Since social values and norms change overtime, the notion of disability has changed overtime and in different countries


Slide 15


From

a Medical Definition of disability – based on the medical condition as an

individual pathology

To

A concept of disability based on the consequences of diseases (functioning) and/or social

participation


Slide 16


• The workshop focuses on the new concepts of disability

• It aims at helping to broaden the view related only to medical conditions/social security benefits

• National Statistical Offices have a major role in measuring this new concept of disability


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A broader concept of disability can be measured only through population-based data collection because the focus is on the individual’s experience

However – in order to be able to work with COMPARABLE statistical information, methodological aspects are of great

importance


Slide 19


The role of National Statistical Offices in measuring disability in:

• Health Interview surveys

• Living Standard Measurement Surveys

• Population Census

• Other on-going surveys


Slide 20

Content of the workshop

• Different purposes, different definitions/approaches to disability

• International definitions and classification

• Measurement of disability based on international standards: Sources Methods

• Information needed on persons with disabilities

• Washington Group and the role of Central Asian countries in this international work


Slide 21

Together we will deal with…

• Problems connected with the sensitivity of the concept “Disability”In defining WHAT should be measuredIn developing the content of questionnairesIn developing the techniques of interviewingIn training interviewersIn participating to work out good

methodology internationally

United Nations Economic Commission for Europe Statistical Division Measuring Disability...

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