Triangle Area Ostomy Association

March 2019

IN THIS ISSUE:

President’s Message Page 1 Events Calendar Page 1 News and Updates Page 1 Member Information Page 2 WOC Nurses Page 2 Contact Information Page 2 Conference Scholarships Page 3 February Minutes Page 4 Exercise Page 5 TAOA Membership Form Page 5

NEWS AND UPDATES

Our March program will be the vendor fair. Suppliers of ostomy products will be present to talk about their new products. And members can request samples of products they are interested in trying.

The TAOA Board needs member support! We are currently looking for a Vice President, Secretary/Membership Coordinator and new Web Master.

If you know of an event where you think TAOA would benefit from setting up an information table, please let Dan Richards know.

OUR MISSION: TAOA strives to provide emotional and educational support for those with an

intestinal or urinary diversion or who anticipate the surgery. We support The Friends of Ostomates Worldwide (FOW) by contributing ostomy supplies to be shipped to underprivileged ostomates in

foreign countries.

CALENDAR OF EVENTS:

March 5 Mardi Gras March 5 TAOA Meeting, Rex, 7:15 pm March 10 Daylight Savings begins March 12 TBC Meeting Chapel Hill, 7 pm March 17 St. Patrick’s Day March 18 CFA Meeting Rex, 7:30 pm March 20 Start of Spring, Spring Equinox

TRIANGLE AREA OSTOMY ASSOCIATION (TAOA)

TAOA is a non profit organization dedicated to advancing ostomy health through advocacy, education, and profes-sional interaction. We are an affiliated support group of the The United Ostomy Associations of America, Inc. Membership is open to ostomates, nurses and friends who support our mission.

New members are always welcome. Please refer to the membership form on the last page.

President’s Message

Thank you to everyone who attended our February meeting that featured the ins and outs of Crohn’s disease. We try to present programs that apply to as many of us as possible, but it is also good to see the varied paths that our members take to ostomy surgery. A wider base of knowledge helps us understand and support each other. Our meeting in March is the vendor fair! This is an amazing chance to speak to many of the company representatives as well as distributors. Come check out some new products in person and even request samples. The vendor fair is one of the best meetings of the year so I hope to see you there. Regards, Dan Richards

DISCLAIMER: Articles and information appearing in this newsletter are not necessarily endorsed by the Triangle Ostomy Association and may not be applicable to every individual. Always consult your physician or WOC Nurse for all medical advice.

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WOC Nurses

Wake Med Leigh Ammons 919-350-7668 Melanie Johnson 919-350-7668 Debbie Orr 919-350-7668 Gloria Tabron 919-350-7668 Meredith Sharp 919-350-7668

Wake Med Cary Joanna Burgess 919-350-5231

UNC Hospital Donna Brickman 984-974-9234 Juliet Idiabonya 984-974-9234 Lisa Jenkins 984-974-9234 Lara Leininger 984-974-9234 John Motko 984-974-9234 Donna Partin (outpt) 984-974-9344 Janet Rankin 984-974-9234 Jennifer O'Brien 984-974-9234

Duke Regional Tom Hobbs 919-470-7215 Felicia Street 919-470-6145

Duke Ronda Bowles 919-681-4678

Jane Fellows 919-681-7743

Kelly Cowell 919-681-1648

Michelle Rice 919-681-2436

Angela Richardson 919-684-9954

Leanne Richbourg 919-681-6694

Katie Smith 919-681-5675

Stepahnie Stokes 919-681-1785

Stephanie Yates (outpt) 919-613-2035

Mary Ann Whaley 919-613-5583

Sarah Britt 919-681-4678

Duke Raleigh Amanda Eltz 919-954-3725

Krys Dixon 919-954-3446

Maria Parham Hospital Kathy Thomas 252-436-1700

Durham VA Medical Center Reba Giles 919-286-0411 X 6177 Sara Harbison 919-285-0411 X 5297

Rex Hospital Angela Joyner 919-784-2048 Rachel Breazeale 919-784-2048 Teri Ourada 919-784-2048

TAOA DUES POLICY

Annual Membership Dues support TAOA & UOAA. A statement for $20 Dues is issued each June. Please pay to TAOA prior to September. Attach membership form on page 5 of Newsletter. Triangle WOCN’s & Professional Associates receive a Courtesy Membership in appreciation for their support of TAOA.

TRIANGLE BLADDER CANCER SUPPORT GROUP

Date: Second Tuesday of the Month

Time: 7 pm – 8:30 pm

Place: SECU Family House,

123 Old Mason Farm Road

Chapel Hill, NC 27517

Contact: Ritchie Briggs

919-493-0551

trianglebcs@gmail.com

www.trianglebcs.com

CCFA SUPPORT GROUP

Date: Third Monday of the Month

Time: 7:30 pm – 9:00 pm

Place: Rex Healthcare

Contact: Reuben Gradsky

gutcheckrdu@gmail.com

Group Officers and Contact Info President: Dan Richards 919-624-3075 Vice President: Vacant Treasurer: Ruth Rhodes 919-782-3460 Secretary: Vacant Newsletter: Alison Cleary 919-924-3325 Webmaster: Ed Withers 919-553-9083 FOW Coordinator: Jeff Burcham 919-847-9669 Visitor Coordinator. Vacant Program Coordinator: Stephanie Yates 919-613-2035 Prof. Advisor: Stephanie Yates 919-613-2035

All Officers are available for member support

TAOA MEETING INFORMATION

MEETING: Meetings are held on the 1st Tuesday of each month, September through June. Time: 7:15pm to 8:30pm. There is NO meeting in July or August. LOCATION: Rex Hospital, 4420 Lake Boone Trail, Raleigh NC 27607. From the parking deck use the Main En-trance to the Lobby. The meeting is in the main Waiting Room on the left. POLICY FOR INCLEMENT WEATHER: When Wake County Schools are closed due to weather conditions TAOA will NOT meet that even-ing. To verify a cancellation call Rex Hospital at 919-784-3100.

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Conference Attendee Reimbursement of Expenses Scholarship (C.A.R.E.S.) program

(from United Ostomy Associations of America at www.ostomy.org ) As in past years, UOAA is offering the C.A.R.E.S. Program. As you know, our 7th National Conference is being held this coming August 6th-10th, 2019. UOAA offers C.A.R.E.S. scholarships to current members of UOAA's Affiliated Support Groups (ASGs) who wish to attend a UOAA biennial National Conference and are seeking financial assistance. All appli-cants must be a first time UOAA National Conference attendee. This program financially aides those who have had ostomy or continent diversion surgery and who would like to attend UOAA’s biennial National Conference. This program assists with the travel and lodging expenses that could otherwise hinder a person from attending. The purpose of this program is to address the needs of the new ostomate and/or first time attendee, especially by facilitat-ing the “emotional healing” that is necessary for someone who has recently had surgery. Attending a National Conference is one of the best ways to learn and see firsthand that an ostomy does not change one’s ability to live life to the fullest. A C.A.R.E.S. sponsorship is not an all-expenses paid trip, but a way to help those who need some financial assistance. Please review the program overview and criteria letter that must be met by all applicants. Applicants must submit a completed application no later than April 8, 2019 to apply for UOAA’s 7th National Con-ference that will be held in Philadelphia, PA from August 6-10, 2019. The applications will be evaluated by the C.A.R.E.S Program Selection Committee and up to 6 qualified recipients will be chosen. Applicants who are to receive the scholar-ship will be notified by April 30, 2019. See the following links for information and application form:

CARES Applicant Criteria CARES Application Form Letter to Prospective Applicants Or see a board member for assistance accessing this information.

Minutes TAOA Meeting February 5, 2019 President Dan Richards opened this meeting at 7:30 PM following a social period with delicious refreshments pro-vided by Lou Spagnardi. Dan welcomed two new visitors & 13 members in attendance. He thanked Lou for bring-ing the evening’s refreshments. ANNOUNCEMENTS: 1) Ruth Rhodes, Treasurer presented the 2018 TAOA financial report. Expenses in 2018 were $1799.53. Re-

ceipts were $1795.00. The year’s final balance was $3853.80. A balance of $2000.00+ is required to avoid banking fees. Therefore our actual working balance, beginning 2019, is $1853.80.

2) Affiliated Support Group (ASG) dues of $105.00 were paid to UOAA, for 2019. 3) Special good wishes were extended to Stephanie Yates, WOCN, for her Feb.9th Birthday. She was presented a

card and gift tower of 3 miniature Bundt Birthday Cakes in varied flavors. 4) Members receiving Newsletters via U.S. Mail received Jan.& Feb. newsletters combined. Rex did not print in

time for a Jan. mailing. We regret the delay. 5) Our March meeting will provide the annual “Vendor Fair” featuring the major Ostomy & Mail Order Supply

Companies. New & known ostomy products will be displayed & Reps. will discuss any personal concerns you may have. Samples are provided on request. Mail Order Reps. will distribute their catalogs, discuss ordering, Insurance coverage & other questions/concerns. Our “Vendor Fair” is a very worthwhile event.

PROGRAM: TAOA Advisor & Program Chairman, Stephanie Yates, WOCN, introduced Duke Gastroenterolo-gist, Dr. Karen Chachu, MD, PhD. Dr. Chachu spoke about the history, diagnosis & treatments of IBS, Crohn’s Disease & Ulcerative Colitis. We appreciate her excellent presentation which better informed us about the condi-tions that affect many of our members. ADJOURNMENT: We hope to have a large attendance for our “Vendor Fair” on Tues.March 5th at 7:15PM. Our Past President, Sam D’Angelo, has volunteered to provide refreshments. This meeting was adjourned at 8:30 PM. Respectfully submitted, Ruth Rhodes, Sec./Treas.

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TAOA MEMBERSHIP FORM

PLEASE PRINT LEGIBLY Date:______________ Name: ________________________________________ Spouse:________________________ Address:_____________________________________________________________________ ____________________________________________________________________________ Home Phone:_________________Cell Phone:_____________________ Email Address:_______________________________________________ Receive Newsletter via: [ ] Email [ ] US Mail Year of Surgery:________ Type of Ostomy: [ ] Colostomy [ ] Ileostomy [ ] Urostomy (Ileal conduit) [ ] Other:______________________________________[ ] Support/No Ostomy Comments (cont. on reverse side)_________________________________________________ ____________________________________________________________________________ [ ] Complimentary Membership if dues are not affordable. (Info. is confidential) [ ] Affiliate Membership. WOCN’s/PROF.ASSOC’s. Courtesy exemption of dues. Dues $20.00. Donations (optional) defray costs of shipping supplies to FOW. Amt. Enc. $____________ [ ] Cash [ ] Check [ ] MO Issue payment to TAOA.

Mail payment with this completed form to:

Ruth Rhodes, Sec./Treas./ 8703 Cypress Club Drive/Raleigh, NC, 27615

Exercise

Exercise is as important for people with ostomies as it is for people without ostomies. But there are some considerations that should be tak-en into account before starting a new exercise routine. Check with your doctor to make sure you are ready for exercise,

especially if you have recently had surgery. Keep yourself hydrated, particularly if you have an ileostomy. Drink

plenty of fluids to keep your stoma healthy and to avoid dehydra-tion.

If you are starting to exercise after surgery or if you are just not used to regular exercise, walking is the easiest and most effective form of exercise.

Talk to your doctor about any abdominal exercises. You may be at an increased risk of hernia around your stoma due to straining or heavy lifting.

Core strengthening for core stability and flexibility is important, but again talk to your doctor about core strengthening exercises before starting them.

Two of our own WOCNs, Lara Leininger and Angela Richardson have a video on YouTube of core exercises for the ostomate. Find it at https://youtu.be/QUEPwYEvbis

Exercise

Exercise is as important for people with ostomies as it is for people without ostomies. But there are some considerations that should be tak-en into account before starting a new exercise routine. Check with your doctor to make sure you are ready for exercise,

especially if you have recently had surgery. Keep yourself hydrated, particularly if you have an ileostomy. Drink

plenty of fluids to keep your stoma healthy and to avoid dehydra-tion.

If you are starting to exercise after surgery or if you are just not used to regular exercise, walking is the easiest and most effective form of exercise.

Talk to your doctor about any abdominal exercises. You may be at an increased risk of hernia around your stoma due to straining or heavy lifting.

Core strengthening for core stability and flexibility is important, but again talk to your doctor about core strengthening exercises before starting them.

Two of our own WOCNs, Lara Leininger and Angela Richardson have a video on YouTube of core exercises for the ostomate. Find it at https://youtube.com/watch?v=QUEPwYEvbis

Exercise

Exercise is as important for people with ostomies as it is for people without ostomies. But there are some considerations that you should take into ac-count before starting a new exercise routine.

Check with your doctor to make sure you are ready for exercise, espe-cially if you have recently had surgery.

Keep yourself hydrated. Drink plenty of fluids to keep your stoma healthy and to avoid dehydration.

If you are starting to exercise after surgery or if you are just not used to regular exercise, walking is the easiest and most effective form of exer-cise.

Talk to your doctor about any abdominal exercises. You may be at an increased risk of hernia around your stoma due to straining or heavy lifting.

Core strengthening for core stability and flexibility is important, but again, talk to your doctor about core strengthening exercises before starting them.

Two of our own WOCNs, Lara Leininger and Angela Richardson made a YouTube video of core exercises for the ostomate. You can find it by searching for “core muscle exercises for the ostomate” on YouTube. Or type in https://www.youtube.com/watch?v=QUEPwYEvbis Content taken from UOAA and Convatec web sites: https://meplus.convatec.com/articles/post-surgery-dos-and-don-ts-of-exercise/ https://www.ostomy.org/get-back-in-the-game/

8703 Cypress Club Drive Raleigh, NC 27615

OUR THANKS TO

FOR PROVIDING THE PRINTING OF THIS NEWSLETTER

NEXT MEETING: Tuesday, March 5, 2019 at 7:15 pm, Rex Hospital PROGRAM: Vendor Fair Hosted by: Suppliers of ostomy products