Triangle Area Ostomy Association - raleighuoa.org · Triangle Area Ostomy Association May 2014...

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Triangle Area Ostomy Association May 2014 President’s Message: I am honored to have been selected as president of the TAOA. My focus will be to encourage present members to attend meetings monthly and to find ways to enhance our present membership to include anyone who demonstrates a need or desire to learn more about ostomies. If you have any questions or concerns at any time, please reach me at my e-mail address: [email protected] . I will respond as soon as possible and provide you with an e-mail address or phone number of one who will be able to assist you if I cannot. Please plan to attend our next meeting on Tuesday, May 6 and bring along your spouse. We will separate into four groups, (colostomy, ileostomy, urostomy, and spouses of ostomates), to discuss our particular situations with our own ostomies. I sincerely hope to see everyone there. Respectfully submitted, Sam DeAngelo, President IN THIS ISSUE: May Birthdays Page 1 Nurses Week Recognition Page 1 BCAN Walk for Bladder Cancer Page 1 Local Support Group Info Page 2 Member Information Page 2 WOC Nurses Page 2 Minutes Page 4 TAOA Membership Form Page 5 TAOA Dues Policy Page 5 Memorial - Cliff Doehring Page 5 NEWS AND UPDATES May Program : Discussion groups by ostomy type led by WOC nurses Please join us for this informative sharing opportunity. There will be groups for urostomy, colostomy, ileostomy and spouse/support person. June Program : Terri Kuczynski, a counselor with the Rex Hospital Palliative Care team, will lead a discussion about dealing with your feel- ings about your ostomy . Terri has spoken to our group often and always leads a great discussion. Summer Break - No meetings in July and August The Board will meet to plan for next year. Please give your suggestions for programs to Stephanie or any of the Board members. Still seeking a new newsletter editor - The Bypass is produced in Microsoft Publisher currently and a template is set up. E-mail is essential to receive the content to include. Please contact one of the board mem- bers if you are interested in volunteering. CALENDAR OF EVENTS: May 3 BCAN Walk, Hillsborough May 5 Cinco de Mayo May 6 TAOA Meeting, Rex, 7:15 pm May 11 Mother’s Day May 13 TBC Meeting Chapel Hill, 7 pm May 19 CCFA Meeting Rex, 7:30 pm May 26 Memorial Day Reuben Graksky May 13 Blanche Bahamonde May 21 Billy Adams May 30 May 6-12 is Nurses Week. The TAOA wishes to honor our WOC nurses as we deeply appreciate you and are grateful for your gifted abilities, unlimited kindness, and your many expressions of expert care. HAPPY NURSES WEEK TO YOU ALL! STEP UP! Date: Saturday, May 3, 2014 Time: Noon Location: 127 N. Churton Street in downtown Hillsborough For more info: http:// trianglewalk.kintera.org/faf/home/ default.asp?ievent=1099728

Transcript of Triangle Area Ostomy Association - raleighuoa.org · Triangle Area Ostomy Association May 2014...

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Triangle Area Ostomy Association

May 2014

President’s Message:

I am honored to have been selected as president of the TAOA. My focus will be to encourage present members to attend meetings monthly and to find ways to enhance our present membership to include anyone who demonstrates a need or desire to learn more about ostomies. If you have any questions or concerns at any time, please reach me at my e-mail address: [email protected]. I will respond as soon as possible and provide you with an e-mail address or phone number of one who will be able to assist you if I cannot. Please plan to attend our next meeting on Tuesday, May 6 and bring along your spouse. We will separate into four groups, (colostomy, ileostomy, urostomy, and spouses of ostomates), to discuss our particular situations with our own ostomies. I sincerely hope to see everyone there. Respectfully submitted, Sam DeAngelo, President

IN THIS ISSUE:

May Birthdays Page 1

Nurses Week Recognition Page 1

BCAN Walk for Bladder Cancer Page 1

Local Support Group Info Page 2

Member Information Page 2

WOC Nurses Page 2

Minutes Page 4

TAOA Membership Form Page 5

TAOA Dues Policy Page 5

Memorial - Cliff Doehring Page 5

NEWS AND UPDATES

May Program: Discussion groups by ostomy type led by WOC

nurses — Please join us for this informative sharing opportunity. There

will be groups for urostomy, colostomy, ileostomy and spouse/support

person.

June Program: Terri Kuczynski, a counselor with the Rex Hospital

Palliative Care team, will lead a discussion about dealing with your feel-

ings about your ostomy . Terri has spoken to our group often and always

leads a great discussion.

Summer Break —- No meetings in July and August

The Board will meet to plan for next year. Please give your suggestions for programs to Stephanie or any of the Board

members.

Still seeking a new newsletter editor - The Bypass is produced in

Microsoft Publisher currently and a template is set up. E-mail is essential

to receive the content to include. Please contact one of the board mem-

bers if you are interested in volunteering.

CALENDAR OF EVENTS:

May 3 BCAN Walk, Hillsborough

May 5 Cinco de Mayo

May 6 TAOA Meeting, Rex, 7:15 pm

May 11 Mother’s Day

May 13 TBC Meeting Chapel Hill, 7 pm

May 19 CCFA Meeting Rex, 7:30 pm

May 26 Memorial Day

Reuben Graksky May 13 Blanche Bahamonde May 21 Billy Adams May 30

May 6-12 is Nurses Week. The TAOA wishes to honor our WOC nurses as we deeply appreciate you and are grateful for your gifted abilities, unlimited kindness, and your many expressions of expert care.

HAPPY NURSES WEEK TO YOU ALL!

STEP UP! Date: Saturday, May 3, 2014

Time: Noon

Location: 127 N. Churton Street

in downtown Hillsborough

For more info: http://

trianglewalk.kintera.org/faf/home/

default.asp?ievent=1099728

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TAOA MEETING INFO: MEETING:

The first Tuesday of the month, September – June.

Time: 7:15pm NO meeting in July or August.

LOCATION:

Rex Hospital, 4420 Lake Boone Tr., Raleigh, 27607.

Enter through Main Entrance from parking deck.

Immediately turn LEFT into the Main Waiting Room.

INCLEMENT WEATHER:

To verify a cancellation, call Rex Hospital at 919-784-3100

If the Wake Co. Schools are closed due to weather

conditions, there will be NO meeting that evening.

DISCLAIMER

Articles and information appearing in this newsletter are not necessarily en-

dorsed by the Triangle Ostomy Association and may not be applicable to every-

one. Always consult your physician or WOC Nurse for all medical advice.

TRIANGLE AREA OSTOMY ASSOCIATION (TAOA)

TAOA is a local chapter affiliate of The United Ostomy Associations of America, Inc. Membership is open to

ostomates, nurses and others who support our mission. The UOAA chapter affiliation fee is included in

membership dues paid annually to TAOA. Each member receives a subscription to THE BY-PASS, our

monthly newsletter publication. New members are always welcome.

GROUP OFFICERS AND CONTACT INFO: All officers are available for member support

President: Sam DeAngelo 919-552-7890

Vice President:

Secretary: Bonnie Sessums 919-403-7804

Treasurer: Ruth Rhodes 919-782-3460

Editor:

Webmaster: Ed Withers 919-553-9083

FOW Coordinator: Jeff Burcham 919-847-9669

Visitor Coordinator: Stephanie Hughes 919-480-1172

Prof. Advisor: Stephanie Yates 919-613-2035 Website: www.RaleighUOA.org or

www.triangleostomy.org

Email: [email protected]

CCFA SUPPORT GROUP

Date: Third Monday of the Month

Time: 7:30 pm – 9:00 pm

Place: Rex Healthcare

Contact: Reuben Gradsky

[email protected]

TRIANGLE BLADDER CANCER

SUPPORT GROUP

Date: Second Tuesday of the Month

Time: 7 pm – 8:30 pm

Place: Carolina Pointe, Chapel Hill,

NC

Contact: David Langham

919-948-0589

[email protected]

www.trianglebcs.com

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WOC Nurses

Wake Med

Leigh Ammons 919-350-7668

Melanie Johnson 919-350-7668

Debbie Orr 919-350-7668

Wake Med, Cary

Joanna Burgess 919-350-5231

UNC Hospital

Donna Brickman 919-843-9234

Juliet Idiabonya 919-843-9234

Lisa Jenkins 919-843-9234

Barbara Koruda 919-843-9234

Lara Leininger 919-843-9234

John Maotko 919-843-9234

Donna Partin (0utpt) 919-966-9344

Janet Rankin 919-843-9234

Duke Regional

Tom Hobbs 919-470-7215

Felicia Street 919-470-6145

Duke

Jane Fellows 919-681-7743

Michelle Rice 919-681-2436

Angela Richardson 919-681-7743

Leanne Richbourg 919-681-6694

Stephanie Yates (outpt) 919-613-2035

Duke Health Raleigh Hospital

Amanda Eltz 919-954-3725

Krys Dixon 919-954-3446

Maria Parham Hospital

Kathy Thomas 252-436-1700

Durham VA Medical Center

Reba Giles 919-286-0411 X 6177

Sara Harbison 919-285-0411 X 5297

Rex Hospital

Angela Joyner 919-784-2048

Rachel Breazeale 919-784-2048

Teri Ourada 919-784-2048

OUR MISSION

We strive to provide assistance to persons who have, or anticipate having, a surgical diversion of the intesti-

nal or urinary tract (Colostomy, Ileostomy, Urostomy, Continent diversion). We provide personal and family

support, educational services and interaction with our professional community. We support Friends of

Ostomates Worldwide by donating supplies for distribution to ostomates around the world.

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For more information contact our

Customer Interaction Center at

1-800-422-8811 Monday – Thursday,

8:30 a.m. – 8:00 p.m., ET

Friday, 8:30 a.m. – 6:00 p.m., ET

www.ConvaTec.com

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MINUTES OF THE APRIL 1, 2014

MEETING OF THE TRIANGLE AREA OSTOMY ASSOCIATION Sam Bundy, President, called the April meeting to order at 7:30 PM. He welcomed 26+ members and guests including one first

time attendee. Sam thanked everyone for coming to the January and February meetings in the winter weather and stated that the

March meeting was canceled because of the closing of Wake County schools due to inclement weather. He thanked Ruth Rhodes for

calling and Ed Withers for emailing as many members as possible about the cancellation. Sam reminded everyone of the TAOA’s

policy of canceling meetings when Wake County schools are closed due to inclement weather—even though some members may be

able to get to the meetings. He also reminded everyone to call Rex Hospital when in doubt as the Rex operators will be notified of

cancellations.

Sam also announced that former WOC nurse John Worsham who was at UNC Hospital has been in India for the past two years

with his wife setting up health clinics. John was in town for a few weeks and is going back to India for two more years. Sam will

staying in touch with him and will ask him to speak to our group when he returns.

Ruth Rhodes, treasurer, announced that she had received a thank you note from Robert Cornish’s daughter for our donation to

hospice in memory of her father. Joanna Burgess, WOC nurse at Wake Med, stated that member Cliff Doehring passed away on

January 25. She has been in touch with his daughter and Cliff over the past few months and had gotten to know Cliff well.

Stephanie announced that the speaker for our March meeting, Terri Kuczynski, family counselor at Rex Hospital, has agreed to

speak at our June meeting. We will have break-out sessions by ostomy type with area WOC nurses at our May meeting. She also

stated that we still need a newsletter editor as soon as possible and that anyone who was interested should contact her. She is willing

to assist anyone and would walk them through the program. If you are interested at all, please talk to Stephanie as soon as possible!

Stephanie then introduced Dr. Matthew Milowsky, Section Chief of GU Oncology at UNC, as our guest speaker. Dr. Milowsky

does research on urological cancers including prostate, kidney, bladder and testicular cancers. He focused mainly on bladder cancer

and said that all bladder cancers are not the same. 70% of bladder cancers are non-invasive and can be treated in different ways in-

cluding medication and resections, 25% of bladder cancers are muscle invasive and require surgery and 5% are not curable. Most

bladder cancers can be treated with a combination of chemotherapy, radiation and surgery. After his very informative talk, Dr.

Milowsky answered questions from members.

Sam Bundy had announced in the last newsletter that he would be resigning as President effective at this meeting. He stated that

he had only agreed to be President for 2 years and had served for 2 years and 3 months. Sam said that Sam DeAngelo, Vice Presi-

dent, had agreed to accept the position of President. Bonnie Sessums moved that we elect Sam D. as President and Billy Adams sec-

onded the motion. Sam DeAngelo was elected unanimously.

Stephanie announced that the bladder cancer support group iss having a walk in historic Hillsborough the Saturday before our

next meeting and she will put the information in our next newsletter. Funds support bladder cancer research.

The meeting adjourned at 8:30 PM. Next meeting will be held on Tuesday, May 4 with refreshments provided by Bruce Curtis.

Respectfully submitted,

Bonnie Sessums

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TAOA MEMBERSHIP FORM

Date: ___________________

Name: __________________________________________________ Spouse:_________________

Address: _________________________________________________________________________

Phone: __________________________ Email: __________________________________________

Year of Surgery: ____________ Preference for Newsletter delivery: [ ] Email [ ] U.S. Mail

Type of Ostomy: [ ] Colostomy [ ] Ileostomy [ ] Urostomy (Ileal conduit)

[ ] Other _______________ [ ] Supporter of TAOA/No Ostomy

Comments: ______________________________________________________________________

ANNUAL DUES $20.00 PAY TO: TRIANGLE AREA OSTOMY ASSOCIATION (Abbreviation: TAOA)

PAYMENT ENCLOSED: $_____________ [ ] CASH [ ] CHECK [ ] MONEY ORDER [ ] I request Complimentary Membership. I cannot pay dues at this time. (Information is Confidential) MAIL COMPLETED FORM WITH PAYMENT OF DUES TO:

Ruth Rhodes, Treasurer / 8703 Cypress Club Drive / Raleigh, N.C. 27615

TAOA ANNUAL DUES POLICY

*YOUR ANNUAL STATEMENT FOR DUES is issued in the June edition of the BY-PASS Newsletter. *ANNUAL PAYMENT IS DUE PRIOR TO AUGUST 31

st EACH YEAR. Issue payment with TAOA Form.

*Please notify the Treasurer if your payment must delayed or if you are unable to pay. (Confidential) *Failure to reply will result in termination of membership. Reinstatement may be requested in writing.

In Memoriam Clifford Doehring died 1/25/14 at Rex Hospital of pneumonia. A TAOA member since last May, Cliff was a foster care and adoption Social Worker. He was also an Army Veteran, an avid fisherman and hunter.

His favorite saying was ...

Friends of the Way The Way is long---let us go together The Way is difficult---let us help each other The Way is joyful---let us share it The Way is ours alone---let us go in love

To Sam Bundy for his

service as President

of the Triangle Area

Ostomy Association

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NEXT MEETING: Tuesday, May 6, 2014 at 7:15 pm, Rex Hospital PROGRAM: Discussion groups by ostomy type — facilitated by Triangle

Area WOC nurses

8703 Cypress Club Drive Raleigh, NC 27615

OUR THANKS TO

FOR PROVIDING THE PRINTING OF

THIS NEWSLETTER