Treating fibromyalgia naturally — so you can shine again

by Marcelle Pick, OB/GYN NP

What is fibromyalgia? Stress, hormonal balance, and fibromyalgia — what’s the connection? An inside look at the pain — fibromyalgia and the central sensitization theory Women to Women’s SHINE protocol — the natural approach for treating

fibromyalgia

I see many women in my practice who feel discouraged and disheartened by the advice they’ve received about fibromyalgia. The sleeplessness, extreme fatigue, and widespread chronic pain that accompany fibromyalgia can be unbearable for some women, but the medical community has long been stumped by this confusing and controversial condition. It was ignored by conventional medicine for years, and in some circles fibromyalgia is still questioned as a “real” diagnosis. But fibromyalgia is real, and I know there are thousands of women out there who deserve compassionate and effective care. We don’t have all the answers yet, but pain specialists and functional practitioners are working to get to the root of fibromyalgia and similar pain syndromes, to give you the answers you want and deserve.

Recently the FDA approved medications (Lyrica, Cymbalta, and Savella) for fibromyalgia patients, and many are thrilled that the medical community is finally recognizing their struggle. But I have to say, I think women with fibromyalgia deserve more than a prescription for their pain and suffering, especially since the initial FDA reviewers of Lyrica (which was first examined for treatment of diabetic nerve pain) felt its effects were unimpressive. On top of this, Lyrica has some unappealing side effects — including weight gain, swelling, dizziness, and drowsiness (the last thing a fibromyalgia patient needs!).

There is a better way — I promise you.

It may seem surprising, but I have lots of patients who recover from fibromyalgia, and others who improve tremendously by learning to nurture their bodies from the inside out. I see this as a condition that strikes at the very core of a woman’s being, where there can be many underlying issues to uncover — from sleep and diet, to viruses and bacterial infections like Lyme disease and other co-infections, to how we think and feel. It’s oftentimes a difficult road to travel. But youcan feel good again, if you’re willing to roll up your sleeves, do

Fibromyalgia tender pointsLocation of the 9 paired tender points comprising the 1990 American College of Rheumatology criteria for fibromyalgia.

some digging, and learn some new ways of being. Let’s take a closer look at fibromyalgia and your options for feeling better naturally.

What is fibromyalgia?

Some chalk it up to an energy crisis in the body’s cells, others to mixed messaging between the muscles and the brain, but no one is really certain — yet — where fibromyalgia comes from. We do know that fibromyalgia patients have chronic pain in both the upper and lower, left and right parts of the body, and that it involves a physical response to stress. We also know from functional neural imaging that the brains of patients with fibromyalgia show greater activation than control patients when given the same stimulation. So there is clearly a physiologic difference in how these patients process pain in their brains.

Some issues related to chronic pain

Many nutritional, metabolic, and infectious issues can lead to persistent pain. Consider talking with your practitioner about tests for the following concerns:

Nutritional

Low ferritin Low B12 Low folic acid (in the blood or red blood cells) Low 25-hydroxy vitamin D Low vitamin C, B1, and B2

Metabolic

Hypothyroidism

Infectious

Lyme disease Hepatitis C Ova and parasites Enteroviruses Other co-infections

Toxic

Heavy metals Pesticides Jet fuel

Adapted from Gerwin, 2005. (Seereferences.)

The symptoms of fibromyalgia overlap with many other disorders, such as chronic fatigue syndrome(CFS), myofascial pain syndrome (MPS), multiple

chemical sensitivities (MCS), temporomandibular joint dysfunction (TMJ) and interstitial cystitis (IC), and that’s just a few. This wide overlap can make it very difficult to diagnose, and even more so to treat appropriately. In 1990, the American College of Rheumatology came up with the following diagnostic criteria for fibromyalgia:

At least 3 months of widespread pain (present in the left and right side of the body, above and below the waist, and in the axial skeleton)

PLUS

11 of the specified 18 points are tender on digital palpation (see image of fibromyalgia tender points)

It’s worth noting here that these criteria were developed for research purposes, and they aren’t all that practical for those of us who see patients every day — there is a lot more to fibromyalgia than the above bullets would imply. For starters, we all know pain can vary on a day-to-day basis, so a tender point today may not feel the same tomorrow. Oftentimes women don’t have 11 tender points every day. Research shows that exposure to physical, emotional, or environmental stressors can trigger symptoms — so on a bad day you may experience more pain than you do on a good one. What’s more, many practitioners lack training on how to locate or distinguish fibromyalgia tender points from the trigger points associated with other kinds of musculoskeletal pain, like myofascial pain syndrome (MPS).

So it’s not surprising that people can be incorrectly diagnosed. If you suspect you have fibromyalgia, I encourage you to find a practitioner who is highly experienced in dealing with pain syndromes. I’m convinced fibromyalgia is more a composite of symptoms than a specific disease, so I think it’s best to focus on alleviating symptoms rather than searching endlessly for a definitive diagnosis.

Causes of persistent myalgia

Mechanical causesStructuralPosturalErgonomic

Medical causes

Infectious diseasesInflammatory disordersImmunological/allergicNutritional disordersHormonal disorders

(Adapted from Gerwin, 2005 — seereferences.)

Pinpointing an exact cause for your fibromyalgia might also be an unrealistic goal, but consider looking into nutritional, infectious, hormonal, and metabolic disorders as possible pieces to the equation — as well as your emotional history. The chart at right lists several issues that may lead to persistent myalgias and can be linked with fibromyalgia. Depending on how your lab

results come back, your treatment may vary — especially if the root cause of your pain is infectious. So it’s important to get as complete a picture as possible.

Stress, hormonal balance, and fibromyalgia — what’s the connection?

As many of my patients already know, our hormones are integral to our health. The master gland that controls our hormones is called the hypothalamus. Situated deep within our brain, the hypothalamus sends biochemical messages to the thyroid, adrenal glands, and ovaries (among others) through the pituitary gland, to regulate our metabolic balance, immune system, autonomic nervous system, and more. In turn, our tissues talk back to the hypothalamus by way of chemical messaging. If you’ve read my articles on hypothyroidism before, the HPA and HPT axes may sound familiar — these are the communication loops between the hypothalamus, the pituitary, and the adrenals (HPA) and the thyroid (HPT). Though we don’t understand the exact mechanics, it is becoming clear that these feedback loops strongly influence the symptoms we see in fibromyalgia. Let’s take a closer look at three important hormone-producing locations in the body.

Research tells us that fibromyalgia patients may suffer from disruptions in the hormonal sequences shown above. Since the hypothalamus and pituitary are central in governing many hormonal cascades, an imbalance in one area could easily affect the others. Scientists trace some of these disruptions back to environmental and genetic influences, as well as psychological stress.

(Adapted from Gupta, A., & Simon, A., 2004. -see references.)

Adrenal glands. One of the primary responsibilities of our adrenal glands is to release cortisol. We have a daily cortisol cycle, and we also release it when we’re under stress. Many of my fibromyalgia patients describe “crashing” under stress, which is most likely related to an adrenal imbalance. One review done in

2004 proposed that chronic stress leading to fibromyalgia is connected to a dysfunction in the HPA axis. The research suggests a connection between past emotional trauma and disrupted cortisol rhythms in fibromyalgia patients. But what’s remarkable is that when a woman takes steps to heal toxic emotions and support her adrenal health, not only does her stress response dramatically improve, but so do her fibromyalgia symptoms.

Ovaries. For years I’ve seen women with fibromyalgia experience more severe symptoms premenstrually, and sometimes after menopause as well. This is because estrogen, progesterone, and possibly even testosterone can all affect pain and fatigue in the body. A study done in 2005 looked at these connections, and around 50% of the women in the study said they experienced more pain and fatigue during their periods, 25% stated that their fibromyalgia symptoms started with menopause, and 26.4% said the severity of their symptoms increased after menopause. So it makes sense that by gently balancing our hormones through adrenal, thyroid, and ovarian support, we can lessen the burden of fibromyalgia. But here’s some good news to keep in mind: function in fibromyalgia patients does tend to improve over the years, and symptoms decrease with age as patients develop effective coping strategies.

Thyroid. Once a woman’s HPA axis is off-kilter, it’s much more likely her hypothalamic-pituitary-thyroid (HPT) axis will suffer, too. The two are intimately connected — see our diagram of the HPA and HPT axes for a visual. Very often when the thyroid is imbalanced, it actually stems from an adrenal imbalance. Recent research has been demonstrating an association between thyroid conditions and fibromyalgia, which seems more prevalent in women in menopause. While these relationships remain poorly understood, the symptoms we see with hypothyroidism — low body temperature, poor immune function, fatigue, and achiness — can certainly contribute to more intense fibromyalgia symptoms. So the good news is that when we address the hypothyroidism, again, fibromyalgia symptoms can also improve. (See our thyroid health section for more on how to support your thyroid.)

An inside look at the pain — fibromyalgia and the central sensitization theory

It’s hard to know exactly why fibromyalgia patients feel more pain than others, but recent research in this area is giving us clues. The problem is thought to begin in the deep tissues of the muscles and joints. There is a persistent tightening of muscles, caused by a variety of influences, which leads to poor sleep. Without sleep, the muscles don’t recover, which can lead to

continuous back-and-forth signaling between the muscles and your central nervous system. Over the long term, this changes the way our central nervous system (spinal cord and brain) processes outside stimuli, amplifying pain and sensitivity. This theory, which is one of many in the science community, is known ascentral sensitization.

One of the things I find most interesting about this theory is that the causes and effects of fibromyalgia are thought to be bidirectional. In other words, structural imbalances can cause a tightening of muscles, while tight muscles can lead to structural imbalances. Similarly, poor sleep can lead to tightening of muscles, and tight muscles can lead to poor sleep. You get the idea. It’s also interesting that sleep-disordered breathing has recently been proposed as “the missing link” in how pain syndromes develop. To the right is just one possible bidirectional scenario — you might substitute structural imbalances for poor ergonomics, or any of the other conditions and triggers shown above feeding into fibromyalgia syndrome.

The next question is, how can we stop this cycle? Two of the best and most basic steps are to foster good sleep and be sure you’re getting the nutrients your muscles need to function properly. But there is so much more you can do to naturally decrease your pain or even eliminate it altogether.

Women to Women’s SHINE protocol — the natural approach for treating fibromyalgia

Prescription medications for treatment of fibromyalgia may help in the short term, but using drugs like Lyrica, Cymbalta, and Savella is more like putting a finger in the dam to stop the rush of water than a permanent solution. In 2007, Dr. Jacob Teitelbaum published From Fatigued to Fantastic!, a wonderful book on fibromyalgia and chronic fatigue syndrome. In his book, Dr. Teitelbaum offers a natural approach called the SHIN protocol, where he asks readers to address Sleep, Hormonal imbalances, Infections, and Nutrition.

My years as a women’s healthcare practitioner have taught me that our emotional history almost universally plays a role in our health, so I always add an E to Dr. Teitelbaum’s protocol — encouraging my patients to explore their Emotions in relation to fibromyalgia. This gives us SHINE:

Sleep. Most patients with fibromyalgia list nonrefreshing sleep as a prime concern. To give your muscles and nervous system a chance to heal, you will need to get the bottom of your sleeplessness. You may want to start by reviewing our article on insomnia. If you suspect deeper sleep problems such as apnea or other sleep-disordered breathing, consider a referral to a sleep specialist. You might also consider 5-HTP to improve serotonin pathways or sublingual melatonin to reset your sleep cycle (for best results, use under the care of a qualified practitioner). Other botanical nervines like chamomile, passionflower and valerian, whether in homeopathic tinctures or teas, have been used safely for millennia.

Hormonal balance. Balancing your adrenal, thyroid, and ovarian hormones can make a huge difference in fibromyalgia. At Women to Women, we

recommend gentle phytotherapy, which works with your innate metabolic pathways. For best results, I suggest looking for products containing botanical nervines and/or adaptogens. We developed our own herbal product to support sex-hormone balance, combining black cohosh, red clover, kudzu, passionflower, chasteberry, wild yam, and Ashwagandha. More recently, we formulated an adrenal support product containing Astragalus root, Siberian ginseng (also known as eleuthero), Rhodiola and Cordyceps.

Immune health. Infectious agents like bacteria, enteroviruses, yeasts, or parasites could be one of the causes of your symptoms, and we always look to rule these agents out in our patients with fibromyalgia. Epstein-Barr virus (EBV) and Lyme disease are just two of many pathogens commonly confused with, or seen in association with fibromyalgia and chronic fatigue syndrome. Talk to your practitioner about being tested and treated appropriately. Another avenue to explore is possible allergies or sensitivities triggering or exacerbating your symptoms. The big ones I often see in fibromyalgia patients are gluten, sugar, preservatives, and other food additives. Check out our articles on allergies and gluten sensitivity — and consider an elimination diet to see if this makes a difference for you. Even if you aren’t dealing with specific infections or sensitivities, it’s wise for a patient with fibromyalgia to shore up her immune system. Studies show that taking a probioticsupplement boosts body-wide immunity.

Nutrition. Providing your body with whole, fresh foods, especially an abundance of fruits, vegetables, and high-quality fats and protein, is simply the most natural, down-to-earth, and cost-effective way to support your body. Because a stressed-out nervous system can really chew through nutrients, I also recommend a high-quality daily multivitamin/mineral complex/fish-oil regimen like the one we offer in the Personal Program. Our muscles, nervous system, adrenal glands, immune system, and the body as a whole need nutrient replenishment to carry out their everyday processes!

Some key nutrients helpful for fibromyalgia

o B-complex vitamins for energy, immunity, nerve and brain functiono Magnesium for producing energy in muscleso Selenium for optimal immune functiono Vitamin C for oxidative stresso Omega-3 fatty acids for cell membranes and moodo Vitamin D for mood, immunity, and the musculoskeletal system

Emotions. I believe that every physical condition has an emotional component, and that every emotion we feel (positive and negative alike!) leaves a biochemical signature in our bodies. What this means is that if we bury the emotional factors that play into our physical state, over time the issues will find a way to display themselves in other physical ways. In fact, a study done in the 1990’s known as the Adverse Childhood Event (ACE) Study proves it. This study found specific evidence for how negative childhood experiences can influence our health. We often hold onto memories of our past and resort to behaviors that worked for us as children. The problem is, these behaviors rarely serve us as adults and, by repeatedly engaging in them, we deprive ourselves of the opportunity to resolve core issues. I often find my patients with fibromyalgia hold deep criticism and

judgment of themselves, and that when they become more forgiving and loving with themselves, healing is much less difficult. There are many options available to help us untangle difficult emotions, including the Emotional Freedom Techniques, the Quadrinity Process, and cognitive behavioral therapy, to name just three. Time and again I’ve seen women who are willing to delve into deeper emotional issues develop coping strategies that improve their fibromyalgia.

In addition to the SHINE protocol, there are several other natural treatment concepts I’ve found helpful for my patients with fibromyalgia. Consider the following measures to bolster your fibromyalgia treatment:

Detox. From pesticides to jet fuel, to the mercury in our fillings, our bodies are constantly trying to filter out toxins. Fibromyalgia patients can lighten the load on their overburdened bodies by stimulating their natural detoxification systems. This might include the use of saunas, steam baths, mineral baths, and low-intensity exercise to induce sweat. It may also mean exploring ways to remove toxic chemicals from your environment. For example, you may try to be as “green” as possible at home, or perhaps look into talking with a biological dentist about removing mercury fillings in your mouth.

Exercise. Due to fatigue and muscle pain, many people with fibromyalgia have adopted a fairly sedentary lifestyle. It can seem like an insurmountable barrier to exercise, but once you get started the benefits accrue almost immediately. We’re not just talking in terms of improved fitness; you can also expect to experience decreased pain, more restful sleep, improved cognitive function, a sunnier emotional outlook — all told, better overall quality of life. A lot of research has been done on aquatic fitness programs — everything from “deep-water running” to aqua-robics to isokinetics in warm seawater pools — demonstrating tremendous benefits for fibromyalgia. Other research suggests the addition of whole-body vibration (WBV) to safely reduce the pain and fatigue of fibromyalgia better than exercise alone. Some long-term planning may also be needed to help you stick with it, but in the meantime, I encourage you to make a gentle start.

Mind-body work. Along the same lines of benefits derived from exercise, body-awareness practices such as qi gong and yoga, are said to improve “movement harmony,” and breathing exercises and mindfulness meditation can help diminish symptoms of fibromyalgia. Studies suggest all these methods work in part by way of calming the “noise” in the central nervous system. You might also consider other forms of mind–bodywork, like acupuncture, biofeedback, massage, osteopathic manipulation, Feldenkrais, Alexander technique, and chiropractic. These may help in correcting structural imbalances and in regulating pain. Some patients also report benefit in guided imagery exercises, such as Belleruth Naparstek’s meditation to help with fibromyalgia and chronic fatigue.

Find hope in your own light

We all glow in our own unique ways, and when we are feeling good, the world can feel our warmth and positive energy. I know fibromyalgia can dim this light, making us too tired, too discouraged, and too achy to find hope in anything, let

alone feeling better. Especially if you’ve been told by your practitioner, or by several practitioners that there is nothing they can do — or worse, that your symptoms aren’t real — it can seem like you just have to live with this. But please know that you don’t have to live in pain, and you don’t have to be on a prescription medication for the rest of your life, either.

Fibromyalgia is a syndrome caused and influenced by many, many factors, and if you start to work on even one or two of these factors, you will find that light within starting to shine again. With this new hope, you can regain the energy to work on more aspects of your life that may be affecting your health — and in time, you’ll be enjoying each brand new day.