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    TRANFEMORALPROSTHETICS

    A PATIENT CARE

    MANUAL FOR THE

    NEW AMPUTEE

    This booklet was created for informational

    purposes only. The information contained

    herein should only be used for reference

    material and is not intended to replace the

    advice of your healthcare provider(s). You

    should always consult with your physician or

    healthcare provider concerning any medical

    issues and before beginning any treatment

    regiment.

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    TABLE OF CONTENTS

    INTRODUCTION...1

    COMMONLY USED TERMINOLOGY...2

    COMMONLY USED ACRONYMS6

    BASIC ANATOMY......7

    STATISTICS.........8

    HEALING RATES..9

    MEETING YOUR PROSTHETIST....10

    POST OPERATIVE CARE.11

    IPOP PROSTHESES..11

    SHRINKERS....13DESENSITIZATION....14

    POSITIONING....14

    PHANTOM LIMB SENSATION..16

    PHANTOM LIMB PAIN.16

    EXERCISE...16

    TEMPORARY PROSTHESIS...17

    PROSTHETIC PROCESS..18

    CHECK SOCKET FITTING.21

    TEMPORARY PROSTHETIC FITTING...22

    PROSTHETIC FOLLOW UP..24

    SOCK MANAGEMENT24

    HYGIENE..26

    PHYSICAL THERAPY..26

    DEFINITIVE PROSTHESIS..28

    PROSTHETIC PROCESS..28

    PROSTHETIC HYGIENE....30

    EXERCISE...31ASSISTIVE DEVICES..31

    AMPUTEE ATHLETIC RESOURCES..33

    RESOURCES FOR THE AMPUTEE.....35

    REFERENCES..36

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    1

    INTRODUCTION

    An amputation can be both physically and emotionally

    challenging for anyone. It is important to understand

    that many new amputees function very well and

    pursue the same active lifestyle as prior to limb loss.

    This booklet aims to provide you with answers to

    many of the questions that arise before and after an

    amputation. When speaking with your healthcareprovider, it is important to know which questions to

    ask and have an idea of what to expect. Many

    questions will arise throughout the rehabilitation

    process. This booklet will answers to some of them

    and give you resources to get further information.

    Having the answers to commonly asked questions

    readily available will help you prepare for the stepsand procedures that will occur before, during, and

    after your amputation. This information can assist

    you in your return to the things you need and

    hopefully enjoy participating in.

    This booklet also provides many other resources that

    you may find useful in your recovery. There are many

    organizations that offer a variety of assistance thatrange from driving devices to sports related

    activities. This booklet attempts to turn your

    disability into a possibility by sharing the collective

    rehabilitative experiences of others with you.

    2

    Commonly used

    terminology

    Abduction a movement which brings the limb closer

    to the midline of the body

    Adduction a movement which positions the limb

    further away from the body

    Alignment the spatial relationship between the

    prosthetic socket and the prosthetic foot

    Anterior towards the front of the body

    Check Socket a temporary socket made of

    transparent plastic that is used by the prosthetist to

    diagnose the fit of the socket

    Contracture tightening of the muscles, tendons, or

    ligaments that prevents normal movement of a jointCosmesis the outer covering of a prosthesis,

    aesthetics

    Definitive Prosthesis a replacement for a missing

    limb after all post-surgical swelling has subsided

    Disarticulation amputation through a joint (i.e.

    ankle, knee, hip)

    Donning and Doffing the process of putting on and

    taking off a prosthesis

    Dorsiflexion pointing the toe or foot upwards

    Edema swelling of the tissues

    Eversion to turn outward

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    3

    Exoskeletal a prosthesis that is hollow on the inside

    and has a rigid outer coveringExtension a position of increasing the joint angle,

    straightening out

    Flexion a position of decreasing the joint angle,

    bending

    Gait Training learning, usually from a physical

    therapist, how to walk safely and properly with a

    prosthesis

    Immediate Post Operative Prosthesis an artificial

    limb that is applied in the operating room after the

    amputation has occurred

    Inversion to turn inward

    Lateral away from the midline of the body, to the

    sideLiners a sleeve or covering of the residual limb that

    is used for suspension, cushioning and protection

    Medial towards the midline of the body

    Myodesis a process during an amputation where the

    muscles are attached to bone

    Myoplasty a process during an amputation where

    the muscles are attached to opposing muscles

    Neuroma a nerve ending that is cut during an

    amputation that can ball up. Neuromas are usually

    extremely sensitive and painful

    4

    Occupational Therapist a person trained in gaining

    greater independence for patients throughrehabilitation and relearning how to perform

    activities of daily living efficiently and safely

    Occupational Therapy evaluation and training

    performed by a licensed occupational therapist which

    focuses on maximizing the activities of daily living

    Pedorthotist a trained healthcare practitioner who

    specialized in orthopedic footwear and foot orthosesPhantom Limb Pain pain that appears to come from

    an area below where the amputation occurred

    Phantom Limb Sensation the feeling that an

    amputated limb is still attached to the body

    Plantar Flexion pointing the toe or foot downwards

    Physical Therapist a person trained in therehabilitation process of patients who have limited or

    lost functions of mobility

    Physical Therapy evaluation and training performed

    by a licensed physical therapist which focuses on

    exercise, reducing pain and regaining mobility

    Posterior towards the back of the body

    Prosthesis an artificial body part

    Prosthetics the profession of evaluating,

    fabricating, fitting and adjusting an artificial limb

    Prosthetist - a trained healthcare practitioner who

    evaluates, fabricates, fits and adjust prosthetic

    devices

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    5

    Pylon a structure that is used to connect the

    prosthetic socket to the prosthetic ankle/footcomplex

    Residual Limb the portion of a limb that remains

    after amputation

    Shrinker a prosthetic sock created of elastic

    material that is used in reducing swelling of the

    residual limb

    Socket the part of the prosthesis that fits aroundand protects the residual limb; usually made of

    thermoplastic, laminated, or carbon composite

    material

    Socks a sock that is fabricated to fit the residual

    limb. It is used to manage the loss of volume in the

    residual limb throughout the day

    Sound Side Limb the non-amputated or non-affected limb

    Symes amputation through the ankle joint that still

    maintains the fatty heel pad for cushioning

    Temporary Prosthesis a prosthesis that is

    fabricated soon after amputation. This prosthesis is

    used until post-surgical swelling has subsided.

    Transfemoral amputation that occurs at a level

    above the knee joint but below the hip joint

    Transtibial amputation that occurs at a level below

    the knee joint but above the ankle joint

    6

    Commonly used

    acronyms

    ABC American Board for Certification

    ACA Amputee Coalition of America

    AKA Above Knee Amputation

    AP Anterior-Posterior

    BKA Below Knee AmputationCP Certified Prosthetist

    CPed Certified Pedorthotist

    CPO Certified Prosthetist-Orthotist

    OT Occupational Therapy/Therapist

    PT Physical Therapy/Therapist

    PTB Patellar Tendon Bearing

    TF Transfemoral

    TT Transtibial

    SACH Solid Ankle Cushioned Heel

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    7

    Basic anatomy

    Femur Thigh boneGreater Trochanter Upper, prominent part of the

    femur

    Ischiopubic Ramus Flat, sharp bone that connects

    the Ischial Tuberosity to the front of the pelvis.

    Ischial Tuberosity Lower and back part of pelvis.

    The bone you sit on.

    Pelvis Bony structure located at the base of the

    spine

    Pelvis

    Femur Ischial

    Tuberosity

    Greater

    Trochanter

    Ischiopubic

    Ramus

    8

    Statistics

    It is important for you to know that you are not alone

    in your rehabilitation process as a new amputee. The

    number of people living with an amputation is rising in

    the United States, particularly as a result of diabetic

    and dysvascular conditions.

    In the United States, there are approximately 1.9million people living with limb loss. It is estimated

    that one out of every 200 people in the U.S. has had

    an amputation.6

    Loss of a limb can occur for a number of reasons.

    With regard to amputation of a lower limb, the most

    common causes of amputation include dysvascular

    complications (possibly resulting from diabetes),

    trauma, cancer and congenital limb deficiency.

    Amputation Statistics by Cause from the National Limb Loss

    Information Center, 2006

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    9

    Healing rates after

    amputation

    The recovery rate after amputation is different for

    each person. There are no two surgeries or people

    that experience the same healing times and rates.

    Following surgery, you will not return to your room

    until about four hours after you wake up. When you

    awake, many people say that they feel as though theyhave not had the amputation because they have the

    sensation that the limb is still attached.

    On your residual limb, there will likely be a drainage

    tube to remove the excess fluids following your

    amputation. This tube usually remains in place for 24

    hours following the surgery. The surgical dressings

    are typically changed within 48 hours followingsurgery. Your physician may alter these times to suit

    your unique needs.

    Within 7-10 days, most patients are able to go home.

    Two to three weeks post-operatively your physician

    will remove the staples. During the healing period,

    which lasts anywhere from three to twelve weeks,

    the suture line will close and heal.

    When the suture line has healed, fitting for a

    temporary prosthesis may begin. Again, the time

    frames mentioned in this portion of the booklet are

    typical. Some people may experience shorter time

    frames, while others may experience complications

    that lengthen them.

    10

    Meeting your

    prosthetist

    Choosing a prosthetist is an important step in your

    rehabilitation process. You will develop a life long

    relationship with your prosthetist and will be seeing

    them often for the care of your residual limb and

    prosthesis.

    When choosing a prosthetist, you should meet with

    several different practitioners in your local area to

    determine who you feel most comfortable with. Your

    prosthetist should be open to your needs and listen

    to what you have to say. A list of ABC Certified

    practitioners can be found at http://www.abcop.org

    When you meet with your prosthetist for the first

    time, you should be prepared to ask any questions

    that you may have about the prosthetic process.Consider making a list of questions to bring to your

    appointment to ensure that all of the questions that

    all of your questions are answered. Without a list, the

    experience may be overwhelming causing you to

    forget important questions.

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    11

    Post operative

    prosthetic care

    After the amputation there are several ways of

    dressing the residual limb. The most common way of

    dressing the limb is with the use of simple gauze

    dressings. This is typically done in the operative room

    by your physician immediately following surgery.

    These dressings will then be changed periodically.

    Ipop prosthesis

    There are more aggressive approaches to post

    operative care that may include the use of a rigid

    dressing or what is termed an Immediate Post-

    Operative Prosthesis or IPOP. An IPOP is an

    immediate postoperative prosthesis that is used as anearly form of prosthetic intervention.

    The benefit of being fit with an IPOP prosthesis is

    early ambulation if allowed by your physician. An IPOP

    prosthesis is also said to help with phantom limb

    sensation, because you can see that there is a leg, or

    in this sense, a prosthesis attached.

    IPOP prostheses also protect the residual limb frombeing injured. Many times, a patient will wake up in

    the middle of the night to use the restroom, and

    forget that their limb has been amputated. When

    they get out of bed and try to stand on both limbs,

    they fall down and re-injure the surgery site.

    12

    An IPOP prosthesis will protect the end of the

    residual limb should this occur. There are many

    different types of postoperative care and your

    physician will help you choose which the best is for

    you.

    Photo from Flo-Tech. O&P Industries, Inc.Accessed 2May2007 online at:

    http://www.1800flo-tech.com/products.html

    Flo-Tech Brand IPOP prosthesis.This IPOP has all of the same basic

    components of a typical prosthesis

    (socket, knee and foot).Socket

    Knee

    Foot

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    Prosthetic shrinkers

    At some point after your surgery, your healthcare

    providers will discuss several things with you including

    the use of shrinkers, desensitization, positioning,

    contracture prevention, exercise, phantom sensation

    and phantom pain.

    To manage post-operative edema, you may be

    prescribed a shrinker or ace wrap as a means ofcompression therapy.

    Shrinkers are elastic garments that are simply pulled

    on or wrapped around the limb. They are typicallyused when the suture line is reasonably healed. Until

    that time, an ace wrap may be used. Both methods

    help to expel excess fluid that remains inside the

    limb. This helps to prepare you to wear a prosthesis

    by providing an appropriate limb shape.

    14

    Desensitization

    Desensitization is important to prepare your residual

    limb for the forces that will soon be applied with a

    prosthesis.

    The most common and easiest way to desensitize the

    limb is to gently massage the entire area several

    times a day; this will decrease the skins sensitivity.

    There are several different techniques, you shouldspeak with your physical therapist about which one is

    best for you.

    positioning

    Positioning is extremely vital to help prevent

    contractures that can cause problems when fitting aprosthesis.

    If you are going to be sitting in a wheelchair you

    should always sit up straight, keep equal weight on

    both hips and try not to slouch. Avoiding any

    prolonged periods of sitting is best if possible.

    If you sit with your hips bent (flexed) for a long

    period of time, the limb may develop a contractureand prolong the necessary therapy. This will

    negatively effect your rehabilitation. Contractures

    can cause you to be uncomfortable in your prosthesis

    and/or effect how well you are able to walk. If a

    severe enough contracture occurs, this will limit your

    prosthetic options and candidacy.

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    Proper positioning can be achieved with the use of a

    pillow while lying face down in bed. If you are lying on

    your back, avoid placing any pillows under your limb.

    One simple position that can greatly increase

    flexibility is to lay on your stomach and stretch the

    limb backward.

    When lying in bed remember to keep your legs

    together and try to avoid any type of rotation.

    Keeping these strategies in mind can help prevent

    unwanted contractures.

    Left: Person sitting in a wheelchaircould be at risk of developing a hipflexion contracture. Below: personlying on the stomach (prone) to

    stretch the hip flexors. Consult

    your healthcare provider.

    16

    Phantom limb

    sensation

    Almost every amputee experiences the sensation that

    the amputated limb is still present.1 These feeling can

    occur due to a variety of factors including pressure

    or even weather changes. These sensations may

    disappear quickly or in some cases can remain for

    quite sometime. Phantom sensations are different for

    everyone and should not present any problems toprosthetic fittings.

    Phantom limb pain

    In addition to phantom sensations, some people

    experience various types of phantom pain in the

    amputated limb.

    1

    The causes of these phantom pains remain unknown

    but there are treatments available to help manage

    symptoms. If you experience phantom pain you should

    contact your physician or nurse so that they can

    recommend the appropriate treatment.

    exercise

    After an amputation it is common to feel weak and

    unsteady. This is why it is important to begin

    stretching and exercise as soon as you are able.

    There are many different types of exercises; some

    can be done while lying in bed, some standing, some

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    sitting, and more. At times, home exercise is

    important and at other times you may need to visit

    your physical therapy clinic. Your physical therapist

    will be able to explain and demonstrate these and/or

    other exercises that are appropriate and beneficial

    for you.

    Temporary Prosthesis

    This section will attempt to guide you through the

    process of receiving a temporary prosthesis. A

    temporary prosthesis is fit about four to twelve

    weeks after surgery, depending on how well and

    quickly the suture line heals. The temporary

    prosthesis is your first prosthesis. It will help you(r):

    1. get accustomed to putting on and takingoff (donning and doffing) a prosthesis2. skin get accustomed to the new pressures

    and forces of prosthetic use

    3. learn to walk on a prosthesis

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    4. helps you to learn to manage the socksyou need to wear as your residual limb

    volume changes.

    In order to accomplish these things, the way this

    first prosthesis is designed and looks will quite likely

    be different from your future prostheses.

    Prosthetic process

    Upon successful healing and control of edema, your

    physician will most likely prescribe a temporary

    prosthesis for you. It is very important to inform the

    practitioner of any goals and aspirations you have.

    With your goals in mind, the process of prosthetic

    selection can begin.

    As a part of your first visit to the prosthetist, your

    residual limb will be evaluated for any scarring,redness, blisters, or any other problems that might

    effect the fit and function of a prosthesis.

    Your prosthetist will then go over the different

    options for prosthetic interfaces. Depending on your

    needs, you and your prosthetist will choose which is

    best for you.

    The most common types of prosthetic interfaces

    include pelite, flexible plastic and gel liners. Each has

    pros and cons that must be considered.

    Flexible plastic is a common choice in prosthetic

    design interfaces. There are many types of plastics

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    19

    available. Flexible plastics are moisture proof, will

    not compress and provide the ability to make

    numerous alterations to the fit of the prosthesis.

    They are very durable but do not offer the same

    amount of cushioning that gel liners do.

    Probably the most common type of interface is the

    gel liner. These liners are worn directly against the

    skin to provide cushioning while still allowing the

    ability for socket adjustments. It is important tounderstand that because the liner is worn directly

    against the skin they must be washed on a daily basis

    and allowed to dry thoroughly before reapplying.

    There are many different types of gel liners available

    and your prosthetist will work with you to choose the

    best one for you.

    20

    After the socket design and interface choices are

    made, the prosthetist will take a series of

    measurements from your residual limb that will be

    used in the fabrication process.

    Your prosthetist will then take an impression of the

    limb using plaster wrap. It is from this impression

    that your prosthetic socket will be fabricated. This

    visit with the prosthetist usually takes about one

    hour. Following the visit, your prosthetist will

    schedule an appointment for you to be seen back in

    the office for a check socket fitting in about one

    week.

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    Check socket fitting

    When you return to see your prosthetist for the

    check socket fitting, you should bring a pair of shoes

    with you. This visit will last about one hour.

    The check socket is typically made of a clear plastic

    that allows the practitioner to view the pressures

    exerted on the residual limb prior to fabrication of

    your temporary prosthesis.

    During this visit, the prosthetist will allow you to

    stand in the prosthetic check socket.

    After adjustments are made to the socket to

    alleviate pressure points, your prosthetists will ask

    you to walk in the parallel bars to dynamically align

    the prosthesis.

    22

    Your practitioner will work with you to make any

    necessary adjustments to the socket for a better fit

    and to optimize how you walk.

    Following this visit, the practitioner will fabricate the

    temporary prosthesis. This process normally takes

    about a week from the check socket fitting.

    Temporary Prosthetic

    socket fitting

    A temporary prosthetic socket is usually fabricated

    out of thermoplastic. The thermoplastic is used for

    its high adjustability to accommodate the changes in

    volume of your residual limb. It is commonly worn for

    3-6 months. During this time period, you will have

    several follow up visits with your prosthetist to

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    23

    evaluate and adjust the fit of your prosthesis. The

    need for adjustability is crucial and therefore the

    temporary prosthesis may not look like a natural leg.2

    During this visit, your prosthetist will again have you

    walk in the parallel bars and make any necessary

    alignment changes to optimize how you walk. Once all

    the adjustments have been made and you and your

    prosthetist are satisfied with the fit and function of

    the prosthesis, you will most likely be able to takethe prosthesis home with you.

    24

    Prosthetic Follow up

    After you receive your temporary prosthesis, your

    prosthetist will provide you with follow up

    appointments. It is imperative that you maintain

    these appointments and follow any instructions given

    to you by your prosthetist. Some of your obligations

    in between appointments will be sock management,

    hygiene, skin assessment, and exercises.

    Follow up appointments are usually made once a week

    after receiving your temporary prosthesis. These

    appointments allow your prosthetist to monitor any

    changes in your residual limb, and proactively manage

    any issues that may arise.

    After the first two months, the follow up

    appointments are less stringent, and are usually on anas needed basis determined by you and your

    prosthetist.

    Sock management

    While wearing your prosthesis it is common to

    experience a loss of volume in the limb throughoutthe day. This is commonly referred to as sock

    management or volume management.

    As your residual limb loses volume, the space between

    your residual limb and prosthesis will become greater

    and must be filled. Your prosthetist will provide you

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    25

    with several socks, of various thickness, that will fill

    in this space.

    Sock ply is determined by the thickness of the sock.

    The sock ply can visually be determined by either a

    number on the sock or the color of the sock stitching.

    The lower the sock ply, the thinner the sock. It will

    be your job to determine when socks are required and

    what size will best fill in the gap. It takes some time

    to get proficient with this. Be sure to talk with theprosthetist and physical therapist when you have

    questions. You will be taught how to manage your sock

    wear. This skill will be frequently reviewed because it

    is important in maintaining the fit and function of the

    prosthesis and health of your residual limb.

    Left: multiple plies of socks (6 ply, 5 ply, 3 ply and 1 ply

    socks). Also shown are socks made of specialized materials(silver threads in this case). Right: Person wearing socks in a

    transfemoral prosthesis due to volume loss.

    26

    Prosthetic hygiene

    You should wash your residual limb on a daily basis to

    help prevent the accumulation of bacteria or

    development of cysts or pimples. Simply wash your

    residual limb with warm water and a mild soap. The

    soap should be fragrance free to prevent any skin

    irritation. A good soap to start with is the same

    brand you use to wash the rest of your body with. If

    this does not work for you, consult your physician or adermatologist for other recommendations. Always be

    sure to rinse thoroughly and remove any residual soap

    from your limb.

    When drying, try to pat with a towel rather than

    rubbing the limb. While this action is soothing to

    some peoples limbs, it is irritating to others.

    During this process you should check your skin for

    any abnormalities such as redness, blisters or

    anything that is otherwise abnormal to you. Any signs

    of prolonged redness or soreness should be reported

    to your healthcare provider right away. Early

    identification of problems tends to result in less

    complications. If something does not appear to be

    normal, always ask a professional.

    Physical therapy

    Often times your physician will decide whether your

    physical therapy should be on an inpatient or

    outpatient basis.

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    27

    Your physical therapist will work with you on safety

    and gait training (walking) with your new prosthesis.

    Gait training is a process in which the physical

    therapist teaches you how to walk safely and

    efficiently with your prosthesis with either an

    assistive device or without assistance.

    Your therapist will train you on gait patterns as well

    as how to navigate stairs and any other every day

    challenges that may occur. You will be introduced tomany different exercises that may be accomplished

    at the therapists office and/or at home.

    A physical therapist will begin with certain exercises

    to help strengthen the muscles needed for

    ambulation. Some strength training exercises may be

    able to be performed at home with the use of

    TheraBand, a rubberized and resistive material.

    Left: Physical Therapist assisting person learning to walk

    with a transfemoral prosthesis. Right: Person with

    transfemoral amputation, performing strengthening exercise

    with an elastic, resistive band.

    28

    It is important that you follow the regiment given to

    you by the therapist. The exercises and training you

    get in physical therapy will help you improve strength,

    balance and efficiency for walking with your new

    prosthesis.

    Definitive prosthesis

    Receiving your definitive prosthesis is a similar

    process to when you were given your temporaryprosthesis.

    Your prosthetist will take several measurements and

    an impression of your residual limb in preparation for

    a check socket. The process for fabricating the

    check socket normally takes about a week.

    Once your check socket is ready you will see theprosthetist again so that adjustments can be made to

    the fit and alignment of the check socket in

    preparation for the definitive socket.

    In about a weeks time your prosthetist will have a

    definitive socket fabricated. The visit to fit the

    definitive socket typically takes about one hour. Theprosthesis is dynamically aligned for optimal

    performance.

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    The definitive socket may be fabricated of alaminated carbon or other composite materials.

    Definitive sockets may also be made of

    thermoplastics as well. Once all adjustments have

    been made, you will be able to take the definitive

    prosthesis home with you. You will be given a follow up

    appointment in about one week. At this time, if the

    prosthesis is functioning well and no changes have to

    be made, a cosmetic covering may be considered ifyou wish.

    Cosmetic covering may be made of a soft foam or a

    rigid foam. It gives the prosthesis a natural

    appearance, typically matching the previous shape.

    The outer coloring/tone is typically incorporated into

    a nylon or a rubberized prosthetic skin that is applied

    30

    over the cosmetic cover. The prosthesis can typically

    be finished to match your sound side.

    You will be given follow up appointments which will

    allow your prosthetist to assess your progress and

    make adjustments as needed.

    Prosthetic hygiene

    During the time between follow up appointments withyour prosthetist, it is imperative that you maintain a

    high quality of personal hygiene.

    Any part of the prosthesis that is in direct contact

    with your skin should be washed daily and all residual

    soap needs to be removed. This includes but is not

    limited to: washing your liners (if you have one),

    washing shrinkers that you may be using and washingany socks that are used to maintain proper fit inside

    the prosthesis.

    It is also very important to wash your residual limb

    everyday to prevent skin irritations, infections,

    and/or other complications. Proper hygiene

    instruction will be given to you by your prosthetist.

    As always, ask is something seems unclear.

    exercise

    Now that you have your definitive prosthesis you may

    be a candidate for new types of exercises and

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    activities. This is an important time to reintroduce

    your goals and desires to be sure that your therapist

    and other providers are working with you to best

    accomplish them.

    Simple standing and seating exercises can greatly

    increase your stamina and make your road to recovery

    much quicker. If you feel that you can accomplish

    more than you are given, do not hesitate to ask your

    therapist and prosthetist what other types ofexercises and activities are safe for you.

    Assistive devices

    Throughout your rehabilitation process, you may be

    prescribed different assistive devices to help you

    transfer, walk, and exercise.

    In the early stages following your amputation your

    therapist will begin training you to utilize various

    assistive devices to aid in walking. Some of the most

    commonly used devices may include the use of a

    wheelchair, walkers or crutches or a cane

    .

    It is common to start off with one device before you

    receive your temporary prosthesis. After receiving

    the temporary prosthesis, you may switch to

    something else. The situation is highly variable

    between different people. Your healthcare providers

    will discuss this with you. Similarly, you are

    encouraged to ask questions if you are unsure about

    32

    which device is best for you, how to use it, and how

    long you will use it.

    Many people express a desire to walk without the use

    of any assistive device and many people with an

    amputation are able to accomplish this. Again, be sure

    to talk with your healthcare provider about what is

    realistic for you.

    Assistive devices are not only used for walking. Somespecific activities such as driving require them as

    well. If your amputation involves the right side there

    are devices available that switch the pedals of your

    car to allow driving with the left foot. In the back of

    this booklet there are several organizations that

    offer assistance in obtaining these devices.

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    Amputee athletic

    resources

    Living with an amputation does not mean that you

    cannot live the active lifestyle that you once had.

    Below is a list of amputee athletic resources that you

    may find helpful.

    Activeamp.org

    Activeamp.org is an online connection for amputeeswith active lifestyles. This resource has many links to

    sports related amputee associations. Please visit

    their website at http://www.activeamp.org/ for more

    information.

    Disabled Sports USA

    Disabled Sports USA is a national nonprofit,

    501(c)(3), organization established in 1967 bydisabled Vietnam veterans to serve the war injured.

    DS/USA now offers nationwide sports rehabilitation

    programs to anyone with a permanent disability.

    Activities include winter skiing, water sports, summer

    and winter competitions, fitness and special sports

    events.3 For more information you can visit their

    website at http://www.dsusa.org/

    Extremity Games

    The O&P Extremity Games is an extreme amateur

    sporting competition for individuals living with limb

    loss or limb difference. The O&P Extremity Games

    allows participants to demonstrate skill, persistence

    34

    and passion while competing for cash and other

    prizes.8 For more information, contact Beth Geno at

    586.354.2260 or visit their website athttp://www.extremitygames.com/

    National Amputee Golf Association

    The National Amputee Golf Association was

    incorporated in 1954. At that time, NAGA was

    comprised of a small group of amputee golfers who

    played friendly games that quickly developed intoregional tournament play in various cities across the

    United States. Today, NAGA has over 2500 members

    worldwide.5 For more information, please visit their

    website at http://www.nagagolf.org

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    Amputee resources

    The following is a list of online resources for new

    amputees. These websites have valuable information

    for every situation imaginable!

    American Coalition of America

    http://www.amputee-coalition.org/

    Amputee Information Exchange

    www.amp-info.org

    Amputee Information Network

    www.amp-info.net

    Barr Foundation

    http://www.oandp.com/resources/organizations/barr

    Diabetes Resource Center

    www.diabetesresource.comFord Mobility Program

    www.fordmobilitymotoring.com

    Life Center at the Rehab Institute of Chicago

    http://lifecenter.rehabchicago.org

    National Center on Physical Activity and Disability

    www.ncpad.org

    National Limb Loss Information Center

    http://www.amputee-coalition.org/nllic

    For additional amputee related websites, please visit

    http://hometown.aol.com/alegnomore/amputee/alpha

    beticalamputeelinks.htm

    36

    references

    1. American Academy of Orthotists andProsthetists. For the New Amputee. (1991). pp 6-

    7.

    2. American Academy of Orthotists andProsthetists. Patient Care Booklet for Below

    Knee Amputees. (1998). pp 8-9

    3. Disabled Sports USA. Improving the Lives ofthose with Disabilities. (2005). Retrieved on

    March 2, 2007 from http://www.dsusa.org/

    4. Muilenberg AL, Wildon AB. A Manual for BelowKnee Amputees. (1996). Retrieved on March 17,

    2007 from

    http://www.oandp.com/resources/patientinfo/manuals/bkindex.htm

    5. National Amputee Golf Association. What isNAGA?. (January 3, 2007). Retrieved on March

    28, 2007 from http://www.nagagolf.org/

    6. National Limb Loss Information Center.Amputation Statistics by Cause. (2005).

    Retrieved on March 14, 2007 from

    http://www.amputee-

    coalition.org/fact_sheets/amp_stats_cause.html

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    7. National Limb Loss Information Center. FacingSurgery. (nd). Retrieved on March 28, 2007 from

    http://www.abcamputee.com/facingsurgery.pdf

    8. O&P Extremity Games. Never Say Never NeverSay Cant. (2006). Retrieved on March 17, 2007

    from http://www.extremitygames.com/event/

    9. University of Utah Health Sciences. PhysicalMedicine and Rehabilitation. (2001). Retrieved onMarch 14, 2007 from

    http://healthcare.utah.edu/healthinfo/adult/Reh

    ab/amput.htm

    38

    This Informational Pamphlet was made possible by

    the contributions of the following:

    Department of Education

    Rehabilitation Services Administration

    Award #H235J050020Demonstration Project on Prosthetics and Orthotics

    St. Petersburg College

    College of Orthotics and Prosthetics

    University of South FloridaCollege of Medicine- School of Physical Therapy &

    Rehabilitation Sciences

    College of Engineering-Mechanical Engineering Department

    Chris Lemonis, CPO(c)Amy Mountain, CPO(c)

    M. Jason Highsmith, PT, DPT, CP, FAAOP

    Samuel Phillips, PhD, CP, FAAOP

    Scott Sanford, MEd, CO