The World vs.MS Symptom Tracker & Discussion Guide… · This symptom tracker and discussion guide...
Transcript of The World vs.MS Symptom Tracker & Discussion Guide… · This symptom tracker and discussion guide...
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Review the MS symptoms below and mark the level of severity of your experience with each.
Emotional Burden No symptoms ordisability
Have symptoms but no limits on my activities
Mild limits on myactivities
Moderate limits on my activities
Severe limits on my activities
Depression
Anxiety
Review each of the below statements and indicate which have changed for the better, for worse, or did not change since being diagnosed with MS.
Changed for the Better Did Not Change Changed for the Worse
My ability to process information
My ability to concentrate
My ability to remember things
Review the MS symptoms below and mark the level of severity of your experience with each.
Tracking Your Symptoms
No symptomsand/or disability
Have symptoms but no limits on my activities
Mild limits on myactivities
Moderate limits on my activities
Severe limits on my activities
Trouble concentrating
Trouble multitasking
Issues with memory
Mood swings
Ability to understand or learn new things
Speaking clearly
Cognitive Symptoms
MS can be measured by more than a neurological exam or brain scan. This symptom tracker and discussion guide will help you track the impact MS has on your daily life, as well as evaluate your overall understanding of MS. We hope this resource will help you communicate a full picture of your MS with your care team - because
when you and your care team know more, you can do more.
Complete the below assessment and discuss the results with your care team.
© 2017 Genzyme Corporation. All rights reserved. GZEMEA.MS.17.01.0023e 11/2017
The World vs.MS Symptom Tracker & Discussion Guide
© 2017 Genzyme Corporation. All rights reserved. GZEMEA.MS.17.01.0023e 11/2017
Perceived Disease Knowledge
continuationcontinuation
My time for family activities
My relationship with friends
My relationship with my family
Relationship problems
Decreased sex drive
Change in genital sensations
Difficulty getting aroused
Other sexual problems
Relationships & Intimacy No symptoms ordisability
Have symptoms but no limits on my activities
Mild limits on myactivities
Moderate limits on my activities
Severe limits on my activities
Changed for the Better Did Not Change Changed for the Worse
Review the MS symptoms below and mark the level of severity of your experience with each.
Review each of the below statements and indicate which have changed for the better, for worse, or did not change since being diagnosed with MS.
Review the MS symptoms below and mark the level of severity of your experience with each.
No symptoms ordisability
Have symptoms but no limits on my activities
Mild limits on myactivities
Moderate limits on my activities
Severe limits on my activities
Physical Symptoms
Fatigue (tired even though you had enough sleep)
Trouble sleeping through the night
Physical weakness
Trouble swallowing
Trouble moving / muscle stiffness
Problems with balance and coordination
Numbness and tingling
Muscle spasms
Sensitivity to heat or cold
Dizziness
My self esteem
My future outlook
My ability to cope with stress
My emotional well-being
Changed for the Better Did Not Change Changed for the WorseEmotional Burden (cont)
Review each of the below statements and indicate which have changed for the better, for worse, or did not change since being diagnosed with MS.
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© 2017 Genzyme Corporation. All rights reserved. GZEMEA.MS.17.01.0023e 11/2017© 2017 Genzyme Corporation. All rights reserved. GZEMEA.MS.17.01.0023e 11/2017
continuation
My level of energy
My physical functioning
My ability to exercise
My ability to care for children
My ability to have children
Radiating pain, like a mild electrical shock
Stabbing pain
Burning and pricking sensations
Pins and needles sensations
Bladder or urinary problems
Bowel problems
Double vision
Vision loss
Other vision problems
Physical Symptoms (cont)
Review the MS symptoms below and mark the level of severity of your experience with each.
Review each of the below statements and indicate which have changed for the better, for worse, or did not change since being diagnosed with MS.
No symptoms ordisability
Have symptoms but no limits on my activities
Mild limits on myactivities
Moderate limits on my activities
Severe limits on my activities
Changed for the Better Did Not Change Changed for the Worse
Which statement do you agree with more?
When weighing the benefits and risks of an MS treatmentwith my neurologist, I am most concerned about the risksand side effects associated with it
When weighing the benefits and risks of an MS treatmentwith my neurologist, I am most concerned with how effectiveit is in slowing disease
How knowledgeable are you abouteach of the topics listed below? Not at all Somewhat Very Extremely
The benefits of MS disease modifying therapies
The risks associated with delaying thestart of MS treatment
The long term risks of having MS
The risks and side effects associatedwith MS treatments
Perceived Disease Knowledge
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© 2017 Genzyme Corporation. All rights reserved. GZEMEA.MS.17.01.0023e 11/2017© 2017 Genzyme Corporation. All rights reserved. GZEMEA.MS.17.01.0023e 11/2017
continuation
I sometimes purposefully skip a dose ofmy disease modifying therapy
I am hesitant to switch to a new treatmentbecause I am concerned about the potentialnew side effects I would have to experience
What matters to me most is whether myMS treatment conveniently fits intomy day-to-day lifestyle
My doctor and I chose my MS disease modifyingtherapy based on its safety profile
I feel informed about the risks associated withMS, as well as the treatments available
I have had instances when I stopped taking myMS treatment against the advice of my doctor
How much do you agree or disagreewith the statements below? Strongly Disagree Strongly AgreeNeither
Agree or Disagree AgreeDisagree
www.theworldvsms.comFor more information on The World vs.MS, visit
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© 2017 Genzyme Corporation. All rights reserved. GZEMEA.MS.17.01.0023e 11/2017