The Voice of PLC 1109-10 Final

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    The Plymouth Laryngectomy Club (PLC) is an Affiliated Member of: The National Association of Laryngectomy Clubs (NALC)

    In Association with Macmillan Cancer Support

    Registered Charity Number: 273635

    Our Funder: Macmillan Cancer Support

    A Member ofThe Plymouth Third Sector Consortium (PTSC)

    Patrons & Medical Advisors : Mr. W.M. BRIDGER, FRCS - Consultant ENT Surgeon,

    Mr. Tass MALIK, BSc FRCS (Gen), FRCS (ORL H&N) - Consultant Otolaryngologist, Head & Neck / Thyroid Surgeon, Derriford Hospital, Plymouth.

    The Plymouth Laryngectomy Club (PLC)A Charitable Support Group for Plymouth Cancer Laryngectomees

    The Voice of PLCSeptemberOctober 2011

    Address: c/o 80 Warleigh Avenue, PLYMOUTH, PL2 1DH, Devon, UK

    Mobile: 07745819828 (text only) Email: [email protected] Website: http://plymouthlc.webs.com

    FOREWORD BY THE CHAIRWritten by Edward (Ted) BURNETT

    Welcome Members and Friends!

    Well, our first year of PLC has passed! In fact, it's

    been more than a year, and I think its been quite aninteresting time for us all.

    Weve had a wide range of guest speakers and

    managed a few outside trips and events.

    I should like to thank everyone for their help and

    support during our first year... to name just a few:

    The Staff of the Mustard Tree Cancer Support Centre

    who have been excellent hosts and have always

    made us all very welcome!

    Maggie, Emer and Julia for their part in giving us the

    help, support and advice any time we needed it.

    Geoff, who as I think you will all agree, has workedtirelessly as our Clubs Secretary.

    Jean, for all her hard work as Treasurer in sorting out

    the finances for our Club.

    And finally I should like to thank all our Members and

    Friends for showing their support.

    Because without you we would not have a club!

    Many thanks!

    Ted

    Chair, PLC

    EDITORIAL COMMENTNTERNET Links. If youre reading this on-line and come

    across words with blue lettering that are underlined, then

    you can click on these links and be taken directly to another

    site for more information on that particular topic.

    If you read this on Microsoft Word, you can put your cursor

    over the link, hold down the Control (Ctrl) Key and click! Ed.

    GREETINGS!EST WISHES TO Susan STEPHENSON for her birthday

    on Sunday, 25th

    September 2011. Susan is staunch

    and loyal member of PLC. Have a lovely day Susan!

    APPY BIRTHDAY TO Alan Derek PEACEY for Wednesday,

    28th

    September 2011. Alan is a Friend of PLC althoughhe resides in Norway!

    ONGRATULATIONS TO Ted & Liz BURNETT for Friday,

    21st

    October 2011 on the occasion of their anniversary.

    Ted was the Chair of PLC for 2010 11. And we all know that

    behind any good man is a good woman! Well done Liz!

    EVOTED HUSBAND. This is for all women who think

    men are heartless!

    I

    B

    HC

    D

    mailto:[email protected]:[email protected]://plymouthlc.webs.com/http://plymouthlc.webs.com/http://plymouthlc.webs.com/mailto:[email protected]
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    Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)

    or email: [email protected], or go to PLC website at http://plymouthlc.webs.com2

    THE PLC SEPTEMBER 2011 MEETINGUR SEPTEMBER 2011 Meeting took place at the

    Mustard Tree Cancer Support Center at Derriford

    Hospital on Monday, 5th

    September 2011 at 11 a.m. There

    were only seven of us in attendance including three Friends.

    Another member joined us later. The business side of the

    meeting was kept very brief with Ted simply giving an

    overview on forthcoming events.

    Mr. Charles HANDLEY ofCountrywide Supplies Ltd.gave us an informative talk regarding his products.He reminded us once again that before ordering

    something new from his catalogue we should

    always remember to first seek approval from

    Maggie or Julia. As all Members attending were

    alrerady customers of Countrywide it was difficult to

    judge whether Charles was content or frustrated!

    Ted presented Charrles with a Plymouth Tie Pin /

    Lapel Badge and a Thank You Card on behalf of all

    Members.

    Mr. Michael W.M. BRIDGER, a Consultant Surgeonat ENT Derriford Hospital will be retiring fairly soonHe is widely respected amongst medical staff and

    patients alike, and will be missed. We were so

    grateful to him for giving up some of his valuable

    time to give us an extremely informative talk about

    his lifetimes work on head-and-neck cancers and

    how treatments have changed over the years. He

    was a pioneer in his field in his day! Mr. BRIDGER

    also gave an update on which direction he thought

    treatments might go in the future, touching upon

    laser and transplants. All very interesting! Ted then

    presented Mr. BRIDGER with a Certificate of

    Appreciation on behalf of all Club Members.

    In the picture: Ted BURNETT presenting a Certificate of

    Appreciation to Mr. Michael W.M. BRIDGER.

    Photograph courtesy of Liz BURNETT

    More photographs at: Photobucket.com (fullscreen slideshow),and PLC Facebook page (smaller but faster).

    AFFLE. Because of the few numbers attending the

    September 2011 Meeting it was decided to dispense

    with the monthly raffle this time.

    UBSCRIPTIONS. Because of the few numbers attending

    the September 2011 Meeting it was decided not to

    collect any subs this month.

    REASURERS REPORT. Because of the few numbers

    attending the September 2011 Meeting it was decided

    hold over the report until the October 2011 Meeting.

    THE PLC CHARABANC TRIPEVEN INTREPID PLC MEMBERS met at the Roborough

    Tescos Car Park at 2 p.m. on Saturday, 10th

    September

    2011 to go on a Coach Trip to Dartmeet to enjoy a real

    Devon Cream Tea. Dartmeet is set in a particularly

    beautiful part of Dartmoor with rolling tors (hills) and a

    fast-flowing running river.

    The sun even managed to

    shine for us! The journey

    to and from Dartmeet

    meanders through somelovely scenery and it was

    a rare treat for the drivers

    amongst us to be able to

    take in those views...

    rather than concentrating on the road! We held a raffle

    during our Cream Tea that realised 8 whichwe promptlyhanded over to Patrick, our driver, as his tip for the day!

    Fiona won the prize so shell be supplying the prize for our

    October 2011 Meeting.

    Photographs courtesy of Liz BURNETT View Slideshow

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    http://www.countrywidesupplies.co.uk/http://www.countrywidesupplies.co.uk/http://www.countrywidesupplies.co.uk/http://s251.photobucket.com/albums/gg297/kandaphati2/PLC/2011Sep5/?albumview=slideshowhttp://s251.photobucket.com/albums/gg297/kandaphati2/PLC/2011Sep5/?albumview=slideshowhttps://www.facebook.com/media/albums/?id=111621182271959https://www.facebook.com/media/albums/?id=111621182271959http://en.wikipedia.org/wiki/Dartmeethttp://en.wikipedia.org/wiki/Dartmeethttp://en.wikipedia.org/wiki/Dartmeethttp://s251.photobucket.com/albums/gg297/kandaphati2/PLC/PLCcharabancTrip/?albumview=slideshowhttp://s251.photobucket.com/albums/gg297/kandaphati2/PLC/PLCcharabancTrip/?albumview=slideshowhttp://s251.photobucket.com/albums/gg297/kandaphati2/PLC/PLCcharabancTrip/?albumview=slideshowhttp://en.wikipedia.org/wiki/Dartmeethttps://www.facebook.com/media/albums/?id=111621182271959http://s251.photobucket.com/albums/gg297/kandaphati2/PLC/2011Sep5/?albumview=slideshowhttp://www.countrywidesupplies.co.uk/
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    Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)

    or email: [email protected], or go to PLC website at http://plymouthlc.webs.com3

    Charabanc

    From Wikipedia, the free encyclopedia

    This 1920 Punch cartoon shows UK government

    ministers in a charabanc.

    A charabanc or "char--

    banc" is a type ofhorse-

    drawn vehicle or early

    motor coach, usually

    open-topped, common

    in Britain during the

    early part of the 20th

    century. It was especially popular for sight-seeing or

    works outingsto the country or the seaside, organised

    by businesses once a year. The name derives from the

    French char bancs (carriage with wooden benches),

    the vehicle having originated in France in the early 19th

    century.

    Although the vehicle has not been common on the

    roads since the 1920s, a few signs survive from the era;

    a notable example atWookey Holein Somerset warns

    that the road to the neighbouring village of Easton is

    unsuitable for charabancs.

    THE PLC FORECAST OF EVENTSALENDAR of EVENTS. A copy of the Clubs Calendar of

    Events, including Future Entertainments for the next 12

    months or so, is available on our Clubs website. Please keep

    yourselves up-to-date by taking an occasional peek!

    EPTEMBER 2011. Wednesday, 14th

    September 2011:

    The Speak Easy Club in Cornwall has invited Members of

    PLC for a trip toDevoran, near Truro, for a Soup & Sandwich

    lunch. Members of the Recovery Club from Cornwall have

    also been invited. Those who have given their names to

    Geoff so far have a car seat reserved. Anyone else wishing to

    attend should notify Geoff as soon as possible so as to avoid

    disappointment. We aim to meet up at Devoran Church at

    12 noon.

    CTOBER 2011. Friday, 7th

    October 2011:

    A Laryngectomee Study Day is being organised by

    Julia and Maggie. It will be held at the Mustard Tree

    Cancer Support Centre. Please make a note of this date in

    your diaries as we have cancelled our normal Club Meeting

    for Monday, 3rd

    October 2011! Our Club Meeting will takeplace in the Double Room of the Mustard Tree between 11

    and 12 noon on the 7th

    ... just prior to lunch. Members

    should note that we have been invited to attend both

    morning and afternoon sessions, as well as lunch, which

    has kindly been provided by our Medical Equipment

    Suppliers. So do please come prepared for a longer stay

    than normal! ClickTHISto view the full programme. A hard

    copy of the programme is attached for those not on-line.

    OVEMBER 2011. Monday, 7th

    November 2011:

    John MCKENNA ofColeBROOK Housing Carershas kindly

    accepted our invitation to be our Guest Speaker.

    ECEMBER 2011. Monday, 5th

    December 2011:

    Members agreed at the August

    2011 Meeting that Ted should book a

    Christmas Dinner to be held at the

    Acropolis Restaurant in Plymouth City

    Centre at 7 p.m. Members also agreed

    that the cost of this event should be

    offset by Club Funds.

    DERRIFORD HOSPITAL CANCER SERVICESGEOFF ATTENDED AN Internal Head & Neck Validation Panel

    Meeting at Derriford Hospital on Monday, 15th

    August 2011.

    Geoff was in attendance as an observer in an attempt to gain

    a continuing insight into the Peer Review Process. Should

    anyone wish to have further information, please dont

    hesitate to contact Geoff.

    THE NATIONAL ASSOCIATION OFLARYNGTECTOMY CLUBS

    (NALC)LC RECEIVED A COPY of the minutes of the meeting of

    the NALC General Committee held on Monday, 4th

    July

    2011. NALC only ever send the one copy so if anyone wishes

    to see a copy then do please let Geoff know. PLC was not

    represented. Just for interest, these are the main points

    covered:

    Attendance. 18 representatives from across the UKwere in attendance.

    Finance. Current Account: 65,235.54Business Account : 34,818.63

    AGM. The AGM was held in London but the turnoutwas poor. Geoff and Jean represented PLC.

    Annual Luncheon. The Annual Lunch was held onSunday, 4

    thSeptember 2011 at Penrith. Although

    invited, none of our Members attended.

    Larynx Transplants. An article will be published soonin the CLAN Magazine.

    Next Transplants. An article will be published soonin the CLAN Magazine.

    PLC ON FACEBOOKANDA, OUR WEBMASTER, has now put our Club on

    Facebook. Please do go online and take a look. Go to

    Facebook and then put Plymouth

    Laryngectomy Club into the Search Box!

    Alternatively, justclick on this link. When you

    get there, please show us your support by

    clicking on the LIKE button. And do please

    leave a comment... this is YOUR Facebook Page!

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    http://en.wikipedia.org/wiki/Charabanchttp://en.wikipedia.org/wiki/Charabanchttp://en.wikipedia.org/wiki/Punch_(magazine)http://en.wikipedia.org/wiki/Punch_(magazine)http://en.wikipedia.org/wiki/Horse-drawn_vehiclehttp://en.wikipedia.org/wiki/Horse-drawn_vehiclehttp://en.wikipedia.org/wiki/Horse-drawn_vehiclehttp://en.wikipedia.org/wiki/Horse-drawn_vehiclehttp://en.wikipedia.org/wiki/Coach_(vehicle)http://en.wikipedia.org/wiki/Coach_(vehicle)http://en.wikipedia.org/wiki/Day-tripperhttp://en.wikipedia.org/wiki/Day-tripperhttp://en.wikipedia.org/wiki/Wookey_Holehttp://en.wikipedia.org/wiki/Wookey_Holehttp://en.wikipedia.org/wiki/Wookey_Holehttp://en.wikipedia.org/wiki/Easton,_Somersethttp://en.wikipedia.org/wiki/Easton,_Somersethttp://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://plymouthlc.webs.com/Future.htmhttp://plymouthlc.webs.com/Future.htmhttp://plymouthlc.webs.com/Future.htmhttp://www.cornwall-calling.co.uk/gazetter-cornwall/devoran.htmhttp://www.cornwall-calling.co.uk/gazetter-cornwall/devoran.htmhttp://www.cornwall-calling.co.uk/gazetter-cornwall/devoran.htmhttp://www.slideshare.net/kandaphati2/plc-laryngectomy-study-day-inhttp://www.slideshare.net/kandaphati2/plc-laryngectomy-study-day-inhttp://www.slideshare.net/kandaphati2/plc-laryngectomy-study-day-inhttp://www.colebrookhousing.co.uk/carers/http://www.colebrookhousing.co.uk/carers/http://www.colebrookhousing.co.uk/carers/http://www.greekfoodanddrink.com/restaurants/england/devon.htmhttp://www.greekfoodanddrink.com/restaurants/england/devon.htmhttp://www.ncat.nhs.uk/ncprhttp://www.ncat.nhs.uk/ncprhttp://www.laryngectomy.org.uk/http://www.laryngectomy.org.uk/http://www.laryngectomy.org.uk/http://www.facebook.com/search.php?q=plc&init=quick&tas=0.3260368499881515#!/pages/Plymouth-Laryngectomy-Club/111621182271959http://www.facebook.com/search.php?q=plc&init=quick&tas=0.3260368499881515#!/pages/Plymouth-Laryngectomy-Club/111621182271959http://www.facebook.com/search.php?q=plc&init=quick&tas=0.3260368499881515#!/pages/Plymouth-Laryngectomy-Club/111621182271959http://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://www.facebook.com/search.php?q=plc&init=quick&tas=0.3260368499881515#!/pages/Plymouth-Laryngectomy-Club/111621182271959http://www.laryngectomy.org.uk/http://www.ncat.nhs.uk/ncprhttp://www.greekfoodanddrink.com/restaurants/england/devon.htmhttp://www.colebrookhousing.co.uk/carers/http://www.slideshare.net/kandaphati2/plc-laryngectomy-study-day-inhttp://www.cornwall-calling.co.uk/gazetter-cornwall/devoran.htmhttp://plymouthlc.webs.com/Future.htmhttp://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://en.wikipedia.org/wiki/Easton,_Somersethttp://en.wikipedia.org/wiki/Wookey_Holehttp://en.wikipedia.org/wiki/Day-tripperhttp://en.wikipedia.org/wiki/Coach_(vehicle)http://en.wikipedia.org/wiki/Horse-drawn_vehiclehttp://en.wikipedia.org/wiki/Horse-drawn_vehiclehttp://en.wikipedia.org/wiki/Punch_(magazine)http://en.wikipedia.org/wiki/Charabanc
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    Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)

    or email: [email protected], or go to PLC website at http://plymouthlc.webs.com4

    THE RECOVERY CLUB, CORNWALL

    EOFF EMAILED A copy of the August 2011 Newsletter to

    those of our members on-line. Those not on-line should

    contact Geoff for a hard copy. Some of us will have the

    opportunity of meeting up with members of The Recovery

    Club on our trip to Devoran in September 2011. The Recovery

    Club and the Speak Easy Club will both be in attendance!

    That's good news!

    LETTERS TO THE EDITOR

    From: THOMAS Nicola (TORBAY CARE TRUST)

    To: Geoffrey [email protected]

    Sent: Thu, 11 August, 2011 9:27:01

    Subject: RE: PLC NEWSLETTER

    Geoff,

    Thanks for your newsletter. Ive added your website

    address on our website, on the support page. The link is:

    http://www.peninsulacancernetwork.org.uk/public/others

    upport/Pages/HeadNeck.aspx

    Hope this is OK!

    Nikki

    Nikki THOMASNetwork Nurse Director

    Peninsula Cancer Network

    www.peninsulacancernetwork.org.uk

    www.facebook.com/peninsulacancernetwork

    Editorial Comment: Thanks Nicola! I hope other organisations

    will follow your lead! Ed.

    THE SOUTH WESTERN

    AMBULANCE SERVICEEOFF RECENTLY VISITED the South Western Ambulance

    ServicesTraining College recently where he met up with

    Lizzie RYAN, the Education

    Business Manager. It was agreed

    that the Ambulance Service

    Emergency Control Room for our

    region could flag-up the names

    and details of our Club Members

    so, in the event of a medical emergency, the Service could

    ensure that their paramedics could be properly briefed that the

    patient was a Laryngectomee so they would know what to do,

    and more importantly, what not to do! The Service could alsoensure their ambulances would be kitted out with any special

    neck-breathing equipment that may be necessary.

    TheData Protection Actforbids me passing anyones personal

    details to anyone else without that individuals authority. So if

    you wish to take part in this scheme, would you please

    complete the attached form and email it, or pass it back to me?

    I will then ensure that your details are passed on to our local

    Ambulance Service.

    This authorisation will need to be renewed every six months

    but dont worry... the Club will send out reminders. One last

    point: Laryngectomees do not have to be Club Members to

    participate in this Scheme and we have passed blank forms toJulia and Maggie to dish out to their patients as required.

    NEWS & CURRENT EVENTS

    DISCLAIMER

    Please note that the views and opinions expressed in this section are

    not necessarily those held by the PLC Committee nor its Members.

    GIFT OF a Voice. I wanted to share with you the storyA

    Gift of a Voice which is about my efforts to speak again.

    It was posted in the Georgetown University Homepage as a

    feature story and can be seen on-line at:

    http://gumc.georgetown.edu/news/stories/230883.htmlFor those not on-line, its repeated below... I do hope that

    you will find it inspirational!

    Thanks!

    Itzhak BROOK, MD, MSc

    Professor of Medicine

    Georgetown University

    Washington DC, USA

    Blog site: driBROOK.blogspot.com

    Email: [email protected]

    THE GIFT OF A VOICE

    STARING AT THE AUDIENCE, Dr. Itzhak BROOK was nervous.In front of him were doctors and cancer survivors. He thought

    about surviving Israeli wars and the time he lost a patient, but

    nothing would prepare him for his first speech after losing his

    vocal cords to cancer.

    Outfitted with aprosthesisto help him speak, BROOK faced a

    challenging audience: would they stay or would they go?

    What BROOK learned after his speech would help him realise

    the power and gift of his voice.

    As a professor at Georgetown University Medical Center,

    BROOK is revered for his professionalism and ability to teach

    medical students the art and science of medicine. A natural at

    the sciences, BROOK discovered his affinity for medicine as ayoung child.

    Growing up my parents believed in a solid education, says

    BROOK. I felt an obligation to make something of my life and

    my passion for medicine evolved throughout high school.

    BROOK finished medical school in Jerusalem, Israel and

    completed fellowships at Ivy League universities in the United

    States, publishing research on anaerobic microbes and head

    and neck infections. He says it was in paediatric infectious

    diseases where he felt most at home.

    When I was a doctor of internal medicine, I lost a couple of

    patients and that was hard for me, says BROOK. But when I

    went [in]to paediatrics and infectious diseases, I felt I could

    fight and win on behalf of my patients... it was so rewarding

    for me.

    Along the way BROOK lectured medical students and

    physicians and treated patients using his voice as an

    instrument to share his love and passion for medicine.

    That all changed in 2006 when BROOK was diagnosed with

    cancer.

    After learning he had throat cancer, BROOK explains he was

    shaken to the core and did not share it with his friends or

    colleagues.

    It felt like a death sentence, says BROOK. I asked my

    children and wife to keep the news private because I did not

    want to feel stigmatized as a cancer patient for fear of looking

    weak and vulnerable.

    G

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    mailto:[email protected]:[email protected]:[email protected]://www.peninsulacancernetwork.org.uk/public/othersupport/Pages/HeadNeck.aspxhttp://www.peninsulacancernetwork.org.uk/public/othersupport/Pages/HeadNeck.aspxhttp://www.peninsulacancernetwork.org.uk/public/othersupport/Pages/HeadNeck.aspxhttp://www.peninsulacancernetwork.org.uk/http://www.peninsulacancernetwork.org.uk/http://www.facebook.com/peninsulacancernetworkhttp://www.facebook.com/peninsulacancernetworkhttp://www.swast.nhs.uk/http://www.swast.nhs.uk/http://www.swast.nhs.uk/http://www.ico.gov.uk/for_organisations/data_protection.aspxhttp://www.ico.gov.uk/for_organisations/data_protection.aspxhttp://www.ico.gov.uk/for_organisations/data_protection.aspxhttp://gumc.georgetown.edu/news/stories/230883.htmlhttp://gumc.georgetown.edu/news/stories/230883.htmlhttp://www.dribrook.blogspot.com/http://www.dribrook.blogspot.com/mailto:[email protected]:[email protected]://en.wikipedia.org/wiki/Prosthesishttp://en.wikipedia.org/wiki/Prosthesishttp://en.wikipedia.org/wiki/Prosthesishttp://gumc.georgetown.edu/http://gumc.georgetown.edu/http://www.swast.nhs.uk/http://gumc.georgetown.edu/http://en.wikipedia.org/wiki/Prosthesismailto:[email protected]://www.dribrook.blogspot.com/http://gumc.georgetown.edu/news/stories/230883.htmlhttp://www.ico.gov.uk/for_organisations/data_protection.aspxhttp://www.swast.nhs.uk/http://www.swast.nhs.uk/http://www.facebook.com/peninsulacancernetworkhttp://www.peninsulacancernetwork.org.uk/http://www.peninsulacancernetwork.org.uk/public/othersupport/Pages/HeadNeck.aspxhttp://www.peninsulacancernetwork.org.uk/public/othersupport/Pages/HeadNeck.aspxmailto:[email protected]
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    Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)

    or email: [email protected], or go to PLC website at http://plymouthlc.webs.com5

    BROOK felt as if his lucky star was gone.

    But, with the love and support of his family guiding him,

    BROOK made it through the gruelling radiation appointments

    that required a leave of absence from work and teaching.

    While recovering from the first round of treatment, BROOK

    received some unexpected news from his doctor.

    His cancer was back with a vengeance. This time, BROOK did

    not have a choice except to tell his friends and family his

    diagnosis was bleak.

    BROOK and his wife felt it best to tell their children in person,not over the phone. He met with them face-to-face so that he

    could answer their questions.

    Each one of my five children is special and we took a lot of

    time deciding how to tell them my cancer had returned, says

    BROOK.

    His daughter, Sara BROOK, was devastated. My dad had

    always been a symbol of strength in my life and his sickness

    forced me to accept that he was vulnerable, she says.

    Although he has approached his sickness with the same

    persistence he's exhibited during previous challenges, cancer

    is such an unknown and powerful force. It's a scary fight.

    After revealing the news to his family and friends he was

    surprised at the outpouring of emotional support. People did

    not stigmatise him or turn their backs, instead they embraced

    him.

    BROOK found an otolaryngologist who would see him

    through his darkest days. The doctor informed BROOK that

    his only hope for a cure was to remove his larynx... a

    procedure that would leave him voiceless.

    All of my life I have used my voice to teach and to

    communicate with patients, says BROOK. The thought of

    losing my voice was terrifying but I didnt have a choice... it

    was lose my life to cancer or lose my voice ... I chose losing my

    voice.

    BROOK did receive some good news prior to surgery. His

    doctors told him a voice prosthesis might allow him to speak

    again one day in the future, but it would be a slow and

    tedious process. This hopeful possibility that would help get

    BROOK through surgery.

    After the surgery, BROOK fought frustration and depression

    and faced additional health issues as a result of surgery.

    Then there were the uncertainties of the voice prosthesis...

    how would his voice sound? What if the prosthesis failed to

    work?

    The surgery to insert the voice prosthesis was successful, but

    speaking again did not come easily. Learning to speak

    included additional speech pathology visits and, as BROOKfeared, he was not immediately comfortable with the sound

    of his new voice.

    Imagine not sounding like yourself, says BROOK. I spoke

    with a soft whisper... I had no idea how people might react.

    Following physical therapy and learning to use his prosthesis,

    BROOK rebounded. He returned to teaching and the medical

    profession. But, this time, he was going to do it differently.

    He no longer remains distant from his patients.

    Now he hugs them, he comforts them. He encourages them

    to use their voices and to speak up when something is wrong.

    He knows what its like to be in their shoes.

    Our voice is our most powerful tool. Its our biggestadvocate for our health and wellness, he says.

    So when he was asked to give a lecture to a large group

    following his treatment, BROOK hesitated, but after much

    thought he accepted the invitation.

    Although he feared people would walk out of the room,

    unable to understand or cringe at his airy, soft whisper, he

    began to speak. I am Dr. Itzhak BROOK, he said. I am a

    cancer survivor.

    To his surprise, no one left the room. Instead, all remained

    silent as he recounted the story of his amazing fight with an

    eventual victory.This first public speech after cancer awakened a new passion

    in him... to share his story with patients and doctors,

    encouraging patient-doctor communication and active

    patient participation.

    He now tours the country giving lectures and presentations,

    no longer the hesitant individual afraid to share his voice, but

    a man who has learned that his soft whisper has the impact

    of a shout.

    By Tressa KIRBY, GUMC CommunicationsPublished July 20, 2011

    ANCER LARYNGECTOMEE TRUST. Geoff has received ahard copy of the September 2011 edition of their

    Newsletter. Please contact Geoff if you wish to see a copy.

    Alternatively, you can contact the Trust at:

    Cancer Laryngectomee Trust,

    National Association of Neck Breathers,

    P.O. Box 618,

    Halifax HX3 8WX

    Telephone: (01422) 205 522

    Website: www.cancerlt.org

    Email: [email protected]

    ARE QUALITY COMMISSION (CQC): The CQC has nowpublished its Annual Report & Accounts for 2010/11. This

    shows that they have now completed the task of registering

    all adult social care and independent

    healthcare services, as well as private

    ambulances and dentists... almost

    30,000 services in total... to the timescales set in legislation.

    They say that this meant diverting resources away from core

    inspection functions for a time, leading to a temporary drop

    in the numbers of inspections. Inspections will now become

    the top priority. An electronic copy of the report is available

    at:http://www.cqc.org.uk/publications.cfm?fde_id=18566.

    The report is 100 pages in length so Geoff cannot help outthose not on-line!

    LAN NEWSLETTER. CLAN is the official magazine of the

    National Association of Laryngectomee Clubs (NALC). The

    Plymouth Laryngectomy Club is affiliated to NALC.

    The September 2011 edition of CLAN is online now!

    Click to view it fullscreen

    Download the pdf(825.82 KB)

    I have received some hard copies

    which I will be redistributing to

    members who are not on-line.

    I do hope you all get the time to

    read this edition as there are

    some insteresting snippets inside it.

    C

    C

    C

    http://www.cancerlt.org/http://www.cancerlt.org/mailto:[email protected]:[email protected]://www.cqc.org.uk/http://www.cqc.org.uk/http://www.cqc.org.uk/publications.cfm?fde_id=18566http://www.cqc.org.uk/publications.cfm?fde_id=18566http://www.cqc.org.uk/publications.cfm?fde_id=18566http://www.slideshare.net/slideshow/embed_code/9227150http://www.slideshare.net/slideshow/embed_code/9227150http://www.mediafire.com/?jcht9hc7cwm189whttp://www.mediafire.com/?jcht9hc7cwm189whttp://www.mediafire.com/?jcht9hc7cwm189whttp://www.slideshare.net/slideshow/embed_code/9227150http://www.cqc.org.uk/publications.cfm?fde_id=18566http://www.cqc.org.uk/mailto:[email protected]://www.cancerlt.org/
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    Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)

    or email: [email protected], or go to PLC website at http://plymouthlc.webs.com6

    XERCISE, NOT REST, is Important After Ops. This article

    was published inThe Heraldon Thursday, 11th

    August 2011.

    MACMILLAN Cancer Support has launched a campaign to

    encourage people in Plymouth affected by cancer to exercise

    more.

    The Move More campaignfollows a report that showed the

    importance of physical activity in the recovery and long-term

    health of cancer patients. Patients have long been

    encouraged to rest after treatment, something which Move

    More shows puts cancer patients at risk.Macmillan Cancer Support has estimated that at least 1.6

    million cancer survivors are at risk of long-term health

    problems and the recurrence of some cancers because they

    are not exercising enough. The report found that 150

    minutes of exercise a week can cut the risk of breast cancer

    recurring by 40%, compared to those doing less than an hour.

    Similarly, the risk of bowel cancer returning can be reduced

    by roughly half by doing six hours of moderate physical

    activity per week and the risk of dying from prostate cancer

    can be reduced by up to 30% with 150 minutes of moderate

    exercise a week.

    The survey found that many health professionals are notaware of emerging evidence that exercise could improve

    recovery and long-term health. The survey showed that 72

    per cent of GPs and 60% of oncologists do not discuss the

    possible benefits of exercise with their patients.

    David CROSBY, from Macmillan Cancer Support, said: "There

    really needs to be a cultural change, so that health

    professionals see physical activity as an integral part of cancer

    after care, not just an optional add on."

    He added: "It doesn't need to be anything too strenuous...

    doing the gardening, going for a brisk walk or swim all count.

    Health professionals can refer patients to a variety of services."

    'VE BEATEN CANCER, says Ex-England Star Bryan ROBSON

    after being given the All Clear. This article was published

    inthe Daily Mailon Friday, 26th

    August 2011.

    All clear: Bryan ROBSON has

    beaten throat cancer after he

    received a letter from a doctor

    that treated him.

    Former England football captain

    Bryan ROBSON has declared

    that he has beaten throat

    cancer.

    The 54-year-old said he was

    given the news in a letter from

    the specialist who treated him.

    ROBSON will now have another

    check-up to make sure the rest of his body is clear but says

    medics are confident that will be the case.

    It was revealed in March that the former Manchester United

    star, nicknamed Captain Marvel, had been diagnosed with thedisease.

    ROBSON, who was the Thailand national coach at the time,

    went to doctors after having difficulty swallowing and feeling a

    lump on his throat. He underwent surgery and radiotherapy.

    ROBSON said yesterday: It was great news that I had in the

    letter. Things seem to be going well for me.

    He said he was overwhelmed by the level of support from the

    public.

    'Ive been getting messages all the time and I have had great

    support from fans throughout the world and at West Brom,

    Middlesbrough, Thailand and obviously United.'Id like to thank everyone for that.'

    ROBSON joined the Reds in 1981 for a then British record of

    1.8m.

    In what was a barren decade by their standards his all-action

    performances helped them lift the FA Cup in 1983. ROBSON

    also lifted the Cup Winners Cup in 1991, the Premier League in

    1993 and 1994 - the same year the Red Devils also won the FA

    Cup.

    He won 90 England caps and scored 26 goals.

    To read more please click on this link.

    HE MONKEE WHO Sings Better Than Ever Because HeHad Throat Cancer. This article was published inthe Daily

    Mailon Tuesday, 16th

    August 2011.

    Having long ago turned his back on his wild rock past, Peter

    TORK had every reason to

    think he was in

    reasonably good health.

    But two years ago, The

    Monkees star received

    terrifying news... the dry

    throat and husky voice

    hed developed were

    signs of cancer of the

    neck. The diagnosis was

    a real jolt, says the 69-

    year-old.

    His symptoms first appeared in the autumn of late 2008.

    If you wish to read more, then please click on this link.

    EW PATIENT TRANSPORT Policy for Plymouth. NHS

    Plymouth is carrying out a piece of work about the

    production and implementation of a Patient Transport Policy,

    the purpose of which is to make sure that they are in line with

    national practice and that they have clear guidance on the

    management of patient transport. Additionally, the policyhopes to ensure that resources are targeted to the right

    people at the right time, with the appropriate level of

    support. This policy has been developed in conjunction with

    both NHS Devon & Cornwall & Isles of Scilly NHS Trust, to

    ensure a standardised approach for all patients across the

    South West Peninsula.

    They would welcome any feedback that people might be able

    to give. If any groups feel it would be useful for NHS Plymouth

    to come out and discuss it with them they would be happy to

    do this.

    The national policies which have been used to inform the

    production of local policy are as follows:

    E

    I

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    http://www.thisisplymouth.co.uk/Exercise-rest-important-ops/story-13109100-detail/story.htmlhttp://www.thisisplymouth.co.uk/Exercise-rest-important-ops/story-13109100-detail/story.htmlhttp://www.thisisplymouth.co.uk/Exercise-rest-important-ops/story-13109100-detail/story.htmlhttp://www.macmillan.org.uk/Aboutus/News/Latest_News/JoBrandMovesmoreforMacmillan.aspxhttp://www.macmillan.org.uk/Aboutus/News/Latest_News/JoBrandMovesmoreforMacmillan.aspxhttp://www.macmillan.org.uk/Aboutus/News/Latest_News/Inactivityriskslongtermhealthof16millioncancersurvivors.aspxhttp://www.macmillan.org.uk/Aboutus/News/Latest_News/Inactivityriskslongtermhealthof16millioncancersurvivors.aspxhttp://www.macmillan.org.uk/Aboutus/WhoWeAre/Our_people.aspx#DynamicJumpMenuManager_2_Anchor_7http://www.macmillan.org.uk/Aboutus/WhoWeAre/Our_people.aspx#DynamicJumpMenuManager_2_Anchor_7http://www.dailymail.co.uk/news/article-2030169/Bryan-Robson-beaten-throat-cancer-given-clear.html#ixzz1WXCCsWDwhttp://www.dailymail.co.uk/news/article-2030169/Bryan-Robson-beaten-throat-cancer-given-clear.html#ixzz1WXCCsWDwhttp://www.dailymail.co.uk/news/article-2030169/Bryan-Robson-beaten-throat-cancer-given-clear.html#ixzz1WXCCsWDwhttp://www.dailymail.co.uk/news/article-2030169/Bryan-Robson-beaten-throat-cancer-given-clear.html#ixzz1WXCCsWDwhttp://www.dailymail.co.uk/news/article-2030169/Bryan-Robson-beaten-throat-cancer-given-clear.html#ixzz1WXCCsWDwhttp://www.dailymail.co.uk/health/article-2026358/The-Monkee-sings-better-throat-cancer.htmlhttp://www.dailymail.co.uk/health/article-2026358/The-Monkee-sings-better-throat-cancer.htmlhttp://www.dailymail.co.uk/health/article-2026358/The-Monkee-sings-better-throat-cancer.htmlhttp://www.dailymail.co.uk/health/article-2026358/The-Monkee-sings-better-throat-cancer.htmlhttp://www.monkees.net/http://www.monkees.net/http://www.monkees.net/http://www.dailymail.co.uk/health/article-2026358/The-Monkee-sings-better-throat-cancer.html#commentshttp://www.dailymail.co.uk/health/article-2026358/The-Monkee-sings-better-throat-cancer.html#commentshttp://www.dailymail.co.uk/health/article-2026358/The-Monkee-sings-better-throat-cancer.html#commentshttp://www.monkees.net/http://www.monkees.net/http://www.dailymail.co.uk/health/article-2026358/The-Monkee-sings-better-throat-cancer.htmlhttp://www.dailymail.co.uk/health/article-2026358/The-Monkee-sings-better-throat-cancer.htmlhttp://www.dailymail.co.uk/news/article-2030169/Bryan-Robson-beaten-throat-cancer-given-clear.html#ixzz1WXCCsWDwhttp://www.dailymail.co.uk/news/article-2030169/Bryan-Robson-beaten-throat-cancer-given-clear.html#ixzz1WXCCsWDwhttp://www.macmillan.org.uk/Aboutus/WhoWeAre/Our_people.aspx#DynamicJumpMenuManager_2_Anchor_7http://www.macmillan.org.uk/Aboutus/News/Latest_News/Inactivityriskslongtermhealthof16millioncancersurvivors.aspxhttp://www.macmillan.org.uk/Aboutus/News/Latest_News/JoBrandMovesmoreforMacmillan.aspxhttp://www.thisisplymouth.co.uk/Exercise-rest-important-ops/story-13109100-detail/story.html
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    Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)

    or email: [email protected], or go to PLC website at http://plymouthlc.webs.com7

    Health Care Travel Costs Scheme

    Patient Transport Service

    Further supporting information is available on the NHS

    Plymouth Website.

    Let us know what you think about patient transport and

    how it could be improved... we need to hear from you by

    12th

    September 2011. Please contact the Plymouth LINk

    Support Team:

    Freepost RRZE-AGZT-EXRS

    LINk Support Team

    Unit 15, HQ Building,

    237 Union Street,

    PLYMOUTH, PL1 3HQ , Devon.

    Telephone: (01752) 202407

    Mobile: 07533 432200

    Website: www.plymouth-link.co.uk

    Email: [email protected]

    LYMOUTH HEALTHWATCHInformation Event. This event

    will take placeon Thursday, 22nd

    September 2011 from 9

    a.m. until 1 p.m. in the Charter Room ofPlymouth Guildhall.

    Discuss how H ealthWatch can represent local views Find out about the Governments plans for HealthWatch Share your ideas about how it could workPlease contactPlymouth LINkto let them know if you would

    like to attend and give your preferred date at:

    Plymouth LINk Support Team

    Freepost RRZE-AGZT-EXRS,

    Unit 15, HQ Building,

    237 Union Street,

    Plymouth, PL2 3HQ, Devon.

    Telephone: (01752) 202407

    Email: [email protected]

    OCIAL CARE DIRECTORY Launched. This article was

    published in The Plymouth Herald on Wednesday, 17thAugust 2011.

    PLYMOUTH City Council has launched a new

    online directory of Social Care & Health

    Services.

    ThePlymouth Online Directory(POD) has been

    designed to make information more accessible

    and give people greater choice and control

    over the services they want to use.

    The website draws together information about health and

    wellbeing, highlighting services and organisations to help

    people maintain their independence in their own homes.

    It contains information on local and national charities,

    community groups and organisations offering advocacy

    services, money advice and training, employment and

    volunteering opportunities

    Councillor Grant MONAHAN, Cabinet member for Adult

    Health & Social Care, said: "People are increasingly choosing

    to organise their own services and POD will help by bringing

    the information together into one place and making it easier

    to understand and navigate."

    Dr. Peter RUDGE, Chairman of the Plymouth Health service's

    Commissioning Group, added: "The council's development of

    the POD is a wonderful step forward in our efforts to help

    patients, clients and professionals navigate their way to

    everyday solutions to meet their needs."

    Editorial Comment: Geoff applied to have PLC included in

    the POD and we have since been added.

    RIO APPOINTED TO Help Run New Health Company.

    This article was published in The Plymouth Herald on

    Wednesday, 31

    st

    August 2011:TWO former police chiefs and a banker will help run a new

    company set to take over Plymouth's Community Health

    Services.

    Morris WATTS, Jim WEBSTER and Marie KERR have been

    appointed as non-executive directors of Plymouth

    Community Healthcare.

    The social enterprise will take control of community health

    services, 2,200 staff and a 90million budget from NHS

    Plymouth, the city'sPrimary Care Trust(PCT).

    The shift is part of nationwide changes, started under Labour

    and being taken on by the coalition. It is taking shape

    alongside other NHS reforms including giving GPs widerfunding powers when PCTs are abolished.Duncan CURRALL,

    Plymouth Community Healthcare chair designate, said he was

    delighted to announce the three appointments.

    The new organisation, which will provide community and

    mental health services for the people of Plymouth, is due to

    be launched on Saturday, 1st

    October 2011.

    Pleaseclick on this linkto read more.

    RIPS & DAYS Out on Offer to Care for Carers. This article

    was published inThe Heraldon Friday, 12th

    August 2011:

    CARERS are invited to take part in free summer activities.Carers Championsare working with other organisations to put

    on a range of events in coming months... for

    carers and the people they support.

    Options include massage treatments, meal

    out, trips to Paignton Zoo, a backstage tour

    of the Theatre Royal with lunch, and a trip to Buckfast Abbey.

    There will also be a course on Assertiveness & Confidence

    Building. Some activities require a 2 deposit.

    For more details and to secure a place call Carers Champions

    team on (01752) 211348.

    HAT IS THE Equality Delivery System (EDS)? The

    EDS has been designed to support NHS organisations

    to deliver better services for patients and communities which

    are personal, fair and diverse. It will help organisations meet

    the requirements of the Equality Duty which include having

    due regard for the need to:

    Eliminate unlawful discrimination, harassment & victimisation. Advance equality of opportunity between different groups. Foster good relations between different groups.The primary purpose of the EDS is to create conversations

    between NHS organisations and their patients, the public and

    stakeholders. These conversations will help us to assess our

    performance, and with your help enable us to agree whatequality objectives should be prioritised and the actions

    required.

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    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Guidance/DH_078373http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_116383
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    Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)

    or email: [email protected], or go to PLC website at http://plymouthlc.webs.com8

    Getting involved

    The first step for Plymouth Hospitals NHS Trust and NHS

    Plymouth (provider and commissioner) is to migrate from our

    existing Equality Schemes (strategy and action plan) to the

    new EDS. This will need to be in place by April 2012 and to

    help us do this we are running various engagement activities

    which aim to:

    Ensure you know what is happening, when it will happen andhow it will affect you.

    Increase the opportunity for feedback and input into the EDS anddevelop partnerships to help assist with the delivery of the EDS.

    Work with you, in particular diverse communities to understandwhat the priorities are.

    Achieve a shared understanding of the EDS. Explain why we are taking a particular action.We are holding an event on Wednesday, 26

    thOctober, from

    9.15 a.m. to 12.30 p.m., at the Welcome Hall, 4 Fore Street,

    Devonport to start this conversation (lunch provided). The

    aim of the session is to:

    Inform you of the EDS and how your input can help shape anddeliver the best solutions to meet the needs of the people of

    Plymouth.

    Involve you in the development of the EDS objectives and anopportunity to comment on the EDS.

    Help us assess where we are as an organisation (analysing andgrading performance).

    At the end of the session you will receive an Equality

    Champion pack which can be shared with others to help start

    the assessment process. We are also committed to ensuring

    the conversation continues after the grading process so that

    together we can identify objectives that will benefit

    communities and deliver better outcomes.

    We hope that you are able to attend and please let know byThursday, 15

    thSeptember 2011 via the contact details below.

    Further details will be forwarded nearer the time. If you are

    unable to make this date we would still like to hear from you.

    Email: [email protected]

    Post: Equality & Diversity Organisational Development

    Building 4

    Derriford Business Park

    Derriford,

    Plymouth PL6 5XN

    Telephone: (01752) 437251 or (01752) 437610.

    ENINSULA HEAD & NECK CANCER SUPPORT GROUP(PHANCS)

    Are you interested in a support group for head and neck

    cancer patients and carers?

    This could take the form of:

    Group meetings, One to One meetings,

    Information / advice by post or E mail

    An on line web site, Telephone help line,

    Or a combination of the above.

    We have established that there is a need for such a group

    and are in the early planning stage.

    If you would be interested in

    helping with setting up the

    group please contact Mac Merrett.

    [email protected] Tel. 01392 8412490

    LTERNATE MEANINGS FOR Common Words. A

    newspaper has published the winning submissions to its

    yearly contest, in which readers are asked to supply alternate

    meanings for common words. And the winners are:

    1. Coffee, n.

    The person upon whom one coughs.

    2. Flabbergasted, adj.

    Appalled by discovering how much weight one

    has gained.

    3. Abdicate, v.

    To give up all hope of ever having a flat stomach.

    4. Esplanade, v.

    To attempt an explanation while drunk.

    5. Willy-nilly, adj.

    Impotent.

    6. Negligent, adj.

    Absentmindedly answering the door when

    wearing only a nightgown.

    7. Lymph, v.

    To walk with a lisp.

    8. Gargoyle, n.

    Olive-flavoured mouthwash.

    9. Flatulence, n.

    Emergency vehicle that picks up someone who

    has been run over by a steamroller.

    10. Balderdash, n.

    A rapidly receding hairline.

    11. Testicle, n.

    A humorous question on an exam.

    12. Rectitude, n.The formal, dignified bearing adopted by

    proctologists.

    13. Frisbeetarianism, n.

    The belief that, after death, the soul flies up onto

    the roof and gets stuck there.

    14. Circumvent, n.

    An opening in the front of boxer shorts worn by

    Jewish men.

    ACKNOWLEDGMENT

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    THE PLYMOUTH DIOCESEhttp://www.plymouth-diocese.org.uk/

    for their assistance in reproducing copies ofthis newsletter

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