The participation of adults with learning disabilities in photographic research
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The participation of adults with learning disabilities in photographic research
Dr Jo AldridgeLoughborough University
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Promoting participation• Ensure socially excluded,
‘hard to reach’ participants are included in research investigations
• Genuine dialogue between researchers, participants, policy makers, practitioners
• Research with people with learning disabilities should not rely on verbal exchange
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Participation in STH research• Research into the benefits of
social and therapeutic horticulture for people with learning disabilities and other vulnerable groups
• Aims were to promote wider understanding of learning disability and therapeutic role of STH projects and to help transform perceptions of learning disability
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Advantages of photographic participatory techniques
• Provide insight into unseen or ‘hard to reach’ locations
• Help to ‘bridge the gaps’ between researcher and researched
• Help to challenge fixed perceptions and stereotypical representations of disability
• Provides ‘a direct entry into respondents’ point of view’
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Analysis of visual data
• Content and thematic analysis
• Elicitation phase – ‘favourite’ images
• In STH, social activity valued as well as activities; particular focus on tools and structures
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‘That’s my friend, Diane’ (Ted)‘
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‘We had a fire, I like having fires’ (Carl)
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‘That’s on contract work, I like contract work’ (Ted)
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Photo participation - challenges
• Ethical considerations:• Photography’s loss of privacy• Intrusion, exploitation• Confidentiality and consent procedures –
more challenging when respondents do not understand these concepts
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Addressing these issues
• Use of advocates for safeguarding and support• Ensure participants ‘own’ the visual data• Consent from respondents and advocates – ascertain
legal responsibility; consent from all photographic subjects
• Follow recognised ethical guidelines and procedures• Ensure participants are willing and happy to participate
and engage in research processes• Outputs must be about participants as well as for them
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Success of the method• People with learning
difficulties can demonstrate their skills (as photographers)
• Mixed approaches (participation, elicitation) can overcome interpretative challenges
• Participants enjoyed the process and visual approaches adopted by project workers
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‘I took this of my friend David because he doesn’t like having his photograph taken and I caught him between the Portakabins’ (Colin)
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Sempik, Aldridge and Becker (2005) Health, Well-Being and Social Inclusion: Therapeutic Horticulture in the UK, The Policy Press.