Innovation and excellence in health and care Addenbrooke’s Hospital I Rosie Hospital

The Nurse Experience EWGGD, Paris 2012

Liz Morris UK

Innovation and excellence in health and care

Disclaimers

Fees for speaking/travel grants received from Genzyme and Shire

Innovation and excellence in health and care

Nursing: UK origins

• Origins in the 19th century• Unskilled helpers• Florence Nightingale 1860

Nursing: today

“To help people sick or well in the performance of those activities contributing to health or its recovery …that they would perform unaided if they had the necessary strength will or knowledge…. to help people gain independence as rapidly as possible”

Virginia Henderson 1966

Innovation and excellence in health and care

Nursing : Gaucher disease

Innovation and excellence in health and care

Funding Authority

Physicians

Healthcare Workers

Patient Association

Work/schoolFamily

Industry

Pharmacy

Homecare

Nursing: roles

Innovation and excellence in health and care

Clinical

ERT infusion and managing side

effects

Counselling and advocacy

Helpline and advice

Education Management Research

Patients and families

Health care

staff

Other professionals

Care co-ordination

Nursing research

Clinical research

Clinical auditBusiness planning

Other

Reimbursement Extended roles

Liaison with industry

Liaison with homecare /pharmacy

Nursing: Enzyme Replacement Therapy (ERT)

Hospital

• Nurse• Independent

Home

Innovation and excellence in health and care

Zimran A, Hollak C et al Home treatment with intravenous enzyme replacement therapy for Gaucher disease: an international collaborative study of 33 patients Blood vol82, no 4 (August15), 1993:pp110--1109

Nursing: home ERT schemes

Providers • Hospital • Community• Industry

Innovation and excellence in health and care

Work in preparation by C E M Hollak et al data from 2008

Nursing: equipment

Innovation and excellence in health and care

Nursing: venous access

Nursing packages

• Nurse administration• Training patient/carer• Cannulation only• On call

Innovation and excellence in health and care

Innovation and excellence in health and care

Nursing: equipment

Innovation and excellence in health and care

Nursing: home therapy safety

• Home ERT >20 years experience (182 patients)• 4 reported AE’s – allergic responses, 1 severe • Central venous access device (CVAD)complications

- 2 patients port-a- cath central sepsis (both splenectomised)

- 3 blocked ports

Innovation and excellence in health and care

Thank you

Innovation and excellence in health and care

Nursing: the patient

Innovation and excellence in health and care