The NQF Patient Passport: Closing the Quality Chasm One Conversation at a Time

September 23, 2014

The Patient and Family EngagementAction Team

Who created the Patient Passport?

The Patient and Family Engagement Action Team is a 17 member multi-stakeholder group brought together to support the work of the Partnership for Patients’ goals of reducing hospital acquired conditions and preventable hospital readmissions. The team started its work in February and is ending now, in September.

It was asked to identify a specific patient and family engagement- related goal that would further the work of the Partnership for Patients. Specifically, it was encouraged to think of a way to integrate the patient voice into hospitals nationwide.

The Patient and Family EngagementAction Team

NQF convened these 17 stakeholders in 2014, with support from the Partnership for Patients

Libby Hoy, BSPatient & Family Centered Care Partners, Inc. Carol Levine, MAUnited Hospital Fund Wendy Nickel, MPHAmerican College of Physicians Elana Premack Sandler, LCSW, MPHBeth Israel Deaconess Medical Center Keith ReissausNurse-Family Partnership (NFP) National Service Office Carol Wahl, BSN, MSN, MBAGood Samaritan Hospital Knitasha Washington, DHA, MHA, FACHEWashington Howard Associates Jonathan Welch, MD, MScHarvard Medical School

Susan Frampton, PhD (Co-Chair)Planetree Pat Mastors (Co-Chair)Patient Voice Institute Kimly Blanton Vidant Health System Mary CloughUniversity of Minnesota Medical Center Perry Cohen, PhDParkinsons Pipeline Project Thomas Dahlborg, MSMNational Institute for Children’s Health Quality (NICHQ) Sheila Delaney Moroney, MPHHennepin County Medical Center Ted Eytan, MD, MS, MPHKaiser Permanente

Richard Hanke, Ed.D., SPHRConsumer Representative, REH & Associates

Helping Patients Share their Story

▪ A communications tool for patients to use with providers at the point of care, to help articulate their needs and preferences

▪ Built on existing tools

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Introducing the “Patient Passport” model . . .

Why Do Patients Need a Patient Passport?

Rather than being an active driver of their own care, patients are usually reacting to what is happening around them. This can be frustrating, confusing, and scary.

The Patient Passport helps the patient: 1) Think ahead and plan for their hospital experience2) Know what they want and need3) Express what they want and need4) Plan for going home

The Patient Passport is not intended to replace conversation between the patient and care provider; it’s meant to start conversation

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2001 Institute of Medicine Report: Crossing the Quality Chasm

1. Care is based on continuous healing relationships.2. Care is customized according to patient needs and values.3. The patient is the source of control.4. Knowledge is shared and information flows freely.5. Decision-making is evidence-based. 6. Safety is a system property.7. Transparency is necessary.8. Needs are anticipated.9. Waste is continuously decreased.10. Cooperation among clinicians is a priority.

Knowing the patient’s story can impact their entire plan of care

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How the Patient Passport Helps Close the Chasm, One Conversation at a Time

Rachel

What does a Passport look like?

The Passport is intended to be a Conversation Starter . . Anticipating Critical Questions Makes Time for the Patient’s Voice

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Preferences, Values, and Shared Decision-Making: The Activated Patient

One Patient. One Passport. One Conversation.

➢ Tell your patients about the Passport➢ Tell your clinicians about the Passport➢ Show your patients the app or the website➢ Put a poster up in a waiting room

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How Can You Help?

Give your patients a Passport. Help them have a conversation with you.

App Available Sept. / Oct. 2014

● Free for patients and providers

● Company co-founded by Johns Hopkins Faculty and patient safety experts; has a content license with Johns Hopkins

● Can be integrated with EMR, Patient Portal

● Secure and HIPAA compatible

● Download app today to get notificationwhen version 2.5 available

DEMO

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● Patients can enter information in real time

● Patients help improve communication and reduce time by using Patient Passport▪ Use on phone with nurse and doctor▪ Use print out with customized details

● www.Doctella.com/demo ▪ Mobile App▪ Web▪ Print Platform for non-tech population

Share with Patients

● Start simple○ Use waiting room mini-passport

to trigger patient engagement○ Print and put in your waiting rooms○ Free copies: www.doctella.com

● Get customized analytics reports foryour hospital○ Waiting list sign-up atwww.doctella.com/passport

Thank you and Next Steps

Hospitals that have already committed to being Passport-friendly:

• Griffin Hospital (Derby, CT) – piloting the Patient Passport in a community-wide initiative • St. Vincent Indianapolis (Indianapolis IN) – hospital-wide integration with a mobile platform• Johns Hopkins, in partnership with NQF, has applied for a grant from the Patient-Centered Outcomes

Research Institute (PCORI) for a two-year research study to test the connection between the use and experience of the Patient Passport in 500+ surgical oncology patients and safety/quality outcomes (Baltimore, MD)

How you can be a Passport-friendly Hospital:• Download the Patient Passport at www.doctella.com • Download fliers for your waiting room at www.doctella.com • Show your patients how to use the app or how to navigate the website to download a free PDF

Questions and feedback about the Patient Passport? Please email: Rachel Weissburg, NQF Project Manager, rweissburg@qualityforum.org

Amer Haider, CEO, Doctella, amer@doctella.com

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