The 5th International Conference of Patient- and Family-Centered Care Brochure

june 4–6, 2012 • the omni shoreham hotel • washington, dc • www.ipfcc.org

With leadership support from

http://www.ipfcc.org/

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Now is an important time to be involved in improving health care. These demanding times require inspired leadership, innovative solutions, and enduring partnerships to bring about change.

The 5th International Conference on Patient- and Family-Centered Care: Partnerships for Quality and Safety will offer patient- and family-centered strategies that address the increasing challenges in health care such as rising costs, fluctuating patient satisfaction scores, and delivering safe and quality care for each and every patient—

reducing readmissions, decreasing infections, and providing safe care transitions.

International experts and innovators will examine patient- and family-centered approaches and best practices to help guide your organization in developing stronger partnerships with patients and families on every level. Participants will learn cutting-edge innovations that improve the health care experience and keep patients from getting injured or sicker, and help them heal without complications.

partnerships with patients and families to enhance Quality and safety

The Institute for Patient- and Family-Centered Care is grateful for the leadership support of the Samueli Institute and the Picker Institute for helping to bring this conference to DC. We are proud to partner with these exemplary organizations and to highlight their significant work in advancing the practice of patient- and family-centered care.

We are also grateful to the following organizations for providing conference program support:

In addition to the strong programming featuring best practices in patient- and family-centered care initiatives from programs around the U.S. and the world, the Institute for Patient- and Family-Centered Care is partnering with two innovative non-profit organizations that focus on improving health care:

•The Samueli Institute will present a series of sessions that highlight effective strategies for creating, implementing, and evaluating mind-body programs and practices within a patient- and family-centered context. Experts in mind-body skills, program evaluation, and patient- and family-centered care and program delivery will lead discussion panels and showcase exemplary programs; and

•The Picker Institute will present the Picker Patient Experience Series which identifies seven presentations, including the Picker Lecture by Dr. Don Berwick, and several posters that depict innovation in patient-centered care, emphasizing partnerships with patients and families in health care. Several featured presentations are Picker Institute’s 2011/2012 Always Events® Challenge Grant Recipients that address two key thematic areas of focus for Always Events®—communication and care transitions.

washington, dc provides a dynamic backdrop for The 5th International Conference on Patient- and Family-Centered Care: Partnerships for Quality and Safety. The

nation’s capital is recognized as the most historic and influential city in

the United States…where the passion of the past meets the promise of

the future. Here, inspiration is nurtured, innovation is celebrated, and

partnerships are formed.

And, here is where those who are determined to improve the safety, quality,

and experience of health care will come together June 4–6, 2012 to share

exemplary programs dedicated to authentic collaboration among patients, families, health care professionals, and policy

specialists. This International Conference offers an exciting program that will guide, inspire, and motivate you.

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Patient- and family-centered care offers a framework to respond to the increasing complexities of health care. Sessions will offer practical strategies for redesigning systems of care, changing culture, and partnering with patients and families to improve outcomes. Throughout the conference, participants will observe the value of partnering with patients and families to address challenges, such as the expanding use of technology, the need for new facilities, the risk of medical error, improving transitions in care, redesigning the primary care system, the increasing numbers of people living with chronic conditions, and the pressure to control costs. Partnerships with patients and families are integral to the practice of patient- and family-centered care. These powerful partnerships are essential to redesigning health care and improving quality and safety and the experience of care.

Whether you are in the early stages of implementing the practice of patient- and family-centered care, or further along in your journey, this international conference offers an exciting program that will expand your knowledge, enhance your skills, and inspire you with innovations to become an even more effective change-agent in health care.

We invite you to join us in Washington, DC at The 5th International Conference on Patient- and Family-Centered Care to learn from leaders around the world.

ConFerenCe ProgrAmmIngSessions will feature a variety of innovative and successful programs dedicated to collaborative efforts with patients and families. Significant numbers of patient and family leaders—who have extensive experience in partnering with health care professionals—will assemble with health care administrators, clinicians, medical educators, researchers, architects, and others from across the United States, Canada, United Kingdom, Australia, and other countries.

Presentations during the conference aim to provide the most current insights and strategies in advancing the practice of patient- and family-centered care. More than 100 sessions and 85 posters represent the most innovative patient- and family-centered practices, initiatives, education, research, and design approaches. Key themes are:

•Leadership for Advancing the Practice of Patient- and Family-Centered Care

•Developing and Sustaining Effective Partnerships with Patient and Family Advisors/Leaders

•Collaboration with Patients and Families in Primary Care

•Changing the Concept of Families as Visitors in Hospitals and Other Health Care Facilities

•Education of the Public to Promote Active Engagement in Health Care

•Mind-Body Programs and Practices Within a Patient- and Family-Centered Framework

A diverse group of expert presenters will represent hospitals, health systems, community-based programs, patient- and family-led organizations, physician practices, schools of medicine, nursing, allied health, and other health professions. Educational sessions will address a variety of settings including adult and pediatric inpatient care and ambulatory/primary care, maternity care, newborn intensive care, mental health, chronic illness care, professional education, and environment and design, as well as optimal healing environments.

Be a part of this important meeting!

Who Should Attend• Patient and Family Advisors and Leaders

• Health System Trustees, Administrative Leaders, and managers

• Health Care Practitioners and Clinicians

• Integrative Health Care Practitioners

• Stress management and mind-Body Specialists

• Social Workers, Child Life Specialists, Chaplains, and other Supporting Staff

• respiratory, occupational, and Physical Therapists and Developmental Specialists

• Quality management and Patient Safety Personnel

• Care Coordinators/Discharge Planners

• Health Care educators and Information Specialists

• Faculty, researchers, and Students in Schools of medicine, nursing, Social Work, Allied Health, and other related fields

• organizational Development Professionals

• Architects, Interior Designers, and Facility Planning Staff

• Health Care Planners, Policy makers, and government Agency Leaders

• VA/military Administrative Leaders, Clinicians, Staff, and their Patient and Family Advisors

• Funders of Health Care Programs

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Conference Learning objectives• gain understanding of patient- and family-

centered care and how it can be applied to all settings across the continuum of care.

• identify strategies to support and encourage patient and family engagement and partnerships among patients, families, and health care professionals.

• discuss patient- and family-centered strategies for improving quality, safety, and the experience of care.

• explore examples of excellence and innovation in patient- and family-centered policy, program, practice, professional education, research and facility design in hospitals, community practices, and agencies across north America and throughout the world.

• delineate patient- and family-centered best practices and related benefits for leadership, the redesign of primary care and hospital care policies and processes, and mind-body programs and practices.

Continuing educationnurses: Approval is pending for this activity by the

maryland nurses Association which is accredited as

an approver of continuing education in nursing by

American nurses Credentialing Center’s Commission

on Accreditation.

physicians: Application for Cme credits has

been filed with the American Academy of Family

Physicians. Determination of credit hours is pending.

social workers: This program is pending

approval from the national Association of

Social Workers.

Spread the Word! Learn How to Tweet!

Do you tweet? Want to tweet? need a Twitter account?

The Institute wants to help you spread the word about what’s happening at The 5th International Conference on Patient- and Family-Centered Care. As a complimentary service to participants—and to help spread the word—we will teach you how to set up a Twitter account, how to tweet, learn how to follow others, and how to get followers.

Look for our Twitter table in the exhibit Hall and start tweeting!

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ConFerenCe ProgrAm ADVISory CommITTeeMarie R. Abraham, MASenior Policy and Program SpecialistInstitute for Patient- and Family-

Centered CareOld Lyme, CT

Christine Bechtel, MAVice PresidentNational Partnership for Women & FamiliesWashington, DC

Elizabeth Crocker, BA, MEdPresidentWoozles Ltd. and AuthorVice President, Board of DirectorsInstitute for Patient- and Family-

Centered CareHalifax, NS, Canada

Nancy DiVenereFounder/Past PresidentParent to Parent USAEssex Junction, VT

Kimberly Firth, PhDSenior Research AssociateOptimal Healing Environments ProgramSamueli InstituteAlexandria, VA

Beverley H. JohnsonPresident and Chief Executive OfficerInstitute for Patient- and Family-

Centered CareBethesda, MD

Wayne Jonas, MDPresident and Chief Executive OfficerSamueli InstituteAlexandria, VA

Joanna Kaufman, RN, MSInformation SpecialistInstitute for Patient- and Family-

Centered CareBethesda, MD

Julie Ginn Moretz, BSFamily Leader and Director of

Special ProjectsInstitute for Patient- and Family-

Centered CareAugusta, GA

Debra Ness, MSPresidentNational Partnership for Women & FamiliesWashington, DC

William E. Schwab, MDProfessor and Vice Chair, Department of

Family MedicineUniversity of Wisconsin School of Medicine

and Public HealthMadison, WI

Terri Shelton, PhDDirector, Center for Youth, Family, and

Community PartnershipsUniversity of North Carolina at GreensboroGreensboro, NC

Katherine Smith, MPHProgram ManagerOptimal Healing Environments ProgramSamueli InstituteAlexandria, VA

The Samueli Institute is an independent research organization uniquely positioned to illuminate the value of wellness and healing practices and to facilitate a change in behaviors to actualize those practices and outcomes. The Institute focuses on determining the safety, effectiveness, and utility of wellness approaches, integrative health care, and healing oriented practices and environments. The Institute generates knowledge and information about wellness and healing and provides that information to the public.

Samueli Institute’s Vision is “a world in which healing processes are the formative concept for achieving and maintaining wellness and ameliorating chronic disease.” During the conference, Samueli will convene three dedicated sessions that focus on mind-body programming: 1) Developing and Implementing Mind-Body Programs and Practices Within a Patient- and Family-Centered Framework; 2) Evaluating Mind-Body Programs and Practices Within a Patient- and Family-Centered Framework; and 3) Showcasing Mind-Body Programs and Practices Within a Patient- and Family-Centered Framework: The Lived Experience.

These sessions are identified in the program brochure by:

The Picker Institute is an independent nonprofit organization

dedicated to advancing the principles of patient-centered care. In cooperation with educational institutions and other committed entities and individuals, the Picker Institute sponsors awards, research, and education to promote patient-centered care. The Picker Institute fosters improvement in health care from the patient’s perspective—through the patient’s eyes. The Picker Patient Experience Series highlights seven presentations and several posters that depict best practices in patient-centered care, emphasizing patient/family partnerships in health care. Several featured presentations are Picker Institute’s 2011/2012 Always Events® Challenge Grant Recipients that address two key thematic areas of focus for Always Events®—communication and care transitions.

Based upon a review of existing efforts to measure and improve patient-centered care, Picker determined that an organizing principle focused on the concept of Always Events® can be implemented to drive the health care system to become more patient-centered. In contrast to the well known “Never Events” that refer to incidents that should never happen in the delivery of care, patient-focused Always Events® are aspects of the patient and family experience that should always occur when patients interact with health care professionals and the delivery system.

The Picker Patient Experience Series is identified in the brochure by:

special programmingthe institute for patient- and family-centered care is proud to partner with these two leading non-profit organizations dedicated to improve health care:

“Truly an outstanding conference…a career investment!”

— Philadelphia

Conference Participant

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C o n fer en C e A b st r ACt r e v i e w C o m m i t t ee

Marie R. Abraham, MASenior Policy and Program SpecialistInstitute for Patient- and Family-Centered CareOld Lyme, CT

Elizabeth Ahmann, ScD, RN, ACCConsultant, Child and Family HealthSection Co-Editor, Family MattersPediatric Nursing AD/HD and Life CoachingCheverly, MDCarolyn AllshouseExecutive DirectorFamily Voices of MinnesotaStillwater, MNJanet Bell-Taylor, MBADirector, Patient Family Services and Michael

Fux Family CenterMiami Children’s HospitalMiami, FLBrenda B. BobergExecutive DirectorFamily Support Network of Eastern

North CarolinaVidant HealthGreenville, NCJoanna F. Celenza, MA, MBAMarch of Dimes/CHaD ICN Family

Support SpecialistIntensive Care NurseryChildren’s Hospital at DartmouthLebanon, NH Tiffany Christensen, BFAChief Executive OfficerSick Girl Speaks, Inc.Co-Chair, Duke Patient Advocacy CouncilDurham, NCMichelle Collis, MAVice President, Patient- and Family-

Centered Care Methodist Le Bonheur Healthcare Memphis, TNCherie A. Craft, MEdExecutive Director, Smart from the StartCity of Boston, Mayor’s OfficeBoston, MACatherine Crock, MD, BSPhysicianAustralian Institute for Patient and Family

Centred CareMelbourne, Victoria, AustraliaElizabeth Crocker, BA, MEdPresident, Woozles Ltd., and AuthorVice President, Board of DirectorsInstitute for Patient- and Family-Centered CareHalifax, NS, CanadaRhonda Crocker Ellacott, HBScN, MA (CNS), EdDVice President, ER, Critical Care, Trauma &

Surgery and Chief Nursing ExecutiveThunder Bay Regional Health Sciences CentreThunder Bay, Ontario, CanadaPam Dardess, MPHSenior ResearcherAmerican Institutes for ResearchChapel Hill, NCBarb Degnen, RN, BSNPatient RepresentativeInstitute for Clinical Systems

Improvement, Inc.Edina, MNNancy DiVenereFounder/Past PresidentParent to Parent USAEssex Junction, VTDeborah Dokken, MPAFamily Healthcare Advocate/ConsultantChevy Chase, MD

Anika Doucette, MS, MT (ASCP)Customer Service Program Manager and

Patient Centered Care CoordinatorDepartment of Veteran AffairsAtlanta VA Medical CenterAtlanta, GAMichelle Z. Esquivel, MPHDirector, Division of Children with Special NeedsDirector, National Center for Medical

Home ImplementationAmerican Academy of PediatricsElk Grove, ILTed Eytan, MD, MS, MPHMedical Director for Delivery Systems

Operations ImprovementThe Permanente Federation, LLC Kaiser PermanenteWashington, DCGareth Fenley, MSW, CPSCertified Peer SpecialistDepartment of Psychiatry and Health BehaviorGeorgia Health Sciences UniversityAugusta, GAKimberly Firth, PhDSenior Research AssociateOptimal Healing EnvironmentSamueli InstituteAlexandria, VAMarlene Fondrick, BSN, MSN, RNProgram AssociateInstitute for Patient- and Family-Centered CareRichville, MNBrenda Foster, RN BScNPatient Relations CoordinatorChatham-Kent Health AllianceChatham, Ontario, CanadaJoanne Ganton, BCommManager, Patient & Family Centred CareAlberta Health Services — South

Health CampusCalgary, Alberta, CanadaMilton Gardner, BArch, AIA, FRAIC, EDACPrincipalKasian Architecture Interior Design and

Planning, LTDWest Vancouver, British Columbia, CanadaMichael G. Goldstein, MDAssociate Chief Consultant for

Preventive MedicineVeterans Health AdministrationDurham, CTKelly Gourdin, BSProgram Manager, Optimal

Healing EnvironmentsSamueli InstituteAlexandria, VASusan Grant, MS, RN, FAAN, NEA-BCChief Nurse ExecutiveEmory HealthcareAtlanta, GA Terry Griffin, MS, APNNeonatal Nurse PractitionerSt. Alexius Medical CenterHoffman Estates, ILW. Kent Guion, MD, MAVice President for Diversity and InclusionGeorgia Health Sciences UniversityAugusta, GAAlexandra Harrison, PhDAdjunct Associate Professor Faculty

of MedicineUniversity of CalgaryCalgary, Alberta, CanadaLeslie Hazle, MS, RN, CPNDirector of Patient ResourcesCystic Fibrosis FoundationBethesda, MDSandy Hobbs, BSN, MSN, RNDirector, Network Partnerships and OutreachGeorgia Health Sciences University

Medical CenterAugusta, GA

Amy Jones, BS, RRTAdministrator, Office of Patient and

Family ExperienceVidant HealthGreenville, NCWendy Jones, MEd, MSWDirector, Children and Youth with Special

Health Care Needs ProjectNational Center for Cultural CompetenceGeorgetown University Center for Child &

Human DevelopmentWashington, DCJoanna Kaufman, BS, MS, NCAST Information SpecialistInstitute for Patient- and Family-Centered CareBethesda, MDLinda Larin, MBA, FACHE, FACCAChief Administrative OfficerUniversity of Michigan Cardiovascular CenterAnn Arbor, MIGeorge A. Little, MDProfessor of Pediatrics Dartmouth Medical SchoolDartmouth-Hitchcock Medical Center Lebanon, NHRoslyn Marshall, RN, BSN, MHSANurse Manager, Neuroscience CenterGeorgia Health Sciences UniversityAugusta, GAAlbert (Nick) Masi, PhD Director, Patient- and Family-Centered CareJoe DiMaggio Children’s HospitalHollywood, FLBrenda Miller, BFAParent CoordinatorUniversity of Michigan Health SystemAnn Arbor, MIMary Minniti, CPHQProgram and Resource SpecialistInstitute for Patient- and Family-Centered CareEugene, ORJulie Ginn Moretz, BSFamily Leader and Director of Special ProjectsInstitute for Patient- and Family-Centered CareAugusta, GAKeith MurphyAssistant Director, Patient & Family ExperienceWomen and Infants Hospital of Rhode IslandProvidence, RIMargaret MurphyExternal Lead, Patients for Patient SafetyWorld Alliance for Patient SafetyCork, IrelandNancy Newman, MSW, LCSWDirector, Patient Support and AdvocacyMoffitt Cancer CenterTampa, FLScott NewportPatient/Family LeaderMott Children’s Hospital/University of MIAnn Arbor, MIBonnie Nicholas, RN, CNCC(C), CPTCPatient and Family Centred Care LeadThunder Bay Regional Health Sciences CentreThunder Bay, Ontario, CanadaTerri Nuss, MS, MBAVice President, Patient CenterednessBaylor Health Care SystemDallas, TXLynne Wilson Orr, BID, MArch, OAA, RAICPrincipalParkin Architects LimitedToronto, Ontario, CanadaMarilyn Oelfke, RN, BSFormer Senior Director of Long-Term

Care Services Perham Memorial Hospital and HomePerham, MN

Kelly Parent, BSFamily Leader and Manager, Patient- and

Family-Centered Care ProgramC.S. Mott Children’s Hospital and Voightlander

Women’s HospitalUniversity of Michigan Hospital and Health

CentersAnn Arbor, MISherry Perkins, PhD, RNChief Nursing Officer/Senior Vice President

for Patient CareAnne Arundel Health SystemAnnapolis, MDTracy Price-JohnsonChildren’s Advisory CouncilChildren’s Hospital of Colorado Aurora, COVictoria Ransom, RN, MSNCOL (Retired)Walter Reed National Military Medical Center Columbia, MDDebra Rosen, RN, MPHProgram Director, Public Health,

Health Education, Chronic Disease and Health Education

Northeast Valley Health Corporation San Fernando, CAAnna Roth, MS, MPHChief Executive OfficerContra Costa Regional Medical Center and

Health CentersMartinez, CAJudy Roudebush, RN, NE-BCDirector, Women and Children’s ServicesProvidence Regional Medical Center EverettEverett, WAHollis Guill RyanProgram CoordinatorPatient and Family Centered Care ServicesUniversity of Washington Medical CenterSeattle, WAJudith Schaefer, MPHSenior Research AssociateMacColl Center for Health Care InnovationSeattle, WAJuliette Schlucter, BSFamily Leader and Patient- and Family-

Centered Care Consultant Ocean City, NJTerri L. Shelton, PhDDirector, Center for Youth, Family, and

Community PartnershipsUniversity of North Carolina at GreensboroGreensboro, NCKatherine Smith, MPHProgram Manager, Optimal

Healing EnvironmentsSamueli InstituteAlexandria, VATerrell Smith, MSN, RNDirector, Patient and Family Centered CareVanderbilt University HospitalNashville, TNDonna Thompson, LLD (Hon)Patient and Family AdvocateHalifax, Nova Scotia, CanadaMike Vossmeyer, MDAssistant Professor, Clinical PediatricsCincinnati Children’s Hospital Medical CenterCincinnati, OHPeggy J. Wagner, PhDProfessor, Family MedicineUniversity of South CarolinaGreenville, SC Lynel Westby, BA, RNDirector, Patient and Family Support ServicesSeattle Children’s HospitalSeattle, WA Kathi Zarubi, RN, BSN, MBA, NEA-BCAssociate Vice PresidentScottsdale HealthcareScottsdale, AZ

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pre-conference hospital tours

SUnDAy, JUne 3, 1:30 – 5:30 Pm

fort belvoir community hospital tourCost: $15 (Transportation)

Fort Belvoir Community Hospital, the newest military hospital in the nation, serves as a model for military hospitals

around the world. Patient and family advisors participated in the planning for this new facility that opened in 2011. The guiding principles to achieve the hospital’s mission, pursue its vision, and maintain the highest level of quality and service are the Culture of Excellence, Patient- and Family-Centered Care, and Evidence Based Design.

The new Fort Belvoir Community Hospital is part of an integrated health care network providing world-class medical service to the nation’s wounded, active duty service members, retirees, and family members. See firsthand how patients and families are supported in this healing environment and how families are welcomed 24/7. In addition to touring patient- and family-centered inpatient areas, participants will get a close up view of other unique features including the smart board which reads the namebadge of those entering the patient room as well as the spectacular healing garden. The hospital is a LEED Silver building.

SUnDAy, JUne 3, 3:00 – 5:30 Pm

children’s national medical centerCost: $10 (Transportation)

Tour The Children’s National Medical Center, an

award-winning hospital recognized for its dedication to an exceptional standard of comprehensive care for patients and families. Tour highlights include patient care areas, such as the Medical Care and Respiratory Care Unit, Hematology and Oncology Unit, Heart and Kidney Unit, CICU and Heart Institute Clinic, and areas that support patients and families in the Neuroscience Unit, Surgical Care Unit, and NICU.

Participants will enjoy refreshments in the Research Atrium, and learn about Children’s National’s patient- and family-centered care journey, hearing from its leadership, staff, and members of the Patient Family Advisory Council. Other tour areas include:

•The Main Atrium—known as the living room of the hospital—serves as one of the main hubs for families.

•The Emergency Department’s trauma bays designed to accommodate family presence. Learn more about the region’s only Level 1 Pediatric Trauma Center.

•The state of the art patient- and family-centered Decontamination Unit for decontam-inating parents and patients together before treatment in cases of biologic or chemical contamination.

•The Joseph E. Roberts Center for Surgical Care—expanded in 2009 with input from patients and families—includes a flow re-design, an educational kiosk, a quiet room for meditation, and an electronic board that tracks the progress of patients from the beginning of surgery through recovery.

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program at-a-glance

monday, June 4, 2012 7:00 am – 8:00 am registration, Continental Breakfast, exhibits, Poster Displays

8:00 am – 10:00 am Plenary Session

10:00 am – 10:30 am Break — exhibits/Poster Presentations (Staffed)

10:45 am – 12:45 pm Concurrent Sessions A1 – A10

12:45 pm – 2:00 pmLunch — exhibits/Poster Presentations (Staffed)

Special Luncheon with Jim Conway — Learning and Improving Health Care Systems: The Patient, the Family, the Public (reservations required)

2:15 pm – 3:30 pm major Breakout Sessions B1 – B5

3:30 pm – 3:45 pm Break

3:45 pm – 5:00 pm Concurrent Sessions C1 – C10

5:00 pm – 6:30 pm Welcome reception (exhibits/Poster Displays)

6:30 pm networking Dinner at medaterra Bistro and Bar (reservations required)

tuesday, June 5, 2012

7:00 am – 8:00 am registration, Continental Breakfast (networking Breakfast for Patient and Family Leaders), exhibits, Poster Displays, Table Talks

8:00 am – 9:15 am opening Plenary — Picker Lecture

9:15 am – 9:45 am Break — exhibits/Poster Displays

10:00 am – 11:15 am Concurrent Sessions D1 – D10

11:15 am – 11:30 am Break

11:30 am – 12:45 pm Concurrent Sessions e1 – e10

12:45 pm – 2:00 pm

Lunch — exhibits/Poster Displays/Table Talks

Lunch grab and gab

Special Luncheon: Patient- and Family-Centered Canadian models of excellence — meaningful engagement: Let’s Spread the Learning (reservations required)

2:15 pm – 3:45 pm Concurrent Sessions F1 – F10

3:45 pm – 4:00 pm Break

4:00 pm – 5:15 pm Concurrent Sessions g1 – g10


wednesday, June 6, 2012 7:00 am – 8:00 am registration, Continental Breakfast (Informal networking Breakfasts)

8:00 am – 9:15 am Concurrent Sessions H1 – H11

9:15 am – 9:30 am Break

9:30 am – 11:00 am Concurrent Sessions I1 – I11

11:00 am – 11:15 am Break

11:15 am – 12:30 pm Concurrent Sessions J1 – J11

12:30 pm – 2:00 pm Lunch Break (on your own)

2:00 pm – 3:15 pm Concurrent Sessions K1 – K10

3:15 pm – 3:30 pm Break

3:30 pm – 4:45 pm Closing Plenary

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exhibit hall activities and special events

poster presentationsPoster presentations will showcase innovative programs and patient- and family-centered initiatives from hospitals, health care systems, and organizations. Posters can be viewed in the Exhibit Hall on Monday and Tuesday. An interactive poster session with the authors will be featured on Monday during the morning break and lunch break.

exhibitsSelected vendors will feature tried-and-true products, services, and resources in the Exhibit Hall as another way to learn about innovations in health care. Participants are encouraged to take advantage of this opportunity to network with our exhibitors in an informal atmosphere.

massage therapyExpand your mind at the conference and then, relax with a soothing complimentary chair massage. Chair massages will be offered during lunch breaks on Monday and Tuesday in the Exhibit Hall.

participant mealsFor your planning purposes, a continental breakfast is included as part of your registration Monday-Wednesday. Lunch tickets are also provided for all participants on Monday and Tuesday and can be redeemed in the Exhibit Hall.

guest badgeGuest badges may be purchased for these special activities: (Guest badge does not include participation in or auditing of any educational sessions.)

•Welcome Reception and Continental Breakfasts (Monday – Wednesday) Cost: $100

•Informal Networking Dinner — Medaterra Bistro and Bar (Monday or Tuesday) Cost: $35

several of the following special activities require advance registration. please be sure to secure your place by indicating your interest on the conference registration form.

SUnDAy, JUne 3 – Pre-ConFerenCe HoSPITAL ToUrS

tour of fort belvoir community hospital 1:30 – 5:00 pm Cost: $15 (Transportation)

The newest military hospital in the nation is opening its doors to showcase its unique patient- and family-centered features. See how patients and families participated in the planning for this world-class medical center that provides service to the nation’s wounded, active duty service members, retirees, and family members.

activities at-a-glance

sunday, June 3

1:30 pm – 5:00 pm Tour of Fort Belvoir Community Hospital

3:00 pm – 5:30 pm Tour of The Children’s national medical Center

monday, June 4

10:00 am - 10:30 am exhibit Hall open— Book Signing/Steven Johnson

12:45 pm - 2:00 pm Special Luncheon with Jim Conway — Learning and Improving Health Care Systems: The Patient, the Family, the Public (reservation required — $55)

4:45 pm – 6:30 pm Welcome reception

6:30 pm Informal networking Dinner—medaterra Bistro and Bar (reservation required — $35)

tuesday, June 5

7:00 am – 8:00 am networking Continental Breakfast for Patient and Family Leaders/Table Talks

12:45 pm – 2:00 pm Special Luncheon: Patient- and Family-Centered Canadian models of excellence — meaningful engagement: Let’s Spread the Learning Host: Canadian Health Services Research Foundation (reservation required — $55)

Lunch grab and gab (Topics to be announced at conference), and Table Talks

6:30 pm Informal networking Dinner—medaterra Bistro and Bar (reservation required — $35)

wednesday, June 6

7:00 am – 8:00 am networking Continental Breakfasts (Topics to be announced at conference)

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tour of the children’s national medical center 3:00 – 5:30 pmCost: $10 (Transportation)

See what patient- and family-centered care looks like at an award-winning children’s hospital dedicated to an exceptional standard of comprehensive care for patients and families. Tour patient care units and areas that support patients and families.

monDAy, JUne 4

book signing — steven Johnson 10:00 – 10:30 am

Steven Johnson, an award-winning author on innovation and the intersection of science, technology, and personal experience, will autograph copies of his best selling book, Where Good Ideas Come From: The Natural History of Innovation, in the exhibit hall.

special luncheon with Jim conway — learning and improving health care systems: the patient, the family, the public 12:45 – 2:00 pmCost: $55 (reservation required—limited space)

Jim Conway is a well-known and much respected pioneer in the patient- and family-centered care community around the world. As the Institute for Patient- and Family-Centered Care’s first Leadership Award recipient, you will be inspired and motivated

as he shares timely and provocative information — Learning and Improving Health Care Systems: The Patient, the Family, the Public.

welcome reception, 4:45 – 6:30 pmJoin colleagues for this social gathering in the Exhibit Hall. Cash bar; light hors d’oeuvres. Guest badges are available.

informal networking dinner, medaterra bistro and bar, 6:30 pmCost: $35 (includes meal, tax, and gratuities; reservation required—limited space)

Experience the unique and succulent flavors that mark the food of Medaterra. A quaint neighborhood bistro that specializes in unique twists on familiar Mediterranean fare is the perfect place to network with conference colleagues. The menu will feature an appetizer platter, choice of one of four entrees, and choice of dessert. Guest badges are available. This same opportunity is available on Tuesday evening.

TUeSDAy, JUne 5

networking continental breakfast for patient and family leaders, 7:00 – 8:00 amEnjoy breakfast with patient and family leaders in an informal setting. Continental breakfast is included as part of registration.

Other networking breakfasts can be arranged based on interest and will be announced during the conference.

special luncheon patient- and family-centered canadian models of excellence — meaningful engagement: let’s spread the learning 12:45 – 2:00 pmCost: $55 (reservation required—limited space)

host: canadian health services research foundationThis luncheon highlights the good work of patients, families, and citizens,

partnering with health care leaders and planners, in health care quality improvement. The Patient Engagement Projects (PEP) initiative of the luncheon sponsor, the Canadian Health Services Research Foundation (CHSRF), supports teams from health care organizations across Canada to improve the quality of care and the effectiveness and efficiency of health services by engaging patients and their families in design, delivery, and evaluation. CHSRF is an independent organization dedicated to accelerating health care improvement and transformation for Canadians. CHSRF collaborates with governments, policymakers, and health system leaders to convert evidence and innovative practices into actionable policies, programs, tools, and leadership development.

lunch grab and gab, 12:45 – 2:00 pmGrab your lunch and head to the designated area to connect with others who share your curiosity or interest in a specific topical area. Over lunch, “gab” with colleagues to discuss a variety of topics. Topics will be announced at the conference. Lunch is included in registration.

informal networking dinner, medaterra bistro and bar, 6:30 pmCost: $35 (includes meal, tax, and gratuities; reservation required—limited space)

In case you didn’t make it for Monday’s networking dinner, this same opportunity is offered on Tuesday evening. Make plans to enjoy a casual evening with colleagues for conversation and dinner. The menu will feature an appetizer platter, choice of one of four entrees, and choice of dessert. Guest badges are available.

WeDneSDAy, JUne 6

networking continental breakfast — round table discussion, 7:00 – 8:00 amJoin colleagues for this informal networking breakfast for a round table discussion. Learn from each other on a variety of current health care topics. Topics will be announced in Conference Syllabus.

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HoTeL InFormATIon

all conference events will be held at:The Omni Shoreham Hotel 2500 Calvert Street, NW Washington, DC 202-234-0700 1-800-THE-OMNI

Since 1930, the Omni Shoreham Hotel in Washington, DC has played host to presidents, world leaders, and inaugural balls, making it a true historic Washington landmark. This grand luxury hotel offers a resort atmosphere and a personal taste of politics, culture, art, and music at its best. The four-diamond Omni Shoreham Hotel is nestled on 11 acres in picturesque Rock Creek Park in northwest Washington, DC and is only steps away from the National Zoo.

Dining is offered onsite at Robert’s, a casually elegant full service restaurant. Other casual dining options include Morsels, a gourmet coffee bar, and the Marquee Bar and Lounge. Within walking distance of the hotel, guests can choose from a variety of restaurants.

The hotel offers a range of guest services including a full service business center, gift shop and jewelry store, guest room dining available 24 hours, high speed wireless internet access, and spa services.

Conference participants are strongly encouraged to join the Omni’s Loyalty Program-Select Guest to enjoy complimentary perks, including in-room Wi-Fi, bottled water, daily newspaper of your choice, laundry pressings, shoe shine, morning beverage delivery, and much more. To enroll prior to arriving onsite, go to: http://www.omniselectguest.com.

Check-in time is at 3:00 pm and check-out time is noon. Guest service staff can arrange to check baggage on day of departure.

reSerVATIonSThe Omni Shoreham Hotel is holding a limited number of rooms for conference participants at the group rate until May 3 unless rooms sell out before then. Rooms after this date are on a space and rate availability. To make a reservation, call 800-THE-OMNI (843-6664) or 202-234-0700 and be sure to indicate that you are with The 5th International Conference on Patient- and Family-Centered Care in order to receive the special rate. Hotel reservations can also be made online directly with The Omni Shoreham Hotel via the Institute’s website at www.ipfcc.org/conference-hotel.html. The room rate is $229 single/double per night (U.S. funds), plus 14.5% tax.

Hotel reservations must be guaranteed by a major credit card. The hotel requires cancellations by 4:00 pm (ET) 24 hours prior to arrival to avoid billing or forfeiting the room deposit. ‘No shows’ will be charged for one night and tax to credit card. Rooms typically sell out early so make reservations as soon as possible. The special group rate will

be in effect three days before and after the conference for those arriving early or extending their stay to enjoy the DC area. In order to receive this special rate for these extended days, please make reservation by phone.

For your travel planning purposes, the conference begins at 8:00 am on Monday, June 4 and extends through 4:30 pm on Wednesday, June 6. Arrive early on Sunday and pick up your conference materials from 4:00–7:00 pm to avoid early Monday morning registration.

welcome to washington, dchere, the nation celebrates, honors, and demonstrates its commitment to democracy. As you arrive in Washington, DC, you are greeted by the unforgettable

skyline that is marked by some of the world’s most celebrated monuments

and memorials. The picturesque structures and statues against the green

expanses of the national mall is an unforgettable vista and a reminder of

its historical roots. As a world capital, Washington, DC presents unique

opportunities to learn about and engage in world cultures. rich in history

and never letting go of its dynamic past, DC is also a cosmopolitan city with

a full slate of enriching, exciting, and rewarding things to do. Take time to explore the nation’s capital and create memories

that will last far beyond the conference.

http://www.omniselectguest.com

http://www.ipfcc.org/conference-hotel.html

http://www.ipfcc.org/conference-hotel.html

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TrAnSPorTATIon/PArKIngThe hotel charges for valet parking. The special conference guest rate for overnight parking is $28, plus tax, per night. A day rate of $20, plus tax, will be offered

to conference participants. Please note that there is no self-parking at the hotel and parking is limited. Area residents are encouraged to use the Metro subway system.

The DC area is served by three airports: Reagan National (DCA), Dulles International (IAD), and Baltimore Washington International (BWI). From Reagan National Airport, the taxi fare to the Omni Shoreham is approximately $25; the Super Shuttle fare is $17. From Dulles, the taxi fare is $60. The Super Shuttle ($32) is available at Ground Transportation. From BWI Airport, the taxi fare is $90, and the Super Shuttle ($42) is available at Ground Transportation. To make a reservation for the Super Shuttle, go to www.supershuttle.com, e-mail [email protected], or call (800) 258-3826. Also from BWI, an alternative bus service (B30) to the Greenbelt Metro station is available starting at 7:00 am on weekdays. At the Greenbelt Metro, take the subway to Metro Center and transfer to the Red Line train marked Shady Grove or Grosvenor, exiting at the Woodley Park/Zoo station.

Washington’s excellent Metro subway system (Red Line) stops within a block of the Omni Shoreham at the Woodley Park/Zoo station. As you exit the subway station, turn to the right. Then walk one block to the left. The Omni Shoreham Hotel is diagonally across that intersection on the right.

DreSSWe encourage relaxed and comfortable business dress throughout the conference. Bring a sweater or jacket to sessions as the temperature in meeting rooms often varies. The weather in DC is typically very nice as spring begins to settle into summer. Average temperature is about 75 degrees.

reSTAUrAnTSPlenty of restaurants are within walking distance from the hotel. For a complete listing, please see the hotel concierge.

SPeCIAL neeDSIf you have mobility challenges or other special needs, the Institute would like to know so we can be sure your needs are met. If the Institute can assist in making your stay more comfortable by accommodating for special needs, please let us know.

http://www.supershuttle.com

mailto:[email protected]

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keynote profilesTIFFAny CHrISTenSen

Tiffany was born with cystic fibrosis and has received two life-saving double lung transplants. She has a BFA in theater from the UnC School of the Arts, is a TeamSTePPS master Trainer, a respecting Choices Advance CarePlanning Instructor, an APPeAL certificate recipient, and the

creator of her own Train the Trainer workshop series entitled “Finding your Voice in the Healthcare maze.” She is a nationally recognized public speaker and the author of three books exploring advocacy, end of life planning, and partnership strategies in health care. Tiffany is the Senior Co-Chair of Duke Healthcare’s Patient Advocacy Council and a board member of the Beryl Institute for improving the patient experience. Tiffany was the first patient to become a Ben Sischy Visiting Scholar in Humane medicine from the University of rochester. Tiffany is a patient advocate at Duke Hospital working primarily in the area of oncology. (Plenary: Monday, June 4, 8:00 am)

STeVen JoHnSon Steven is the best-selling author of seven books on the intersection of science, technology, and personal experience. His writings have influenced everything from the way political campaigns use the Internet, to cutting-edge ideas in urban planning, to the battle against

21st-century terrorism. In 2010, he was chosen by Prospect magazine as one of the Top Ten Brains of the Digital Future. His latest book, Where Good Ideas Come From: The Natural History of Innovation, was a finalist for the 800-Ceo-reAD award for best business book of 2010. His books have been translated into more than a dozen languages.

Steven is a contributing editor to Wired magazine and is the 2009 Hearst new media Professional-in-residence at The Journalism School, Columbia University. He won the newhouse School fourth annual mirror Awards for his TIme magazine cover article titled “How Twitter Will Change the Way We Live.” He has also written for The new york Times, The Wall Street Journal, The nation, and many other periodicals. He has appeared on many high-profile television programs, including The Charlie rose Show, The Daily Show with Jon Stewart, and The newsHour with Jim Lehrer. He lectures widely on technological, scientific, and cultural issues. (Plenary: Monday, June 4, 8:00 am)

Don BerWICK, mDDon Berwick is the United States’ leading advocate for high-

quality health care. He has just stepped down as the Administrator of the Centers for medicare and medicaid Services. For 22 years prior, he was the founding Ceo of the

Institute for Healthcare Improvement, a nonprofit dedicated to improving health care around the world. A pediatrician by background, he has also served on the faculty of the Harvard medical School.

Dr. Berwick sees tremendous unrealized potential in American medicine. Despite our outstanding knowledge base, expert practitioners, and world-class equipment, most Americans do not have access to safe, high-quality care. Dr. Berwick presents a vision of how, through well-applied Information Technology, new methods of health care delivery, and effective legislation, America can forge a system that satisfies our patients, our wallets, and our moral imperative to care for those who need care. His focus on improving quality has gained him a reputation as a powerful motivator who can push institutions and individuals to do their work better. For his important role in designing Britain’s healthcare system, Dr. Berwick was named a Fellow of the royal College of Physicians in London and Honorary Knight Commander of the order of the British empire. (Plenary — Picker Lecture: Tuesday, June 5, 8:00 am)

LIZ CroCKerLiz Crocker is a businesswoman, writer, teacher, and environmentalist. Liz is known as an innovator, child advocate, and supporter of the arts. Currently, Liz consults, works as a Simulated Patient and Clinical Teaching Associate with the Dalhousie School of medicine, and co-owns two

businesses. She has also served as Chair of the Canadian Institute of Child Health, President of the Association for the Care of Children’s Health, and Coordinator of the Future Quest program at the Centre for entrepreneurship education and Development. Liz is Vice-Chair of the Institute for Patient- and Family-Centered Care.

Liz is the author of two children’s books and hundreds of articles found in books, magazines, and newspapers. She co-authored Privileged Presence, which is a collection of stories about experiences in health care with a focus on communication, collaboration, and compassion. She is the editor of The Healing Circle: Reclaiming Wholeness on the Cancer Journey, Integrating Science, Wisdom and Compassion. (Plenary: Wednesday, June 6, 3:30 pm)

k e y n ot e A n d h i g h l i g h t ed s pe A k er s

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DeBrA neSS, mSDebra is the president of the national Partnership for Women & Families. For over two decades, Debra has been an ardent advocate for the principles of fairness and social justice. Drawing on an extensive background in health and public policy, she possesses a unique

understanding of the issues that face women and families at home, in the workplace, and in the health care arena. Before assuming her current role as President, she served as executive Vice President of the national Partnership for 13 years. Debra has played a leading role in positioning the organization as a powerful and effective advocate for today’s women and families.

Debra serves on the boards of some of the nation’s most influential organizations working to improve health care, including the Consumer Advisory Council of the national Committee for Quality Assurance (nCQA), the nation’s leader in accrediting and developing quality measures for managed care organizations and the national Quality Forum (nQF), established by the President’s Advisory Commission on Consumer Protection and Quality in the Health Care Industry to develop and implement a national strategy for health care quality measurement and reporting. She serves on numerous other national boards. (Plenary: Wednesday, June 6, 3:30 pm)

highlighted speaker profilesJeFFrey HorBAr, mD

Dr. Jeffrey Horbar is a Professor of Pediatrics at the University of Vermont and the Chief executive and Scientific officer of the Vermont oxford network, an organization with over 900 hospitals around the world as members dedicated to improving the quality of medical care for newborn

infants and their families through a coordinated program of education, quality improvement, and research. (B2 Major Breakout: Monday, June 4, 2:15 pm)

JoAnnA CeLenZA, mA, mBAJoanna brings her experience as the mother of twins who were born premature and spent the first five weeks of their lives in the Intensive Care nursery at the Children’s Hospital at Dartmouth (CHaD). This powerful and empowering life-changing experience led to her

passionate involvement as a volunteer for the ICn Parent Council for the past nine years, and as chair for the past six years. In addition to serving on several advisory committees, she has also been a member of the Primary Care Leadership Team at Dartmouth-Hitchcock. Joanna is faculty for the Vermont oxford network’s nICQ7 quality improvement collaborative in the area of patient- and family-centered care. She is employed part-time at the Intensive Care nursery at Dartmouth as a march of Dimes/CHaD ICn Family Support Specialist. (B2 Major Breakout: Monday, June 4, 2:15 pm)

rICHArD J. BAron, mD, mACPDr. richard Baron is the group Director, Seamless Care models, at the Innovations Center at Centers for medicare and medicaid Services (CmS). His portfolio includes innovative Accountable Care organization models and models of high value, comprehensive primary

care. Before joining CmS in April 2011, he practiced general internal medicine at greenhouse Internists, PC, a seven-physician practice located in the Philadelphia area. His practice was a pioneer in the comprehensive adoption of electronic health records in the small practice environment, achieving Level 3 Patient-Centered medical Home recognition from nCQA in August 2008.

Dr. Baron served as Chief medical officer of Health Partners, a not-for-profit medicaid Hmo, from 1988 to 1996. He was the architect of the Best Clinical and Administrative Practices program, funded by the robert Wood Johnson Foundation and the Center for Health Care Strategies, working with medical leadership of medicaid health plans around the country in learning collaboratives to improve the quality of care for their members. This program reached plans serving more than half of the medicaid managed care population in the U.S. (B4 Major Breakout: Monday, June 4, 2:15 pm)

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FArZAD moSTASHArI, mD, ScmFarzad mostashari, mD, Scm, serves as national Coordinator for Health Information Technology within the office of the national Coordinator (onC) for Health Information Technology at the U.S. Department of Health and Human Services. He joined onC in July 2009. Previously,

Dr. mostashari served at the new york City Department of Health and mental Hygiene as Assistant Commissioner for the Primary Care Information Project where he facilitated the adoption of prevention-oriented health information technology by over 1,500 providers in underserved communities. He also led the Centers for Disease Control and Prevention (CDC) funded nyC Center of excellence in Public Health Informatics and an Agency for Healthcare research and Quality funded project focused on quality measurement at the point of care. Prior to this, he established the Bureau of epidemiology Services at the nyC Department of Health. (B5 Major Breakout: Monday, June 4, 2:15 pm)

CHrISTIne BeCHTeL, mAChristine Bechtel is the Vice President of the national Partnership for Women & Families, a non-profit consumer advocacy organization based in Washington, DC. The national Partnership has been the driving force behind some of the country’s most important policies

and initiatives, including the Family and medical Leave Act, the Pregnancy Discrimination Act, and the Consumer Partnership for eHealth. As Vice President, Christine oversees the day-to-day operations of the organization, including its work on health care quality, information technology, and patient engagement. She also serves on the federal Health IT Policy Committee.

Christine was previously Vice President of the eHealth Initiative (eHI), where she led the organization’s membership, public policy, and government relations work. She has a background in health care quality improvement from her work with the American Health Quality Association and Louisiana Health Care review, now eQHealth Solutions, a medicare Quality Improvement organization. (B5 Major Breakout: Monday, June 4, 2:15 pm)

SUSAn eDgmAn-LeVITAn, PASusan edgman-Levitan, PA, is executive Director of the John D. Stoeckle Center for Primary Care Innovation at massachusetts general Hospital (mgH). Prior to coming to mgH, she was the founding President of the Picker Institute. She is a Lecturer in the Department of

medicine, massachusetts general Hospital, and an Associate in Health Policy, Harvard medical School. A constant advocate of understanding the patient’s perspective on health care, Susan has been the co-principal investigator on the Harvard Consumer Assessment of Healthcare Providers and Systems Study (CAHPS) study from 1995 to the present.

Susan serves on several boards and numerous national advisory committees, including the Informed medical Decisions Foundation, the national Patient Safety Foundation, the national Health Services Corps Advisory Council, the Patient-Centered Primary Care Collaborative, and is a member of the Lucian Leape Institute. She was awarded the 2007 Leadership and Innovation award from the Center for Information Therapy. (C4 Breakout: Monday, June 4, 3:45 pm)

TrACy W. gAUDeT, mDTracy gaudet, mD, is the Director of the VHA office of Patient-Centered Care and Cultural Transformation. She was most recently the executive Director of Duke Integrative medicine, and Assistant Professor of obstetrics and gynecology at Duke University Health System. Under her

leadership, Duke Integrative medicine has created a state-of-the-art health care facility dedicated to the transformation of medicine through the exploration of new models of patient-centered health care. She has led Duke Integrative medicine to the forefront of the field, co-founding The Consortium of Academic Health Centers for Integrative medicine. Dr. gaudet actively leads public discourse on the vision and strategies needed to transform health care in the 21st century with members of both the medical and lay communities as well as leaders in health care reform and policy.

recognized as a leader in the transformation of health care, she speaks nationally through both public and professional venues ranging from The Institute of medicine to The oprah Show. Dr. gaudet was named by Shape magazine as one of eleven women who shape the world. She was recently recognized as one of the “Top 25 Women in Healthcare 2011” by modern Healthcare. (E4 Breakout: Tuesday, June 5, 11:30 am)

“Rich content with a ton of expertise and resources available to fit any culture…”

— Philadelphia Conference Participant

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C o n fer en C e S eS S i o n S

day at-a-glance

monday, June 4, 2012

7:00 am – 8:00 am registration, Continental Breakfast, exhibits, Poster Displays

8:00 am – 10:00 am Plenary Session

10:00 am – 10:30 am Break — exhibits/Poster Presentations (staffed)

10:45 am – 12:45 pm Concurrent Sessions (A1 – A10)

12:45 pm – 2:00 pm Lunch — exhibits / Poster Presentations (staffed)

special luncheon with Jim conway — Learning and Improving Health Care Systems: The Patient, the Family, the Public (reservations required)

2:15 pm – 3:30 pm major Breakout Sessions (B1 – B5)

3:30 pm – 3:45 pm Break

3:45 pm – 5:00 pm Concurrent Sessions (C1 – C10)

5:00 pm – 6:30 pm Welcome reception (exhibits/Poster Displays)


8:00 – 10:00 am

PLenAry SeSSIonJames b. conway — patient- and family-centered care leadership award recipient

Jim Conway is an adjunct lecturer at the Harvard School of Public Health in Boston, and a principal of the governance and Leadership group of Pascal metrics in Washington, DC. He has been the Senior Vice President of the Institute for Healthcare

Improvement (IHI) and a Senior Fellow. During 1995-2005, Jim was executive Vice President and Chief operating officer of Dana-Farber Cancer Institute (DFCI), Boston. Prior to joining DFCI, he had a 27-year career at Children’s Hospital, Boston. His areas of expertise and interests include governance and executive leadership, patient safety, change management, crisis management, and patient- and family-centered care.

where do i fit in? a bed’s eye view of patient- and family-centered care

Tiffany Christensen, BFA, CEO; Sick Girl Speaks, Inc., Patient Leader, TeamSTEPPS Master Trainer, Author, Co-Chair of the Duke Patient Advocacy Council; Durham, NC

Having been born with cystic fibrosis and having received two life-saving double lung transplants, Tiffany will offer a “bed’s eye view” of patient- and family-centered care. She will distinguish between patient- and family-centered care and good bedside

manner or just being kind to patients and families. Based on her personal experience and her work in health care, Tiffany will outline specific areas in which patient- and family-centered care opportunities exist and those that need attention, and she will propose strategies to create an environment that supports patient- and family-centered care.

patterns of innovation: where good ideas come from

Steven Johnson, Author of seven best-selling books on the intersection of science, technology, and personal experience, and recognized as one of the Top Ten Brains of the Digital Future by Prospect magazine; Marin County, CA

Steven’s talk will draw from his best-selling new book, Where Good Ideas Come From: The Natural History of Innovation, which looks at environments that have an enduring track record of generating breakthrough ideas. He will discuss the defining characteristics of

innovative spaces, and focus on the way new technology platforms can be harnessed to increase creative thinking in organizations large and small. He will use entertaining stories to illustrate patterns of innovation at work.

10:00 - 10:30 am

exHIBIT HALL: STAFFeD PoSTerS, exHIBITS, AnD reFreSHmenTSauthor book signing: steven Johnson

10:45 am – 12:45 pm

ConCUrrenT SeSSIonS (A1-A10)


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a1patient- and family-centered care as a framework for process excellence

Jane Fusilero, RN, MSN, MBA, Chief Nursing Officer, Vice President for Patient Care Services; Nancy Newman, LCSW, Director, Patient Support and Advocacy; Monica Vakiner, RN, BSN, Patient Advisor; Moffitt Cancer Center, Tampa, FL

Three Patient experience Projects, which were based on the principles of patient- and family-centered care, will be described. Involvement of patient advisors, use of the Institute for Patient- and Family-Centered Care Institutional Assessment tool, project processes, and measurable outcomes related to the patient experience will be discussed.

moving from a system-centered to a patient- and family-centered system: an organization’s Journey

Sharon Quinlan, RN, MSN, MBA, Clinic Director/Co-Director, Department of Primary Care; Wade Roseth, Patient and Family Partner; Amy Vanderscheuren, MA, Coordinator of Patient- and Family-Centered Care; Essentia Health, Duluth, MN

As part of its strategic implementation of the patient- and family-centered care philosophy, essentia Health created a program that successfully engages patient and family partners. This presentation will describe essentia’s journey, including program ideation, implementation, lessons learned, and evaluation tools.

a2a provincial Journey to patient- and family-centred care: saskatchewan, canada

Malori Keller, BA, Client & Family Centered Care Specialist; Saskatoon Health Region, Saskatoon, SK; Kathleen Peterson, BSc, BEd, Director, Health System Planning; Saskatchewan Ministry of Health, Regina, SK

The province of Saskatchewan is simultaneously approaching the adoption of patient- and family-centered care from both a top-down and bottom-up approach. The Patient First review recommendations are the system foundation and the Saskatoon Health region is building their client- and family-centred care program.

patients and families first: innovation and collaboration for Quality health care

Amber Alecxe, PhD, Research and Policy Analyst; Rosalee Longmoore, RN, President; Saskatchewan Union of Nurses, Regina, Saskatchewan, Canada

The Patients and Families First Initiative was developed to address gaps in health care by engaging patients, members of the public, patient advocacy groups, nurses, and health care practitioners to develop and test sustainable innovations for improving patient- and family-centred care.

a3improving Quality of hospital-based psychiatric services at contra costa regional medical center through partnership with patients and families

Teresa Pasquini, Patient and Family Advocate; Charles Saldanha, MD, Chief Psychiatrist; Contra Costa Regional Medical Center, Martinez, CA

Patient and family partners collaborated in redesign of psychiatric services at Contra Costa regional medical Center offering insight into problems and guiding goals and priorities for improvement. resultant improvements include greater patient safety, decreased waiting times, and greater inclusion of social supports.

integrating a family engagement and support program into mental health peer support services: leadership roles, opportunities and challenges

Annette Drost, Family Representative; Helen Harris, RSW, MSW, MA, Manager, Social Work; Dawnna Keith, RRP, CVP, CPRP, Manager, Rehabilitation; Schizophrenia and Community Integration Services; Fiona Wilson, BA, CPRP, Coordinator, Peer Support Services, Mental Health and Addiction Program; St. Joseph’s Healthcare Hamilton, Hamilton, Ontario, Canada

The development and implementation of a Family engagement and Support Program into an existing consumer driven and run Peer Support Service at an Acute and Specialized mental Health and Addiction Facility creates unique leadership opportunities and challenges to be explored.

a4engaging patients and families in their own care and in improving primary care practices: lessons from the california healthcare foundation’s “team up for health” initiative

Ross Adams, MS, CCC-SLP, Patient Advisor; Samer Assaf, MD, Physician; Sharp Rees-Stealy, San Diego, CA; Kate Meyers, MPP, Project Manager; California HealthCare Foundation, Oakland, CA; Debra Rosen, RN, MPH, Program Director, Public Health Programs, Chronic Disease and Health Education; Northeast Valley Health Corporation, San Fernando, CA

Cutting-edge provider organizations will share their approaches to and experiences with improving patient engagement,

strengthening communication skills and self-management support, and involving diverse clinic staff, patients, and families in assessing areas for improvement in primary care.

a5revisiting visiting: increasing family presence and participation

Christa Grim, Patient and Family Advisor; Rita Linnenkamp, RN, BSN, Charge Nurse, Prep and Pre-Anesthesia Testing; Sherry Perkins, PhD, RN, Chief Operating Officer/Chief Nursing Officer; Anne Arundel Medical Center, Annapolis, MD

AAmC transformed a five year old visiting policy titled “Visiting and Visitor Control” to “Family Presence and Participation” by partnering with patient and family advisors, and collaborating with a multidisciplinary team in our efforts to become more patient- and family-centered.

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completing the team: a training program to support staff in integrating a patient’s support person into the clinical environment

Libby Hoy, BS, Founder, Patient & Family Centered Care Partners, Inc.; Stephanie Stembridge, BA, Family Advocate; Long Beach Memorial Medical Center, Long Beach, CA

Completing the Team Training provides staff the opportunity to express concerns, learn skills related to partnership, and to practice those skills while increasing their understanding of the benefits of integrating patients’ family members into the hospital environment.

a6instructional design for new graduate nurses: teaching patients and families

Susan Brandt, Parent; Ms. Wayne Neal, MA, RN-BC, RN, Manager, Patient/Family Education; Children’s National Medical Center, Washington, DC

The purpose of the formal instructional design is to teach the novice nurse principles of patient/family education. This design facilitates active learning and develops knowledge and skills to effectively teach patients and families based on their unique needs.

putting family-centered care into action: using simulation training to achieve partnerships to improve patient outcomes

Darlene Barkman, MA, Family Consultant; Elizabeth Steinmiller, MSN, PMHCNS-BC, Clinical Nurse Specialist in Mental Health; The Children’s Hospital of Philadelphia, Philadelphia, PA

Clinical leaders and family consultants partnered to create and implement a simulation-based educational curriculum. The goal of participation was to improve charge nurses’ assessment, communication skills, and to appropriately use resources to partner better with families under stress.

a7developing and implementing mind-body programs and practices within a patient- and family-centered framework

Rob Rutledge, MD, FRCPC, Radiation Oncologist, Nova Scotia Cancer Centre/Co-Founder, Healing and Cancer Foundation/Associate Professor, Faculty of Medicine, Dalhousie University; Halifax, Nova Scotia, Canada; Liz Crocker, MEd, Vice Chair, Board of Directors, Institute for Patient- and Family-Centered Care/Consultant, Dalhousie School of Medicine; Nova Scotia, Canada; Joanne Cohen-Katz, PhD, Co-Director; Susan Wiley, MD, Co-Director; Lesley Williams, Teacher/Former Patient; Lehigh Valley Health Network Center for Mindfulness, Allentown, PA; Sandra Smeeding, PhD, CNS, FNP, Founder, Integrative Health Program and Clinic (IHPC)/Veterans Affairs (VA) Salt Lake City Health Care System/Adjunct Faculty, University of Utah College of Health and College of Nursing; Salt Lake City, UT

In this session, clinicians, researchers, and patients and family members will share their

experience creating and delivering mind-body programs in a variety of health care settings. Presenters will illustrate strategies for gaining support from leadership and ways to sustain mind-body programs once they are created. An experiential exercise and time for questions and answers will be included.

a8reflections: year ten of a patient and family advisory council

Renee Johnson, BA, Program Coordinator, MGH Cancer Center Patient and Family Advisory Council; Massachusetts General Hospital Cancer Center, Boston, MA

This presentation will offer reflections on the 10-year experience of our academic cancer center’s adult Patient and Family Advisory Council. Topics include how to sustain effective partnerships with patients and families and their role in health care re-design.

getting the most from your advisory council meetings — productive meeting facilitation

Lisa Morrise, MA, Patient and Family Centered Care Coordinator; Primary Children’s Medical Center, Salt Lake City, UT

The most common complaints about meetings are that they are unproductive, often due to a lack of organization, and that one or two persons “take over” the meeting. you can overcome these issues by learning the art of meeting facilitation.

a9walk a mile in my shoes: patients’ and providers’ perceptions of electronic personal health records

Christine Abbott, Administrative Clerk, Department of Family Services; Georgia Health Sciences Medical Center; Christine O’Meara, MA, MPH, Program Development Coordinator; Georgia Health Sciences University Center for Patient- and Family-Centered Care; Augusta, GA

ethical issues, disadvantages, and advantages of using electronic Personal Health records (PHr) will be explored. Participant input is juxtaposed against patients’/providers’ perceptions of PHrs from an Agency for Healthcare research and Quality-funded (AHrQ) hypertension study in two georgia Health Sciences University outpatient clinics.

creating a patient/family friendly electronic medical record tool to increase patient and family engagement

Theresa May, BSN, MA, RN, Clinical Education and Practice Manager; Renee Pellinger, BA, Chair, Family Advisory Council; Children’s Hospitals and Clinics of Minnesota, Minneapolis, MN

A Children’s Family Advisory team responded to parent feedback and worked to develop a user-friendly electronic medical record tool to provide families access to real-time data regarding their child’s clinical condition.

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a10beyond bricks and mortar to patient- and family-centered care: early parent and child involvement in the development and implementation of a new pediatric hospital building

Natalie Bushaw, Parent Advisor; Lora Harding Dundek, MPH, Manager, Birth and Family Education and Family Support Services; Fairview HealthServices, Minneapolis, MN

over five years of planning and implementation of a new hospital building, parents and children were involved in every step of the way, from facility design to program planning, innovation of care and development, and embedding of a new culture.

designing a one-in-a-million family center with families

Vivian McCombie, Family Advisory Council Member; Oscar Mesa, BHSA, Manager, Michael Fux Family Center; Erick Pritchett, Parent, Co-Chair, Family Advisory Council; Janet Bell Taylor, MBA, Director, Patient Family Services; Miami Children’s Hospital, Miami, FL

To demonstrate that the partnership of families, architects, designers, and administration leaders can create a patient- and family-centered center. This presentation will show the critical importance of family inclusion in all phases of facility design and construction.

12:45 – 2:00 pm

LUnCHexhibit hall: staffed posters, exhibits, and lunch

SPeCIAL LUnCHeon WITH JIm ConWAy ($55)learning and improving health care systems: the patient, the family, the public

Together we seek a continuously learning and improving health care system. getting there requires a supportive environment, concrete learning processes and practices, leadership behaviors that provide reinforcement, and more. Jim Conway,

a member of the Iom Committee on the Learning Health Care System in America, will outline the vision, key gaps, and path forward focused on the patient, the family, and the public.

2:15 – 3:30 pm

mAJor BreAKoUTS (B1-B5)

b1beyond the bedside: a patient perspective of partnership and safety

Tiffany Christensen, BFA, CEO; Sick Girl Speaks, Inc., Patient Leader, TeamSTEPPS Master Trainer, Author, Co-Chair of the Duke Patient Advocacy Council, Durham, NC

“Beyond the Bedside: A Patient Perspective of Partnership and Safety” is a completely unique program combining the experiences of author, national speaker, and two-time double lung transplant recipient, with TeamSTePPS tools.

b2 implementing family partnerships in improvement: the vermont oxford network (von)

Jeffrey Horbar, Chief Executive and Scientific Officer, Vermont Oxford Network, University of Vermont; Burlington, VT; Joanna Celenza, Family Leader and Faculty for Improvement Collaboratives, Vermont Oxford Network; Lebanon, NH

The mission of the Vermont oxford network (Von) is to improve the quality and safety of medical care for newborn infants and their families through a coordinated

program of research, education, and quality improvement projects. Von has included family advisors on multidisciplinary improvement teams since 1998 in the context of the neonatal Intensive Care Quality (nICQ) Collaboratives. The role of family advisors in these collaboratives has evolved and deepened as new opportunities for incorporating the family perspective have been created. Family advisors are equal members of the multidisciplinary teams that have examined improvements across many different clinical areas and have served as faculty for the most recent improvement collaboratives. This session will share ways in which Von continues to strengthen the engagement of family advisors in working to improve the outcomes of infants and their families.

b3advocacy as a tool to promote high-Quality, patient- and family-centered health care: making communities a force for change to improve care for vulnerable patients

Jennifer Sweeney, Director, Americans for Quality Health Care; National Partnership for Women & Families, Washington, DC

This session will share lessons learned by the Campaign for Better Care and provide specific tools to help participants become change-makers in their communities. Strategies to build strong local coalitions to make our health care system more patient- and family-centered will be identified.

“This is the future of nursing and medical practice — we must move the focus away from providers to the patients where it has always belonged.”


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b4strategies to achieve patient-centered primary care: what are we doing at the innovation center at cms?

Richard J. Baron, MD, Director, Seamless Care Models Group, Center for Medicare and Medicaid Innovation; U.S. Department of Health and Human Services, Washington, DC

new models of primary care delivery will require new models of payment support. Those who provide Primary Care are frustrated by the challenges they face in meeting their patients’ needs, and are very open to re-designing their practices. new models of payment can be designed to

provide the support providers need to design their practices based on patient needs rather than volume of visits. engaging patients as design partners in these efforts will be critical to success.

b5innovation in using health information technology to enhance patient and family engagements – a conversation

Farzad Mostashari, MD, ScM, National Coordinator, Health Information Technology, Office of the National Coordinator for Health Information Technology, U.S. Department of Health and Human Services; Christine Bechtel, MA, Vice President, National Partnership for Women & Families; Washington, DC

Join the national Coordinator for Health Information Technology in a provocative discussion about the federal requirements for “meaningful use” of health

information technology and how it relates to engaging patients and families. This discussion will explore advances in health information technology that support patient and family engagement in care and decision-making as well as their involvement in the design of future technology innovation.

3:30 – 3:45 pm

BreAK

3:45 – 5:00 pm

ConCUrrenT SeSSIonS (C1-C10)

c1engaging patients and families in health care: the vanderbilt experience

Mary Ann Peugeot, CPA, Chair, Patient/Family Advisory Council; Vanderbilt University Medical Center; David R. Posch, MS, Chief Executive Officer, Vanderbilt University Hospital and Clinics/Executive Director, Vanderbilt Medical Group; Nashville, TN

This program will show how senior leadership at Vanderbilt has actively utilized the input of the advisory council for short-term and long-term planning for the institution.

c2yorkshire neonatal network, united kingdom

challenging the principles of family care through benchmarking: a partnership approach to neonatal care across neonatal networks

Gwynn Bissell, RGN, Education and Parent Lead, Leeds Teaching Hospitals; Denise Stewart, Family Representative, Bradford Royal Infirmary; Yorkshire Neonatal Network, West Yorkshire, United Kingdom

The programme developed national drivers; directing neonatal networks to take greater responsibility in quality control of care and support offered to babies and families. Using a partnership approach to benchmarking care processes offered impartiality and preserved the family focus.

the Journey of developing a parental involvement pathway across a neonatal network

Gwynn Bissell, RGN, Education and Parent Lead, Leeds Teaching Hospitals; Denise Stewart, Family Representative, Bradford Royal Infirmary; Yorkshire Neonatal Network, West Yorkshire, United Kingdom

This project was developed over a number of years following numerous catalysts. Despite the many dissenters along the way, success has prevailed. Families and parents now have many forums to deliver their voice.

c3patient- and family-centered care and patient satisfaction and loyalty: shared success through collaborative partnership

Laura Fohn, MHA, Project Manager; Michelle Mirsky, BS, Family Liaison; Dell Children’s Medical Center, Austin, TX

By forging an intentional collaborative partnership between patient- and family-centered care and process improvement initiatives around Patient Satisfaction and Loyalty, Dell Children’s medical Center of Central Texas was able to show significant improvement in key low-scoring nrC Picker satisfaction survey questions.

embracing families in performance improvement initiatives leads to positive outcomes: family and staff working together to streamline registration and scheduling processes and procedures

Pat O’Hanlon, Family Faculty; Donna Provenzano, CTRS, Director Family-Centered Care; Linda Waddell, Family Faculty; Children’s Specialized Hospital, New Brunswick, NJ

This presentation will share how families and staff collaborated to implement lasting changes to our registration and scheduling processes. Families partnered with senior leadership and staff on performance improvement committees which resulted in increased patient and family satisfaction scores.

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c4designing the best: engaging stakeholders in primary care transformation

Susan Edgman-Levitan, PA, Executive Director, Stoeckle Center for Primary Care Innovation; Massachusetts General Hospital, Boston, MA

This session will focus on methods of engaging all of the stakeholders who are essential to achieving the best models of practice in primary care. It will feature examples of how these methods have been used to redesign practices that achieve the Triple Aim (improving the experience of

care, improving the health of populations, and reducing per capita costs of health care) and provide the best quality of life for clinicians and staff.

c5utilizing patient and family advisors to develop strategies that improve the transition of care between critical care departments

Lisa Beck, RN, BsCN, MSN-CNS, Critical Care, Director ED/ICU/Trauma; Keith Taylor, Chair, Patient Family Advisory Council; Thunder Bay Regional Health Sciences Centre, Thunder Bay, Ontario, Canada

Patient Family Advisors (PFAs) provide invaluable insight and direction to improving the transfer experience between departments. Families of critically ill patients requiring immediate transfer need to feel supported, informed, and connected to caregivers throughout the continuum of care.

c6collaboration at its finest: patient safety liaison rounds

Sherrill Beaman, RHIA, CPHQ, MPH, Director of Quality Programs; Shannon Ellis, Patient/Family Advisor; Heritage Hospital, Tarboro, NC; Kim Blanton, Patient/Family Advisor; Susan Ingram, RN, MSN, Manager, Patient Safety; Vidant Medical Center, Greenville, NC

To expedite goals related to patient safety, quality and exceptional experiences in care, Vidant Health developed models of patient safety rounding. Both of these models emphasize collaboration with patient and family advisor.

c7on-boarding new employees to foster a culture of patient- and family-centered care

Elizabeth Lane-Davies, Volunteer; Marilyn Potgiesser, RN, Coordinator, Patient and Family Centered Care; Bronson Healthcare Group, Kalamazoo, MI

Learn how patient and family advisors at Bronson Healthcare are strategically involved in the on-boarding of new employees to foster Bronson’s culture of patient- and family-centered care.

c8integrative therapy services for people coping with cancer: advocating for patients and families to create a personalized care path for comfort, healing, and well-being

Jennifer Currin-McCulloch, LMSW, OSW-C, Oncology Social Worker; Toby Hollenberg, Patient and Family Advocate; Curtis & Elizabeth Anderson Cancer Institute, Memorial Health University Medical Center, Savannah, GA

This session will showcase and discuss resources needed to develop a patient, family, and community-driven program for integrative medicine services within a community cancer center. Developmental concepts, program structure, marketing of services, and lessons learned will be shared.

meeting the needs of patients who frequently present to the emergency department with persistent pain

Carolyn Hullick, BMed, DipPaed, Fellow of the Australasian College of Emergency Medicine, Director of Emergency Medicine, John Hunter Hospital and Greater Newcastle Acute Care Hospitals; Hunter New England Health, Newcastle, New South Wales, Australia

A coordinated and patient centred model of care for people with chronic pain, who frequently attend the emergency Department, was implemented. results include positive feedback from patients and staff, along with a reduction in inpatient bed days and unnecessary investigations.

c9“my child isn’t getting better”: a collaborative Journey with bereaved parents

Rhonda Cardenas, Proud Parent; Patricia Wells, MSN, RN, CNS, PNP, Director, Patient- and Family-Centered Care; MD Anderson Cancer Center, The Children’s Cancer Hospital, Houston, TX

For three years, the Supportive Care Committee has made a dramatic impact in the way staff, parents, and patients collaborate to provide the best end of life care possible. Background, organization, outcomes, goals, and evaluation of this group will be discussed.

c10assessing family-provider partnerships and satisfaction with services among u.s. children with special health care needs

Diana Denboba, Branch Chief, Integrated Services Branch, Division of Children with Special Health Needs; Mary Kay Kenney, PhD, Health Statistician; Health Resources and Services Administration/Maternal and Child Health Bureau, Rockville, MD

During this session, we document ongoing federal efforts to monitor and foster family-provider partnerships and satisfaction with services necessary for successful community-based systems for families of children with special health care needs.

5:00 – 6:30 pm

WeLCome reCePTIon exhibit hall: posters and exhibits

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c o n fer en c e s es s i o n s

8:00 – 9:15 am

PLenAry SeSSIon — PICKer LeCTUrethe future of health care

Don Berwick, MD, Former Administrator, Centers for Medicare and Medicaid Services, U.S. Department of Health and Human Services

Don Berwick is one of the leading advocates for high-quality health

care in the United States. He recently served as the administrator of the federal government’s Centers for medicare and medicaid Services. For the prior 22 years, he was the founding Ceo of the Institute for Healthcare

Improvement, a nonprofit organization dedicated to improving health care around the world. A pediatrician by background, he has also been a member of the faculty of the Harvard medical School.

Dr. Berwick sees tremendous unrealized potential in systems of health care delivery worldwide. He presents a compelling vision of how meaningful partnerships with patients and families combined with thoughtfully designed information technology, care models, and governmental policies can lead to innovative health care systems that are optimally configured to meet the needs of patients, families, clinicians, communities, and payers. Dr. Berwick is an articulate advocate for high-quality, safe, collaborative care, as well as for the moral imperative to provide care for all who need it. His sustained focus on achieving excellence in all aspects of health care outcomes has gained him a reputation as a powerful motivator who can inspire individuals and institutions to do their work better.

9:15 – 9:45 am

exHIBIT HALL: PoSTerS AnD exHIBITS

10:00 – 11:15 am

ConCUrrenT SeSSIonS (D1-D10)

d1family-centered rounding—making it stick! how to create and sustain family-centered rounds utilizing lean organizational change strategies

Michele Ashland, BA, Lead Parent, Family Centered Care; Susan Herman, MSN in Nursing Administration, Magnet Program Director; Joseph Kim, MD, Medical Director, Pediatric Hospitalist Program/Acute Care Units; Karen Wayman, PhD, Packard Children’s Endowed Director of Family Centered Care; Packard Children’s Hospital, Palo Alto, CA


day at-a-glance


7:00 am – 8:00 am Continental Breakfast, (networking Breakfast for Patient and Family Leaders)Poster Displays, exhibits, Table Talks

8:00 am – 9:15 am opening Plenary — Picker Lecture

9:15 am – 9:45 am Break — exhibits / Poster Displays

10:00 am – 11:15 am Concurrent Sessions (D1 – D10)

11:15 am – 11:30 am Break

11:30 am – 12:45 pm Concurrent Sessions (e1 – e10)

12:45 pm – 2:00 pm Lunch — exhibits/Posters/Table Talks

Lunch grab and gab (Topics to be announced at conference)

special luncheon Patient- and Family-Centered Canadian models of excellence — meaningful engagement: Let’s Spread the Learning Host: Canadian Health Services research Foundation (reservations required)

2:15 pm – 3:45 pm Concurrent Sessions (F1 – F10)

3:45 pm – 4:00 pm Break

4:00 pm – 5:15 pm Concurrent Sessions (g1 – g10)


“…extremely helpful in understanding the interdependence of safety, quality care, and patient- and family-centered care.”


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This session is an innovative approach to creating and sustaining Family-Centered rounds in a pediatric academic setting. A multidisciplinary team (physicians, nurses, ancillary staff, family-centered care staff, and parents) utilized Lean organizational change strategies to plan, implement, sustain, and measure family-centered rounds.

d2build it and they will come – patient engagement on Quality initiatives

Charles Borden, MBA, Associate Executive Director, Quality & Patient Safety; Sharon Cross, LISW, Patient/Family Experience Advisor Program Manager; Peter Labita, Patient Experience Advisor; James Cancer Hospital at Ohio State University Medical Center, Columbus, OH

Successful implementation of patient involvement in hospital meetings can be a hard goal to achieve. This session will focus on best practices for including advisors at the table while ensuring a positive experience for both patients and staff.

grassroots…growing a patient/family advisor program from the bottom up!

Sharon Cross, LISW, Patient/Family Experience Advisor Program Manager; Cortney Forward, Patient/Family Experience Advisor; Peter Labita, Patient Experience Advisor; Ohio State University Medical Center, Columbus, OH

one person can make a difference! After a staff member became a patient at the hospital where they worked, they envisioned an organization that received feedback from patients and families in more ways than just Press ganey surveying.

d3community action for prenatal care: an innovative program in new york state to reduce mother-to-child transmission of hiv

Janet Campbell-Lugo, Patient Advisor, Maribel Montanez, BA, Assistant Program Coordinator; Bronx Lebanon Hospital Center, Bronx, NY; Patricia Doyle, LCSW, Director, Community Action for Prenatal Care; New York State Department of Health AIDS Institute, Albany, NY

This session describes the benefits of integrating patients as advisors in a program for pregnant women to reduce transmission of HIV. Presenters will describe how patients are selected, trained, and mentored as they assume increasingly responsible roles within the program.

d4understanding the needs of young people in a paediatric hospital

Elizabeth Harnett, Head of the Clinical Governance Unit; The Children’s Hospital at Westmead, Sydney, New South Wales, Australia

The Children’s Hospital at Westmead has readdressed the gap in our understanding of the experiences of young people through annual young peoples’ satisfaction surveys and the establishment of a youth Advisory Council to help meet their needs.

advocate, educate, organize: the surprising Journey of patient- and family-centered care in a pediatric cancer hospital

Rhonda Armstrong-Trevino, AD, Parent Coordinator; Patricia Wells, MSN, RN,CNS, PNP, Director, Patient/Family Centered Care; MD Anderson Cancer Center, Houston, TX

This discussion will focus on the many, unique ways that patients and family members are partnering and collaborating with the health care team to weave the threads of patient- and family-centered care throughout the fabric of the Children’s Cancer Hospital.

d5patient and family orientation: enhancing information and access to services

Kim Buettner, BA, Supervisor, Patient Education and Advisory Program; Nancy Newman, MSW, LCSW, Director, Patient Support and Advocacy; Monica Vakiner, RN, BSN, Patient Advisor; Moffitt Cancer Center, Tampa, FL

A collaborative group of staff and advisors created a Patient and Family orientation program with goals of providing a welcoming atmosphere, decreasing anxiety, increasing access to support services, and preparing the patient and family for being partners in their care.

d6transforming the patient experience: bringing to life a patient and family-centered interprofessional collaborative practice model

Anndale McTavish, MA, Co-Chair, Patient and Family Advisory Council; Cynthia Phillips, RRT, MEd, Project Manager, Model of Care; Marla Rosen, Patient Experience Advisor; Kingston General Hospital, Kingston, Ontario, Canada

This presentation describes the new patient- and family-centered model of care at the Kingston general Hospital. The redesign process and pre-implementation planning work for the model of care are outlined in detail and outcomes are reviewed.

introducing patient- and family-centred care at the ottawa hospital – an innovative patient and family member engagement process

Gwen Barton, BNSc, MHA, Transformation Project Manager; Brian McKee, PhD (c), Patient Family Advisor, Co-Chair, Program Development Committee; The Ottawa Hospital, Ottawa, Ontario, Canada

The ottawa Hospital established a patient and family panel using a unique ‘civic lottery’ process. over three days, the panel learned more about the Cancer Program, shared experiences, and established recommendations to launch the organization’s patient- and family-centred care journey.

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d7interprofessional bedside patient- and family-centered rounding to improve patient care, patient safety, and resident education on an adult

medicine unit

Jeffrey Schlaudecker, MD, Assistant Professor of Family and Community Medicine; Anna Stecher, BS, Medical Student; Steve Warnick, MD, Chief Resident, Family Medicine and Psychiatry Combined Residency Program; University of Cincinnati, Cincinnati, OH

This presentation and discussion will describe how other programs can implement Patient- and Family-Centered rounding. role-play will be included in this fun and dynamic presentation allowing other programs to dramatically improve the experience of inpatient family medicine for attending physicians, residents, and patients.

d8unleashing the culture: reaching hearts and minds through patient- and family-centered care training at a safety net teaching hospital

Scott F. Davies, MD, Chief, Department of Internal Medicine; Sheila Delaney Moroney, MPH, Director, Patient Experience Services/Patient- and Family-Centered Care; Hennepin County Medical Center, Minneapolis, MN

Through a nine-hour curriculum designed to reach the hearts and minds of more than 3,500 hospital staff and physicians, Hennepin County medical Center is driving culture change to ensure that patient- and family-centered guiding principles and behaviors are hardwired.

d9aligning passions: what matters most when partnering with patients and families for Quality, safety, and satisfaction

Bev Crider, President and Chief Executive Officer; Bev Crider, LLC, Trenton, MI

Partnering for quality, safety, and satisfaction relies on a shared vision of priorities and agreement on strategies to achieve goals. An informal query of “What matters most” reveals subtle, yet important, differences in the perceptions of key stakeholders.

d10an exploration of patient-centered architecture at dartmouth-hitchcock: theory, practice, and the patient and family viewpoint

Gail A. Dahlstrom, MHSA, Vice President, Facilities Management; Linda C. Wilkinson, MBA, Coordinator, Patient- and Family-Centered Care; Devyn R. Young, MPH; Dartmouth-Hitchcock, Lebanon, NH

This presentation represents a three-part exploration of how architectural design of health care facilities can be used to promote patient satisfaction and patient- and family-centered care principles. Theoretical potential, applied reality, and a site-specific research model will be shared.

11:15 – 11:30 am

BreAK

11:30 am – 12:45 pm

ConCUrrenT SeSSIonS (e1-10)

e1improving Quality and safety through patient-centred care: an australian perspective

Nicola Dunbar, BSc, PhD, MPS, Program Manager; Australian Commission on Safety and Quality in Health Care, Sydney, New South Wales, Australia

The Australian Commission on Safety and Quality in Health Care is leading a national approach to supporting improvements in systems and capacity for partnering with patients and consumers in Australia.

e2evolution of the teen advisory committee, children’s hospital boston: review of a decade of work

Eliot Greene, Teen Advisory Committee Member; Christine Rich, MS, BSN, RN, Staff Nurse III; Amy Rucki, Co-Chair, Teen Advisory Committee Member; Jessica Strzelecki, CCLS, Certified Child Life Specialist; William Tulip, Teen Advisory Committee Member; Ashley Quan, Co-Chair, Teen Coordinator, Teen Advisory Committee; Children’s Hospital Boston, Boston, MA

Adolescents and committee facilitators will present the work of this dynamic committee including input into hospital policy, focus group participation, and the wide variety of projects completed. This information will be presented from both the adolescent and staff perspective.

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improving cancer care for adolescents and young adults (aya) at md anderson cancer center through the creation of an aya advisory council

Alma Faz, BS, RT (R)(CT), Radiologic Technologist, Co-Facilitator, AYA Advisory Council; Erin Frazier, MS, PA-C, Physician Assistant, Co-Facilitator, AYA Advisory Council; Sandra Medina, MS, LPA, LPC, Vocational Counselor, Co-Facilitator, AYA Advisory Council; Chad Tremont, BS, Research Assistant I, Co-Facilitator, AYA Advisory Council; MD Anderson Cancer Center, Houston, TX

Presenters will provide details on creating and maintaining an AyA Advisory Council that consists of patients and staff. The process for developing goals will be discussed. Finally, accomplishments and lessons learned during our two years of existence will be shared.

e3looking through the lens of health literacy: a partnership between the family advisory committee and health care team

Rita Higgins, BA, Parent; Carol Klingbeil, MS, RN,CPNP, Advanced Practice Nurse Educational Services; Children’s Hospital of Wisconsin, Milwaukee, WI

A strong collaborative partnership between providers and families has been successful at raising awareness of the impact of low health literacy on families’ experiences in our organization. This presentation focuses on projects that have changed our communication with families.

e4cultural transformation — a pivotal transformation for health care in this country

Tracy W. Gaudet, MD, Director, Office of Patient Centered Care and Transformation; U.S. Department of Veterans Affairs, Washington, DC

This session will identify strategies that can be used to influence change within a health care environment that seeks

to implement the core concepts for patient-centered care approaches.

e5 partners in care: Journey in changing the view of family from “visitors” to “partners in care”

Maureen Berkan, RNC-NIC, NICU Registered Nurse; Lori Chudnofsky, RNC-NIC, NICU Assistant Nurse Manager; Susan Griffith, RN, NICU Registered Nurse; Leah Rutz, BA, Operations Supervisor; Frank Sanborn, NICU Parent Advisor; University of Washington Medical Center, Seattle, WA

This presentation is designed to share the process and outcomes of one neonatal unit’s experience with increasing family participation in bedside care.

tools for successfully partnering with parents during bedside shift change report in the nicu

Stephanie Adam, RN, BSN, Assistant Nurse Manager, NICU; Ann Dowling, BS, NICU Family Support Specialist; Women and Infants Hospital, Providence, RI

Including families in bedside shift change report is a concrete way to operationalize the principles of family-centered care. The Family Advisory Council and Shared governance committees have worked together to develop tools that bring this concept to the bedside.

e6patient-centered communication in everyday interactions: the chop care network’s physician practice strategy

Jill Golde, MS, Senior Vice President, Client Experience, Leebov Golde & Associates; Amy Lambert, BA, Senior Vice President, CHOP Care Network, The Children’s Hospital of Philadelphia; Philadelphia, PA

The Children’s Hospital of Philadelphia’s outpatient Care network (CHoP Care network) implemented a far-reaching, long-term strategy to build physician and staff skills in patient- and family-centered communication.

e7patient- and family-centered care “10 best practices”: disseminating information to improve regional pediatric care

Elizabeth DuBois, RN, MS, CPN, NE-BC, Manager, Pediatric Inpatient Services; Siobhan Reid, Parent, Co-Chair Parent Advisory Committee; Walter Rosenfeld, MD, FAAP, FSAHM, Chair of Pediatrics; Ethan Wiener, MD, FAAP, Associate Director, Pediatric Emergency Medicine; Goryeb Children’s Hospital, Atlantic Health System, Morristown, NJ

goryeb Children’s Hospital developed a 10-step “Best Practice” model to improve quality and safety and has now expanded this effort to improve emergency and other care for children in our region.

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e8family-centered care or poor professional boundaries? clinician use of social media to engage with patients and families helps a

hospital redefine therapeutic boundaries

Deborah Braidic, MA, Manager, Web Content and Internal Communications; Scott Ferguson, LCSW, Administrator, Family-Centered Care Support Services; Children’s Hospital Los Angeles, Los Angeles, CA

Social media blurs traditional boundaries, and in health care settings, can blur professional therapeutic boundaries. This session will demonstrate how a stronger social media policy helped a hospital realign house-wide understanding and practice of the core principles of family-centered care.

e9illusion vs. reality: the challenges and benefits of truly applying the core concepts of patient- and family-centered care in a community-based, family support program

Lori Schwartz, PhD, Consultant; Chicago, IL

Challenges and benefits of applying core concepts of patient- and family-centered care in a community-based, family support program are addressed through slide presentation, interactive discussion, group activity, and videotaped client interview. Program changes that facilitated the process will be described.

e10designing the heart institute ambulatory clinic at cincinnati children’s hospital to deliver outstanding patient-focused care—lessons learned from working with the family advisory council

John Blignaut, AIA, ACHA, LEED AP, Partner, GBBN Architects; Mary Dietrich, BSc, Design Manager, Kolar Design; Anya Carl-Heinbaugh, MBA, Director of Space Planning and Design; Melissa Klaassen, Patient/Family Advisor, Family Advisory Council Representative; Cincinnati Children’s Hospital Medical Center, Cincinnati, OH

Involving families in the design process and encouraging them to articulate their ideal patient experience can reap huge benefits for understanding their needs. This presentation will discuss the lessons learned over a number of years of listening to families.

12:45- 2:00 pm

LUnCH exhibit hall: posters, exhibits, and lunch

SPeCIAL LUnCHeon ($55)patient- and family-centered canadian models of excellence — meaningful engagement: let’s spread the learning

Host: Canadian Health Services Research Foundation

This luncheon highlights the good work of patients, families, and citizens,

partnering with health care leaders and planners, in health care quality improvement. The Patient engagement Projects (PeP) initiative of luncheon sponsor, the Canadian Health Services research Foundation (CHSrF), supports teams from health care organizations across Canada to improve the quality of care and the effectiveness and efficiency of health services by engaging patients and their families in design, delivery, and evaluation. CHSrF is an independent organization dedicated to accelerating health care improvement and transformation for Canadians. CHSrF collaborates with governments, policymakers, and health system leaders to convert evidence and innovative practices into actionable policies, programs, tools, and leadership development.

2:15 – 3:45 pm

ConCUrrenT SeSSIonS (F1-F10)

f1how do you know when you have arrived? leading and lagging indicators of success through implementation of both unit and system patient- and family-centered initiatives

Lona Bryant, MSN, RN, Patient-Centered Quality Improvement Consultant; Terri Nuss, MS, MBA, Vice President, Patient Centeredness; Baylor Health Care System, Dallas, TX; Kecia Kelly, MBA-HCM, BSN, RN, Director of Maternal, Newborn and NICU Services; Paul and Judy Andrews Women’s Hospital; Baylor All Saints Medical Centers, Fort Worth, TX

Launching a key initiative, attendees will learn of the inspiration and intentional actions needed at the unit level, and the defined steps needed to implement and spread at the macro level in a 14-hospital health care system.

f2thunder bay regional health sciences centre, thunder bay, ontario, canada

influencing change and improving Quality with patient and family advisors

Julija Kelecevic, MD, PhD, (ABD), Bioethicist; Bonnie Nicholas, RN, CNCC(C), CPTC, Patient Family Centred Care Lead; Keith Taylor, Chair, Patient Family Advisor; Thunder Bay Regional Health Sciences Centre, Thunder Bay, Ontario, Canada

Patient and Family Advisors (PFAs) are the heart of Patient Family Centred Care. They provided invaluable insight to improve the experience of care for everyone. our culture has changed because of our PFAs, and we will share how yours can too!

http://www.chsrf.ca/Programs/EngagingPatients.aspx

http://www.chsrf.ca/Programs/EngagingPatients.aspx

http://www.chsrf.ca/Home.aspx

http://www.chsrf.ca/Home.aspx

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patient and family centred care: from the boardroom to the bedside

Rhonda Crocker Ellacott, RN, HBScN, MA, (CNS), EdD, Executive Vice President, Patient Care, Health Professions/Chief Nursing Executive; Bonnie Nicholas, RN, CNCC(C), CPTC, Patient Family Centred Care Lead; Keith Taylor, Chair, Patient Family Advisory Council; Thunder Bay Regional Health Sciences Centre, Thunder Bay, Ontario, Canada

Quality patient care is a laudible goal – and difficult to reach. A blueprint for system-wide change is needed. Patient and family centred care became our blueprint. our approach through Patient and Family Centred Care Corporate Strategy Development proved to be just the right model.

f3the road less traveled: an adult combined medical and surgical intensive care unit’s Journey to integrate patient and family into the health care team

Michael Benninghoff, DO, Medical Director; Donna Casey, RN, Nurse Manager; Joanne Garcia, RN, Staff Nurse/Chair Patient- and Family-Centered Care Unit Based Council; Michael Gervay, Patient/Family Advisor; Dannette Mitchell, BSN, RN; Christiana Care Health System, Wilmington, DE

This multimedia presentation chronicles the journey of a mixed medical and surgical adult intensive care unit’s quest to integrate patients and families into the health care team. nursing shift-change hand-off at the patients’ bedside and interdisciplinary rounds will be highlighted.

f4peers as recovery mentors for recurrently hospitalized psychiatric patients

Kimberly Guy, Recovery Mentor, Research Associate, Peer Support Supervisor, Program for Research and Community Health; Connecticut Mental Health Center; William Sledge, MD, George D. and Esther S. Gross Professor of Psychiatry; Yale University, Yale New Haven Psychiatric Hospital, New Haven, CT

This session will highlight a random controlled design, feasibility study testing whether having peer mentors is associated with a significant reduction of re-hospitalization for patients with a recent history of recurrent hospitalization. It will feature an account by a mentor.

read all about it!: using media formats to involve veterans and their family in recovery

Crystal Anderson, PhD, LCSW, BCD, Director, Psychosocial Rehabilitation and Recovery Center (PRRC); Elizabeth A. Bass, PsyD; Local Recovery Coordinator; Betty Davis, PRRC Veteran and Facilitator; Paul Jenkins, PRRC Veteran and Facilitator; Donna Tate, Family Support Group Member, PRRC; Atlanta VA Medical Center, Decatur, GA

The family-written newsletter was created to engage Veterans’ families in topics related to mental illness and recovery. This presentation will introduce ways to utilize media to help foster empowerment for the Veterans and families creating the newsletters as well as for readers. The process of this journey will be explored and the outcomes thus far will be discussed.

f5development of a national patient and family experience of care survey

Leslie Hazle, MS, RN, CPN, Director of Patient Resources, Cystic Fibrosis Foundation; Bethesda, MD; Karen Homa, PhD, Improvement Specialist, Leadership Preventive Medicine Residency Program; Dartmouth Hitchcock Medical Center; Lebanon, NH; Kathryn Sabadosa, MPH, Research Associate, The Dartmouth Institution for Health Policy and Clinic Practice; Lebanon, NH; Teresa Schindler, MS, RD, CF Dietitian, Rainbow Babies & Children’s Hospital; Cleveland, OH

The U.S. Cystic Fibrosis Foundation launched the development of a nationwide patient and family experience of care survey to further aid the 115 accredited centers to improve care for the people with cystic fibrosis.

the family voice: involving families in the drive to improve the transition from outpatient to inpatient care

Andrea Honesto, RRT; Susan Katz, Family Advisory Board, Johns Hopkins Hospital, Baltimore, MD

A multidisciplinary team, including parents, was created to improve the transition between outpatient chronic care and inpatient acute care for cystic fibrosis patients.

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f6evaluating mind-body programs and practices within a patient- and family-centered framework

Elizabeth Hoge, MD, Research Scientist, Benson Henry Mind-Body Medical Institute/Assistant Professor in Psychiatry, Harvard Medical School; Boston, MA; Lara Hilton, MPH, Senior Project Manager, Samueli Institute, Alexandria, VA/Research Analyst, RAND Corporation; Santa Monica, CA; Ruth Quillian Wolever, PhD, Research Director and Director, Health Psychology, Duke Integrative Medicine/Director, Behavioral Health & Lifestyle Coaching, Duke Diet and Fitness Center/Assistant Professor, Duke University Medical Center; Durham, NC; Nicole Kangas, PhD, Parent Lead, Family Centered Care Metrics Team; Karen Wayman, PhD, Director, Family Centered Care; Lucile Packard Children’s Hospital at Stanford, Palo Alto, CA

This session will outline best practices for evaluating mind-body programs that are offered in a

patient- and family-centered environment. Panelists will share methodology for effective evaluation, how to choose quantitative and qualitative outcomes that are meaningful and appropriately measure them, and how to successfully involve patients and family members in the evaluation process.

f7georgia health sciences university, augusta, ga

the role of patient advisors in the curriculum and beyond

Kent Guion, MD, Vice President for Diversity and Inclusion; Christine O’Meara, MA, MPH, Development Coordinator; Georgia Health Sciences University, Augusta, GA; Bernard Roberson, MS, Administrative Director, Patient and Family Centered Care; Arthur Stone, Patient Advisor; Georgia Health Sciences Health System, Augusta, GA

Patient advisors have historically participated in the clinically-oriented functions. We report the experiences of patient advisors participating in the classroom, online learning communities, the health sciences university accreditation, and strategic planning process as well as community outreach activities.

building Quality at the bedside: partnering with patients and families through Quality unit councils

Nettie Engels, BS, MEd, EdS, Patient Advisor/Family Faculty Member; Sarah (Teri) Perry, RN, Vice President, Adult Patient Care Services; Anthony (Bernard) Roberson, MSM, Administrative Director, Patient Family Centered Care; Georgia Health Sciences Health System, Augusta, GA

The use of Quality Unit Councils (QUC) enables health care providers to improve quality measures through collaborations. The councils utilize patient advisors, and the principles and behavioral standards of Patient- and Family-Centered Care as a guide to improvements.

f8using six sigma methodology to improve daily communication between families and the medical team in the pediatric intensive care unit

Laura Czulada, DO; Patience Leino, BS, Family Advisor; University of North Carolina, Pediatric Intensive Care Unit, Chapel Hill, NC

This project utilized Six Sigma methodology with a multidisciplinary team, including a family member, to define and improve the current process of daily communication in a 20-bed closed multidisciplinary pediatric intensive care unit.

‘ask me 3™’ — a family-driven campaign to improve patient/family/provider communication at the university of florida pediatric pulmonary clinics

Angela Miney, BA, Family Partner; University of Florida Pediatric Pulmonary Division, Gainesville, FL

The project implemented and evaluated an enhanced ‘Ask me 3™’ educational campaign to improve communication between the health care team, patients, and their families in out-patient Pediatric Pulmonary clinics, including the Sleep Clinic.

f9using patient- and family-centered care strategies to improve care and service to patients who die and their families

Elizabeth Ata, BS, Decedent Affairs and Palliative Care Coordinator; Alice Gunderson, BA, BS, Patient-Family Advisor; Mary Lynne Knighten, RN, MSN, PN, Senior Director, Patient Experience and Care Delivery; St. Francis Medical Center, Lynwood, CA

Traditional clinician viewpoints regarding patients who have died is that of a “body.” The patient was—and still is—a person to their family. St. Francis medical Center uses patient- and family-centered care concepts to maintain the dignity of every person after death.

the end of life champion program

Paul Boucher, MD, BSc, Co-Chair, Patient and Family Centered Care Committee, Department of Critical Care/CVICU Medical Director; Jana Wyber, Family Advisor, Department of Critical Care; Foothills Hospital, Alberta Health Services, Calgary, Alberta, Canada

This is a descriptive account of the experience with an end of life quality improvement program in the regional adult, intensive care units of the Calgary Health region of Canada.

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f10implementing and evaluating the guide to patient and family engagement: improving hospital Quality and safety by engaging patients and family members in their care

Kristin Carman, PhD, Co-Director, Health Policy and Research; American Institutes for Research, Washington, DC; Pamela Dardess, MPH, Senior Researcher; American Institutes for Research; Chapel Hill, NC

This presentation will describe the guide to Patient and Family engagement in Hospital Quality and Safety, preliminary lessons learned from implementing the guide in three hospital sites, and metrics for evaluating guide implementation and assessing hospital-level changes.

3:45 – 4:00 pm

BreAK

4:00 – 5:15 pm

ConCUrrenT SeSSIonS (g1-g10)

g1can academic medical centers improve service and hcahps scores? learn from the best how it’s done!

Kim Blanton, Patient-Family Advisor; Vidant Health, Greenville, NC; Kathy Vermoch, MPH, Project Manager, Quality Operations; University HealthSystems Consortium (UHC); Chicago, IL

Findings of a Vidant Health study comparing the HCAHPS scores of 96 academic medical centers to Value-Based Purchasing benchmarks: revenue impact, best practices, and leadership qualities. An advisor from top-performing Vidant medical Center will share approaches for successfully implementing patient- and family-centered concepts and enhancing satisfaction.

g2strength in numbers: enhancing the family advisor program at penn state hershey children’s hospital

Jessica Capitani, BA, Family Advisor; Deborah Fuhrer, BA, MS, Family-Centered Care Coordinator; Penn State Hershey Children’s Hospital, Hershey, PA

The involvement of patients and families helps to improve patient- and family-centered care in daily practices and hospital initiatives. This session will discuss ways family advisors are currently participating in staff education, hospital committees, task forces, and patient- and family-centered initiatives.

engaging diverse communities in patient- and family-centered care: the development of a latino family advisory board

Gabriela Flores, BA, MSM, Director, Office of Equity and Diversity; Children’s Mercy Hospitals and Clinics, Kansas City, MO

The purpose of this session will be to describe the development, implementation, and engagement of a Latino Family Advisory Board at an urban pediatric hospital setting in the midwest.

g3the michigan difference: implementing patient- and family-centered care at the um cardiovascular center

Bonnie Davis, Advisor, Co-Vice Chair, Patient Family Advisory Committee; Linda Larin, MBA, FACCA, FACHE, Chief Administrative Officer; Elizabeth Nolan, MS, RN, Director, CVC Patient Education & Mardigian Wellness Resource Center, University of Michigan Cardiovascular Center; Ann Arbor, MI

Hear about the array of strategies put in place to implement a Patient- and Family-Centered Care Program at a cardiovascular center that provides services to adult patients and their families.

g4positioning the family and patient at the center: a guide to family and patient partnership in the medical home

Michellle Esquivel, MPH, Director, Division of Children with Special Needs and National Center for Medical Home Implementation; American Academy of Pediatrics, Elk Grove Village, IL; Rebecca Malouin, PhD, MPH, Assistant Professor and Director, Department of Pediatrics and Human Development, College of Human Medicine, Michigan State University; East Lansing, MI; Nora Wells, MS, Director of Programs, Family Voices, Inc.; Lexington, MA

An overview of the monograph will be presented including: the historical development and evidence base for patient- and family-centered care, case studies of patient- and family-centered care in medical homes, and descriptions of patient- and family-centered strategies and tools utilized within medical homes.

g5caregiver presence in interventional radiology procedures

Melanie Hoynoski, BS, CCLS, Child Life Specialist; Amy Kratchman, BA, Family Consultant; Kelly Mignogna, BA, CCLS, Child Life Specialist; The Children’s Hospital of Philadelphia, Philadelphia, PA

Implementation of a program assessing family readiness to accompany pediatric patients into Interventional radiology procedures, including routine feeding tube changes, naso-Jujenal tube placements, and induction. Program consists of procedural and educational support.

advancing patient- and family-centered care in the pediatric perioperative setting

LaTonya Barton, MBA, Parent Advisor; Carolyn A. Benigno, MSN, RN, CPN, Clinical Nurse; Michele M. Grady, BA, JD, Perioperative Surgery Concierge Coordinator; Mary Richardson, BSN, RN, Parent Advisor; Children’s National Medical Center, Washington, DC

Perioperative staff and parent advisors will share innovative practices and projects that are responsive to the specific needs of patients and families in a pediatric perioperative setting.

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g6advancing the practice of patient- and family-centered care: yale-new haven hospital unit-based training

Jeannette Hodge, BA, Director, Patient Relations, Volunteer and Guest Services; Cheryl Hoey, RN, BSN, MSN, MBA, Director, Patient Services for Pediatrics; Susan Kamm, BA, Manager, Patient- and Family-Centered Services; Yollanda London, MPH, Manager Strategic Planning/New Business Development; Mary Ellen Pappas, BA, Co-Chair, Patient and Family Advisory Council; Pat Sclafani, BS, MS, Co-Chair, Patient and Family Advisory Council, Yale-New Haven Hospital, New Haven, CT

The Patient and Family Centered Committee, designed a 90-minute multimedia presentation to introduce staff of a large academic medical center to the principles of patient- and family-centered care and challenge them to incorporate these principles into their daily practice at yale new Haven Hospital.

g7a model partnership between ambulatory clinics and family centered care: the use of high-fidelity simulation to improve parent/provider communication in the clinic setting

Michele Ashland, BA, Parent Lead; Kathleen Davidson, RN, BSN, MBA, Administrative Director, Obstetric/Pediatric Faculty Practice Organization, Ambulatory Care Center Operations; Karen Wayman, PhD, Packard Children’s Endowed Director of Family Centered Care; Lucile Packard Children’s Hospital, Palo Alto, CA

results will be presented from two pilot studies conducted at Packard Children’s using a cadre of well trained “parent actors” from the Department of Family Centered Care in a high-fidelity simulation training to improve parent/provider communication in the clinic setting.

bringing the patient’s goals to the forefront of their visit while collaboratively coaching: success in outpatient neuroscience

Christa Butler, RN, BSN, MSM, Nurse Practice Site Coordinator; Rebecca Herzberg, BBA, Patient Advisor; Georgia Health Sciences University Medical Center; Augusta, GA

The purpose of our initiative is to provide a patient- and family–centered healing environment for those with neurological and neurosurgical illnesses. This work focuses on bringing the patient’s goals to the forefront during the visit while collaboratively coaching through the process.

g8 smart: the patient- and family-centered universal discharge protocol

Kristina Andersen, RN, BSN, Project Coordinator; Sherry Perkins, PhD, RN, Chief Operating Officer/Chief Nursing Officer; Susan Walden, Patient Advisor; Anne Arundel Medical Center, Annapolis, MD

It is time for a patient- and family-centered universal discharge protocol. This session discusses SmArT, a multidisciplinary and

patient and family process that begins during hospitalization, ensures a “hard stop” review of the SmArT tool, and post-discharge collaboration.

g9successful communication with patients and families

Theresa Drum, Family Advisory Council Member; Ann Maghran, BSW, Family Centered Care Coordinator; Tim Sember, Family Advisory Council Member; Valerie Sember, Family Advisory Council Member/Co-Chair; Women and Children’s Hospital of Buffalo, Buffalo, NY

Family Advisory Council members at Women and Children’s Hospital of Buffalo partnered with the nursing educators to collaborate on education days for all the hospital nurses. The goal was to increase staff awareness about the patient and family perspective of care.

g10calgary’s new south health campus: how patient and citizen partnerships are helping build ‘the future of health care’

Joanne Ganton, BComm, Manager, Patient- and Family-Centered Care; Gina Grace, BSW, Citizen Advisory Team Member; Shelley Koch, BA, Site Director; Michelle Stasiuk, Co-Chair, Citizen Advisory Team; Gloria Wilkinson, Volunteer, Citizen Advisory Team Member; Alberta Health Services, South Health Campus, Calgary, Alberta, Canada

South Health Campus is transforming the care experience for patients, families, and health care providers. The Citizen Advisory Team has partnered with architects and clinicians to plan Calgary’s new health campus—together shaping the ‘Future of Health Care.’

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h4the role of system and advisor leadership in advancing patient- and family-centered care across multiple environments of care

Kim Blanton, Patient-Family Advisor; Sue Collier, RN, Vice President, Office of Patient-Family Experience; Vidant Health, Greenville, NC

This presentation will use the five key elements of the Institute for Healthcare Improvement Framework for Leadership for Improvement to describe how system and advisor leaders can advance patient- and family-centered practices across a multi-hospital health care system and multiple environments of care.

h5engaging patients in primary care redesign: strategies for success, lessons learned, and treasures unearthed

Stephanie Berkson, MPA, Director, Quality and Safety Improvement, University of Wisconsin Medical Foundation; Martha Gaines, JD, LLM, Director, Center for Patient Partnerships, Clinical Professor of Law, Principal, E2T; University of Wisconsin Health System, Madison, WI

This presentation will share unique, instructional materials developed by patient leaders, and rich lessons learned from this collaboration between University of Wisconsin Health System and engage to Transform (e2T) at the Center for Patient Partnerships to engage patients in organizational redesign efforts.

day at-a-glance

wednesday, June 6, 2012

7:00 am – 8:00 am Continental Breakfast (Informal networking Breakfasts)

8:00 am – 9:15 am Concurrent Sessions (H1 – H11)

9:15 am – 9:30 am Break

9:30 am – 11:00 am Concurrent Sessions (I1 – I11)

11:00 am – 11:15 am Break

11:15 am – 12:30 pm Concurrent Sessions (J1 – J11)

12:30 pm – 2:00 pm Lunch Break (on your own)

2:00 pm – 3:15 pm Concurrent Sessions (K1 – K10)

3:15 pm – 3:30 pm Break

3:30 pm – 4:45 pm Closing Plenary

8:00 – 9:15 am

ConCUrrenT SeSSIonS (H1-H11)

h1designing an integrated values-based professional practice model and patient- and family-centered care delivery model: from strategic plan to accountable results!

Alice Gunderson, Patient-Family Advisor; Mary Lynne Knighten, RN, MSN, PN, NEA-BC, Senior Director, Patient Experience and Care Delivery; Beverly Quaye, EdD, RN, NEA-BC, FACHE, Chief Nursing Officer, Vice President of Patient Care Services; St. Francis Medical Center, Lynwood, CA

Leaders may struggle with implementing a transformative process to achieve the full value of patient- and family-centered care. Learn how to integrate a values-based professional practice model with a patient- and family-centered care delivery model to transform the patient experience.

h2win-win: patient volunteers serving as authentic, active educators in family-centered care to medical students

Erika Laszlo, Advisor, Patient Family Centered Care Program; University of Michigan Cardiovascular Center; Heather Wagenschutz, MA, Program Administrator; Office of Medical and Student Education/Family Centered Experience; University of Michigan Medical School, Ann Arbor, MI

This interactive presentation will highlight a required medical school course where families dealing with chronic illness serve as actively engaged educators to help medical students see the patient as a whole person, beyond just the diagnosis of their disease.

h3family experience tracers: parents on staff gathering real-time feedback through the eyes of the patient and family

Sheryl Chadwick, BS, Family Centered Care Coordinator; DeeJo Miller, BA, Family Centered Care Coordinator; Children’s Mercy Hospitals and Clinics, Kansas City, MO

Family experience tracers are an innovative tool used to collect real-time information from patients and families during their hospital stay or clinic visit. Learn how family leaders interview patients and families and accumulate data to make system improvements.

wednesday, June 6, 2012

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h6patient and family interviews: a powerful Quality and safety improvement opportunity at dartmouth-hitchcock medical center

Nancy Bassett, BA, Patient Representative, Voices Volunteer; Licia Berry-Berard, MSW, LICSW, Manager, Patient Family Centered Care; Meg Seely, MA, Chair, Family Advisory Board, Patient Representative, Voices Volunteer; Dartmouth-Hitchcock Medical Center, Lebanon, NH

Volunteers interview patients and families about their inpatient care experience. Feedback is shared real time with nursing

leadership. Stories, captured in a database, allow theme categorizing and trending. These themes help guide our quality and safety improvement plan for the organization.

h7patient education: the foundation for active patient and family engagement — how vanderbilt built the case for a robust patient/family education redesign initiative

Marilyn Dubree, MSN, RN, Executive Chief Nursing Officer; Lynn Ferguson, BS, Member, Patient and Family Advisory Council; Terrell Smith, MSN, RN, Director, Patient and Family Centered Care; Vanderbilt University Medical Center, Nashville, TN

Patients and families need clear, understandable information to take an active role in their health care. This presentation describes an analysis of patient and family education at an academic medical center — how gaps and inconsistencies were identified and the process was redesigned.

h8changing lives: the patient-provider relationship in centering group care

Debra Keith, CNM, MS, Midwifery Director; Providence Hospital, Center for Life, Washington, DC; Sharon Rising, CNM, MSN, FACNM, Chief Executive Officer/President; Centering Healthcare Institute, Silver Spring, MD

Centering is a model of care that has transformed both the process and outcomes of care for providers, patients, and their families. This presentation will focus on the patient and provider stories related to their participation in Centering.

h9the relationship between participation in family-centered care training and communicative adaptability among medical students: changing hearts, changing minds

Lisa Rossignol, BUS, Graduate Student, Health Communication; Department of Communication, University of New Mexico; Jan Winslow, Director of Family Leadership, Parents Reaching Out; Albuquerque, NM

This presentation will share the results of a parametric study of medical students at the University of new mexico’s School of medicine who have participated in one of two mandatory patient- and family-centered training programs to determine if improvements are achieved in students’ communication skills.

h10overheard: what we say, what we mean, what families hear

Liza Cooper, LMSW, Director, Family-Centered Care and Family Engagement; March of Dimes Foundation, White Plains, NY

This facilitated, interactive session will examine real-life words said to families in nICUs throughout the nation. Together, we will examine the intent versus impact of what was said and identify language choices that would have been more helpful and sensitive.

h11follow the patient’s footsteps – a new leadership tool

Elisabeth Broegger Jensen, RN, Project Manager; Tina Lynge Lyngbye, RN Consultant; Danish Society for Patient Safety, Hvidovre, Copenhagen, Denmark

The Danish Society for Patient Safety has developed a new tool which is aiming at engaging hospital Ceos in patient-centred care and making their commitment and engagement visible. The focus of this session is on patient involvement and patient safety.

9:15 – 9:30 am

BreAK

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9:30 – 11:00 am

ConCUrrenT SeSSIonS (I1-I11)

i1transforming health care together - stories from australia

Susan Biggar, BA, MA, Board Member; Catherine Crock, MD; Bachelor of Medicine, Bachelor of Surgery, Executive Director; Australian Institute for Patient & Family Centred Care, Melbourne, Victoria, Australia

Partnership, a safe and supportive health care culture, and a healing environment-—three key elements for patient- and family-centred care. This session describes Australian examples in the context of a new national organization aiming to transform health care in Australia.

achieving patient- and family-centred care through consumer participation

Elizabeth Harnett, Head of the Clinical Governance Unit; The Children’s Hospital at Westmead; Sydney, New South Wales, Australia

The Children’s Hospital at Westmead’s Consumer Participation & Partnerships Program enables staff and consumers to work together at all levels of the consumer participation spectrum, which starts at ‘inform’ and ends with ‘empowerment.’

i2patient and family engagement in health care delivery through the development of patient and family advisory councils across catholic health initiatives

Camille Haycok, MS, RN, Vice President, Evidence Based Practice; Catholic Health Initiatives, Englewood, CO; Earl Kinnear, RNC, FNP BC, GNP, PFAC Co-Leader; Catholic Health Initiatives, Albany, MN; Carol Wahl, RN, NEA-C, FACHE, Vice President, Patient Care Services; Good Samaritan Hospital, Kearney, NE

This presentation describes the journey of a health system of over 70 hospitals across 19 states in the development and adoption of outcomes-oriented Patient and Family Advisory Councils. examples from the comprehensive toolkit, outcomes, and lessons learned will be shared.

developing trust: forming a volunteer patient and family group to advise canada’s largest health care provider

Travis Enright, Reverend Canon, Patient and Family Advisory Group Member; Linda Howitt-Taylor, Patient and Family Advisory Group Member; Susan Mumme, BSc, MHS, Senior Vice President, Patient and Family Advisory Group Co-Chair; Deb Runnalls, Patient and Family Advisory Group Member; Alberta Health Services, Alberta, Canada

Participants will meet and talk with four members of Alberta’s Patient and Family Advisory group to Alberta Health Services, the largest health provider in Canada. Learn about how vital trust and leadership are in humanizing our journey at this scale.

i3the evolution of embedding youth facilitators into health care teams

C.J. Curran, TRS, BHA, Manager, Therapeutic Recreation & Life Skills; Dolly Menna-Dack, Patient Leader, Youth Facilitator; Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada

This presentation will outline the history and implementation of the youth Facilitator role. Highlights will include the process of embedding the youth facilitator into a health care team and the challenges that were overcome over the past five years.

creation of an adolescent/young adult oncology patient work group in a pediatric hospital setting

Wade Brockway, Adolescent/Young Adult (AYA) Cancer Survivor; Lisa Logan, RN, MSN, CPNP, CPON, Adolescent & Young Adult Nurse Coordinator; Cook Children’s Hematology & Oncology Center, Fort Worth, TX

An Adolescent/young Adult (AyA) Patient Council was formed to help improve the care of AyAs treated at Cook Children’s (primarily a children’s hospital/treatment center) and ensure that the real priorities of AyAs were being addressed.

i4family mentoring tlcs: talking, listening, caring, sharing

June Sharkey, RN, Shift Nurse Manager; Maria Walker, LCSW, Social Worker; Cathy Wright, MEd, Patient Advisor; Emory University Hospital, Atlanta, GA

our interdisciplinary team can assist in developing a Family mentoring program. Former patients and family members meet weekly with current family members to listen, share, and educate. We will present our journey with mentoring training and recruitment.

a new collaborative strategy: including the family as partners in care

Patricia Brown, DNP, APN-BC, CNS, CCRN, Practice Manager, Neurosciences and Orthopaedics; Karen Burnett, MBA, MS, Member, Patient and Family Advisory Council and Consumer Advocate, Volunteer Services; Nita Kulkarni, MD, Hospitalist, Medical Director 16 East Medicine Unit; Northwestern Memorial Hospital, Chicago, IL

At northwestern memorial Hospital, patient and family engagement was fostered through enhancements of the existing care model. Interventions focused on establishing partnerships with patients, families, and the health care team to include improved communication, and increased family involvement.

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i5the ride of your life

Marnie Dyer, Parent Support Coordinator; Maureen Heald, Parent Support Coordinator; Rachel Houck, LCSW, Social

Worker; Elizabeth Moll, RN, MSN, CPNP, Developmental Care Specialist; Vicki Smith, RN, Parent Educator; Children’s Hospital of the King’s Daughters, Norfolk, VA

This staff teaching tool provides insight into the emotional rollercoaster nICU families experience while their baby is hospitalized. Through group discussion, problem solving, open communication and collaboration, this game will change a unit’s culture by educating staff on patient- and family-centered principles.

engaging families in the development and study of a model of family integrated care in the nicu

Karel O’Brien, MD, FRCPC, Staff Neonatologist; Kate Robson, BA, MEd, ADR Certificate, Veteran Parent; Mount Sinai, Toronto, Ontario, Canada

The objective of this study was to develop and pilot a model of true family integrated care, through parent engagement in a multidisciplinary team.

i6case study: the evolution of an integrated health care system’s patient- and family-centered care Journey

Anita Bilden, MAOL, Patient- and Family-Centered Care Coordinator; Dean Buresh, Patient Partner; Park Nicollet Health Services, St. Louis Park, MN

An in-depth case study of how one integrated health care system incorporated patient- and family-centered principles and best practices throughout the organization and the evolution of their efforts.

establishing a patient advisory committee to support the patient-centered medical home

Kari Loken, PCMH Project Coordinator; Patricia Schmidlapp; Elaine Skoch, RN, MN, EMBA, NEA, BC, Director of Systems Transformation; HealthTeamWorks, Lakewood, CO

HealthTeamWorks established the Patient Advisory Committee to inform and guide changes affecting patients in primary care practices that are becoming patient-centered medical homes. The committee, comprised of patients and representatives from patient advocacy organizations, helps to develop patient-related materials and generates feedback for providers.

i7the evolution of a patient safety rounds program: patient advisors at the forefront of implementation and ongoing evaluation

Aileen Killen, PhD, RN, Director of Patient Safety; Marina Lenderman, LCSW, Coordinator of the Patient and Family Advisory Program; Robin Moulder, RN, MBA, CPHQ, Patient Advisor; Alex Zimmer, JD, BA, Patient Advisor; Memorial Sloan-Kettering Cancer Center, New York, NY

Patient advisors survey patients regarding patient safety. Working with clinical staff, patient advisors develop the questions and a training regime, share results with clinicians, and incorporate the information gained in a replicable, self-improving program.

family-centered care grand rounds and patient safety: partnering to prevent harm

Kathy Conaboy, BA, Family Consultant; Annique Hogan, MD, Attending Physician, General Pediatrics; Amy Kratchman, BA, Family Consultant; The Children’s Hospital of Philadelphia, Philadelphia, PA

At The Children’s Hospital of Philadelphia, an educational series, Family-Centered Care grand rounds, was created where families and staff co-present to the organization to build awareness and acceptance of the value and benefits of Family-Centered Care Bedside rounds and its strong link to improved patient safety.

i8showcasing mind-body programs and practices within a patient- and family-centered framework: the lived experience

Jeanne Abatemarco, MS, RN, CNS, QTTP, Clinical Nurse Coordinator; Diane Rosenstein, MSW, LCSW, Director; Department of Integrative Health Programs, NYU Langone Medical Center, New York, NY; Claudia S. Martin, MSSW, LISW, Clinical Director; Vicki H. Thomas, PhD, Clinical Psychologist/Chief; Warrior Resilience Center, William Beaumont Army Medical Center, El Paso, TX; Anne Doherty-Gilman, MPH, Associate Director; Leonard Zakim Center for Integrative Therapies, Dana-Farber Cancer Institute, Boston, MA

This session will highlight mind-body programs that have been successfully delivered and

evaluated in patient- and family-centered environments across the country. Presenters will share unique challenges they faced, and barriers to overcoming them.

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i9building a patient navigation program within general pediatrics, version 1.0: start-up lessons from the field

Cara Biddle, MD, MPH, Medical Director and Faculty, Children’s Health Center; TjaMeika Davenport, BM, Parent Navigator; Christine Deeley-Wood, BA, Parent Navigator; Michelle Jiggetts, MD, MS, MBA, Administrator, Complex Care Program and Parent Navigator Program; Yan Orellana, BA, Parent Navigator/Padre Guia; Lisa Stewart, MA, Parent Navigator; Children’s National Medical Center, Washington, DC

This presentation is a how-to guide for creating family/patient navigation programs within primary care pediatric settings. It draws from a hospital-based medical home initiative for children with special needs yet has applications for community practices and general patient populations.

navigating a parent’s Journey through pediatric critical care

Julie Barnes, BSN, RN, Family Centered Care Manager; Karen Hawks Sanders, Pediatric Critical Care Navigator; Brenner Children’s Hospital, Winston-Salem, NC

Pediatric Critical Care navigators serve as a gateway to the medical center and critical care experience. The program blends a parent support model with a concierge model. This dedicated support ensures basic needs are met and encourages family involvement.

i10strategies for teaching shared decision making to mental health professionals

Gina Duncan, MD, Assistant Professor; Gareth Fenley, MSW, CPS, Certified Peer Specialist; Alex Mabe, PhD, Professor; Georgia Health Sciences University, Augusta, GA

The key to the recovery model of mental health care is a collaborative process of decision making involving the patient/family and mental health provider. This presentation provides a practical road map toward teaching shared decision making to mental health providers.

i11translating Quantitative and Qualitative research into patient- and family-centered critical care improvement

Michelle Collis, Vice President, Patient- and Family-Centered Care; Cori Cohen Grant, MS, MBA, Director, Market Research; Christine Montgomery, Chair, Methodist Le Bonheur Germantown Hospital Family Partners Council; Methodist Le Bonheur Healthcare, Memphis, TN

In collaboration with family partners and others from throughout the methodist Le Bonheur Healthcare system, a roadmap was created to transition all critical care units from traditional environments to ones in which family presence and partnership are encouraged and valued.

11:00 – 11:15 am

BreAK

11:15 am – 12:30 pm

ConCUrrenT SeSSIonS (J1-J11)

j1a community hospital’s strategy in developing and implementing the organizational infrastructure for patient- and family- centered care

Kay Brandon, Patient/Family Advisor; Ed Piper, FACHE, Chief Executive Officer; Erin Tallman, OTR/L, MHA, Vice President, Director, Patient and Family Advocacy; Onslow Memorial Hospital, Jacksonville, NC

This presentation will share information to assist other hospitals in developing and implementing an organizational infrastructure for patient- and family-centered care through committed leadership and a partnership with patients and families.

j2a plan to Jump start patient- and family-centered care at penn state hershey children’s hospital

Deborah Fuhrer, BA, MS, Family-Centered Care Coordinator; Linda Gilgore, Family Advisor; Penn State Hershey Children’s Hospital; Hershey, PA

This session will present findings from a survey assessment tool conducted to develop a five-year strategic plan focusing on improving patient- and family-centered programs, education, and initiatives. Presenters will share sample strategic plans, timelines, measurements, and achievable objectives.

Just do it! beginning a patient- and family-centered committee in a peri-operative area

Scott Newport, Tradesman, Parent Advisor; Julie Piazza, MS, CCLS, Child Life Specialist/Training Coordinator; Susan Zill, RN, Level E; C. S. Mott Children’s Hospital, University of Michigan Health System, Ann Arbor, MI

The overarching initiative was to advance patient- and family-centered care principles in the peri-operative areas of a large children’s hospital within a university health care system by creating a patient- and family-centered care multidisciplinary committee with family partnerships.

j3nurse bedside report: an evidence-based practice project to evaluate patient safety and patient/nurse satisfaction through nurse and family collaboration

Katherine Galgani, BSN, RN, Staff Nurse; Linda Gauvain, MSW, BSSW, BSN, RN, Manager, General Medicine III; Kathy Park, BSEd, Lead Parent; St. Louis Children’s Hospital, St. Louis, MO

Implementation of change of shift report performed at the bedside can improve parent, patient, and nurse satisfaction as well as identify potential safety issues at the time of transition in care.

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family care partner – pfcc in action!

Sherry Smith, Patient and Family Satisfaction Coordinator; Maria Theron, RN, MSN, CCRN, Executive Director of Nursing, Critical Care Division & Emergency Department;

Memorial Health University Medical Center, Savannah, GA

our Critical Care team used an innovative approach to identify the needs of patients and families and used this opportunity as a way to expose team members who were not typically involved with families to make it happen.

j4the family resource center: partnering with families to provide resources and services

Stacy Isenbarg, Parent Advisor/Hospital Experience Committee Chair; Jennifer Patterson, Family Liaison; Paul Seese, RN, MSN, Coordinator, Family Resource Center; Nationwide Children’s Hospital, Columbus, OH

The Family resource Center at nationwide Children’s Hospital is a welcome support for families. Participants attending this session will be able to identify ways to support families and patients through education initiatives, supportive programs, and services.

j5building buy-in for the value of peer support programs: lessons learned from a community- based program

Gayle Parks Krupa, RN, BSCN, Clinic Coordinator, Stollery Children’s Hospital Down Syndrome Medical Clinic, Alberta Health Services; Sue Robins, BA, Co-Founder, Visiting Parents Program, Edmonton Down Syndrome Society; Edmonton, Alberta, Canada

everybody agrees that peer support is important to families, but these programs can be hard sells in the hospital. Using examples from a community-based program, this presentation will give concrete examples of the value of peer support in any setting.

j6achieving a safe landing: one academic medical center’s commitment to improve patient transitions through resident engagement with patients and families

Elizabeth Shaw, BS, Family Advisor; Mauri Sullivan, MSN, RN, NEA-BC, Clinical Director, Medical Nursing Hospital; University of Pennsylvania, Philadelphia, PA

Creating and sustaining a culture of patient- and family-centered care in an adult academic medical center requires active leadership at all levels. A nurse leader and family advisor utilize forums with medical residents to connect organizational goals with patient-centered care.

j7curriculum reform for collaborative practice with families: transforming nursing education for family-focused care

Dianne Tapp, RN, PhD, Dean and Professor/Faculty of Nursing; University of Calgary, Calgary, Alberta, Canada

Implementation of a baccalaureate nursing curriculum model that incorporates a full semester of integrated courses, focused on families in transition across the lifespan and that builds competencies in collaborative patient- and family-centered care, will be presented.

j8partnering with patient/family advisors in simulated learning experiences

Marc Bertrand, MD, Associate Dean, Graduate Medical Education, Designated Institutional Official, Associate Professor of Anethesiology; Karen Blum, MA, Patient/Family Advisor; Jonathan Huntington, MD, PhD, Physician; Ellen Lones, PhD, RN, CNOR, Instructional Design/Curriculum Development Specialist; Dartmouth-Hitchcock Medical Center, Lebanon, NH

Dartmouth-Hitchcock medical Center is actively partnering with Patient/Family Advisors as subject-matter experts in

simulated learning experiences. These important professional development opportunities are being designed to facilitate the cultural change necessary to fully integrate patient- and family-centered care into every patient-care experience.

enhancing pediatric simulations with parents as actors

Karen Crow, MSEd, Coordinator of Family-Centered Care Initiatives; Mary Wolf, Lead Parent, Parents as Actors Program; St. Louis Children’s Hospital, St. Louis, MO

Family advisors at St. Louis Children’s Hospital have been embedded into clinical simulation events to add more realism to the educational experience. overwhelming support for additional family participation in simulation has been expressed by staff participants.

j9implementing clinical best practice for breastfeeding: caught between best practice and patient-centered care?

Deborah A. DeMarais, MD, MS, FAAP, Vice President, Service Line Physician Executive; Lora Harding Dundek, BA, MPH, Manager, Birth and Family Education and Family Support Services; Fairview Health Services, Minneapolis, MN

A multi-hospital system developed a vision to support breastfeeding infants prenatally, intrapartum, and postpartum. Unanticipated tensions arose as staff/providers struggled to balance clinical best practice, the needs of mother and baby, patient- and family-centered care, and family expectations.

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j10don’t label me “difficult”: strategies to strengthen partnerships within a pediatric patient- and family-centered care environment

Darlene Barkman, MA, Family Consultant; Rachel Biblow Leone, MSW, Director, Family Relations; Elizabeth Steinmiller, MSN, PMHCNS-BC, Clinical Nurse Specialist in Mental Health; The Children’s Hospital of Philadelphia, Philadelphia, PA

When there is conflict between patients/families and providers, the care experience can shift between being team-focused or family-directed. This presentation will share strategies for improved partnerships to bring equilibrium and ultimately, influence safe and successful care outcomes.

family as faculty: effectively using family leaders to implement patient- and family-centered care education for physicians, nurses, and ancillary staff

Sheryl Chadwick, BS, Family Centered Care Coordinator; DeeJo Miller, BA, Family Centered Care Coordinator; Children’s Mercy Hospitals and Clinics, Kansas City, MO

As recipients of care, families provide a unique perspective of the health care experience. Learn how Children’s mercy has successfully partnered with paid and volunteer family leaders to improve the education for residents, nurses, and ancillary staff.

j11determining metrics for family-centered care programs: three tiers of analysis or how to figure out what to measure, how to measure, and how to report findings

Nicole Kangas, PhD, Parent Lead, Family-Centered Care Metrics Team; Karen Wayman, PhD, Packard Children’s Endowed Director of Family Centered Care; Palo Alto, CA

This session will describe a framework for determining metrics for family-centered care initiatives in health care settings. This framework utilizes a key question approach that assists both researchers and non-researchers determine “right-fit” metrics for family-centered health care programs.

12:30 – 2:00 pm

LUnCH on yoUr oWn

2:00 – 3:15 pm

ConCUrrenT SeSSIonS (K1-K10)

k1promoting patient- and family-centered care from mid-level management

Lisa Morrise, MA, Coordinator, Patient and Family Centered Care; Tina Persels, Family Member of Primary Children’s Governing Board; Katy Jo Stevens, MSW, LCSW, Administrative Director, Family Support Services; Primary Children’s Medical Center, Salt Lake City, UT

Ideally, top administration champions patient- and family-centered care. Frequently, mid-level management implements patient- and family-centered care. This presentation looks at how Primary Children’s medical Center successfully increased senior administrative leaders’ commitment to patient- and family-centered care and the level of patient and family involvement under middle management leadership.

k2expanding and advancing the family advisory council through an innovative structure and network of multiple specialty councils

Tamela Grass, Family-Centered Care Program Coordinator; Wendi Tipps, Parent Advisor, Family Advisory Council (FAC) Member, Neuro FAC Chair/Family-Centered Care Assistant Volunteer/Parent Mentor; Cook Children’s Medical Center, Fort Worth, TX

expanding the efficiency and advancing the collaboration of the Family Advisory Council concept by developing a network of integrated specialty councils will be discussed in this presentation. Learn how to develop an innovative infrastructure for reporting, making formal recommendations, and sharing of ideas to take collaboration to the next level.

get ready, get set, go: building an infrastructure that supports and facilitates parent participation on key hospital Quality committees

Stefan Agamanolis, PhD, Associate Director of the Rebecca D. Considine Research Institute, Director, Centers for Telehealth Service Design and Patient Experience Innovation; Georgette Constantinou, PhD, Administrative Director, Division of Pediatric Psychiatry and Psychology; Judy Doyle, BS, Patient Advisor Coordinator; Julianne Klein, BSN, RN, Patient Family Education Coordinator; Akron Children’s Hospital, Akron, OH

Akron Children’s Hospital uses family-centered care principles to guide our strategic planning and clinical practices. This presentation provides insight into our vision, lessons learned, and the benefits of including family members on key quality committees throughout the organization.

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k3collaboration to foster resiliency in ill children

Beth Seyda, Executive Director; Compassionate Passages, Inc., Chapel Hill, NC

While facing the challenges of their terminal or life-limiting illness, children can still smile and joke. Learn common characteristics of resilient children and understand how these can help foster resiliency when families, health care teams, schools, and the community collaborate.

k4bringing the invisible into focus: the view through patient- and family-centered care

Janis Oakes, RN, Patient Advisor, Institute for Clinical Systems Improvement Patient Advisory Council; Jan Schuerman, MBA, Shared Decision Making Program Lead; Institute for Clinical Systems Improvement, Bloomington, MN

each episode of care is ripe with opportunities for patient centeredness. yet they are often missed. Learn how to see the cues for and implement patient-centered care using tools developed by Institute for Clinical Systems Improvement (ICSI), the Patient Advisory Council, and inter-professional teams.

k5vidant medical center, greenville, nc

creating positive first impressions to promote patient- and family-centered care

Dave Galloway, Member, Patient and Family Advisory Council; Roy Lewis, MSA, BSBA, FABC, Administrator, Patient Access Services; Leslie Spencer, Program Manager, Office of Patient-Family Experience; Vidant Medical Center, Greenville, NC

First Impressions was created, in partnership with patient and family advisors, to educate and support front-line employees in the integration of patient- and family-centered care core concepts with Vidant medical Center’s existing mission and standards of performance.

strategic storytelling: creative approaches to driving a culture of patient- and family-centered care

Kathy Dutton, RN, Senior Administrator, Office of Patient and Family Experience; Dave Galloway, Member, Patient and Family Advisory Council; Vidant Medical Center, Greenville, NC

Hear the story of Vidant medical Center’s integration of storytelling as a compelling strategy to support their mission and promote a culture of patient- and family-centered care. Creative and meaningful approaches to sharing stories have been implemented.

k6empowering nicu families in infection control: production of a hand hygiene dvd

Lori Chudnofsky, RNC-NIC, NICU Assistant Nurse Manager; Stephen Zieniewicz, MPH, Executive Director; Jennifer Glick, Patient/Family Advisor; University of Washington Medical Center, Seattle, WA

This presentation will highlight use of a collaborative, creative method to introduce critical content to families and unit visitors about infection prevention, including handwashing.

‘gabby’: how one family’s story helped to reduce catheter associated blood stream infections (cabsi) in newborn critical care centers across north carolina

Tara Bristol, MA, State Director, Program Services; March of Dimes, Raleigh, NC

Collaborative teams engaged in an initiative to reduce catheter associated blood stream infections. As part of the work to partner with families, a parent advisor shared his experience of losing his daughter to a preventable infection. Teams responded with practice changes to improve safety and quality.

k7patients and families as educators: model programs and best practices

Deborah Dokken, MPA, Consultant, Chevy Chase, MD; Sweety Jain, MD, Faculty; Lehigh Valley Health Network, Allentown, PA; Pamela Mann, MSSA, Associate Director of Programs; The Schwartz Center for Compassionate Healthcare, Boston, MA

Participants in this session will hear details of two successful programs that utilize patients or their family members as educators of

health care providers, and will learn best practices for implementing similar programs.

k8the evolution of partnership: a patient- and family-centered Journey in pediatric rehabilitation

Heather Evans, Co-Chair, Family Advisory Committee; Laura Williams, MSW, RSW, Manager, Family Resource Centre and Client- and Family-Centred Care; Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada

A parent and staff team from Holland Bloorview Kids rehabilitation Hospital will lead a candid discussion about the history of family engagement, the development of the Family Leadership Program, the challenges for staff readiness along with strategies for sustainable, long-term planning.

“Excellent! This conference made me feel the sense of urgency that we need to make changes in health care.”


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k9our patient and family advisors and the agency of healthcare for research and Quality selected bedside shift report bundle as their standard

Michelle Gray, RN, MN, CCRN, NEA-BC, Unit Director CCU; Carolyn Hill, MSN, RN-BC, Unit Director 5G Medical Unit; Joe Persichetti, Patient/Family Advisor; Vicky Persichetti, Patient/Family Advisor; Emory Healthcare at Emory University Hospital, Atlanta, GA

our standard process for Bedside Shift report Bundle exemplifies our dedication to patient- and family-centered care. Development, implementation, and evaluation, in coordination with patient and family advisors, is crucial to this process. Assuring nursing engagement and compliance and increasing patient and family satisfaction are positive outcomes from the Bedside Shift report Bundle.

k10the families as partners program: supporting and integrating family involvement with a paid parent position

Tessa Billman, BS, Family Coordinator; Joy Johnson-Lind, LICSW, Director of Child and Family Services; Children’s Hospitals and Clinics of Minnesota, Minneapolis, MN

The Families as Partners Program has been coordinated by a paid parent position since march 2009. This model has stimulated program growth and provided additional opportunities to initiate and advance family involvement.

creating paid positions for patient and family leaders: salary survey results

Julie Moretz, BS, Family Leader and Director, Special Projects; Institute for Patient- and Family-Centered Care, Augusta, GA

Health care systems are increasingly recognizing the importance of establishing paid positions for patient and family leaders. results from this recent survey offer a snapshot of the trends for actively engaging patient and family leaders as paid employees and baseline salaries for a variety of positions that support day-to-day operations.

3:15 – 3:30 pm

BreAK

3:30 – 4:45 pm

CLoSIng PLenArya call to action for innovation and transformational change

Debra L. Ness, President, National Partnership for Women & Families; Washington, DC; Elizabeth Crocker, BA, MEd, Vice President, Board of Directors, Institute for Patient- and Family-Centered Care; East Chester, Nova Scotia, Canada

Join these national and international leaders for inspiration for new ways that patients, families, citizens, health care professionals, and other leaders can

partner for innovation and transformational change in health care in the United States, Canada, and other countries around the world.

The Institute for Patient- and Family-Centered Care offers a wide selection of resources, including printed materials such as guidance publications and self-assessment tools, videos, DVDs, and CD-rom and mP3 Audio CDs. To download a printable copy of the Institute’s resources guide that includes a list of current resources and a brief description of each resource, click on the resources page at www.ipfcc.org/resources/index.html. To order online, go to: www.ipfcc.org/resources

resources Include:guidance publications and books: A variety of practical, fact-filled resources offering guidance for developing patient and family advisory councils, creating patient and family faculty programs, changing the concept of families as visitors, planning new

health care environments, and other relevant topics.

New!new Companion Leadership resources:dvd—Partnerships with Patients, Residents, and Families: Leading the Journey

written guide—Partnering with Patients, Residents, and Families: A Resource for Leaders of Hospitals, Ambulatory Care Settings, and Long-Term Care Communities

Institute resourcesPARTNERING WITH PATIENTS AND FAMILIES TO DESIGN A PATIENT- AND FAMILY-CENTERED HEALTH CARE SYSTEM Recommendations and Promising Practices

With support from theCalifornia HealthCare Foundation

April 2008

Institute for Family-Centered Care 7900 Wisconsin Avenue, Suite 405 Bethesda, MD 20814www.familycenteredcare.org

In collaboration with

Institute for Healthcare Improvement20 University Road, 7th FloorCambridge, MA 02138www.ihi.org

Bev Johnson, Marie Abraham, Jim Conway, Laurel Simmons, Susan Edgman-Levitan, Pat Sodomka, Juliette Schlucter, and Dan Ford

INSTITUTE FOR FAMILY-CENTERED CARE

Creating Patient

and Family

Faculty Programs

Barbara L. Blaylock, M.D.

Elizabeth Ahmann, ScD, RN

Beverley H. Johnson

with support fromA. K. Watson Charitable Lead TrustAmerican Institutes for ResearchChild, Adolescent, and Family Branch Center for Mental Health Services, US DHHSEli Lilly and CompanyJosiah Macy, Jr. FoundationThe Nathan Cummings Foundation

pinwheel sponsors receive a 10% discount on all orders.

http://www.ipfcc.org/resources/index.html

http://www.ipfcc.org/resources/index.html

http://www.ipfcc.org/resources

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c o n fer en c e p ost er s

tele-visitation—bringing patients’ families to the bedside by video link

Anne Cryderman, RN, Telemedicine Nurse; Bonnie Nicholas, RN, CNCC(C), CPTC, Patient- and Family-Centred Care Lead; Thunder Bay Regional Health Sciences Centre, Thunder Bay, ON, Canada

Tele-visitation, virtually transporting a patient’s family to the bedside, has recently been flagged by Accreditation Canada as a potential leading practice for patient- and family-centered care. This poster will share the profound impact of this service on the patient experience.

utilizing the electronic medical record to facilitate family presence

Sherri Black, Patient Care Advisor; Kena Despain, RN, Clinical Manager; Gabe Fritz, Patient Care Advisor; University of Louisville Hospital, Louisville, KY

In collaboration with our Patient Care Advisory Team, a family presence policy was developed in which guests, partners in care, and family are defined. Additions to the emr allow for documentation of education, preferences for participation, collaboration, and information sharing.

patient- and family-centered care pathways provide better outcomes for the patient and reduce length of stay

Kimberly Newcomb-Forro, RN, Staff Nurse, Level C; Monica Waidley, RN; University of Michigan Health System, Ann Arbor, MI

This poster will highlight developing a business case for patient- and family-centered care by reducing length of stay, readmission rates, and improving patient outcomes.

patient-centered interventions to decrease readmissions and promote effective and efficient care

Renee Fay-LeBlanc, MD, Associate Chief Medical Officer; Debra McGill, RN, Care Transition Nurse; Michael Yunes, MPH, Quality Program Manager; Maine Medical Partners, Scarborough, ME

A multidisciplinary team studies the highest utilizers of our medical center. We collect data through chart reviews, home visits, physician surveys, and patient interviews. We develop individualized care plans—increasing patient satisfaction and quality of life, while decreasing unnecessary readmissions.

creating the ideal patient experience: utilizing patient/family councils to help set the stage and develop the dialogue

Mary Ann Peugeot, CPA, Chair, Vanderbilt Patient/Family Advisory Council; Gaye Smith, MBA, Chief Patient Experience and Service Officer; Vanderbilt University Medical Center, Nashville, TN

This poster describes the collaboration of health care administrators and professionals with patient/family councils to define and

implement initiatives for creating the ideal patient experience.

one voice: one hospital’s Journey to transform our hospital inside and out by incorporating patients and families into the health care team

Jo Ann Melson, MSN, RN, FNP-BC, Family Nurse Practitioner; Dannette Mitchell, RN, CCRN, Coordinator for PFCC Practices; Lillian (Shelley) Nix, Senior Patient Representative; Paula Tomanovich, BSN, RN, BC, Nurse Manager, ACE Unit-Wilmington Hospital; Christiana Care Health Systems, Wilmington, DE

This poster will offer knowledge to those systems interested in incorporating patient- and family-centered practices into their present culture. We will share our successes and failures as we journey through planning, implementation, and evaluation in our path forward.

complicated partnerships: initiating the prison health patient-centered care conversation

Karen Patterson, RN, RM, GDipAEd, PhD Candidate; Centre for Health Research in Criminal Justice & Practice Development Unit, Justice Health Statewide Services; New South Wales, Australia

Prison and health care is a complicated partnership. Patient-centered care is unverified in this unique context. This poster draws on the experiences of patient/prisoners, officers, and health professionals from new South Wales, Australia to initiate the prison health patient-centered care conversation.

measuring the success of patient/family advisors

Sharon Cross, LISW, Patient/Family Experience Advisor Program Manager; Ohio State University Medical Center, Columbus, OH

measuring the impact of Patient/Family Advisors can be difficult when data is sparse and often anecdotal. Using several methods of data collection may provide a better business case for Advisor credentialing and management.

conference poster schedule


7:00 am – 8:00 am

10:00 am – 10:30 am Poster presenters available for questions.

12:45 pm – 2:00 pm Poster presenters available for questions.

5:00 pm – 6:30 pm


7:00 am – 8:00 am

9:15 am – 9:45 am

12:30 pm – 2:00 pm

poster sessions

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creating healing partnerships by elevating volunteerism in the emergency trauma department

Joseph Feldman, MD, FACEP, Chairman, Department of Emergency Trauma Department; Sandy Kissler, Secretary/Treasurer of the Advisory Board of Directors, Foundation Board of Trustees; Caryn Loffman, MSW, Program Coordinator, Take a Break Program; Hackensack University Medical Center, Hackensack, NJ

This program’s intention is to provide family members and/or significant others the opportunity to leave the bedside of their loved one for a period of respite or time to manage personal affairs by using specially screened and trained volunteers.

patient and family advisors partner in the delivery of care through peer-based interactive role and support

Kim Buettner, Supervisor, Patient Education and Advisory Program; Christine Healy, LCSW, Social Worker; Monica Vakiner, RN, BSN, Patient Advisor; Moffitt Cancer Center, Tampa, FL

The Patient and Family Advisory Program offers a peer-based interactive role connecting advisors with patients and families who receive care at moffitt. The discovery, development, and implementation of necessary tools to support these advisors will be shared.

lessons learned: creating an orthopedic patient and family partnership council

Gregg Strathy, MD, MS, Medical Director for Development, Orthopedic Surgery; Park Nicollet Health Services, St. Louis Park, MN

While pursuing improvement initiatives centered on care of patients undergoing hip and knee replacement, we realized we were not including patients and families adequately. We put our work on hold until the Council became operational.

advisory councils—the new standard for patient/family engagement

Sharon Cross, LISW, Patient/Family Experience Advisor Program Manager; Cortney Forward, Patient/Family Experience Advisor; Ohio State University, Medical Center, Columbus, OH

ohio State has embarked on a mission to share best practices across the multi-hospital academic medical center through the creation of department, business unit, and system-wide Advisory Councils. This poster describes key steps and lessons learned.

partnering to improve outcomes: our Journey to develop, implement, and evaluate a patient care Journal

Deena Casey, RN, BSN, Assistant Manager, Inpatient Oncology Unit; Michelle Stimec, RN, BSN, CRRN, Assistant Clinical Manager; The Christ Hospital, Cincinnati, OH

The purpose of our poster is to share our process that we utilized in creating a Patient Care Journal. Content summarizes strategies to develop, implement, and evaluate our Journal, with participation from patients, families, and multidisciplinary staff.

the mystory Journey: capturing each child’s story and personalizing the care we provide to pediatric patients at the university of minnesota amplatz children’s hospital (umach)

Cheristi Cognetta-Rieke, BSN, RN, Nurse Manager; University of Minnesota Amplatz Children’s Hospital & University of Minnesota Medical Center, Fairview, Minneapolis, MN

The myStory initiative has been funded by the Picker Institute as an Always event™, to be implemented at UmACH. The goal of

myStory is to capture each individual pediatric patient’s “story” and to use this to personalize care.

creating a supportive environment for patient- and family-centered care

Jane Willson, SLPD, Director of Rehabilitation Services; Georgia Health Sciences Health System, Augusta, GA

This poster will highlight the journey of the rehabilitation Services Department in creating a patient- and family-centered environment with the outcome being seven consecutive winners of the health system’s Family Choice Awards.

essential family perspectives directing progress toward the family-centered transition and eliminating staff resistance

Lora Asbury, Parent Advisor/President Winchester Medical Center NICU Parent Advisory Council; Winchester Medical Center NICU, Winchester, VA

educating staff through a firsthand video shows new perspective from families and expresses the impact their powerful voice makes when incorporating the family-centered initiative. When families establish the goals and direction, it creates passion and awareness for critical change.

the bumpy road to success—implementing bedside shift report at penn state hershey children’s hospital

Deborah Fuhrer, BA, MS, Family-Centered Care Coordinator; Susan Newcomb, Family Advisor; Stephanie Reed, BSN, RN, Clinical Head Nurse; Penn State Hershey Children’s Hospital, Hershey, PA

Bedside Shift report was implemented at Penn State Hershey Children’s Hospital, but not without some setbacks and obstacles. This poster describes the process and lessons learned, including the education process of the nursing staff and buy-in from nursing leadership.

“taking it to heart” cardiovascular services at wellspan health partners with patient and family advisors

Sharon Douglas, RN; Wade Markel, RRT, Director of Invasive Cardiology; Rebecca Senft, RN, Liaison, Patient Educator; Tammy Sterner, RN, BSN, CNE, Director of Non Invasive Cardiology; Wellspan Health, York, PA

The Cardiovascular Service Line at Wellspan Health has achieved success over the course of three years in sustaining a council that is focused, energetic, and motivated to contribute to improving the patient and family experience within our health system.

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partnering with parents on a congenital heart disease Quality improvement project: methods, benefits, and barriers

Heather Langlois, MSW, LICSW, Social Worker; Rachel Steury, MSN, CFNP, Nurse Practitioner, Professional Practice Specialist; Children’s National Medical Center, Washington, DC

Children’s national Heart Institute has committed to improving parental engagement in quality improvement in conjunction with The national Pediatric Cardiology Improvement Collaborative. This poster describes our experience in parental engagement, identifies potential barriers, and highlights the benefits of parental involvement.

patient advisors—now that you have them, what do you do with them?

Christine Abbott, Administrative Clerk, Family Services Development; Nettie Engels, Patient Advisor; T. Nicole Johnson, MBA, BBA, PMP, Coordinator, Family Services Development; Bernard Roberson, MBA, BA, HSC, Administrative Director, Patient- and Family-Centered Care, Georgia Health Sciences Health System, Augusta, GA

Health systems can utilize patient advisors for more than just serving on advisory councils. our Certificate Program is designed to educate patient advisors on new ways to serve and to help provide them with skills to be successful.

collaborating with patients and families: creating an icu guidebook

Amy Haverland, BS, BSN, RN, Critical Care Nurse Educator; Desiree Wood, RN; University of Washington Medical Center, Seattle, WA

Former patients and family members reported that the amount of information to take in during the ICU stay was overwhelming and stressful. The ICU Patient and Family Advisory Council (PFAC) recommended development of a reference manual for information frequently presented.

using experiences of parent advisors to improve how health care professionals deliver difficult news in the nicu

Zak Goldman, Parent Experience, Parent Advisor; Kristy Macdonell, Master Social Worker; Mount Sinai Hospital, Toronto, ON, Canada

This poster will provide a framework for health care professionals to assist in delivering difficult news and offer ways to develop a clear, consistent, and therapeutic process for communicating effectively with families.

patient- and family-centered rounds on an inpatient geriatric hospital ward and ability to improve patient and family perception of care: results of semi-structured interviews

Jeffrey Schlaudecker, MD, Assistant Professor, Family and Community Medicine; Department of Family and Community Medicine, Division of Geriatric Medicine; The University of Cincinnati; Anna Stecher, BS, Medical Student; University of Cincinnati College of Medicine, Cincinnati, OH

This poster summarizes our research study aimed at better understanding the impact of patient- and family-centered rounds compared to traditional rounds on hospitalized geriatric patients and their families, through semi-structured interviews.

food and nutrition services working collaboratively with patient/family centered care team to improve patient satisfaction with food services

Nicole Johnson, MBA, BBA, PMP, PFCC Program Coordinator; Georgia Health Sciences University Medical Center; Augusta, GA

In early 2011, the georgia Health Sciences University medical Center Patient- and Family-Centered Care Team formed Unit Quality Councils with the purpose of improving patient satisfaction. Food and nutrition Services was represented on councils and their collaborative actions resulted in improved food service patient satisfaction.

patient and family shadowing: walking the walk to co-design care experiences with patients and families

Patricia Embree, BABS, Senior Director of Project Management; Michelle Giarrusso, RN, BSN, MS, Senior Project Manager; Lisa Schraeder, BS, MS, Organizational Development Consultant; Innovation Center of UPMC, University of Pittsburgh Medical Center, Pittsburgh, PA

Use Patient and Family Shadowing (PFS) as a low-tech, easy-to-implement, high-impact technique that obtains feedback from patients and families by creating real-time Patient and Family Advisory Councils (PFACs) to incorporate these valuable perspectives into the ongoing co-design of care experiences.

“What a great opportunity to see how the world in health care is changing, and how valuable it is to have patients and families be involved in medical care.”


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partnering with parents to improve patient/ family education

Joan Morgan, MSHA, MBA, RN, Education Consultant; Cincinnati Children’s Hospital Medical Center, Cincinnati, OH

Parent input into the patient education review process can have a significant impact on the final education given to families. This poster reviews basic health literacy principles and discusses how to involve patients/families in the creation of patient education materials.

heart2heart teen volunteer mentoring program for pediatric cardiac patients

Christine Rich, MS, BSN, RN, Staff Nurse III, Lauren Smizer, BA, Child Life Specialist; Children’s Hospital Boston, Boston, MA

A Teen Volunteer mentoring Program has been established and successfully piloted in a large pediatric cardiovascular program. The purpose of this program is to support children hospitalized with congenital heart defects with teen volunteers also born with cardiac disease.

from existence to engagement: one family advisory council’s Journey toward leading institutional change

Lynnie Reid, Family Initiatives Coordinator/FAC Co-Chair; Susan Shanske, LICSW, Clinical Social Worker; Children’s Hospital Boston, Boston, MA

The existence of a family advisory council (FAC) is an important step in ensuring patient- and family-centered care. To sustain effective partnerships, the FAC must constantly reevaluate. This poster illustrates our efforts to engage and empower our FAC.

the sickle cell disease family advisory board: an essential partner in continuously improving the health of people living with sickle cell disease

Nancy Caperino, MSW, Social Worker; Nathan Hagstrom, MD, Medical Director; Cecelia Pepers-Johnson, MS, Family Advisor/Chair of Family Advisory Board; Connecticut Children’s Medical Center, Hartford, CT

A Family Advisory Board is an invaluable partner for any organization providing treatment for people with sickle cell disease through creating educational programs for families and health care staff, providing invaluable insights into space design and treatment protocols, and increasing awareness.

development of a parent/family advisory board track at an international medical conference

Leslie Hazle, MS, RN, CPN, Director of Patient Resources, Cystic Fibrosis Foundation, Bethesda, MD; Kathryn Sabadosa, MPH, Research Associate, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH; Teresa Schindler, RD, CF Dietitian, Rainbow Babies and Children’s Hospital, Cleveland, OH

A one day Advisory Board track was added to the International Cystic Fibrosis (CF) medical Conference to promote patient- and family–centered care and collaborative self-management among health care professionals, parents, and partners of people with CF in improving care.

women’s health/pediatrics family advisory council

Mindy Neff, RN, MSN, IBCLC, Maternal Child Educator; Nurse Manager; Joyce Swisher, RN; Christiana Care, Newark, DE

Patient- and family-centered care is the collaborative partnership among health care providers and patient and families to improve patient satisfaction, staff satisfaction, safety, and quality of care. This poster will share how a Patient and Family Advisory Council can transform the culture of the organization.

volunteer ambassador program: high touch safe patient- and family-centered care in action

Kathy Berube, MA, Director, Volunteer Services; Judy Lucas, Chair, Patient Advisory Board; Ellen Moscinski, LCSW, Director of Patient Relations; Maine Medical Center, Portland, ME

The Volunteer Ambassador Program is a joint project between the volunteer and patient relations departments that provides support to patients, families, and staff to serve as an avenue for addressing non-clinical support services to help identify potential concerns/complaints.

families supporting families through family greeter program

Deborah Fuhrer, BA, MS, Family-Centered Care Coordinator; Linda Gilgore, Family Advisor; Penn State Hershey Children’s Hospital, Hershey, PA

The Family greeter Program is a volunteer opportunity for families to offer support to newly admitted families at the Penn State Hershey Children’s Hospital. Partnering with the Family Advisory Council, the process, training, and fundamentals of the program were developed.

partnering with families in a culture of safety

Darlene Barkman, MA, Family Consultant; The Children’s Hospital of Philadelphia, Philadelphia, PA

The purpose of this poster is to demonstrate the high level of partnership between families and hospital leaders/staff at The Children’s Hospital of Philadelphia in building a Culture of Safety.

transforming the patient and family experience in an academic health care setting

Daryl Bell, BA, MDiv, Co-Chair Patient and Family Advisory Council/Professional Practice Leader for Spiritual Care; Anndale McTavish, MA, Co-Chair, Patient and Family Advisory Council; Marla Rosen, Patient Experience Advisor; Kingston General Hospital, Kingston, ON, Canada

This poster will outline how Kingston general Hospital has begun to ensure the voice of the patient is heard at every level of the organization and will include the logistics of forming/sustaining an advisory council and ensuring an advisor sits on every committee making decisions on patient care.

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linking patient- and family-centered care and culturally and linguistically appropriate services to clinical and academic accreditation

Kent Guion, MD, Vice President for Diversity and Inclusion; Georgia Health Sciences University; Vivian Rice, CMI, Manager, Culturally and Linguistically Appropriate Services; Georgia Health Sciences Medical Center, Augusta, GA

organizational clinical and academic accreditations have become more focused on measured outcomes. The role and activities of patient- and family-centered care has been firmly integrated in both the Joint Commission and the Commission on College accreditation process at our institution.

diversity – it’s broader than you think

Christine O’Meara, MA, MPH, Program Development Coordinator; Georgia Health Sciences University, Augusta, GA; Vivian Rice, BSM, Manager, Culturally and Linguistically Appropriate Services; Naomi Williams, MPH, CHES, IC Patient Advisor/Family Support Coordinator, Cancer Center; Georgia Health Sciences Medical Center, Augusta, GA

Increasing the understanding of diversity among health care professionals, staff, and students requires creativity, engagement, and self-assessment. Two successful teaching tools will engage participants and inform them how to convey diversity data interactively and visually to meet varied learning styles.

engaging the community through education: creating an academic/service partnership

Donna Adams, LMSW, Patient Advisor; Lee Powell, MBA, PHR, Director of Talent Acquisition; Sharon Vincent, EdD, MSN, BSN, ADN, RN, Director, Professional Nursing Practice and Center for Nursing Education; Georgia Health Sciences Medical Center, Augusta, GA; Herecender Walton, MSN, Dean of Health Sciences, Aiken Technical College, Aiken, SC

This poster describes georgia Health Sciences medical Center interdisciplinary Patient- and Family-Centered Care team’s planning, implementation, and evaluation of engaging academia to incorporate patient- and family-centered care into their health care curriculums.

leveraging mobile devices technology: put pfcc tools into the hands of patients, families, providers, and health professions students anytime, anywhere

Christine O’Meara, MA, MPH, Program Development Coordinator; Donna Adams, LMSW, Patient Advisor; Georgia Health Sciences Medical Center, Augusta, GA

The PFCC BASICS application for mobile devices gives health professions students, providers, and consumers (patients/families) an interactive tool to apply patient- and family-centered principles and practices. Participants will view the app, learn development tips, and identify patient- and family-centered related topics adaptable to app formats.

from the classroom to the bedside: parent testimonials assist medical students and resident physicians in understanding the positive impact of patient- and family-centered care

Linda Kim, BS, CCLS; Alice Pengra, RN, BSN, MBA/HCM, Specialty Director for Pediatrics/Co-Chair Pediatric Parent Advisory Board; Shannon Rohrer-Phillips, MSW, Parent Advisory Board Member; Georgetown University Hospital, Washington, DC

Annually, the Pediatric Parent Advisory Board hosts a Pediatric grand rounds for the purpose of sharing their testimonials with the medical students and residents. Their mission is to help them understand the impact they have on patients and families.

integrating the family voice when teaching communication strategies in new nurse orientation

Colleen LaBelle, Parent Advisor; Maureen McAfee, RN, BSN; Carol Parry, MA, Family Centered Care Specialist; Seattle Children’s Hospital, Seattle, WA

This poster highlights a curriculum for new nurses to concurrently learn communication strategies and explore the family experience through open dialogue with parents; enabling them to better translate abstract concepts into practical steps and enhance their practice.

partnering with families for the ideal perioperative experience: videolink development for staff education

Linda Cunningham Lawler, RN, BSN, Family Services Coordinator, Perioperative Services; Susan Kamerling, RN, MSN, BC, Family Services Coordinator, Perioperative Services; The Children’s Hospital of Philadelphia, Philadelphia, PA

Staff gain insight into patient- and family-centered care by listening to patients and families. This poster shares the development of an educational video and its placement as a videolink on the hospital’s intranet. Advantages, limitations, and integration into practice will be featured.

start the way you want to finish: initiative to improve communication and shared decision-making with families in an academic medical icu

Sarah Adeyinka, MSW, LSW, Family Liason Social Worker; Megan Carr-Lettieri, MSN, ACNP, BC, CCRN, Nurse Practitioner, Medical Intensive Care Unit; Hospital of the University of Pennsylvania, Philadelphia, PA; Horace DeLisser, MD, Associate Professor of Medicine, Perelman School of Medicine; University of Pennsylvania, Philadelphia, PA

Family meetings happen when you may least expect them; and first impressions last. We are initiating an educational program for health care providers to foster proactive, comprehensive, multidisciplinary communication with patients and families, in particular, as it relates to end-of-life care.

“Best conference I’ve been to in all my years as an RN…it was transformational!”


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patient brochure: making the most of your clinic visit—tips for patients from patients

Charlotte Hill, MA, Curriculum and Instruction, Patient Advisor; Sandra Piscitello, RN, Patient Advisor; Adele Wirch, R.EEG/EPT, CNIM, Senior Clinic Manager/Staff Co-Lead, Outpatient Advisory Council; University of Washington Medical Center, Seattle, WA

The outpatient Advisory Council of University of Washington medical Center used patient, provider, and staff feedback to determine elements of an effective clinic visit. The result, an information-sharing brochure, supports UWmC’s mission to provide exceptional patient- and family-centered care.

how social work integrates patient- and family-centered care in the sarcoma program at mount sinai hospital

Trisha Woodhead, CCW, BA, MSW, Social Worker, Outpatient Oncology; Sue Worrod, BSW, MEd, MSW, Social Worker, Sarcoma Program; Mount Sinai Hospital, Toronto, ON, Canada

Through a case study, this poster will illustrate how inpatient and outpatient Social Work plays an integral role in seamlessly implementing the principles of patient- and family-centered care in the Sarcoma Program at mount Sinai Hospital in Toronto.

vision to reality: upstate golisano children’s hospital, an award-winning design moving into practice

Melissa McElroy-Elve, MS, MSLIS, Director, Upstate Family Resource Center; Leola Rodgers, MPH, Associate Administrator of Upstate Golisano Children’s Hospital, Oasis and HealthLink; Upstate Medical University, Syracuse, NY

Patient- and Family-Centered Care principles were implemented for strategic planning, operations, and decision-making to change leadership, culture, and physical environment. The impetus was the construction of a six-story, patient care tower, crowned by an award-winning 71-bed children’s hospital.

rubber duckies in every tub—patient and family driven facility design

Timothy Flack, Attorney, Chairman Elect, Family Partner’s Council; Janet Phillips, MAEL, Executive Consultant to the President; Le Bonheur Children’s Hospital, Memphis, TN

This poster will describe processes used to include patients and families in the design of a new replacement facility using both formal and informal processes to ensure that the resulting environment would support patient- and family-centered care practices.

verifying effectiveness of family Zone in patient rooms for family presence and interaction with care givers

Hyun-Bo Seo, PhD; Georgia Tech, Atlanta, GA

This study empirically verifies effectiveness of family areas in patient rooms for family presence and interaction with caregivers.

educational initiatives of patient- and family-centered care integration: partnerships with professional development specialists

Lisa Fidyk, MSN, MS, RN, Professional Development Specialist; Beth Smith, MSN, RN, Professional Development Specialist; The Hospital of the University of Pennsylvania, Philadelphia, PA

educational strategies for patient- and family-centered care were developed by Professional Development Specialists, nursing leadership, and the Patient Advisory Council for integration of core concepts into an academic medical center for adults with the goal to strengthen patient and family partnerships.

single-room nicus and family education: compensating for loss of observational learning opportunities with alternative models

Laura Borges, RN, Neonatal ICU Nurse; Kate Robson, BA, MEd, Parent Coordinator; Sunnybrook Health Sciences Centre; Toronto, ON, Canada

multi-bed units help families learn by observing other families and staff members in action. Single-bed units have many advantages but limit observational learning. We can compensate for this limitation by setting educational goals and identifying alternative educational vehicles.

partnering with patients and families to reduce central line associated blood stream infections (clabsi) in pediatric hematology/oncology patients

Nathan Hagstrom, MD, Director, Hematology-Oncology; Catherine Bixby, BS, MS, Clinical Research Assistant; Jill Baral, BS; Founding Member of Connecticut Children’s Medical Center’s Cancer Family Advisory Board; Connecticut Children’s Medical Center, Hartford, CT

We are participating in the nACHrI Pediatric Hem-onc Collaborative to reduce Central Line Associated Blood Stream Infections (CLABSI). We collaborated with patients/families and our Cancer Family Advisory Board to create an educational tool aimed at increasing family/patient involvement in reducing/preventing CLABSI.

partners for safety: patient and family hand hygiene

Kathy Howland, Patient and Family Advisor; Marilyn Potgiesser, RN, Coordinator, Patient- and Family-Centered Care; Bronson Methodist Hospital, Bronson Healthcare Group, Kalamazoo, MI

Learn how the passion and dedication of a patient and family advisor lead Bronson Healthcare to create a strategic initiative that instructs patients and family members about hand hygiene and supplies them with the tools to ensure a safe environment.

how to showcase patient- and family-centered care programs

Paul Seese, RN, MSN, Coordinator, Family Resource Center; Nationwide Children’s Hospital, Columbus, OH

Providing a venue for staff and families to share family-centered care programs is an important way of creating a culture of family-centered care. A poster expo is an effective way to celebrate, educate, and inspire further advances in patient- and family-centered care.

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initial testing of guided family-centered care: evaluation and improvement of an intervention promoting parent communication and support

Janne Weis, PhD Student, Clinical Nurse Specialist; Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark

Communication is a critical factor when practicing family-centered care. guided Family-Centred Care is an intervention based on structured communication between parents and nurses throughout hospital stay focused on what is perceived as difficult by parents.

chinese nurses’ attitudes about patients and families as advisors

Marcia Pertrini, PhD, FAAN, Dean; Yan Qun Liu, PhD Student; Wuhan University HOPE School of Nursing, Wuhan, Hubei Province, China

This study investigated Chinese nurses’ attitudes about patients and families as advisors in their own health care.

engaging patients, families, and staff in the plan of care through the use of bedside reports

Jean Gaudette, BS, RN, Nurse Manager; Mary Jean Vickers, DNP, RN, ACNS, BC, Program Manager, Clinical Development; University of Minnesota Medical Center, Fairview, Minneapolis, MN

Describe the development of patient- and family-centered care partnerships utilizing bedside handoffs and whiteboards as a method of engaging patients, families, and interdisciplinary staff. A staff led initiative resulted in improved patient satisfaction scores and participation of the patient in care.

patient- and family-centered care from entry to exit…

Michael Barnes, Patient Access Services Manager; Kaili Nixon, RN, Assistant Nurse Manager Med/Surg, Patient Experience Leader; Chowan Hospital, Edenton, NC; Gaye Branch, RRT, RCP, Respiratory Care Manager/Patient Experience Leader; Bertie Memorial (UHS); Bertie Memorial Hospital, Windsor, NC

Bertie memorial and Chowan Hospitals, two critical access hospitals within Vidant Health, are committed to advancing the culture of patient- and family-centered care through involved leaders, engaged staff, and active patient-family advisory councils.

the Journey: a guide to smooth the ride—the family is here to stay

Joseph DeCostanza, MSN, RN, Trauma Research Nurse; Memorial Regional Hospital, Hollywood, FL

Incorporating families in developing a patient- and family-centered (PFCC) intensive/critical care unit is a journey worth embarking. Disappointing patient satisfaction scores inspired the creation of an ICU PFCC orientation Book. This book has enhanced a PFCC environment and culture.

critical care family respite center

Coren Ross, Patient/Family Advisor; Sherry Smith, Patient and Family Satisfaction Coordinator; Maria Theron, RN, MSN, CCRN, Executive Director, Critical Care Division and

Emergency Department; Memorial Health University Medical Center, Savannah, GA

How can you create a patient- and family-centered experience for families of patients in Critical Care? Through generous donations and the diligence of a young patient’s parents, we are now able to offer overnight accommodations for families of critical care patients.

putting patients first: the creation of a standardized patient- and family-centered care approach to surrogacy in a canadian tertiary care centre

Susan Guest, RN, MN, IBCLC, Clinical Nurse Specialist; Mary-Katherine Lowes, BA, BSW, MSW, RSW, Perinatal Social Worker, Educational Coordinator; Mount Sinai Hospital, Toronto, ON, Canada

This poster will feature the development of an inter-professional gestational Carrier policy for use in a regional tertiary care centre and will provide practice guidelines congruent with the core aspects of patient-centered care while operating within the Canadian health care system and current legislative landscape.

supporting patients and families affected by autism: the development of the university of michigan health system’s (umhs) autism spectrum disorders (asd) multidisciplinary work group

Jacob Mouro, ICPS, Sergeant, Hospital Security; University of Michigan Health System, Ann Arbor, MI

In response to the rise in patients and families affected by autism, the UmHS ASD multidisciplinary Work group formed with the goal of providing them with the best support and care across all environments within the health system.

family-centered care in pediatric emergency medicine: what parents want and value

Terri Byczkowski, PhD, MBA, Assistant Professor; Cincinnati Children’s Hospital Medical Center, Cincinnati, OH

no validated measure for family-centered care in pediatric emergency medicine exists. This lack of adequate measurement tools impedes progress in implementing family-centered care. The aims of this study were to identify, define, and develop questions to measure the dimensions of family-centered care important to parents.

patient engagement research project: engaging patients in the design and delivery of early intervention mental health services

Fiona Wilson, BA, CPRP, Coordinator, Peer Support Services/Project Team Member, Patient Engagement Project; St. Joseph’s Healthcare Hamilton, Hamilton, ON, Canada

Using market research methods, the Patient engagement Project has solicited the preferences and opinions of patients in designing an early Intervention Service to maximize the likelihood of patients making initial contact, attending their first appointment, and staying in the program.

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a collaborative approach in supporting health care providers to partner with patients and families as allies for Quality and safety through a patient service navigator program

Jessica Hansley, BSW, Patient Service Navigator; John Stewart, MD, Hospitalist/Medical Director; Erin Tallman, OTR/LMHA, Vice President/Director of Patient and Family Advocacy; Onslow Memorial Hospital, Jacksonville, NC

This poster will share our experiences of the Patient Services navigator Program as an effective way to improve quality, safety, and the patient and family experience in the hospital setting.

setting your compass for patient- and family-centered care rounds

Nettie Engels, MEd, EdS, Patient Advisor; Walter J. Moore, MD, Senior Associate Dean; Christine O’Meara, MA, MPH, Program Development Coordinator; Georgia Health Sciences University, Augusta, GA

An underutilized opportunity to advance quality and safety, teaching rounds can be transformed into interdisciplinary patient- and family-centered bedside rounds with patients and families as partners. This poster will share the planning process to implement Patient- and Family-Centered rounds in the adult care setting.

changing the culture of an intensive care unit through a patient and family advisory council

Keri Nasenbeny, RN, BSN, MHA, Associate Director, Critical Care; Desiree Wood, BA, RN, Staff Registered Nurse; University of Washington Medical Center, Seattle, WA

An ICU Patient and Family Advisory Council was established as a means to shift the culture of our units toward patient- and family-centered care by developing innovative programs that would improve patient, family, and staff satisfaction.

opinions of hospital staff regarding family presence (fp) at the bedside during resuscitation

Kathleen Shubitowski, MSN, RN, CEN, Clinical Nurse Specialist, Emergency Department; Barbara Tilden, MS, RN-BC, Manager, Clinical Professional Development and Magnet Recognition Program; South Shore Hospital, South Weymouth, MA

Baseline measures of opinions regarding presence of family during resuscitation were established prior to launching family presence initiative. Provider education was designed based on evidence in literature addressing barriers to implementation with the goal to increase the incidence of family presence without increasing anxiety of providers.

collaborative assessment and intervention in clinical care

Lisa Morrise, MA, Patient and Family Centered Care Coordinator; Katy Jo Stevens, MSW, LCSW, Administrative Director, Family Support Services; Primary Children’s Medical Center, Salt Lake City, UT

This poster will showcase a model for implementing patient- and family-centered care in a Social Work, Child Life, and music Therapy clinical setting. Areas covered include using rounds to promote patient and family collaboration, how to offer clinical options, and tools for tracking implementation of the model.

patient- and family-centered communication boards

Teresa Booth, BSN, RN, NE-BC; Baylor University Medical Center, Dallas, TX

The purpose of this poster is to describe how we successfully created and implemented patient- and family-centered communication boards placed in patient rooms in an acute care hospital to promote patient and health care team communication.

or family tour night

Cindy Boyd, RN, CPN(C), RNFA; Dawn Korol, RN, CPN(C), Team Leader; Keith Taylor, Chair, Patient- and Family-Centered Care PFA Committee; Thunder Bay Regional Health Sciences Centre, Thunder Bay, ON, Canada

one of the worst feelings in the world for a parent is to hand your child to a stranger and listen to them cry as the operating room doors close. We have found a way to make it better for all.

pediatric family-centered rounds: a 360 degree view

Pamela Griffin, Family Advisor on Staff/Founding Member Family Advisory Council; Barbara Hall, RN, Patient and Family Advocate/Chairperson, Patient- and Family-Centered Care Initiative; Tricia Willis, RN, Nursing Team Leader/Co-Chair Hopkins Children’s Center Family Centered Rounds Committee; Johns Hopkins Hospital, Baltimore, MD; Janet Serwint, MD, Professor, Pediatrics; Megan Tschudy, MD, Fellow, General Academic Pediatrics; Johns Hopkins School of Medicine, Baltimore, MD

Collaborative advisory groups were convened to explore the experiences of all participants in family-centered rounds (FCr). Key advisors were families, patients, physicians (attendings, residents), medical students, nurses, social workers, and case managers who participate in FCr.

discharging the medically complex infant from the nicu

Stephanie Adam, RN, BSN, Assistant Nurse Manager, NICU; Women & Infants Hospital, Providence, RI

Discharging medically complex nICU infants to home is a challenge for both providers and families. This poster will highlight the process of discharging these infants and their families ensuring that all team members, including families, are on the “same page.”

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the poke program: a voice and choice for children undergoing pokes and procedures

Sandra Merkel, MS, RN-BC, Clinical Nurse Specialist, Pediatric Acute Pain Service, University of Michigan School

of Nursing; Julie Piazza, MS, CCLS; University of Michigan Health System, Ann Arbor, MI

needlesticks are a routine part of care for children in medical settings. These procedures often cause children pain and anxiety. To increase comfort, a patient- and family-centered program was developed to provide choices to support children and parents through pokes and procedures.

scrapbooking, Journaling, and charting as a means for increasing information-sharing and reducing stress in the nicu

Jennifer Glick, PhD, NICU Family Advisor; University of Washington Medical Center, Seattle, WA

At the University of Washington medical Center neonatal Intensive Care Unit (UWmC nICU), parents are supplied a journal to help them keep track of medical information and to use to help reduce their stress levels.

reflections of the nicu family’s Journey beyond the first year

Gwynn Bissell, RGN, Education and Parent Lead; Leeds Teaching Hospitals; Yorkshire Neonatal Network, West Yorkshire; United Kingdom

The review of family experiences was developed to understand our family representative’s voyage of becoming ambassadors to the yorkshire neonatal network (ynn) and to understand the long-term nICU family graduate experiences.

proposed paediatric cardiac rehabilitation program

Joanne Telfer, BSc; Simon Fraser University, Burnaby, British Columbia; Lynne Telfer, RN; Saskatoon City Hospital, Saskatoon, SK, Canada

The Saskatchewan Union of nurses, the Saskatchewan Paediatric Cardiology Clinic, and the Adult Cardiac rehabilitation Program are collaborating to develop a paediatric Cardiac rehabilitation Program. This program is designed to address the physical and psychosocial needs of patients and their families, providing them with life-long skills that will enable them to independently manage their health with confidence and knowledge.

learnings from a national symposium on raising awareness of patient and family engagement and its benefit to the design of the canadian health care system

Wendy Medved, MHSc, Monitoring Lead, Health Council of Canada; Toronto, ON, Canada

This poster describes outcomes of the october 2011 Health Council of Canada symposium that explored the challenges and opportunities in patient engagement and the benefits of involving patients in the design of the Canadian health care system.

partnering to accelerate the rate of positive change: the collaborative experience of lauren’s hope foundation and the nicu at lehigh valley health network

Lorraine Dickey, MD, MBA, FAAP, Chief, Division of Neonatology, Lehigh Valley Health Network, Allentown, PA; Ann Flood, Lehigh Valley Health Network Patient Advisor Volunteer, Lauren’s Hope Foundation, Bath, PA

Philanthropists and health care leaders can leverage the donor’s story to accelerate the rate of positive rate of change within a health care system.

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registration information—If online registration is not an option, please fax form to: 301-652-0186the registration fee includes educational sessions, conference syllabus, refreshment breaks, continental breakfasts, welcome reception, and lunch tickets (m–t).

Early Bird—On or Before April 2, 2012 After April 2, 2012 Individuals .....................................................$945 Individuals....................................................$995 Teams of 4 or more (per person) .......$875 Teams of 4 or more (per person) .....$925 Patient & Family Leaders ......................$475 Patient & Family Leaders ....................$525 One Day Fee (select date) .............$400 Student ......................................... $595

One Day (select date) ................. $450 Monday, June 4 Tuesday, June 5 Wednesday, June 6

(Pinwheel Sponsors are eligible to receive a $50 discount, excluding One-Day fees)

cancellation policy ($50 cancellation fee before April 2, 2012)After April 2, 2012 ...........$200 cancellation fee After April 23, 2012 .................No RefundsPlease call the Institute if registering after April 30, 2012 for space availability. Conference may sell out early.

tax deductibilityExpenses for training, tuition, travel, lodging, and meals to maintain or improve professional skills may be TAX DEDUCTIBLE. Consult your tax advisor.

Please complete a separate form for each participant; reproduce as necessary. Type or print clearly. Registrations cannot be confirmed unless entire form is complete and full payment is received. You will receive a confirmation number once registered.

Participant’s Full Name ______________________________________ Preferred Name (Nickname) _____________________________

Degree(s) _____________________Email (required) __________________________________________________________________

Organization __________________________________________________________________________________________________

Position/Title _____________________________________________________________Department ___________________________

Preferred Mailing Address Office Home (if hospital address, please include department, unit location, mail code, etc.)

Complete Address ______________________________________________________________________________________________

City ___________________________________________________ State/Province _____________ Zip/Mail Code ______________

Daytime Phone __________________________________________ Fax __________________________________________________

Please indicate special needs: (i.e., dietary, audiovisual, mobility)

continuing education creditPlease note if you will be pursuing continuing education credits for:

Nurses Physicians Social Workers

Other (General Attendance Certificates will be available upon request)

total amount of payment (U.S. Funds) $ __________ Discount Code (if applicable) ____________

choose payment type

Check (Payable to Institute for Patient- and Family-Centered Care in U.S. funds)

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permission statement

I understand that my registration gives permission to the Institute for Patient- and Family-Centered Care to use my name and contact information in conference materials and to use my photograph(s)/video images, including but not limited to, the Institute’s media pages and website, newsletter, and other Institute promotional materials.

for further information, contact institute for patient- and family-centered care6917 Arlington Road, Suite 309, Bethesda, MD 20814

301-652-0281 • www.ipfcc.org

the 5th international conference on patient- and family-centered care

I have reviewed this cancellation policy.

easy online registration!!!Visit our website to register online: www.ipfcc.org

Teams of 4 or more, please list other team members: (attach list of name if more space is needed)

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eVenT reSerVATIonS(Please indicate the events you plan to attend to calculate final total.)

sunday, June 3______ Fort Belvoir Community Hospital Tour: $15

______ Children’s national medical Center Hospital Tour: $10

monday, June 4______ Special Luncheon with Jim Conway: $55

______ networking Dinner — medaterra Bistro: $35

tuesday, June 5______ Special Luncheon — Canadian models of

excellence: $55

______ networking Dinner — medaterra Bistro: $35



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yoUr SeSSIon PreFerenCeS please review the brochure and select your concurrent and major breakout session choices by indicating your preference next to the session number.

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Wednesday–9:30 am to 11:00 amconcurrent sessions (Pages 33-35)

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Wednesday–11:15 am to 12:30 pmconcurrent sessions (Page 35–37)

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Wednesday–2:00 pm to 3:15 pmconcurrent sessions (Page 37–39)

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Think Ahead!After the conference, make plans to take a team to michigan…

With Leadership Support from

Tuesday–11:30 am to 12:45 pmconcurrent sessions (Pages 24–26)

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Tuesday–2:15 pm to 3:45 pmconcurrent sessions (Pages 26–29)

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Wednesday–8:00 am to 9:15 ammaJor breakouts (Pages 31-32)

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Monday–10:45 am to 12:45 pmconcurrent sessions (Pages 17-19)

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Monday–2:15 pm to 3:30 pmmaJor breakouts (Pages 19–20)

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Monday–3:45 pm to 5:00 pmconcurrent sessions (Pages 20–21)

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become a pinwheel sponsor! call 301-652-0281 for information. www.ipfcc.org 51

2012 PinWheelSPonSorS

The Institute for Patient- and Family-Centered Care appreciates the support of our Pinwheel Sponsors for their commitment to advancing the understanding and practice of patient- and family-centered care. These recognized leaders continue to make a significant difference in promoting this philosophy of care, and thus serve as role models to us all.

PInWHeeL CHAmPIonAkron Children’s HospitalAkron, oh

Anne Arundel medical CenterAnnapolis, md

Baptist Health South FloridaCoral gables, fl

Baptist memorial Hospital for Womenmemphis, tn

Barnes-Jewish Hospitalst. louis, mo

Baylor Health Care Systemdallas, tX

Brigham and Women’s Hospitalboston, mA

Bronson Healthcare groupkalamazoo, mi

Children’s Cancer Hospital at The University of Texas m.D. Anderson Cancer Centerhouston, tX

Children’s Hospital Bostonboston, mA

Children’s Hospital ColoradoAurora, Co

Children’s Hospitals and Clinics of minnesotaminneapolis, mn

Children’s Hospital London Health Sciences Centrelondon, ontario, Canada

Children’s Hospital of michigandetroit, mi

Children’s Hospital of Pittsburgh of UPmCpittsburgh, pA

Children’s Hospital at ProvidenceAnchorage, Ak

Children’s medical Centerdallas, tX

Children’s mercy Hospitals and Clinicskansas City, mo

Children’s national medical Centerwashington, dC

Christiana Care Health Systemwilmington, de

Cincinnati Children’s medical CenterCincinnati, oh

Clear Lake regional medical Centerwebster, tX

Columbia St. mary’smilwaukee, wi

Covenant Children’s Hospitallubbock, tX

Dana-Farber Cancer Instituteboston, mA

Dignity Healthsan francisco, CA

east Tennessee Children’s Hospitalknoxville, tn

emory HealthcareAtlanta, gA

essentia Healthduluth, mn

Flagstaff medical Centerflagstaff, AZ

georgia Health Sciences Health SystemAugusta, gA

Hasbro Children’s Hospital/rhode Island Hospitalprovidence, ri

Hennepin County medical Centerminneapolis, mn

Holland Bloorview Kids rehabilitation Hospitaltoronto, ontario, Canada

Hurley medical Centerflint, mi

Joe Dimaggio Children’s Hospital at memorialhollywood, fl

Johns Hopkins Children’s Centerbaltimore, md

Kaiser Permanente—San Diegosan diego, CA

Kingston general Hospitalkingston, ontario, Canada

memorial Healthcare Systemhollywood, fl

methodist Le Bonheur Healthcarememphis, tn

miami Children’s Hospitalmiami, fl

missouri Foundation for Healthst. louis, mo

moffitt Cancer Centertampa, fl

monroe Carell Jr. Children’s Hospital at Vanderbiltnashville, tn

national Association of Children’s Hospitals and related Institutions (nACHrI)Alexandria, vA

national Partnerships for Women and Families/Campaign for Better Carewashington, dC

nationwide Children’s HospitalColumbus, oh

north Carolina Center for Hospital Quality and Patient SafetyCary, nC

onslow memorial HospitalJacksonville, nC

Poudre Valley Health Systemfort Collins, Co

riley Hospital for Children at Indiana University Healthindianapolis, in

San Jacinto methodist Hospitalbaytown, tX

Seattle Cancer Care Allianceseattle, wA

Seattle Children’sseattle, wA

South Shore Hospitalsouth weymouth, mA

St. Francis medical Centerlynwood, CA

St. Louis Children’s Hospitalst. louis, mo

St. Luke’s Children’s Hospitalboise, id

Stollery Children’s Hospitaledmonton, Alberta, Canada

The Children’s Hospital of Philadelphiaphiladelphia, pA

Thunder Bay regional Health Sciences Centrethunder bay, ontario, Canada

UAB Hospitalbirmingham, Al

UnC Health CareChapel hill, nC

University of Arizona Health networktucson, AZ

University of Louisville Hospitallouisville, ky

University of michigan Health SystemAnn Arbor, mi

University of minnesota medical Center, Fairviewminneapolis, mn

University of rochester medical Centerrochester, ny

University of Wisconsin Hospital and Clinicsmadison, wi

Vanderbilt University Hospitalnashville, tn

Vidant Healthgreenville, nC

Women and Infants Hospital of rhode Islandprovidence, ri

PInWHeeL SUPPorTerKasian Architecture Interior Designvancouver, british Columbia, Canada

KIgreen bay, wi

Poltronieri Tang & Associatesswarthmore, pA

* Commitments as of february 26, 2012

The pinwheel symbolizes the Institute’s commitment to enhance partnerships among health care providers, patients of all ages, and their families in hospitals and community settings. The pinwheel represents interaction and synergy. When all parts of the pinwheel work well together,

each part plays a vital role. This is our vision for patient- and family-centered systems of care.


InSTITUTe For PATIenT- AnD FAmILy-CenTereD CAre

6917 Arlington road Suite 309 Bethesda, maryland 20814

reTUrn SerVICe reQUeSTeD

The 5th International

conference on patient- and family-centered care

Partnerships for Quality and Safety

June 4–6, 2012

omni shoreham hotelwashington, dc

ABoUT THe InSTITUTe For PATIenT- AnD FAmILy-CenTereD CAreFounded as a non-profit organization, the Institute for Patient- and Family-Centered Care provides leadership to advance the understanding and practice of patient- and family-centered care. By promoting collaborative, empowering relationships among patients, families, and health care providers, the Institute facilitates patient- and family-centered change in health care settings serving individuals of all ages and their families.

The Institute serves as a resource for policy makers, administrators, program planners, service providers, educators, researchers, design professionals, and patient and family leaders for advancing the practice of patient- and family-centered care. It enhances the quality of health care through the development of print and audiovisual resources, information dissemination, policy and research initiatives, training, technical assistance, and consultation.

when care is patient- and family-centered:• People are treated with dignity and respect. Patient and family

knowledge, values, beliefs, and cultural backgrounds are incorporated into the planning and delivery of care.

• Health care providers communicate and share complete and unbiased information with patients and families in ways that are affirming and useful.

• Patients and families are supported and encouraged in participating in care and decision-making at the level they choose.

• Collaboration among patients, families, health care leaders, and providers occurs in policy and program development, implementation, and evaluation; facility design; and professional education, as well as in the delivery of care.

for more information about the institute, visit www.ipfcc.org.


The 5th International Conference of Patient- and Family-Centered Care Brochure

Documents

Transcript of The 5th International Conference of Patient- and Family-Centered Care Brochure