TERRI OTTOSEN

CONSUMER HEALTH COORDINATOR

NATIONAL NETWORK OF LIBRARIES OF MEDICINE, SOUTHEASTERN ATLANTIC REGION

The Canny Consumer:

Resources for Consumer

Health Decision-Making

Educational Objectives

Upon completion of the course, participants will be able to:

•Gain knowledge of the behavior of e-health consumers and acquire awareness of ethical, social and privacy issues and/or practices surrounding these tools

•Explore and identify new and existing consumer health e-tools available to be a better health care consumer

•Utilize resources presented to locate reliable, authoritative health information specific to navigating the health care system

•Acquire skills and knowledge to effectively identify and assess resources not covered in class

Agenda

Choosing a Physician, HospitalTalking to Your DoctorHealth InsuranceElectronic Health Records (EMRs) and Personal

Health Records (PHRs)Wellness and NutritionPatient SafetyHealth 2.0 ToolsEvaluation of Health Information on the WebFinding Evidence/ResearchGeneral Knowledge and FYI

Just for Fun

Test Your Health IQ

Choosing a Physician/Hospital

Directories:

American Medical Association Doctor Finder American Board of Medical Specialties Federation of State Medical Boards American Hospital Directory U.S. Dept. of Health and Human Services: Hospital Co

mpare HospitalLink Joint Commission Quality Check National Association for Home Care

Social Networking Tools: Rating Physicians

RateMDs.com

Vitals.com

DrScore.com

HealthGrades

Choosing a Physician/Hospital

Books/Reports

America’s Top Doctors – available on Google Books (2004) and more recent editions in libraries

AHA Guide to the Health Care Field – available in medical libraries and some larger public libraries

U.S. News and World Report: Best Hospitals Annual Ratings

Choosing a Physician/Hospital

Advice

Agency for Healthcare Research and Quality (AHRQ): Choosing a Doctor

Wikipedia: Difference Between MD and Osteopath

Talking to Your Doctor

Websites

MedlinePlus Health Topic: Talking with Your Doctor AskMe3 Harvard Guide: When You Visit Your Doctor NIA: Talking with Your Doctor: A Guide for Older Peop

le American College of Surgeons: Giving Your Informed

Consent

Talking to Your Doctor

Videos/Audio

Following the Clues: A Visit to the Doctor and Library

5 Things Women Must Share with their Doctor

Getting Involved for Better Health Care

Questions are the Answer

Issue of Health Literacy: American College of Physicians

Study Examples: Medication

Warning Label = Do Not Chew or Crush, Swallow Whole Misinterpretations = Chew it up, so it will dissolve Don’t swallow whole or you might choke

Warning Label = For External Use Only Misinterpretations = Medicine will make you feel

dizzy Use extreme caution in how you take it

Warning Label = Medication Should be Taken with Plenty of Water Misinterpretations = Don’t take when wet Don’t drink hot water

Health Insurance

Health Insurance Resource Center (insurance terms/glossary)

Questions and Answers About Health Insurance: AHRQ

Georgetown Univ. Health Policy Institute: Consumer Guide for Getting and Keeping Health Insurance (each state)

American Academy of Family Physicians: Health Insurance: Understanding What it Covers

Health Insurance

U.S. Dept. of Labor: Consumer Health Plan Info

National Association of Health Underwriters: Health Coverage Options Database

MedicareMedicaid and Uninsured: Medicare Part D

Health Insurance: Disputes and Appeals

Patient Advocate Foundation

Kaiser Family Foundation: Handling Health Plan Disputes

EMRs and PHRs

MLA/NLM Task Force Definition: Electronic personal health record (PHR) –

a private, secure application through which an individual may access, manage and share his health information. The PHR can include information that is entered by the consumer and/or data from other sources such as pharmacies, labs, and care providers. The PHR might or might not include information from the electronic health record (EHR) which is maintained by the health care provider and is not synonymous with the EHR. PHR sponsors include vendors who may or may not charge a fee, health care organizations such as hospitals, health insurance companies, or employers.

MLA/NLM Task Force

Assistance Statement: For quality health information, connect to National

Library of Medicine’s MedlinePlus for patients, families, and the public http://medlineplus.gov/, Resources for Health Consumers http://www.mlanet.org/resources/consumr_index.html or a Top 100 List ranked by medical librarians http://caphis.mlanet.org/consumer/.

Medical librarians can help you find other health information. To find a medical librarian near you, call 1-800-338-7657 or view http://www.nlm.nih.gov/medlineplus/libraries.html. Librarians will not provide personal medical advice, but they will find trusted information about drugs, conditions, procedures, lab tests and other health topics.

EMRs and PHRs

EMRs and PHRs

MedlinePlus Health Topic: Personal Medical Records

AHIMA: PHR Tools and ServicesAMIA: EMR National Initiative: Got EHR?LibGuide on EMR/PHR from NN/LM SE/A

Getting a Copy of Your Medical Records

Sample Request LetterMedical Records Privacy: Privacy Rights Clea

ringhouse (Federal Privacy Act of 1974)

File a Complaint with U.S. Dept. of Health and Human Services Office of Civil Rights

Some Prominent EHRs/PHRs

iHealthRecord

Google Health

Microsoft’s HealthVault

MyHealthFolders.com

MedlinePlus Connect

Wellness and Nutrition

MedlinePlus Health Check-up ChecklistScreenings: Healthfinder.govScreening Tests for Men (AHRQ)Screening Tests for WomenU.S.D.A. MyPyramidNutrition.gov American Dietetic Association: Eat Right

(with evidence and analysis)

Wellness and Nutrition

Department of Health and Human Services: Dietary Guidelines

Wellness Information Zone: Libraries for the Future and the Humana Foundation

“Real Men Wear Gowns”

Are You Body Literate?

Red Light Warning Signals

National Assessment of Adult Literacy, 2007 National Healthcare Disparities Report

Survey Information

Informed Consumer Guides

Dr. Clancy’s Guides

Patient Safety

Medical errors can occur anywhere in the health care system and can involve: Medicines Surgery Diagnosis Equipment Lab reports

Patient Safety Resources

20 Tips to Prevent Medical Errors

Patient Safety Primers and Patient Safety Network

Patient Safety Tools

VCU: Patient Safety Resources

Informed Health Care Decisions

Center for Information TherapyShared Decision-Making Aids (special issue of

journal: Medical Decision Making)Healthcare 411 PodcastsPatientInformPubMed Health

Health 2.0 Tools

Challenges:•Gaining consumer trust•Use of carrots or sticks in working with complementors?•Carrots or sticks to extract data from health care institutions?•Growing the overall size of the network•Adding useful applications•Bottom line: more similarities than differences but platforms are flexible and will evolve…

Health 2.0

MySpace: Juvenile DiabetesFlickr: Emergency RoomYouTube: Videos of Health Care ExperiencesSixUntilMe VlogDailyStrength.orgOrganizedWisdom.com

Health 2.0

MedpediaWikipedia Example: AsthmaeHealth InitiativePatients Like MeDavid Rothman’s list of medical wikis

Report: Expanding the Reach and Impact of Consumer e-Health Tools, June 2006

Evaluation of Health Websites

MedlinePlus Guide to Healthy Web SurfingEvaluating Internet Health Information:

Tutorial from NLMNCI: Is This News Story True?FTC/FDA: How to Spot False Claims

Evaluation of Health Websites

DISCERN Instrument: Evaluating Consumer Health Information

Full Frontal ScrutinyCenter for Medicine in the Public InterestCenter Report on Insta-Americans

Finding Evidence and Research

Critical Appraisal

Finding Evidence and Research

UNC: Critical AppraisalNIH: Research Timelines Fact SheetsNIH (OPASI):

The Research, Condition and Disease Categorization (RCDC), i.e. what NIH is funding, progress of diseases, conditions, etc.

Webwatch GuidelinesHealth RatingsHealthy People Library Project

Health Search Engines

KosmixHealthlineVimo – health insurance quotesHakiaHealia

Exercise

Thank You!

Terri Ottosentottosen@hshsl.umaryland.edu

800-338-7657