T owards Thalassemia Free India An initiative of Rotary Coimbatore Manchester

TOWARDS THALASSEMIA FREE INDIAAN INITIATIVE OF ROTARY COIMBATORE MANCHESTER

ROTARY COIMBATORE MANCHESTER

About Thalassemia

Thalassemia is a genetic blood disorder in which a patient cannot make enough Red Blood Cells and needs to be supplemented with RBC transfusions every 2-3 weeks to stay healthy and to survive.


Signs and symptomsIron overload: People with thalassemia can get an overload of iron in their bodies, either from the disease itself or from frequent blood transfusions. Too much iron can result in damage to the heart, liver and endocrine system, which includes glands that produce hormones that regulate processes throughout the body. The damage is characterized by excessive deposits of iron. Without adequate iron chelation therapy, almost all patients with beta-thalassemia will accumulate potentially fatal iron levels


http://en.wikipedia.org/wiki/Iron_overload

Signs and symptomsInfection: people with thalassemia have an increased risk of infection. This is especially true if the spleen has been removed.Bone deformities: Thalassemia can make the bone

marrow expand, which causes bones to widen. This can result in abnormal bone structure, especially in the face and skull. Bone marrow expansion also makes bones thin and

brittle, increasing the risk of broken bones.


Signs and symptoms Enlarged spleen: the spleen aids in fighting infection

and filters unwanted material, such as old or damaged blood cells. Thalassemia is often accompanied by the destruction of a large number of red blood cells and the task of removing these cells causes the spleen to enlarge. Splenomegaly can make anemia worse, and it can reduce the life of transfused red blood cells. Severe enlargement of the spleen may necessitate its removal.

Slowed growth rates: anemia can cause a child's growth to slow. Puberty also may be delayed in children with thalassemia.

Heart problems: Such as congestive heart failure and abnormal heart rhythms (arrhythmias), may be associated with severe thalassemia


http://en.wikipedia.org/wiki/Splenomegaly

http://en.wikipedia.org/wiki/Anemia

THALASSEMIA IN INDIA The most common genetic blood disease in the

world, thalassemia affects some 7 percent of the world's population.

An estimated 3.9 percent of India's population, or 1 in 25 people, carries the gene for thalassemia...

In India, around 80 to 90 percent of the 10,000 babies born each year with the disease die from it....

The World Health Organization has predicted that one million people will have the disease there in the next 40 years.


THALASSEMIA IN TAMILNADU

On an average, 5000 children are born with Thalassemia every year in the state of Tamil Nadu

In Nilgiri District about 300 children of Tribal Origin are affected by this disease who are not afford to treatments due to poverty.


Treatment Thalassemia major patients require regular

blood transfusions and re moval of excess iron by subcutaneous infusion of desferr ioxamine.

Children with Thalasemia are subjected to average 200 hours of needle pain and 54 pints of blood transfusion per annum.

A permanent Cure for Thalassemia is BONE MARROW TRANSPLANT which cost Rs.12 Lakhs to Rs.24 Lakhs which is not possible to the poor to take the transplant and further it is very difficult to get a matching donor.


Costs and implicationsTreating patients with

Thalassemia is one of the most challenging tasks for the most of the Child care hospitals in India, as it requires approximately Rs.1,10,000 (Rupees One Lakhs Ten Thousand) per Annum for treatment alone.


Our Club’s Initiative Our Club inaugurated the Preventive Program

Project Siranjeevi on 10th September 2013 at Santro Hall Hotel Vijay Park in by distributing Blood Transfusion filters to poor patients.

We are conducting various awareness programs and providing Blood Transfusion filters to 15 Thalassemia affected children costing Rs.16500/- every month.

We have contributed 138 filters costing Rs.84400/- till date.


Our Club’s Initiative We have conducted Thalassemia Awareness

Camp at NAWA at Nilgiri District for the benefits of Tribals.


An Appeal Eradication and treatment is continuous

process until elimination, We are planning to medical Camps to create awareness and treat the Thalassemia affected children of Nilgiri Distict which requires huge funds. We need an amount of Rs.1,10,000 per person and for taking care of theses 42 children we need Rs.46,20,000. Hence we seek your kind hearted liberal contribution of blood transfusion filters and .


Lets Eradicate As Rotary Club contributed towards

elimination of Polio in India Lets work together for eradication of Thalassemia in India.

We appeal kind hearted to support this nobel cause and relieve them from the pain of the deadly disease


Secretariat at:69-1 LML Colony, 3rd Street,

Ammankulam Road, PappanaickenpalayamCoimbatore -641037

Ph: 98430 96789

THANK YOU


T owards Thalassemia Free India An initiative of Rotary Coimbatore Manchester

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