Newsletter  Spring/Summer  2013  Volume  24,  Issue  1  

Maya’s  Music  Therapy  Fund  Celebrates  25  Years  of  Service!  

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Twenty-‐five  years   is   a   long   time   for  any  organization  to  grow  and  thrive,  especially   when   it   is   a   small   non-‐profit  which  provides  ongoing  music  therapy   services   to   people   with  developmental   disabilities.   Still,  that’s  just  what  Maya’s  has  done.    The   photo   above   was   taken   at   this  year’s  Spring  Music  Festival,  themed  “Everything  is  Beautiful.”  We  think  it  captures   the   vibrancy,   joy,   and  personal   success   that   our   programs  foster   in  our  participants.  Each  year  the   Festival   has   been   a   wonderful  day  for  Maya’s  clients  —  a  chance  to  experience   all   the   pleasure   and  excitement   of   performing   on   stage  for   a   live   audience,   an   event   they  look   forward   to   all   year   long.   It   is  also   an   opportunity   for   friends,  family,   and   supporters   to   celebrate  the   participants’   musical   talents,   as  well  as  the  growth  and  development  

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they   have   experienced   through  music  therapy.    Just  as  our  organization  has  evolved  over  this  quarter  century,  so,  too,  has  the  Festival.   In  the  early  days   it  was  more   street   fair   than   performance;  with   clowns,   cotton   candy,   dancing,  games,   make-‐up,   streamers,   many  outside  musicians…even  a  visit  from  Wavy   Gravy.   It   was   also   our   only  fund-‐raiser.    These  days,  we  see  the  Festival  as  an  important   part   of   our   program   that  showcases   the   unique   abilities   and  achievements   of   our   participants.  Our  aim  is  for  the  Festival  to  create  a  nurturing   environment   for   them   to  truly  do  their  best,  all  while  having  a  great  time!    For   its   entire   existence,   though,   the  Festival   has   remained   a   focus   for  

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remembering  Maya  Cooper.  Maya’s  life  and   joy   in  music   were   the   inspiration  for   the   founding   of   Maya’s   Music  Therapy  Fund,  established  after  Maya’s  death   in  1988.  The  Fund  offers  people  with  disabilities  a   low-‐cost,   or  no-‐cost,  opportunity   to   experience   the   life-‐enriching   benefits   of   music   therapy.  We   currently   provide   weekly   group  and   individual   therapy   sessions   to  more   than   100   people   ranging   in   age  from  1  to  89  years  old  (we  started  out  serving  about  15  people).  

❁ Please   consider   making   a   tax-‐deductible  donation  to  Maya’s.  We  also  invite   you   to   visit   our   website   at  www.mayasmusic.org   for  more  photos  and   information.   With   your   help,   and  that  of  all  of  our  friends,  we  will  be  able  to  continue  our  work  of  bringing  music  therapy   to   those   who   benefit   from   it  the  most.  

           Symphony  Our   24th   Annual   Spring  Music  Festival  took  place  on  March   10,   2013.   Many   of  our   participants   performed  on   stage,   in   front   of   an  enthusiastic   audience   of  supporters,   friends,   and  family  members.  

MMTF  Calendar   Every  1st  and  3rd  Thursday  of  the  month:  group  music  therapy  at  our  Ed  Roberts  Campus  location  in  Berkeley.   Coming  on  a  Sunday  afternoon  in  September:  our  annual  Fall  Fundraising  Party,  featuring  the  auction  of  

restaurant  meals,  concerts,  vacation  homes,  and  more!  Invitations  are  generally  mailed  only  to  local  donors,  but  of  course  all  are  welcome.  

March  2014:  the  25th  Maya’s  Spring  Music  Festival!  We  are  celebrating  a  major  milestone,  our  25th  anniversary!  Some  of  our  participants  have  performed  at  every  one  of  our  annual  Festivals!  

  Symphony  

 

Many  Thanks  to  our  2012-‐2013  Donors  

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Denny  Abrams  Sadashiv  &  Rekha  Adiga  Ken  &  Misako  Akimoto  Aileen  Alfandary  &  Stephen  Rosenbaum  Michael  Alvarez,  MD  &  Marina  Alvarez  Randall  Ammon,  MD  Marilla  &  Ivan  Argüelles  Matthew  &  Jennifer  Arnold  Robert  &  Judith  Bacskai  Judy  Bain  Catherine  Baker  Heather  Bakke  Ronald  Berman,  MD  &  Sibyl  Marcus  Lisa  &  Deirdre  Bernard-‐Pearl  Diane  &  Edwin  Bernbaum  Terry  Blumenfeld  Sandra  &  John  Boeschen  Ursula  Boynton,  MD  Arthur  &  Sheila  Braufman  Gregory  Broderick-‐Villa,  MD  Hope  Bryson  Jeffrey  Burack,  MD  &  Shelly  D.  Ball  Brian  Candell,  MD  John  &  Catherine  Case  Michael  Cassidy,  MD  &  Andrea  Cassidy  Phyllis  Cedars,  MD  Ryszard  Chetkowski,  MD  Sister  Rosemary  Chinnici  Michael  Cohn,  MD  &  Sarah  Stein  Buni  Cooper  Jennifer  &  Colin  Cooper  ~  The  Cooper  Law  Office  Joanna  Cooper,  MD  &  Charlie  Pollack,  MD  Michael  Cooper,  MD  &  Theresa  Cooper  Mario  Corona,  MD  &  Margo  Corona  Steven  Crabiel  Bruce  Cree,  MD  Rakesh  Donthineni,  MD  Cassandra  Duggan  Malcolm  &  Pearl  Duncan  Ann  Duveneck  &  Thomas  Panas  Peter  &  Anne  Dybwad  Michael  Ehrenberg  &  Stephen  Pollack  Selena  W.  Ellis,  MD  Nicholas  Lowell  Enlow  Janet  Ewing,  MD  Pedram  Fateih,  MD  Robert  Fox,  MD  Samuel  &  Ann  Freeman  Anna  Frick  Marylyn  Fye  Erik  Gaensler,  MD  &  Shelly  Marks,  MD  Sandra  Garfinkel  Mark  Geliebter,  MD  &  Robin  Keller  Cynthia  Gibson-‐Horn  Lori  Gitter  Margaret  Gold  Danny  &  Hilary  Goldstine  Howard  Gordon  &  Jeremy  Jacobs  Gordon  

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Lloyd  &  Rochelle  Gordon  Charles  Haas  &  B.K.  Moran  Peter  &  Susan  Haikalis  Christopher  Hall  Nicola  Hanchock,  MD  &  James  Moore  Satoshi  &  Masako  Hane  Sara  Harris  Ching-‐Yee  Anliza  Ho  Lula  Hodges  de  la  Cruz  Christa  Hogan  Lucinda  Hopewell  Nancy  Hughes  Pamela  Hunt  Richard  &  Marie  Imes  Steven  Isono,  MD  Dolores  Jackson  &  Alexis  Kane  Lynn  Jehle  Alison  Jordan  Karen  &  Scott  Kalkowski  Brian  Kaye,  MD  &  Fran  Tannenbaum  Kaye  Andrew  Kayser,  MD  &  Mary  Ann  Kayser  Victoria  Kelman  &  Rabbi  Stuart  Kelman  Diana  Kienle  Jeanne  King  Jonathan  Allan  Klein  &  Tiffany  Welch  Klein  Robert  Knight  &  Donatella  Scabini  Susan  Kramer,  LCSW  Charles  &  Sharon  Krueger  Ted  &  Carole  Krumland  Pamela  Laesch  &  Gene  Trinks  Willard  &  Mary  Laesch  Annie  Lai  &  Wilfred  Tang  Kent  &  Ann  Larson  Barbara  Lawson  Valerie  M.  Lawson  Peter  &  Evelyn  Lee  Joan  &  Bruce  Linton  Aryn  Linton  Earnhardt  Brett  &  Rachel  Livingstone  Richard  &  Anne  Long  Andrew  Luchansky  &  Elisabeth  Reed  Robert  &  Elfleda  Mackie  Jillian  Dougal  MacKinnon,  MD  Albert  L.  Magid  Gary  &  Lois  Marcus  David  Marinoff  Mathias  Masem,  MD  

Participant  Profile:  David  David   has   been   a   long-‐time   participant   in   music   therapy.   He   began  working  with  Titia  back  when  he  was  still  in  high  school  and  continued  to  grow  and  benefit  from  group  and  individual  music  therapy  sessions  throughout   his   college   years.   Now   a   member   of   the   DPRC   Adult  Morning   Program,  David   is  much  more   verbal   than  he  used   to  be.   In  music  therapy,  he  is  finishing  lyric  lines  by  saying  the  last  word  of  each  sentence.   This   is   carrying   over   to   his   daily   life,   where   David   is  increasingly  using  more  words  to  express  his  thoughts  and  needs.  

David  has  played  many   instruments  over   the  years,  and   in   this  photo  he  is  seen  playing  on  the  xylophone  at  this  year’s  Maya’s  Spring  Music  Festival.  David  is  becoming  a  much  more  independent  young  man,  and  he   enjoys   both   playing   on   instruments   as  well   as   listening   to  music.  Depending  on  his  needs,   listening   to  music   can  be   relaxing   for  David,  and  yet   at  other  times  a   stimulating  experience.  He   is  a  big   fan  of   the  Beatles,  Bruce  Springsteen,  the  Backstreet  Boys,  and  many  others.  

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David  &  Diane  Matsumoto  Camilla  &  Timothy  McCalmont  John  McHugh  &  Laura  Miller  Nancy  McIntyre  Joann  &  Brian  McNutt  Guy  Micco  Richard  &  Marlene  Millikan  Matthew  Mitchell  Hilary  Modell,  NP  Leslie  &  Randall  Morelli  Edith  &  Walter  Nagel  Denise  Navellier,  RN  &  Scott  McCormick  Danute  Nitecki  Melanie  Nobello  Christopher  &  Victoria  Nolan  Jesse  &  Paige  Nues  Frank  L.  Oaks  &  Marianne  Hane  Richard  &  Judith  Oken  Rickey  Ono  Dayna  Orange  &  Joshua  Kuluva,  MD  Harriet  Orange  David  &  Deanna  Pankow  Opher  Peled  &  Darya  Druch  Joel  Piser,  MD  &  Jing  W.  Hsieh  David  &  Betty  Pollack  Leonard  Price,  PhD  &  Katina  Price  Jacqueline  Richter,  MD  Barbara  Ridley  &  Judy  Kerr  Lisa  Rubens  Deborah  Droker  Sandberg  Samuel  Santoro,  MD  &  June  Santoro  Anna  Sapugay,  MD  &  Bruce  Whitten  John  Schafer  Jennifer  Sherman  James  &  Marjorie  Shultz  Stanley  &  Pearl  Siegel  Gary  &  Susanne  Sjöberg  Carl  &  Rocio  Smith  Joanna  Smith  Michael  Reid  Smith  Anthony  Somkin,  MD  Drs.  Lionel,  Andrew,  &  Robert  Sorenson  Harold  &  Bronna  Steiman  Julie  &  Michael  Steinbaugh  Neil  &  Lisa  Stollman  Jeffrey  N.  Stoneberg,  DO  Gondica  Strijkers  

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Joan  Sullivan  Gordon  Tang  &  Melissa  Arciaga  Beatrice  &  Chris  Teng  Bernadette  Thomas  Mark  Thrasher  Donna  D.  Tigno,  MD  &  Francois  J.  Habchi  Elaine  Tombari  Rick  Trautner,  MD  &  Tracy  Flanagan  Marsha  Treadwell  Susan  &  Robert  Trebino  Carol  Turner  Arnie  Turrentine  &  Sandra  Francisco  Phyllis  van  Kranenburgh  Paul  Vojta  Edward  Waller,  MD  &  Susan  Waller  Joanna  Weinberg  &  David  Levine  Juliet  Welch  Mark  Wesson  Carl  &  Ellen  Whitaker  June  Whitaker  Mary  Wildavsky  Sara  Wildavsky  Christian  L.  Williams  Naomi  Wolman  Edward  &  Sandra  Zaritt  Neil  Zelin  &  Carol  Murota  Philip  L.  Zemansky,  MD  &  Barbara  Zemansky        

Frank  A.  Campini  Foundation  Friends  of  Disabled  Children  Rex  Foundation        

Joseph  Chernick  &  Caprice  Haverti  ~        In  memory  of  Morgan  and  Maya    

Susan  Feigon  ~        In  honor  of  the  life  of  Margaret  Francisco    

Barbara  &  Carl  Griffith  ~        In  memory  of  Margaret  Francisco    

Neil  &  Leah  Kuluva  ~        In  honor  of  Josh,  Dayna,  and  Lev    

Brian  Laird  ~        In  memoriam  Laurence  Clark  Powell    

Jane  North  Lyon  &  Lois  North  ~        In  memory  of  Margaret  Francisco    

Tricia  Povah  ~        In  honor  of  Pam  Laesch    

Elizabeth  Ramberg  ~        In  loving  memory  of  Dennis  Dale  Kauffman    

Marilynn  J.  Sanford  ~        In  memory  of  Tessie  Eleanore  Must  

  2013,  Volume  24,  Issue  1  

 

Ongoing  Activities  

One  morning  each  week  we  provide  services  at  CAP-‐Hilltop   in   Richmond.   Several   of   their  participants  receive  individual  music  therapy.    

Two   afternoons   a   week   are   spent   with   the  participants  of  the  Disabled  People’s  Recreation  Center   in   Richmond.   The   young   people   who  attend   that   program   after   school   receive   both  individual  and  group  music  therapy.    

Three   mornings   we   provide   group   music  therapy  —  one  morning  every  other  week  at  the  Ed  Roberts   Campus   in   Berkeley,   the   other   two  both   weekly   at   the   DPRC   site   in   Richmond.  Participants   come   from   various   day   programs  and   organizations,   such   as   Consensus,   DPRC  Adult   Morning   Program,   East   Bay   Innovations,  Toolworks,   and   also   several   clients   who   have  privately  contacted  us.    

One   afternoon   each   month   we   provide  individual   music   therapy   at   Katie’s   Clinic   for  girls  with  Rett  syndrome,  a  monthly  clinic  at  the  Walnut   Creek   location   of   Children’s   Hospital  Oakland.    

And   of   course   we   continue   to   respond   to  requests  for  information  coming  in  through  our  website.   Over   the   years,   many   high-‐school   and  college   students,   fellow   music   therapists,   and  others  who  are  interested  have  come  to  observe  sessions  and  talk  with  our  music  therapist.  

In  Memoriam  Dorothy  Brooks  Dorothy  performed  at  the  past  15  of  our  Spring  Music  Festivals,  always  eager  to  try  out  a  new   instrument  or  a  different  way  of  playing.  This  year  she  chose  to  play  on  the  cabasa  and  also  use  the  bells.  Dorothy  is  greatly  missed  by  her  dear  family,  and  by  all  her  friends  at  CAP-‐Hilltop  and  Maya’s.  

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The   use   of   current   technology  has   become   integral   to   our  music   therapy   sessions   at  Maya’s.   We   are   able   to   serve  many  more  participants   and  we  can   customize   the   therapy   for  each   individual.   We   have   seen  that  these  changes  are  extremely  welcome  to  our  clients.  Here  are  some  examples:  •   We   use   the   iPad   to   play  prerecorded   music,   and  continually   add   new   songs   that  clients   are   asking   for.   Some   are  downloaded  from  iTunes,  others  are  digitalized   from  old  records,  and   sometimes   we   have   to   find  them   on   YouTube   and   convert  them  for  use  in  iTunes.  •   We   also   use   the   iPad   for  communication   purposes.   The  app   iComm   allows   non-‐verbal  

Technology  Update  

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people   who   do   have   some   use   of  their   hands   to   make   choices  regarding  what  song  they  want  to  sing,   which   music   they   want   to  hear,  or  to  say  basic  things  such  as  hello  and  good-‐bye.  •   The   music   apps   on   the   iPad  allow   people   who   have   very  limited   mobility   and   strength   to  play   along   using   the   harp,   the  xylophone   (Katie,   above   left),   the  piano,  or  many  other   instruments  that  the  various  iPad  apps  offer.  •  The  GarageBand  app  on  the  iPad  is   a   great   way   to   create   rhythms  and   accompaniments,   and   record  your   own   songs   (Chikao,   below  left,  is  listening  to  his  latest  song).  •   One   of   our   clients   has   very  eclectic   taste   in   music.   He  particularly   likes   classical   music,  as   well   as   electronic   music.   We  have   recorded   and   downloaded  some   music   that   combines   those  two   things;   he   loves   these  electronic   versions   of   various  classical  compositions!  •   For   many   years   we   brought   a  bulky   and   heavy   monitor   to  sessions,  but  now  we  have  a  small,  light-‐weight  speaker  that  connects  wirelessly   with   the   iPad.   This  allows   us   to   place   the   speaker  anywhere   in   the   room,   or   on   the  tray  of  someone’s  wheelchair.  It  is  very  satisfying  for  clients  to  move  around   the   room   and   “bring”   the  music  to  their  friends.  •   At   this   year’s   Festival,   Laura  (pictured   above   right)   used   the  laptop   and   Adaptive   Use   Musical  Instruments.   This   state-‐of-‐the-‐art  computer  program  allowed  her  to  guide  the  cursor  on  the  screen  just  by  moving  her  head,  thus  enabling  

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her   to   create   drum   and   cowbell  sounds  entirely  hands-‐free.  All  of  this  equipment  and  software,  as   well   as   various   online   services,  have   enhanced   our   sessions  tremendously.  

 

 

 

Symphony   2013,  Volume  24,  Issue  1  

History  and  Mission  Statement  

Maya’s   Music   Therapy   Fund   (“Maya’s”)   develops   and   sustains   music   therapy  programs  for  people  with  developmental  disabilities.  These  programs  improve  participants’   physical,   social,   and   cognitive   skills,   while   enhancing   their  emotional  well-‐being.  

Maya’s  was   established   in  memory   of  Maya  Cooper,   a   severely   disabled,   non-‐verbal  child  who  used  music  to  communicate  most  fully  with  the  world  around  her.   After   her   death   in   1988,   her   parents   started   the   non-‐profit   fund   in   her  name,  so  that  other  people  with  disabilities  —  particularly  those  who  could  not  otherwise  afford  it  —  might  experience  the  life-‐enriching  benefits  of  group  and  individual  music  therapy.  

Maya’s  offers  unique  music  therapy  programs  for  people  with  disabilities  such  as   cerebral   palsy,   autism,   Down   syndrome,   hearing   and   vision   impairment,  ADHD,   Rett   syndrome,   and   others.   Our   collaborative   partner   agencies   include  CAP-‐Hilltop,  the  City  of  Richmond  (at  the  Disabled  People’s  Recreation  Center),  Consensus,  East  Bay  Innovations,  Inclusive  Community  Resources,  Katie’s  Clinic  at  Children’s  Hospital  Oakland,  and  Toolworks.  

Maya’s  Music  Therapy  Fund  1731  Carleton  Street    Berkeley    CA  94703    (510)  845-‐6693    info@mayasmusic.org    www.mayasmusic.org  Tax  ID  #  94-‐3232408  

Maya’s  Music  Therapy  Fund  1731  Carleton  Street  Berkeley,  CA  94703  

www.mayasmusic.org  

 

 

 Board  of  Directors    

Joanna  Cooper,  MD  Chairperson    

Sandra  Francisco    Lynn  Jehle    

Pamela  Laesch,  MD    

Charlie  Pollack,  MD  Treasurer    Stephen  Pollack    

Ellen  Whitaker  Executive  Director      

Music  Therapist    

Titia  Martin-‐Nagel,  MT-‐BC