Surveillance & Tracking for EHDDI in WA Debra Lochner Doyle, MS, CGC February 2003.
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Transcript of Surveillance & Tracking for EHDDI in WA Debra Lochner Doyle, MS, CGC February 2003.
Surveillance & Tracking for EHDDI in WA
Debra Lochner Doyle, MS, CGC
February 2003
~80,000 births per year
70 birthing hospitals
Project 83% infants screened in 2003
Building the system…
• Three components of NBS - Phase I and Phase II
• Focus on ease of reporting
• Complete system with built in assurances
How is the EHDDI system populated?
• Utilizes data already collected by Newborn Dried Blood Spot Screening Program.– Demographics– Physician/Facility Directories– Birth Rosters
• Revised blood spot card includes additional form to collect hearing results.
• Developed separate re-screen card.
Washington NBS Form
Slide created by National Newborn Screening and Genetics Resource Center
Washington NBS FormHearing Information
Results Can be Placed in Hospital Chart – Peel off Tape on Back
For Risk Factors, See
Next slideSlide created by National Newborn Screening and Genetics Resource Center
Washington NBS FormHearing Information (Back of Form)
Slide created by National Newborn Screening and Genetics Resource Center
EHDDI Re-Screen Form
2087836
Enter EHDDI ID # from Infant’s Initial Pink Card
Back of Re-Screen Form
Pilot Hospitals-dried blood screen
-hearing results-birth rosters
EHDDI SYSTEM
DOH NBS-process all cards
Specialists
Patient
QA Reports
EHDDI Data Flow
WEDSS
Primary Care Provider
EHDDI Main Screen
EHDDI Patient Screen
EHDDI Letter Generation
Future Plans
• Pilot Phase II until January 2004
• Revise system as necessary
• Open for statewide implementation
• If no mandate – hospitals would subscribe to service.
Summary• Developed a T&S system that allows us to:
– Identify newborns who have not been screened– Track infants with risk factors– Track infants needing Dx Confirmation
• Now piloting Phase II that will allow us to:– Ensure infants are referred for Dx Conf.– Identify infants with hearing loss– Ensure families are referred for Early Intervention