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    Successful HIV Prevention Programming for PLWHA

    Edwin Ramos-Soto March 31st, 2009

    Positive Interventions:

    Vital to HIV Prevention

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    Dedicated to:

    The HIV-Positive Individuals

    Of Orange County, CAWho Throughout The Epidemic

    Have Taken Extraordinary Steps

    To Protect Others, thereby

    Preventing The Spread of HIV

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    Presentation Summary

    Positive Preventions Backdrop The Logic of Prevention with PLWHA

    Community Needs Assessment

    OCHCA Community Needs AssessmentASF-PLWHA Community Needs Assessment

    Successful prevention program with (MSM) PLWHA Mpowerment EBI adaptation for (MSM) PLWHAVarying Levels of Prevention Interventions Conducted

    Measure of success Process/Outcome Evaluation Systematic Steps, Best Measure of Success

    Closing Thoughts

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    Objectives

    At the completion of this session scholars will:

    Explain how the needs of PLWHA were

    assessedDescribe how AIDS Services Foundation

    (ASF) has conducted a successful program

    with PLWHADiscuss how the success of ASF HIV

    prevention program with PLWHA is

    measured

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    Positive PreventionsBackdrop

    Prevention efforts focused on HIV-negative

    Emphasis on care/support services to PLWHA

    Many factors point to the need for

    interventions designed for PLWHA

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    Positive PreventionsBackdrop - Factors

    Need for interventions for PLWHA

    Increasing number of PLWHA

    High rates of infection in communities ofcolor; resurgence of HIV in somepopulations

    The HAART impact

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    Positive PreventionsBackdrop - Factors

    Maintenance of low-risk behaviorchallenge

    HIV transmission prevention environmentis increasingly complex

    Increasing number of PLWHA are living

    and coping well with disease challengesOccasional lapse into unsafe behaviors

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    Positive PreventionsBackdrop - Factors

    Prevention burnout

    Depressive symptoms and increased rates ofunprotected sex correlation

    HIV treatment optimism

    Reinfection/Superinfection confusion

    Viral undetectability = reduced infectivity

    confusion

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    Positive PreventionsLogic of Preventions for PLWHA

    New infections involve an HIV-infectedindividual

    New infection can be prevented byintensive efforts directed toward populationcapable of transmission

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    Positive PreventionsLogic of Preventions for PLWHA

    Prevention efforts directed toward PLWHAneed to:

    Encourage healthy sense of responsibilitywithout assigning blame

    Support a lifestyle that includes a fulfilling sexlife

    Support the enhance of interpersonal andcommunity relationships

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    Community Needs AssessmentOrange County Health Care Agency (OCHCA)

    Objectives:

    Describe the risk and/or protective behaviors ofindividuals not receiving HIV preventions services

    Describe knowledge and perceptions regardingHIV and HIV risk

    Determine HIV prevention needs, met/unmet

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    Community Needs AssessmentOrange County Health Care Agency (OCHCA)

    Needs Assessment Outcomes Focus:

    Demographics

    HIV knowledgeDrug risk behaviors

    Sexual risk behaviors

    Perceptions about HIV

    Barriers to service utilization

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    Community Needs AssessmentOrange County Health Care Agency (OCHCA)

    Needs Assessment Results:

    Particular behaviors pose risk for HIV

    MSM prioritized as high-risk behavioral riskgroup

    Continued misperception of HIVtransmission

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    Community Needs AssessmentOrange County Health Care Agency (OCHCA)

    Needs Assessment Results:

    Inconsistent condom use with casualpartners

    Drug-use prevalence contributing toincreased high-risk behaviors

    Perceived risks differences depending onacculturation levels

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    Community Needs AssessmentOCHCA PLWHA Needs Assessment

    Prevention efforts for PLWHA need be tailoredspecifically to their needs:

    HIV treatment education workshops

    Community-building activities for specific groups

    General health and wellness support delivered inindividual or small-group settings

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    Community Needs AssessmentOCHCA PLWHA Needs Assessment

    Substance abuse service sensitive to PLWHA need

    Info and support for sero-discordant couples

    Greater availability of mental health services

    Peer-led support and information groups

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    Community Needs AssessmentOCHCA PLWHA Needs Assessment

    Skills-building workshops for positives

    Individual and/or group counseling focused oncontextual factors that influence risk

    Interventions that focus on relationship dynamics

    Peer and professional support in dealing withsexual compulsivity/sex addiction

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    Community Needs AssessmentAIDS Services Foundation PLWHA Needs Assessment

    Objectives:

    Establish appropriate goals, objectives,

    activities

    Define purpose and scope

    Identify social and behavioral attitudes

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    Community Needs AssessmentAIDS Services Foundation PLWHA Needs Assessment

    Objectives:

    Identify HIV transmission risk/protectivefactors

    Identify PLWHA perceptions of risk

    Establish basis for evaluation

    Establish community-based support

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    Community Needs AssessmentAIDS Services Foundation PLWHA Needs Assessment

    Sources:

    PLWHA, Consumers and Gate Keepers

    Agency staff

    Community partners

    OCHCA (local DOH)

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    Community Needs AssessmentAIDS Services Foundation PLWHA Needs Assessment

    Additional data as resource:

    Socioeconomic and demographic status; Currentstatistics and trends involving HIV/STD

    Existing gaps in HIV programs and services

    Social indicators that indicate HIV/STD prevalence

    Identification of program/resources for PLWHA

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    Community Needs AssessmentAIDS Services Foundation PLWHA Needs Assessment

    Data collection strategies:

    Informal

    Frequent conversations with colleagues andclients

    FormalStrategic Planning meetings

    Focus Groups

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    Community Needs AssessmentAIDS Services Foundation PLWHA Needs Assessment

    Results:

    Many HIV-positive persons live with

    multiple diagnoses

    Health care adherence and HIV

    transmission prevention are not primaryconcern

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    Community Needs AssessmentAIDS Services Foundation PLWHA Needs Assessment

    Results:

    High-risk behaviors are not exclusive to

    those who struggle with poverty, stigma,mental illness

    Some risk behaviors transcend class,economic status and demographic group

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    Community Needs AssessmentAIDS Services Foundation PLWHA Needs Assessment

    A comprehensive approach to prevention withpositives must include strategies intervene withhigh-risk behaviors

    Include strategies for engaging out-of-care HIV-infected persons into care

    Reality of limited resources means communitiescan not provide entire range of possibleinterventions

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    Community Needs AssessmentAIDS Services Foundation PLWHA Needs Assessment

    Factors that place any HIV-positive personat risk for transmitting the virus are often

    highly individualized

    Beyond simply identifying risk behaviors, it

    is important to gain understanding of theplace these behaviors hold within thecontext of each individuals life

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    Community Needs AssessmentASF Characteristics of Effective Programs

    Structuring programs around the specificculture, behaviors and circumstances of

    PLWHA

    Emphasizing incremental, achievable steps

    towards behavior change

    Providing multiple contacts with clients

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    Community Needs AssessmentASF Characteristics of Effective Programs

    Structuring interventions to provide bothindividual and small-group work

    Using harm reduction based approaches

    Maintaining a dynamic balance betweenpeer support and use of professional staff

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    Community Needs AssessmentASF Characteristics of Effective Programs

    Focusing on client-defined motivators as a basisfor creating change

    Using behavioral objectives that are specific andachievable

    Factor effects of multiple diagnoses on motivationand behavior change

    Include relapse prevention

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    Successful prevention programASF Mpowerment EBI adaptation for (MSM) PLWHA

    Formative research led to the adaptation andimplementation of a Mpowerment EBI for (MSM)PLWHA

    Mpowerment is a peer-led community levelintervention

    Through Mpowerment large numbers of PLWHAare reached in a cost-effective manner because itoperates on the community level

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    Successful prevention programASF Mpowerment EBI adaptation for (MSM) PLWHA

    Mpowerment is designed to be tailored tothe characteristics of every community

    Based on interrelated Core Elements thateach community can adapt

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    Successful prevention programASF Mpowerment EBI adaptation for (MSM) PLWHA

    Adapted for MSM PLWHA, the Mpowermentintervention mobilizes individuals

    to shape a healthy community for themselvesBuild positive social connections

    Support safer sex

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    Successful prevention programASF Mpowerment EBI adaptation for (MSM) PLWHA

    Two programs were implemented:

    Positive Life Force

    English-speaking HIV-positive MSM

    Hombres Por La Vida

    Spanish-speaking HIV-positive MSM

    S f l h

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    Successful prevention program with

    (MSM) PLWHA

    Spanish-speaking

    HIV-Positive MSM Program

    English-speaking

    HIV-Positive MSM Program

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    Successful prevention programLevels of Interventions for (MSM) PLWHA

    Various Levels of Interventions

    They provide different opportunities forworking with positives and theircommunities

    They facilitate various types of support andopportunities for growth

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    Successful prevention programLevels of Interventions for (MSM) PLWHA

    Individual interventions

    Allow the development of a collaborativerelationship

    Assist clients in making plans for individualbehavior change and ongoing appraisals oftheir own behavior

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    Successful prevention programLevels of Interventions for (MSM) PLWHA

    Provide safe space to explore sensitive topics

    Enhancing clients self awareness of HIV riskbehavior

    Discussing options for risk and harm reduction Demonstrating and practicing techniques for risk

    reduction (e.g. barrier demonstration, cleaningneedles)

    Role playing for condom negotiation

    Making appropriate referrals to HIV preventionand other supportive services

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    Successful prevention programLevels of Interventions for (MSM) PLWHA

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    Successful prevention programLevels of Interventions for (MSM) PLWHA

    Group-level interventionsAllow for exchange of ideas, experiences, support,

    resources

    Enhance communication skills and receive feedbackMonthly Positive Voice (Core Group) Meeting where

    PLWH provide input and direction for the programdesign and implementation of workshops, socialactivities and community building events.

    Positive Voice Group members become empowered asthey take part as decision makers, help provide inputand feedback and assist the program to remain client-centered.

    f l

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    Successful prevention programLevels of Interventions for (MSM) PLWHA

    S f l

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    Successful prevention programLevels of Interventions for (MSM) PLWHA

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    Successful prevention programLevels of Interventions for (MSM) PLWHA

    Health Communication/Public Information

    Provide peer education, support, skills training

    Promote and reinforce safer behaviors

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    Successful prevention programLevels of Interventions for (MSM) PLWHA

    Previous HCPI:

    A Reality Check HIV Disclosure, Who? When? Where? How?

    Party Smart HIV Meds and Drug Interactions Passionate Living Become your greatest self-advocate

    Understanding your labs

    Take all your meds Building Adherence

    Your new life stage Life after HIV diagnosis, what next?

    Living Well with HIV

    Living Happy Managing HIV & Depression

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    Successful prevention programLevels of Interventions for (MSM) PLWHA

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    Successful prevention programLevels of Interventions for (MSM) PLWHA

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    Successful prevention programLevels of Interventions for (MSM) PLWHA

    Community-level intervention

    Allow for community-wide events, which serveas an effective compliment to individual andgroup-level interventions

    Seek to change normative community attitudesand behaviors, providing opportunity for thediffusion and support of lower risk behavior

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    Successful prevention programLevels of Interventions for (MSM) PLWHA

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    Measure of SuccessIndividual-Level Intervention Program Evaluation

    By June 30, 2009, the HIV-positive MSMprograms will conduct a minimum of ninety(90) risk reduction counseling sessions, andmake referrals when appropriate, to aminimum of thirty (30) unduplicatedEnglish-speaking individuals and a

    minimum of thirty (30) unduplicatedSpanish-speaking individuals

    Evaluation indicator: Health Education/Risk

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    Measure of SuccessGroup-Level Intervention Program Evaluation

    By June 30, 2009, the HIV-positive MSM programs willconduct ten (10) English Core Group meetings and ten(10) Spanish Core Group meetings, will recruit five (5)English speaking and five (5) Spanish speaking members

    for the core group to obtain input and direction for theprogram design and implementation of communitybuilding activities Evaluation indicator: Meeting Logs, Sign-in sheets and core group

    meeting agendas

    After participating in core group meetings, eighty-percent(80%) of individuals will report a decrease in socialisolation due to HIV disease Evaluation indicator: meeting evaluation reports

    f

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    Measure of SuccessHealth Communication Public Info Program Evaluation

    By June 30, 2009, the HIV-positive MSM programs willconduct fourteen (14) workshops to increase preventionbehavior, improve personal attitudes toward HIV andprevention and increase a sense of personal responsibility. Evaluation indicator: Sign-in sheets, curriculum, prevention

    materials, pre/post assessment scores

    After participating in the workshop, eighty-percent (80%)of individuals will demonstrate competency in utilizingitems in safe sex kits Evaluation indicator: safer sex competency check sheets

    After participating in the workshop, eighty-percent (80%)of individuals will identify risk factors for HIV transmissionand appropriate risk reduction techniques Evaluation indicator: Pre/post test scores, skills competency check

    sheets

    f

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    Measure of SuccessHealth Communication Public Info Program Evaluation

    By June 30, 2009, the HIV-positive MSM programs willconduct ten (10) English Core Group meetings and ten(10) Spanish Core Group meetings, will recruit five (5)English speaking and five (5) Spanish speaking members

    for the core group to obtain input and direction for theprogram design and implementation of communitybuilding activities Evaluation indicator: Meeting Logs, Sign-in sheets and core group

    meeting agendas

    After participating in core group meetings, eighty-percent(80%) of individuals will report a decrease in socialisolation due to HIV disease Evaluation indicator: meeting evaluation reports

    M f S

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    Measure of SuccessCommunity-Level Intervention Program Evaluation

    By June 30, 2009, the HIV-positive MSM programs willconduct two (2) community events, one in English andone in Spanish, to empower a a minimum of thirty (30)HIV-positive MSM individuals per event, and to increase

    their awareness of HIV support services and related healthissues Evaluation indicator: meeting evaluation reports and sign-in sheets

    After participating in core group meetings, eighty-percent(80%) of individuals will report a decrease in socialisolation due to HIV disease Evaluation indicator: meeting evaluation reports

    M f S

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    Measure of SuccessPLWHA Programs Evaluation

    Describing the process of behavior changeis more than counting units of servicesdelivered

    Documenting whether or not an HIV-

    positive individual ultimately uses a condommay represent endpoint of an intervention;Such documentation does not fullyrepresent an interventions effectiveness

    M f S

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    Measure of SuccessPLWHA Programs Evaluation

    The path to behavior change is complex and oftenelusive

    No single evaluation strategy can capture theelements involved

    Programs focused on producing behavior changerequire a wide range of evaluation strategies,embracing both quantitative/qualitative methodsof evaluation

    M f S

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    Measure of SuccessPLWHA Programs Evaluation

    It is important to have an evaluation plan inplace as prevention with positives aredesigned and implemented

    Effectively evaluating prevention withpositives programs will be very challenging.

    M f S

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    Measure of SuccessPLWHA Programs Evaluation

    Carefully evaluating a program affordsopportunities to improve, redesign, or eveneliminate, aspects of the program

    Success of a program can be determinedby an effective, objective evaluationcombined with a willingness to modify andimprove based on community need,participant feedback, and scientific merit.

    M f S

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    Measure of SuccessPLWHA Programs Evaluation

    To best measure the success or ourprograms we have developed programevaluations that require systematic steps:

    1. Formulating evaluation questions

    i.

    To what extent did the program achieve itsgoals and objectives?

    ii. Were the activities implemented as planned?

    iii. Which features were most/least effective

    M f S

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    Measure of SuccessPLWHA Programs Evaluation

    2. Setting standards of effectiveness

    i. Deciding on info needed to provideconvincing evidence of a programs

    effectiveness

    ii. Must be purposeful, Realistic and Measurable

    3. Designing the evaluation

    i. How many/when measurements should bemade?

    ii. How many groups or persons should be

    included in the evaluation?

    M f S

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    Measure of SuccessPLWHA Programs Evaluation

    4. Collecting data

    5. Analyzing data

    6. Reporting the results

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    Closing Thoughts

    Focus onthe HIV-positive community

    as a crucial playerin the prevention of HIV

    is key.

    Without programming for PLWHAHIV prevention would be incomplete.