Structured Data Capture (SDC) Public Health Tiger Team

June 25th, 2013

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Public Health Tiger Team Overview Items

• Request for selection criteria template/guidance– User Story

• Michelle Williamson, RN, MSIS, CPHIT– Senior Health Informatics Scientist– CDC/National Center for Health Statistics

• Question and Answers• Next Week

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Public Health Tiger Team wiki

• http://wiki.siframework.org/Public+Health+Tiger+Team

• Every Tuesday 2-3 pm– Dial In: +1-650-479-3208– Access code: 665 131 907– URL:

https://siframework1.webex.com/siframework1/onstage/g.php?t=a&d=665131907• **This info will not change. 3

WIKI

• http://wiki.siframework.org/Structured+Data+Capture+Initiative

• http://wiki.siframework.org/Public+Health+Tiger+Team

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EHR PHForm

Sample Types of

Reporting

Quality

Research

Public Health

Case Reporting (Pilot CDA)

EHR and SDC Model

ELR 2.5.1Immunization 2.5.1

Cancer CDA

Forms Repository

Request Form

(CDISC RFDC)Deliver Form

Deliver data from form{Format Type, TBD}

Example Types of Reporting

CDEsMeta DataBusiness

Logic

Define Forms

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NIH Definition for ‘Common Data Element’

NIH CDE Resource Portal defines ‘common data element’ CDE as:A data element that is common to multiple data sets across

different studies•Emphasis is on the intentional use of CDEs to improve data quality and promote data sharing•Types of CDEs include:

– Universal: CDEs that may be used in studies, regardless of the specific disease or condition

– Domain-specific: CDEs that are designed and intended for use in studies of a particular topic, disease or condition, body system or classification

– Required: CDEs that are required or expected, as a mater of institutional policy

– Core: CDEs that are required or expected to be collected in particular classes of studies

23Source: http://www.nlm.nih.gov/cde/glossary.html#cdedefinition 23

NIH Common Data Element (CDE) Resource Portal

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http://cde.nih.gov

• Provides single point-of-entry for information about NIH-supported CDE initiatives and CDE tools & resources

• Enables browsing of descriptive summaries of the CDE initiatives and of the subject areas to which they apply

• Links out to repositories containing the data elements themselves.

• Version 1.0 launched in January 2013• Contains information on 16 NIH-supported initiatives• Future enhancements: additional NIH and HHS initiatives,

improved navigation24

Step 3: PilotTBD TBD

Step 2: CDE Define Develop Incorporate

Step 1: Use CasePrioritization and Select

Work plans

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Proposed User Stories

• Vital Statistics (NCHS)• Hospital care survey (NCHS)• Vaccine Adverse Event Reporting (VAERS) (HLN)• School/camp/day care physical form (HLN)• Adverse event reporting to FDA (JPHIT)• Early Hearing Detection and Intervention (EHDI)

/ Newborn Hearing Screening. (NCBDDD)• Cancer Registry Reporting (NCCDHP)

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Thoughts, Comments, Questions?Contact:

Jim (James) Daniel, ONCjames.daniel@hhs.gov

John M. Saindon, CDCuzn0@cdc.gov

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