St. Joseph's Foundation, Volume 6, Issue 1, 2010

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ST. JOSEPH’S magazine A magazine for the friends of St. Joseph’s Hospital and Medical Center Volume 6, Issue 1, 2010 SAVING ERICA Foundation-funded simulation lab gives nurses chance to practice skills Happy 115th, St. Joseph’s! Philanthropy has played key role in hospital’s amazing history

description

A magazine for friends of St. Joseph's Hospital and Medical Center.

Transcript of St. Joseph's Foundation, Volume 6, Issue 1, 2010

Page 1: St. Joseph's Foundation, Volume 6, Issue 1, 2010

ST. JOSEPH’SmagazineA magazine for the friends of St. Joseph’s Hospital and Medical Center Volume 6, Issue 1, 2010

SAVING ERICAFoundation-funded simulation labgives nurses chance to practice skills

Happy 115th, St. Joseph’s!Philanthropy has played key rolein hospital’s amazing history

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These are challenging times for hospitals like St. Joseph's Hospital and Medical Center. In recentmonths, our hospital has lost $14 million in funding due to changes in the state budget. State fundsearmarked for medical education are gone, and healthcare funds for those in need have been dra-matically reduced, leaving us to make up for these unexpected revenue losses.

Running a hospital that specializes in providing the highestlevel of care for themost complexmedical problems is an expen-sive endeavor. Factor in the added costs of the medical edu-cation and research forwhich St. Joseph’s andBarroware known,and the challenges become even greater. Yet, we are dedicat-ed to maintaining and enhancing our level of care. It is whatthis community needs and deserves.

As you’ll see in this issue of St. Joseph’s Magazine, weremain steadfast in our mission to continually improve the serv-ices St. Joseph’s offers. The Cancer Genetic Risk AssessmentProgram, the CyberKnife program for treating prostate cancer, new CT software that reduces radi-ation exposure, and—perhapsmost exciting of all—our new pediatric heart transplant program areall examples of our focus on improving and expanding the medical care available to you, your fam-ily, and friends right here in our community.

St. Joseph’s celebrated its 115th birthday on March 19. It is the support of benefactors like youthat has allowed this institution to grow from humble beginnings into a world-class hospital. We aredeeply grateful for your support!

Linda Hunt Mary Jane CristService Area President, CHW Arizona CEOPresident/CEO, St. Joseph's Hospital St. Joseph’s Foundationand Medical Center

P.S. As you can imagine, your continued support is critically important right now. Please makea gift to St. Josephʼs Foundation today. A giving envelope is enclosed for your convenience, orgive online at SupportStJosephs.org.

OPENING THOUGHTS

On our cover: Shawna Anderson, RN, and Kristi West, RN, of the Pediatric Cardiothoracic Intensive CareUnit participate in Nursing Simulation Laboratory training in preparation for the launch of the new pediatricheart transplant program at St. Josephʼs.

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2 Saving EricaNurses practice skills in Foundation-funded simulation lab.

7 Connecting the DotsCancer Genetic Risk Assessment Program creates roadmap for disease prevention.

10 Rays of HopeCyberKnife technology delivers a non-invasivealternative to treating prostate cancer.

12 Protecting BabiesNew CT: Clearer images, less radiation.

13 Diagnosis: DeliriumPsychiatric Consultation Service solves baffling patientcases.

16 The New PhilanthropyHow venture capital is funding innovative new projects.

18 Happy 115th Birthday, St. Joseph’s!Philanthropy has played a vital role in hospital’s history.

22 Sprucing Up St. Joseph’s Spiritual HomeYour help is needed in funding a Chapel renovation.

23 The Critical Role of Pharmacists in the ED

24 St. Joseph’s AmazingPatient stories from the files of St. Joseph’s Hospital.

26 Benefactor Briefs

30 News

ST. JOSEPH’SmagazineA magazine for the friends of St. Joseph’s Hospital and Medical Center Volume 6, Issue 1, 2010

contents

Catherine [email protected]

Justin DetwilerArt Director/Designer

Panoramic Press

Brad Armstrong, Jeff NoblePhotography

Sally Clasen, Melissa Morrison,Sarah PadillaContributing writers

Linda Hunt,Service Area President, CHW ArizonaPresident/CEO, St. Joseph’s Hospitaland Medical Center

Mary Jane Crist, CFRECEO, St. Joseph’s Foundation

• H o w t o R e a c h U s •St. Joseph’s Magazine is publishedbySt. Joseph’s Foundation.Wewelcomeyour comments, suggestions, and requests to beadded toor delet-ed from our mailing list. Call 602-406-1041, email [email protected], or send mail to St. Joseph’s Magazine, Office ofPhilanthropy, St. Joseph’s Hospital andMedical Center, 350W. Thomas Rd., Phoenix, AZ, 85013. Please include your name, address, email ad-dress, anddaytime telephonenumber inall correspondence.Visit usonlineatwww.SupportStJosephs.organdwww.SupportCongenitalHeart.org.

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S T . J O S E P H ’ S M A G A Z I N E2

SAVINGERICA

NURSES PRACTICESKILLS IN FOUNDATION-FUNDED SIMULATION

LAB

by Melissa Morrison

EricaAdams has just had a total hysterectomy.

Now she’s finding it hard to breathe, and her

oxygen stats are dropping. Her chest hurts, her heart

is racing, and her blood pressure is dropping. She’s

exhibiting the classic signs of a pulmonary embolism,

a potentially fatal complication.

The team of nurses caring for her must act quickly,

coordinating their care to restore Erica’s breathing and

blood flow before it’s too late. They pull an oxygen

mask off the wall to put on her face, start fluid running

through her IV, and push the code cart into the room

in case they need to use it.

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S T . J O S E P H ’ S M A G A Z I N E 3

Everything about the situation is true to life,except thepatienther-self. Erica is made of synthetic skin and colored water, not flesh andblood.She is oneof twohigh-fidelity patient simulators in St. Joseph’sHospital andMedicalCenter’sNursingSimulationLab.(Two low-fideli-ty mannequins live there, as well.) The lab is an innovative methodof teaching healthcare providers how to respond to crisis situationsbefore they face themwith real patients.

They can draw blood from Erica’s veins, give her an injection inher deltoid, and insert a chest tube between her ribs. She has ameas-urable pulse, heart beat, lung sounds, and can respond to the nursescaring for her with the voice of Nathan Brent, who controls Erica’sphysiological responses from a computer laptop hidden nearby.Hervital signs are reflected on the bedside patient monitor.

It’s the nursing equivalent to flight simulation.“The theory is that by exposing them to a realistic environment,

they will react realistically, and if any errors are made, they’re madeon a simulation mannequin versus a real patient,” says Brent, St.Joseph’s nursing education and simulation specialist.

The hospital installed the lab in 2006, thanks to a $150,000 grantfromSt. Joseph’s Foundation,which supportsmedical education andtechnology,amongotherendeavors.The lab is comprisedof eight roomsin a former pediatrics unit and has the same equipment and feel asaworkinghospital floor.The simulation sessionbegins just like anor-mal shift change.Whennurses arrive, they get report on their patient

Left, Shawna Anderson, RN, and Kristi West, RN, of the PediatricCardiothoracic ICU practice skills they will need in caring forchildren undergoing heart transplants. Above, Nate Brent, nurs-ing education and simulation specialist, prepares Erica for atraining session.

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at the frontdeskand thenproceed into thepatient’s room,where they do a routine assessment and respond to anymedical emergency that might occur—and one usual-ly does.

Nurses don’t know in advance what scenario theymight be facing. They must quickly assign themselvesroles,work together,and call for outside assistancewhennecessary.

The Wizard of OzBrent, a former ICU nurse, is a hospital Wizard of Oz.Standingbehindabed sheet curtain,he canmakeErica’sbloodpressure dropor pulse race, just as a real patient’swould. He provides the patients’ voice, responding viaawirelessdevice tonurses’questions,suchas,“Whatkindof pain are you experiencing?”He also acts as pharma-cist andphysicianwhennurses call aspartof the scenario.

Themethodallowsnurses to learnbymimicking reallife, not memorizing from a book or lecture. “Theirlearning styles are kinesthetic,”Brent says.“They enjoyahands-onatmosphere. I can tell youhow to ride abike,butuntil yougeton it,youwon’tknowhowtorideabike.”

NursepractitionerPatti Stoffers agrees.Asheadof thededicated transition unit,where she oversees the trans-formation of nursing-school grads into professional

nurses, she’s put 36 new nurses through a total of 144scenarios. “Every single one has said these scenarioshave benefited them more than anything else they’vedone,” Stoffers says.

“What works so well is they experience real-life sce-narios theywill facewhen they get on the floor,withoutexperiencing the stresses.”

Both new and veteran nurses use the lab, as well assomemedical residents.Some scenarios involve nurses,residents, and respiratory therapists working together.

“It’s working as a team,”Brent says.“It builds a teamdynamic.”

Erica survived her pulmonary embolism, but themannequins aren’t always so fortunate. As in real life,patients sometimes die, even when nurses do every-thing they can for them.

That is the case in the scenario in which a septicpatient goes into shock and codes. Nurses manage aventilator, a cardiac catheter, an arterial line, and half adozen IVdrips trying to revive thepatient,whoultimate-ly doesn’t make it.

The scenario explores a difficult aspect of the nurs-ing profession.

“That brings in a touchy subject no one ever talksabout,end-of-life care,”Brent says.“Wehave tobring that

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outof [thenurses]. If theymade amistake,acknowledgeit; if they didn’tmake amistake,make themrealize theydidn’t do anything wrong.”

Clark Kent, Bobby Jo, Sammy JoNot everything about the simulation lab is realistic.

Erica has a costume-store white wig, a permanentlygapingmouth,and linebacker physique.Whenpluggedin,her eyes pop open—light blue—andblinkmechan-ically.

The other three mannequins include pediatricspatientClarkKent,andBobby Jo andSammy Jo.BobbyJo is currently in restraints, because nurses are practic-ing how to use the technique, and Sammy Jo has a tubein her throat.“Poor old Sammy Jo.We do a lot of trachcare,” says Sue Gallagher, RN, adjunct faculty.

The scenarios are taped, so nurses can review theirperformancesduring thedebriefing that followseachsim-ulation. The simulation lab gives nurses a chance tothink on their feet in preparation for the real thing.

“It’s not just critical thinking—that’s always been abuzz word—but also critical actions,” Brent says. “Youcan think about it all day, but unless you do somethingabout it, it’s not going to change.” ■

“I can tell you how to

ride a bike, but until

you get on it, you

won’t know how to

ride a bike.”

Nate Brent

Far left, Participating in asimulation are ShawnaAnderson, RN, Josie Prinz,RN, Nicole King, RN, andSue Gallagher, RN, adjunctfaculty. Left, Christy Riddle,nursing education specialistfor pediatrics, controls themannequin’s responses.Right, Anderson and KristiWest, RN, and Dana Gray,RN, care for a “patient simu-lator.”

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Rick Barela was completely blindsided when he was diagnosed with Stage II colon cancer in July 2009.An active and healthy guy who played recreational sports, Barela hadn’t givenmuch thought to preven-

tive health measures—and certainly didn’t plan on having a colonoscopy until he turned 50.“And even at that age, I was probably going to put it off since it’s not something to look forward to,” says

the 46-year-old electrician who works at the Palo Verde Nuclear Generating Station.Barela also never imagined that he had inherited an increased risk for the disease. He wasn’t aware of any

relatives with colon cancer, but after having his colon removed last summer, his surgeon, ElizabethMcConnell,MD, recommended he seek genetic counseling at St. Joseph’s Hospital and Medical Center to determine ifhe carried a genetic mutation that increases the chances for colon cancer, as well as uterine, ovarian, pancre-atic, and stomach cancers in family members.

CONNECTINGTHE DOTSCANCER GENETIC RISKASSESSMENT PROGRAMCREATES ROAD MAP FORDISEASE PREVENTION

by Sally Clasen

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Genetic testing: a family affairThe father of three daughters was easily convinced,especially after learning the incidence rate for devel-oping any number of cancers was 80 percent if amutation was present. “Once I found out the risk, Iwanted to be tested. I had to find out for my kids,”Barela says.

In August, he met with Cathleen McCann, MS,CGC, a board-certified genetics counselor who directsthe Cancer Genetic RiskAssessment Program, a com-plimentary service of the Comprehensive CancerCenter at St. Joseph’s. Through extensive evaluationand questioning, McCann delves deep to uncoverlinks that might provide a genetic disease blueprintfor families.

As part of her investigation, she relies on criticaldata identified by the Human Genome Project, aswell as conducting detailed family medical histories,paying particular attention to cancers that appear inbothmaternal and paternal relatives, the age of onset,and hereditary patterns to establish a genetic profile.“I’m attempting to create a road map, but it’s notalways as scientific as you’d hope,” she explains of hermedical sleuthing. “Sometimes the search gets blur-ry, but there is no question I don’t ask.”

In Barela’s case, McCann was able to connect thedots fairly quickly because he wasn’t adopted, andshe was able to compile useful family medical infor-mation from immediate relatives.OnceMcCann hadestablished a clear foundation, she was able to recom-mend a specific genetic test for Barela,which confirmedhe carried a defective gene that can cause colon can-cer.

The news alsomeant there was a 50 percent chancehe had passed on the genetic abnormality to his chil-dren. Taking precautionary steps, all three of hisdaughters agreed to testing, which revealed two werepositive for the genetic mutation. In addition, testingdone on his parents indicated his mother carries themutation as well.

Dealing with increased cancer riskWhile the genetic results don’t guarantee Barela’s chil-drenwill develop cancer, they are at increased risk.Thisknowledge allows his family members to plan—andstart thinking about preventive habits, such as beingaware of certain cancer risks in their family and sched-uling appropriate screenings sooner. Providing thisknowledge is an important part of the genetic serv-ices McCann provides.

Cathleen McCann,MS, CGC, directs

the CancerGenetic RiskAssessmentProgram at

St. Joseph’s.

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Through the Cancer Genetic RiskAssessment Pro-gram,McCann discusses genetic testing options andarranges testing if indicated and desired. She alsoadvises patients about disease surveillance, lifestylechanges, and risk-reduction strategies for a numberof hereditary cancers including breast, ovarian, colon,pancreatic, prostate, and skin.

“The benefit of genetic testing and counseling isthat we can prevent many of these cancers throughscreening and education, and extend survival rates, par-ticularly among those with colon cancer, which ishighly treatable,”McCann explains of the predictiveinformation she gathers.

The domino effectFor Barela, in the middle of his chemotherapy treat-ments, genetic testing has given him some assurancethat his loved ones can potentially alter their healthoutcomes.“I didn’t do this forme—I already have can-cer. But it allows my family members to get screenedearlier rather than putting it off for 10 years or wait-ing until they get older. It’s an opportunity for themto not be blindsided with cancer like I was.”

During the last six months, the electrician hasbecome a vocal proponent of the advantages of genet-ic testing and has spoken on behalf of the CancerGenetic Risk Assessment Program. He’s also wit-nessed a domino effect in disease awareness in hisextended circle of friends.

“When I returned towork,my co-workers askeda lot of questions. I was ableto give them informationabout genetic links to can-cer, and some have contact-edCathleen. I keep her busi-ness cards with me all thetime,”he says.“Getting test-ed is a chance to see intothe future and help peoplepossibly avoid being in thesame position I’m in.” ■

The Barela family: ColleenBehrend, Rick Barela, LeahBarela, and Jackie Barela.

Another daughter, ChristinaBarela, lives in Florida.

“Getting tested is a

chance to see into

the future and help

people possibly

avoid being in the

same position

I’m in.”

Rick Barela

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RAYS OF HOPE

T reatment for cancer often involves invasive tech-niques, extensive therapy sessions, andoverwhelm-

ing side effects that can add insult to injury. In a newlight, however, several men from across Arizona withearly to intermediate prostate cancer are undergoingan alternative—and non-inva-sive—form of outpatient“surgery” to treat their disease.

As part of a nationwide study,the men are participating in aclinical trial inwhich St. Joseph ’sHospital andMedicalCenter radi-ation oncologists are evaluatingthe use of CyberKnife in treatingprostate cancer. CyberKnife is astate-of-the-art system that com-bines image-guidancewith robot-ic delivery of radiation to track anddestroy tumors andother lesions, such as prostate cancer, the most com-mon cancer among men.

According to the American Cancer Society, aboutoneman in six will be diagnosed with prostate cancerduring his lifetime. Currently, surgical removal, con-ventional external-beam radiation, and brachythera-py, in which radioactive seeds are implanted into theprostate, are the most common ways to treat prostatecancer.

Despite CyberKnife’s invasive name, the procedureis pain-free—it involves no cutting, needles, anesthe-sia, or catheters, and the device never comes in contactwith the body, says David Brachman,MD, who is themedical director of radiation oncology at St. Joseph’s

and a lead investigator of the study.Another advantageof the technology is that it significantly shortens the treat-ment and healing time, compared to conventionalexternal-beam radiotherapy.

During traditional radiation therapy, patients typ-ically experience 43-45 daily treat-ments over more than an eight-weekperiod.WithCyberKnife, fiveone-hour treatments can be deliv-ered over 10 total days, thanks toequipment features including arobotic frame that allows fast repo-sitioning of the treatment beamfrom different angles and instan-taneous X-ray images.

“Using CyberKnife, we canmaximize radiation doses to the

prostate glandwithmoreprecision,which results inmin-imal effects to surrounding tissues andorgans,”explainsDr. Brachman. “Relative to standard radiation thera-pies, only a small amount of treatment is delivered tonon-involved tissue, a fraction of the usual volume.”

The ability to zero in on the diseased area in a non-invasive manner means side effects associated withtraditional surgicalmethods and post-treatment qual-ity-of-life issues, like sexual dysfunction and inconti-nence, may be eliminated or greatly reduced withCyberKnife. “The short-term effects are almost noneamong our clinical trial patients,” says Dr. Brachman.“We’ve been able to avoid the common issues of fatigue,diarrhea, and urinary frequency that are often seen inthe last half of conventional radiation therapy.”

CYBERKNIFE TECHNOLOGY DELIVERS A NON-INVASIVEALTERNATIVE TO TREATING PROSTATE CANCER

by Sally Clasen

“We’re hoping this

will be the wave of

the future.”

David Brachman, MD

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St. Joseph’s acquired the advanced, multi-million-dollar technology in 2003 and remains the only hos-pital in the Southwest to offer CyberKnife.CyberKnifehas beenused for thousandsof treatments at St. Joseph’s,including brain, lung, and spine patients. In 2009,St. Joseph’s Radiation Oncology Department startedinvestigating the effectiveness of the breakthroughtherapy for prostate cancer, according toDr.Brachman.

While it’s unclear when the CyberKnife will beapproved for treatingprostate cancer in the general pop-ulation, Dr. Brachman is excited about the favorableresults he and his team have experienced using thepioneering medical tool to treat prostate tumors.

“We’re hoping this will be the wave of the future,”he says. “It’s a great addition to treatment options forthe right patient.” ■

“Using CyberKnife, we canmaximize radiation doses to theprostate gland with more preci-sion, which results in minimaleffects to surroundingtissues and organs.”

David Brachman, MD

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St. Joseph’s is one of only two hospitals in theVal-ley using new CT technology that significantly

reduces radiation while at the same time deliveringclearer images, an advantage for those at higher riskfor radiation exposure.

Adaptive Statistical Iterative Reconstruction, orASIR, is a software program developed byGEHealth-care that uses a series of mathematical equations toidentify and subtract noise from the image, produc-ing sharper images in a shorter period of time andwitha lower dose of radiation. It has been estimated thatthe software reduces radiation exposure by up to 30percent in adults and up to 40 percent in children.

Currently, ASIR is available on the hospital’s 64-slice CT scanner, which is located in the EmergencyDepartment. While the scanner itself is used forpatients throughout the hospital as well as some out-patients, theASIR technology is primarily used for chil-dren of all ages and pregnant women. In particular,St. Joseph’s large population of congenital heartpatients is benefiting from the new technology.

Because the widespread use of CT only began inthe 1980s, the long-term effects of its radiation expo-sure are still unknown. But we do know that childrenare more sensitive to radiation than adults and thatthey have a higher risk of suffering from any negatives,

such as radiation-related cancers, because they havea larger window during which any damage may beexpressed.

“There’s been a lot of discussion recently about radi-ation in children, but no one knows for sure what thecancer risk is for children who undergo a CT scan,”says Randy Richardson,MD, St. Joseph’s chairman ofradiology and chief of pediatric radiology.“Whatev-er the risk, this technology minimizes it and that’ssomething we can be proud of.” ■

NEW CT: CLEARER IMAGES, LESS RADIATION

Children with congenital heart disease benefitfrom a new technology at St. Joseph’s thatreduces radiation exposure during CT scans.Shown above are London Ethington, EddieKennedy, and Diego Carreras, three patients ofthe Scott and Laura Eller Congenital HeartCenter.

PROTECTING BABIESby Sarah Padilla

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Treatment for something as common as a urinarytract infection (UTI) hardly seems like a medical

issue that could lead to a psychiatric diagnosis.Yet thechildrenof CynthiaMilliken,awomanwhowas admit-ted to St. Joseph’sHospital andMedical Center inmid-January for ongoing complications related to Guil-lain-Barré syndrome—a disorder in which the body'simmune system attacks part of the peripheral nervoussystem—learned that an antibiotic prescribed to theirmother for a UTI prior to St. Joseph’s was the culpritbehind her erratic behavior.

PSYCHIATRIC SERVICESOLVES BAFFLING

PATIENT CASES

NOTE: The patient’s and family’s nameshave been changed to protect their privacy.

Jason Caplan, MD

DIAGNOSIS: DELIRIUM

by Sally Clasen

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Not my motherWhenMilliken’sdaughter,MichelleMellet, firstwalked into her mother’s room, she says theotherwisevibrantwomanwasunrecognizable.

“It was like talking to a four-year-old.The lights were on, but nobody was home,”Mellet remembers. “Her speech patternswere short and simple, and her words wouldtrail off.”

A few days later,Mellet noticed her moth-er was becoming increasingly agitated andincoherent.“She knew she was in the hospi-tal,but she thought bees were buzzing all overthe room, that her catheter was a hot dog,andthat my brother and my son were dead,whichisn’t true.”

Milliken’s oldest daughter, Melia Hard-wick, who arrived a few days later from theMidwest, saw that her mother had morphedinto a shell of former self.“She was upset andemotional, fearing for what had happened.She didn’t remember how and why she hadgotten to St. Joseph’s.”

The woman’s worsening mental stateprompted an evaluation by Jason Caplan,MD, chief of psychiatry at St. Joseph’s, whoquickly diagnosed her with serotonin syn-drome, a rare psychiatric condition that candevelop from a drug interaction, a potential-ly life-threatening situation.

“It appears she went undiagnosed formore than a week before she was transferredto St. Joseph’s,”says Dr.Caplan,who provides inpatientconsultations along with Tracey Oppenheim,MD,a childpsychiatrist, through the Psychiatric Consultation Serv-ice.

“Her symptoms included horrendous musclecramps, sweating, diarrhea, abnormal jerking move-ments, as well as confusion, paranoia, and hallucina-tions—all classic symptoms of serotonin syndrome,”he adds. “I’ve only seen 10 cases in my career. Onceyou’ve seen it, you remember it.”

The physical-mental connectionPsychiatric conditions can be triggered by a variety ofunderlying medical illnesses and processes, includingdisease, surgery, and medication effects. “The brainlives in the body with all other organs, so when a dis-ease is present, even with a minor illness, it can stress

the brain, particularly among the elderly,” Dr. Caplansays. “It’s a systemic process.”

Delirium is a typical psychiatric syndrome that canoccur from routine medical problems, such as pneu-monia, urinary tract infections, and hip fractures.“It’sthe most common psychiatric diagnosis we makeamong the general hospital patient population,” Dr.Caplan says. “Studies indicate that 62 percent of ICUpatients have experienced delirium at some point in theirstay, and 82 percent of ventilated patients have had delir-ium as well. Anyone with an elderly relative admittedto the hospital is likely to have witnessed delirium atsome point.”

Although it includes a spectrum of symptoms, thesignature characteristics of delirium are confusion,paranoia, and hallucinations.“Delirium can go quiet-ly undetected for some time but can quickly snowball

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S T . J O S E P H ’ S M A G A Z I N E 15

into acute agitation over a couple of hours,”Dr.Caplansays.“It’s the job of the psychiatric team to help the pri-mary medical team diagnose and manage the symp-toms of delirium and other psychiatric symptomswhile the main medical illness is being addressed.”

According toDr.Caplan,who joined St. Joseph’s staffin July 2008 as a full-time psychiatrist, non-psychi-atric professionalsmisdiagnose approximately 64 per-cent of delirium cases.“Many hospitals don’t staff full-time psychiatrists who understand the criticalintersection between physical and mental health,” hesays.

Looking for a reasonOne of the difficulties in treating psychiatric issueslike delirium is overcoming the social stigma associat-ed with mental illness, says Dr. Caplan. “It’s a subjectpeople don’t like to talk about,mostly because of fear-ing someone might think they are ‘crazy.’ When I oranother member of the team walks into a hospitalroom,both patients and familymembers arewary,”hesays.“Many folkswho are sick are confused.Sometimesit’smedication causing the problem,and sometimes it’snot. It’s our job to parse this out, jump on the symp-toms, and start down the road to recovery.”

Mellet’s biggest concern was that her mother’sbehavioral changes were permanent, but Dr. Caplanassured her and her sister thatMilliken’smental deteri-orationwas reversible.“Heexplained indetail that itwas

a metabolic reaction to a drug and that he was confi-dent he could treat the issuewhilemaintaining her vitalfunctions.”

To stabilizeMilliken,Dr.Caplan stopped the offend-ing agents and prescribed cyproheptadine, a medica-tion that blocks the effects of serotonin.This approachmanagedher psychiatric symptomswithout oversedat-ing her, thus allowing her to participate in physicaltherapy.Within a week, Mellet says her mother start-ed to show improvement and was “85 percent better.”

Almost back to normalAfter twoweeks at St. Joseph’s,Millikenwas transferredto a skilled nursing facility to help increase themobilityand cognitive skills she’d lost during a three-monthhealth odyssey. Her children are still piecing togetherdetails about theirmother’smedical history leading upto her stay at St. Joseph’s, but they are grateful for thecompassionate and knowledgeable care she receivedwhile there.

They are particularly grateful toDr.Caplan for iso-lating the cause of her psychiatric symptoms.“We arevery thankful,” Mellet says. “Nobody else knew whatwas going on, but we finally had some answers at St.Joseph’s.

“From Dr. Caplan to the nurses and speech andphysical therapists, everyone was so wonderful andprofessional.” ■

Previous page, Jason Caplan,MD, and Angela Osmolak, a third-year medical student at CreightonUniversity School of Medicine,talk to a patient’s daughter abouther mother’s symptoms. Left,other members of the PsychiatricConsultation Service includeChristy Boric, LMSW, psychiatricsocial worker, and TraceyOppenheim, MD, child psychia-trist.

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S T . J O S E P H ’ S M A G A Z I N E16

Those of us of a certain age will remember JedClampett firing hismusket at a rabbit,missing…

and ‘up from the ground came a bubbling crude.’ Hemissed, but hit it big time.

Medical researchers work for years on a single,focused area of science and after countlessmisses,willon occasion, hit it.When that happens in the labora-tory,we all win. Life-saving drugs are discovered, newtherapies created, medical devices invented.

One area of St. Joseph’s and Barrow that too oftenflies below radar is the research enterprise. It is exten-sive by any measure: 420 clinical trials are now beingconducted andnearly $20million invested annually. TheResearchDivision is home todiscoveries and inventionsthat are now standard of care in the medical field.

Funding for the principal investigators—all MDsand/or PhDs—has most often come from traditionalphilanthropic sources, that is,private foundation grants,NIH or other public funding, or gifts from individu-als.The BarrowWomen’s Board, for example, has pro-vidednearly $30million in research grants over the past45 years. Indeed,nearly halfof what is raised each year bySt. Joseph’s andBarrowNeu-rological foundations is ear-marked for research.

Twoyears ago,CHWcre-ated the Intellectual Prop-erty Office to facilitate thetranslation of intellectualproperty conceived of ordeveloped by our medicaland research staff, to guidethe patent filings, licensingagreements, and extensivelegal and administrativework that takes a good ideafrombench research to clin-ical application and eventu-al commercialization.

The CHW Intellectual Property (IP) Office worksclosely with the Foundation to encourage, recognize,and protect inventions, to commercialize novel inven-tions and technologies, and to promote collaborationsthat can lead to industry-sponsored researchwith otherinstitutions. Increasingly,venture capitalists are engagedto accelerate the complex process of creating medicaldevice prototypes that can be commercialized. The IPOffice oversees the distribution of royalty incomederived fromany technology transfer among the inven-tors, including income that eventually comes to the hos-pital.

While so-called‘intra and extramural’ funding con-tinues to be a mainstay for both St. Joseph’s and Bar-row research, we are working more and more withtwo other legs of the Foundation stool: venture philan-thropists and venture capitalists.

Venture philanthropy is called by many names:social entrepreneurism, strategic philanthropy, some-times e-philanthropy.All have adopted techniques thathave worked well for venture capital firms, mainly, a

THE NEW PHILANTHROPYHOW VENTURE CAPITAL IS FUNDING INNOVATIVENEW PROJECTS AT ST. JOSEPH’S AND BARROW

by Robert HopkinsVice President, St. Joseph’s Foundation

Robert Garfield, MD

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deeper interaction between giver and recipient and astrong emphasis on measurable results. For many,venture philanthropy is part of a broader trend ofmaking social, ethical and other ‘do-good’goals part ofinvestment decision-making. A lot of it can be traced

to the movement nearly 30years ago to get Americancompanies to divest them-selves of stocks in companieswith interests in SouthAfricaand,more recently, in tobac-co. Research that focuseson issues of health andwell-being arenaturals for“strate-gic investors.”

Now as a mature aca-demic medical center,St. Joseph’s has entered thevery large and competitivearena of technology transferin a substantial way.The veilhas been lifted fromthis pro-foundly important compo-nent of the enterprise. Sev-eral projects are wellunderway toward commer-cializationwithmore in thepipeline.

Interested investorsshould contactRobertHop-kins at the FoundationOffice, 602-406-1037 [email protected]. ■

Venture capital needed forinnovative device that stopspostpartum hemorrhaging

Each year, thousands of pregnant women losetheir lives immediately after giving birth because ofa complication called uterine atony, during whichthe uterus hemorrhages because of an inability tocontrol contractions.

Drugs such as oxytocin are often administeredin these critical situations, but they do not alwayswork,andother com-plications to motherand infant can occur.

Since time began,a safe and effectiveway to enablewomenindistress to stop thispostpartum hemor-rhaging has beenneeded. RobertGarfield,MD,andhisteam of researchersat St. Joseph’s have invented such a device, essen-tially a hand-held electrode, to treat—and to con-trol—this frightening and sudden complication atbirth.

The device is based on the proven efficacy ofusing electrical stimulation to cause smoothmus-cles to contract. According to the obstetricians andperinatologists whohaveworkedwithDr.Garfield,this invention could well become the standard ofcare for women in labor all over the world. As onepracticing obstetrician said,“Anyone who deliversbabies should demand that this equipment be avail-able at a moment’s notice.”

A companyhas been formed calledOSI,LLCandthrough the Foundation is now attracting venturecapital funding to accelerate the transfer of thistechnology to commercial application.

If you would like to learnmore, contact RobertHopkins at the FoundationOffice, 602-406-1037 [email protected].

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St. Joseph’s Hospital andMedical Center celebrat-ed its 115th birthday onMarch 19.As benefactors

of St. Joseph’s and/orBarrowNeurological Institute,youcan take pride in being part of a long history of givingthat has helped the hospital grow fromhumble begin-nings into a world-class organization.

According to Sister Madonna Marie Bolton of St.Joseph’s Foundation, the hospital’s first fundraiser wasSisterMaryPeter.“The Sisters ofMercy came toPhoenixin 1892 to establish a school,but they soon realized thathealthcarewas amorepressingneed,”says SisterMadon-na.“It was Sister Peter who led the Sisters’ fundraisingefforts.”

She and SisterMaryAlacoque borrowed ahorse andbuggy and drove around the community asking fordonations to help start St. Joseph’s Sanitarium, theValley’s first hospital. Later, Sister Peter led regular“collecting trips” to Tombstone, Bisbee, and Douglason the days theminers were paid. She evenwent downinto the mines in a bucket to ask for donations.

Throughout the years, benefactors have made itpossible for St. Joseph’s to prosper and grow. Amongthe hospital’s many fundraising highlights are the fol-lowing:

1895 St. Joseph’s Sanitariumopens in a rented six-bed-room cottage. That fall, St. Joseph’s Hospitalopens in a new facility built on land donated byG. Clark Churchill.

1900 The community contributes to an expansion ofSt. Joseph’s. A chapel, operating room, utilityrooms,andkitchens are added for $10,000.Bene-factors fund expansions in 1902, 1908, 1911,and 1928.

1912 The Sisters open a school of nursing in housesdonatedbyDanielO’Carrol,an elderlyminerwhois a friend and generous benefactor.

1917 Fire breaks out at St. Joseph’s, significantly dam-aging the structure. Dr. Willard Smith makesthe first gift for its reconstruction—a check for$500—as the building burns.

1933 Dr. R.W. Craig includes a major gift in his willfor St. Joseph’s to establish a “sanitorium” fortuberculosis patients.His generous gift establish-es the Craig Clinic, which continues to providediagnosis and care for tuberculosis patients.

1947 Acity-wide campaign to raise funds for the con-struction of a new$4.8-million St. Joseph’sHos-

S T . J O S E P H ’ S M A G A Z I N E18

HAPPY 115TH BIRTHDAY,ST. JOSEPH’S!

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pital at ThirdAvenue andThomas Road begins.Volunteer and community leader Frank Bro-phy leads what is the largest campaign everundertaken in Phoenix at that time. The manygifts to the campaign include amajor contribu-tion from Richard Cullen. St. Joseph’s movesinto the new facility in 1953.

1959 Charles Barrowmakes amajor gift to St. Joseph’sfor the construction of Barrow NeurologicalInstitute as thanks for the care JohnGreen,MD,gave his wife, Julia. The final cost to build Bar-row, which opens in 1962, is $2.4 million.

1961 The 22,000-pound statue of St. Joseph and theChrist Child is hoisted into the niche at the frontof the hospital (then on Thomas Avenue). Theiconic statue,which now resides in the hospital’scircle drive, is a gift of the Basha family.

BarrowNeurological Foundation is establishedto raise funds for research at Barrow. That mis-sion is later expanded to include all areas of Bar-row.

1965 The Women’s Board of Barrow NeurologicalFoundation is founded to raise funds for Barrow.

The first Barrow Ball, a masked ball held onNewYear’s Eve of that year, raises $26,000. Sincethen theWomen’s Board has raised $36millionfor Barrow.

1977 The James R. Atkinson Pain Research Endow-ment Fund is established at Barrow.

1981 Acommunity-wide campaign,headed by Patri-ciaGoldman, to raisemoney for a $93.8-millionexpansion of the hospital begins.The construc-tion project includes the addition of a newpatient tower, theAncillary Building. theKieck-hefer Bridge, and a parking garage

The Mercy Care Foundation is established toraise funds for St. Joseph’s Mercy Care Center.In 1990, the Foundation is renamed St. Joseph’sFoundation, and its purpose is expanded toinclude all areas of St. Joseph’s.

1983 The J.N. Harber Foundation endows the Chairof Neurosurgery at Barrow, enabling the insti-tute to recruit Robert F. Spetzler, MD.

1987 Endowment funding for the A.B. and AnneMerete Robbs Jr. Stroke Prevention Treatmentand Research Center is completed.

S T . J O S E P H ’ S M A G A Z I N E 19

Top photos from left: JohnGreen, MD, Charles Barrow,and Sister Mary Placida; thededication of the St.Joseph’s statue; theKieckhefer Bridge. Bottomrow: the first St Joseph’s;the public campaign to buildthe hospital at its currentlocation; John Green, MD;an early Barrow Ball, a youngRobert F. Spetzler, MD.

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1988 Kemper and Ethel Marley endow the Chair ofNeurology at Barrow, enablingBarrow to recruitWilliam Shapiro,MD.

1992 TheMissions BeyondCampaign is launched tocelebrate the 100th anniversary of the hospital.

1995 The Huger Mercy Living Center opens. Majorfunding for the facility for people with demen-tia comes from Dr. Raymond Huger.

1997 The 70,000-square-footNeuroscience ResearchCenter opens. Among the major benefactorscontributing to the project are theHymanGold-en family, theDel E.Webb Foundation, andMr.and Mrs. Leonard Goldman.

The Steele Foundation creates the Horace W.Steele Chair of Neurosurgical Education.

1999 Abequest fromMarjorieNewsome enables Bar-row to establish the BarrowFoundationUKandendowed chairs in neurosurgery research, neu-ropsychiatry, and neurology.

The Karsten Solheim family establishes theKarsten Solheim Dementia Research Chair atBarrow in honor of the man who created Pinggolf clubs.

2000 In honor of his late wife, Bill Levine establishesa fund to endow the InaLevineBrainTumorCen-ter.

2001 TheAnnette andHaroldNoren Stroke IntensiveCare Unit opens.

2002 Volker Sonntag,MD, receives theAlumni SpineChair, endowed by colleagues, former neuro-surgery residents, and patients.

The John andBettyVandenburghChair is estab-lished for the head of Neuroimmunolgy at Bar-row.

2003 The Pushing Boundaries campaign is launchedto raise funds for a $200-million campus reno-vationproject at St. Joseph’s.Theproject includesthe construction of a new Barrow tower andother campus improvements. Lead gifts comefrom JulieWrigley, andMichelle andEdRobson,and major gifts are made by the Earl Petznickfamily, the Virginia G. Piper Foundation, theKemper and Ethel Marley Foundation, BarrowNeurosurgicalAssociates, the Stardust Founda-tion, Stevie and Karl Eller, Deborah and BruceDowney, and Doris and John Norton. When

Photos from left: WilliamShapiro, MD; the HugerMercy Living Center; theNeuroscience ResearchCenter under construc-tion and completed; theBarrow Neuroscience

Tower; benefactors Scottand Laura Eller; the

TelePresenceConference Room; the

new Muhammad AliParkinson Center.

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the BarrowNeuroscience Tower opens in 2006,it is the most technologically advanced facilityof its kind in the world.

2003 St. Joseph’s andBarrowNeurological foundationslaunch the Health & Wealth Raffle, the firstmega-raffle of its kind in the U.S.

2004 Bob Kennedy leaves a major bequest for St.Joseph’sChildren’sHealthCenter in gratitude forthe free care his son, Bobby, received in 1959 atthe hospital’s Mercy Care Dental Clinic.

2005 Laura and Scott Ellermake amajor gift to estab-lish the Scott and Laura Eller Congenital HeartCenter, the only programof its kind inArizona.

2006 St. Joseph’s Foundation provides start-up fund-ing for the new Center for Thoracic Disease.Surgeons at the center perform theValley’s firstlung transplant the following year.

2008 LouGrubb Friends ForeGolf celebrates its 35thyear of having fun for a good cause. The tour-nament has raised nearly $4million for Barrowand St. Joseph’s.

Marian Rochelle makes major gifts to visionand Alzheimer’s research at Barrow.

Joan Shapiro, PhD, and William Shapiro, MD,establish a fund to endow a Chair in Neuro-Oncology Research at Barrow.

2009 The Muhammad Ali Parkinson Center movesinto a new facility that is twice as big as the oldcenter.The state-of-the-art facility ismade pos-sible by the Celebrity Fight Night Foundation,which supports the center throughanannual star-studded gala.

The Leona M. and Harry B. Helmsley Charita-ble Trust awards a grant to Barrow for the con-struction and equipping of a research facility,including a cutting-edge 7-tesla MRI.

Robert Greening establishes an endowed chair,the Greening Chair in Neuroscience Research.

JeanGrossmanestablishes andendows theHaroldand JeanGrossman Israeli Fellowship at Barrowto enable Israeli neurologists to teach and workat the Muhammad Ali Parkinson Center.

There aremany other benefactors who havemade sig-nificatnt contributions to St. Joseph’s and Barrow.Wewould like to thank everyone for their support. ■

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S T . J O S E P H ’ S M A G A Z I N E22

St. Joseph’sChapelwas constructed in 1955,two years after the hospital opened in its

current location at Thomas Road and ThirdAvenue. As the center of the life of the SistersofMercy religious community, theChapel wasbuilt between the convent and the hospital sothat the Sisters could pass through the Chapelon their way to and from the hospital.

Although the convent no longer exists, St.Joseph’s remains an important part of the lifeof the Sisters ofMercy inPhoenix. It has under-gone several renovations since its construc-tion.

Now more than 50 years old, St. Joseph’sChapel once again needs an updating. In 2008,the hospital beganplanning a renovationof theChapel that would create a friendly and func-tional place for patients, visitors, staff, the Sis-ters, and the surrounding community. Work beganthat year,with a target completion date ofMarch 2009.

But theworld economic downturn halted the proj-ect in the fall of 2008. By then, new stained glass win-dows had been installed, and custom furniture hadbeen made but not delivered.

Other planned renovations include replacing thelighting system, laying new stone flooring, installing anew sound system, refinishing the doors into theChapel,and replacing the currentwornchairswith chairsthat have kneelers, as mandated by the Bishop.

“We believe it is important to finish this project sothat St. Joseph’s Chapel can once again be a peaceful,healing place for patients, staff, and visitors,” saysMadonna Marie Bolton, RSM, a Sister of Mercy whoworks in St. Joseph’s Foundation and serves as the hos-pital historian. ■

If youwould like to contribute to the renovation of St.Joseph’s Chapel, please contact St. Joseph’s Foundation at602-406-3041. Sister Madonna can be reached at 602-406-1047 or [email protected].

SPIRITUAL HOMEWE NEED YOUR HELP IN SPRUCING UP ST. JOSEPH’S

New stained glass windows, below, have beeninstalled. The rest of the project, depictedabove, has stalled due to lack of funding.

Call 602-406-3041

to make a gift to the

Chapel. Or give online:

SupportStJosephs.org.

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S T . J O S E P H ’ S M A G A Z I N E 23

The role of pharmacists in healthcare continues toevolve beyond dispensing and other directly relat-

ed activities.As an integral part of the healthcare team,a pharmacist makes contributions that are highly val-ued and improve patient safety and quality of care.

The expanding role of pharmacists can be seen inthe Del E. Webb Emergency Department (ED) at St.Joseph’s, one of only a handful of hospitals in theSouthwest with pharmacists in the ED. St. Joseph’sPharmacyDepartment introducedpharmacists into theED just over four years ago. Although the program isstill new, pharmacists now play a vital role in the ED.

ED pharmacists serve as an immediate drug infor-mation resource for physicians, nurses, and patients.They review physician orders, suggest dosage changesand alternative drug therapies, recognize drug interac-tions and potential allergic reactions, and alert physi-cians when there is a problem. The pharmacists helpwith preparation of intravenous medications so theycan be administered to patients as quickly as possible.

Carla Silva, RN, says, “Our pharmacists are timesavers.They are such a valuable resourcewhen it comesto medications because they allow me to completeother nursing activities, but still ensuremy patients getthe right medications as quickly as possible.”

In critical situations such aswhenpatients are in car-diopulmonary arrest or require intubation and venti-latory support, the ED pharmacist rapidly preparesmedications for nurses and physicians to administer,and recommends adjustments inmedication infusionstomaintain patient comfort or support bloodpressure.

Pharmacist presence is especially crucial during sit-uations involving children because of the complexityof dosing medications by the patient’s weight. Thecommon misconception that pediatric patients arejust“small adults” increases the risk of an adverse drugevent in children.

“We take care of the drugs so the othermembers ofthe ED team can do what they do best—take care ofthe patient,” says clinical pharmacist Melissa Sakows-ki,PharmD.“Wehelp streamline theprocess,whichulti-mately leads to better patient outcomes.”

Pharmacypresence in theEDalsohelps provide con-tinuity of care for patients whomay be unsure of their

medications but need to continue taking themduringa hospital stay.The pharmacist researches the patient’shomemedications by contacting pharmacies to obtainmedication histo-ries. Since manymedications usedby patients athome vary fromthose used in hos-pitals, a pharma-cist helps tomakesure that medica-tion therapy iscontinued appro-priately.

“If a patienttells the EDphysi-cian he takes amedicine three times a day, and themedication is normally only dosedonce a day,wewould be alerted to thediscrepancy and could call the patient’spharmacy to find out how he shouldbe taking the medication” says Tiffany Hill, PharmD.

The pharmacist can also identify medicationsbrought to the hospital in unmarked containers or pillboxes. “Medication histories can be very importantclues in patient care, especially if the patientmaybepre-senting to the ERwith signs of toxicity from toomuchof a medication,” says Dr. Hill.

St. Joseph’s EDpharmacists also serve as preceptorsto pharmacy residents and pharmacy students. “Stu-dents and residents really enjoy rotating through theEDbecause it gives themadifferent perspective onhowpharmacists practice, and it is a great environment topromote learning, alongwith caring for patients.”saysJames Damilini, PharmD.

Pharmacists’ involvement in the ED has improvedpatient care, says emergency physicianAnnAndonyan,MD. “Our department provides more efficient andhigher quality of care because of pharmacists’ pres-ence.” ■

PHARMACISTSTHE CRITICAL ROLE OF EMERGENCY ROOM

Tiffany Hill, PharmD, andJames Damilini, PharmD,in the Del E. WebbEmergency Department.

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S T . J O S E P H ’ S M A G A Z I N E24

PATIENT STORIES FROM THE FILES OFST. JOSEPH’S HOSPITAL AND MEDICAL CENTER

MadelineMosquedawas bornweigh-ingonepound fiveounces, the small-

est baby ever delivered atChandlerRegion-alMedicalCenter.Besides being very small,Madeline had anunderdeveloped heart, sothe infant’s doctors collaboratedwith sisterhospital St. Joseph’s Hospital and MedicalCenter to save her life.

Twenty-eightweeks intoher pregnancy,Rebecca,Madeline’smother,started toexpe-rience abnormal heartburn. She becameconcernedandwent toChandlerRegional’sEmergency Department (ED).

“When I first checked into the ED, Iactually started feeling better. I thought Iwould be sent home,” says Rebecca. “Afterrunning tests, they found that my bloodpressure was extremely elevated, and theystarted prepping me for an emergencyCesarean section. I was terrified.”

AfterMadelinewasborn,doctorsdiscov-ered aheartmurmur,whichwasdiagnosedas a large ventricular septal defect (VSD), ahole in her heart. Doctors at the Scott andLaura Eller Congenital Heart Center at St.Joseph’swerenotified,andMadelinebeganbeingcloselymonitoredvia telemedicine.Shewould need to gain weight before beingtransferred to St. Joseph’s for surgery.

“The collaborative effort with the neonatal team atChandlerRegionalwasoutstanding,”says StevenPophal,MD, director of cardiology at the Scott and Laura EllerCongenital Heart Center. “We were able to monitorMadeline’s progress minute by minute from Phoenixwhile Madeline and her family stayed close to homeand received top-notch care.”

After 107 days,Madeline began suffering from con-gestive heart failure, a side effect ofVSD,andwas trans-ferred to St. Joseph’s.Madeline underwent a successful

VSD repair, an open heart surgery where doctors plugor patch the abnormal opening between the ventricles.Most surgicalVSDrepairs are donewhen the child is 10to 15 pounds—Madelineweighed 6 pounds 9 ounces.

“The doctors at Chandler Regional were like a fam-ily to us.We knewMadeline would continue to get thesame care at St. Joseph’s,”saysRebecca.“Thedoctors onboth teamswere constantly updatingmeabouther careandprogress – therewas aprocess,a plan.Nowouronlyplan is to let Madeline grow and thrive.”

Madeline celebrated her first birthday threemonthsago.

ST. JOSEPH’S AMAZING

Madeline Mosqueda

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S T . J O S E P H ’ S M A G A Z I N E 25

In the 2010movieExtraordinaryMeasures star-ringHarrison Ford, a father searches for a life-

saving drug for his sonwho suffers fromPompedisease, a rare and deadly genetic disorder. InArizona,an infant is livingwith the samediseaseand is undergoing anew treatment to savehis lifeat St. Joseph’s Hospital andMedical Center.

One-year-old Jacob Nothum of Gilbert islucky tobe alive.The genetic disease hewasbornwith is terminalwithout the revolutionary treat-ment. In order to stay alive, Jacob undergoesenzyme replacement therapy every twoweeks atSt. Joseph’s, the only hospital inArizonawith thespecialists to treatpediatricpatientswith thedisease.Jacobis the only child in Arizona to have the disease and willprobably have to undergo treatment for the rest of hislife to survive. Each treatment can take up to six hours.

Jacob was born inNovember 2008. Soon after birthhe was diagnosedwith an enlarged heart,which led hisphysician to order a set of genetic tests. The resultsrevealedPompedisease, a grimdiagnosis that occurs inonly oneof every 155,000births. InPompepatients, theblood lacks an enzyme that breaks down glycogen.Theglycogen collects in themuscles and heart andweakens them. Mostpatientswill die fromthedisease within one year.

“In order for Pompedisease tooccur,bothsetsof parents have to carrythe recessive gene,” saysKirk Aleck, MD, pedi-atric geneticist at St.Joseph’s. “It’s very rare,and although the treat-ment doesn’t cure thedisease, it can allow Pompe patients to live close-to-normal lives.”

Only a fewyears ago, Jacobwouldhave diedbynow,butbecauseof advances in genetic testing and treatmentat St. Joseph’s, Jacob is expected to live a normal life.

“Jacob’s doctors told us that if his three-year-old sis-ter had been born with Pompe disease, she would havedied because therewas no treatment for patients at thattime,” says Brian Nothum, Jacob’s father. “There areonly 5,000-10,000 people in theworldwith Pompedis-ease. I hope thismovie brings awareness about the rarecondition our son lives with.” ■

Watch videos about other amazing patientstories at www.StJosephsAmazing.com.

Jacob Nothum

Athena Squires, RN,monitors JacobNothum’s treatmentas the child is heldby his father, Brian.

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S T . J O S E P H ’ S M A G A Z I N E26

BENEFACTOR BRIEFSThe Leader Circle: Will work for tips, give to charity

Members of The Leader Circle practicedtheir order-taking and tray-balancing skillsas servers at Wally’s Gainey Ranch onDecember 8 when the group sponsoredTips for Charity. The one-night fundrais-er benefited St. Joseph’sHospital andMed-ical Center.

The LeaderCircle is a network of com-munity leaders who support the missionof St. Joseph’s through commitments oftime and financial support.Membersmeetseveral times a year for discussionswith topphysicians and scientists, tours of the hos-pital, networking, and fundraising events.

Eight LeaderCirclemembers—Mary SueAasheim,Joshua Aylesworth, Christopher Collins, Erin Collins,MeredithDekker,RubenOlivas,Raegen Siegfried, andSteve Zastrow—participated in theWally’s event, alongwith four St. Joseph’s doctors—Jason Caplan, MD,Charlie Daschbach, MD, Patricia Glick, DMD, andFrank Schraml,MD.

Wally’s covered the tips their staff would normallyget, allowing the Leader Circle volunteers to pocket alltips they received.LeaderCirclemembers served aswait-ers and bartenders, urgingWally patrons to tip gener-ously in support of St. Joseph’s. One tip of $500 wasgiven,alongwithmanyother generous amounts.Wally’scontributed ten percent from their earnings that night,

bringing the total gift to the Leader Circle to morethan $3,600.

“Volunteers and patrons alike had a blast!” saysChristina Hall, development officer at St. Joseph’sFoundation.

If you would like more information about TheLeaderCircle, contactHall at 602-406-1046 [email protected], or visit LeaderCircle.org. ■

Photos from top: Leader Circle mem-ber Meredith Dekker, right, helps aWally’s server take orders.Participants included Frank Schraml,MD, Patricia Glick, DMD, Mary SueAasheim, Jason Caplan, MD,Christina Hall, and CharlesDaschbach, MD. Josh Aylesworth andRaegen Siegfried show off theirroses.

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S T . J O S E P H ’ S M A G A Z I N E 27

Eleazar I.Rodriguez,“ER,” lived just 16 years, but thoseyears were filled with courage, accomplishment, andheart.When he died inMay 2009,he left behindmanypeople who’d been touched by his caring spirit and acause that will help others facing a diagnosis of cancer.

ER’s Hat Rack collects hats for children with can-cer.The Comprehensive Cancer Center at St. Joseph’s,where ERwas treated,has an ER’sHat Rack in its frontlobby.

“He was a remarkable kid,” says Carol Prehoda,RN. “He lost a lot of his vision but he did not let thatstop him.”

ERwas first diagnosedwith abrain tumor at age four.Over the next 12 years,he endured several tumor recur-rences and ongoing treatment. Despite these hard-ships, ER led a full life. He played T-ball and baseball,learned karate and played the Tyco drums, violin, andbase drum. He enrolled in JROTC and dreamed ofbecoming aU.S.Marine.Hewas active in the Founda-tion for BindChildren and later in theNational Foun-dation for the Blind.

InMarch 2009,ER and his family came upwith theidea of gathering hats to give to children at cancer cen-ters. ERwas unable to put up his first hat rack becausehe died of cancer in May 2009. ■

If you would like to donate hats to ER’s Hat Rack at St.Joseph’s Comprehensive Cancer Center, please contactChristinaHall, St. Joseph’s Foundation, at 602-406-1046or [email protected].

Bring your kids, your friends, yourdog to Laura’s Run on March 27

Roundup your friends, your kids, even your dog, andhead for the Fourth Annual Laura’s Run on Satur-day, March 27, at the Scottsdale Sports Complex.You’ll have fun andhelp raise funds for a very impor-tant cause—theCenter for Thoracic Transplantationat St. Joseph’s Hospital.

The event goes from8-11 a.m.and includes some-thing for everyone—a5Krun,kids’dash,doggiewalk, auction, refresh-ments, and music. All registrantswill receive a T-shirt, and medalswill be awarded todivisionwinners.Registration is $25 in advance atLauraHar tBurdickFounda-

tion.com or $30 onsite the day of the run.LauraHart Burdickwas diagnosedwith leukemia

in 1992. Although she was declared cured in 1997,Burdick learned a year later that her lungs were irre-

versibly damaged. In 2003, she underwent lungtransplant surgery at Stanford Medical Center andreturned to Arizona to live a full life with her hus-band, Jon. In September 2005, at the age of 33, Bur-dick died of an intractable lung infection.

Because Phoenix did not have a lung-transplantprogram at the time of her transplant, Burdick hadto travel toCalifornia for surgery, rehabilitation, andregular checkups, tests, and hospitalizations. Thegoal of the Laura Hart Burdick Foundation is tosupport the Center for Thoracic Transplantation atSt. Joseph’s, the only lung transplant program in theValley.

Proceeds from Laura’s Run will support theAmbassador Program at the St. Joseph’s transplantcenter.The programprovides patients undergoing atransplant evaluationwith a knowledgeable compan-ion to help themnavigate the evaluation process.TheAmbassador Program also offers qualifying patientsassistance with lodging expenses. ■

ER’s dad, IgnacioRodrigez, assembles an

ER’s Hat Rack in theComprehensive CancerCenter. Carol Prehoda,

RN, displays ER’sfavorite hat—a Marines

hat.

Young man starts ER’s Hat Rack to help children with cancer

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Record number of toys donatedto St. Joseph’s during holidays

Anestimated2,500new toysweredonated to St. Joseph’sduring the holidays. The generous donations enabledthe hospital to provide toys to each child at St. Joseph’sduring the holidays. The remainder will be usedthroughout the year to make children’s stays at thehospital a little easier.We would like to thank these benefactors for their

efforts inmaking 2009 a banner year for toy donations:• Daisy Mountain Firefighters and the Outlets atAnthem

• KEZ Radio and their supporters, including ABCNissan, UNITS Storage Pods, and various officesand individuals

• The Arizona Diamondbacks

• The Phoenix Suns, Fry’s, and the Roomstore

• The Arizona Cardinals

• AngeliqueWhite

• The Ronald McDonald House

• Gainey Men’s Club

• Go Daddy

• TheDepartment of Public Safety and the PhoenixFire Department

• Andrea’s Closet

• Jenna Bears

• Carter’s Bears

• Emily’s Toys for Joy

• Top Shelf Collectibles

• Ardie and Steve Evans ■

Toys brighten the day of hospitalized children, suchas Rachel Pulido, walking with Child Life specialistCourtney Kilpatrick.

First Things First Foundation plansteen activity area at St. Joseph’s

The First Things First Foundation and St. Joseph’sHospital have announced plans for aWarner’s Cor-

ner recreation area for teenage patients to open in2010 at the hospital.Warner’s Corner gives teenage patients an oppor-

tunity to take a time out from the countless hoursspent in recovery. This high-tech area for teens willfeature computers and equipment for movies, videogames, and music to supplement the hospital’s cur-rent recreational areas, which focus on activities forsmall children.First Things First has received generous commu-

nity support, including a $25,000 challenge grantopportunity from an anonymous donor that will bedesignated toward the cost of this new recreationalarea. Benefactors are needed to help meet this chal-lenge grant.To learn more aboutWarner’s Corner or to make

a donation, visit www.kurtwarner.org. ■

Kurt and Brenda Warner reach out tohospitalized children through the FirstThings First Foundation.

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A remodeled family waiting room for the PediatricIntensive Care Unit (PICU) at St. Joseph’s openedon Feb. 26, thanks to funding from the family ofCameron T.Haselhorst, a former PICU patient.

Cameron’s family, including his mom, Tiffany,and dad, Cameron, sponsor the Superstition PaintHorses Open House each year to raise funds for thePICU. This year’s event is scheduled for Saturday,April 3, in QueenValley,with a golf tournament tofollow on Saturday, May 1, at Gold Canyon GolfResort.

The Open House will include a horseshoe tour-nament, poker tournament, motorcycle poker ride,

and volleyball challenge between St. Joseph’s andMercy Gilbert and Chandler Region-al medical centers. There will be bouncies, face painting, an Easter egg hunt, auctions,raffles, live bands, vendors, and free lunch. Everyone is invited!

The OpenHouse will be held at 1670W. Scissortail Place,QueenValley. Take US 60east tomilemarker 212, and follow the signs.Formore information, call 520-463-2898.

Cameron’s family has given more than $40,000 to St. Joseph’s to thank the hospitalfor the care the child received in 2002when hewas born prematurely and in 2005whenhe spent more than five weeks in the PICU. At one point, doctors said that Cameron’schance of survival was only five percent. ■

Angelita’s Amigos wins 2009Arizona Cardinals award

Angelita'sAmigos is thewinnerof the2009ArizonaCar-dinalsCommunityQuarterbackAward,which includesa $10,000 gift. Bob and Joann Olivas, the founders ofAngelita’s Amigos, were surprised and elated by theaward.

The competition drew63 entries this year. Six final-istswere introducedduring ceremonies to announce thewinner. Angelita's Amigos was introduced last to acheering crowdofmore than 60,000, andMichael Bid-well presented the check to the Olivases.

“This award is so deserved!” says Mary Jane Crist,CEOof St. Joseph’s Foundation.“Angelita’sAmigos hasgreatly improved the lives ofmanyhospitalized childrenat St. Joseph’s Hospital.”

Angelita’sAmigos raises funds tobuild family-friend-ly patient rooms at St. Joseph’s for childrenwith chron-ic and often terminal illnesses. The Olivases foundedAngelita’s Amigos in 1988 to honor their daughterAngelaGrace,whodiedof leukemiawhen shewas four.

Angelita’s Amigos has contributed nearly $200,000to St. Joseph’s Foundation.There are now14Angelita’sAmigos rooms at St. Joseph’s.

The Angelita’s Amigos 15th Annual Golf Tourna-ment is scheduled for Sunday, May 16, at the Wig-wamGolf ResortandSpa.Thedeadline for registrationisMay10.Formore information,call BobOlivas at 602-290-1063 or visit AngelitasAmigos.org. ■

Family of former Pediatric ICU patient funds waiting room remodel,invites you to their annual fundraising Open House in Queen Creek

Cameron T.Haselhorst doesthe honors duringa ribbon-cuttingceremony for thenew PediatricsICU waiting areaon Feb. 26.

Bob andJoannOlivas

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S T . J O S E P H ’ S M A G A Z I N E30

NEWSSt. Joseph’s launches Valley’s onlypediatric heart transplant program

St. Joseph’s is launching the Valley’s only pediatricheart transplant program,and the program’s first hearttransplant could take place soon.

“St. Joseph’s transplant program is unique to the statebecause we are focused on pediatric heart failure andtransplantation,” says John Nigro, MD, heart trans-plant program director at St. Joseph’s. “Our goal is towork with community and regional hospitals andphysicians to provide a local option for pediatric hearttransplantation. We’ve established all the necessaryelements and are ready to proceed with the program.”

In mid-November, St. Joseph’s received approvalfrom theUnitedNetwork forOrgan Sharing (UNOS),the non-profit organization that coordinates trans-plant activity in the United States. St. Joseph’s expectstoperformapproximately five heart transplants per year,making it a medium-sized program when comparedto other major pediatric heart transplant centers inthe U.S.

Dr.Nigro and St. Joseph’s heart-transplant team—medical director Stephen Pophal,MD, transplant car-diologists Edward Rhee,MD, and Robert Puntel,MD,and Susan Parks, RN—gained expertise and extensiveexperience at national transplant centers and will usethis knowledge to establish these capabilities inArizona.

“This is a community ofmore than fourmillionpeo-ple, who until now had no dedicated pediatric hearttransplant program. Currently, most children travelout of Phoenix and even the state to receive their trans-plant,” says Dr. Pophal.“Patients must receive lifelongcare after their transplant, which includes daily med-ications to prevent organ rejection and regular check-ups with specialists. They will now be able to do all ofthis locally.”

Pediatric heart transplants are among the mostcomplicated procedures, and patients require a lifetimeof care.Aheart transplant is recommended for childrenwho have serious heart dysfunction and cannot bemanagedwithmedications or other surgeries.Doctorsat St. Joseph’s say this can affect children from only afew days old into adulthood, and the program is pre-pared to support the needs of all of these patients.

InArizona,10 to 20 children per year are candidates

for heart transplantations. Currently, the UniversityMedical Center Tucson andMayoClinicArizona haveadult heart transplant programs with some pediatriccomponents.

This will be the second transplantation programlaunched at St. Joseph’s. In April 2007, the hospitalcompleted theValley’s first lung transplant. Since then,the Heart & Lung Institute at St. Joseph’s has com-pleted 38 lung transplants. ■

John Nigro, MD

St. Joseph’s named #1 Best Place toWork in extra-large categoryFor the second year in a row, St. Joseph’s has been namedthe #1 Best Place toWork in the extra-large company cat-egory by the Phoenix Business Journal. St. Joseph’s is theonly hospital to be named one of the Valley’s Best PlacestoWork for seven consecutive years. In addition,St. Joseph’swas recognized recently as a Top 100CardiovascularHos-pital by ThomsonReuters.The annual study identifies thenation’s top providers of cardiovascular care. ■

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S T . J O S E P H ’ S M A G A Z I N E 31

Drive Me Safe offers free child seatsafety checks, installationsIn Maricopa County, more than 85 percent of child safety seats areused incorrectly or not used at all. St. Joseph’s is working to combatthese statistics with theDriveMe SafeCar Seat Check Station.Locat-ed on the hospital campus in the Third Avenue Parking Garage, thecar seat check station is open to anyone who wants to learn how toinstall child car seats, including infant carriers, convertible seats,combination seats, boosters, and seat belts.

“Our job is to teach the entire family to travel safely,” says Bran-dyn Speckman, community education specialist.“Properly installedchild safety seats reduce the risk of death of infantsi n passenger carsby 71 percent, and for toddlers ages one to four the reduction is 54percent.”

To schedule an appointment, call St. Joseph’s Resource Link at 1-877-602-4111.

“You’ll learn how to properly install your child safety seat and bestprotect your child in a crash,” says Brandyn. ■

New Outpatient Imaging Centeropens at St. Joseph’sSt. Joseph’s has opened a new state-of-the artOutpatient Imag-ingCenterwith the latest digital imaging technologies.The cen-ter has been designed to provide comprehensive diagnosticimaging services alongwith outstanding patient care and serv-ice. A team of board-certified radiologists and neuroradiolo-gists, certified technologists, and staff provide personalizedcare to patients.

The 17,000-square-foot center is located on the first floorof the hospital on the west side of Third Avenue just north ofThomas Road. Features include complimentary valet parking,free self-parking in the ThirdAvenue garage with validation, aWaitingRoomConcierge for easy check-in and registration,andtransportation service to other hospital campus anddepartmentdestinations.

Digital mammography, ultrasound, bone densitometry,MRI,CT,PET/CT,andnuclearmedicine are available at the cen-ter.

For information or to schedule an appointment, call 602-406-6700. ■

Baby Alexandra Burke and her mom, AmyFlynn, await a free car seat installation at St.Joseph’s Drive Me Safe Car Seat CheckStation.

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S T . J O S E P H ’ S M A G A Z I N E32

WILLPOWERUSE IT OR LOSE IT

As we all set our goals for the newdecade, willpower can help us stay on

track. Willpower can help us make goodchoices, be determined to stay the course,and help us succeed in making our goals.

There is another kind of willpower thatso many of us forget to use. That’s thepower of having a last will and testament.Over the last three decades, about 75 per-cent of Americans have died withoutpreparing a valid will.

Without a will, anestate may face the maxi-mum in applicable pro-bate costs and taxes. Inthe event of any familydisagreement over distri-bution, legal costs sky-rocket. By the timesettlement occurs, hun-dreds or even thousands

of dollars might have been lost. In somecases, heirs can actually end up bearing thebrunt of out-of-pocket costs.

So this decade, let’s not overlook thepower of having a will and include itspreparation as one of our goals.

For a free will planning booklet, pleasegive me a call at 602-406-1042 or email meat [email protected]. ■

by Kathy KramerVice President

‘Willpower can help us make

good choices, be determined

to stay the course, and help

us succeed in making our

goals.’

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great grubb great golf

Golf‘n’

Grubb

great cause!Lou Grubb Friends Fore Golf

April 22Cocktail party, dinner, raffle, auction, and DreamGreen party putt

Scottsdale Plaza Resort

April 23Golf tournament, lunch, dinner, and awards

McCormick Ranch Golf Club

Call 602-406-3041 or visit LouGrubbGolf.com for information

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CHW ArizonaSt. Joseph’s Hospital and Medical Center350 W. Thomas Rd.Phoenix, AZ 85013

Nonprofit Org.U.S. Postage

PAIDPermit No. 685Phoenix, AZ

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