Social Care Issues Mary C. Hogan National Task Group on Intellectual Disabilities and Dementia...
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Transcript of Social Care Issues Mary C. Hogan National Task Group on Intellectual Disabilities and Dementia...
Social Care Issues
Mary C. Hogan National Task Group on Intellectual Disabilities
and Dementia Practices
Common Themes
• Fear • Lack of information• Isolation• Struggle to access coordinated care• Difficulty partnering with medical community• Overwhelmed by demands of caregiving• Profound sense of Loss• End of life issues
Aging in Place
“Aging in place” requires a commitment to:–On-going caregiver training– Increasing staff –Creating a calm, safe, “enabling”
environment–Person centered planning–Supporting family/peers and monitoring
their quality of life
Coordination of Care
CPerson
Evaluation
PlanGoals
Assessm
entReassessment
Family
Group Home
StaffHe
alth
Car
e P
rovi
ders
Day Program Staff
Model Developed by Kathleen Srsic-Stoehr, MSN, MS, RN, NEA-BC
Peers
Employers
Community Support Services
Colla
bora
tion
Com
mun
ication
Coordination
Action
Strengths & Challenges
3/18/13 Version
Staff Challenges • Dementia care is the
opposite of everything staffed was trained to do…no longer about skill acquisition.
• Communication, coordination and collaboration in care planning-how does this happen?
• Day to day care• Medical care
• Photo removed for privacy.
Staff ChallengesGiven the tools to modify the environment, staff can:
be empowered become proactive problem
solvers avoid sense of helplessness
Training related to disease process is often short term rather than on going.
Care giving is a difficult job!
• Photo removed for privacy.
Staff Challenges• Day programs can
• be too large• exceed staff capacity to “care” • impact quality of life• be an inappropriate placement
• Acknowledge and support • staff • housemates
experiencing grief and loss.
• Photo removed for privacy.
Getting started Facial Expression Tone of Voice Body Language
Approachfrom the front Smile Identify yourself
Use theperson’s name If possible, beat eye level
Establish andmaintain eyecontact Be friendlyand relaxed A ways rememberhumor: smiles andlaughter go along way Be patient andsupportive
Speak slowlyand clearly Use a gentle &relaxed tone ofvoice Convey an easygoingmanner
Avoid suddenmovement Be open andrelaxed withyour stance Remain calmand confidentto providereassurance Use gestures such as pointing Give visual cues
National Down Syndrome Society: Aging and Down Syndrome: A Health and Well-being Guide Book
Maintaining Quality of Life
“We can do better…”