MN STATEWIDE INDEPENDENT LIVING COUNCIL

Meeting Minutes – September 14, 2017State Services for the Blind

2200 University Avenue West, #240

St. Paul, MN 55114

Members PresentAnita Olson, Melissa Doherty, Mary Koep, Meredith Kujala, Gloria Lafriniere, Linda Lingen, Brian Wagner; On Phone: Jessica Andrist, Rose Ann Faber, Kim Hicks, Zainab Jama, Renee Solomon-Wise.

Members Absent, ExcusedHeather Allyn, James Lovold.

Members Absent, UnexcusedShelly Pflaum, Mark Smaaladen.

Ex-Officio, PresentBrad Westerlund, David Fenley, Annette Toews.

SILC CoordinatorPam Taylor

Minute TakerSuzanne Renfroe

Welcome and Introductions: Anita “Name of your first pet and what you thought of it?”

Agenda approval: Anita

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Mary made a motion, Linda seconded to approve the September 14, 2017 agenda. Motion carried, unanimously.

Minutes approval for August meeting: Anita The following changes were made by Melissa and Anita. Page 5, under the question, ‘Was the map changed for the video?’ Anita’s first comment should be struck, and should just say: “Anita asked about the 511 projects.” Melissa move, Meredith seconded. Motion carried, unanimously.

Public Comment:None

Presentation, “Comprehensive Plan to Prevent ‘Abuse and Neglect’ of People with Disabilities”Guests: Nancy Fitzsimons, Doren Korte (Assistant Commissioner, MDE), Diane Doolittle (project manager) – State Olmstead Specialty Committee

About the Subcommittee:

30 members: people with disabilities, family members, academic researchers, County members, crime victim advocates, DHS, MDH, and other staff from MDE.

Gaps with: disability groups, racial and ethnic groups.

Goal: present a comprehensive plan to prevent abuse.

Orientation presentation is an hour long.

“What is disability?” “Vulnerability?”

They are here today to find out: ‘What are our concerns around this? What are our ideas to putting together this plan?”

Questions/Comments:

If you’re speaking with people who aren’t sensitive to the issue; you say it is a SERIOUS problem in Minnesota. What are you using to determine that? What are you using as a basis to define that?

One of the problems in our systems: ‘What kind of data is looked at, and is it good data? Limitations: define what abuse and neglect are differently.

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Answers:

We did get the Developmental Disability Council’s input, and did a MN based analysis.

On the National Level, we used the ‘Victims of Crime Survey’, which has been collected since 2012. It consistently shows a higher rate of people with disabilities; they are 2-5 times more likely to be involved in personal crimes.

In Minnesota, the number of reports we are getting has more than tripled: There is certainly some evidence that this is a significant issue for people. Looking at multiple data sources; children with disabilities are overrepresented in child protection. Looking at the MN School Survey (i.e. bullying), pieces that are problematic are consistent across the country and globally, that people with disabilities are higher.

Question/Comments:

Moving to ‘Social’ from ‘Medical’ model never worked. Must start with system change. I’m from a rural area, and can understand that is still prevalent in the metro area.

Are Personal Care Attendant (PCA) services included? Tribes have just developed codes. There can be a large amount of bullying to elders and disabled adults. For instance, is there drug testing? Didn’t used to be. Is there anyone to watch if PCA is bullying and/or taking advantage of the client? We need better assessments. Family members are great in practice, but the reality is, they can do more damage. Most people do not feel comfort reporting family members.

Answer:

This has been greatly discussed in both subcommittee and Olmstead. The way that system is structured; the pay is so little, and people are just there until they can move on to something else. It wouldn’t surprise me at all about noncare. Something we have heard consistently and will have to look at. We don’t have answers for everything. We are listening and understand the complexity. We will take this back to committee for further investigation. The difference in issues for pay, and you don’t have someone to do the job: ‘How do you intervene between the family and a paid caregiver?’

Comments (further explanation of above question):

Many times, family becomes PCA and the issue (or part of the gap, is how much do you get into rural areas? The MN ‘triangle’ (St. Cloud, Duluth, Rochester) is done; but rural towns are not addressed.

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Answers:

No doubt there will be some gaps. That is one of the reasons we are here, to get that information. We’ve been reaching out to people, to go back to their communities and get input.

Going to different areas is an opportunity to hear from those people. We have a session planned for Bemidji. We are reaching out to 3 tribes in that area and the communities around them.

Question/Comments:

In my area, Meals on Wheels is a wonderful resource for making sure people are getting services.

Echoes everything that’s been said. Please come to Brainerd.

How is Olmstead and ADA related?

Answer:

The Olmstead case started in Georgia. It involves Title II of the ADA; how people with disabilities are going to live, work and play inclusively. Assistant Commissioners came together and wrote plan under Governor’s order. The plan is a requirement of ADA.

Comment:

There is an ignorance in the community that these rights exist. We need education and the Chamber of Commerce to take the lead on training sessions on how to comply with ADA. This is very personal to me with regards to Senior center only catering to people who are capable. My husband has dementia. The director said she couldn’t leave him. He needs to be accommodated. This is wrong; center should be for any senior, even with disabilities. I served in government for 38 years. Last spring, the city of Brainerd had a public hearing of how they are handling ADA. The city is deficient in handling people with disabilities.

Answers:

Thanks for bringing this to our attention. We will bring it back to the committee. ADA doesn’t have strong enforcement systems. State Council on Disability has permanent funding to work with businesses to become compliant. David Fenley will help you and he would be happy to talk to you about what their responsibilities are. The other thing, in terms of listening sessions, not an excuse, when someone says we’re going to form a committee, we have some time, under this government, to push some things through. If you have a mechanism for them to come to Brainerd, they would be happy to come there.

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Whatever comes out of this plan is given to subcabinet, who can make changes and will adopt it. In a perfect world, they would have someone to work full time and try and put through the changes. Governor has one session left before change. They will do everything they can, but will have to reach out to Chambers of Commerce to make these things happen.

Comments:

There is no transportation for deaf/blind in rural areas. Outreach is difficult to these very vulnerable people. Far too much time is spent punishing people as opposed to educating them beforehand so they won’t do the wrong thing. We should educate people to do things that aren’t reportable offenses. There are power/control wheels that have been adopted for people with disabilities to look at.

PCAs were mentioned. There is a lack of staff. One member hasn’t been here because he has no one to help him get here.

We should also think about what is not happening in communities of faith. To them, ADA is about people getting in the door as opposed to how to help them feel welcome.

Question/Comments:

If you work with the Centers, they can help you hold listening sessions around the state (if they are willing). There are 8 CILs in MN. Will give you cities/towns that aren’t actually metro or rural.

Absolutely, that’s why we exist. Would love to collaborate.

I agree that the lack of education exists with a lot of businesses. Working towards more efforts.

Also, PCAs aren’t trained on how to treat people. How you ‘have to’ treat an individual.

A lot of the response from Chamber of Commerce, “I should be doing this”, they connect with, “I have to spend more money”. It actually saves money in litigation. Starting out from that perspective, ‘How are we behaving and how does this benefit our community?’ Systems change and some initial change might involve some money.

Listening session with SMILES regarding people using PCAs. Not time to do the whole state but maybe places that we aren’t reaching; places doing things differently than in the Metro area. Colleague, Nancy Fitzsimmons wrote a book, “Combating Violence and Abuse of People with Disabilities”.

Gaps in membership? What are you doing to try and fill them?

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Answers:

Done some things in trying to fill those gaps: Community capacity building; talking to people who are connected to other organizations so they can go and talk about these issues with their communities (i.e. MN against Sexual Assault); asking to have representative so they can be connecting with their network.

Gaps are: representing people of color, so have done broader outreach; rural MN, must reach out.

Mentioned Cynthia Moore who was valuable and made some really important contributions in those meetings she came to.

Meals on Wheels – hadn’t come up and how can they help with solution.

Question/Comments:

Maybe try colleges.

Meals on Wheels is huge. Sometimes they are the only contact people have for resources. For example: monthly cost was $359 for microservice, $15 fee to AT&T, now $500-600, includes WiFi. People in poverty can’t afford.

There are major issues with getting employment opportunities in areas where there is no transportation.

From which rural communities do you have representation?

Answers:

There is not a strong rural presence serving on committee; lack of applicants. There’s someone from Rochester and I’m from Mankato. Membership is mostly metro. Part of the challenge is cost to coming back and forth to meetings. There is no money to reimburse people for this.

The large Olmsted Committee includes DEED and DOT. Conversations are happening at subcabinet committee. The limitations are that meetings are held in the metro area, and there is a short amount of time. You will hear from us again. We are doing the best we can with the resources we have. On the back end, there is a lot more rural involvement.

Questions/Comments:

When are you coming to Bemidji? Will you take blanket recommendations? People in rural areas don’t have presence and their needs are different than metro.

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Seniors homes become a ‘sandwich generation’ due to drugs. There is abuse from the middle generation. Background check is better, with the drug check. However, PCA training is not good. Maybe with an incentive, we can move to CNA training. This would keep people from being in isolation and going into nursing homes. Benchmarks need to be put in place. Federal programs don’t work with each other. Our culture takes care of mind, body, and spirit (i.e. where we find out what’s happening with grandma. Sometimes Meals on Wheels is the only contact that seniors have. Example: If grand- mother is taking insulin; issues are: how to get her to the clinic, 80 miles away; and, who will take care of the grandchildren. A lot of trends are changing. Grandmother is in her 70s, taking care of 6 kids; and have to work 30 hours to get her MFIP check. Why can’t we marry these two?

Answers:

We will write comprehensively, what we need to do. This is our vision. Darren’s wheel house, what are some of the priorities we want to put first to work with these agencies for these things to happen. It has a robustness of where it needs to go. We will push for where this needs to go to make this happen. We are creating a document to go back to for future reference. Been meeting with people on committee; have an 18-page global document of everything they’ve been talking about, for people to make comments. Can read through the weaknesses of what the committee’s been thinking.

October 30th, we are going to Bemidji (tentatively). The space will hold 50 people.

Commissioner’s phone number: 651/582-8215.

Comment:

Gives us a deliverable. It is more cost effective in the long run the more we integrate.

Answer:

Talked about System weaknesses: languages; definitions, “abuse and neglect” – treated as a one size fits all. Understanding sexual violence has its own character as opposed to neglect (intentional); caregiver with own issues. Abuse -- not seen as a crime, lack of criminal system engagement, not victim-centered.

Lack of options, resources and supports for victims; lack of protocols to connect people together; minimal for disability advocacy organizations; risk reduction for people with disabilities, doesn’t focus on vulnerability.

Cookie cutter – don’t look at quality of relationship; provider training deficits.

Workforce issues -- quality helps them best do their jobs.

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Lack of primary prevention -- harmful but not community-based; legal aid.

MN has no disability awareness campaign – reinforces the negative.

Not all systems use best practices, trauma informed.

Comment:

One of the things we are trying to create is an IL brand to have a very positive identification for all disabilities across the board; could benefit Minnesotans with disabilities.

Answer:

I believe that, we as a state, are not taking advantage of the systems in place. Encourage us to cover the state. It would be helpful to have a conversation about what roles do we see the CILs in addressing these issues; around risk reduction and training.

Comment:

Systems are isolated from the other; each one has their own rules, how they see their own things. We need to collaborate better, not sit in our own box. Pull all those parts together and have one system that everyone knows (education, child protection, law enforcement, etc). No one talks to each other, everyone wants to keep their own money.

Answer:

If you look at issues around the state, the money that we are looking at (after the response):What is the role of disability organizations and what do we think about doing the work; direct access/empowerment-based perspective, and not from a charity or service-based perspective. What would happen if you started putting money in organizations as a ‘rights’ perspective as opposed to a ‘charity’ perspective. Very little money that state provides to the network of people providing the work. The little bit of money from the Feds is to the Office of Violence Against Women. They are trying to reach out to women with disabilities, just because of their funding.

Pam: ‘Fill out form: and then break!’

Review of SPIL Goals: Year 1: Anita

Goals A: Stengthen the Infrastructure of Minnesota’s Independent Living Program

Work collaboratively. NCIL Conference, didn’t prepare with MACIL, but will do this year. Did so at the state and at Federal level. Worked on funding and funding needs.

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That has been worked on with Network of Centers. This year they focused on nursing home relocation and did research with other CILs and SILCs. Other states aren’t doing as much because they have to look at return on investment. Michigan is looking at Skills Training, how many people are working on, have achieved their goal.

Network of Centers – what are we going to do with that? Do we want to do anything? MN can provide some leadership. Talked with Don Burnette. They are going to gather some numbers after Sept. 30th. We did look at prevention services, how much money we’ll be saving. It’s a small number.

Activities Year 2:

Continue to work cooperatively with MACIL to prepare and carry out the 2018 Legislative Agenda.

Continue to provide Part B funds.

Activities Year 1, Objective A:

Started recruitment brochure. In process of being printed by DEED.

Will have brochures for Health & Human Services Conference in Duluth.

Brad: Copy me about printing matters on correspondence to John.

Look at other conferences.

David: 5 Job Fairs are coming up within the next 2 months that are aimed at people with disabilities.

Survey has been done and used information for people to do certain jobs.

Continue to fund Coordinator.

Activity Year 2, Objective B:

Evaluate the use of a job fair as a venue for recruiting; and make recommendations for targeting recruitment in the future. (Talked about increasing this activity).

Have information regarding work done previously, but there are some more opportunities.

Activity Year 2, Objective 3A:

Outreach has been working on this. Cynthia was instrumental in providing leadership. (In process, but a ways to go).

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Held IL Conference.

Activity Year 2:

Analyze results of IL Conference -- being done.

Question:

Don’t understand Year 1 bullet point and 1st one in Year 2: ‘Continue to provide funding assistance to allow other CIL representative participation.’ Is it just a matter of organizing some funds and figuring out a rotation or contacting other CILs for coming to meeting and provide funding.

Activity Year 2, Goal B, Objective B1:

Been doing some investigation and research under Network of Centers. Ready to go to next step of ‘Building Consensus’. We’ve gathered information from working lunch session at Conference. All the Centers, their staff, and SILC members want to participate.

Activity Year 2:

We’re coming into that now. We already collect personal stories (3 to 4/year) for the Annual Report, and can use them.

Activity Year 2, Objective B2:

Activity Year 1:

Haven’t done anything, but talked about it a little yesterday at the Orientation Training. Some things didn’t move along as fast or get started, due to time restraint. Not a huge deal because these are only guesstimates.

Begin to implement.

Activity Year 2:

Some things occur that MCIL, SEMCIL and Lifestyles are working on through a grant from Kansas. Hopefully, information will be able to be used by all the Centers. (Leadership and Engagement for Leadership Training).

Comment: Nancy mentioned that she’s originally from IL (IL Imagine Project engaged in by their CILs developing information).

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Activities Year 2, Goal C, C1:

Activities Year 1:

Haven’t done a lot with this, it has taken a back seat.

We are promoting increased funding for CILs but hasn’t been put into a policy format. We can look at MACIL and NCIL, then decide what we want to do.

Goal C, Objective C2:

Activities, Year 1:

Did at least one training with MSCOD, and had resources at the Conference.

We have done some visits with state and Federal, so we are in process with that. It’s just timing and getting it set-up on calendar.

Activities, Year 2:

Cara gave an update.

Talked about having more involved trainings; reviewing and revolving, not just introductory.

FINANCIAL REPORT: Brian WagnerNew form that’s easier to work with. Thanks to Kim and Annette.

Pam:

Entered information from other form.

Some information didn’t have.

Completed August with other categories.

Easiest thing is to print it out so everyone has it.

Each column has automatic adding.

ANNOUNCEMENTS: Anita Tammie had to resign due to health issues.

Linda and Anita – going to SILC Conference in February.

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Those who are on the Reports Committee will be working over lunch in Conference Room E, through the security doors.

Lunch: 12:00-1:00pm

Updates: Pam and Anita Pam: SPIL revision committee. I am part of it because we are a 723 state. Draft of the new document will be coming out in early November. Another group through NICL is also working on it. It will look a whole lot better: trying to reduce redundancy; more user friendly; flow better; and, make more sense. Document is done and will be going through the Centers for them to review. Then, it must go through the comment period. Don’t know about the SILC part yet. Hoping by next SPIL writing time, we will have a better document. This year we will use the same 704.

Anita: Nominations for Executive Committee. Please let Pam know if you are interested. We will have elections next month. So far, there are none. Please consider applying. This includes people on the phone.

704: Anita and PamAnita: We had a brief report meeting over lunch. Worked on both the 704 and Annual Report. We will get our part done; and we’re asking everyone to fill out their part.

Pam: reviewing our part of the 704:

Federal agency overlooking report used to be called RSA (Rehabilitation Services Administration), is now ACL (Administration for Community Living).

We are a 723 state, Maryland is the other one.

Table of activities for the year (Oct 1 – Sept. 30).

Character and word limits in categories.

Narrative Section – those areas that can’t be captured in the assigned space, can be put here.

SSB reports on their outreach activities.

Section for the working relationship with other entities.

SILC – composition of committee, describing statewide representation using several factors: backgrounds, identified disabilities, voting members, state plan development; coordination with other councils, and adhering to public requirements.

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Survey – conversation about not using it anymore. It would be better to have a blank box to write in areas for interest.

SPIL Information Updates – accomplishments and substantial challenges.

Reports committee will draft this and bring back to the council for comments and feedback at the November meeting.

Information, based on your feedback will be inserted. A final look over will be done in January.

Report is submitted January 31st.

OTHER REPORTS:

Vocational Rehabilitation (VR): Brad

One update regarding WIOA, Section 511.

Last year we asked Centers about individuals who were working at subminimum wage. We asked them to fund this unfunded mandate under DEED. There were 15,000 people that we had to reach and ask, “Would you be interested in looking at this and seeing what are some other options.” They contracted with each CIL. They did an amazing job and added extra staff as needed. Total number served was 11,802; 1,190 (16.86% of total) said yes. Moving forward, the biggest challenge is working with the 1,190 who said yes and figuring out the next step. Start by having a conversation to establish a relationship and refer them to VR.

Melissa: CILs are meeting 1-on-1, and with a community rehab provider (someone with a 14C Certificate, licensed to provide sheltered workshops). Staff is giving them an opportunity to share their goals (what they are doing, what they want to do, and the barriers); along with IL philosophy. We’ve been through one state fiscal year. The individuals that say yes are then asked if they want to work toward ‘competitive integrative employment’. If he/she says yes, staff facilitates a team meeting (i.e. finds out if there is one within the next 3 months, or arranges one). The individual expresses to their team what the barriers are. It is going well, with opportunities to work in other IL areas for the individuals. They aren’t immediately referred to VR, CILs provide support. It is always consumer-directed. Very excited about the prospects of working with community rehab providers and businesses to create more opportunities where none exist; not a lot in rural areas. The hope is that it expands (regulations won’t stay the same). All CILs have been appreciative of VR support (i.e. training, how to facilitate those conversations, and allowing individuals to speak).

Brad: Rare to have people at the federal level to speak. Thanks to Kim! Unfunded mandate, no one else is doing it this way. What does it mean for the future of this mandate?

Pam: What thoughts do you have about the people who didn’t want to make that shift?

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Melissa: For those people, we do note the ones who are not able to go, like what they are doing. Staff is intentional about not coaxing their answer, part of the IL philosophy is choice and presenting the opportunity. Come back next year, it is annual.

Brad: At any point in time, they can change their mind. Other Centers do this, but you have no idea of the barriers. You have guardians saying no. Everybody understands that it is about choice. One of the reasons this may be a little bit slower is people questioning, “What is this?” We would be anxious to have half of these people. Year 2, better data because we’ll be ‘one year in’. Some guardians were concerned because they were not used to allowing their individuals to speak for themselves. It exceeded my expectations. A lot of them are progressive, finding community employers.

Brian: When you say the client is given a choice where they want to work; What they might want to do?

Melissa: We don’t give them options, just ask them what they would like to do.

Anita: When a person says, “No, I do not want to explore working in the community? What is the process then?”

Melissa: There is a form (by an unbiased third party) that they must fill out to demonstrate what was offered to them. Next year we meet with them again to find out what they want to do.

Brad: Mandate is very vague. Nationally there is different methodology (i.e. given a flyer, here’s what’s happening).

Anita: Is there another clear reason that VR needed for refusal of services? It’s my understanding, there is confusion as to how that person got into that?

Melissa: If they refuse the process, that’s a refusal. Lots of fear that if they refused the service, services would be discontinued; no longer eligible. Lots of misinformation about this, so we did a lot of outreach.

Brad: As we get into Year 2, there will be a lot more work with DHS, and what data we’ll be looking at.

Pam: The hope is that you will consider using this as an opportunity for a presentation; whether it’s with NILC or some other workshop, so people could see what is a good collaboration. Great opportunity for them to share that.

Brad: Already been talking to Iowa and Wisconsin. We are waiting until we have more clarity about what is required and if some of that changes. Our relationship with the collaborate groups (i.e. SILC, CIL, SSB, etc.) is different from other states and more unique. Jennie and other federal VR staff comment on MN and the effort at collaboration with these organizations in our state is very appreciated at the federal level.

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Not sure about the meaning of this part: {David – our agency and myself; VR chose Cadillac model is not the enemy; organized multiyear propaganda (nationally/statewide) – very organized; surprised they got 16%; been lucky to get 2% if they mailed them out. When were they done.}

Melissa: There are 16 sites in MN and 12 providers. We split up our area, with a key staff person in each area. It was coordinated with community providers and held once a month, for a total of 3 sites a month. It was offered during the workday and sometimes evenings. The session started with a presentation, however some people were still defensive. Our staff was available at provider site for 1 on 1. Each CIL might have been different.

Brad: All sites are similar in that they had a rotating schedule. It was usually done right at the site. Seeing where we are now, I think that Year 2 will be easier. Moving forward, now people get it.

Melissa: Presented a very short video of service to the provider, who then put out flyers with their availability. The trimming of staff is ongoing. We continue to work on facilitating them and give individuals an opportunity to express themselves.

David: Thank you for doing this. It’s been kind of a climatic few years. Very noble to approach these interviews objectively. Didn’t present your side of equation.

Melissa: We can provide IL options, and inform people; but not make choices for them. “We’ll go with you, but it always is your choice”. It did fit well. Staff struggled the most where caregivers/guardians provided barriers, had different opinions.

Brad: CILs most capable but there needs to be a line in the sand. Those areas where guardians and providers wanted to say no, but they had to understand if they refused, then the collaboration is done. Find a way to open the doors for more CIL involvement.

Anita: Is there anything else that they are collaborating with transitioning youth?

Brad: At this time, no. The focus is with VR staff.

Melissa: It has to go through a process.

SRC-G: Anita

We are losing 3 or 4 members, and starting elections. Working on the annual report. Not a lot to report.

SRC-B: Rose Ann

(Not on phone.)

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SSB: Annette

Just have two things.

Outreach -- Launching a new website; will no longer be buried in DEED website. Permission for DEED to be one of the exceptions. A few folks are working hard to have it done on the 19th. Mnssb.org (not sure?); google, “MN state services for the blind”.

Oct. 24th, 5-8pm -- Minority outreach committee is having a community event. They are inviting many people from the target audiences.

Minnesota Council on Disability (MCD): David

We also are updating website so it’s not buried. Launching in September as well.

Oct. 10th, Noon-2pm; office, lower level. Digital Accessibility Forum. It is aimed at metro businesses, to help with avoiding lawsuits, including website inaccessibility.

State Fair was a smashing success; love when SSB comes out. We connect with thousands of people. Disability community comes out in droves. Still some blocks need curb drops. This year’s question, “What does access mean to you?” We had a quasi-survey directed at policymakers; asking, ‘Do you know who to contact if there is an accessibility issue?’ SSB got the most people to fill it out. We are dissecting it now.

Anita: Do you attend any outstate fairs, beyond state fair to talk about your stuff?

Suggestions included: Polk County; July 26-29, 2018 in Fertile (Northern MN) and Farm Fest; August 7-9, 2018 in Redwood Falls.

COMMITTEE REPORTS:

Executive Committee: Anita

Worked on a lot of things; some, with the Reports Committee (Annual Report, 704, and starting the SPIL).

Network of Centers: Pam

We talked about branding and next steps. There will be a phone call (information to come). Have information from Don, about setting it up and when. Moving into the activities; no outcomes yet.

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Outreach: David

I was not at the last meeting. There’s been a lot of discussion around the use of technology (Cynthia sent a lot of information).

Reports: Anita

Annual Report -- assignments were made. Melissa and Heather are doing good stuff.

Brian is working on interviews.

Melissa: To the Committee working on ‘Implementation of Olmstead Act’ – Would SILC want to talk about the people here today now?

Pam: Melissa has volunteered to serve on the Subcabinet. If everyone is comfortable, I will let them know that Melissa is taking Cynthia’s role.

Adjourn: AnitaMotion to adjourn at 2:27pm. Brian made a motion, Gloria seconded to adjourn the meeting.

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