School Age Matters E-Newsletter Age...School Age Matters E-Newsletter September 2018 How to Organize...

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School Age Matters E-Newsletter September 2018 How to Organize Your Child’s IEP Binder By Amanda Morin Making an IEP binder is a great way to keep information organized and at the ready when you need it. An IEP binder can help you prepare for IEP meetings and stay up to date on your child’s progress. This powerful tool can also help you communicate and collaborate with teachers and your child’s IEP team. Here’s what you need to get started: A three-ring binder Six tabbed section dividers A three-hole punch Organizing an IEP binder with your child’s evaluation reports, IEP, report cards and other paperwork may sound like a lot of work. But this guide walks you through what to gather and where to put it. Start With the IEP Binder Checklist Print this IEP binder checklist and put it in the very front of your binder. The checklist has details about what you can put in each of the tabbed sections in your IEP binder. The checklist has another very important purpose: You can update it as you add new paperwork. As your binder grows, this checklist will help you see what you’ve updated and when you updated it. Label the Tabbed Section Dividers Label the tabbed dividers for each of the sections of the checklist: Communication, Evaluations, IEP, Report Cards/Progress Notes, Sample Work and Behavior. Keep in mind that if you’re just starting the special education process, you may not have much to put in each of these sections yet. Over time, here’s what you’ll be putting in each section—and why: Joanie Elfers School Age Maers Coordinator [email protected]

Transcript of School Age Matters E-Newsletter Age...School Age Matters E-Newsletter September 2018 How to Organize...

Page 1: School Age Matters E-Newsletter Age...School Age Matters E-Newsletter September 2018 How to Organize Your Child’s IEP Binder By Amanda Morin Making an IEP binder is a great way to

School Age Matters E-Newsletter

September 2018

How to Organize Your Child’s IEP Binder

By Amanda Morin

Making an IEP binder is a great way to keep information organized and at the ready when you need it. An IEP binder can help you prepare for IEP meetings and stay up to date on your child’s progress. This powerful tool can also help you communicate and collaborate with teachers and your child’s IEP team. Here’s what you need to get started:

A three-ring binder

Six tabbed section dividers

A three-hole punch

Organizing an IEP binder with your child’s evaluation reports, IEP, report cards and other paperwork may

sound like a lot of work. But this guide walks you through what to gather and where to put it.

Start With the IEP Binder Checklist

Print this IEP binder checklist and put it in the very front of your binder. The checklist has details about what you can put in each of the tabbed sections in your IEP binder.

The checklist has another very important purpose: You can update it as you add

new paperwork. As your binder grows, this checklist will help you see what you’ve

updated and when you updated it.

Label the Tabbed Section Dividers

Label the tabbed dividers for each of the sections of the

checklist: Communication, Evaluations, IEP, Report Cards/Progress

Notes, Sample Work and Behavior. Keep in mind that if you’re just starting the

special education process, you may not have much to put in each of these

sections yet. Over time, here’s what you’ll be putting in each section—and why:

Joanie Elfers

School Age Matters

Coordinator

[email protected]

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Tab 1: Communication

Print and fill out a school contact sheet and put it in the front of this section. The contact sheet will help you

quickly find and reach out to key people with questions or concerns.

Next is the parent-school communication log. Print one out and use it to help you keep track of

meetings, phone calls, emails and other important interactions you have with your child’s teacher and school.

As you fill out each entry, be sure to note what was discussed and what was decided.

The rest of this section is for letters and important emails. Put the newest ones on top, behind the

communication log. Why keep printed copies of emails? Having a paper version in your binder means you’ll

have it on hand for meetings, so you can easily find and reference what was said.

As you file letters and emails in this section, remember to include a brief summary of each one in the

communication log.

Tab 2: Evaluations

Start this section with the request or referral for evaluation. After that put in your consent to evaluate. Keeping these two documents together can help you see if the school completes the evaluation in a timely manner.

Next comes the school-based evaluation report. (It’s handy to have this in the same section as your request for evaluation, so you can match up each request with the evaluation results.) If your child has had

a private evaluation, include that here too.

Down the road, your child might have another school-based evaluation. If so, file it as a trio that includes the new request or referral and the new consent form. Put this new set of documents on top of the previous set.

Also, in this section, you may want to consider flagging key information with paper clips or sticky notes.

Come up with a system that can help you quickly find what you want to discuss with the IEP team.

Tab 3: IEP

It’s a good idea to start this section of your IEP binder with a copy of your rights and procedural safeguards the school gives you. That’s because whenever you go to an IEP meeting, the IEP team will offer another copy. It’s important information. But if you show the school you already have it, you can avoid taking home another big stack of paper!

In this section, file your child’s IEP and the prior written notice for each meeting related to the IEP. Many schools attach meeting notes to the prior written notice form. Keep those notes here as well as your own notes from the IEP meeting.

The IEP needs to be updated annually. But you may have more than one meeting a year. And if changes are

made to the IEP, put the newest plan and prior written notice on top, behind the procedural safeguards.

Download all IEP binder resources (View / Download). Click here to read the full article

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Saturday, September 29

8 AM - 12 PM: Outdoor Sessions (Lindner Park, 2726 Cypress Way

Cincinnati, OH 45212)

9 AM - 3 PM: Indoor Sessions (DSAGC Office, 4623 Wesley Avenue

Cincinnati, OH 45212)

*sessions last 10 minutes

Join us for a FREE photography event! This is an opportunity for you

and your family to get pictures taken by a professional local

photographer. You receive all the photos digitally at no cost to you.

Click here to sign up!

**Sign-ups close on September 23rd!

If sign-ups are full, contact Emma Ganiban to be placed on

the waiting list: [email protected]

Fearless Photography!

Sunday, December 2 | 1-4pm Oasis Conference Center, 902 Loveland-

Miamiville Rd, Loveland, OH 45140

The Down Syndrome Association of Greater

Cincinnati celebrates the holiday season every

December by bringing together our families for a

visit with Santa and Mrs. Claus, arts and crafts,

holiday decorating, gifts and more.

It’s also a time to honor individuals who have

championed our mission and who have served as a

constant source of celebration of individuals with

Down syndrome. This is a free event, but families

that wish to attend must register.

Holiday Party

Register

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Embracing Advocacy 101 Webinar

Friday, September 21 | View at your own leisure

Presented by Mariclare Hulbert, DSAGC Outreach Coordinator and members of the DSAGC Government Affairs Committee

In this webinar, you will learn about government advocacy best practices, easy ways to stay up to date about

legislation that may affect you or your loved ones, and how to build positive relationships with the elected

officials that represent you. This is a great educational webinar for parents, self-advocates, siblings, and

anyone who cares about advocating for people with Down syndrome.

Accommodations and Modifications in the Classroom Setting

Sunday, October 21 | 2-3:30pm

DSAGC Hatton Foundation Community Room

Presented by Caitlin Smith, Intervention Specialist,

Kings School District

The presentation will focus on three topics:

What accommodations and modifications

terms mean and the difference between them

The kinds of work for different types of

learners

How you can advocate for things that your child

will need in the school setting

**Bring along your child’s IEP for an interactive discussion to share what accommodations/modifications have

worked.

Caitlin is going into her eighth year of teaching this year. Her and her husband have decided to start their

family by adopting a child with Down syndrome, and have been in the process for two years. Caitlin serves as

an Intervention Specialist by trade, but has also served in an advocate role for families of children with

disabilities. She is involved in disability ministry within her church and is always finding ways to become more

involved with the disability community.

21 Series

Register

Register

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Empowerment Classes Gymnastics (ages 6-12)

October 3-November 28 (no class on 10/31 or 11/21) | Wednesdays 6:15-7pm

Powell Crosley YMCA, 9601 Winton Road Cincinnati, OH 45231

Instructed by Kristin Gallo, YMCA

This beginner’s gymnastics series will focus on movement, education, skills on the vault, balancing skills on

the beam, and other beginning gymnastic skills. It will be led by two gymnastics coaches at the Powell

Crosley YMCA. There will also be up to 4 volunteers with experience in gymnastics who will be present to

assist the coaches and children.

Cheerleading (ages 7-18 or up to age 22 if still in school)

Practices will be held in October/November.. Exact

times and dates TBD

Coached by Debbie Schroeder (former Ben-Gal),

Joanie Elfers (DSAGC Coordinator) and Dianna

Rafferty Coley (former cheerleader)

Join our squad and learn the basics of cheerleading,

as well as a dance routine, which will be performed all

over the Greater Cincinnati area! After practice

sessions conclude, we perform at several high school

basketball half-time shows with the high school

cheerleaders. These performances are optional and

Coach Schroeder will announce them at a later date.

Each cheerleader will receive their own set of pom-

poms that they get to keep. They will also be provided

with a uniform, which will be turned back at the end of

the season.

Holiday Crafting (ages 16 & up)

Sunday, November 11 | 1-3pm

DSAGC Hatton Foundation Community Room

Join us for an afternoon of preparing gifts for families attending DSAGC Holiday Party! This is a great

opportunity for adults with Down syndrome to give back and have fun at the same time.

Register

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DSAGC Family Resources

Support at Every Age

Community Participation Fund

Hospital Care Packages

Community Groups

Our School Age Matters Coordinator, Joanie Elfers, is available to assist parents and help provide direction

as they learn about the IEP process, effective teaching strategies and making social connections. She can

serve as an advocate at any school or IEP meetings your child has throughout the years. She can be reached

at [email protected].

Joanie and our Outreach Coordinator, Mariclare Hulbert, are available to deliver “Peer Presentations” in the

classroom setting to enhance both the student and teacher’s understanding of Down syndrome. You can also

access our “More Alike Than Different” video here.

We have a limited amount of scholarships available for individuals with Down syndrome to participate in

community activities (such as camps, soccer, swim lessons) and therapies. There is also funding available

for parents to attend educational meetings or conferences. We pay half of the request (up tp $200 per

year). You must live within our 12 county area to be eligible. Please contact Lisa Steele

at [email protected] for more information.

Is your child (18 years and younger), with Down syndrome, spending three or more days in the hospital? The

Down Syndrome Association of Greater Cincinnati would love to support you during this difficult time. Click

here to receive a Hospital Care Package.

The vision of the ‘Community Groups’ is to provide support, connections, information, and be a resource to

families while creating a warm, welcoming, empathetic environment. A Community Group is designed to

create opportunities for families that have children with Down syndrome to network and share common

interests, concerns, challenges, and information.

Each Community Group is considered an extension of the DSAGC, but autonomy and decision making

authority is given to the groups so they can effectively meet their unique purpose and goals for serving

families and individuals in their community. Click here to see a full list of Community Groups.

DSAGC Teen Club: Serving teens ages 13 - 18 through social opportunities and networking

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Research Studies

$5.7 million NIH Research Funding to

the Thomas Center and Colleagues The Thomas Center for Down Syndrome at Cincinnati Children’s Hospital Medical Center is proud to

announce receipt of two federal research grants supporting children with Down syndrome. Both grants were

awarded by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD).

Anna Esbensen, PhD, Research Director of the Thomas Center, received a 5-year, $2.6 million grant to

continue her work on evaluating cognitive outcome measures for children 6-17 years with Down syndrome. If

you are interested in more information, please contact us as 513-803-3641 or email Emily Hoffman at

[email protected] (see information flyer below). Dr Esbensen is also collaborating with Angela

Thurman, PhD, at the University of California-Davis MIND Institute, on a 5-year, $3.1 million grant to evaluate

language outcomes in children 2-8 years with Down syndrome. More information will be coming soon on how

to participate in this project.

Dr. Susan Wiley, co-director of the Thomas Center for Down Syndrome, also partnered with Drs Raouf Amin

and Stacey Ishman from the Divisions of Pediatric Pulmonary Medicine/Sleep Medicine and Pediatric

Otolaryngology – Head and Neck Surgery at Cincinnati Children’s Hospital. They received funding to expand

their current study on the neurocognitive and school performance effects of removal of adenoids and tonsils

for snoring to focus on children with Down syndrome. This study will enroll children with Down syndrome

undergoing tonsil and adenoid removal for snoring or sleep apnea. This study includes 7 centers across the

U.S. (Philadelphia, Cleveland, Dallas, Boston, Ann Arbor, Norfolk, and Cincinnati). If you are interested in

more information, please contact us at 513-636-0607 or email Belinda Carter at [email protected].

These projects could not have been funded without the strong collaboration between families, the DSAGC

and the Thomas Center. We are honored to work in a city with so many dedicated families, a strong Down

syndrome association, and a wonderful partnership in advancing research to support positive outcomes for

individuals with Down syndrome.

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This 90-minute webinar provides with practical tips and techniques for managing challenging

behaviors in community, residential and educational settings. Topics to be covered include:

Defining Behavior Modification, Behavior Management, and Positive Supports

Positive Behavioral Supports & Functional Assessment Overview

Behavior and Medical Conditions (physiological causes of behavior challenges, barriers to treatment)

Practical, Tried and True Methods for Responding to Challenging Behaviors.

Effective De-escalation techniques.

Dates and times to choose from:

Friday Sept 14, 2018 10:00 a.m. to 11:30 a.m.

Saturday Sept 15, 2018 10:00 a.m. to 11:30 a.m.

REGISTER TODAY – ONLY $19.00

All confirmed participants will receive a certificate of participation documenting 1.5 contact hours.

Payments for all Seneca webinars are securely processed through TicketTailor using PayPal, Visa,

Mastercard, AMEX, or Discover. Electronic invoicing is available when purchasing 5 or more slots.

Please visit http://buytickets.at/senecainstitute for a full listing of our upcoming webinars.

If you can’t find a day or time that fits into your schedule, just let us know and we can set one up

when it is convenient for you.

Community Opportunities The DSAGC does not endorse, recommend or support any particular regime,

therapy, activity, camp or treatment. We welcome articles and information from

parents, professionals and other interested parties.

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CHROMOSOME 21

September 28th, 2018, 6:00pm

SCPA-Mayerson Theatre

Vitória is a girl like all the others. She goes to college, she plays the piano and practices swimming. The

only difference is that she has one more chromosome and this caused her to be born with Down Syn-

drome. In her path, she crosses with the dreamy Afonso, a boy without Down syndrome. Their involvement

awakens the girl’s independence and passion, and in society a questioning about the involvement of this

“couple out of standards.”

Click here to learn more and to purchase your tickets!

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Booster sessions are intended to provide information on the transition from school to adult

life for youth with disabilities. Families, individuals with disabilities, educators, and other

professionals are invited to attend these sessions at no charge.

Booster sessions are two hours long and take place in the evening.

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DISABILITY TECH FESTIVAL CINCINNATI

Our inaugural one day disability technology festival will be held on October 15th, 2018 in Cincinnati

at the American Sign Museum!

Several short Ignite-style presentations/demos, disability technology expert sessions, "innovation-

storming", food trucks, games, massage, and whatever else we dream up.

Come join us for a day of fun, learning, collaboration, and inspiration in the most unique laid back

environment....this is not a typical conference.

Or, drum roll please, you can attend by web or Facebook Live! You'll miss the in person event but

get to see most of the content.

This event was designed specifically for:

- Provider agency employees

- Case managers

- Guardians/family members

- Other disability professionals

- Self-advocates

- Anyone interested in disability services

LOCATION:

American Sign Museum

1330 Monmouth Ave.

Cincinnati, OH 45225

DATE & TIME:

October 15th, 2018

9:00am - 5:00pm

Click here for more

information and to register!

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September Calendar

Sunday Monday Tuesday Wednesday Thursday Friday Saturday

1

2 3 4 5

Team

Conner

Buddy Walk

Fundraiser

6

Butler/

Warren -

Ladies Night

Out

7 8

Buddy Walk

9 10 11 12 13 14 15

OWN (ages 18

& up)

AAFN -

Meeting

16 17 18

Westside -

Moms Night

Out @

SOMM

19 20 21

21 Series -

Embracing

Advocacy

101 Webinar

22

23 24 25 26 27 28

Golf Outing

for Jaxie

Baby

29

CGL Meet Up

Fearless

Photography!

30

Butler/Warren

- Fall Family

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October Calendar Sunday Monday Tuesday Wednesday Thursday Friday Saturday

1 2

Healthy Relationships (ages 18 - 30)

3

Gymnastics

(ages 6 - 12)

4

5

Eastside -

Oktoberfest

6

7 8 9

Healthy

Relationships

(ages 18 -

30)

10

Gymnastics

(ages 6 - 12)

11

12 13

Keys for Little

Ones (ages 0 - 2)

Keys for Little

Ones (ages 3 - 5)

AAFN - Harvest

Fest

14 15 16

Healthy

Relationships

(ages 18 -

30)

17

Gymnastics

(ages 6 - 12)

18

Early Matters

Pogo Play!

19 20

Keys for Little

Ones (ages 0 - 2)

Keys for Little

Ones (ages 3 - 5)

Eastside - Fall

Fun on the Farm

21

21 Series –

Accommoda

tions and

Modification

s in the

Classroom

Setting

22 23

Healthy

Relationships

(ages 18 -

30)

24

Gymnastics

(ages 6 - 12)

25

Halloween

Party (ages 18

& up)

26 27

Keys for Little

Ones (ages 0 - 2)

Keys for Little

Ones (ages 3 - 5)

28 29 30

Healthy

Relationships

(ages 18 -

30)

31