S604 / I635: Consumer Health Informatics Applied Informatics Project

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    S604 / I635: Consumer Health InformaticsApplied Informatics Project

    Points: 40% of course grade (400 pts)

    Part 1: Idea description (10% of project total or 40 points)

    Part 2: Literature Review (25% of project total or 100 points)

    Part 3: Prospectus (20% of project total or 80 points)

    Part 4a: Executive Overview (10% of project total or 40 points)

    Part 4b: Product Mock-up (35% of project total or 140 points)

    See Syllabus for due dates

    Submit to: Unless otherwise specified, all assignments and materials are due in your

    Oncourse Drop-Box on or before MIDNIGHT (your time) on the due date indicated in thecourse syllabus.

    PLEASE ALSO REVIEW THE AUDIO INTRODUCTION TO THIS ASSIGNMENT.

    INTRODUCTION

    The Applied Informatics Project gives students the opportunity to work independently or in small teamsof 2 - 4 people to develop a model ormock-up or protocol or storyboard of a consumer healthinformatics application. You will not build an actual application. Instead, you will develop a model,mock up or protocol for an application Through this project you will develop project management

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    mock-up or protocol for an application Through this project you will develop project management

    As you think about your project ideas, see whats already out there! Aim for answering questions thatthat existing products dont, or by providing a value-added service or resource (such as a brief, high

    quality webography, a social networking option -- the options are endless.)

    I also realize that many students are not healthcare professionals. Focus on what YOU can do welland on what your profession can bring to a consumer health application.

    Acupuncture Interactive Videohttp://www.acupuncturenow.com/acupuncturenow.htm

    Test your Cholesterol I.Q.

    http://www.americanheart.org/presenter.jhtml?identifier=3032767

    Diabetes Risk Testhttp://www.diabetes.org/food-nutrition-lifestyle/lifestyle-prevention/risk-test.jsp

    Acne Interactive Tutorialhttp://www.nlm.nih.gov/medlineplus/tutorials/acne/htm/lesson.htm

    Could I have Lupus? Lupus Screening Quizhttp://www.couldihavelupus.gov/?gclid=CLv3pe-Ss5wCFRghDQod8zlxmA

    Type 2 Diabetes Quizhttp://www.januvia.com/sitagliptin/januvia/consumer/blood-sugar-management/diabetes-symptoms.jsp?WT.svl=2?SRC=1&WT.srch=1&WT.mc_id=JA80G

    "Act In Time to Heart Attack Signs" Quizhttp://www.nhlbi.nih.gov/actintime/taha/quiz.htm

    Mammography Videohttp://www.cancerquest.org/images/FLV/DetectionModules/English/Mammography.swf

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    http://www.or-live.com/distributors/NLM/rnh.cfm?id=386Some project ideas are listed below. Many of these are related to cancers, but other diseases can

    be substituted as well.

    Personal Health Records -- review the readability and functionality of PHRs and recommend

    improvements and changes to enhance these records

    ABCs of Cancer Treatment -- what people must know immediately upon diagnosis with cancer

    Health Finances -- basic information about insurance coverage for people with cancer or other

    diseases

    Understanding the FMLA -- Family Medical Leave Act -- a tutorial or learning tool that helps

    people understand how to advocate for themselves and others around family leave andemployment issues

    Demystifying health statistics or Communicating Risk; -- health statistics for laypeople; what

    people need to understand about disease risk factors; how to interpret your cancer risk (orrisk for other diseases)

    How to search the web for cancer information -- a tutorial or learning tool that teaches users

    how to find reliable cancer information on the web

    Evaluating web resources -- a tutorial or learning tool that teaches people to quickly and

    authoritative assess the reliability of web information

    How to support people with cancer -- a product that helps caregivers understand where to go

    for help

    Navigating the healthcare system -- a product that walks new cancer (or other disease)

    patients through the healthcare system

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    2. You must select a specific, intended audience for your project.

    The biggest complaint that health consumers have is that the bulk of the applications are not for me --meaning that they are so generic and broad that they dont meet the actual needs of any oneconsumer group.

    Pick a VERY SPECIFIC audience for your application!

    Ask yourself: What specific needs does our audience have that our product can meet? Based on ouraudience and its needs, what are the goals and objectives of this product?

    3. Your final project must result in a product or deliverable.

    Each group will submit a mock-up of the application that your team has designed.

    The mock-up can take any appropriate format: a storyboard, written document(s), a PowerPointpresentation (with sound or narration using Adobe Presenter), a web site, a video, an audio file, apodcast, a graphic novel (try Macs ComicLife), blogs, wikis whatever format is most appropriate to

    the project.

    4. The project must be written at an age-appropriate and reading-skill appropriate level, based on thespecific audience that you choose.

    Keep in-mind that adult reading levels are, on average, at or below the 9th grade level. At the sametime, most health information (on the web) is written at a college level.

    We want to remedy this problem. Your project should readable to its intended audience! Check your

    readability levels and aim to keep them at around 5th - 7th grade if your primary audience isadult. Consider lower reading levels when designing applications for kids.

    5. The project must be an appropriate length.

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    Pew Report: Health Information Onlinehttp://www.pewinternet.org/Reports/2005/Health-Information-Online.aspx

    Basic Reading Skills and the Literacy of the America's Least Literate Adults: Results from the 2003National Assessment of Adult Literacy (NAAL) Supplemental Studieshttp://nces.ed.gov/pubsearch/pubsinfo.asp?pubid=2009481

    REALM (Rapid Estimate of Adult Literacy in Medicine) test:http://www.hsph.harvard.edu/healthliteracy/doakAB.pdf

    Fry Readability Test:

    http://www.educational-psychologist.co.uk/fry_readability_program.htm >

    Flesch-Kincaid Grade Level Readability Formula:http://www.readabilityformulas.com/flesch-grade-level-readability-formula.php

    Health Literacy from A to Z, by Osborne

    The Internet and Health Communication, by Rice

    Health Promotion and Interactive Technology, by Street

    Effective Health Risk Messages: A Step-By-Step Guide by Dr. Kim Witte

    Tailoring Health Messages: Customizing Communication With Computer Technology (Lea'sCommunication) by Matthew W. Kreuter

    Designing Health Messages: Approaches from Communication Theory and Public Health Practice

    by Edward W. Maibach

    Expanding the Reach and Impact of Consumer e-Health Toolshttp://www.health.gov/communication/ehealth/ehealthTools/default.htm

    http://www.amazon.com/exec/obidos/search-handle-url/ref=ntt_athr_dp_sr_1?_encoding=UTF8&search-type=ss&index=books&field-author=Dr.%20Kim%20Wittehttp://www.amazon.com/exec/obidos/search-handle-url/ref=ntt_athr_dp_sr_1?_encoding=UTF8&search-type=ss&index=books&field-author=Matthew%20W.%20Kreuterhttp://www.amazon.com/exec/obidos/search-handle-url/ref=ntt_athr_dp_sr_1?_encoding=UTF8&search-type=ss&index=books&field-author=Edward%20W.%20Maibachhttp://www.amazon.com/exec/obidos/search-handle-url/ref=ntt_athr_dp_sr_1?_encoding=UTF8&search-type=ss&index=books&field-author=Dr.%20Kim%20Wittehttp://www.amazon.com/exec/obidos/search-handle-url/ref=ntt_athr_dp_sr_1?_encoding=UTF8&search-type=ss&index=books&field-author=Matthew%20W.%20Kreuterhttp://www.amazon.com/exec/obidos/search-handle-url/ref=ntt_athr_dp_sr_1?_encoding=UTF8&search-type=ss&index=books&field-author=Edward%20W.%20Maibach
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    Medical Library Association Guide to Health Literacy (Medical Library Association Guides) by andFeleta L. Wilson

    Toward Health Equity and Patient-Centeredness: Integrating Health Literacy, Disparities Reduction,and Quality Improvement: Workshop Summary by Roundtable on Health Disparities, Forum on theScience of Health Care Quality Improvement and Implementation, Roundtable on Health Literacy, andInstitute of Medicine (Paperback - Feb 25, 2009)

    Health Literacy, eHealth, and Communication: Putting the Consumer First: Workshop Summary byRoundtable on Health Literacy, Institute of Medicine, and Lyla M. Hernandez

    Designing Health Messages: Approaches from Communication Theory and Public Health Practice byEdward W. Maibach

    Effective Health Risk Messages: A Step-By-Step Guide by Dr. Kim Witte

    Media Messages and Public Health: A Decisions Approach to Content Analysis (Communication) byAmy Jordan

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    Part I: The Initial Idea(10% of project total)

    Your initial idea is due early-on in the semester, so start thinking early about the types of applicationsthat you could mock-up. Look through the sample applications and ideas listed above. Talk withclassmates in the weekly forums about potential ideas.

    If you have more than one potential idea for this project, let me know and we can weight the pros andcons of each!

    (11 pt. font; double spaced)

    The initial idea includes:

    1. Your nameNames of all teammates, if applicable

    2. Your emailEmail contact information for all team members, if applicable

    3. Projects working title

    4. For what specific audience is the project intended? (2 pp. max)o disease or condition, and what specific aspect about the disease will you be addressing

    o male or female

    o age

    o ethnicity, race, national identification

    o

    languageo origin of birth

    o location (region, county, state, etc.) as applicable

    o other important variables that characterize your audience

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    Part 2: Literature Review(25% of project total)

    o 5 pages maximum; 11 pt. font minimum, double spaced

    o Citing five or more sources

    A literature review is a written narrative that describes the published literature on your projects topic. Italso provides background about your topic/disease/audience, setting the stage

    Preparing a literature review involves finding, reading, and compiling literature (journal articles) and/orother appropriate resources (popular magazine articles, book chapters, dissertations, newspaperarticles, websites, others.)

    You should review articles that talk about important issues and challenges that youpopulation/audience face, and articles that describe applications that already exist for your generalpopulation (if very few products exist, thats important to discuss too.)

    Use bibliographic databases to locate journal articles for the literature review.

    MEDLINE is probably the best source for this project

    LISAnet or Library Literature - for library literature, but wont bestrong in medicine

    Web of Science - humanities, arts, science, social sciences,medicine

    CINAHL - Cumulative Index to Nursing and Allied HealthLiterature, includes materials from nursing and related fields

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    Part 3: Prospectus(20% of project total)

    The Prospectus provides additional information about the project that is important in the planningprocess. The literature review should provide background that will help inform the answers to thesequestions.

    1. Project goals and objectives (1 pp. max)List the specific goals and objectives for the project. Goals and objectives should be focused

    on what the user will get out of the application.

    2. Needs Assessment (2 pp. max)Why does this specific audience need this specific product? Use the literature to support yourclaims.

    3. Describe how you would attempt to interject interactivity into the product. (2 pp. max)

    Users of CH applications should not just sit passively. Interactivity helps keep users engaged.How would your application engage the users senses? How would your application keep theuser motivated and interested, and behaviorally and cognitively involved?

    4. Describe how the product could address user learning and understanding (if it were a realproduct). (2 pp. max)

    Describe the way(s) in which you might go about evaluating the short- and/or long-termefficacy of your consumer health application if it were a real product. Does the application

    actually work? How will you know? Are users learning what you want them to learn? Be veryspecific about WHAT you would assess and HOW you would perform these assessments.

    5. How would you advertise this product to its intended audience (if it were real)? (2 pp. max)

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    Functions of an Executive Overview:

    Summarizes the project, giving readers the essential contents and components of your project:Who, What, When, Where, Why, How

    Previews the main points of your project, enabling readers to build a mental framework for

    organizing and understanding the key features of your project.

    Discusses purpose/central theme of the project.

    Highlights key points of the project.

    Helps readers determine the key results of your work.

    SUBMIT THESE:

    Elements of an Executive Overview:

    Following is a list of elements that are included in an Executive Overview. Youll notice that many ofthe elements below should be heavily informed by your Literature Review and Prospectus.

    4 pp. max (excluding cover), plus appendices; 11 pt. font minimum; double spaced

    Also keep in mind the components above, in Functions of an Executive Overview as you write:

    a) Project Titleb) Your name, Team membersc) Description of Intended Audience

    d) Literature Review general findings and Needs Assessment general findings: Why this productis important for this audience

    e) Project Goals and Objectives

    f) Purpose(s) and Scope of project, generally and specificallyg) Project Descriptionh) User Learning Assessmenti) Recommendations for Future Applications for Intended Audience

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    - Podcast- Storyboard

    -- Graphic novel format-- Other audience-appropriate formats

    Please go back and again review the PROJECT RULES on page 3 and IDEAS on page 1.

    PLEASE REVIEW THE EVALUATION RUBRICS BELOW.THESE CRITERIA WILL BE USED FOR THIS ASSIGNMENT:

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    Applied Informatics Project Evaluation Criteria: INITIAL IDEA

    10% of project grade

    Grade

    B- or lower B or B+ A- or A

    Grade Achieved

    Are all elementspresent?

    20%

    Elements may be missing.Project is not presentedwell; may be disorganizedand difficult to follow.

    All required elements arepresent; clearly labeled;well organized.

    All required elements arepresent, clearly labeledand well organized.Thought and effort wentinto the presentation ofthis project.

    AudienceDescription

    20%

    Intended audience is toobroad to be practical.Audience is not welldescribed nor wellcharacterized.

    Intended audience ismostly appropriatelydefined and described.Audience is mostlyappropriate for thisproject.

    Intended audience is verywell defined andcharacterized. Audienceis focused and specific.Audience is highlyappropriate.

    ContentDescription

    20%

    Content is not welldescribed. Content is

    sloppy and undefined.

    Content is described andcharacterized well, for the

    most part. Content isclear and well written.

    Content is very welldescribed and

    characterized. Content isclear, focused, sharp, andwell written.

    Medium20%

    Medium is poor orthoughtless choice. Noreal rationale for thismedium.

    Medium is a fine choicefor this project. Rationaleis solid.

    Medium is superbchoices. Showswillingness to venturebeyond comfort zone.Rational is fair, logical andcomplete.

    12

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    Timeline20%

    Timeline is not inappropriate format.Not thorough notcomplete. Unrealisticdates. Tasks poorlyrepresented.

    Timeline is in appropriateformat. Thorough andcomplete, containsappropriately detailedtask items and mostlylogical dates.

    Excellent format.Thorough and complete,contains highly detailedtask items and logicaldates.

    Grade:

    13

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    Applied Informatics Project Evaluation Criteria: LITERATURE REVIEW

    25% of project grade

    Grade

    B- or lower B or B+ A- or AGrade Achieved

    Articles, Materials,Resources Used

    20%

    Information isgathered from alimited number ofsources or frominappropriatesources.

    Information is gatheredfrom multiple andmostly appropriatesources.

    Information is gatheredfrom multiple,research-basedsources.

    Background andFoundational

    Approach to topic;Theme

    30%

    There is someindication ofconclusions from theevidence offered.Poor approach totopic.Weakly organized;weak theme.

    Mostly logical approachto topic. Conclusionsare reached from theevidence offered.Theme is present.

    Highly clear, welldelineated and logicalapproach to topic.Detailed conclusions arereached from theevidence offered.Well organized, wellstructured theme.

    Hypothesis and

    Theme40%

    Hypothesis was not

    formed through litreview. No clearhypothesis appears.

    Hypothesis is formed

    through the literaturereview.

    Hypothesis is formed

    through the literaturereview. Hypothesis isclearly stated.

    References and Style10%

    Information is notcited or is citedincorrectly. Stylisticerrors exist.

    Information is cited, buthas errors in citation orin style.

    Information is citedproperly and in properformat. No stylisticerrors.

    14

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    Grade:

    15

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    Applied Informatics Project Evaluation Criteria: PROSPECTUS

    20% of project grade

    Grade

    B- or lower B or B+ A- or AGrade Achieved

    Goals and Objectives20%

    Goals and objectivesare not well stated.Goals and objectivesare not logical, norappropriate.

    Goals and objectivesare well stated.Goals and objectivesare logical andappropriate.

    Goals and objectivesare well stated in user-focused format. Goalsand objectives arecompletely appropriatefor audience and

    product.

    Needs Assessment20%

    Intended audience istoo broad to bepractical. Audience isnot appropriate forthis project. Literaturedoes not supportclaims.

    Audience need doesexist. Audience ismostly appropriate forthis project.Literature supportsmost claims.

    Audience need isfocused and specific.Audience is highlyappropriate for thisproject. Literaturesupports all claims.

    Interactivity20%

    Little or no

    interactivity proposed.

    Interactivity level

    proposed keep usersengaged, and uses oneor two senses.Proposed interactivitykeep will keep usermostly interested.

    Interactivity level

    proposed keep usersengaged, using multiplesenses. Proposedinteractivity keeps usermotivated andinterested; behaviorallyand cognitively involved.

    Assessing UserLearning,

    Understanding,Engagement

    Little or noassessment of userexperience is

    Proposed assessmentof user learning isappropriate and will

    Proposed assessmentof user learning isthoughtful and insightful.

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    20%

    proposed.What is proposedhere will not assessthe users experiencewith the product.

    provide some usefulinformation about theusers experience in theproduct.

    Will result in a thoroughunderstanding of userlearning andengagement in product.

    .

    Advertising Plan20%

    Advertising plan isweak and will notreach intended useraudience. Does notuse appropriatemedia to reachintended useraudience.

    Advertising plan is goodand will reach some ofthe intended useraudience. Plan usesappropriate media toreach intended useraudience.

    Advertising plan issuperb and will reachmuch of its intendeduser audience. Planuses innovative mediachoices to reachintended user audience.

    Grade:

    Applied Informatics Project Evaluation Criteria: EXECUTIVE OVERVIEW

    17

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    10% of project grade

    Grade

    B- or lower B or B+ A- or A

    Grade Achieved

    Are all elementspresent?

    10%

    Elements may bemissing. Project isnot presented well;may be disorganizedand difficult to follow.

    All required elementsare present; clearlylabeled; wellorganized.

    All required elementsare present, clearlylabeled and wellorganized. Thoughtand effort went into thepresentation of thisproject.

    Audience Descriptionand Needs Assessment

    20%

    Audience descriptionis not thorough.Intended audience isnot practical.Audience is notappropriate for thisproject. Literaturedoes not supportclaims.

    Audience need isrationally described.Audience is mostlyappropriate for thisproject. Literaturesupports most claims.

    Audience need is verywell described.Audience is highlyappropriate for thisproject. Literaturesupports all claims.

    Literature Reviewand Theme

    20%

    There is someindication ofconclusions from theevidence offered.Poor approach totopic.Purpose and themewere not formedthrough lit review.

    Mostly logical approachto topic. Conclusionsare reached from theevidence offered.Purpose and theme werepresent and formedthrough the literaturereview.

    Highly clear, welldelineated and logicalapproach to topic.Detailed conclusionsare reached from theevidence offered.Purpose and themewere clearly stated andformed through theliterature review.

    18

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    Goals and Objectives10%

    Goals and objectivesare not well stated.Goals and objectivesare not logical, norappropriate.

    Goals and objectivesare well stated.Goals and objectivesare logical andappropriate.

    Goals and objectivesare well stated in user-focused format. Goalsand objectives arecompletely appropriatefor audience and

    product.

    Project Description20%

    Project andapplication are notwell described.Content is sloppy andundefined.

    Project andapplication aredescribed andcharacterized well,for the most part.Content is clear andwell written.

    Project and applicationare very well describedand characterized.Content is clear,focused, sharp, andwell written.

    Assessing User

    Learning,Understanding,

    Engagement10%

    Little or noassessment of user

    experience isproposed.What is proposedhere will not assessthe users experiencewith the product.

    Proposed assessmentof user learning is

    appropriate and willprovide some usefulinformation about theusers experience in theproduct.

    Proposed assessmentof user learning is

    thoughtful and insightful.Will result in a thoroughunderstanding of userlearning andengagement in product.

    Recommendations forfuture10%

    Recommendations forfuture applications areweak and not wellthought out.

    Recommendations forfuture applications arelogical, rational and wellthought out.

    Recommendations forfuture applications areinsightful, inventive andcreative and very wellthought out.

    Grade:

    19

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    Applied Informatics Project Evaluation Criteria: FINAL PRODUCT

    35% of project grade

    Grade B- or lower B or B+ A- or A Grade Achieved

    Evidence ThatObjectives Were

    Met10%

    Little evidence thatproject content supportsstated objectives. Usersmay learn from thisproject.

    Some evidence that projectcontent supports statedobjectives. Users are likelyto learn from this project.

    Clear evidence that projectcontent supports statedobjectives. Users will learnfrom this project.

    Depth & Breadth ofProject Content

    40%

    Little evidence thathigher level thinkingskills were used in thecreation of this project.

    The work is a collectionor rehash of otherpeople's ideas,products, images andinventions. There is littleevidence of new thoughtor inventiveness. Littleoriginality or creativitydisplayed.

    Some evidence that higherlevel thinking skills wereused in the creation of thisproject.

    The project shows someevidence of originality andinventiveness. While basedon an extensive collectionof other people's ideas,products, images andinventions, the workextends beyond thatcollection to offer newinsights. Mostly new andoriginal; creative.

    Clear evidence that higherlevel thinking skills wereused in the creation of thisproject.

    The project showssignificant evidence oforiginality andinventiveness. Themajority of the content andmany of the ideas arefresh, original, andinventive.

    20

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    Product Design30%

    Design is either barrenand stark or confusingand cluttered.Exaggerated emphasison graphics and specialeffects weakens the

    message and interfereswith the communicationof content and ideas.Lack of graphics orspecial effectsdramatically weakenscontent.The sequence ofinformation is not logicalthroughout. Menus andpaths are confusing andflawed. Project contains

    few well-designed andage-appropriatechoices. The design isprimarily linear.

    Appropriate multimediaelements and contentcombine to adequatelydeliver a high impactmessage with the elementsand words reinforcing each

    other.The sequence ofinformation is logical.Menus and paths to mostinformation are clear anddirect. Although projectcontains some well-designed and age-appropriate choices, someportions are linear.

    The combination ofappropriate multimediaelements and contenttakes communication to asuperior level. There isclear attention given to

    balance, proportion,harmony, and restraint.The synergy reaches theintended audience withstyle and pizzazz.The sequence ofinformation is logical andintuitive. Menus and pathsto all information are clearand direct.Project is truly multimedia(as appropriate), rather than

    linear and contains asignificant number of well-designed and age-appropriate choices.

    SubjectKnowledge

    10%

    Subject knowledge islittle evidenced. Much ofthe Information isconfusing, incorrect, orflawed.

    Subject knowledge isevident in much of theproject. Most information isclear, appropriate, andcorrect.

    Subject knowledge isevident throughout theproject. All information isclear, appropriate, andcorrect.

    Spelling,Grammar,

    Language;Readability

    10%

    Project minimally honorsrules of spelling and/orgrammar. (Three orfewer errors).Project is onlymarginally appropriatelywritten for its intendedaudience.

    Project adequately honorsmost rules of spellingand/or grammar. (Two orfewer errors).Project is mostlyappropriately written for itsintended audience.

    Project honors all rules ofspelling and/or grammar.Project is absolutelyappropriately written for itsintended audience.

    Grade:

    21

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