RIWC_PARA_A109 Home living for SCI people in Canada
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Transcript of RIWC_PARA_A109 Home living for SCI people in Canada
Perceptions on Well-being at Home of Families with People with Disabilities: A Psycho-Environmental Perspective
Delphine Labbé, PhD1,2
Sylvie Jutras, PhD1
1Université du Québec à Montréal2University of British Columbia
2
Well-being at home
For people with and without disabilities Place to fulfill individual and familial needs Promotes an active and independent role in the
community Physical and psychological health Commitment to work, social and civic life
Internationally recognized as a right by the Convention on the Rights of Persons with Disabilities (United Nations, 2006)
Despite the importance of home for people with disabilities Few studies on home, health and disabilities Not focused on the broad spectrum of needs
3
Psycho-environmental Potential Model
Shelter and Security
Protection from physical elements and threats to the person’s well-being
Social Contact
Facilitation or inhibition of interpersonal contact and privacy
Symbolic Identification
Information about the values, preferences and goals of the users
Task Instrumentality
Quality of equipment and spatial arrangements for the accomplishment of specific tasks and activities
Pleasure Gratification of simply being in a given setting and the user’s positive affect
Growth Various stimuli allowing users to learn things about the world and themselves
6 functions promoted or limited
4
Objectives
Explore the perception of the relation between the house and the well-being
Globally For specific places
5
Method
Participants
Individual CharacteristicSCI(n=3
1)Relatives (n=31)
Mean Age 45 51Man (%) 71 29 In couple (%) 68 81 Working or Studying (%) 29 60
Mean time since injury
8 years (SD=1.9)
Paraplegia (%) 48
6
Housing and household
characteristics (n=31)
Number of people in the household (mean)
3
Relationship to the person with SCI (%)
Spouse
71
Child or
parent
29
Moved after the injury
55
Mean number of years living in the house
9
7
Interviews
Simultaneously but separately with the SCI person and their household member
Closed and open-ended questions Series of 11 questions about the favourable physical
features of their house and how these features contributed to well-being at home
Series of 10 questions on unfavourable physical features of the house and how they hampered well-being at home
8
Results
Places and objects favourable to well-being
SCI and relatives
SCI Relatives
8 places and 7 objects mentioned
Global
9
Plac
esO
bjec
ts
How well-being at home is promoted?
Great variety of explanation (n=27)
SCI a
nd
rela
tive
s
• Territoriality • Using and developing skills• Activities with others
SCI
• Convenient for work and leisure• Learning about
the worldRe
lati
ves
• Size• Privacy
10
Global
11
Places and objects unfavourable to well-being
For45 % : No places or objects
Plac
esO
bjec
tsGlobal
SCI and relatives
SCI Relatives
12
How well-being at home is hampered?
Lack of convenience for moving around
Inconvenience of sizePsychological and physical disinvestment
Lack of convenience for daily living activities
GlobalSC
I and
re
lati
ves
SCI
Rela
tiv
es
13
How each places contributes to well-being at home?
The kitchen is an open space, so
it’s an enjoyable place to
entertain friends and family. It’s
where we spend most of our
time. Everything is within reach, if we need to cook while talking to someone, it’s
easy (SCI20, male 62, retired)
Specific to place
KitchenSCI Relative
Open spaceActivities with others
AmbienceConvenient to move
around Appropriate sizeAppropriate layout
Developing and using skillsEasiness of communication
Equipment easy to reach Expression of self
Common space TerritorialitySatisfaction of needs
14
How each places limits well-being at home?
Kitchen
SCI RelativesStove
Limit development and use of skillsinadequate to fulfill
their needs Common spaceInappropriate size
Lack of convenience for domestic activities Lack of convenience to
move around Life conditions
Specific to place
I like to sew but I can’t use the
table anymore to cut my fabrics; it’s not large
enough […] and my husband sits there watching me! He always has to go to the bathroom when
I’m cutting a piece of fabric.
So, it’s not easy.” (FM27, female,
47 years old, spouse, working)
15
Conclusion
16
Well-Being at home
1. Positive experience multifaceted2. Negative experience more limited3. Importance of specialization of room4. Experience of people with SCI and
their relatives Similar but touched differently by the
disabilities
17
Well-being at home
Variation in wished level of contact Designing flexible space
Social contacts highly
important
Impact on accessibility
guide
For everyone
Well-being at home
For people with disabilities
Task instrumentali
ty highly important
Home is central for
social participation
Well-being at home
19
For the relatives
Symbolic identification
restricted
Impact of disability
needing more consideration
20
Thank You
This research was supported by