1. Welcome

2. Who are Changing Our Lives? Changing Our Lives is a rights based organisation. We work with people with disabilities of all ages to make sure that they have: the same rights and opportunities as everyone else good health and are valued members of the community We work locally, and think nationally. 3. The New Generation 4. Valuing People V The New Generation 5. ROUND 1 6. Valuing People In 2001 Valuing People talked about housing, care and support options. It also talked about moving people out of long-stay hospitals to housing that suits their needs better. 7. The New Generation 8. ROUND 2 9. In the days of Valuing People 10. The New Generation 11. ROUND 3 12. Valuing People In 2001, Valuing People talked about a Workstep Programme will benefit people with learning disabilities. It also looked at a study of the links between supported employment and day services. 13. The New Generation 14. ROUND 4 15. A local Councillor or Deputy Mayor 16. The New Generation 17. The New Generation 18. Norman Lamb, Care Minister 19. Denise Mole 20. Denises Story Long stay hospital & NHS campus Challenging & aggressive Staff feeling scared Policed by staff 21. Over to you! What do you think happened to Denise? What do you think would be the best option for her? 22. Yvonne Law 23. Yvonnes Story Long stay hospital, high secure hospital & NHS campus Fear of Doctors Challenging Early onset dementia 24. Over to you! What do you think happened to Yvonne? Where could Yvonne live? 25. Jayne Gallear 26. Jayne Gallear Labelled as challenging, red stickered Demonised Isolated from peers and the community Skirted assessment and treatment 27. Over to you! Where do you think Jayne is now? What would suggest would be good support for Jayne? 28. Where are they now? 29. Denise I live in an ordinary house on an ordinary street Last year I went on a Tinsel and Turkey holiday with my sisters I go to the local pub regularly and people know me in there. I also know my neighbors well and get on with them. I enjoy having my eyebrows threaded I enjoy walking and have lost around 4 stone since I have moved! 30. Yvonne I go out everyday of the week. People work with me more flexibly now, because I have individual support I am able to have choice and control over my own life. Now that I can access my own kitchen and choose what I want to eat for myself, staff have found that I manage my diabetes really well for myself. As a result my blood sugar is now more stable. I am known in my local community as I use my local shops, church and pub 31. Jayne My communication is respected. Im in my own home, with good staff. Im now treated like a human being. I have individual support. I have got to the top of the climbing wall. 32. Jayne When Jayne moved to her supported living placement in 2001. Her life began to change for the better and she has continued to become more independent ever since. She is now happy, contented and has a long term stable future. Having really skilled one-to-one support has made all the difference to Jayne. Now shes treated as a human being and an equal person. As her mum Ive always been afraid that there will be no one around to fight for her if I wasnt around. I have fought for Jayne since she was born. Now shes living in a bungalow and she has one-to-one support so Im no longer afraid. I know that she has a good life, with people who genuinely care for her and I know that they will always be there to fight her corner. 33. Jayne It is important that we all understand that supporting people like Jayne to change their lives for the better is not a short term project. It takes time and a great deal of effort. However we have to start somewhere. If we had waited for Jayne and her circumstances to be perfect its likely she would not have the life she has today. If we wait for things and people to be perfect before they move from institutional care, it is likely they will never move. We need to move people and then work with them to resolve the problems they will face. Mrs Gallear, Jaynes mom 34. No one is too disabled 35. No one is too complex 36. No one is too challenging 37. To lead an ordinary life! 38. Quality of Life approach 39. Quality of Life approach is made up of: Audits - checking peoples quality of life from rights based approach Practice development - changing the way people think and work with people with disabilities 40. What is a Quality of Life audit? A Quality of Life audit is a person centred way of measuring how services and community supports enable people with disabilities to lead an ordinary life. It is person centred because it follows the person through their life. 41. An ordinary life We define an ordinary life as: being part of the community being employed having access to education which enables you to develop as an individual living in your own home being in a relationship having friends and family around you. 42. Rights based approach The approach we take in the standards, audit and practice development is not about services. Our approach is about having a LIFE! Based in belief that to lead a full LIFE, a person needs more than paid services. People need families, friends and other natural supports that you find in the community, as well as paid services and supports. 43. Reshaping services So in walking through peoples lives, we encourage services to change and reshape themselves so they are able to support individuals to lead full lives. Supported living Residential and nursing care Short breaks including residential respite, support in the home and a range of community provision After school clubs, youth clubs and nurseries 44. Reshaping services Leisure provision Youth and community groups and organizations The impact of direct payments and personal budgets The impact of social work teams both in adult and childrens services Or they are used as a person centred way of measuring the effectiveness of a whole service, for example, a local authority learning disability service. 45. Over the last 3 years our Quality of Life audit team worked with 1241 young people and adults covering 165 services and community supports. 46. Audit tools spending time with individuals and walking through their life meeting with the persons family unannounced visits of services and supports interviewing staff teams, managers, Directors, CEO observation of practice checking peoples plans checking strategic documents such as commissioning strategies, business plans for providers 47. Practice development getting people to think and work differently ! Challenge events pledges made for cultural change followed by audit. Ideas festivals Dragons Den Self-authored lives modelling planning for Quality of Life. 48. Quality of Life impacts on 3 levels impact on individuals impact on commissioning impact on practice development and cultural change 49. Impact on individuals 50. Impact on individuals More people being part of their local community People moving to a place they call home More people with profound and multiple learning disabilities using Communication Passports and increased numbers of staff trained in different forms of communication More people gaining paid employment Changes in support staff resulting in individuals getting better person centred support. 51. Impact on commissioning 52. Changing Our Lives & Sandwell MBC Co-produced Activities Interviewing Audit of existing placements and providers Standards in provider contracts Challenging how we measure quality - Is this good enough? Listening to people. Making sure they have a voice Working with providers to raise quality. Winterbourne Commissioning alternatives. 53. The Time Machine: How things have changed! Looking back over the past 100 years of how life has changed for someone with a learning disability Co-production Changing Times in learning disability services 54. Co-production Changing Times in learning disability services Ideas Festival: How we want things to change even more! Taking time to listen and think Challenge to commissioners and providers What should services look like in 2024? Dragons Den: Whats the offer? Different needs: Different provider? 55. Impact on practice development and cultural change 56. We are Changing the culture using Quality of Life standards. 57. Cath Murray-Howard Director of Business Development Performance and Deputy C.E.O. Shelagh Murphy Quality Lead Gary Dixon Quality Lead 58. Were changing culture using the Quality of Life standards. One of Britains largest health and social care charities. 25 years old, we support 5000 people We aim to become UKs Leading Health and Social Care Charity We will do this by committing to, the Quality of Life Standards. 59. Why the Quality of Life standards for us? Because we Respect Enable Aspire Deliver Include 60. How will we do it? Focus on 3 main projects 1. Voice of the People We Support The Voice 2. Personalisation 3. Driving up Quality and Standards 61. Lets look at each of the projects in more detail 62. Personalisation. 63. Personalisation The standards are based on equal citizenship. Changing Our Lives have used a rights based approach. Standards person centred and based on outcomes for people 64. The Voice...of the people we support 65. The Voice The standards empower people Inform people what they should expect Quality Audits led by people who use our services. It promotes self/peer advocacy. Based on rights and entitlements as an equal citizen and people are able to hold us to account. 66. Driving up Quality (or good to great)... 67. Good to Great Challenges our culture. Encourages best practice Its about inclusion of people and their peers in reviewing the quality of life that people experience from Community Integrated Care support services. 68. Ways were using the standards We have made PUBLIC PLEDGES which are based on the standards The standards will be weaved into our new support planning documentation. We will provide opportunities for paid employment to people who use our services to train as quality checkers They will review with their peers to see whether we are supporting people to have a GOOD quality of life. 69. Heres some of the other ways we are using the standards Conducting a comprehensive audit- My Voice Offer some individual supported time for each person in Older Peoples care homes - pilot project initially. Individualised Rotas Update our Dignity & Values Training 70. And finally Evaluating the impact that the Quality of Life approach will have in changing culture within our organisation. 71. Thank you Any questions? 72. www.changingourlives.org ask@changingourlives.org 0300 302 0770