PSIHOSOCIJALNI Nasa studija bavi se psihosocijalnim I … · otpusta (penzija iIi plata posle...
Transcript of PSIHOSOCIJALNI Nasa studija bavi se psihosocijalnim I … · otpusta (penzija iIi plata posle...
PSIHOSOCIJALNII BIOMEDICINSKIASPEKTIADAPTACUENA AMPUTACIJUEKSTREMITETA
Aleksandar JovanovicMirko Pejovic
Institut za psihijatriju, Klinicki Centar Srbije,Beograd
Kratak sadria]: Nasa studija bavi se psihosocijalnimi biomedicinskim aspektima adaptacije pacijenata naamputaciju ekstremiteta. Najnovija saznanja iz oveoblasti propustena su kroz prizmu iskustva koje suautori stekli kao psihijatri-konsultanti u Zavodu zaortopedsku protetiku (ZOP) u Beogradu i tokom rada na projektu »Psihosocijalna podrska invalidima rata u ZOP »ko]i je realizovan zahvaljujuci finansijskojpodrsci japanske humanitarne organizacije »Association to Aid Refugees, Japan (AAR,[apan)«.
Kljucne reii: amputacija, psihosocijalna rehabilitacija.
Liinost
Amputacija znaci trostruki gubitak: gubitak funkcije, gubitak senzacije i gubitak telesne sheme - adaptacija na njih zavisi, kako od licnih, socijalnih i porodicnih potencijala, tako i od strucnosti i nesebicnog truda svih profesionalaca i laika koji se brinu 0
ljudima onesposobljenim zbog amputacije.
Adaptacija na amputaciju je odredena nizom psihosocijalnih i biomedicinskih faktora, cije poznavanje je neophodno za adekvatan dizajn relevantnih terapijskih strategija u okviru celovitog koncepta rehabilitacije pacijenata sa amputacijom.
Psihosocijalni faktori adaptacijena amputaciju
Uzrast
Psiholoski problemi povezani za amputacije generalno se povecavaju sa uzrastom.Deca sa kongenitalnim nedostatkom udovase adekvatno adaptiraju uceci da kompenzatorno koriste ostale potencijale. Deca veoma vesto koriste protezu i ostale udove,
ali su izuzetno osetljiva na stay prihvatanjaiii odbijanja svojih vrsnjaka. U periodu adolescencije amputacija je skopcana sa teskocama sazrevanja seksualnog identiteta.Mladi odrasli reaguju na gubitak u zavisnosti od stepena onesposobljenosti i unakazenja, a olaksavajuci faktori su formiranidentitet, intelektualna zrelost, kao i fizickakondicija i socijalna kompetentnost. Kodstarijih osoba, problem predstavljaju naruseno opste zdravlje, socijalna i porodicnaizolacija (smrt bracnog druga iii napustanjeod strane potornstva) i sklonost ka depresivnim porernecajima koja i u opstoj populaciji raste sa uzrastom i samocom.
l'M
Osobe koje su narcisticki investirale u svoj 8fizicki izgled, na gubitak ekstremiteta re- g
~aguju gubitkom samopostovanja, dok zavi- C'lC'lsne licnosti prihvatiti ulogu bolesnika kao~dobrodoslu mogucnost da izbegnu licnu ~
odgovomost i socijalnu kompeticiju. Za oso- ozbe sklonije depresivnom reagovanju, am- w
putacija je dodatna kockica u mozaiku licneneadekvatnosti. Za paranoidne osobe, trau- 83
rna je jos jedna karika u paranoidnom sistemu, sa mogucom eskalacijom psihopatologije i okrivljavanjem drugih za licne probIerne. Socijalno anksiozne, hiperskrupulozne osobe ce u uslovima socijale ekspozicijeimati znacajno vece probleme nego ekstrovertne i samopouzdane osobe. Nekada onesposobljenost moze da donese znacajnu sekundarnu i tercijarnu dobit, tj. psiholoskudobit usled razresenja nekih intrapsihickihkonflikata, kao i materijalnu korist, kojeolaksavaju psihosocijalnu adaptaciju.
Zanimanje i primanja
Svakako da ce osobe cija profesija zavisi odmotornih vestina biti emocionalno vulnerabilnije na amputaciju, s obzirom na negativne egzistencijalne posledice onesposobljenosti. Postoji mogucnost, kao kodmnogih ispitanika u ovoj studiji, da je materijalna naknada za boravak u bolnici vecanego primanja koja pacijenti imaju nakonotpusta (penzija iIi plata posle prekvaIifikacije, na teritorijama ratom opustoseneprethodne ]ugoslavije), sto smanjuje motivaciju da se zavrsi hospitalna rehabilitacija.Takode, nije retko da pacijent, napr. izbegIica povreden u ratu, nakon hospitalizacijenema gde da stanuje niti ima stalan posao.Takav pacijent ce izbegavati otpust sa klinike uz brojne zamerke na racun proteze ilose saradnje tokom rehabilitacije.
Psihosocijalna podrska
Za emocionalno zdravlje svake osobe neophodan je sistern podrske tokom citavog
-<t- zivota. Generalno usamljene osobe vise~ pate zbog amputacije nego one koje imaju§' dobru potpornu mrezu znacajnih osoba izo~ svojoj okoIini. Podrska bracnog druga,
deteta iIi prijatelja je od sustinskog zna:E caja za samopstovanje onesposobljene~ osobe. Pri tome su mlade osobe posebno~ osetljive na prihvatanje u siroj socijalnoj
(ekstraporodicnoj) sredini.
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Veoma je vazno da podrska bude fleksibilna i usmerena na sve faktore od znacaja zaredukciju nesposobnosti i hendikepa. Tozahteva dobro i stalno pracenje procesapacijentove rehabiIitacije i redukcije nesposobnosti, a u cilju da mu se pruzi mogucnost za preuzimanje kompetencija cimpostane za to sposoban.
Biomedicinski faktori adaptacijena amputaciju
Opite zdravstveno stanje
Osobe sa dobrim opstim zdravstvenim stanjem su u prednosti u odnosu na osobekoje imaju poIimorfne telesne poremecaje.Mlada i zdrava osoba ce se lakse vratiti svakodnevnom zivotu od stare i bolesne osobe(npr. sa generalizovanim vaskularnim oboljenjem i diabetesom) koja ima brojnefunkcionalne Iimitacije, ne sarno zbog amputacije nego i zbog ostalih somatskih poremecaja.
Razlozi za amputaciju
S obzirom na razloge za amputaciju, uobicajena je podela na ratne i mirndopskeamputacije.
Amputacije u ratnim okolnostima su ekstremno stresogene zbog nagle promenepracene zivotnom ugrozenoscu i osecajernbespomocnosti. Ratni amputirac nema mogucnosti za adekvatnu pripremu ni vremena za adaptaciju. Takode, kumulacija psihotrauma u ratnoj zoni predstavlja dodatni izvor kompIikacija u vidu psihijatrijskihpoststresnih sindroma koji u znacajnojmeri kompIikuju dalju rehabilitaciju. Sdruge strane, ratne amputacije kod ranjenih vojnika ornogucavaju trajnu evakuaciju iz ratne zone, penzionisnje iIi prekvalifikaciju sa materijalnim i moralnim gratifikacijama koji olaksavaju dalju socijalnu reintegraciju. Najproblernaticnije su ratne
amputacije civila koji, zbog teske ekonomske i politicke krize svojstvene ratnom vihoru, cesto ne mogu da ostvare svoje elementarne potrebe i prava u pogledu odstete, nege, smestaja, prekvalifikacije iii penzionisanja, a dodatno su suoceni sa potreborn reparacije gubitka imovine, bliznjihili domovine, sto je tipicna sudbina izbeglica i proteranih amputiraca u jugoslovenskom gradanskom ratu.
Mirnodopske traumatske i urgentne hirurske amputacije se generalno smatraju stresogenijim od jatrogenih amputacija. Nairne, jatrogene amputacije koje pruzajudovoljno vremena za preoperativnu psiholosku pripremu, daju pacijentu i njegovojporodici sansu za razvijanje realistickihocekivanja i mogucnosti, Posebno se mozeocekivati dobra saradnja sa strucnim timom u slucajevima kada amputacija znacii zaustavljanje (npr. maligne) bolesti. Sudska parnica za nadoknadu neimovinskestete povezana sa amputacijom u znacajnoj meri moze da komplikuje proces rehabilitacije. Slican slucaj je i sa pacijentimakojima izlazak iz bolnice znaci suocavanjesa nedostatkom srnestaja i gubitkom finansijske naknade vezane za hospitalizaciju.
Amputacije kod starijih osoba obicno slede nakon hronicne bolesti sa dugotrajnimtegobama (diabetes, vaskularna boest).Ponekad se amputacija dozivaljava kaokraj patnje, a ponekad kao neuspeh konzervativnog tretmana. Strahovit hendikepi tragedija za staru osobu predstavljaju zanemarivanje i losa nega od strane porodice, sto uzrokuje pogorsanje bolesti takoda je indikovana amputacija.
Priprema za amputaciju
Adekvatna preoperativna priprema, kad zanju postoji rnogucnost, podrazumeva: jasno objasnjenje razloga za amputacijn; prikazivanje amputacije kao intervencije neophodne da bi se sacuvao i poboljsao(hirurska korekcija patrljka) zivot: jasne
informacije 0 hirurskoj proceduri; pozitivno anticipiranje daljeg toka rehabilitacije i egzistencijalnih dihotomija koje se odnosi na informacije 0 protetisanju, odnosirna sa porodicom i prijateljima, mogucnostima korekcije onesposobljenosti, znacenju hendikepa, radnoj sposobnosti, seksualnim problemima, pravima i mogucnostima u okviru zajednice. Neophodno je dasvaki clan strucnog tima, pored pruzanjanege, bude spreman i na davanje informacija i psiholoske podrske. Medutim, glavniautoritet i oslonac u odnosu sa pacijentomu preoperativnom i postoperativnom periodu je hirurg operator (Bradway, J. K. etal. 1984).
Hirurihi tretman
Lose uradena amputaeija je predznak 10seg ishoda proteticke rehabiIitacije. Madahirurski dobro izvedena amputaeija ne garantuje potpun uspeh rehabiIitacije, onasvakako pruza vise sanse za uspesan ishodproteticke rehabilitaeije. Osobe cija je proteticka rehabilitaeija skopcana sa bolom,potrebom revizije patrljka ili infekcijom,bice pod vecim stresom, sklonije beznadui depresiji, sa znacajno kompromitovanommotivacijom za saradnju sa strucnim timom. Razumljiva je praksa u vecini bolnica da najiskusniji hirurg bude direktnoukljucen u obavljanja svake amputacije isupervizije ciravog procesa rehabilitacije.
Nivo amputacije
Nema jasnog konsenzusa 0 tome kakva jeveza izmedu intenziteta psihopatoloskih 'T
r<"l
reakeija i nivoa amputacije, ali se smatra ada je najveci izazov za adaptacione poten- g
!j,cijale obostrana nadlakatna amputaeija, N
Nnasuport potkolenoj amputaeiji sa relativ-
~no dobrom restitueijom i telesne sheme i ;;2funkcije. Moguce su neocekivano teske re- o
Zakcije na relativno mali fizicki gubitak UJ
(npr. prst na nozi iii ruei) iii blaze reakcijena visestruki gubitak ekstremitata. Prog- 85
noza adaptacije se svakako moze dovesti uvezu sa socijalnim, psiholoskim, bioloskim i znacenjem gubitka za osobu i spremnoscu za preusmeravanje na druge zdravelicne potencijale.
Protetiiha rehabilitacija
Sto pre osoba dobije protezu bice kracepod stresom u najvulnerabilnijem perioduproteticke rehabilitacije, a to je period odhirurske intervencije do dobijanja proteze.Kljucni elementi motivacije za rehabilitaciju formiraju se bas u ovom periodu iobuhvataju integraciju proteze u telesnushemu i usmeravanje paznje na ono sto semoze i mora uraditi u buducnosti, umestolamentiranja nad nepopravljivim gubitcirna u proslosti i preokupacije bolom i onesposobljenosti. Neophodan preduslov pozitivne motivacije za proteticku rehabilitaciju i upotrebu proteze je udobnost ifunkcionalnost proteze, a veoma povoljnoutice i podrska od strane drugog uspesnorehabilitovanog amputirca. Dosadasnjeiskustvo pokazuje da amputirci sa podlakatnom arnputacijom lakse prihvataju protezu od amputiraca s nadlakatnom amputacijom. Mladi amputirci sa amputacijomna nedominantnoj strani i general no arnputirci, u slobodno vreme imaju izrazenijutendenciju da ne upotrebljavaju protezu.
Timski pristup
S obzirom na sirok spektar aspekata adaptacije na amputaciju i potrebu za razlicitim vrstama intevencija, timski pristupje standardni imperativ proteticke rehabil-
~
rh itacije. Osnovni zadatak timskog pristupag je sto brze osposobljavanje amputirca zao~ samostalan i kvalitetan zivot, pri cernu je
neophodno dosledno sprovodenje princi5@- pa informisanog pristanka pacijenta to~ kom citavog procesa rehabilitacije. Dobrar5 longitudinalna evaluacija i siri opseg stru-
cnih intervencija, koje moze da ponudi
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strucni tim, povecava rnogucnost da ce svepotrebe pacijenta biti zadovoljene i smanjuje mogucnost previda.
Tim profesionalaca koji sprovodi rehabilitaciju pacijenta sa arnputacijom treba daobuhvata: hirurga, hirurske sestre, fizijatra, proteticara, fizioterapeuta, radnog terapeuta, socijalnog radnika, psihologa i psihijatra. Korisno je da tim, pored profesionalaca, obuhvata i clanove rodbine, uspesno tretirne amputirce, duhovnu podrsku svestenika i druge znacajne osobe izuze okoline pacijenta. U poslednje vremesu se izuzetno korisnim pokazali grupnioblici psihoterapije, networking grupe igrupe samopomoci, cime se obezbedujedragocena pomoc visoko motivisanih i cesto veoma iskusnih laika.
Profesionalna rehabilitacija
Obnavljanje radnih sposobnosti i vracanjena zadovcljavajuci posao je integralni deooporavka pacijenta. Povratak na posao znaCi rnogucnost za slobodan izbor zivotnogstila, samopostovanje i uspostavljanje adekvatne uloge u porodicnoj i siroj socijalnojsredini. Korisno je imati na umu Kohl-ovusugestiju da je bitno voditi racuna 0 tomesta pacijent (a ne sarno strucni tim) smatrauspesnorn rehabilitacijom - za nekoga uspesna rehabilitacija znaci ultimativno povratak na posao, a za nekoga mogucnost zasto kvalitetniji zivot u penziji.
Faze rehabilitacije
Faze adaptacije na amputaciju mozernokoncipirati sa psihijatrijskog i biomedicinskog aspekta. Smatrarno da svaka arnputacija ekstremiteta, a posebno traumatska,zbog ratnih povreda, predstavlja katastroficnu psihotraumu maksimalnog intenziteta, zbog prisutne vitalne ugrozenosti, fizickog bola i trajne onesposobljenosti. Onadovodi do porernecaja telene sheme i ko-
renitih privremenih iii trajnih promena ulicnoj, profesionalnoj i drustvenoj sferifunkcionisanja. Za uspesnu rehabiIitacijuje neophodno maksimalno angazovanjesvih mehanizama prilagodavanja u okvirusvake pojedine faze, a to u krajnjoj linijiznaci da pacijent moze ostvariti optimumzivctnog funkcionisanja, tj. minimum onesposobljenosti i hendikepa za dato telesnoostecenje i socijalno okruzenje.
Proces adaptacije na amputacijuiz perspektive konsultativne-liezonpsihijatrije
Sa psihijatrijskog aspekta, razlikujemo triglobalne faze individualnog odgovora naamputaciju: akutnu, subakutnu i kasnu.Ovakva kategorizacija je izuzetno korisnau domenu konsultativne-liezon psihijatrije jer vremenske odrednice ovako koncipiranih faza korenspondiraju sa psihijatrijskim porernecajima koji se mogu ocekivatiu relevantnim vremenskim okvirima.
AkutnaJaza
Akutnu fazu karakterisu stanje soka, pojacana afektivnost i hiper iii hipokinetskoreagovanje, sto se taksoloski rnoze svrstati u akutne stresne reakcije s raznovrsnomsimptomatologijom. Gotovo svi amputirciopisuju period od prve 3 do 4 nedelje nakon amputacije kao kritican period konfuzije i dezorganizacije, a vecina saopstavaprisustvo suicidalnih tendencija, pa i pokusaja suicida (17%). Taj period se karakterise i povremenim psihomotornim nemirom, nesanicom i prisustvom »flashback--ova. Moze doci do neprepoznavanjalikova clanova porodice. Moze nastati eksplozija plahovitosti zbog beznacajne (a nekad i bez ikakve) provokacije. Moze nastupiti intelektualna konfuzija i nerazumevanje sasvim proste komunikacije. Radikalnepromene stanja tela, koje prate odjednomnastala velika onesposobljenja, kao sto je
amputacija, same po sebi dovode do drasticnih promena na sensorskom inputu koje uzrokuju dezorganizaciju ponasanja,Slucaj kada je veliki deo tela naglo lisensenzacija pretstavlja prototip Hobb-ovogkoncepta, jer nervni sistem osobe naglodobija sasvim razlicitu konfiguraciju kinetickih, taktilnih i proprioceptvnih imputao Osim promena izazvanih ostecenjimaneurofizioloskih senzora, i sam dolazak ubolnicki krevet, kao i promena sredine,odgovarajuce promene u mobilnosti, uopste, stres prihvatanja cinjenice ozbiljnogostecenja, koje je vece nego sto osoba rno
ze da kontrolise, nuzno dovodi do dramaticnih promena u smislu razlicitog stepenadezorganizacije ponasanja.
Subakutna [aza
Posle akutne faze sledi subakutna faza saelementima posttraumatskog stresnog porernecaja i ostalih posttraumatskih stresnih sindroma. Prilagodavanje je olaksanosusretom sa velikim brojem sapatnika ubolnicama i rehabiIitacionim centrima. Sviispitanici isticu znacaj podrske i pomociporodice. Medutirn, psihoterapijska podrska i podrska osoblja i ostalih pacijenatatakode predstavlja znacajan faktor za uspesno prevladavanje stresa i ishod stresnereakcije. Porodica i prijatelji su cesto daleko, a pacijenti provode vecinu vremenaokruzeni ostalim pacijentima, zaokupljenirazrnisljanima 0 buducoj egzistenciji, poslu, prekvalifikaciji. Cesto su pod pritiskominformacija 0 socijalno ekonomskoj krizi
l'sa kojom je suocena zajednica u kojoj su M
ostale njihove porodice i u koju i sami tre- gba da se vrate. ~
N
Ispitanici su predstavljali izuzetno homoge- N
nu grupu uspostavljenu prema spoljasnjern ~svetu, kao vid susprotstavljanja frustrira- ozjucoj realnosti. Ovako formirana homoge- U-l
nost, zasnovana na mehanizmima grupneidentifikacije, podstice izolaciju, sto za po- 87
sledicu moze imati otezano prilagodavanjeu spoljasnjoj neprotektivnoj sredini.
Tokom razgovora cesto se ispoljava narcisticko-agresivan stay kroz potrebu da seimpresionira opisima borbi i masakra, uztrazenje priznanja za podnetu zrtvu, kao iinsistiranje na pokazivanju ostatka amputiranog uda. Mrznja i zelja za osvetom bilaje prisutna kod ispitanika koji su izgubili clanove svoje porodice, drugove i svojaimanja u ratu,
Kasnafaza
Treca faza, je tzv. kasna faza koju karakterisu dva tipa reagovanja, kompenzovani idekompenzovani. Kompenzovani tip se odlikuje dobrom psihosocijalnom adaptacijom sa uspostavljanjem personalne i socijalne homeostaze uz maksimalno angazovanje licnih i socijalnih res ursa. Dekompenzovani tip se odlikuje psihosocijalnommaladaptacijom i obuhvata: autisticnost,hipersenzitivnost, depresivnost, konverzivne tendencije ili agresivnost. U ovomperiodu se vee moze govoriti 0 trajnim poremecajima licnosti pod dejstvom katastroficnog zivotnog iskustva (ratna amputacija). Poseban problem, nakon dugotrajne rehabilitacije u hospitalnim uslovima,predstavlja suocavanje sa spoljasnjorn realnoscu koju Cine: rasturene porodice, spaljena porodicna ognjista, nernastina, socijalne barijere i stigma.
Proces adaptacije na amputacijuiz perspektive biomedicinskog tretmana
Proces adaptacije na amputaciju, sa aspek-"1 ta biomedicinskog tretmana, moze da ser<)
0' koncipira kroz cetiri faze medicinske reha-g bilitacije amputacije, a podrazumeva: pre2!.N operativnu fazu, neposrednu postoperativ-N
::g nu fazu, fazu hospitalne proteticke rehabi-~ litacije i fazu vanbolnicke rehabilitacije.ozU.l
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Preoperativna faza
Za pacijente sa traumatskom amputacijompreoperativna faza je izuzetno kratka ipredstavlja period do hirurskog zbrinjavanja vee postojece traumatske amputacije. Medu amputircima koji imaju dovoljnovremena da mogu da budu preoperativnopsiholoski pripremljeni, vecina ce amputaciju doziveti kao sastavni deo lecenja iolaksanje patnji, tako da nova faza prilagodavanja rnoze da pocne. Strepnja koja postoji kod svakoga se, pre svega, odnosi naprakticne aspekte kao sto su gubitak funkcije, gubitak prihoda, bol, teskoce u adaptiranju na protezu i materijalni troskovi lecenja. Druga vrsta strepnji se odnosi naneke vise simbolicke aspekte, kao sto supromene u telesnom izgledu, seksualnaosujecenost, slika u ocima drugih i s1. Depresivna reakcija, koja se razvija neposredno nakon saopstenja pacijentu da ce muekstremitet biti amputiran, rnoze progredirati dugo nakon operacije sa teskim poremecajern licnog identiteta.
Kljucna strategija u preoperativnoj pripremi je razvijanje realistickih ocekivanja i kodpacijenta i kod clanova njegove porodice uvezi kratkorocnih i dugorocnih zahteva kojise pred njih postavljaju u postoperativnomperiodu i tokom rehabilitacije. Amputacijapri tome mora biti definisana kao neophodna da se popravi zivot (ili prezivi), a nekao prornasaj, stigma i gubitak. Neophodno je da pristanak pacijenta na amputacijubude pracen detaljnim i razumljivim informacijama 0 hirurskim i rehabilitacionimaspektima amputacije, sa otvorenim odgovorima na sva pitanja, rna koliko ona izgledala trivijalna, sto u znacajnoj meri otklanja anksioznost, ljutnju i ocajanje.
Neposredni postoperativni period
Neposredni postoperativni period moze biti razlicite duzine i akutna psiholoska reakcija, koja se moze ocekivati u ovom perio-
du, sadrzi tokom nekoliko sati pocetnukonfuziju i emocionalnu tupost, pracenuosecanjern obamrlosti i parestezijama.Prvih nedelju do dye dana sadrze patnjuzbog fizickog bola, ali i sazrevanje svesti 0
definitivnom gubitku ekstremiteta i strepnje za dalji tok oporavka zbog mogucihkomplikacija. Izuzetno je vazno davanjeadekvatnih informacija i emocionalne podrske od strane strucnog tima. Prisustvoclanova porodice je od vitalnog znacaja, nesarno za decu nego i za odrasle, zbog naglasene regresije i simbiotskih tendencija uobjektivno vitalno ugrozavajucoj situaciji,koja u isto vreme najavljuje verovatno najznacajniju egzistencijanu prekretnicu u zivotu pacijenta.
Hospitalna proteticka rehabilitacija
Hospitalna proteticka rehabilitacija se, saaspekta protetisanja, moze podeliti na trifaze: faza bez adekvatne proteze, faza saadekvatnom protezom, faza kada je pacijent obucen da koristi protezu. Sa aspektapsiholoske krize izazvane amputacijom,proces psiholoske reintegracije se odvijakroz tri faze: fazu »tuposti« u odnosu naspoljasnje stimuluse, depresivnu fazu bilansiranja gubitka sa beznadeznoscu i dezorganizacijom i fazu reintegracije. Ne treba gubiti iz vida da depresivna faza moze daima hronican tok i nastavi se nakon otpustanja iz bolnice, sto zahteva dug, a ponekadi hospitalni psihijatrijski tretman.
Hospitalna proteticka rehabilitacija je kriticna faza rehabilitacije, kako za pacijenta,tako i za clanove njegove porodice. Strucnitim mora da bude izuzetno senzibilan ifleksibilan jer je potrebno voditi racuna nesarno 0 strucnorn protetisanju vee i 0 nizufaktora znacajnih za rehabilitaciju, kao stosu: motivacija pacijenta, njegova dusevnapatnja zbog bola i unakazenja, njegova egzistencijalna strepnja zbog buducnosti,
njegova porodicna, socijalna i profesionalna reintegracija.
U ovoj fazi se mogu ocekivati brojne psihopatoloske reakcije, kao sto su depresivne reakcije, problemi kontrole agresivnihimpulsa sa psihomotornom agitacijom,afektivna labilnost sa brzim smenjivanjemeuforije i depresivnih pomaka, koji mogubiti praceni i suicidalnim razmisljanjirnapa i pokusajima suicida.
Kljucni fakotri za uspesnu rehabilitaciju uovoj fazi su: brzo i strucno protetisanje,integracija u zajednicu koju sacinjavajupacijenti i osoblje bolnice, prihvatanje odstrane porodice i prijatelja, podrska od strane drugih uspesno protetisanih amputiraca, kognitivna restrukturacija sa ciljemda se razviju pozitivne anticipacije i planiranje buducnosti umesto bilansiranja onoga sto je izgubljeno.
Posthospitalna rehabilitacija
Tokom ove faze pacijent je prinuden da napusti zastitnicki bolnicki milje i da se upotpunosti suoci sa realnoscu i svim posledicama gubitka. Ovo suocavanje, kojeneki nazivaju i »drugim uvidom« (secondrealization), cesto rezultira depresijorn,raznim oblicima regresivnog ponasanja,odbijanjem da se napusti uloga bolesnika iprenaglasenim zahtevima za negom kojisu neopravdani u odnosu na onesposobljenost.
Podrska znacajnih osoba iz pacijentoveokoline, a to su pre svega clanovi porodi-ce, a zatim prijatelji, od neprocenjive je l'
r()
vrednosti u svakoj, a posebno ovoj fazi 0'
rehabilitacije, za pacijentovo sarnoposto- g~
vanje i pozitivnu motivaciju. Kljucni zada- ~
ci u ovom periodu su porodicna homeo- ~
staza, radno osposobljavanje, medicinsko ~
pracenje i prosvecivanje, socijalno prihva- ~
tanje i seksualno prilagodavanje. UJ
89
PSYCHOSOCIAL ANBIOMEDICAL ASPECTSOF ADAPTATION TOLIMB AMPUTATION
Aleksandar JovanovicMirko Pejovi:
Institute of psychiatry, Clinical Centre Serbia,Belgrade
Summary: Our study deals with psychosocial andbiomedical aspects of adaptation to limb amputation.Contemporary knowledge in this domain has beenanalyzed through the prism of the authors« experiencein consultatnt-liaison psychiatry at the Institute ofOrthopedic Prosthetics (Zap), Belgrade and on theproject »Psychosocial Support to Disabled War Victims in ZOP« funded by the »Association to Aid Refugees (AAR, japan)«.
Key words: amputation, psychosocial, rehabilitation.
An amputation represents a triple loss:the loss of function, the loss of sensationand the loss of body image - adaptation tothem depends on the personal, social andfamily resources and on the professionalexperience and unselfish efforts of all theprofessionals and laymen taking care ofthe persons disabled by amputations (1).
The adaptation to amputation is determined by many psychosocial and biomedicalfactors, the knowledge of which is necessary for adequate designing of relevanttherapeutical strategies within the overallconcept of rehabilitation of patients withamputations (2, 3, 4, 5).
§ Psychosocial factors of ataptation~ to amputationNN
52d AgeCIz Psychological problems connected withUJ
amputations generally increase with Chil-
90
dren with congenital limb deficiency canbe adequately adapted by learning to usethe other potentials through compensation. Children use prosthesis and otherlimbs with great skill, but they are verysensitive to the acceptance or repulsionfrom their piers. In the period of adolescence amputation is closely connectedwith the complications regarding thematurity of thier sexual identity. Youngadults react to the loss in proportion withthe level of disability and deformation,and extenuating circumstances influencethe already formed identity, intellectualmaturity as well as physical condition andsocial competence. In the older persons,the problem is in a generally bad heakthcondition, social and family isolation(death of a spouse or abandoning by thechildren) and tendency towards depressive disorders which increases even in thegeneral population with the increase inage and loneliness (6, 7, 8).
Personality
The persons who have narcissisticaly invested in their physical appearance reactwith the loss of self-respect to the loss of alimb, while dependent persons welcomethe role. of a patient, as a possibility toavoid the personal responsibility and socialcompetence. For the persons who are aptto depressive reactions, amputation is justanother brick in the mosaic of personalinadequacy. For paranoid persons, traumais just another link in the paranoid system,with possible escalation of psychopathology and blaming the others for the personalproblems. Socially anxious, hiperscrupulous persons shall, in the conditions ofsocial explosion, have significantly biggerproblems than extrovert and self-confidentpersons. Sometimes, disability can bringabout significant secondary and tertiarygain, i.e. psychological gain due to solvingsome intrapsychological conflicts, as wellas material benefit, which enables psychosocial adaptation (9, 10, 11, 12).
Occupation and income
It is certain that the persons whose profession depends on their motoric abilitiesshall be emotionally more vulnerable tothe amputation, considering the negativeexistential consequences of disability.There is a possibility, as in many of thepatients examined through this study, thatthe financial compensation for the timespent in hospital is much higher than theamount the patient receives after beingdischarged from the hospital (pension orpay after additional occupational trainingon the territories of the war affected Yugoslavia), which decreases the motivation tofinish the hospital rehabilitation. It alsohappens often that a patient, a refugeewounded in war, after hospitalisation has
no accommodation or job. Such a patientwill avoid being discharged form the hospital with many complaints about theprosthesis and bad cooperation during therehabilitation (13).
Psychosocial support
The system of support during life-time isnecessary for the emotional health of anyperson. Generally lonely persons suffermore due to amputation than the personswho enjoy good support network of theimportant persons from their surroundings. The support of a spouse, a child or afriend is of essential importance for theself-respect of the disabled person. Younger persons are especially sensitive to theacceptance in the wider social (extrafamily) surroundings.
It is very important for the support to beflexible and turned toward all the factorsimportant for reduction of the disabilityand handicap. That demands constant monitoring of the process of patient's rehabilitation and reduction of disability withan aim to provide him with possibilities toovertake the competencies as soon as hebecomes ready for them (14).
Biomedical factors of adaptationto amputation
General health condition
Persons with good general health have an 'Tadvantage over the persons with polimorph ~
physical disorders. A young and a healthy gperson shall return to the everyday life 2'much more ease1y than an old and sick one N
~(with generalised vascular problems and ~
diabetes, e.g.) who has numerous function- ozallimitations, not only due to amputation, UJ
but also because of other somatic disor-ders. 91
NN
Reasons for amputation
Considering the reasons for amputation,the usual division considers the war-related and non-war-related amputations.
Amputations in war circumstances are extremely stressogene due to the abruptchange followed by life danger and thefeeling of helplessness (15, 16). War amputee has no time for adequate preparation nor adaptation. Also, the accumulation of psychotraumas in the war zonerepresents additional source of problemsin the shape of psychiatric poststress syndromes which significantly complicatefurther rehabilitation. On the other hand,war amputations in wounded soldiersenable permanent evacuation from thewar zone, retirement or additional job training with material and moral gratificationwhich enable further social integration.The most complicated are war amputations in civilians who, due to economic andpolitical crisis attributed to a war time,usually can not provide for the basic needsand rights, regarding war reparations, care,accommodation, additional job training orretirement, and they are additionally facedwith the need for reparation of their lossof property, family and homeland, whichis a typical fate of the refugees and exilledamputees in the Yugoslav civil war.
Non-war related traumatic and urgent surgical amputations are generally consideredto be more stressogene than iatrogene amputations. Namely, iatrogene amputations
-e-rJ., which provide for enough time for pre-ope-g rational psychological preparation give the§. patient and his family a chance to develop
realistic expectations and alternatives.~ Especiallygood cooperation can be expectd ed with the expert team in the cases whenCJ~ amputation means stopping the develop-
ment of (usually malignant) disease. Law-
92
suit for reparation of non-property damageconnected with amputation can significantly complicate the process of rehabilitation.It is a similar case with the patients forwhom leaving the hospital means facingthe lack of accommodation and losing thefinancial compensation connected withhospitalisation.
Amputations in older persons usually come after a chronic disease with long-termproblems (diabetes, vascular disease). Sometimes amputation is experienced as anend of the suffering, and sometimes as afailure of a conservative treatment. A terrible handicap and a tragedy for an older person is rejection and bad treatment from theside of his family, which causes deterioration of disease, which, on the other hand,leads to amputation (17).
Preparation for amputation
Adequate pre-operation preparation, whenit is possible, means: clearly stating the reasons for amputation; describing the amputation as an intervention necessary to preserve and improve life (surgical correctionof the stub); giving clear information aboutthe surgical procedure; positive anticipation of the further rehabilitation and existential dichotomies regarding informationabout prosthesis, relationships with the family and friends, possibilities of correctionof disability, the meaning of handicap, working ability, sexual problems, rights andpossibilities within the community. It isnecessary that every member of the expertteam, apart from providing care, is ready to
give information regarding psychologicalsupport. But, the main authority and support for the patient in the pre-operationaland the post-operational period is the operating surgeon (18).
Surgical treatment
Bad amputation predicts bad results ofprosthetic rehabilitation. Although welldone amputation does not necessarilymean complete success of rehabilitation, itsurely provides more chance for successfulprosthetic rehabilitation. The personswhose prosthetic rehabilitation is connected with pain, the necessity of stub revisionor infection, will be under greater stress,more hopeless and depressive, with significantly compromised motivation for cooperation with the expert team. Therefore, itis understandable that in most of the hospitals the most experienced surgeon isdirectly involved in performing everyamputation and supervision of the overallprocess of rehabilitation.
The level of amputation
There is no clear consensus about connection between the intensity of psychopathological reactions and the level of amputation, but the double above the elbowamputation is considered to be the greatest challenge for adaptation resources, asopposed to the below the knee amputation with relatively good restitution of body imagined function (19, 20). Unexpectedly complicated reactions to a relativelysmall physical loss (e.g. the loss of a toe)or mild reactions to a multiple loss of limbs are also possible (21). The prognosisof adaptation can be connected with thesocial, psychological, biological and themeaning of the loss to the person and hisreadiness for turning to other healthy personal resources (22, 23).
Prosthetic rehabilitation
The sooner the person gets the prosthesisthe shorter the stress period in the most
vulnerable period of prosthetic rehabilitation. Bookmark not defined., which is theperiod from the surgery until the date ofreceiving the prosthesis. The key elementsof the motivation for rehabilitation areformed in this period and include theintegration of the prosthesis into the bodyimageand turning the patient's attentionto what can and must be done in the future, instead of lamenting under the irrecoverable losses in the past and preoccupation with pain and disability.
The necessary precondition for positivemotivation for prosthetic rehabilitationand the use of prosthesis is the comfort ofthe prosthesis and its functioning. Goodinfluence is also the support by anothersuccessfully rehabilitated amputee-s. Upto now experience shows that amputeeswith below the elbow amputation moreeasily accept the prosthesis than theamputees with above the elbow amputation. Younger amputees with amputationon the non-dominant side and generallyamputees in their free time have moreemphasised tendency not to use the prosthesis (25).
Team approach
Considering the wide aspect of adaptationto amputation and the need for differenttypes of interventions, the team approachis the standard imperative of prostheticrehabilitation. Bookmark not defined. The ,-main task of the team approach is to r<"l
8enabe an amputee to live independently as gfast as possible, which requires employing ~
N
the principle of informed agreement of the N
patient during the whole of the rehabilita- ~tion process. Good longitudinal evalua- C)
ztion and a wider range of expert interven- t.LJ
tions, which can be offered by the expertteam, increase the possibility that all the 93
needs of a patient shall be met and decrease the possibility or omission.
The team of professionals who performthe rehabilitation of an amputee patientshould include: surgeon, surgery nurses,physiatrist, prosthetician, physiotherapist,working therapist, social worker, psychologist and a psychiatrist. It is very usefulthat the team, apart from the professionals, include the members of the family,successfully treated amputees, spiritualsupport by the priest and other importantpersons from the patient's immediate surroundings. Lately, different types of grouptherapy can be very useful, including networking groups and self-help groups,which provide valuable help of highlymotivated and often experienced laymen(26, 27, 28, 29).
Professional rehabilitation
Renovation of working abilities and returning to the satisfying job is an integrativepart of the patient's recovery. Returning tothe old job represents a possibility for afree choice of the life style, self-respectand establishment of the appropriate rolein the family and the wider social environment.
It is useful to have in mind Kohl's suggestion30 that it is important to pay attentionto what the patient (and not only the expert team) considers to be a successful rehabilitation - for someone, successfulrehabili tation can mean returning to the
! old job, while for the other it represents aa possibility for a quality life in retirement.oo[j.
~ Stages in rehabilitation
g Stages in adaptation to amputation can be~ considered from the psychiatric and from
the biomedical aspects. It is believed that
94
every limb amputation, the traumatic oneespecially, due to war injuries, representsa catastrophic psychotrauma of maximumintensity, due to present vital danger, physical pain and permanent disability. It
brings about the disorder in the body image and very deep temporary or permanentchanges in the personal, professional andsocial sphere of functioning. For successful rehabilitation it is necessary to engageall the mechanisms of adaptation withinevery separate stage, which in the endmeans that a patient can realise the optimum of life functioning, i.e. minimum ofdisability and handicap for the given physical impairment and social environment.
The process of adaptation to theamputation from the perspectiveof consultant-liaison psychiatry
From the psychiatric aspect we can distinguish three global stages of as individualresponse to amputation: acute, subacuteand late (31). Such categorisation is veryuseful in the domain of consultant-liaisonpsychiatry because the time determinatorsin this case correspond to psychiatric disorders which can be expected in the relevant time frame.
Acute stage
The acute stageis characterised by thestate of shock, increased affectivity andhyper- or hipokinetic reacting, which can,from the aspect of taxology, be defined asacute stress reaction with varied symptomatology. Almost all the amputees describe the period of the first 3 to 4 weeksafter the amputation as a critical period ofconfusion and disorganisation, and mostof them claim the presence of suicidal tendencies, even actual attempts (17%). Thisperiod is also interesting for temporary
psychomotor restlessness, sleeplessnessand the presence of flashbacks'<. It mightbe hard for the patient to recognise members of his family. There is also the possibility of explosion of temper due to aninsignificant (sometimes without any atall) provocation. There can be intellectualconfusion and misunderstanding of a verybasic communication. Radical changes inthe body, followed by sudden disabilities,such as amputation, bring about drasticchanges in the sensory input which causes disorganisation in behaviours>. The case when a great part of the body is suddenly void of sensations represent the prototype of the Hobb's concept, because thenervous system all of a sudden starts getting a completely different configurationof kinetic, tactile and proprioceptive inputs. Besides the changes caused by theimpairments of neurophysiological sensors, the sole act of coming to the hospitalbed, as well as the change of environment,changes in mobility, overall stress causedby accepting the fact of a serious impairment, which is bigger than the person cancontrol, necessarily bring about dramaticchanges in the sense of different level ofdisorganisation in behaviour.
Subacute stage
After the acute stage comes the subacuteone with elements of posttraumatic stressdisorder and other posttraumatic stresssyndromes. Adaptation is facilitated through meetings with a large number of fellow-sufferers in hospitals and rehabilitation centres. All our clients emphasise therole of support and help by the family. Onthe other hand, psychotherapy as well asthe support of stuff and other patients 34,35 also represents a significant factor forsuccessful overcoming of stress and theresult of a stress reaction. The family and
friends are often far away, ana patientsspend most of their time surrounded byother patients, deeply involved in thoughts of future life and work. Very often theyare under the pressure of informationregarding social and economic crisis facedby the community to which their familiesbelong and into which they are supposedto return.
The clients represent a very homogenousgroup as opposed to the outside world, asa kind of opponent to the frustrating reality. Such homogeneity, based on the mechanisms of group identification, enhances isolation, which as a consequencecan have difficult adaptation in the outside unproductive environment.
During the conversation a narcissisticaggressive attitude is very often expressed, through the need to impress a listener by descriptions of battles and massacres, asking for recognition of endured sacrifice, as well as insisting on showing theremains of the amputated limb. The hatred and wish for revenge are always present in clients who have lost their familymembers, friends and property in the war.
Late stage
The third stageis the so called late stage,marked by two types of reactions, thecompensated and decompensated one.The compensated type is characterised bygood psychosocial adaptation which in- ,.dudes establishing of personal and social r<">
8homeostasis with maximum engagement gof personal and social resources. Decem- t:!-
N
pensated type is characterised by psy- N
chosocial maladaptation and includes: S§autism, hypersensitivity, depression, con- ~versive tendencies or aggression. In this r5period it is already possible to discusspermanent personality disorders under 95
the influence of catastrophic life experience (war amputation). The special problem, after long-lasting hospital rehabilitation, represents the moment of facing upto the outside reality represented by: dislocated families, burned homes, poverty,social barriers and stigma.
The process of adaptationto the amputation from the perspectiveof biomedical treatment
The process of adaptation to the amputation, from the aspect of biomedical treatment, can be defined through 4 stages ofmedical rehabilitation of amputations andincludes: pre-surgery stage, immediatepost-surgery stage, the stage of hospitalprosthetic rehabilitation and the stage ofout-patient rehabilitation (36, 37).
Pre-surgery stage
For the patients with traumaticamputations the pre-surgery stage is extremelyshort and represents the period up to thesurgical treatment of the present traumaticamputation. Among the amputees whohave enough time to be pre-surgery psychologically treated, most of them willexperience amputation as a part of treatment and a relief from suffering, so thatthe new stage of adaptation can begin. Thefright which exists in everyone, refers primarily to the practical aspects, such as theloss of function, loss of income, pain, obstacles in adaptation to prosthesis and thetreatment costs. The other type of fears
0' fig re ers to some other symbolic aspects, such2!- as the changes in physical appearance, sex-NN ual obstacles, the image in the eyes of the~ others, etc. Depressive reaction, which de~ velops immediately after telling the patient~ about the limb amputation, can last for a
96
long time after surgery with heavy disorderof personal identity (38).
The key strategy in pre-surgery preparation is developing realistic expectations ofpatient and the members of his familyregarding the short and the long-termrequests which are placed before them inthe post-surgery period and during therehabilitation. The amputation must bedefined as a necessity to improve life (orsurvive), and not as a failure, stigma and aloss. It is necessary that the patient's agreement to amputation is followed by adetailed and clear information about thesurgical and rehabilitational aspects ofamputation, with frank answers to all thequestions, no matter how trivial theymight seem, which significantly decreasesanxiety, rage and desperation.
Immediate post-surgery period
The Immediate post-surgery period can beof different length and acute psychologicalreaction, which can be expected in thisperiod, includes, during the first few hours, confusion and emotional bleaknessfollowed by sense of numbness and pa~restesis. The first week or two contain suffering due to the physical pain, but alsogrowing consciousness about the definiteloss of the limb and the fear about furtherrecovery. It is extremely important to provide the adequate information and emotional support by the expert team (39).The presence of the family members isalso important, not only for the childrenbut also for the adults, because of theemphasised regression and symbiotic tendencies in the actually life-threatening situation, which at the same time announcesprobably the most important existentialturning point in the life of a patient.
Saa~
Hospital prosthetic rehabilitation
Hospital prosthetic rehabilitation can bedivided into three stages from the aspectof prosthetics: the stage without properprosthesis, the stage with the proper prosthesis and the stage when the patient istrained to use the prosthesis. From theaspect of psychological crisis caused byamputation, the process of psychologicalreintegration develop through the threestages: the »numbness« stage compared tothe outside stimulus, depressive stage ofsumming up the losses with hopelessnessand disorganisation and the stage of reintegration40. We should not forget the factthat the depressive stage can becomechronic and continue after leaving hospital, which requires long and sometimeseven hospital psychiatric treatment.
Hospital prosthetic rehabilitationis thecritical stage of rehabilitation, for the patient as well as for the members of his family. The expert team must be extremelysensitive and flexible because it is necessary to pay attention not only to the professional prosthetics but also to a wholeline of factors important for the rehabilitation, such as: motivation of the patient,his psychological sufferings caused bypain and deformation, his existential fearfor the future, his family, social and professional reintegration.
At this stage we can expect many psychopathological reactions, such as depressivereactions, problems of aggressive impulsecontrol with psychomotoric agitation, affective lability with quick exchanging of
euphoria and depression, which can beaccompanied by suicidal thoughts andeven suicide itself.
The key factors for successful rehabilitation in this stage are: fast and professional prosthetics, integration into the community of patients and the hospital staff,acceptance by family and friends, supportby the other successfully prosthetised amputees, cognitive reconstruction with anaim to develop positive anticipation andplanning of future instead of summing upof what has been lost (41).
Posthospital rehabilitation
During this stage, a patient is forced toabandon the hospital milieu and completely face the reality and all the consequences of the loss. This facing, whichsome call »second realisation«, often results in depression, different types of regressive behaviour, rejecting to abandonthe role of a patient and overemphasisedrequests for care which are not justified incomparison to the disability.
The support by the important persons fromthe patient's surroundings, and those are,first of all, his family members and friends,is of a valuable importance in any and especially in this stage of rehabilitation, for thepatient's self-respect and positive motivation. The key tasks in this period are thefamily homeostasis, work training, medicalmonitoring and education, social accept- !ance and sexual adaptation.
97
NN
98
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