Project ABC Parent Leadership Opportunities

Community Education

Group Member & Lead Faculty

• Trainee: Miriam K. White, MA, OTR/L, CTRS

– Doctor of Occupational Therapy Student at the University of

Southern California (USC)

– Occupational Therapy Resident at USC’s UCEDD

• Project Faculty: Fran Goldfarb, MA, MCHES

• Project Faculty: Jessica DeBord, DDS

Project ABC Background & Rationale

• Background

– Project ABC is a six-year federally funded project to help Los

Angeles County design an integrated early childhood System of

Care service network that is based on family needs and Care service network that is based on family needs and

includes families as partners in planning and service delivery.

– Parents learn:

• Leadership skills within Project ABC

• The value of their family voice and its contributions to

organizations

f2

Slide 3

f2 Provide background your background of Project ABC and add a bullet providing background about this project (e.g. parents have been learning leadership skills in Project ABC and blah blah blah.

this gives the audience the reason we were even doing this project.fgoldfarb, 5/9/2011

Abstract

Project ABC Parent Leadership offered me the opportunity to learn about Project ABC Parent Leadership offered me the opportunity to learn about

the experience of families with children with mental health illness.

Parents used their voice to share their stories and hopes of community and

leadership involvement outside of Project ABC. This presentation will

share my experience and ways in which I have learned to provide better

services, advocacy and family-centered care.

Description of Project

• Project Goal: Help parents transition into leadership opportunities outside of Project ABC

• Steps

– Develop abstract for presentation

Identify parents interested in developing leadership – Identify parents interested in developing leadership

potential

– Identify needed supports

– Identify agencies desiring parent leadership

– Identify barriers to participation

– Develop recommendation to address those barriers

– Develop a support plan

Process

• Monthly Meetings

• Overview of Project ABC

• Literature Review

• Agency Visit• Agency Visit

• Identification of Barriers to Participation

• Development of Questions

• Focus Group

• Synthesis of Information

• Development of Recommendations

– Dissemination of Information

– Connections to LAPD

f5

Slide 6

f5 where is the development of recommendations?fgoldfarb, 5/9/2011

Background Research

• Infant and Early Childhood Mental Health– Chenven, M. (2010). Community systems of care for children's mental health. Child and

Adolescent Psychiatric Clinics of North America, 19(1), 163-174.

– Clark, A. F., O’Malley, A., Woodham, A., Barrett, B. & Byford, S. (2005). Children with complex

mental health problems: Needs, costs and predictors over one year. Child and Adolescent Mental

Health, 10, 170-178.

• Experiences of Caregivers of Children with Disabilities– Crowe, Terry K., and Sandra I Florez. 2006. “Time Use of Mothers with School-Age – Crowe, Terry K., and Sandra I Florez. 2006. “Time Use of Mothers with School-Age

Children: A Continuing Impact of a Child’s Disability.” American Journal of Occupational

Therapy 60:194-203.

– Dabrowska, A., & E. Pisula. 2010. “Parenting Stress and Coping Styles in Mothers and

Fathers of Pre-School Children with Autism and Down Syndrome.” Journal of Intellectual

Disability Research 54(3):266-280.

– Davis, E., A. Shelly, E. Waters, R. Boyd, K. Cook, and M. Davern. 2009. “The Impact of

Caring for a Child with Cerebral Palsy: Quality of Life for Mothers and Fathers.” Child:

Care, Health, and Development 36(1):63-73.

– Donovan, J. Mark, Betsy J. VanLeit, Terry K. Crowe, and Elizabeth B.

Keefe. 2005. “Occupational Goals of Mothers of Children with Disabilities: Influence of

Temporal, Social, and Emotional contexts.” American Journal of Occupational Therapy

59:249-261.

Best Practices

• Evidence-Based Practices

David-Ferdon, C. & Kaslow, N.J. (2008). Evidence-based psychosocial treatments for child and David-Ferdon, C. & Kaslow, N.J. (2008). Evidence-based psychosocial treatments for child and

adolescent depression. Journal of Clinical Child & Adolescent Psychology 37(1), 62-104.

Eyberg, S.M., Nelson, M.M. & Boggs, S.R. (2008). Evidence-based psychosocial treatments for children

and adolescents with disruptive behavior. Journal of Clinical Child & Adolescent Psychology,

37(1), 215-237.

Weisz, J. R., Sandler, I. N., Durlak, J. A. & Anton, B. S. (2005). Promoting and protecting youth

mental health through evidence-based prevention and treatment. American Psychologist 60,

628–648.

A Day in the Life

• Early Childhood Mental

Health– Sensory Processing

Disorder

– Profound Hearing Loss

• “I’m tired. I need a break right

now.”

• “Managing 13 appointments per

weeks is stressful.”

• Intentional Interactions – Profound Hearing Loss

• Preschool Visit: John

Tracy Clinic

• Weekend at Home: Life

As We Know It– Family History

– Challenges

• Intentional Interactions

• Support of others is essential

• Stigmatization and Family

Dynamics

• Parents are intuitive

• Community outings are an affair

• Every parent grieves differently

Agency Visit: Los Angeles County Department of Mental Health (DMH)

• Mr. Edward Vidaurri, SPA 4 District Chief

– Service Planning Area (SPA) 4: responsible for planning public

health and clinical services according to the health needs of

local communities local communities

– Discussion of Medical, Health Education & Public Health

services provided

– Funding, Grants

– Demographics

– Challenges to serving populations, stigma, access to resources

– Parent involvement & potential for parent leadership

– Barriers to parent participation

f7f8

Slide 10

f7 Ed is SPA 4 Distrcit Chieffgoldfarb, 5/9/2011

f8 the agency visit should briefly discuss what you learned about DMH and the SPA councils. You don't need to include the Project ABC goverance board infomation as this is being reported as an agency visit not a profile of Ed.fgoldfarb, 5/9/2011

Community Education/TA

• Occupational Therapy in Early Childhood Mental Health

(Psychology Fellows & Global Medicine Students)

– What is Occupational Science? – What is Occupational Science?

– What is Occupational Therapy? What does OT look like in

Mental Health?

• Motor Development, Sensory Processing, ADLs, Social Skills, Feeding

• Brainstorming with audience to address questions regarding ways in which

to identify appropriate referrals, teasing out sensory versus behavioral,

assessments, goals and interventions

• Case Presentation on Clients

Policy Brief: The Issue

• NIMH estimates that less than 20% of children and adolescents, who suffer

from mental illness severe enough to cause functional impairments, from mental illness severe enough to cause functional impairments,

receive intervention and treatment for their condition

• Without early identification, assessment and effective intervention, these

problems will only escalate.

• It is imperative that investments are made to support those in need of

services.

(Birth to Five Policy Alliance; Emdae et al (2005); Macomber, et al (2009); NGA Center for Best

Practices )

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Slide 12

f10 Put this on more than one slide. Use brief bullets. you don't have to put the entire presentation on the slide.

for example under researchUntreated mental health disorders greatly impact children's functioning and future outcomesThere is a need for increased training of early childhood providers

You don't need the other bullets supporting the need for increased training, you can include that in your presentation.

fgoldfarb, 5/9/2011

Policy Brief: Research

• Untreated mental health disorders greatly impact future

functioningfunctioning

• In-depth knowledge of child development is beneficial

• Multi-disciplinary approaches are most effective

• Increased training in early childhood mental health has proven to

have a positive impact on programs

(Birth to Five Policy Alliance; Emdae et al (2005); Macomber, et al (2009); NGA Center for Best

Practices )

Policy Brief: Recommendations

1. Coordination and implementation of federal agencies (MCHB) and

programs

– Implementation of evidence-based practices (EBPs)– Implementation of evidence-based practices (EBPs)

– Build early childhood mental health into systems already in

place

– Ensure early detection of mental health problems

– Shift toward family-driven services

(Birth to Five Policy Alliance; Emdae et al (2005); Macomber, et al (2009); NGA Center for Best

Practices )

Policy Brief: Recommendations Continued

Early Screenings through Part C Individual with Disabilities Education

Act (IDEA) Early Intervention

– Train service providers

– Provide screenings in natural environments or in a mental – Provide screenings in natural environments or in a mental

health professionals’ office

3. Increase Funding

– To allow existing programs and services to access staff training

– Provide funding to implement the State Maternal and Child

Health Early Childhood Comprehensive Systems (SECCS) plans

– Provide adequate insurance coverage for early childhood

mental health services(Birth to Five Policy Alliance; Emdae et al (2005); Macomber, et al (2009); NGA Center for Best

Practices )

Product/Outcome

• Investigation and recommendations to

– 1) Senior VP of Programs, Stephen Ambrose, Ph.D.

– 2) LAPD based on parent focus groups Q&A

• Presentation to CII Leadership

• Parents felt opinions did not matter, but simply filling a chair• Parents felt opinions did not matter, but simply filling a chair

– Not often felt as though their opinions mattered, but were simply

asked to sit on boards because it was required to have a parent

liaison

• Parents identified their own barriers to involvement and leadership

– Language Barriers: English vs. Spanish

– Desire to learn English to be able to communicate better with

organizations, service providers, schools, Regional Centers, etc.

• Parents identified feeling best about taking advantage of opportunities to

take on new leadership roles when given “the necessary tools to succeed”

Product/Outcome Continued

• Presentation to CII Leadership

– Assist in preparation of presentation:

• Having a voice that is heard

• Being given the appropriate resources and information needed to

be successful in new opportunities (serving on committees as well

as leadership positions)

• Parents’ desire to be leaders in the community through

development of a Neighborhood Watch Program

Product/Outcome Continued…

• Contact with the Los Angeles Police Department

(Officers Kim and Stocklein)(Officers Kim and Stocklein)

– Discussion of Focus Group with Parents of Project ABC

– Shared stories of concerns of parents with neighborhood safety

– Expressed interest in helping Project ABC Families begin a

Neighborhood Watch Program

Lessons Learned

• Infant and Early Childhood Mental

Health

– Importance of early intervention

– Stigmatization– Stigmatization

• Family-Centered Care

– Working with families IN partnership

– Prioritizing family needs

– Providing additional resources and

support to families served

Lessons Learned Continued

• Sharing of resources obtained through LEND with peers • Sharing of resources obtained through LEND with peers

and other professionals

• Interdisciplinary Team

• Perseverance is key

Next Steps

• Assist Dr. Ambrose in synthesis of presentation to assist • Assist Dr. Ambrose in synthesis of presentation to assist

with Project ABC in SPA8

• Continued partnership with LAPD Neighborhood Watch

Acknowledgments

• Fran Goldfarb, MA, MCHES

• Jessica DeBord, DDS• Jessica DeBord, DDS

• Alvin Yusin, MD

• Scenario Based Learning Group

• Shelby Surfas, OTD, OTR/L

• Stefanie Bodison, OTD, OTR/L, SWC

• Lisa Lewis, MA, OTR/L