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Presentation By: Karen Andrews-Savoury BSW;RSW Slide 2 Having the choice to participate in the decisions that affect ones life and the life of ones society and community. To be an effective and creative participant in ones environment. To understand power not as power-over but as power- to(transformative power) Helping activities in naturally occurring settings in the community The entire community is viewed as an oasis of potential resources Slide 3 People offering help are required to focus on maintaining their own balance (centeredness) so they are in relationship with the people receiving help. before you can reach out to help the people around you, you must first understand how to help yourself Slide 4 The Water Story Please have a glass / bottle of water available during this exercise) Slide 5 Mary and Jim had a big empty house after their three children left home. They were in their mid- fifties and thought about moving to a smaller place. However when Jims mom died, they decided to invite Jims Dad, Morris to live with them. Morris is 80, very alert and active but he was lonely living alone, was not eating well, and had problems administering his own insulin. A month ago, Jackie their youngest daughter, announced that she was divorcing her husband of seven years and asked if she could move home with her 2 year old son. Suddenly everything seemed to change. Morris started asking Mary for rides and cook and was critical of her. Jackie, her daughter seemed to think that her mom and dad would just drop everything to babysit for their grandson. She seldom offered to cook and did not pick up after herself or her son Sean. Morris became very upset that Sean kept taking his slippers. His diabetes suddenly became very problematic. Mary dropped out of her daytime activities so that she could help Morris and look after Sean. Morris seemed to be deteriorating and whenever she was stern with Sean, he would cry and run to Jackie. Then she would storm around complaining about her troubled life. Jim started staying later and later at work Slide 6 Slide 7 In 2007, there were 4 million family caregivers across Canada Over 2.7 million family caregivers were over age 45 26% of Canadians report having cared for a family member or close friend with a serious health problem in the last 12 months thats about 1 out of every 4 people! We are all going to be a caregiver at some point in our lives Slide 8 Slide 9 Role Expectations Cultural Differences Societal Expectations Family Dynamics Economic Hardship Cycle of Violence Health Issues Slide 10 Stress is the bodys response to anything that makes us feel threatened or pressured Positive stress: gears us up to accomplish a task, protects and motivates us Negative stress: leads us to feel tense and upright, can cause many physical, emotional and social symptoms Slide 11 Denial about the disease and its effects on the person affected Nothing is going to change. I can do this... I dont need any help. Anger at the person with the disease and others The tension builds up and I get angry. I have stormed out the door...I went right out and stayed out till I cooled down. Withdrawing socially no longer wanting to stay in touch with friends or participate in activities I have lost my identity...my name is now hows your mother Some friends are interested, others are not interested in your changed situation. Anxiety about facing another day and what the future holds I am faced with growing old alone. Slide 12 Depression - feeling sad and hopeless much of the time we dont have the closeness that we use to...I have to ask for hugs now. letting go of my dreams... A house, trips...life as I expected it to be with spouse. Exhaustion barely having the energy to complete daily tasks I need to maintain my sanity- need to be healthy to care for [CR], but no time for me, so how do you look after yourself? Sleeplessness waking up in the middle of the night or having nightmares or stressful dreams At the end of the day I am very stressed...it takes hours to settle down to sleep [CR] is up at night... Is afraid of making a mess...makes me worn out...blow up easily...raises my blood pressure. Emotional Reactions crying at minor upsets, often irritable I feel angry-blow up and then I feel guilty it has destroyed my self-esteem The unpredictability of [CRs] reactions is still what throws me... I expect a pattern I am always walking on glass to keep the peace Slide 13 Lack of Concentration having trouble focusing on and completing complex tasks Im always second guessing myself and feel less and less confident that I am doing the right thing. Health Problems losing or gaining weight, getting sick more often, developing chronic health problems (high blood pressure) I am one step away from needing care myself. Physically it is hard, especially on my back... Have to pull him up from the floor after he has fallen. Refuses to let me call the ambulance or other help...an invasion of our privacy...have to avoid extra costs. Slide 14 Stage One: Frustration Stage Two: Isolation & Lack of Insight Stage Three: Depression CAREGIVER BURNOUT Slide 15 Identifying Feelings Sharing The Care Power As A Resource Strategies That Promote Effective Engagement Community Development, Collective Empowerment and Partnerships Slide 16 Slide 17 Slide 18 Slide 19 Slide 20 Slide 21 If the health care system were a plant, family caregivers would be the roots: invisible, fragile, and vial. Silver Donald Cameron