NYHDIF 2018

Nov 2018

Philip M.J. Graham

Digital Programme Lead

Healthier Lancashire and South Cumbria

@PhilipGrahamNHS

www.england.nhs.uk

www.england.nhs.uk

Digital Child

Health

• To know where every child is

• And how healthy they are

• And what are we doing about it?

https://www.england.nhs.uk/digitaltechnology/child-health/

Strategy

www.england.nhs.uk

6

National fail-safes

Maternity

Birth

Community

Social Care

GP

Information Journey

Commissioning

Population management

Person Held Record

SCR/PDS

Registration

Screening

Personal Control

CHIS

(Local fail-safes)

Education

SecureAnte-natal

www.england.nhs.uk

Personal Health

Info for use by: Parents, Children, Young People, Carers

Info sharing controlled by: Parents, Children, Young People,

Carers

Info type: per child records with personal identifiers and personal data.

Recorded by parents and young people and professionals

Info grouped by: families, extended family, social groupings

Info Systems in use: PCHR, Health Passports, eRedbook, Baby Buddy,

Patient Knows Best and many others

Professional Health

Info for use by: professionals caring for parents, children and young people

Info sharing controlled by: the organisation in which the care takes

place, e.g. GP practice, hospital.

Info type: groups of individual, identifiable health records e.g.

caseloads, medical notes. Recorded by professionals

Info grouped by: organisation providing the care

Info Systems in use: CHIS, PAS, Maternity, MH Systems, GP Systems, SCR, CP-IS, A&E, Screening Systems

and many others

Public Health

Info for use by public health professionals and commissioners

providing care services to populations

Info sharing controlled by: national and local agreements

Info type: anonymized data, does not identify individual children. Often

aggregated or statistical. Analysed rather than recorded.

Info grouped by: national, regional, or local populations. Sometimes by

disease or condition

Info Systems in use: Maternity and Children and Young People’s Datasets, Immunisation Cover reports, Screening Key Performance Indicators and others

Contributes toContributes to Is source forIs source for

www.england.nhs.uk

Maternity

Systems

GP

Systems Community

Systems

CHIS

Education

Systems

ePHR

National

Screening

Systems

Local

Authority

Systems

Failsafe

Management

Registration

SCR/PDS

Local IDCRLocal IDCR

Access

Management

Commissioning

Population

Management

National events hub

Local events hub

Health

National

Partner

Personal

www.england.nhs.uk

www.england.nhs.uk

www.england.nhs.uk

www.england.nhs.uk

www.england.nhs.uk

www.england.nhs.uk

Strategic fit

www.england.nhs.uk

LHCR Platform

www.england.nhs.uk

Technical CapabilitiesPopulation

Health

What next for

DCH?

www.england.nhs.uk

Pyramid of progressNational

Digital Redbook

Digital Redbook

Standard

National Failsafe

National Interoperability

Local Pilots of National services (Lancashire and another)

ISN Standard for DCH interoperability

Local Pilot of Redbooks (London/Lancshire/Bristol) 70k eRedbooks

Local Pilot of Interoperability (LANCS)

Information Standard for DCH

PRSB Standard for Healthy Child

www.england.nhs.uk

18/19 Local Digital Child Health Programme

Hi-Level Revised Programme Plan – Lancs, London

and Bristol

Development, Full Production Preparation, Performance + Volume Testing

Development Sprints

Design WorkshopsAligne

d Go-

Live

Qtr 2

July - Sept

2018

Qtr 4

2018/19

Qtr

1

Apr

-

Jun

201

9

Qtr 3

Oct - Dec

18/19

Projects

Infrastructure

Information

Governance

0-1

da

ta flo

win

g t

o a

Dig

ita

l R

ed

bo

ok

Workbo

ok DPIA Assessment + Approvals

Target – Feb

2019

Engagement +

Communicatio

nsBristol, North Somerset + South Gloucs

LancashireFocus Group Materials

Marketing CampaignDeployment Template Comms Collateral

Focus Groups

STP Area 1 in London

Phase 1,

2a+b

Product

Development

(Siteit)

Phase 4 Phase 5Phases

2c + 3Phase 6 Phase 7 Phase 8 Phase 9

• 9 events

flowing

• Simplified Sign

Up

• Parental notes

+ photos

• Growth Charts

• NHS Choices

• Mums

Record

• Links –

External

Sites

• S1

Localis

ed

Content

• Clinical

data

ingestio

n +

display

• S2

Localised

Content

• S1

‘potentiall

y missed

notificatio

ns

• S2

‘potentiall

y missed’

notificatio

ns

• Local

Service

Informatio

n

• S1 My

Circle of

Care –

delegat

e

access

• S2 My

Circle of

Care –

delegate

care

• S3

localised

content

• Local

content

admin

• Dev

Firsts

EMIS

Message

Testing to

commenc

e

Servelec feasibility study and proof of concept

www.england.nhs.uk

Dependencies

21

IT Futures

Programme

Integrated Care

Programme

Citizen ID

ProgrammeDSP ProgrammeNational Opt Out

Programme

IT Futures

catalogue &

framework

National

Events

Management

Service &

PDS

National

Record

Locator

Service

Citizen ID

Delegated

Access

Feed to DSP

for PHE

Opt Out for

any SUS

integration

Data content and New

Data collections

Programme

Change

Control

GP Connect

GP Connect

Elements

PHE, LGA &

Local Authorities

PHE National

Screening ServicesNHS England

TransformationNHS England

s7A Children ServicesDepartment of

Health

• NIPE

• Hearing

• Adoption

• Service

Operating

Guidance

• Adoption

Lancashire

• Transformation

• EPCHR

• Adoption

• Operating model

• CHIS Adoption

• Digital Redbook

Funding

• Digital

Redbook

Funding

• Pilot

• Lessons

• LEMS

• Early Digital

Redbook

• Early

Digital

Redbook

• Early

Digital

Redbook

LondonBristol

Early

Adoption &

Funding

PHR

External

Internal

• LHCRE

• Local

Architectures

Exemplar Areas

www.england.nhs.uk

Key Dependencies for Revised

Digital Redbook Plan• EMIS messaging capability (Lancs & Bristol)

• FHIR messaging curation for clinical safety and national capabilities

• SiteKit software update

• GDPR compliance

• Product ‘stickiness’

• Will meet stated requirements from March 2019

• HV information digitisation (London)

• Approval of additional capital funding for 2019/20

• For local activities

Leadership

• Pioneers

• Settlers

• Town Planners

• (S Wardley)

www.england.nhs.uk

www.england.nhs.uk

• Pioneers – Push the boundaries

• Settlers – Commoditise those boundaries

• Town Planners – create foundations

• Need brilliant people in all these roles

NYHDIF 2019?

Questions?