PDSSN's Organizational Overview
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Transcript of PDSSN's Organizational Overview
Piedmont Down Syndrome Support Network
Programs for Families Who HaveChildren of All Ages with Down Syndrome
Family Social Gatherings
D.A.D.S. Group
Ladies Night Out
PDSSN Friendship Groups
PDSSN Member Scholarships
Sunshine Fund
New Parent Resource Notebook
First Call Program
Triad First in Family Funds
Quarterly Newsletters
Family Social Gatherings
Spring KIDSFEST
Family Day at Camp Hanes
Tanglewood Hayride
Buddy Walk
Winter holiday party
3-21 Deacon Dash for Down Syndrome
And lots more! Check out all of our events at PDSSN.org.
LNO – Ladies Night Out
Meets monthly at different restaurants in the area
Locations are listed on PDSSN’s event calendar and website
“To assist and support, through fellowship and action, the fathers and families of individuals with Down syndrome”
The Foundation
Supp
ort
Fellowship
Action
• To create a network of fathers willing to develop a program based on the needs of the men involved
• To enhance a father’s knowledge and resources about children and individuals with Down syndrome
• To enhance personal advocacy skills• To improve a family’s ability to cope with the unique challenges of
raising a child with Down syndrome• To have fun and build camaraderie and friendships among fathers• Open Forum and Info: https://www.facebook.com/DADS.Piedmont• Closed discussion group on Facebook• PDSSN Site: http://pdssn.org/programs-3/d-a-d-s/
Simple Mission:
Simple Goals:
Information:
:
D.A.D.S. – Piedmont Chapter
PDSSN Member Scholarships
Conferences: PDSSN members can apply for funding to attend national and local Down syndrome related conferences.
Post Secondary: To advance the inclusive opportunities for individuals with Down syndrome living in the Piedmont in pursuit of a post-secondary education.
Sunshine Fund
Support for families who are experiencing illness, hospitalization, or other hardship by offering visits and gift cards.
Electronic care calendar that allows members to sign up to help with other families’ needs for meals, rides, etc. during times of hardship.
First Call Program
A volunteer group of trained and experienced parents who make themselves available to parents of children newly diagnosed with Down syndrome.
Volunteers provide up-to-date accurate information, answer your questions, and listen with compassion, never judgment.
PDSSN New Parent Resource Notebook
Provides comprehensive information from birth through adulthood
Lists I/DD related resources for the surrounding six counties
Available in both English and Spanish
Resources also available online at PDSSN.org
Triad First in Family Funds
TFIF offers support to families and individuals in Forsyth, Davie & Stokes Counties by connecting them to community programs, obtaining discounts, and in some cases providing funds.
PDSSN provides funds annually to TFIF for individuals who have Down syndrome and their families in the 3 counties TFIF covers plus Surry, Yadkin, and Davidson. Distribution of funds is determined by the TFIF management team.
First In Families of North Carolina - Believe, Achieve, Give Back.
Eligibility Requirements:Triad First In Families supports any family in which one family member has a developmental disability or traumatic brain injury.
The family/individual must be living in their own rented or owned home, not in a group home.
Total household income cannot exceed $65,000 per year.
PDSSN Family Fund
Established to ensure that all families can participate in any and all of PDSSN’s activities and events.
PDSSN Friendship Groups
Social opportunities for individuals with Down syndrome.
Groups determined by age, skill levels and interests of each group participant.
To provide information and skills for children, teens and adults to grow into self-advocates who see PDSSN as a resource in their lives.
PDSSN Programs Open to the Community
Exceptional Families Program
Next Chapter Book Clubs
No Limits II Dance
Community Education Programs
Annual Down Syndrome Update
Community Grants
Buddy Walk
3-21 Deacon Dash for Down Syndrome
Exceptional Families Program
Partnership with Family Support Network
Meets 10 times a year at the Little Creek Recreation Center
Guest facilitators support discussions regarding topics of interest to parents of children who have intellectual and developmental disabilities
A light supper and childcare are available but reservations for both are required
Next Chapter Book Club
Promotes literacy and encourages friendships among adults with intellectual disabilities
Members meet for one hour a week at local bookstores, coffee shops and cafés to read and discuss a book of their choosing
Anyone can participate, no matter their reading or ability level
Trained volunteers facilitate each group
Volunteer opportunities available
No Limits II Dance Club
A fun evening out for adults with “different-abilities” (18 years and older)
Music, dancing, dinner, Bingo, and door prizes
Annual spring formal
Community Education ProgramsPDSSN Community Education Programs are open to everyone.
Our speakers have included: speech language pathologists; occupational therapists; ear, nose and throat doctors; special needs trusts attorneys; estate planning professionals; and others.
PDSSN hosts an annual Down Syndrome update meeting every January, at which Dr. Tamison Jewett presents the most current medical information available about Down syndrome.
Community Grants
PDSSN makes donations to groups that support people who have Down syndrome or other intellectual disabilities.
Some recipients: Best Buddies, Triad First in Families, Beyond Academics, The Special Children’s School, No Limits II Dance Club, Friday Socialites, and the Family Support Network.
The PDSSN Buddy Walk
Promotes awareness, acceptance and inclusion of individuals with Down syndrome. Fun for all includes: food, carnival games, inflatables, train rides, the famous talent show, and more!
3-21 Deacon Dash for Down Syndrome
A 5K race with an extra .11 mile added for a 3.21 total distance for the awareness and support of individuals with Down syndrome! Runners’ official times are captured at the 5K finish line; the DASH is just for fun!Significance of the Name: Most people have 2 copies of 23 different chromosomes but individuals with Down syndrome are born with 3 copies of the 21st chromosome (the medical term for this is Trisomy 21).
Dress Down for World Down Syndrome Day
March 21st is World Down Syndrome Day, chosen because of the 3rd copy of chromosome 21 in Trisomy 21)
Encouraging companies and organizations to participate. Penny Wars to raise
awareness, understanding and inclusion among young children which will grow with them into adulthood.
Please Contact PDSSN for More Information!
PDSSN.org336-480-8871
[email protected]/pdssn
facebook.com/groups/pdssnfacebook.com/
DADS.Piedmont