Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

17
Parental Voice in the Recognition of Congenital Heart Disease Think Heart
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Transcript of Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

Page 1: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

Parental Voice in the Recognition of Congenital Heart Disease

Think Heart

Page 2: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

8 children in every 1000 has a congenital heart defect.50% of those children have to undergo surgery.88% of them have a one stop surgical procedure.12% need a series of operations or interventions.Each Year between 450 and 500 cases are diagnosed as having a single ventricle heart problem .

Page 3: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

Within the West Midlands up to 60% of Complex Congenital Heart Disease is detected Antenatally .

Page 4: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

Early discharge•Ductus has not closed.•Cardiac murmurs are still present.•Feeding not established.•Heart rate has not settled.•Oxygen saturations may not have been recorded.

Page 5: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

HEART

THINK

National campaign to improve the diagnosis of Congenital Heart Disease after birth.

Page 6: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

Observation.Questions.Listen to parent experience.Basic tests.

Page 7: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

Heart rate - too fast or slow (normally 100 to 160 beats per minute)?

Page 8: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

Energy & Eating - sleepy, quiet, too tired to eat, falling asleep during feeds?

Page 9: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

Take a full feeding history.•Is the baby getting hungry?•Do they complete a full feed?•Do they fall asleep during a feed?•Is that sleep a deep one?•Does the baby wake for a feed?•Is the baby putting on weight gradually?•Is their weight gain dramatic?

Page 10: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

Arterial Saturation - a blue, dusky or grey colour (normal oxygen saturations 95-100%)?

Page 11: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

Respiration - breathing too fast or slow (normally 40-60 breaths per minute)?

Page 12: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

Recession

Nasal Flaring

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Temperature - cold to touch - particularly hands and feet?

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Why are they becoming compromised?

Foetal Circulation

Hypoplastic Left Heart

Page 15: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.

• Heart rate - too fast or slow (normally 100 to 160 beats per minute)?

• Energy & Eating - sleepy, quiet, too tired to eat, falling asleep during feeds?

• Arterial Saturation - a blue, dusky or grey colour (normal oxygen saturations 95-100%)?

• Respiration - breathing too fast or slow (normally 40-60 breaths per minute)?

• Temperature - cold to touch - particularly hands and feet?

THINK HEART

Page 16: Parental Voice in the Recognition of Congenital Heart Disease Think Heart.