Paper Crane Fall Winter 2009

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AADPSPaper Crane Fall/Winter 2009NEWSLETTER

AADP turns 20!!For the past two decades, AADP continues to help save the

lives of patients with life threatening blood diseases curableby a marrow/stem cell transplant. A special newsletter issue

on AADPs 20 year journey is underway. Keep a look out forthis issue, you wont want to miss it!

In This Issue

Love, LAUGH, Live...

Mark yourcalendars! LFL2010 will be onFebruary 26, 2010,at the Palace ofFine Arts, SF.Support AADP and

buy your ticketstoday!

OutreachCommunities...

TECH SAVVY...

AADP is going web-mobile-friendly

How would you define the word

giving and what does givingmean to you? Does culture impactyour perspective on giving? Theefforts to break through existingmisconceptions, myths and facts,

stereotypes, etc. about registrationand bone marrow/stem celldonation.On July 25,2009, Michelle Maykinpassed away after a courageous 2-year battle with cancer.During her

battle Michelle, Van (college sweetheart and

husband), Megan (mother), Dr. Lam Do,

and AADP worked with state and local gov-

ernment officials from the City of San Jose

to provide paid leave for city employees who desired to serve as organ

donors (including bone marrow and stem cell donors) or volunteer for

other life-saving medical procedures. Vice Mayor Dave Cortese worked

very hard to see that this policy was adopted by San Jose. My goal isto make it easy for everyone, including city employees, who want a

chance at saving a fellow humans life, to be able to do so without any

impact to their employment, said Cortese.

Since the announcement of this adoption in June 2008 and the

passing of Michelle Maykin, Megan, Project Michelle, and AADP have

slowly made progress into other cities and on the state level. On Sep-

tember 22, 2009, City of Berkeley Council Member Jesse Arreguin

awarded a Resolution Honoring the Life of Michelle Maykin and Urging

People to Register as Bone Marrow Donors. We will continue to work

with Council Member Arreguin on adopting policy similar to San Joses.

AADP pays a tribute to Michelle Maykin and Nick Glasgow and the legacythey leave behind. How each person made an impact for searching

patients and patient families, AADP, and the community.

Gift of HopeRead inspiringdonor stories

Pg. 8

Cont. on pg. 7 Pg. 1

Pg. 13

Pg. 4


2/202AADP Paper Crane| Be The One to Save a Life >>Fall/Winter 2009 www.aadp.org | 800-59-DONOR

2AADP Paper Crane| Be The One to Save a Life >>Fall/Winter 2009 www.aadp.org | 800-59-DONOR

Executive Director

I am so glad to see that

2009 is on its way out and

I look forward to 2010.

Exciting times are ahead and AADPis on its 20th year. Although every-one at AADP worked extremelyhard to reach our recruitment goal,this year we fell short. We are sure

that every donor registered was well-educatedand will be a committed donor. In light of ourshort fall, we are eager to redeem ourselves.

We registered over 12,000 donors bythe end of our fiscal year, September 2009.Thank you to every community group, corpora-tion, religious organization, volunteer, donor,

and searching patients. You helped make thispossible.

I would like to acknowledge all the bravepatients searching for a donor who trusted uswith their stories, but lost their battles with can-cer: Michelle Maykin, Nick Glasgow, JorgeOchoa, Saret Silva, Erica Lepe, Geary Moya,Stan Kwong, Ben Yen and Min-Fei. You are for-ever in our hearts and it is all of you who helpus move into 2010 and encourage us to fight

even harder.Our goal for 2010 has increased by

15%. We must register 16,293 new donors.

We have a plan of action and we have added tothe AADP family by two.

You will see AADP a little more often

where you socially network (Twitter, Facebook,

Blogs and LinkedIn). We have some fun events

planned, and yes, a recruitment drive almost

every day. Please visit our new website,

www.aadp.org and find out how you can help

AADP achieve its goal and mission.

Be part of the solution to saving a life!

Happy Holidays!!

Carol Gillespie,

Messages From AADP

As many of you know,

Asia Blume


3/20 Fall/Winter 2009



Community Support and Recognition

Since Sameer and Vinays campaign, theSouth Asian community has becomemore aware about marrow and stem celldonation. The common misconceptions of extremepain or actual bone removal are slowly disappearing. Infact, for every South Asian focused drive I have been to

at least one person has said that he or she had regis-tered. Some people have been on the registry for 15years, while others joined during Sameer and Vinays

campaign.Those who have already registered always ask,

how many people did you register? The number is

always disappointing to them, especially when they see

hundreds of able-bodied people walking around. Is itlack of education?, they wonder

out loud. It could be, but it may justbe a lack of empathy or connection.

If you look at all the driveswe have done over the years, wehave been to almost every temple,

Gurdwara, religious and social festi-val. There have been articles pub-

lished in most, if not all South Asian

print media, and we have begunradio ads on the South Asian radiostation.

Maybe, the attitude of if it doesnt affect me,

why should I bother? still exists. Maybe because they

have never met or known someone with leukemia or

other life-threatening blood diseases,they dont feelthe urgency to stop and register.

As a South Asian, I know our

culture gives but most of us per-

ceive giving as monetary donations,and while that is giving, as a society,as a social group, as a people, weneed to expand the definition of

giving. Giving is also taking time from

eating samosa at a festival and toregister. Giving is also stopping for 10seconds before leaving the temple to

hear about how you could save a life.

Registering is so simple; the amount of effort one putsinto avoiding eye contact, or changing the path of theirdirection just to avoid hearing about how you can help,

well, that takes more time than just hearing someoneout. So, next time you see someone with a cause, justtake some time out of your busy life and pause to see

what you can give of yourself to help.

Be the change, you wish to see in the world, Gandhi.

Left photo: Sameer Bhatia; Above: Vinay Chakravarthy

Visit Vinay @ www.helpvinay.org

Visit Sameer @ www.helpsameer.org

By Pawan Dhillon

In the month of September, AADP had theopportunity to attend Latino-focusedevents. Thanks to Stacie Tamaki, AADP attendedthe Hispanic Chamber of CommerceSan Jose

Lunch Mixer. With Stacie by my side, we were able tonetwork and socialize with different people in differentprofessional levels. Stacie and I emphasized AADPspurpose and mission while handing out NMDPsstatistic sheets, which describe the crucial demand formore minorities on the National Registry.

AADPs founder Jonathan Leong and I at-tended the Asia Inc. Gala to mention AADP and itsmissonthe need for more ethnic communities andgroups to collaborate for a particular cause.

The highlight of the evening was for Asia Inc.to honor a Latino, Luis H. Sanchez, for his dedicatedservice in the Asian community. The fact that Luiswas being honored by Asia Inc. restated what AADPdesires to achieve.

AADP looks forward to working with commu-nities and finding ways to work asa team. With your community ef-forts, we all can accomplish ourgoals.

Community Support Latino Outreach

By Ivonne Flores



Whats NEW with AADP

Pawan Singh is AADPs newSouth Asian OutreachCoordinator. She is an SJSUalumni. She has been with

AADP for 3 months filled withlife saving experiences,through recruitment drives Ihave been able to see how giv-

ing, generous, and loving humanity can be.Pawans personal goal as South Asian Out-reach coordinator is to educate the communityabout the importance of not only registering,

but then also going on to donate if they arefound to be a potential match.

A newest addition to AADP isMellisa Kim. She is our Out-reach Assistant. I am new to

both the Bay Area andAADP. As AADPs Adminis-trative/Recruitment Assistant,and I happily anticipate fur-ther familiarizing myself with

both. The magnitude of AADPs efforts rundeep, and I hope that I can soon become aneffective contributor to those efforts.

Our new Chinese Outreach

coordinator is Sandy Zhou.She is driven to educate andassist people in the commu-nity, especially health andwellness. It is my hope thatI can educate and inspirethose in the Asian Americancommunity to take an activepart in saving lives through

AADP.

We have a new Latino Outreach Coordinator,

Ivonne Flores. Originally from Los Angeles,

Ivonne moved to the Bay Area in 2001 to

attend UC Berkeley. Her goal with AADP is

to enhance her passion in healthcare and cul-

ture as a source to reach out to all communi-

ties and provide them with the help they need.

As a whole, she would like to bridge a strong founda-

tion with the Latino community and other ethnicities

that AADP reaches out too; so we can all come to-

gether in a holistic ways to save peoples life.

James de Lara first started with AADP a year and a half ago as an

Outreach and Recruitment assistant. James has assisted everyone

in the office from drives to taking donor evaluations. Surely, AADP

would be lost without him. He has taken care of maintaining the

office and dealing with any computer issues. With an enthusiasm

as driven as James AADP has decided he will take over as the newOutreach Coordinator for the Filipino community. Yay!

PROMOTED!

This January 3rd will mark the 2nd year Ruby Law first joined AADP.

Ruby has worked as an Outreach Coordinator for the Chinese communi-

ties. She has worked immensely hard the past 2 years at setting up drives

to visiting patients to accompanying donors at their donation process.

Though the AADP goals are challenging, Ruby has recognized the organi-

zations true potential. Its no wonder she is now the new Recruit-

ment Director for AADP, she has the passion to keep AADP right ontrack! Congratulations!!

AADP would like to recognize the promotion ofRuby Law and James de Lara

Wewcmethla

atotooA

famiy
http://www.aadp.org/pages/contactus.php?passid=26



Donor : Anh Thu

Donated in April 2009Ethnicity: Vietnamese

" My family were really worry about donating.

Some of my friends said that I waste my timefor nothing. But bea stem cell donor is one

of best thing that I did in my life. Not too much pain,not take much time, I did it with helping from many people

who always want to make life more beauty. "

No Pain, Just Gainanother reason for giving

In 1993, I decided to attend the Nihonmachi Street Fair

in San Francisco. I came across the AADP information table and the staffmade a compelling case- that the most matches are made from donors within

the same race. The statistic AADP reported to me about the critical demand forminority donors was unfortunate and seemed improbable that I would ever be a

match, but I thought to myself, Sure, why not?

A year later, I was contacted and informed that I was a suitable match to

someone in need of a bone marrow transplant. I was in shock! But I completely

understood that it was going to be a once in a life time opportunity, to give

the gift of life to someone in need. I was honored and bless and I knew it was do-

ing the right thing.

The donation process is an unforgettable experience. It was the first time

I had gone under any kind of full general anesthesia or any kind of extended stay in a hospital. To calm

my nerves, doctors gave a detailed walk-thru of the simple procedure. After the procedure was done,

I was surprised to only feel as if I had taken a hard fall and hurt my butt. I was released the next dayand just sore in the area for a few days. It was more uncomfortable than any extreme pain.

It has been more than 20 years since the donation. I did not meet my recipient, but I was given

the opportunity to send a card. All I knew was that my bone marrow was going to give hope to a

young lady, a hope for her second chance at life. While I respectful to the decision of her not

responding, I pray things went well for her.

If I was given the chance to donate once again, I would absolutely, no hesitation! The odds

of being a match are so rare that you should see this as a blessing from God and that the sacrifice of

the donation processes, overnight stay in the hospital, and short period of inconvenient pain is miniscule,

it is NOTHING compared to the potentially lifesaving results. I believe we all have a purpose in life, a

responsibility to our own racewe might be the only close match for a child, mother, father, brother,..

there really is NO risk.

Only when we give joyfully, without hesitation or thought of gain, we can truly know what love

means.- Leo Buscaglia

Belle Santos is a 42 year-old Filipino American residing the Bay Area. She is no stranger to donation, she has donated

blood several times. Passionate about making a difference in the communities, Belle is the advisor for the Pilipino

Youth Coalition Vallejo, Filipino American National Historical Society (FANHS) Vallejo Chapter Secretary, fund-

raising committee member of Vallejo Benicia Humane Society, and that was just to name a few.

Belle Santos donated her

bone marrow in 1994.

Life saving stories from donors...What it means to give hope



Vincent is a 24 year old senior atthe University of California SantaCruz. Vincent was diagnosed with

Acute lymphoblastic leukemia onJuly of 2009. He is currently work-

ing towards his degree in astro-physics! Vincent hopes to receive a

Masters degree and someday workfor NASA.

Vincent Rodriguez

Chenin is a labor and delivery

nurse in Ft. Lewis, WA, shebrings new life into the world

almost everyday. She was diag-

nosed with diffuse large B-CellLymphoma on Thanksgiving

Day 2008 and is preparing for

an autologous transplant, but is

searching for an allogenicmatching donor for long term

survival. Her Chinese Americangenetic make-up makes her

search for a marrow/stem celldonor a little more difficult.

Chenin Iglowitz

Leo was diagnosed with Leukemia latelast year and up until recently, hismedications have worked well to con-

trol the disease. His doctors have now

determined that he needs a bone mar-row transplant in order to get better

and we are trying to find his match.Most likely, his match will be Filipino.

Leo Rivera

David was diagnosed with

Lymphoma in July 2009. Davidis seeking cancer treatment at

Stanford University MedicalCenter. His type of leukemia

will require a matching stemcell/marrow donor for a chance

of survival.

David Chen

Gregory may never forget the day thehe was diagnosed with leukemia. Hewas told by doctors he had CLL the

morning of the World Trade Centerbombing. Gregory has undergone, up

to this very day, intensive chemother-

apy treatment and several extensivesurgeries. As his leukemia progresses

his chances for survival depends onlocating a suitable stem cell donor and

undergoing a stem cell transplant assoon as possible.

Gregory Clay

Barry Pham

At just 5 months Barry wasdiagnosed with acute

biphenotyic leukemia. This lit-

tle guy is toughing out theodds with his leukemia andgetting his chemotherapy

treatments at Lucille Packard's

Children's Hospital in Palo Alto.Barry is in need of a life saving

donor.



Pleasant Hill Adventist Academy

Thank You to participating Academic Campuses! AADP Marrow Drives: SeptemberDecember 2009

Kaiser w/ SJSU Lambda Phi Epsilon

SFSU CSUEB

Academy of Arts, San Francisco

CCSF

Touro University, Vallejo

Foothill Community College, Los

Altos Hills

Cal Poly, San Luis Obispo

De Anza, Cupertino

UC San Francisco

UC Davis

UC Berkeley UOP, Stockton

Saint Marys College, Moraga

CSU Stanislaus

Sacramento State

Stanford

Alpha Epsilon Zeta, UC Berkeley

USF

Pleasant Hill Adventist Academy



From top photo: Celebrities present at the tournament included Fred Bennigan, Vida Blue, Kristi Yamaguchi, Erik Johnson, Darren Lewis, BretHedican. More photos from the golf tournament are available on our website, www.aadp.org

Event CoverageEvent Coverage

The 2009 Annual Fundraising Golf Tournament was a major success! Our 3rdAnnual Golf tournament was held at the Blackhawk Country Club in Danville, CA, with a full

house of 112 golfers, along with 31 staff members and volunteers.

In addition, AADP was fortunate to have celebrity golfers attend our tournament, includ-ingKristi Yamaguchi, Vida Blue, Brett Hedican, and local celebrity journalist Diane Dwyer.

Throughout the day there was a positive ambiance in the air, and golfers had a

great time in the beautiful weather. There was a putting contest, as well as a

competition to win a BMW on a hole-in-one.

The evening provided our guests with an atmosphere of giving. Golfers,

guests and celebrities alike all participated in our live auction hosted by Diane

Dwyer. Our guests generously bid on our gift packages, and monies collected

will support AADPs life saving mission.A big thank you to all the AADP sponsors and supporters, we could not

have done it without you! We look forward to seeing everyone again next year.

Thank you to the following corporate sponsors for making our golf tournament possible!

By James de Lara



Note to self: these are my initial thoughts on winning Mr. Hyphen 2009 and can change like the sometimes unreliable weather of

San Francisco.

The reality sets in after everything has settled down. Winning Mr. Hyphen 2009

was almost like a scripted nineties movie based comparatively to the high school outcast blos-

soming into a flower after promthat was totally a bad example, sorry. Putting that aside, it has been

surreal in all honesty. I want to thank everyone from Hyphen Magazine, Lanlian, Ianna, David, and all

the amazing and wonderful guys I ran up against with to allow such great organizations to be acknowl-

edged, which celebrates the strengths of what it truly means to be Asian in America. I especially want to

recognize the nonprofit charities and organizations I represented: the Thai/American Scholarship Fund

as well as Helping Janet Liang in conjunction with the Asian American Donor Program (AADP).

Winning the pageant for these two worthwhile charitable trusts is important to me on so many levels.

The money that I will be able to give both the Scholarship Fund as well as AADP will be able to facilitate

possibilities which can only make their institutions stronger and much more vibrant. I think especially

for Janet Liang, who suffers from acute lymphoblastic leukemia, the money will be able to partially

cover the tissue-typing costs for potential donors while promoting Janets story to the public. In both

cases, there is an underlining narrative that needs to be said: that the social weather and faces of our

community are changing as are the issues and experiences which affect them.

There is a pop culture saying by blogger Angry Asian Man who says he wants to keep it real like the rice

fields. I want to fully promote Thai and Southeast Asian American identity in the US and the Asian

America. I further want people to listen and hear Janets story as well as our other Asian/American

brothers and sisters who are diagnosed or affected by blood cancers. I want this to be a love letter to my

parents and a love song to Michelle Maykin of Project Michelle, telling them that we dont always have to

lose. I want a lot of things out of winning the title of Mr. Hyphen, but what I really want is for us to fight

for one another and to be brilliant in doing so.

Bless,

Pahole Sookkasikon

MR.

Featured Article

AADP has proudly participated with DineForChange; DineForChange'smission is to help compensate the shortage of funding for non profitorganizations that service our community such as schools, churches, andother charitable agencies that play a vital role in our community orworld. Check out DineForChange website to learn how your next din-ing experience can help benefit AADP!Sign up today and help AADP. Visit, http://dineforchange.com/
http://dineforchange.com/http://dineforchange.com/http://dineforchange.com/



Keep an eye out for a mobile versionof AADPs website! AADP is in the midstof creating a website that is geared to our

mobile crowd. Our mobile site will work thesame way as our current website but it will

be designed specifically for mobile phones.

Mobile phone users will be able to navigate

through the mobile site with ease! Want to

know where AADP will be having their next

marrow/stem cell registration drive? Pull

out your phone and you will be able to view

our calendar of events! Users will also be

able to request home kits from out mobile

site and donate directly to AADP! Stay

tuned for more details.

Follow us:

Check out our re-vamped website:

www.aadp.org

Follow us:

www.twitter.com/aadp

Add us as a friend:

www.facebook.com/

asianamericandonorprogram

View our videos:

http://www.youtube.com/

user/aadpasia

AADP in the Loop

AADP has been fortunate to work with a very talented and hard-

working promoter, Jay Chen. Jay has been working with AADP for over a

year and has been responsible for assisting in setting up various registration

drives at party events such as Top of the World Cityscape and Could 9 .

Each event took place in San Francisco and both events experienced an

unexpected low attendance for each night.

VisionShockSF Cityscape was a Janet Liang-focused drive and the

majority of individuals who registered knew Janet and

were there to help her. A couple of our volunteers at-

tended the same high school as Janet. They ex-pressed to us how compelled they felt in assisting

Janet in finding her marrow/stem cell match. Our vol-unteers felt rewarded to be able to educate individuals about Janetsmission.

Club Mist had a leukemia/lymphoma fundraising effort, Party for

a Cause. AADP was invited to attend the fundraising event to host a mar-

row/stem cell registration drive. We would like to thank Jay for all his hard

work in assisting AADP in our mission.We hope to see you at our next club

event!

Event coverage cont.

By James de Lara

Need ink? Need Toner?

Here is another way to give back and save money!

Purchase your next ink and toner cartilages from

click2ink and they will donate up 20% of the

purchases made to AADP.

Be sure to use AADPs promo code: 1013-1AADP

Giving back was never easier!Visit: www.click2ink.com
http://www.facebook.com/asianamericandonorprogramhttp://www.facebook.com/asianamericandonorprogramhttp://www.youtube.com/user/aadpasiahttp://www.youtube.com/user/aadpasiahttp://www.youtube.com/user/aadpasiahttp://www.youtube.com/user/aadpasiahttp://www.youtube.com/user/aadpasiahttp://www.facebook.com/asianamericandonorprogramhttp://www.facebook.com/asianamericandonorprogram


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Fund a MatchYour Monetary Donations will help us with:Outreach/Recruitment Pay it ForwardAs with any cause, AADP is faced with the challenge of finding and enrolling individuals into theBe the Match Registry, who are committed to making a difference. It is our goal to give the chanceto register as potential marrow/stem cell donor to everybody who is able and willing to do so

especially in the minority community. It is also our goal to eliminate any obstacles for these indi-viduals to join. In past years, the cost to tissue type a donor has prohibited and discouraged some from joining the registry.

It costs $100 in administrative and lab fees to enter one donor into the Be the Match Registry. This cost is now paid for by a combina-tion of donations from the community and a grant from the HRSA. However, these funds are not inexhaustible. We need more helpfrom the community and individuals like you to continue to make donor registration accessible to everyone. For the next Fiscal Year2010, AADP needs to raise at least $62,500 to help fund the registration cost of donors wishing to join the registry. Your donation canhelp us make sure that the cost to register to be a donor is never an obstacle for anyone.

Education Materials & Retention ProjectsAADP prints and publishes brochures, videos and flyers that help us demonstrate both the importance and the ease of participation inthe registry. Retention projects are ongoing throughout the year as a reminder that you are a registered potential donor and as a wayto keep donors committed should they be called upon as possible matches. ($1,840/year)

Web-Site DevelopmentAADP refreshes, changes and updates our website to keep you interested, keep more people informed and to keep our services easilyaccessible and efficient. ($2,800/2 years)

Processing and Maintenance FeesWe are currently under funded and turning away potentially life-saving umbilical cord blood donors. However, we still need to coverthe cost of already stored Cord Blood Units ($2,400/year)

2169HarborBayParkwayAlameda,California94502Www.aadp.orgAddressServiceRequested

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