Northwest Tribal Comprehensive Cancer Program and Resource

Development

September 7, 2007

Beadwork is courtesy Greg Vann, Cherokee

NPAIHB Organizational Chart

Northwest Diabetes Project NTCCP& W H PP

National Diabetes Project

N T C C P & W T D PK e rr i L o p e z,

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N o r th w e st T rib a l E p id e m o lo g y C e n terV ic to r ia W arre n -M e a rs,

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E x e cu tiv e D ire c tor

N o r th w e st P or tla n d A r e a In d ia n H e a lth B o a rdE x e c utiv e C o m m itte e M em b e rs

Northwest Tribal Comprehensive Cancer Program Goals

1. Facilitate a process for Northwest tribes to promote cancer risk reduction strategies.

2. Provide information on the most current early detection, screening and treatment practices through education and resource materials.

3. Provide education regarding quality of life for cancer patients, their families and caretakers.

4. Coordinate and collaborate with local and national cancer organizations and individuals.

5. Improve Indian-specific cancer control data.

NTCCP Mission

To envision and work toward cancer-free tribal communities by taking an

integrated and coordinated approach to cancer control

2007

•20 Year Tribal Cancer Control Plan Revised

•Competitive Reapplication and Funding

•Application for Supplemental Funding to Develop Tribal Community Colorectal Cancer Education and Outreach curriculum

Approved but not funded

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Resource GuideDesign Considerations•Area specific art (Nez Perce Baskets and Bags)•Common footer, except introduction and section header pages

•Feather•Page numbers•Publication name and year

•Organization logos on outside corner when available•Doublesided •Sections begin on odd numbered pages (face forward when printed)•Evaluation form•Order form•Information update form•Funding Recognition•Reduce loss of knowledge during staff turnover

Table of Contents (page 5)•Section 1: Northwest Portland Area Indian Health Board

•Section 2: Northwest Tribal Cancer Contacts

•Section 3: Resources for Cancer Patients and Caregivers

•Section 4: Breast and Cervical Cancer Early Detection Programs

•Section 5: Tribal Cancer Control Planning Forms and Examples

•Section 6: Cancer Control Partnership Programs

•Section 7: Cancer Treatment Centers

•Section 8: Appendices

Section 1 (page 7) Northwest Portland Area Indian Health Board

Intended Purposes:•Describe NPAIHB - serves all 43 Federally Recognized Tribes in

Idaho, Oregon, and Washington

•Lists all NPAIHB Member Tribes

•Illustrates geographic diversity with map of states and Tribes

Section 2 (page 11) Northwest Tribal Cancer Contacts

Intended Purposes:•List Tribal Cancer Contacts at all NPAIHB Member Tribes

Contacts are:Community Health RepresentativesWomen’s Health ProvidersMedical DirectorsTribal Health DirectorsAll are vitally involved in addressing Cancer in their community

•Multiple listings when requested•Full Contact information including Tribe, Name, Position, Email, Phone, Fax, Address, and Last Update•Organizations interested in outreach have valid contact info•Tribes have contacts to organize intertribal events

Section 3 (page 21) Resources for Cancer Patients and Caregivers

Intended Purposes:•List Resources related to Cancer available to individuals

Pages include:General InformationResources AvailableHow to Obtain ResourcesContact Information

•Information requested from official representative

•Sent for their review before publication

•Includes table of listed organizations

•Empowers individuals to access resources

•Improves access to organizations for events (ex. Health Fair)

Table of Section 3 Cancer Resources:•Indicates which types of individual resources are available

oIncludes:FinancialHousingTransportationFlightPrescriptionHomecareInsurance Co-pay AssistanceDurable Medical Equipment Prosthetics & WigsSupport Group / CounselingEducation / InformationPage Number for ListingIcons

Section 4 (page 41) Breast and Cervical Cancer Early Detection Programs

Intended Purposes:•List Centers for Disease Control and Prevention Funded Programs

Pages include:General InformationResources Available (Eligibility Guidelines)How to Obtain ResourcesContact Information (Program Manager)

•Information requested from official representative

•Sent for their review before publication

•Includes table and contacts of prime contractors

•Indicates contractor responsible for serving tribes

•Contractor is necessary to access state funding for clinic services

Section 5 (page 53) Tribal Cancer Control Planning Forms and Examples

Intended Purposes:•Provide information about Planning

StrategicActivity

•Sample plans included•Blank Forms for use in developing plans

Section 6 (page 61) Cancer Control Partnership Programs for

conducting Activities with Northwest TribesIntended Purposes:•List Resources related to Cancer available to programs

Pages include:General InformationResources AvailableHow to Obtain ResourcesContact Information

•Information requested from official representative

•Sent for their review before publication

•Includes table of listed organizations

•Empowers program development to address burden of cancer

•Improves access to organizations for technical assistance

Table of Section 6 Cancer Resources:•Indicates which types of technical assistance are available

Includes:GrantPresentationsTrainingsSpeakers BureauCancer ResearchConference/Workshop OrganizerAvailable Meeting SpaceData Provider Program EvaluationMaterials DevelopmentGrant Writing AssistancePage Number for ListingIcons

Section 6 (page 85) Table of American College of Surgeons Certified Cancer Centers:•Organized by state, city•Information accessed from website•Contact includes:

•Name•Address•Phone Fax•Website

•List options of treatment locations

Section 7 (page 93) Appendices

Appendix A: Directory of Regional Branches of National Organizations•Table of American Cancer Society Branches•Addresses of American Cancer Society Branches

•Table of Susan G. Komen for the Cure Affiliates•Addresses of Susan G. Komen Breast Cancer Foundation Affiliates

•Table of American Lung Association Regional Offices•Addresses of American Lung Association Regional Offices

•Addresses for Sites of Northwest Tribal Cancer Navigator Program

•Table of Hospice Organizations Serving Washington Tribes•Addresses of Hospice Organizations Serving Washington Tribes

Appendix B: ACS Article: Making Resources Available in Indian CommunitiesAppendix C: Screening GuidelinesAppendix D: Evaluation FormAppendix E: Order FormAppendix F: Update Form

Intended Purposes:•Where to go for local assistance – know the resources in your community•Retain contact information during changes in staff•Lists tribes in affiliate/branch/office service area

•All tribes, even those without affiliate coverage•Where to access Hospice services – potential partner in Palliative Care•Clarify ACS model of community operation and Resources

•Included article from Deb Schiro, Vice-President, Survivorship and Quality of Life Great West Division, American Cancer Society

•Quick easy to access location for forms (evaluation, order, and update)

Project Director: Kerri Lopez

Project Staff: Eric Vinson

Northwest Tribal Data Registry: Doug White

Epidemiologist: Thomas Becker, MD, PhD

Tel: 503-228-4185

Fax: 503-228-8182

Email: klopez@npaihb.org

Webpage: http://www.npaihb.org/

Funded by CDC Grant Number 1 U58 DP000786-1