North Thames TYA Cancer Staff Survey
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Transcript of North Thames TYA Cancer Staff Survey
North Thames TYA Cancer Staff Survey
Open: 25 Feb – 1 April 2013
Responses received: 60
Wendy King Macmillan Paediatric Oncology Nurse Consultant
July 2013
0
2
4
6
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12
14
16
Where do you currently work?
In which capacity do you work with TYA patients?
Majority of responders were nurses
Activity coordinator
Administrative ward staff
Consultant
Dietician
Nurse
Physiotherapist
Psychologist
Social worker
Occupational Therapist
Nursing Assistant
Senior Manager
less than 10between 10-25more than 25
On average, how many TYA patients with cancer do you manage per year?
Only ULCH and RFH indicated that they see more than 25 patients per year. 60% see less than 10 patients per year
Where do you currently work?
Answer Options
Basildon and
Thurrock
Barking, Havering, Redbridge
Barts Health
Chelsea & Westminster
Colchester Hospital
E&N Herts +MVCC
Imperial College
Healthcare
Mid Essex Hospitals
Royal Free NHS Trust
Southend
University College Hospital
Whittington
Health
less than 10
3 2 4 1 4 5 0 3 0 2 1 10
between 10-25
0 1 5 0 0 2 1 0 0 0 1 1
more than 25
0 0 0 0 0 0 0 0 1 0 14 0
12
33
Yes No
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5
10
15
20
25
30
35
Have you previously attended any study
days focusing on TYA cancer topics?
Yes
No
74
76
78
80
82
84
86
88
Clinical information on TYAspecific cancers
Communicating with TYApatients
Psychological issuesaffecting TYA patients
If yes, please indicate what topics were discussed on these study days (tick all that
apply).
72% have not attended a study day with TYA topics
All responders felt that further TYA-specific education was necessary, Strong preference for both, TYA study day and e-learning modules
0 10 20 30 40 50 60
Conference/study day
Online modules (e-learning)
Both, conference and e-learning
How would you like further training courses to be conducted?
Yes
No
0 10 20 30 40 50 60 70
Would you find a workbook useful?
Format of a study day - Full day - Central London location - Paid for by Trusts
0 5 10 15 20 25 30
Yes
No
I do not know
Do you or your Trust have financial resources for staff training?
0 5 10 15 20 25 30
Whole day course
Half-day course
Would you like for this to be a whole day or a half day course?
0 20 40 60
Yes, if necessary Iwould fund the costs…
Only if my Trust fundsthe costs
Would you be prepared to pay to attend a study day/complete an
online module?
0 5 10 15 20 25 30
central London
Essex
Mount Vernon
anywhere in England
How far would you be prepared to travel to attend a study day? (Please
tick all that apply)
What are the main challenges you find when supporting a young person with cancer?
Theme Specifics Clinical practice central lines, protocols, information on TYA specific cancers
Working with TYA patients psychological, behaviour
Communication with TYA patients, parents, their families and between the
services
End of live palliative care services
Service Provision inappropriate environment, lack of resources in facilities,
signposting, transition, what TYA services available
Can you identify any current barriers within your TYA service?
Theme Specifics
Staff education staff are unfamiliar with requirements of TYA care, guidelines and referral procedures, and extended TYA service
Trust management/ education
lack of understanding/appreciation of what a good TYA service should look like and lack of financial investment. Inappropriate environment
Staffing constraints job planning (short-staffed, time constraints); lack of social worker
Please share with us any ideas/suggestions you may have for improving patient information and the care experience for TYA patients and their families
Support for patients
Support for patients, partners and families
TYA-specific patient information
Support groups
Financial/social/education assistance
Age appropriate environment
Please share with us any ideas/suggestions you may have for improving patient information and the care experience for TYA patients and their families
Support for staff
Education, research, managerial education
TYA services available
contact details of TYA staff
age-specific training for staff
boosting TYA profile
support from PTC to help developing TYA DH units
better communication between professionals (handover, protocols, MDT handover form)
Action Plan
• Develop a foundation level education programme
• Resourced
• Defined person to lead
• Overwhelming response from nurses but need to consider other staff groups
• Produce resources and information
• Support for Trusts to develop very small services
• Education at Trust Board Level and engagement
• Advertise, Advertise, Advertise!
TYA Age specific education
• Foundation Study Day 29th October 2013
• Online Post Graduate Certificate in Cancer Care for Teenagers and Young Adults starts 30th September 2013
• Teenage & Young Adult Cancer Blended Learning Modules – 4 days (+ some hours online)