New England

What are the opportunities to improve genetics education and training in LEND and NEGC?

What are the opportunities to improve genetics education and training in LEND and NEGC?

Why collaborate?

• We share interests in the “MCH population” and our missions are related.

• LEND—“preservice” interdisciplinary leadership training; “workforce development”.

• NEGC—“inservice” supports (education, QI, policy development, needs assessment, EP, etc) and model program development for addressing access and quality.

Methods

• Survey of current practices and needs.

• Meet, talk, propose, revise, talk, decide, act.

• Short time horizon.

Survey takeaways

• Varied amounts and types of integration

• Varied supports for genetic integration

• All asked NEGC for resources/content expert aid

Results

Activities: LEND1 LEND2 LEND3 LEND4

Seminar 1.c., 5. 1.d, 5.a. 1.0. 5.a.,

Leadership activities

Interdisc/clinic.

5

Policy 1.c.,

Research

CE/TA 4

Discipline specific

6 3.a.

From meeting and talking

1. Seminar topics: (examples)a. Genetic bases for Neuro-developmental Disabilities (ASDs, ID, VI, HI, movement disorders/”CP”).b. Genetic bases for Child Behavioral Health Disorders.c. Newborn screeningd. Ethics and Genetic Screening/testing: fetal, NBS, childhood, consent, assent, right not to know (twins), others?e. Prenatal diagnosis and alternative reproduction technologies (e.g., Whole genome sequencing of fetal DNA). f. others2. Teaching/Learning Methods (examples):a. Case based by topicb. Recorded for asynchronous viewingc. Webex live by expertsd. Create a web-based resource page. 3. Collaboration with GC training programs:a. Have GCs as trainees.b. Have GC as LEND faculty.c. Other4. GEMMS (TA/CE), http://www.gemssforschools.org, a. Other Genetics TA/CE by LEND trainees/fellows. 5. Collaboration with Geneticists/Genetic centers.a. Lectures in seminarb. Ethic/Genetics session6. Trainees/fellows attend genetics clinic.

Decision

• Create a shared learning objective, “to impart an understanding of how genetics influences health, development and behavior, and to raise an awareness of the ethical issues that have arisen with the acquisition of new genetics knowledge on individuals and on systems”.

Next

• Refine the LEND objective further

• Develop a set of activities on paper

• Target implementation of any LEND program changes for AY 2015

• NEGC continue to support as desired

• Look to work with AUCD Genetics group for support