NCI Survey Respondents Who Are Verbal and Non-Verbal: A Profile.
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Transcript of NCI Survey Respondents Who Are Verbal and Non-Verbal: A Profile.
National Core Indicators (NCI)
WHAT IS NATIONAL CORE INDICATORS (NCI)?
• Multi-state collaboration of state DD agencies• Measures performance of public systems for
people with intellectual and developmental disabilities
• Assesses performance in several areas, including: employment, community inclusion, choice, rights, and health and safety
• Launched in 1997 in 13 participating states• NASDDDS – HSRI Collaboration
NCI State Participation 2013-14
HI
WA
AZOK
KY
AL
NC
PA
MA
TX
AR
GANM
NJ
MO
NH
OH*IL
LA
NY
Wash DC
FL
CA*
SDOR
MN
UTCO KS
MS
TNSC
WIMI
INVA
DEMD
State contract awarded in 2013-14 through AIDD fundingCA*- Includes 21 Regional CentersOH*- Also includes the Mid-East Ohio Regional Council
39 states, the District of Columbia and 22 sub-state regions
ME
National Core Indicators (NCI)
Data Source:Adult Consumer Survey
• Standardized, face-to-face interview with a sample of individuals receiving services Background Information Section I (no proxies allowed) Section II (proxies allowed)
• No pre-screening procedures• Conducted with adults only (18 and over) receiving
at least one service in addition to case management• Section I and Section II together take 50 minutes (on
average)
National Core Indicators (NCI)
Methods, Measures and Sample:
• 2011-2012 data collection cycle
• 19 states, one regional council (AL, AR, AZ, CT, GA, HI, IL, KY, LA, MA, ME, MI, MO, NC, NJ, NY, OH, PA, SC and the Mid-East Ohio Regional Council)
• Total N: 12,236 individuals
National Core Indicators (NCI)
Methods, Measures and Sample:Verbal vs. Non-Verbal
• Source: Item from Background Section What is this person’s primary means of expression?
• Spoken• Gestures/body language• Sign language or finger spelling• Communication aid/device• Other• Don’t know
• Recoded to create Verbal/Non-Verbal variable
National Core Indicators (NCI)
DemographicsAverage Age: Years Gender: Male
Non-Verbal Verbal0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
58.0% 55.6%
Non-Verbal Verbal0
10
20
30
40
50
60
70
80
90
100
43.4 43.6
National Core Indicators (NCI)
Demographics: Race and Ethnicity(p<.001)
72.4%
22.0%
5.6%
Non-Verbal
White, Non-HispanicBlack, Non-HispanicHispanic
76.4%
19.2%
4.3%
Verbal
White, Non-HispanicBlack, Non-HispanicHispanic
75.5%
19.9%
4.7%
White, Non-HispanicBlack, Non-HispanicHispanic
Entire NCI Sample
National Core Indicators (NCI)
Demographics: Other Diagnoses
*** (p<.001) ** (p<.01)
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
20.5%17.7%
25.4%
40.3%
13.0% 10.1% 8.3%
37.7%
9.5% 11.0%
20.1%
5.1% 3.8%
10.6%
Non-Verbal
Verbal
National Core Indicators (NCI)
DemographicsGuardianship Status (p<.001) Mobility (p<.001)
0%
20%
40%
60%
80%
100%
54.7%
17.4% 28.0%
83.3%
13.2%3.5%
Non-VerbalVerbal
Person is in-dependent of guardianship
Limited guardianship
Full guardianship
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
33.9%
7.6%
58.5%56.8%
5.9%
37.3%
Non-VerbalVerbal
National Core Indicators (NCI)
DemographicsHealth (p<.001)
Excellent or very good Fairly good Poor0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
31.3%
61.8%
6.8%
42.3%
53.6%
4.1%
Non-Verbal
Verbal
National Core Indicators (NCI)
Preventive Care
At least one kind of medication for mood disorders, anxiety, behavior problems or psychotic disorders
(p<.001)
*** p<.001 ** p<.01
Phys. Exam in Past Year***
Vision Exam in Past Year**
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%93.3%
58.9%
90.2%
61.8%
Non-Verbal
Verbal
Non-Verbal Verbal0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
47.8%
55.4%
National Core Indicators (NCI)
Residence Type (p<.001)
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
12.2%
41.9%
4.1%
30.8%
6.3% 4.8%2.2%
37.2%
15.2%
34.6%
6.0% 4.9%
Non-Verbal Verbal
National Core Indicators (NCI)
EmploymentIn the past 2 weeks, was person engaged in….
0%
10%
20%
30%
40%
50%
60%
70%
1.9%
17.9%
10.5%
59.3%
16.7%
22.2%
32.0%
45.7%
Non-Verbal Verbal
***p<.001
National Core Indicators (NCI)
EmploymentOf the individuals who do not have a job, the following would like a job (p<.001)
Do you go to a day program or other activity during the day? (p<.001)
Non-Verbal Verbal0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
28.4%
47.2%
Non-Verbal Verbal0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
84.3%
72.8%
National Core Indicators (NCI)
Services Received
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%91.7%
28.2%
50.6%
64.9%
24.2%
94.1%
9.2%
38.8%
61.3%
19.9%
Non-VerbalVerbal
*** p<.001 ** p<.01
National Core Indicators (NCI)
Home
Do you like where you live?***
Would you like to live somewhere
else?***
Do you like your neighborhood?**
Do you ever talk to your neighbors?***
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100% 95.0%
19.8%
92.9%
27.5%
89.7%
26.7%
87.8%
36.9%
Non-VerbalVerbal
*** p<.001 ** p<.01
National Core Indicators (NCI)
Safety
0%
5%
10%
15%
20%
25%
30%
35%
40%
45%
50%
10.3%7.5% 8.3%
13.8%
4.4% 4.5% 3.7%5.3%
Non-Verbal Verbal
*** p<.001 ** p<.01
National Core Indicators (NCI)
Relationships
Has friends who are not staff or family***
Has a best friend*** Can go on a date without restrictions***
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
54.7%
64.6%
49.7%
71.7%76.3%
65.5%
Non-VerbalVerbal
*** p<.001 ** p<.01
National Core Indicators (NCI)
Community Participation I
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
80.6%76.6%
67.7%73.4%
90.9%85.9%
73.2%
87.0%
Non-Verbal Verbal
*** p<.001 ** p<.01
National Core Indicators (NCI)
Community Participation II
Went to religious services in the past month***
Participated in sports in the past month***
Went on vacation in the past year***
0%
10%
20%
30%
40%
50%
60%
70%
39.6%
51.2%
34.8%
50.5%
58.6%
48.0%
Non-Verbal Verbal
*** p<.001 ** p<.01
National Core Indicators (NCI)
Choice IPerson had at least some input in…..
***p<.001
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
21.3%17.2%
44.3%
59.7%
76.1%
56.7%
43.3%
63.4%
87.0%
94.5%
Non-Verbal Verbal
National Core Indicators (NCI)
Choice IIPerson had at least some input in…..
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
33.9%
46.5%
66.9%
46.9%
64.9%60.9%
94.1%
58.0%
Non-VerbalVerbal
***p<.001
National Core Indicators (NCI)
Rights and Respect
***p<.001
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
19.4%
74.4%
86.8%
16.6%11.8%
81.4%
91.5%
27.9%
Non-Verbal
Verbal
National Core Indicators (NCI)
Additional Services Needed I
***p<.001
Finding or changing jobs***
Education or training***
Finding or changing housing***
Social/relationship***0%
5%
10%
15%
20%
25%
30%
35%
40%
7.3%
14.6%
9.0%
21.2%
34.5%
22.9%20.7%
31.7%
Non-Verbal Verbal
National Core Indicators (NCI)
Additional Services Needed II
0%
5%
10%
15%
20%
25%
30%
35%
40%
27.1%
21.9%
37.3%
9.7%8.2%
27.2%
Non-Verbal
Verbal
***p<.001
National Core Indicators (NCI)
Conclusions- Individuals who are non-verbal are:
• Less likely to have a paid job in the community, and less likely to be doing any activities during the day
• More likely to be scared in several environments (home, neighborhood and day activity) and less likely to have someone to talk to about being scared
• Less likely to have relationships and be involved in the community
• Less likely to make choices and decisions
• More likely to not have their rights respected
National Core Indicators (NCI)
Future Research…..
• It is important to continue this research and control analyses for demographic and personal characteristics that may influence outcomes.
• More detailed knowledge about the non-verbal population can lead to more targeted policies
National Core Indicators (NCI)
Contacts
• HSRI Josh Engler: [email protected]
• NASDDDS Mary Lee Fay: [email protected]
• NCI website: www.nationalcoreindicators.org