My Life with Gastroparesis

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stop eating lack nutrition feel pain eat food gastroparesis daily consumption with

description

This is a zine for my digital imaging class talking about the cycles found in aspects of my digestive disease (gastroparesis) and how they relate to consumption.

Transcript of My Life with Gastroparesis

Page 1: My Life with Gastroparesis

stop eating

lack nutrition

feel pain

eat food

gastroparesisdaily consumption with

Page 2: My Life with Gastroparesis

Gastroparesis is a disorder in which the stomach takes too long to empty its contents. Normally, the stomach contracts to

move food down into the small intestine for digestion. The vagus nerve controls the movement of food from the stomach through the digestive tract. Gastroparesis

occurs when the vagus nerve is damaged and the muscles of the stomach and intestines do not work normally. Food then moves slowly or stops moving through the digestive tract.

Signs and symptoms of gastroparesis include: • heartburn • pain in the upper abdomen • nausea • vomiting of undigested food—sometimes several hours after a meal • early feeling of fullness after only a few bites of food • weight loss due to poor absorption of nutrients or low calorie intake • abdominal bloating • high and low blood glucose levels • lack of appetite • gastroesophageal reflux • spasms in the stomach area

Tests for diagnosis:Gastric emptying scintigraphy. This test involves eating a bland meal, such as

eggs, that contains a small amount of a radioactive substance that shows up on scans. The dose of radiation from the radioisotope is not dangerous. The

scan measures the rate of gastric emptying at 1, 2, 3, and 4 hours. When more than 10 percent of the meal is still in the

stomach at 4 hours, the diagnosis of gastroparesis is confirmed.

GastroparesisTreatment of gastroparesis

depends on the severity of the symptoms. In most cases, treatment does not cure gastroparesis—it is

usually a chronic condition. Treatment helps you manage the condition so you can be as healthy and comfortable as possible.

MedicationSeveral medications are used to treat gastroparesis. Your doctor may try different

medications or combinations to find the most effective treatment. Discussing the risk of side effects of any medication with your doctor is important.

• Metoclopramide (Reglan) • Erythromycin.

• Domperidone. • Other medications. Dietary ChangesChanging your eating habits can help control gastroparesis. Your doctor or dietitian may prescribe six small meals a day instead of three large ones. If less food enters the stomach each time you eat, it may not become overly full. In more severe cases, a liquid or pureed diet may be prescribed.

Feeding TubeIf a liquid or pureed diet does not work, you may need surgery to insert a feeding tube. The tube, called a jejunostomy, is inserted through the skin on your abdomen into the small intestine. The feeding tube bypasses the stomach and places nutrients and medication directly into the small intestine. The jejunostomy is used only when gastroparesis is severe.

Gastric Electrical StimulationA gastric neurostimulator is a surgically implanted battery-operated device that

releases mild electrical pulses to help control nausea and vomiting associated with gastroparesis. This option is available to people whose nausea and vomiting

do not improve with medications. Further studies will help determine who will benefit most from this procedure, which is available in

a few centers across the United States.

National Digestive Diseases Information Clearinghouse

Page 3: My Life with Gastroparesis

Gastroparesis is a disorder in which the stomach takes too long to empty its contents. Normally, the stomach contracts to

move food down into the small intestine for digestion. The vagus nerve controls the movement of food from the stomach through the digestive tract. Gastroparesis

occurs when the vagus nerve is damaged and the muscles of the stomach and intestines do not work normally. Food then moves slowly or stops moving through the digestive tract.

Signs and symptoms of gastroparesis include: • heartburn • pain in the upper abdomen • nausea • vomiting of undigested food—sometimes several hours after a meal • early feeling of fullness after only a few bites of food • weight loss due to poor absorption of nutrients or low calorie intake • abdominal bloating • high and low blood glucose levels • lack of appetite • gastroesophageal reflux • spasms in the stomach area

Tests for diagnosis:Gastric emptying scintigraphy. This test involves eating a bland meal, such as

eggs, that contains a small amount of a radioactive substance that shows up on scans. The dose of radiation from the radioisotope is not dangerous. The

scan measures the rate of gastric emptying at 1, 2, 3, and 4 hours. When more than 10 percent of the meal is still in the

stomach at 4 hours, the diagnosis of gastroparesis is confirmed.

GastroparesisTreatment of gastroparesis

depends on the severity of the symptoms. In most cases, treatment does not cure gastroparesis—it is

usually a chronic condition. Treatment helps you manage the condition so you can be as healthy and comfortable as possible.

MedicationSeveral medications are used to treat gastroparesis. Your doctor may try different

medications or combinations to find the most effective treatment. Discussing the risk of side effects of any medication with your doctor is important.

• Metoclopramide (Reglan) • Erythromycin.

• Domperidone. • Other medications. Dietary ChangesChanging your eating habits can help control gastroparesis. Your doctor or dietitian may prescribe six small meals a day instead of three large ones. If less food enters the stomach each time you eat, it may not become overly full. In more severe cases, a liquid or pureed diet may be prescribed.

Feeding TubeIf a liquid or pureed diet does not work, you may need surgery to insert a feeding tube. The tube, called a jejunostomy, is inserted through the skin on your abdomen into the small intestine. The feeding tube bypasses the stomach and places nutrients and medication directly into the small intestine. The jejunostomy is used only when gastroparesis is severe.

Gastric Electrical StimulationA gastric neurostimulator is a surgically implanted battery-operated device that

releases mild electrical pulses to help control nausea and vomiting associated with gastroparesis. This option is available to people whose nausea and vomiting

do not improve with medications. Further studies will help determine who will benefit most from this procedure, which is available in

a few centers across the United States.

National Digestive Diseases Information Clearinghouse

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foods I consume

beef & broccoli rice bowl

Bento’s Aisan Cuisine

chicken & white ricetropichop (no beans)

Pollo Tropical

peanutbutter & marshmallow fluff sandwhichFluffernuter

peanutbutter crunch cerealwith almond milk

mixed-berry smoothie

With a limited diet and the feeling of pain whenever I eat, I only eat very few foods. This can get quite old very quickly, so these are the foods I cycle through.

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medications I’ve consumed

Dexlansoprazole

Simethicone

Anticholinergics

Bentyl

Diazepam

dextroamphetamine

Sertraline

Ondansetron

Metoclopramide

Erythromycin

Motillium

I have taken many different types of medications to try

and treat whatever diagnosis I had at the time.

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emotions that haveconsumed me

fear

anxietysadness

anger

frustration

indifference

distressed

tormentedreflective

envyI have expierenced a wide range of emotions as a direct result of gastroparisis that have consumed my life.

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my appetite forconsuming food

always hungrylove food

unlimited diet

6/11/1991-12/17/2009

always hungryfood hurts

extremely limited diet

12/18/2009-3/08/2010

hungry around meal timefood is necessary

dairy free/semi-limited diet

3/09/2010-09/13/2010

never hungryhate food

limited diet

9/14/2010-12/07/2010

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the process of diagnosis

healthy

stomachulcer

lactoseintolerance

IBS

gastritis

gastroparisis