Monthly UpdateOctober 2014The ALS Association Greater New York Chapter

Serving New York City, Long Island, Westchester County, Hudson Valley, and Northern & Central New Jersey42 Broadway, Suite 1724, New York, NY 10004 • (212) 619-1400

www.ALS-NY.org • Facebook.com/ALSofGNY • Twitter - @ALSofGNY

NORTHERN NJ/SADDLE BROOKThursday, October 2nd - 7 to 8:30 pmKessler Institute for Rehabilitation300 Market Street, Saddle Brook, NJContact: Debbie Schlossberg, LMSWand Mary Ann Mertz, RN, (732) 710-8832Topic: Open DiscussionNo support group meeting in November.

NASSAU COUNTY, NYSunday, October 5th - 2 to 4 pmNorth Shore LIJ - Plainview Hospital888 Old Country Rd., Plainview - DownstairsContact: Theresa Imperato, RN, (516) 946-5467 & Cindy Keyser-Posner, LMSW, (631) 416-2767Topic: Assistive Technology. What’s Available? Q&AGuest Speaker: Ben Lieman, ATP,Greater NY ChapterNext month’s support group meets: November 2nd.

SUFFOLK COUNTY, NYTuesday, October 7th - 6 to 8 pmStony Brook University, Dept. of Neurology179 N. Belle Meade Rd., E. Setauket, NYContact: Theresa Imperato, RN, (516) 946-5467 & Cindy Keyser-Posner, LMSW, (631) 416-2767Topic: Assistive Technology. What’s Available? Q&AGuest Speaker: Ben Lieman, ATP,Greater NY ChapterNext month’s support group meets: November 11th

HUDSON VALLEY/FISHKILL, NYTuesday, October 7th - 6:30 to 8:30 pmAmbulatory Surgery Ctr, Bldg C, 3rd Floor200 Westage Business Center, Fishkill, NYContact: Helen Mayer, RN, (845) 520-0952Guest Speaker: Betsy Thomason, BA, RRT Respiratory Therapist, Mt. Sinai/Beth IsraelNext month’s support group meets: November 4th

WESTCHESTER, NY/WHITE PLAINSTuesday, October 14th - 6 to 8 pmBurke Rehabilitation Center785 Mamaroneck AvenueBuilding 7 (Patient Dining Room)White Plains, NYContact: Helen Mayer, RN(845) 520-0952Guest Facilitator: Tracy Sandi-Ali, Intake & Support Program Manager, GNY ChapterTopic: Open DiscussionNext month’s support group meets: November 11th

CENTRAL NJ/NEW BRUNSWICKPlease note new time and location.Saturday, October 18th - 1:30 to 3:30 pmRobert Wood Johnson Fitness & Wellness Ctr.Level 2, Community Education Room100 Kirkpatrick St., New Brunswick, NJPark in the Fitness & Wellness parking deck.Contact: Debbie Schlossberg, LMSW andMary Ann Mertz, RN (732) 710-8832Topic: Wheelchair Accessible VehiclesGuest Speaker: Brunswick MobilityNext month’s support group: November 15th.

MANHATTAN, NYTuesday, October 21st - 6 to 8 pmPhillips Ambulatory Care Ctr. (Mt. Sinai Beth Israel)10 Union Square East (b/w 14th & 15th Sts.)Neurology Dept., 5th Floor Conf. RoomContact: Jody Wiesel, PhD, (917) 699-9751Topic: Open DiscussionNext month’s support group meets: November 18th

TELEPHONE SUPPORT GROUPSPatient group: Every other Friday from 3 to 4 pm (Weekly groups will resume in the late fall.)Caregiver group: Will resume in fall. If you are interested in joining this group, please contact Sue Zimmerman, LCSW at (212) 720-3050 or Zimmerman@als-ny.org.For general telephone support group information, call Sue as well.

OCTOBER SUPPORT GROUPS

Save the Dates!Hudson Valley, NY: Sunday, October 19 | YPG Fire & Ice Holiday Gala: Friday, December 5

20th Anniversary 1994 2014• •

Sunday, Oct. 5th - Zumbathon for ALS, 3 PM – 4:30 PM, Village of Westbury Phipps Sports Center, 346 Post Ave., Westbury 11590, Tix are $15 at the door. Contact Sarah at spattison@als-ny.org or (212) 720-3042 for info.

Saturday, Oct. 11th - Essential Fitness NYC Ice Bucket Challenge at Richmond County Bank Ballpark, Home of the Staten Island Yankees. Contact Kristen at cocoman@als-ny.org or (212) 720-3048 for more info.

Upcoming EventsThe Federal government has taken a major step in the fight against Lou Gehrig’s Disease as the Agency for Toxic Substances and Disease Registry (ATSDR) announced the full implementation of the National ALS Registry.

People living with Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease) may self enroll in the Registry via a secure online web portal at the Centers for Disease Control and Prevention: www.cdc.gov/als or contact Christine Dunn in the Chapter office at (212) 720-3044 or dunn@als-ny.org. Chris can help you with your enrollment.

The CDC will be publishing the first data set from the National ALS Registry in the agency’s Morbidity and Mortality Weekly Report (MMWR) on July 25th. For more information about the ALS Registry, contact Tracy SandyAli at (212) 720-3060 or tsandyali@als-ny.org.

National ALS Registry

Sunday, Oct. 19Hudson Valley, NY | Walkway over the Hudson

To Register Visit www.ALSWALKS.org

Greater New York Chapter42 Broadway, Suite 1724New York, NY 10004(212) 619-1400Fax: (212) 619-7409www.als-ny.org

The ALS Association announced commitments toward research projects for scientists in laboratories in nine states in the United States as well as in the U.K., France, Canada, Switzerland, Israel and Australia. These awards, which support 21 new projects, are part of its Translational Research Advancing Therapies for ALS (TREAT ALS™) portfolio, a diverse portfolio of amyotrophic lateral sclerosis (ALS) research to find treatments and a cure for Lou Gehrig’s Disease. These new awards include Investigator-Initiated Awards and The Milton Safenowitz Postdoctoral Fellowship for ALS Research Awards.

These awards are made possible through generous donors and from chapters of The ALS Association, which provide ongoing and substantial support to fund ALS research.

Chapters continually work with certified centers and clinics to provide the best care to people living with ALS.

Investigator-Initiated Awards

Investigators submit a proposed line of inquiry covering diverse areas of research, and The ALS Association convenes a scientific review committee to discuss proposals and make selections based on the merits of each. There are two types of Investigator-Initiated Awards: innovative discovery awards and multi-year awards.

Milton Safenowitz Postdoctoral Fellowships

The Association also offers The Milton Safenowitz Postdoctoral Fellowship for ALS Research Award. Founded by the Safenowitz family through the Greater New York Chapter of The ALS Association and in memory of Mr. Safenowitz, who died of ALS in 1998, these awards are to encourage and facilitate promising young scientists to enter the ALS field.

Grants are awarded in each of the major focus areas that form the basis of the TREAT ALS portfolio.

Scientific Areas of Study

Awards cover a range of scientific study including: the discovery of a gene for ALS; models and mechanisms that are critical for understanding how ALS begins and how it progresses; biomarkers that can be used to diagnose the disease; stem cell-related ALS research; and the ultimate goal of all research funded by The ALS Association, which is to develop therapies to halt the disease.

To read the full article please go to als-ny.org where you can also find all the latest research news and information about the chapter.

Non Profit Org.US Postage

PAIDHicksvilleNYPermit 842

The ALS Association Announces Awards For 21 Research Projects In Global Fight Against Lou Gehrig’s Disease

Want to say you helpedto find a cure?

Call (212) 619-1400 or go towww.ALS-NY.org to donate today!