Module 1. Topics Community Community-Engaged Research Community-Based Participatory Research...
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Transcript of Module 1. Topics Community Community-Engaged Research Community-Based Participatory Research...
Understanding Community-Academic Partnerships
Why is this important?
How is it relevant to me and my organization?
CommunityA group of people...
Linked by social ties
Sharing common perspectives or interests
Who may or may not share a geographic location
Duke Center for Community Researchhttp://www.dtmi.duke.edu/dccr/community-linked-research/
Community Members share a Common Characteristic or Goal
Examples:Common culture or ethnic heritageWhere they liveSimilar ageSpeak the same languageReligion
Communities are not homogeneous and seldom speak with one voice
Duke Center for Community Researchhttp://www.dtmi.duke.edu/dccr/community-linked-research/
Composition of Communities in Community Engaged Research
A community is typically comprised of: community leaders community organizations and agencies community members
*These groups are outside of academia
These groups represent different aspects of a community and are likely to have different
perspectivesDuke Center for Community Researchhttp://www.dtmi.duke.edu/dccr/community-linked-research/
Community-Engaged ResearchBased on the Centers for Disease Control
and Prevention (CDC) working definition of community-engaged research:
“ the process of working collaboratively with and through groups of people affiliated by geographic proximity, special interest, or similar situations to address issues affecting the wellbeing of those people.”
HistoryAction Research: process of communities
identifying their problems, planning, taking action, and then evaluating the results (Lewin, 1940’s)
Empowerment Education: emphasizes the equality of teachers and learners and the co-learning process (learning from each other) (Freire, 1970’s)Incorporates principles of social justice and
empowerment for marginalized communitiesDuke Center for Community Researchhttp://www.dtmi.duke.edu/dccr/community-linked-research/
Community-Engaged ResearchA framework or approach for conducting
research, rather than a research methodMay be used with both qualitative and
quantitative methodsRecognizes and builds on community
strengthsCharacterized by principles that guide the
researchRequires partnership development
Duke Center for Community Researchhttp://www.dtmi.duke.edu/dccr/community-linked-research/
What do community organizations bring to community-engaged research?
What do PEER fellows and their agencies bring that complements the faculty knowledge?
What Community Organizations bring to Community-Engaged Research
Community-based organizations have critical, useful and intimate understandings of the concerns, values, assets and activities in their communities.
When CBOs are engaged as partners in research, they bring these perspectives to help shape and refine study questions, implementation strategies, and data collection plans.
CBOs play an important role identifying how the study results may be applied to practice, and how the results can be used to shape future research directions. www.ctsi.ucsf.edu/community
What’s in a name?community-engaged research*community-based participatory research
(CBPR)*community-based research community-partnered participatory researchaction researchparticipatory researchmutual inquiry community-academic collaborative research
Spectrum of Community-Engaged Research
More Intensive: Collaborating fully in all aspects of research, including defining study questions, writing the proposal, implementing the research project, analyzing the results and disseminating the findings (CBPR)
Moderately Intensive: Assisting with researcher-designed study; participant recruitment, data collection, providing feedback on aspects of study design & findings
Less Intensive: Assisting in discrete steps of a researcher-designed study, such as participant recruitment
www.ctsi.ucsf.edu/community
Community-Engaged ResearchMore Intensive (CBPR): HIV prevention researchers collaborated with
a group of sex workers in South Africa to co-develop an intervention these women could realistically use to protect themselves from contracting HIV. The sex workers collaborated with researchers to develop and implement a peer education program which provided information on protection methods they could use without losing customers and earnings.
Moderately Intensive: Beginning in the late 1980s at the Hispanic Health Council in Connecticut, anthropologists obtained community input in developing programs and designing services for injection drug users, pregnant women, and teens in the local Spanish speaking community.
Less Intensive: A needle exchange program was developed by academic investigators in New York City. Community members were hired to recruit participants into the program.
Singer M. 1993Campbell C. 2001Israel BA, et al 1998Wallerstein N, Duran B. 2003
Duke Center for Community Researchhttp://www.dtmi.duke.edu/dccr/community-linked-research/
What is Community-Based Participatory Research (CPBR)?
“CBPR is a collaborative approach to research that equitably involves all partners in the research process and recognizes the unique strengths that each brings. CBPR begins with a research topic of importance to the community with the aim of combining knowledge and action for social change to improve community health and eliminate health disparities.”
Full collaboration in all aspects of research, including defining study questions, writing the proposal, implementing the research project, analyzing the results and disseminating the findings
W.K. Kellogg Foundation’s Community Health Scholar’s Program (2001)
CBPR emphasizeso Mutual respecto Co-learningo Individual and community capacity buildingo Balance between research and action
Principles of CBPRBuilds on community strengths and resources Facilitates collaborative, equitable partnership in all
research phases and involves an empowering and power-sharing process
Principles of CBPREmphasizes public health problems of local relevance
and acknowledges multiple determinants of health and disease
Disseminates findings and knowledge to all partners
What CBPR is not• Studies where participants merely “come from the
community”• Unengaged venue for recruiting subjects for clinical
trials
Benefits of CBPREnhances relevance of research questions to the
communitiesEnhances reliability and validity of measurement
instrumentsImproves response ratesEnhances recruitment and retentionStrengthens interventions by incorporating cultural
beliefs into scientifically valid approaches
Benefits of CBPR
Increases accurate and culturally sensitive interpretation of findings
Facilitates effective dissemination of findings to impact public health and policy
Increases translation of evidence-based research into sustainable community change
Provides resources and benefits to communitiesJoins partners with diverse expertiseIncreases research trust
CBPR and PEERPEER…Seeks to develop the capacity of your organization
and the capacity of academics to fully collaborate in community-engaged research
Offers an opportunity for academics and community-based organizations to engage together in a guided, facilitated, systematic program
Uses an applied learning approachCapacity of your organization will be increased
through your dissemination of CBPR, research methods, research study progress/findings, …
VideosWatch two videos of CBPR one from a
researcherperspective and one from the community
perspective
http://vimeo.com/35427319http://videos.med.wisc.edu/videos/6668