INFORMED DECISION MAKING & PATIENT-CENTRED CARE FOR CHILDREN FROM A PARENT’S PERSPECTIVE

Melissa Fox, Health Consumers Queensland & Maternity Coalition

Courier Mail, 31 May 2005

Mia’s birth, 21 Jan 2008

HCQ’s definition of consumer-centred care

accessible, safe and responsive

informed, active decision making

coordinated care inclusive of the patient’s

support network mutually respectful

partnerships

What were the enablers?

Parental advocacy Openness Informed decision making Individualised care Mater culture

Health Consumers Queensland Health Advocacy Toolkitwww.health.qld.gov.au/hcq/publications/hcq_toolkit_may11.pdf

Why patient- centred care?

Research increasingly suggests that, not only is patient-centred care the right thing to do, it is associated with better health outcomes. Health services with high patient centricity are associated with reduced mortality and infection rates, reduced cost of care, decreased length of stay, and fewer readmissions, adverse incidents and complaints leading to litigation. The case for patient-centred care is compelling.

QH Centre for Healthcare Improvement’s report “Patient safety: from

learning to action 2012. Fifth Queensland Health report on clinical incidents and sentinel events in the Queensland public health system 2009–10 and 2010–11”.

http://www.safetyandquality.gov.au/acsqhc_program/australian-charter-of-healthcare-rights/

The Australian Charter of Healthcare Rights

http://www.safetyandquality.gov.au

Australian Commission on Safety & Quality in Healthcare (ACSQHC)

National Safety and Quality Health Service Standards

Standard 2: Partnering with Consumers

Consumer partnership in service planning

Consumer partnership in designing care Consumer partnership in service

measurement and evaluation

Safety and Quality Improvement Guides

http://www.safetyandquality.gov.au/our-work/accreditation/nsqhss/safety-and-quality-improvement-guides-and-accreditation-workbooks/

Health Consumers Queensland publications Consumer and Community Engagement Frameworkwww.health.qld.gov.au/hcq/publications/consumer-engagement.pdf

Developing a consumer and community engagement strategy: a toolkit for Hospital and Health Serviceshttp://www.health.qld.gov.au/hcq/

Consumer Representatives Program Agency Handbook www.health.qld.gov.au/hcq/network_reps/agen_handbook.pdf

Health Consumers Queensland Health Advocacy Toolkitwww.health.qld.gov.au/hcq/publications/hcq_toolkit_may11.pdf