Meconium Ileus study starts this month!...Meconium Ileus is defined as bowel obstruction caused by...
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Meconium Ileus study starts this month! You should shortly receive a protocol with further details about the Meconium Ileus (MI) Study which starts this month. Data collection for the study will run from October 2012 to September 2014. The study will be led by Janet McNally from Bristol Royal Hospital for Children and Professor Marian Knight, NPEU. Key points: • MI is not reported in any UK registry and there is currently limited information about the incidence and mode of presentation of MI in the UK and Ireland. To date there are no prospective, population based observational studies of MI. • Operative outcomes for MI are limited to case series collected over prolonged periods at single centres rather than population based data. • By limiting the study to Cystic Fibrosis (CF) patients with MI we will be able to utilise CF registries to cross reference the cases and ensure high levels of case ascertainment. • The MI study will collect accurate data on the incidence, mode of presentation, genotypes, clinical characteristics and outcomes for this group of infants. • Outcome data at one year will be collected to allow critical analysis of the different management strategies which will aid the development of management guidelines and provide a benchmark against which paediatric surgeons can assess their own operative outcomes. Case definition: Any live-born infant presenting with Meconium Ileus and Cystic Fibrosis. Meconium Ileus is defined as bowel obstruction caused by inspissated meconium in the terminal ileum. The national system to study the surgical management of a range of neonatal conditions – enabling national audit in neonatal surgery British Association of Paediatric Surgeons Congenital Anomalies Surveillance System 1 9 5 3 • B R I T I S H • A S S O C I A T I O N • O F • P A E D I A T R I C • S U R G E O N S • 22 BAPS - CASS October 2012 - Newsletter Chocolates this month go to Dermot McDowell from The Children’s University Hospital, Dublin for retrospecvely idenfying HD cases from October 2010 and Gregor Walker from Glasgow Royal Hospital for Sick Children for efficient return of cards and forms Many thanks to you both. Read more online To read this on your phone or to access our complete archive: Open the BARCODE READER APP* on your phone and scan the code here *Search your app store for ‘qrcode’
Transcript of Meconium Ileus study starts this month!...Meconium Ileus is defined as bowel obstruction caused by...
Meconium Ileus study starts this month! You should shortly receive a protocol with further details about the Meconium Ileus (MI) Study which starts this month. Data collection for the study will run from October 2012 to September 2014. The study will be led by Janet McNally from Bristol Royal Hospital for Children and Professor Marian Knight, NPEU.
Key points:• MI is not reported in any UK registry and
there is currently limited information about the incidence and mode of presentation of MI in the UK and Ireland. To date there are no prospective, population based observational studies of MI.
• Operative outcomes for MI are limited to case series collected over prolonged periods at single centres rather than population based data.
• By limiting the study to Cystic Fibrosis (CF) patients with MI we will be able to utilise CF registries to cross reference the cases and ensure high levels of case ascertainment.
• The MI study will collect accurate data on the incidence, mode of presentation, genotypes, clinical characteristics and outcomes for this group of infants.
• Outcome data at one year will be collected to allow critical analysis of the different management strategies which will aid the development of management guidelines and provide a benchmark against which paediatric surgeons can assess their own operative outcomes.
Case definition:
Any live-born infant presenting with Meconium Ileus and Cystic Fibrosis. Meconium Ileus is defined as bowel obstruction caused byinspissated meconium in the terminal ileum.
The national system to study the surgical management of a range of neonatal conditions – enabling national audit in neonatal surgery
This month:
Changes to the UKOSS team
The newsletter goes digital
British Association of Paediatric Surgeons Congenital Anomalies Surveillance System
1 9 5 3
•B
RITISH•A
SSOCIATI
ON•OF•PAED
IATR
IC•SURGEONS•
22BAPS - CASSOctober 2012 - Newsletter
Chocolates this month go to Dermot
McDowell from The Children’s University
Hospital, Dublin for retrospectively
identifying HD cases from October 2010
and Gregor Walker from Glasgow Royal
Hospital for Sick Children for efficient
return of cards and forms
Many thanks to you both.
Read more onlineTo read this on your phone or to access our complete archive: Open the BARCODE READER APP* on your phone and scan the code here
*Search your app store for ‘qrcode’
Case report summary for cases reported up until 25th September 2012
Condition Cases Reported
Forms returned
Confirmed Cases
Unconfirmed Cases
Duplicate Cases
Hirschsprung’s Disease 304 208 (68) 191 (92) 17 (8) 0
Hirschsprung’s Disease 1yr Forms 188 82 (44) 82 (100) 0 (0) 0
0
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30
40
50
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70
80
90
100
Hirschsprungs Disease - card return rates October 2010 - August 2012
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40
50
60
70
80
90
100
Hirschsprungs Disease - form return rates October 2010 - August 2012
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Par�cipa�ng hospital
Web: www.npeu.ox.ac.uk/baps-cassEmail: [email protected]
Admin team: 01865 289700 / 01865 289714
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