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  • 1. Members Advisory Forum

2. Welcome RemarksHenry Simmons, Chief Executive 3. Early Diagnosis CampaignHow to start those difficult conversations &what would a campaign look like?Chris Lynch, Deputy Director, Communications & Marketing 4. Lets talk about dementia! 5. Questions:1) From your own experiences: How can we encouragepeople to initiate the difficult conversations especiallythe worried about your memory conversation? Whatworks, where, when and who?2) Its a busy, noisy world - full of marketing messages.How can we get peoples attention? If it was you howwould we get your attention? 6. Lets talk about dementia!Members Advisory Forum in April 2014.Barriers to getting a diagnosisFearStigmaPerceptions of dementiaLack of knowledge of illness or help availableResponse from professionals 7. Social marketing research.Changing Attitudes to DementiaDr Nicholas Jenkins - University of Edinburgh:Recommendations:1)Involve people with a diagnosis, carers, partner, family, friends, plus professionals andexperts. Case studies.2)The campaign should seek to promote a positive message, emphasising what is possiblefollowing diagnosis, rather than highlighting the symptoms or warning signs of dementia.3)Disseminated information via a wide range of channels, including: local newspapers andwebsites, local TV & radio, websites, buses and leaflets.4)Care should be taken to ensure outputs from the campaign are accessible to people fromBME communities. This includes translation into key BME languages (e.g. Urdu, Hindi,Cantonese) and dissemination through local BME channels (e.g. Awaz FM) 8. Lets talk about dementia! 9. Lots of opportunities. 10. Educating RitaMichael Caines character:How you would resolve the staging difficulties inherent in aproduction of Ibsen's Peer Gynt?Julie Walters character:do it on the radio" 11. Do it on the radio! 12. Do it on the radio!Bauer Radio Group:Clyde 2Forth 2Moray Firth Radio (Inverness, Highland, Moray)Northsound (Aberdeen/shire)Radio BordersTay AM (Dundee, Perth, Kinross, Fife)West FM (Ayrshire)West Sound (Dumfries & Galloway) 13. Lots of opportunities. 14. Questions:1) From your own experiences: How can we encouragepeople to initiate the difficult conversations especiallythe worried about your memory conversation? Whatworks, where, when and who?2) Its a busy, noisy world - full of marketing messages.How can we get peoples attention? If it was you howwould we get your attention? 15. Break 16. Paying for careJim Pearson, Deputy Director, Policy 17. Mixed economy of care in Scotland NHS healthcare Local Authority services Voluntary sector providers Private sector providers Social Security Benefits (e.g. Attendance Allowance,Disability Living Allowance, Personal Independent Payment) Unpaid care 18. Economic Impact of Dementia in ScotlandSource: DementiaUK, 2014 19. Paying for care Health Care (free at pointof delivery) Social Care (subject tocharges) Two separate chargingframeworks Non residential care Residential Care 20. Non Residential Care Charging Sect 87 Social Work (Scot) Act 1968 makes provisionsfor local authorities to charge for social care Charges must be reasonably practical to pay Must not exceed the actual cost of providing thesocial care Free personal and Nursing Care Convention of Scottish Local Authorities (COSLA)Guidance 32 Local Authorities = 32 Charging policies Lack of transparency many variables 21. Local Authority Charging Taper variations Aberdeen City 67% Aberdeenshire 100% Angus 66% Argyll & Bute 75% Clackmannanshire 75% Dumfries & Galloway 55% Dundee City 65% East Ayrshire 60% East Dunbartonshire 50% East Lothian 45% East Renfrewshire 60% Edinburgh City 31.89 Eilean Siar 50% Falkirk 100% Fife 50% Glasgow City 50%(100% for older people) Highland 50% Inverclyde 25% Midlothian 70% Moray 100% North Ayrshire 40% North Lanarkshire 50% Orkney Islands 15% Perth & Kinross 100% Renfrewshire 85% Scottish Borders 24% Shetland Islands 30% South Ayrshire 25% South Lanarkshire 50% Stirling 75% West Dunbartonshire 50% 22. Care Homes National legal framework for charging [NationalAssistance (Assessment of Resources Regulations)(Scot) 1992] Charging for residential accommodation guidance(CRAG) These are national rules setting out how localauthorities treat an individuals income and capital(including heritable property) in financial assessments Counted in full Fully Disregarded Partially Disregarded 23. Care Home Charges Standard rates for public funding: 587.00 with nursing care 499.38 without nursing care Self funding rates Between 650 & 800 on average Free personal and nursing care 169 for personal care (people aged 65 +) 77 for nursing care 246 (combined total) Capital Limits : Lower limit 16,000 Upper limit 26,000 24. Current Landscape Health and social care integration Self Directed Support Review of NHS continuing health care Residential Care Task force report Dilnot Report UK Care and Support Bill Non-residential care charging guidance review Review of national charging for residential care chargingguidance Welfare reforms social security benefits 25. Dilnot Report & Care and Support Bill (UK) 72k cap on life time care costs (Dilnot recommended35k) People will be expected to pay around 12,000 a yeartowards their general living costs if they can afford it The State will be responsible for: any further care costs once an individual reaches the72,000 cap financial help to people with their care and/or generalliving costs, if they have less than around 17,000 inassets, and insufficient income to cover care costs. 26. The Future of Residential Care for Older Peoplein Scotland (recommendations) Extra-care Housing Short-term ResidentialIntermediate Care (stepup step down) Specialist Residential 27. The Future of Residential Care for Older Peoplein Scotland (recommendations) Accommodation, hotel, care, leisure and recreation costsshould be separated. Financial modelling work to ascertain the cost effect ofraising capital limits in Scotland Free Personal and Nursing Care contributions should bereviewed Financial modelling to establish the costs ofimplementing a national commitment to pay the LivingWage in the care sector. 28. NHS Continuing Care NHS ContinuingHealthcare is a packageof health care that isarranged and fully fundedby the NHS CEL 6 (2008) sets outassessment and eligibilitycriteria ISD Annual Census NHS ContinuingHealthcare is currentlyunder review 29. Independent Review of NHS ContinuingHealthcare Key recommendations NHS CHC should be replaced with the term "HospitalBased Complex Clinical Care" and only provided infacilities wholly funded and managed by the NHS. Three month multi disciplinary team assessmentafter admission to hospital (excluding delayeddischarge), and ongoing review every three months. Those currently receiving NHS continuing healthcareshould not be financially disadvantaged. 30. Alzheimer Scotlands contributionInfluencing improvement throughout the illnessPromoting earlier diagnosisImproving Diagnosis (rates and experience)Post Diagnostic Support guarantee 5 PillarsIntegrated & coordinated community support 8 PillarsAdvanced DementiaAlongside work onImprovements in health careDementia friendly communities/ dementia friends 31. Questions1.What should people with dementia pay for, or not pay for,in an integrated health and social care system?2.How should care and support be funded for people withdementia in Scotland?3.Almost half of the current cost of care for dementia inScotland is met by unpaid care how can this gap beclosed and carers better supported? 32. Lunch 33. Our Research ActivityMaureen Thom, Information Manager 34. Aiming for maximum impact Scottish Dementia Research Consortium Alzheimer Scotland Dementia Research Centre,University of Edinburgh Alzheimer Scotland Centre for Policy and Practice,University of West of Scotland Building relationships with Universities across Scotland,sponsoring doctoral training programmes and fundingresearch projects 35. Scottish Dementia Research Consortium Bringing together Scottish based dementia researchersfrom all disciplines to promote collaboration and co-ordination Represent Scottish research interests at UK level andInternationally Communication with public about dementia researchtaking place in Scotland 36. Alzheimer Scotland Dementia Research Centre Commission and build a balanced portfolio of scientificand clinical research Attract external dementia research funding Brain Tissue BankWebsite: www.alzscotdrc.ed.ac.uk 37. Alzheimer Scotland Centre for Policy &Practice, University of West of ScotlandAims to advance dementia policy and practice through:EducationResearch andSocial enterpriseWebsite:www.uws.ac.uk/research/research-institutes/health/alzheimer-scotland- 38. Our additional research activity Building relationships with universities and dementiaresearchers across Scotland Sponsoring doctoral training programmes (PhDs) Funding research projects 39. Questions to Membership1. What are your views on the approach outlined today?What comments would you like to make on ourresearch activity?2. The G8 Dementia Summit placed the priority forresearch on developing a cure or disease modifyingtreatment for dementia - what do you consider to be thepriority/s for dementia research? 40. Closing RemarksHenry Simmons, Chief Executive 41. Members Advisory Forum