Main results of European Patients' rights monitoring / 5th Patients' rights day

8/7/2019 Main results of European Patients' rights monitoring / 5th Patients' rights day

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The EU Charter of Patients Rights

A civic Assessment

PRES

Patients Rights Euro Scores

11st April 2011

Rosapaola Metastasio - Cittadinanzattiva


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..About this presentation:

1) AN OVERVIEW OF THE RIGHTS

focus on the least respected rights

for each right, focus on the weakest indicators

2) COLLATERAL RESULTS


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An overview of the results


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The rights with the lowest scores are same

three that resulted worst in the precedingsurvey:

- patients' time- free choice

- access to care

The NOT RESPECTED Rights..


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Right to respect ofpatients time

In sum, problems of:

transparency

organizational issues

wait times


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Right to respect ofpatients time


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Right to respect ofpatients timeActual conditions of hospital patients 57/100Worrying indicators:

publicly-available lists of admittance for elective surgery:

hospitals of only 3 countries at least good

publicly-available wait times for in-patients and out-patients:

only 6 countries scored excellent

Other bad elements: a unified contact point for appointments

Interrupted bookings for appointments

wait times for Hip prosthesis and Non-emerg. Head TC Scan


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Right to respect ofpatients timeAlerts from civic organizations - violations concerning:

illness worsened because of a delay in treatment;

illness worsened because of a delay in diagnosis (due

to waiting times);

excessively long waiting times for specific exams

Frequent or regular violations in 19 countries

These indicators emphasize not onlythe elementalissues concerning time,

but also the serious consequences that citizens suffer

because of delays in treatment or diagnosis.


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Right to free choice

Violation of the right to free choice

5

11

2

2

Countries with violations

regularly found


frequently found

Countries with violations rarely

found


occasionally found /

never found

A peculiar assessment:based only on violations detected by civic organ izations


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Right to free choiceViolations concerning:

Incentives to seek treatment in certain hospitals or

centres

Coverage of supplementary insurance for only

some hospitals

Difference in fees between public and private

hospitals

Need to get authorization for some treatments

Indigent patients that may only be treated in

certain hospitals


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free choice recognized in principle in all of the

countries

often actually limited by: organizational

procedure; insurance companies; other factors

according to 60% of the civic organizations,

administrative authorities and insurers tend to

provide incentives for access to determinatehospitals and centres

In sum, what emerges is a choice that is not

in fact very free and that is burdened with many

obstacles

Right to free choice


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Right to accessFor a correct evaluation of the right to access, it is

necessary to distinguish between:

physical access to hospitals (transportation,parking, absence of barriers, etc.):

ALMOST RESPECTED (the best score)

access to care: the most proper meaning,

concerning the access to the needed health care

and treatments: NOT RESPECTED


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Right to access - to careViolation of the right to access concerning:

Discrimination on the basis of financial resources

Place of residence

Kind of illness

4

8

5

3

Countries with violations regularly

found

Countries with violations frequently

found

Countries with violations rarely

found


occasionally found /

never found


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Both the rights are:

hardly respected (score 54/100)

these bad results are even more serious, since

these rights are particularly relevant from a

civic perspective and deal with matters ofaccountability and transparency of institutions

further aggravating consideration: these can be

considered as soft rights.

Some alarm bells:information and active citizenship


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ight to information common failure by health authorities to provide information

regarding consumer satisfaction about clinical performances.

In hospitals:

patient access to free clinical records: only 4 excellent

scarce existence of a free information telephone number

insufficient informative contents of websites (mean score 38)

indicated areas for voluntary and public interest associations:

only in 7 countries H attained an assessment at least good

what deeply lowers the synthetic PRES index is the high

frequency ofviolations denounced by civic organizations.


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ight to active citizenship


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Unacceptable scores in hospitals:

Periodic consultations of citizens organizations

Common initiatives done in partnershipregarding quality

ight to active citizenship


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Some worrying indicators (mean score < 35)RIGHT TO OBSERVANCE OF QUALITY STANDARDS: List on quality ranking of health services

RIGHT TO SAFETY:

Legal protection for people who report an adverse event

Supplementary communication systems for emergency exits (H)

RIGHT TO AVOID UNNECESSARY SUFFERING AND PAIN:

Gov. study on national norms concerning the use ofpharmaceutical narcotics

RIGHT TO PERSONALIZED TREATMENT:

Cultural mediator service available in the hospital or on call

RIGHT TO CONSENT:

Specific consent form for appendectomy proper contents


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This assessment work didnt produce only scores.

During the carrying out of the process, we have

discoveredsomething else, collateral results:

citizens and civic organizations are often not enough

informed about:

which their rights exactly are

how to demand them

Ifcitizensdonotknowtheirrights,theycannotstandfor

themand,aboveall,exercise them.

A BASIC VOCABULARY OF PATIENTS RIGHTS


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there is a big preliminary work to carry out,

for monitoring the respect of patients rights.This commitment can be synthetized in:

building a basic vocabulary of patients rights.

This problem ofawareness of ones ownrights has proved that

First step - agreeing on the meaning of terms andconcepts for overcoming terminological difficulties

Second step strengthening active citizenship:

mutual support among citizens organizations


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Final goal:

These steps constitute a process, through

which

making patients rights easily demandabledemandable.


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first step - it is necessary to agree on the

meaning of terms and concepts, from a civic

point of view.

It allows to make the rights concrete even in spite

of very different contexts.

Aim: clarifying the problems that obstruct the real

possibility of demanding rights.

Focus on:

Clinical record

Informed consent

Active citizenship


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second step there is a strong need of working fora common and shared awareness of ones own

rights:

some civic organizations have difficulties in playingthe role of claiming citizens rights: they need more

information, and thus more capacity of training

citizens in the local communities.

Aim: strengthening active citizenship throughmutual support among citizens organizations

Keywords for this step: information, training,

exchanging best practices.


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Thanks for your

patient attention!

Main results of European Patients' rights monitoring / 5th Patients' rights day

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