Linked2Safety Project (FP7-ICT-2011-7 – 5.3) A NEXT-GENERATION, SECURE LINKED DATA MEDICAL...
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Linked2Safety Project (FP7-ICT-2011-7 – 5.3) A NEXT-GENERATION, SECURE LINKED DATA MEDICAL INFORMATION SPACE FOR SEMANTICALLY-INTERCONNECTING ELECTRONIC HEALTH RECORDS AND CLINICAL TRIALS SYSTEMS ADVANCING PATIENTS SAFETY IN CLINICAL RESEARCH Special Interest Group Workshop November 13th 2012, Larnaca, Cyprus Linked2Safety Surveys on Current Practice in Health Data Access Thomai Stavropoulou, ZEINCRO
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Transcript of Linked2Safety Project (FP7-ICT-2011-7 – 5.3) A NEXT-GENERATION, SECURE LINKED DATA MEDICAL...
Linked2Safety Project (FP7-ICT-2011-7 – 5.3)A NEXT-GENERATION, SECURE LINKED DATA MEDICAL INFORMATION SPACE FOR
SEMANTICALLY-INTERCONNECTING ELECTRONIC HEALTH RECORDSAND CLINICAL TRIALS SYSTEMS
ADVANCING PATIENTS SAFETY IN CLINICAL RESEARCH
Special Interest Group Workshop November 13th 2012, Larnaca, Cyprus
Linked2Safety Surveys on Current Practice in Health Data Access
Thomai Stavropoulou, ZEINCRO
FP7, ICT-2011 – 5.3 Page 2Linked2Safety Surveys
Purpose of surveys
Types of surveys
Information collected
Current status of surveys
First results
Where you can find the surveys
Key Topics
FP7, ICT-2011 – 5.3 Page 3Linked2Safety Surveys
The purpose of the surveys is to collect useful information regarding the current practices in areas such as which sources are used to access data from:
Clinical Trials
EHRs
Genetics
Safety
Purpose of Surveys
FP7, ICT-2011 – 5.3 Page 4Linked2Safety Surveys
Linked2Safety for “Beginners”
We would like to see if you would be interested in having access to a centralized database, which would be able to provide combined information of various types of data.
Linked2Safety for “Familiarized Users”
We would like to find out more about your understanding and thoughts on the project and its potentials.
Types of Surveys
FP7, ICT-2011 – 5.3 Page 5Linked2Safety Surveys
Demographics
Data sources currently used
Type of software used
Understanding the L2S characteristics
Interest in sharing data with other stakeholders
Evaluate the potential of the L2S project
How to enjoy the benefits of the L2S
Comment /Suggestions/ Feedback
Information Collected
FP7, ICT-2011 – 5.3 Page 6Linked2Safety Surveys
The surveys have been available from October 16th 2012
The initial planned duration is 2 months*
*an extension may occur based on the survey results
To collect responses from participants within EU countries
Some preliminary results analyzed
Current Status of Surveys
FP7, ICT-2011 – 5.3 Page 7Linked2Safety Surveys
Data Sources
Data sources to collect information:
Clinical
Safety data
FP7, ICT-2011 – 5.3 Page 8Linked2Safety Surveys
Sharing Data with Stakeholders
“Share my data with other Stakeholders”
“Have access to data originating from other Stakeholders”
FP7, ICT-2011 – 5.3 Page 9Linked2Safety Surveys
Linked2Safety Websitehttp://www.linked2safety-project.eu/
Linked2Safety LinkedIn Grouphttp://www.linkedin.com/groups/L2S-Project-4210168?goback=.gna_4210168
Where you can find the surveys
FP7, ICT-2011 – 5.3 Page 10Linked2Safety Surveys
Thank you!
Linked2Safety Surveys on Current Practice in health data access
Ms. Thomai StavropoulouZeincro
Tel: +30 210 8047709Fax: + 30 210 6134695
email: [email protected]
