Learning from the Individual Budgets for Families with Disabled Children Pilots and looking to the...
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Learning from the Individual Budgets for Families with Disabled Children Pilots and looking to the SEND Pathfinders Graham Thom and Meera Prabhakar 7 th November 2011
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Transcript of Learning from the Individual Budgets for Families with Disabled Children Pilots and looking to the...
Learning from the Individual Budgets for Families with Disabled Children Pilots and looking to the SEND Pathfinders
Graham Thom and Meera Prabhakar7th November 2011
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Introduction
The IB pilotsEmerging findingsWhat next for the pilotsWider implications and challenges
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The IB pilots
Six Councils involved in the pilotLed by social careStarted April 2009First budgets went live early 2010Each area has around 30 families in the pilotGuided by the Common Delivery Model
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What is an IB?
An approach based on
Greater choice and control to families with disabled children…
through the drawing together of a series of funding streams
and use of an outcomes-based approach…to enable the
development and delivery of a holistic and family-led support
plan …whose associated funding can be managed in a
variety of ways
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Key family journey stages
Assessment
Resource allocation
Plan
Review
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Key family journey stages
Assessment
Resource allocation
Plan
Review
But can change the sequence, or iterate between
stages
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Key family journey stages
Assessment
Resource allocation
Plan
Review
Single assessment / plan
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Key family journey stages
Assessment
Resource allocation
Plan
Review
Single assessment / plan
The additional individual / personal budget part
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What have we learned from the pilots (1)
Successful recruitment of a good range of families Across social classes But best done through personal approaches and explanation
The requirement of dedicated staff resources to drive activity and to engage wider professionals and families in the process
Social care budgets have been the largest contributor to the IB package Engagement from PCT and education colleagues limited
The resource allocation process was a learning experience for all People got very different budgets to what they had before Work in progress and needing further refinement
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What have we learned from the pilots (2)
Pilot site% change in average
package value% change in median
package value
1-40% -41%
2-3% 82%
361% 109%
438% 58%
53% -3%
69% -1%
All sites 0% 17%
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What have we learned from the pilots (3)
… but also wider resource implications around the offer of choice to participate
Support planning was highly valued It’s the place where families get to exercise their choice
Good progress in engaging parents in the process, practice is less developed around how best to engage young people
Families changing their packages of support quite significantly (and maybe more to come) More use of PAs and community / mainstream services
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What did the families tell us
Two waves of survey in their homesCovered parents and young peopleAugmented by focus groups in each areaWanted to test
If IBs gave better choice and control .. And if so did this lead to improved well-being
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What did the families tell us (1)
Issues % reporting improved
position
% reporting worse
position
Net change
Parents are involved in decisions
33 9 24
Parents are kept informed about decisions
38 15 23
Control over services 60 9 51
Satisfaction with support received
57 17 40
Control over daily lives 40 9 31
Access to social care services 64 11 54
Staff appear joined up 47 21 26
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What did the families tell us (2)
Be healthy % reporting improved
position
% reporting worse position
Net change
Home is calm 33 22 11
Home is disorganised 32 20 12
Be safe
Concern over child’s safety - in home
45 23 22
Concern over child’s safety – outside home
41 11 30
Enjoy and achieve
Attainment at school 29 13 16
Enjoyment at school 19 13 6
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What did the families tell us (3)
Making a positive contribution
% reporting improved
position
% reporting worse position
Net change
Childs social life 58 17 41
Childs self confidence 34 15 19
Parents social life 43 19 24
Achieve economic wellbeing
Childs quality of life 35 13 22
Parents quality of life 37 19 18
Family strength 44 22 22
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In summary
Good progress on getting set up and recruitment familiesStill a lot of fine tuning required around
Process Partners
Positive feedback from families Support planning Choice and control Satisfaction
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Expectations of the Green Paper
Green Paper signalled a wider set of pilots and extended the pilot in the six areas for another12 months to: Understand more of the impact on family wellbeing through
tracking those with a live IB Explore how education and health based funding could be
incorporated into an IB for families with disabled children during 2011-12
… which will help to inform the scope of the Pathfinders envisaged in the Green Paper
20 Pathfinders selected and announced Scope to offer Personal Budgets
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Expectations of the Green Paper (2)
Give parents more choice and controlLocal authorities to communicate a clear local offerA single assessment process and ‘Education, Health and
Care Plan’ by 2014Parents to have option of personalised funding by 2014
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Contact
Graham Thom
Associate Director
SQW
t. 07716 916897
w. www.sqw.co.uk
Meera Prabhakar
Senior Consultant
SQW
t. 020 7307 7151
w. www.sqw.co.uk
