Kidney Smart On-line Program Menu Content Version 5...Kidney Smart On-line Program Menu Content...
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Kidney Smart On-line Program Menu Content Version 5.0
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Kidney Smart On-line Program Menu Content Version 5.0
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Kidney Smart On-line Program Menu Level Content
Video Script and On-screen Text
Home Page
Introduction (video):
Welcome to the Kidney Smart Education Program.
Right now you’re probably experiencing a wide range of emotions if you, a family member,
friend, or loved one has just received a diagnosis of chronic kidney disease, often referred to by
the initials “CKD.”
The Kidney Smart program is here to offer you hope, and information, to keep you feeling vital,
and on a course of well-being. This program combines presentation modules, downloadable
resources, and visual animations with tips to help you meet the challenges that CKD may bring
to your body, your spirit, and your budget.
The program is designed to help you understand your stage of CKD and what it means to your
life. If you have questions specific to your personal health, please contact your doctor. To get
started, click on the section that best fits your needs. If you are not sure, click on the section
guide to learn more.
Early Stage Section Guide (video):
The Early Stage Section is designed for patients who have just been diagnosed with CKD, and
may have been told they should take action to maintain and protect their kidney function. You
may have heard this described as Stage 2 or 3 CKD, or your doctor may have given you a GFR
number that suggested action is necessary. You may be feeling fine, with no symptoms that your
kidneys are having trouble. Even if you don’t yet need dialysis, it is very important to
understand that planning ahead and following your doctor’s advice about your diet, medicines,
and exercise can help you to delay dialysis or to avoid it in the future. This section will guide
you to better kidney health.
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Late Stage Section Guide (video):
The Late Stage Section is designed for people who have been told that they have reached Stage 4
or Stage 5 CKD. You and your doctor are likely discussing when you will start dialysis, or
perhaps you have already had your first dialysis treatments. You may also be discussing the
possibility of kidney transplant. This section will help you to understand whether you are a
transplant candidate, how to get onto a transplant list or find your own donor, and how you will
prepare for transplant. While you are awaiting transplant, or if you choose not to try for
transplant, this section also describes the different kinds of dialysis, and provides guidance to
help make the decision about which kind of dialysis fits best with your life. You’ll find other
information about diet and healthy living, to help you to support your kidneys and your general
health as you enter this next phase of your life with CKD.
Care Partner Section Guide (video):
The Care Partner Section is specifically geared to providing information and support for family
and friends helping to care for people with CKD, at whatever stage. As a Care Partner, you are
an essential part of the health care team. You may be deeply involved with the decision-making
process about treatment, and interested in finding resources to keep yourself as well informed as
possible about the kidney-friendly diet, medications, dialysis treatments, and personal needs.
Through all of this, you, as Care Partner, need care, too. This section provides resources to help
support you in your very important role.
This content has been reviewed once and recorded.
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Early Stage CKD Page (1)
Early Stage Editorial (on-screen text):
In three sections, called Living, Learning, and Choices you will find information about diet,
lifestyle, and treatment choices that will help to maintain your kidney function and overall
health. Click on one of the titles to get started.
Early Stage Section Panel Editorials (on-screen text below “>Go” button):
Living
Understand how CKD may affect your life and ways to maintain better kidney health.
Learning
Find explanations about how your kidneys work and how CKD affects their function.
Choices
Learn about kidney-friendly diet and lifestyle choices, and begin to plan for the future.
Early Stage Introduction (video):
This section of the Kidney Smart Program is specifically geared toward people with Early Stage
Kidney Disease. In three sections, called Living, Learning, and Choices, you will find expert
information that will help you create a plan that includes healthy diet, lifestyle, and treatment
choices, as well as links to helpful resources.
It can be confusing to hear from your doctor that you have kidney disease, especially becauseyou
may feel fine, and be symptom-free. But your blood tests show that your kidneys are not
working properly, and you need to take special care of your body. Your doctor and health care
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team may prescribe a diet that is “kidney-friendly,” and encourage you now, more than ever, to
make healthy choices, to stop smoking, and to get regular exercise. Your team will ask that you
closely follow recommended treatments for your kidneys as well as other health conditions you
may have, such as diabetes or high blood pressure.
Many people feel a combination of worry, sadness, and even anger that their body is somehow
letting them down. Life may suddenly have become chaotic, as you try to absorb a great deal of
information from new doctors or health care providers, who often use medical terms that are hard
to understand.
You may feel stressed and overwhelmed about the many choices ahead concerning treatments,
and how your home life and work life may be affected by all of these choices.
The good news is that the progression of kidney disease is usually slow – over the course of
years. Although receiving a diagnosis of a chronic disease – one you will live with for your
whole life – is distressing, it is important to understand that you have time to learn, live, and take
action to choose a path that may slow or even prevent the progression of disease. You can
maintain your well-being for many years to come, but knowledge and action are essential.
These three sections will help you navigate the new world of CKD, and the physical, emotional,
insurance, and budget challenges ahead.
Early Stage Living Section Guide (video):
In the Living section you will find information about the very first stages of CKD, and what this
means for you, your family, and your work life. Although life may start to change, your doctor
and health care team will likely encourage you to enjoy your usual routines, even with this new
diagnosis. You’ll understand the ways your health care team will monitor your kidney function
over time, and learn about some modifications to medications or diet that your doctor may
suggest to support your health. You’ll also hear about a strategy we call “Take Control - Make a
Plan – and Stay Your Course” – so that you feel well-informed and able to be a ready partner in
your own health care.
This content has been reviewed once and recorded.
This content has been reviewed once and recorded.
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Early Stage Learning Section Guide (video):
In the Learning section, you will find state-of-the-art visual explanations of the anatomy and
function of your kidneys, and some common causes of CKD. You’ll also find step-wise
information about how your health care team determines the stage of your CKD, and ways they
will monitor your health over time.
Early Stage Choices Section Guide (video):
In the Choices section, you’ll find information, strategies, and tools to “Take Control - Make a
Plan – and Stay Your Course.” Making a plan includes important information about a kidney-
friendly diet, exercise, healthy living, and keeping up-to-date on insurance and budget matters.
Understanding this information will help you to create a plan that keeps stress to a minimum, and
takes good care of your body, your feelings, and your budget, as time goes on.
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Early Stage “Living” Page (1a)
Early Stage “Living” Editorial (on-screen text):
A diagnosis of CKD doesn’t mean completely letting go of your life, but you will start
incorporating some new health and lifestyle routines into your everyday life, now and in the
future. Meet the members of your new health care team, and understand the guidelines they’ll
suggest for keeping your kidneys working as well as possible, for as long as possible. This
section will help you to Take control - Make a plan- and Stay your course for a healthier future.
Early Stage “Living” (video):
Living with Early Stage Chronic Kidney Disease doesn’t mean completely letting go of your life
-- your normal daily routines, such as spending time with family, recreation, and work activities,
including travel, can and should be maintained. At the same time, you and those around you will
be adapting to this new situation. In this section, there are strategies for letting people know
about your diagnosis, and some important things to keep in mind, both on the home front and the
work front. You will find an introduction to the members of your new health care team, and how
each plays a special role in your care. Included are some immediate steps your doctor may
recommend to help keep you and your kidneys as healthy as possible, such as the basics of a
“kidney-friendly diet” and a heads up about common elements of a treatment plan, like making
sure that your blood pressure is carefully controlled, and if you smoke, getting serious about
stopping. If you have diabetes, watching what you eat will be very important. Living starts with
understanding your situation and taking action. This section will help you Take Control-Make a
Plan-Stay Your Course for a healthier future.
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Early Stage “Learning” Page (1b)
Early Stage “Learning” Editorial (on-screen text):
Learning about your kidneys and how they are affected by CKD is a good first step to taking
control of your health and life. With this understanding of the anatomy and function of your
kidneys you’ll see how the diet, lifestyle, and treatment routines that your health care team will
suggest will help to support your kidneys. Hopefully, this will make it easier to incorporate these
changes into everyday life, and appreciate why it’s important for your health care team will to
carefully monitor your kidney function over time.
Early Stage “Learning” (video):
Until now, you may not have ever thought about your kidneys. Although you can’t see them or
feel them, they have suddenly become the focus of a great deal of attention. The knowledge you
will gain from state-of-the-art pictures and explanations of how your kidneys work, the most
common causes for why and how kidneys stop working, the different stages of CKD, and the
treatments that your doctor might suggest now and in the future are powerful tools for you to rely
on, as you adjust to life with CKD. You’ll also learn about some of the ways that your health
care team will keep close tabs, to track how your kidneys are doing.
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Early Stage “Choices” Page (1c)
Early Stage “Choices” Editorial (on-screen text):
Diet, lifestyle, and treatment choices that you make right now, may delay or even prevent future
health problems. But you don’t have to go this alone. Even at this early stage of CKD, creating
good support networks among family and friends, and developing healthy routines will help you
to Take Control - Make a Plan - Stay Your Course to keep you feeling well for a good, long time.
Early Stage Choices (video):
You are at an early stage of kidney disease, which means that you’re hearing this at the best
possible time to delay or even prevent future health problems. The key is careful planning,
which starts with choices you can make right now. We call this: “Take Control – Make a Plan –
Stay your Course.” Here in the Choices section you will learn about the foods and drinks that
are easiest on your kidneys, and also foods and some medicines that you should avoid. Another
great way to get or stay healthy is to exercise regularly, control your weight, and pay close
attention to the treatments that your doctor may have prescribed for your kidneys, and any other
health problems you may have, like diabetes or a heart condition. If you smoke, now is the time
to get help to quit. Sometimes it may seem hard to keep track of all of these choices and
decisions, and still live a normal life. Now, and going forward, finding support from your
family, your community, and your health care team is especially important. We’ve got
suggestions and resources to help you Take Control - Make a Plan – and Stay Your Course,” to
keep you feeling well for a good, long time.
This content has been reviewed once and recorded.
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Late Stage CKD Page (2)
Late Stage Editorial (on-screen text):
In three sections, called Living, Learning, and Choices you will find information about diet,
lifestyle, and treatment choices, including kidney transplant and dialysis, that are necessary for
continued health, once your kidneys being to fail. Click on one of the titles to get started.
Late Stage Introduction (video):
This section of the Kidney Smart Program is specifically geared toward people with Late Stage
Kidney Disease. In three sections, called Living, Learning, and Choices, you will find
information on the ways that continuing loss of kidney function affects how you feel and the
treatment options that you will soon be deciding upon. Expert information will help you
understand the elements of a treatment plan for transplant and or dialysis, as well as palliative
care, and the diet and lifestyle choices that maximize your treatment’s success. Also available are
links to helpful resources.
Late Stage Section Panel Editorials (on-screen text below “>Go” button):
Living
Understand the symptoms of Late Stage CKD and treatment options to help control symptoms
and preserve your health.
Learning
Find explanations about how your kidneys work, how your CKD is monitored, and the ways that
continuing loss of kidney function affects how you feel.
Choices
Learn about treatment options, including transplant, dialysis, and palliative care or comfort care.
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Late Stage Living Section Guide (video):
In this Late Stage Living section you will find information about Stages 4 and 5 of CKD – what
it means when your kidneys begin to fail, how you may expect to feel, and how treatment may
affect your everyday life. You’ll understand the important roles played by various members of
your health care team, and how they can help you make some useful modifications to lifestyle,
medications, and diet to support your health. You’ll also hear about a strategy we call “Take
Control - Make a Plan – and Stay Your Course” – so that you feel well-informed and able to be
a ready partner in your own health care.
Late Stage Learning Section Guide (video):
In this Late Stage Learning section, you will find state-of-the-art visual explanations of the
anatomy and function of your kidneys, some common causes of CKD, and the ways that
continuing loss of kidney function affects how you feel. There is also step-wise information that
explains how your health care team determines the stage of your CKD and when you have
moved from one stage to the next, as well as ways they will monitor your health and kidney
function over time.
Late Stage Choices Section Guide (video):
In this Late Stage Choices section are complete explanations of available treatment options and
guides to help you decide, along with your health care team, about the one that will work best for
you. You’ll learn about kidney transplant surgery, and the two types of dialysis, called peritoneal
dialysis and hemodialysis. You will also find information about palliative care, sometimes called
comfort care, if you make the difficult decision not to pursue treatment to support life.
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Late Stage “Living” Page (2a)
Late Stage Editorial (on-screen text):
Starting CKD treatment means fitting new, daily routines into everyday life. . Explaining to
family, friends, and co-workers how you manage treatment will help everyone to become
comfortable with these necessary adjustments. You will be seeing your health care team more
frequently to manage your symptoms and monitor treatment, and the team can also provide
helpful advice for coping at home and at work.
Late Stage Living (video):
Living with Late Stage Chronic Kidney Disease and starting treatment doesn’t mean completely
letting go of your life. Even so, your ongoing treatment will mean fitting new daily routines into
your life. Thoughtful planningwill help you to adjust to these changes and then share the news
about your treatment planswith the folks at home and at work. The members of your health care
team each play a special role in your care. You’ll soon understand a great deal more about
treatment options, and how diet and exercise, lifestyle choices, and careful attention to
controlling other health conditions such as high blood pressure and diabetes, support treatment
success. All of this goes a long way toward living more comfortably with Late Stage CKD, and
will help you Take Control - Make a Plan – and Stay Your Course for a healthier future.
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Late Stage “Learning” Page (2b)
Late Stage Editorial (on-screen text):
The progression to Stage 4 or Stage 5 CKD signifies that your kidneys have continued to lose
function, which will bring changes to symptoms you may experience, and means that treatment
will start. Your health care team will monitor your condition, and design treatments that match
your health and lifestyle needs.
Late Stage Learning (video):
The significant loss of kidney function that places you in Late Stage CKD, called Stages 4 and 5,
means that treatment will start soon, or may have already begun. Visualizing the changes to your
kidneys through state-of-the-art pictures and explanations, the most common reasons that
kidneys stop working, and the effect that loss of kidney function may have on you, will help you
to better understand the available treatment options. In this section, you’ll find an overview of
these treatments, including transplant and dialysis, as well as more detailed explanations of the
ways that your health care team will keep close tabs, to track your kidney function.
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Late Stage “Choices” Page (2c)
Late Stage Choices Editorial (on-screen text):
In Late Stage CKD and kidney failure, you will need to choose from one of several treatment
options because your kidneys no longer function at a level to maintain health.. These include
kidney transplant surgery, and two different types of dialysis: peritoneal dialysis and
hemodialysis. You will also learn about a fourth option, called palliative care, if you decide
against transplant or dialysis.
Late Stage Choices (video):
In Late Stage CKD and kidney failure, you will need to choose from one of several treatment
options because your kidneys no longer function at a level to maintain health. To Take Control -
Make a Plan –and Stay Your Course, you’ll need to think about which treatment plan, whether
transplant or one of the kinds of dialysis, best fits your health care needs, and lifestyle. This
section provides a great deal of explanation about these choices, and the diet and lifestyle
changes that support each. In the Transplant chapter you’ll learn about what makes someone a
good transplant candidate, the transplant evaluation, how to get on a transplant waiting list for
a kidney and the process involved in finding a living donor. If transplant is not an option,
there are two types of dialysis, Peritoneal Dialysis and Hemodialysis. Each of these has
distinct benefits and considerations, depending on your own preferences for how involved
you are able to be in managing your own treatment, and the flexibility you may need or
want as to the timing and duration of treatment. With any treatment option, practicing
healthy behaviors in your day-to-day life will help to increase your quality of life and
maintain your overall health. Finally, some people decide that they do not want to start or
continue dialysis or have a kidney transplant to stay alive. If this is your choice, you can
learn more about Palliative Care, which is designed to keep you comfortable as your body
takes its natural course.
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Care Partner Page (3)
Care Partner Editorial (on-screen text):
The Care Partner Section is specifically geared toward those important family and friends
helping to care for someone with CKD, at whatever stage. In two sections, called Caring for
Someone with CKD and Caring for Yourself, you will find information about Care Partner
tasks to support the different treatment options as well as resources to help you balance
your own well-being with your role as an effective Care Partner.
Care Partner Introduction (video):
For someone with chronic kidney disease, successful treatment often means calling on family or
friends to provide help and support. A Care Partner is someone chosen by a person with CKD to
assist with treatment, as well as everyday life logistics. If you are that important family member
or friend, you should understand that a care partner is not the same as a caregiver – the difference
is that you are sharing responsibility with the person you are caring for.
Depending on the stage of CKD your family member or friend has reached, whether early stage,
or the later stages, when decisions about dialysis or transplant are being made or are underway,
there is a Kidney Smart On-Line program to help.
Two elements of Kidney Smart On-line are geared toward the person with CKD, and are
organized according to Early Stage Disease or Late Stage Disease. In each of these, there are
three sections, called Living, Learning, and Choices, where you can learn about the anatomy and
function of the kidneys, about CDK and its causes, as well as information about diet and
treatment choices. There are also overviews as to how insurance and other benefits help pay for
CKD care and treatment, and helpful resources for further information.
But this section of the program is focused on you, the Care Partner.
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Care Partner Section Panel Editorials (on-screen text below “>Go” button):
Caring for Someone with CKD
Learn about Care Partner tasks to support the different treatment options.
Caring for Yourself
Create a solid Care Partner plan, and recognize the signs of burnout. Find resources to help you
balance your own well-being with your role as an effective Care Partner.
Care Partner “Caring for Someone with CKD” Section Guide (video):
In this section, Caring for Someone with CKD, you’ll learn a step-wise approach to being an
effective Care Partner, which includes understanding the training you’ll need to help with the
chosen treatment program, as well as organizing and assigning the tasks of everyday life.
Creating a reliable safety net of other family and friends who you can turn to for assistance is an
essential part of a good plan. Prioritizing the needs of the whole family, including time for
exercise and rest, is extremely important for care partnering to be sustainable.
Care Partner “Caring for Yourself” Section Guide (video):
When someone you live with or care about has CKD, you are living with a chronic illness, too.
In taking on the role of Care Partner, it is essential to remember that caring for yourself is just as
important as caring for the person with CKD.
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Care Partner “Caring for Someone with CKD” Page
(3a)
Care Partner “Caring for someone with CKD” Editorial (on-screen text):
As the Care Partner of someone with CKD, understanding the various types of treatments is the
first step in appreciating the role you may play to help treatment work as smoothly as possible.
Being well-acquainted with the nuts and bolts of treatment, and creating solid back-up plans will
help to ensure that your family member or friend with CKD will be able to meet any treatment
challenges.
Care Partner “Caring for Someone with CKD” (video):
Taking on the role of Care Partner for someone on dialysis may seem scary at first. Even before
you start, it is beneficial to understand what it takes to be an effective Care Partner. The chapters
on each of the two types of dialysis, peritoneal dialysis and hemodialysis, provide visual aids and
explanations about how you can help to carry out both of these treatments at home. But be
assured, no one starts home treatment without a thorough training course, and clinics have 24-
hour phone back-up. If you are the Care Partner for someone who has had a kidney transplant,
you can find information on what to expect following transplant surgery.
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Care Partner “Caring for yourself” Page (3b)
Care Partner “Caring for yourself” Editorial (on-screen text):
As important as the care you provide to your family or friend with CKD is the care you take of
yourself. Keeping the caring in balance, and attending to your own health and feelings is Job
One.
Care Partner “Caring for yourself” (video):
It is essential to balance care partnering with your personal emotional and health needs. There
are many ways to keep stress at a manageable level, so investigating techniques and practices to
reduce the stress of everyday and longer-term tasks is time well spent. It’s also important to
recognize when that crucial balance is tipping, so that you’re aware of the signs of burnout. It
will be important to develop coping strategies if the emotions of being a Care Partner start to
outweigh the benefits of the treatment you are helping to provide at home. You’ll learn about the
many resources at hand, including your wider circles of family and friends,the professional
health care team, and care partner organizations in the community, that can provide valuable
resources to help you remain strong and in balance with this generous and rewarding role you
have undertaken.