Picture of Health… …Perceptions of Health

What may seem simple, can often be most complex.

The Proof For ‘1+1=2’ Is 300 Pages Long!

eHealth

200551+

Definitions

Even Defining the Solution Can Be Complex!

Ecosystem

52,000,000 Search Results

+ = Where To Start ?

Start with the people who

have the problem!

INNOVATE

Work with everyone to

implement the solution!

INTEGRATE

Work with the people who

can solve the problem!VALIDATE

eHealth Ecosystem

Hope

Safety Security

Communication

PossibilityCalmness

Direction

Trust

Gratefulness

Security Excitement

Lighthouse Recognised All Over the World

Reassurance

Bi-Polar Disorder HaemophiliaEpilepsy

Extremely Important to Address the Needs of Specific Communities…

Extremely Important to Ensure EHR’s Will Work in Collaboration with

National Standardised Electronic Health Records

Just as Important That EHR’s built with PHR’s to Aid in Self Management of Conditions; Increase Engagement with

Health Care Professionals; Are Easy to Implement and USE and Most Importantly Address the Needs of All Patients

Heart Disease

DiabetesCancer

Depression

StrokeAsthma

High Blood Pressure

15 Million British People Have a Chronic Illness

Arthritis

1.3 Million Irish People Have a Chronic Illness

127 Million Americans Have a Chronic Illness

Irrelevant of diagnosis, every patient at some stage, will have to manage 4 basics:• Medications/Therapies• Health Care Appointments• Emotional/Physical/Social Impact• Communication

Managing a chronic illness can cause huge stress and risk to patients and carers. So can you imagine how hard it might be to manage more than one?

The MediStori is like a Filofax, but for health.

Is that…Paper???

In Today’s World?

That Will Never Work! APPS ARE

THE ONLY WAY!

More disruptive than any technology…!

Really? Are you sure?

How many of you take notes on pen & paper today?How many public hospital waiting rooms have Wi-Fi?

Did you ask me?

I am also known as Mum, Sister, Daughter (depending on the mood!)

Who Am I?#hellomynameisOlive. I am known as being…• An Expert by Experience – DCU Literature Review PPI ; NCGP for PEWS; Maternity Strategy• Trained with Stanford University Self Management Facilitator Chronic Disease • Completing Fellowship with ISQua in Quality Improvement; Training in UX Design• Represented Ireland for the Clinton Global Initiative (Top 10 out of 10,000)• Showcased by Global Health Leader Maureen Bisognano, IHI in Qatar• Supported by Enterprise Ireland, IPU, IPA, Irish Carers Association• **Judges Choice Sccul Special Merit Award 2014 • **JCI NATIONAL Award Winning Medical Innovation 2015• **Mumtrepreneur of the Year with Mums and Tots.ie 2015• Lectured in UCD; Keynote Speaker: Community / Youth Worker • Seen on RTÉ News, Prime Time, Today FM’s Sunday Business Show, UTV Ireland• Supported by An Taoiseach – “Save our Health Service Millions” …

And I am known as the Founder of the MediStoriSo why did I see a need for such a thing?But I’m not a doctor or a health professional!

Because…and without sounding egotistical…

I am Olive. And I am the Patient.

When did I give right medication?

So hard to get diagnosed!

Trying to remember

appointments!

Communication Breakdown!

My Problem…

Someone who understands!

Could it Help Others?

Costs on Health Systems “…all medication-related hospital admissions in the US approx. $100 billion a year…”

Digital Divide“the digital divide …..those in most need are left behind …”

Medication Non-AdherenceWHO: “Approx. 50% do not take medications as prescribed…” -€30 million

Individualised Health Plans“…the ability to develop individualized treatment plans is of critical importance for effective care”

There is an urgent need for a universal, unified approach.

And it needs to start simple.

We focus on the individuals needs, not the individuals disease.

• Transparency for Patient, Carers, Paramedics

• No Batteries

• No Passwords

• Suitable All Ages

This Was the Toolkit That Saved My Dad’s Life.

The Water Tablet!

The Inhaler! REALTIME DATA!

Our Hospital Booklet

Vaccination

Asthma Packs

COPD Care Packages

Heart Passports

The Problems are Bigger than Paper or Technology!

Unhealthy Competitive Cultures Existing in HealthCare Impact on Patient Safety

We Need to Work To Put Patient Safety Agenda Before Profit, Pride, Positions or Power…Prove What Works

Solutions Need to Be Simple.Cultures Need to Be Converted.

Charities Need to Be Collaborating.Patients Need to Be Participating.

Professionals Need to Be Proactive.Policy Needs to Be Practical.Projects Need to Be Proven.

P4 Medicine Institute – Proactive vs Reactive…Personalized, Predictive, Preventive, Participatory

Collaborative, Comparative Study…

• Research by NUIG – Dr Padraig MacNeela • Funded by HSE QID and Acutes

Objectives• Make Changes Based on Patient & Health Care Professional Needs• Who & Where is it Best to Recommend it to Patients• See Issues Patients and Carers were Having • Show Cost Savings

Step 2. Validate

So What Did They Say? 95% Participants Not Taking Medications Correctly!

What else did we learn?

• 6% Recommend Charities to Patients- 85% Feel Charity Additional Health Service! LINK• 34%, 24% and 22% respectively wanted to be part of the study because they wanted help

with medications, appointments and health information. SAME ISSUES AS HEALTH SERVICE• 96% wrote down questions for HCP prior to visit – ACTIVATED PATIENTS/CARERS!• 74% struggled to manage appointments – IRRELEVANT OF CONDITION• 69% had a pre-existing condition and were awaiting another diagnosis - SYMPTOMS• 50% answered had other loved ones in the house with a condition – FAMILY CENTRED CARE• 57% thought that others couldn’t give medications correctly - CARERS• 87% were not given a medical device in a hospital to help with medications - CRITICAL• 89% found it difficult to recall health information for HCPs – IN HOME• 69% kept a diary system at home – ALL HANDMADE SYSTEMS – EXCEL AND PAPER!• 45% contacted GPs and PHNS to find out if vaccinated or not – HEALTHY POPULATION• 87% did not receive PHR from health providers – RECOMMENDATION NEEDED

And what did they say about MediStori?Loads of Changes to Be Made…But…

>90% said they liked the size & colour of MediStori

75% of participants said the MediStori had impacted on how

they managed medications

<80% said they would like to see an electronic version

also.

>90% said MediStori was a good idea and that it was well demonstrated to them

But What Was

Their Experience?

>90% said they felt it could help them with their specific needs

>80% said it had impacted on how they managed appointments

>80% said it had impacted on how they communicated information to health care professionals

>65% said it had impacted in how they managed their loved ones condition

“Thanks for filling a gap in my care.”

“It’s brilliant! Been telling my friends about it.

“The people behind this are very obviously extremely caring and experienced people with the patient’s best interests at heart.”

“It will make my life easier having this, it has already helped me keep track of everything, I have so many appointments at the moment so it is great to keep track of them.”

Just, Thank You.

“I've pretty much said it all, but I just want to once again thank the team for all of their hard work. They have made a difficult situation easier to deal with.”

Per Patient Per Annum Are there Cost Savings?

Hospital Bed x 1 night €800.00

A hospital bed costs €800 per night – it is proven that if patients are part of the decision making process and are trained in self-management they become more reassured, educated and informed & there is a high chance that they will not be readmitted or kept in as long as a patient who is not.

Medication Compliance

€300.00

If a patient has a better understanding of their medications and has a simple tool-kit to help them keep track of when they took them, there is a major chance of increasing medication adherence and compliance. This has a huge cost saving as it will stop re-ordering of drugs that are not needed; it will help reduce readmissions to hospitals due to medication related illnesses and it can even help cure/treat the issue and prevent visits to the GP.

A&E Re-Admission €200.00

There is significant evidence of people being admitted to hospital due because they are not reassured about their illness, treatment or diagnosis. There is also a high increase in admissions to A&E at weekends and afterhours and evidence has shown this can be because after hour GP’s have no history on patients presenting to them and they can feel vulnerable and/or not confident enough to treat/diagnose a patient as they do not have enough information on the patient to make an accurate decision.

Inappropriate Diagnostics €300.00

When health professionals are unsure as to whether the patient has had appropriate/previous tests done, sometimes they re-test them "to be on the safe side". This has a huge burden of cost, risk and time on both stakeholders. This can be effectively reduced if a patient is able to tell a consultant when and where they last had medical investigations done and this will save time and money on needless retesting.

Phone Calls/No Link €100.00As patients end up in A&E / being admitted the nurse needs a full up to date list of prescription or the patient. This usually ends up with a phone call (or 3!) to a GP or pharmacy. If the patient has this information to hand they can reduce this wastage of time (costs of calls) etc. for both the nurse and the GP/pharmacy and can have their medications written up on time for themselves.

Emergency Situations €100.00

When people do not have accurate information to hand in emergency situations this can lead to a delay in diagnosis and/or treatments - it can mean the patient stays in hospital longer and may even lead to misdiagnosis.

GP Visits/Calls €100.00 If a mother doesn’t have to ring a GP regarding vaccination records, this will save their staff time in having to do this. And reduces risks for the child.

Minimum Combined Saving of

€250 per Patient per Annum

Total Saving of €1.25m for

10,000 Patients (and only half of

them using it!)Total of 1.3 million people in

Ireland with Chronic Conditions -

Do the Maths!

Step 3 - Integrate...

…National Roll OutEasy, Right?

Policy & Charters

Set the Standards

Self-Management

Evaluated Courses

Practical ToolkitsStandardised

Nationally

Collaboration & Partners

National Advisory Boards

Outpatients & Discharge

Reassure & Refer

Charities & Organisations

Rethink & Retrain

Emergency/Out of Hours

Recall & Reiterate

GP, PCCC& Pharmacists

Reinforce & Relate

Educate Empower

EnableEngage

Can this be done?

The Patient is The Only Link

Champions Promoters Engagers

Conversations lead to collaborations…

• Dr Philip Crowley – National Director Quality Improvement & Patient Safety• June Boulger – National Lead Patient & Public Involvement in Acutes• Mayo General Hospital – Chief Pharmacist Blánaid O’Connell, Charlie Meehan• Temple Street Hospital – Grainne Dowdall, Child Health Information Co-ordinator • Dr Joseph Dalton – Digital Health Strategist• Deirdre Munro – CO-Design & Global Village Midwives Founder• RCPI – Dr John Fitzsimons & Dr Peter Lachman• Tim Delaney – Chief Pharmacist Tallaght Hospital• Dr. Peter Sloane –GP WHO GAMA Project – Clinical Programmes and Strategy –• Collaboratively working with the Irish Patients Association, Irish Pharmacy Union, Irish

Carers Association plus all/any other organisations as need arises…

People, not products, are the key to success…

Patient + Professional = Partnership

Benefits For Patient, Carer & Health Care Professional

Medication Management = Medication AdherenceLess Miscommunication = Less ErrorsJoined Decision Making = More ConfidenceHaving Records of History = Less Re-TestingFamily History = Accurate DiagnosisSelf- Management = Less Re-AdmissionsFeeling Listened = More ReassuranceInformed Decisions = Safer StandardsLess Stress - Less Risks -Less Time - Less Fears - Less Costs

Slow and Steady Wins the Race

Going forward…

World Health Innovation

Summit 10th & 11th March UK

“The most exciting breakthroughs of the 21st century will not occur because of technology but because of an expanding concept of what it means to be human”

John Naisbitt, Author & Futurist

Innovate. Validate. Integrate.

We are all here to either get better or to help someone get better.

And one day, our role may be switched to the other side…

Collaboration is KEY.===============================

We Need to Focus on the Now and the Tomorrow Will Happen.

Thank You for Having Me! #hellomynameisolive