Judit Sándor JD. LLM. Ph.D. C VITAEdsps.ceu.edu/sites/pds.ceu.hu/files/profile/field... · 1 Judit...

1

Judit Saacutendor JD LLM PhD Lawyer Professor of Law and Political Science

Office Central European University 1051 Budapest Vigyaacutezoacute F u 2 Hungary

Tel +36-1-327-3083 Email sandorjceuedu _____________________________________________________________________________________________

CURRICULUM VITAE September 15 2016

ACADEMIC EMPLOYMENT

Since 2004 Full Professor at the Legal Studies Political Science and Gender Studies Departments

of the Central European University (CEU Budapest) 2000ndash2004 Associate Professor at the Legal Studies Political Science and Gender Studies

Departments of CEU (member of the faculty since 1993) Since 1998 Department of Legal Studies CEU (faculty member teaching graduate courses) Since 1997 Gender Studies Program CEU (faculty member teaching graduate courses) Since 1996 Postgraduate Institute of Law Eoumltvoumls Loraacutend University Budapest (teaching Civil

Law and Medical Law) 1995ndash2000 Budapest University of Economic Sciences (teaching in the Health Management

stream) 1998 University of CaliforniandashUniversity of Wisconsin Budapest Exchange Program

(JanuaryndashMay) 1995ndash1996 Multidisciplinary Gender Studies Program Eoumltvoumls Loraacutend University teaching

ldquogender and lawrdquo 1993ndash2000 Assistant Professor at the Central European University 1994ndash1996 Haynal Imre University of Health Sciences Budapest (teaching Bioethics) 1991 Semmelweis University of Health Sciences Budapest (adjunct professor of Bioethics)

LEGAL PRACTICE 1991 Simmons amp Simmons London UK (legal internship) 1991 Crown Office Row Temple London UK (legal internship) 1991 University of Postgraduate Studies of Medicine Budapest (guest lecturer) 1986ndash1992 National Health Institute (in-house lawyer legal counsel) EDUCATION

1996 PhD in Political Science and Law (Hungarian Academy of Sciences) Title Role of Professional Ethics in Judicial Decision Making (No 16350)

1992ndash1993 LLM (Central European University) Postgraduate studies on Comparative Constitutional Law

1991 Legal Internship at Simmons amp Simmons London UK (Litigation Department Company Law Department)

1990 McGill University Montreal Quebec Canada visiting fellow at the Postgraduate Centre for Medicine Ethics and Law

1989 Bar Exam (Hungarian legal post-graduate training and license exam)

2

1986 JD (Faculty of Political Sciences and Law Eoumltvoumls Loraacutend University Budapest) OTHER PROFESSIONAL ACTIVITIES

2005ndash Director of the CEU Center for Ethics and Law in Biomedicine (CELAB) 2011ndash Member of the International Advisory Board of DRZE (German Reference Center for

Ethics in the Life Sciences) 2007ndash Member of the Advisory Committee of the European Privacy Institute 1995ndash2011 Member of the National Health Science Council of Hungary (Advisory Board to the

Minister of Health) 2008ndash2009 Member of the Hungarian Genetechnology Commission 2005ndash2009 Chief of the Council of Presidents World Association for Medical Law 2004ndash2005 Chief of Bioethics Section UNESCO Social and Human Sciences Sector 2003ndash2004 Expert on genetics and law at the Advisory Group of the Hungarian Prime Minister 2002ndash2003 Member of the Drafting Group of the IBC on the preparation of an international

instrument on genetic data (Paris UNESCO) 1996ndash2000 Representative and one of the founders of the Hungarian Patientsrsquo Rights Foundation

ldquoSzoacuteszoacuteloacuterdquo 1996ndash1998 Participating as a consultant at the Health Care Legislation Process in Hungary 1991ndash2013 Member of the editorial board of the Lege Artis Medicinae (a medical journal)

Budapest 1991ndash1992 Advisor on bioethics to the Parliamentary Committee on medical law and ethics

FELLOWSHIPS

2013-2014 Global Research Fellow at the NYU New York Law School 2000 Visiting Fellow at the University of Chicago Department of Anthropology and

Department of Law (OctoberndashDecember) 1998 Visiting Fellow at Center for Biomedical Ethics Stanford University California

Program in Genomics Ethics and Society (November) 1993ndash2000 Member of the editorial board of Health Care Analysis (An international journal of

health philosophy and policy Ed David Seedhouse) ISSN 1065-3058 1996 Fall Visiting Fellow at the Maison des Sciences de lHomme Paris France and visiting the

Comiteacute consultatif national deacutethique pour les sciences de la vie et de la santeacute (Mellon Fellowship)

1994ndash1997 Course Director on Human Rights and Medicine at Inter-University Centre Dubrovnik Croatia

1993 Visiting scholar at the Hastings Center (New York) LANGUAGES Hungarian (native) English (highest level state exam) French (upper-intermediate) Italian (intermediate) Spanish (basic) Russian (intermediate passive)

3

MEMBERSHIPS IN COMMITTEES OF INTERNATIONAL AND NATIONAL ORGANIZATIONS Member of the International Advisory Group of DRZE (2011-present) Member of the Board of Trustees National Theatre Hungary (2005-2009)

Member of the five-member Advisory Board of the Council of Europe Euro-Forum on Human Genetics (2002-2003)

Member of the Working Party on Biotechnology (CDBI-Biotech) Council of Europe Strasbourg France

Member of the European Commission Ad Hoc High Level Expert Group on Health Fifth Framework (2000)

National Board of Health Sciences (ETT TUKEB Hungary) Member of the Drafting Group of the International Declaration on the Human Genetic Data

UNESCO (2000-2003) European Society for the Philosophy in Medicine and Health Care Hungarian Society for Bioethics

EUROPEAN UNION SPONSORED RESEARCH PROJECTS

2013-2016 Cell-based regenerative medicine new challenges for EU legislation and governance (EUCelLEX)

2013-2016 Neuro-Enhancement Responsible Research and Innovation (NERRI) 2010ndash2012 European Living Organ Donation (Acronym EULOD) 2008ndash2011 Regenerative medicine in Europe emerging needs and challenges in a global context

(Acronym RemediE) 2008ndash2011 Evaluation of Legislation and Related Guidelines on the Procurement Storage and

Transfer of Human Tissues and Cells in the European Unionndashan Evidence-Based Impact Analysis (Acronym TISSEU) Contract No 202204

2008ndash2009 Development of a Platform for Deliberative Processes on Nanotechnology in the European Consumer Market (Acronym NANOPLAT)

2006ndash2009 Genetic Bio- and DataBanking Confidentiality and Protection of Data Towards a European Harmonisation and Policy (Acronym GeneBanC) SA6-CT-2006-036751-GeneBanC Contract Number 036751

2006ndash2009 Privacy in Law and Ethics in Genetic Data (Acronym PRIVILEGED) 2002ndash2003 STRATA-ETAN GROUP (EU) (The aim of the group was to produce a Report on

methodologies to identify underlying ethical values in Europe in relation to science and technology)

2002ndash2004 Public Understanding of Genetics (Acronym PUG) 2002ndash2004 European Commission Research Project on Privacy in Research Ethics and Law

(Acronym PRIVIREAL) 1998ndash1999 Research on Human Embryos Meetings in Verona October 1998 Athens April 1999 1994ndash1996 European Commission Research Project of Euroscreen Meetings in Manchester 1994ndash1995 European Commission Research Project on Fertility Infertility and the Human

Embryo Meetings in Bath Barcelona Frankfurt Lisbon

4

PUBLICATIONS

I Books 1 Saacutendor Judit (2013) edited Studies in Biopolitics Budapest Center for Ethics and Law in Biomedicine 1-255 ISBN 978-963-88538-9-9 (Foreword and Introduction is written by Judit Saacutendor 1-16pp) 2 Saacutendor Judit with Aacutedaacuteny Roacuteza and Angela Brand (2013) edited Neacutepegeacuteszseacuteguumlgyi genomika (Public Health Genomics) Budapest Medicina 9-292 ISBN 978-963-226-388-5 3 Saacutendor Judit with Christian Lenk and Bert Gordijn (2011) (eds) Biobanks and Tissue Research The Public the Patient and the Regulation Springer httpwwwbokuscombok9789400716728biobanks-and-tissue-research 4 Saacutendor Judit (ed) (2009) Perfect copy Law and Ethics of Reproductive Medicine Budapest CEU Center for Ethics and Law in Biomedicine 1ndash175 httpwwwlibrarythingcomwork9580433 ISBN 978-963-9776-75-3 5 Saacutendor Judit (2003) Medical Law Hungary International Encyclopedia of Laws Series The Hague London New York Kluwer Law International 1-148pp 6 Saacutendor Judit (ed) (2004) Society and Genetic Information Codes and Laws in the Genetic Era Budapest and New York CEU Press (Introduction is written by Judit Saacutendor) 1-422pp httpwwwgooglecombookshl=huamplr=ampid=TqXTb0mcOxUCampoi=fndamppg=PA9ampdq=Judit+Sandor+Society+and+genetic+Informationampots=g255-4CZL-ampsig=IcbRep8Z8fGin2HtwJWRwT-N7Agv=onepageampqampf=false 7 Saacutendor Judit and Andre den Exter (eds) (2003) Frontiers of the European Health Care Law A Multidisciplinary Approach Rotterdam Erasmus University Press ISBN 90-807487-2-2 219pp (Introduction is written by the editors the volume includes a chapter by Judit Saacutendor ldquoData protection in Health Care Beyond Biomedical Userdquo pp76ndash96) 1-219 pp 8 Saacutendor Judit (1997) Gyoacutegyiacutetaacutes eacutes iacuteteacutelkezeacutes Orvosi műhiba-perek Magyarorszaacutegon (Medicine and Jurisprudence Medical Malpractice Litigation in Hungary) Budapest Medicina 1-402 pp 9 Saacutendor Judit (1992) Abortusz eacutes jog (Abortion and Law) Budapest Literatura Medica 1-204 pp 10 Saacutendor Judit with Ferenc Barta (1990) Egeacuteszseacuteguumlgyi teveacutekenyseacuteg ndash Polgaacuteri jogi felelősseacuteg (Health Care Activity ndash Civil Liability) Budapest OIK

5

II Chapters in Books 1 Judit Saacutendor (2016) Basic pillars of legal thinking on the human body in the Hungarian medical law dignity self-determination and the principle of non-commodification in Brigitte Feuillet-Liger Geneviegraveve Schamps Kristina Orfali (eds) Protecting the human body legal and bioethical perspectives from around the world 169-185 Brussels Bruylant 2 Assya Pascalev JKristof Van Assche Kristof Van Assche Judit Saacutendor F Ambagtsheer W Weimar (edited) Protection of Persons Targeted or Trafficked for the Purpose of Organ Removal Lengerich Pabst Science Publishers 2016 6 p Trafficking in Human Beings for the Purpose of Organ Removal Results and Recommendations (ISBN978-3-95853-121-5) 3 Judit Saacutendor (2015) Consistency of the regulation on assisted reproduction Is it a

missing element of reproductive justice in Venetia Kantsa Giulia Zanini Lina

Papadopoulou (eds) (2015) (In)Fertile Citizens Anthropological and Legal Challenges

of Assisted Reproduction Technologies Univesity of the Aegean (In)FERCIT ISBN

978-618-82208-5-0 pp 23-39

4 Judit Sandor (2015) The Ethical and Legal Analysis of Embryo Preimplantation Testing Policies in Europe in E Scott Sills (ed) Screening the Single Euploid Embryo Molecular Genetics in Reproductive Medicine Dordrecht Springer p 353-367 5 Judit Saacutendor (2015) Commodified Bodies Is It a Gender Issue In New Cannibal Markets Globalization and Commodification of the Human Body edited by Jean-Daniel Rainhorn and Samira El Boudamoussi Paris MSH 6 Judit Saacutendor (2014) Reconciling traditional families with in vitro assistance The Hungarian Legal Framework on Kinship in the Light of Biomedical Intervention In Brigitte Feuillet-Liger Theacuterese calus Kristina Orfali (2014) Reproductive Technology and Changing Perceptions of Parenthood around the World Brussels Bruylant 149-163 7 Judit Saacutendor (2014) Concilier les familles traditionnelles avec la feacutecondation in vitro le cadre jurididique hongrois de la filiation agrave la lumiegravere des interventions biomeacutedicales in Brigitte Feuillet-Liger Maria-Claudia Crespo-Brauner eds (2014) Les incidences de la biomeacutedecine sur la paranteacute pp 145-159 Brussels Bruylant (in French) 8 Judit Saacutendor (2013) Demographic Influences on the Regulation of the Female Body in Hungary in Brigitte Feuillet-Liger-Kristina Orfali-Theacuterese Callus eds (2013) The Female Body A Journey Through law Culture and Medicine pp 115-131 Brussels Bruylant 9 Judit Saacutendor (2013) Influences de lrsquo argument deacutemographique sur la reacuteglementation du corps feacuteminin en Hongrie in Brigitte Feuillet-Liger-Kristina Orfali-Theacuterese

6

Callus eds (2013) `The Female Body A Journey Through law Culture and Medicine pp 115-131 Brussels Bruylant (in French) 10 Judit Saacutendor (2013) Protecting Persons v Protecting Humans in Biobanks in Marion Viola de Azevedo Cunha Norberto Nuno Gomes de Andrade Lucas Lixinski Luacutecio Tomeacute Feacuteteira (ed) 2013 New technologies and Human Rights Surrey Ashgate pp 143-169 11 Judit Saacutendor and Maacuterton Varju (2013) Az embrionaacutelis őssejteken veacutegezhető kutataacutesok eacutes az ezeken alapuloacute talaacutelmaacutenyok etikai aspektusai in Saacutendor Kőmuumlves Erzseacutebet Roacutezsa (2013) A szemeacutely bioetikai kontextusa Debrecen Debrecen University Press ISSN 2064-034X pp 98-134 12 Judit Saacutendor (2013) Ethical and legal debates on a dignified end-of-life and the role of the family in Hungary in Brigitte Feuillet Kristina Orfali Theacuteregravese Callus Bruxelles Bruylant pp 211-221 ISSN 2033-3498 13 Judit Saacutendor Violeta Beširević Enikő Demeacuteny George Tudor Florea Natalia Codreanu (2013) Organ Trafficking Organ Trade Recommendations for a More Nuanced Legal Policy in F Ambagstsheer W Weimar (eds) The EULOD Project Living Organ Donation in Europe Results and Recommendations Lengerich Pabst Science Publisher pp 147-175 14 Judit Saacutendor with Michaela Frunza(1) Enikő Demeacuteny and Betarice Ioan (2013) To share or not to share your door status on Facebook in Gurch Randhawa and Silke Schicktanz (eds) Public Engagement in Organ Donation and Transplantation Lengerich Pabst Science Publishers pp 27-36 15 Judit Saacutendor and Maacuterton Varju (2013) The Multiplicity of Norms The Bioethics and Law of Stem Cell Patents in Andrew Webster (ed) The Global Dynamics of Regenerative Medicine A Social Critique Basingstoke Palgrave Macmillan 169-193 16 Judit Saacutendor (2013) Deacutebats juridiques et eacutethiques sur la vie digne et sur lrsquoeuthanasie en Hongrie in Brigitte Feuillet-Liger (2013) Les proches et la fin de vie meacutedicaliseacutee Bruxelles Bruylant 221-231 17 Judit Saacutendor (2012) Bioethics and Basic Rights Persons Humans and the Boundaries of Life in Michel Rosenfeld Andraacutes Sajoacute (eds) The Oxford Handbook of Comparative Constitutional Law Oxford Oxford University Press 1142-1165 18 Judit Saacutendor (2012) Adolescents and medical law in Hungary in Brigitte Feuillet-Liger Ryuichi Ida Therese Callus (eds) Adolescents Autonomy and medical treatment Bruxcelles Bruylant (in English) 189-199 19 Judit Saacutendor (2012) Az emberi test fogalma eacutes aacuternyalatai a biotechnoloacutegiai jogi szabaacutelyozaacutesaacutenak tuumlkreacuteben in Tattai Levente Pogaacutecsa Anett (szerk) Pro Vita et Scientia Jobbaacutegyi Gaacutebor 65 szuumlleteacutesnapjaacutera Budapest Szent Istvaacuten taacutersulat pp 265-279

7

20 Judit Saacutendor with Petra Baacuterd (2011) Anonymisation and Pseudonymisation as Means of Privacy Protection Second International Workshop of the TissEU Project in Katharina Beier Silvia Schnorrer Nils Hoppe Christian Lenk (eds) The Ethical and Legal Regulation of Human Tissue and Biobank Research in Europe Proceedings of the TissEU Project Goumlttingen Universitaumltverlag 25-34 httpwebdocsubgwdgdeuniverlag2011tiss_eu_bookpdf 21 Judit Saacutendor (2011) Az eutanaacutezia mint politikai keacuterdeacutes (Euthanasia as a Political Issue) In Mihaacutely Filoacute (ed) Paacuterbeszeacuted a halaacutelroacutel Eutanaacutezia a jogrend peremeacuten (Dialogue about Death Euthanasia on the Peripheries of the Legal System) Budapest Literatura Medica Kiadoacute pp 83ndash95 (Book chapter in Hungarian) 22 Judit Saacutendor with Petra Baacuterd (2011) Anonymity and Privacy in Biobanking in Saacutendor Judit with Christian Lenk and Bert Gordijn (2011) (eds) Biobanks and Tissue Research The Public the Patient and the Regulation Springer 213-230 23 Judit Saacutendor (2011) Lrsquoadoloescent et le droit meacutedical en Hongrie in Brigitte Fuillet-Liger Ryuichi Ida (eds) Adolescent et Acte Meacutedical Regards Croiseacutes Bruxelles Bruylant (in French) 195-205 24 Judit Saacutendor (2010) Anonymity in Assisted Reproduction Gender Equality and a Pronatal Reproductive Policy in Hungarian Law In Brigitte Feuillet-Liger Kristina Orfali and Theacuteregravese Callus (eds) Who Is My Genetic Parent Donor Anonymity and Assisted Reproduction A Cross-Cultural Perspective Brussels Bruylant 199-211 25 Judit Saacutendor (2009) From Private to Public Legal Concepts of the Right to Privacy and Ownership in the Regulation of Biobanks In Kris Dierickx and Pascal Borry (eds) New Challenges for Biobanks Ethics Law and Governance Antwerp Intersentia pp 123ndash136 26 Judit Saacutendor (2009) Reacuteglementation libeacuterale et focus sur lrsquoenfant La procreacuteation meacutedicalement assisteacutee en Hongrie In Enric Porqueres i Geneacute (ed) Deacutefis contemporains de la paranteacute Paris EHESS pp 107ndash124 27 Judit Saacutendor (2009) A Retoacuterica Legal Em Torno da Reproduccedilatildeo (Legal Rhetoric of Reproduction) In Susana Silva-Luisa Veloso (ed) Representaccedilotildees juriacutedicas das tecnologias reprodutivas contributos para uma reflexatildeo (Legal Representation of New Reproductive Technologies) Porto UP Press pp 21ndash46 (Book chapter in Portuguese) 28 Judit Saacutendor (2009) Introduction In Judit Saacutendor (ed) Perfect Copy Law and Ethics of Reproductive Medicine Budapest Center for Ethics and Law in Biomedicine pp 7ndash18

29 Judit Saacutendor (2009) Emberi jogok az orvosbioloacutegia teruumlleteacuten A nemzetkoumlzi jog szerepe az emberi jogok eacutes a bioetikai koumlzeledeacuteseacuteben (Human Rights in the Field of Biomedicine The Role of International Law in Bringing Human Rights and Bioethics Closer) In Gyoumlrgy Viraacuteg (ed) OKRI Szemle Budapest Orszaacutegos Kriminoloacutegiai Inteacutezet pp 124ndash149

8

30 Judit Saacutendor (2008) Anonymat dans les proceacutedures de pocreacuteation meacutedicalement assisteacutee Eacutegaliteacute des sexes et vision pronatale dans la reacuteglementation hongroise (Anonymity in the procedures of assisted reproduction) In Brigitte Feuillet-Liger (ed) Procreacuteation meacutedicalement assisteacutee et anonymat Panorama international Collection droit bioeacutethique et socieacuteteacute No 1 Bruxelles Bruylant pp 203ndash215 (Book chapter in French) 31 Judit Saacutendor with Balaacutezs Raacutetai (2008) IKT-implantaacutetumok Az ember-szaacutemiacutetoacutegeacutep kommunikaacutecioacute taacutevlatai (ICT Implants ndash Prospects of Communication between Humans and Computers) In Doumlmoumllki Baacutelint (ed) Eacutegen-Foumlldoumln Informatika Az informaacutecioacutes taacutersadalom technoloacutegiai taacutevlatai (Informatics Everywhere Technological Prospects of Information Society) Budapest Nemzeti Hiacuterkoumlzleacutesi eacutes Informatikai Tanaacutecs Typotex pp 317ndash333

32 Judit Saacutendor 2007) Body Immortal In Jennifer Gunning Soslashren Holm (eds)

Ethics Law and Society Aldershot Ashgate pp 123ndash135

33 Judit Saacutendor (2007) New Dimensions of Bioethics in the Universal Declaration on Bioethics and Human Rights Response to Roberto Andorno In Chris Gastmans Kris Dierickx Herman Nys Paul Schotsmans (eds) New Pathways for European Bioethics Antwerpen Intersentia pp139ndash160 ISBN 978-905095-670-3

34 Judit Saacutendor (2006) Az emberi meacuteltoacutesaacuteg tiszteleteacuteről a bioetikaacuteban eacutes az orvosbioloacutegiai jogban (On Respecting Human Dignity in Bioethics and Biomedical Law) In Troacutecsaacutenyi Laacuteszloacute (ed) A mi alkotmaacutenyunk (Our Constitution) Budapest Complex Kiadoacute pp 355ndash357 35 Judit Saacutendor (2006) Jogi felelősseacuteg az egeacuteszseacuteguumlgyi teveacutekenyseacutegeacutert (Liability for Providing Health Services) In Attila Olaacuteh and Csaba Gaaacutel (eds) Hibaacutek eacutes szoumlvődmeacutenyek a hasi sebeacuteszetben (Malpractice and Complications in Abdominal Surgery) Budapest Medicina Koumlnyvkiadoacute pp 63ndash70 36 Judit Saacutendor (2005) Reproduction and Genetics Pragmatic and Moral Elements in the Hungarian Biomedical Law In Yearbook of European Medical Law Lidingouml Institute of Medical Law pp 112ndash125 ISBN 91-7864-194-2 37 Judit Saacutendor (2005) Research Ethics Committees in Hungary In Deryck Beyleveld David Townend Jessica Wright (eds) Research Ethics Committees Data Protection and Medical Research in European Countries Ashgate Aldershot pp 93ndash107 38 Judit Saacutendor (2004) Protection of Health Care Data in Hungarian Law In Deryck Beyleveld David Townend Seacutegolegravene Rouilleacute-Mirza Jessica Wright (eds) Implementation of the Data Protection Directive in Relation to Medical research in Europe Ashgate Aldershot pp 157ndash175 39 Judit Saacutendor (2004) Cells Tissues and Health Care Data In Andreacute den Exter (ed) EU Accession and its Consequences for Candidate Countriesrsquo Health Systems Rotterdam Erasmus University Press pp 57ndash71

9

40 Judit Saacutendor (2003) Society and Genetic Information Contemporary Challenges in Biomedical Law In Ethics Science and Society Bioethics Consultative Committee Malta pp 12ndash30 41 Judit Saacutendor (2003) Data Protection in Health Care Beyond Biomedical Use In Andre den Exter and Judit Saacutendor (eds) Frontiers of the European Health Care Law A Multidisciplinary Approach Rotterdam Erasmus University Press pp76ndash96 42 Judit Saacutendor (2004) Ombudspersons and Patientsrsquo Rights Representatives in Hungary In Lars Fallberg and Stephen Mackenney (ed) Protecting Patientsrsquo Rights A Comparative Study of the Ombudsman in Healthcare Abingdon Oxon Radcliffe Medical Press pp 55ndash77 43 Judit Saacutendor (2002) Genetic Data Old and New Challenges for Data Protection In Jozef Glasa (ed) Ethics in Human Genetics Challenges of the (Post)Genomic Era Bratislava CharisndashIMEB Foundation pp 89ndash99 44 Judit Saacutendor (2001) Parental Identification and Genetic Fingerprinting lsquoSecret or Liesrsquo In Bioethics and the Rights of the Child UNESCO pp 69ndash81 45 Judit Saacutendor (2000) Orvosi jog- Egeacuteszseacuteguumlgyi Jog az ezredforduloacuten In Zoltaacuten Bula et al (eds) Anno 2000 Orvostudomaacuteny Magyarorszaacutegon Budapest Springer Tudomaacutenyos Kiadoacute pp 151ndash157 46 Judit Saacutendor (2000) The Hungarian Legislative Approach to Assisted Procreation An Attempt at Transparency In Jennifer Gunning (ed) Assisted Conception Aldershot Ashgate Burlington Dartmouth pp 139ndash153 47 Judit Saacutendor (2000) Human Genome Analysis from Ethical and Legal Perspectives In International Conference of the Council of Europe on Ethical Issues arising from the Application of Biotechnology Council of Europe Publishing pp 159ndash165 48 Judit Saacutendor (1999) Genetic Testing Genetic Screening and Privacy In Ruth hadwick et al (eds) The Ethics of Genetic Screening Aldershot Kluwer Academic Publishers pp 181ndash190 49 Judit Saacutendor (1998) A szabaacutelyozaacutes csapdaacutei eacutes dilemma Variaacutecioacutek egy leendő toumlrveacutenyre (Traps and Dilemmas of Regulation Variations of a Draft Bill) In Halmai Gaacutebor (ed) A haacutetraacutenyos megkuumlloumlnboumlzteteacutes tilalmaacutetoacutel a pozitiacutev diszkriminaacutecioacuteig (From the Prohibition of Discrimination to Affirmative Action) Budapest INDOK pp 49ndash71 (Book chapter in Hungarian) 50 Judit Saacutendor (1997) Neue Legislative Ansatze fuumlr Patientenrechte in Ungarn In Christoph Kranich and Jan Boumlcken (eds) Patientenrechte und Patientenunter-stuumltzung in Europa Anregungen und Ideen fuumlr Deutschland Baden-Baden Nomos Verlag pp 10ndash21 (Book chapter in German)

10

51 Judit Saacutendor (1996) Legal Status of the Human Embryo Overview of the Hungarian Legislation In Donald Evans (ed) Conceiving the Embryo Ethics Law and Practice in Human Embryology The HaguendashLondonndashBoston Martinus Nijhoff Publishers pp 269ndash276 52 Judit Saacutendor (1996) Legal Approaches to Motherhood in Hungary In Donald Evans and Neil Pickering (eds) Creating the Child The Ethics Law and Practice of Assisted Procreation The HaguendashLondonndashBoston Martinus Nijhoff Publishers pp 157ndash166

III Selected Articles in Professional Journals (Not a complete list) 1 Marton Varju Judit Sandor (2016) ldquoCreating European Markets through Regulation The Case of the Regulation on Advanced Therapy Medicinal Productsrdquo in European Law Review Issue 1 February 2016 2 Judit Saacutendor (2014) Right to Health and the human Organ A Right as a Consequence PRAVNI ZAPISI God V br 2 (2014) UDK 617-007843340(439) 2014 Pravni fakultet Univerziteta Union 3 Judit Saacutendor with Domjaacuten Andrea(1) and Kakuk Peacuteter (2014) 50 eacuteves a Helsinki Nyilatkozat Kommentaacuter a 2013-as moacutedosiacutetaacuteshoz in LAM 201424(3)152ndash158 4 Judit Saacutendor with Maacuterton Varju (2012) Patenting Stem Cells in Europe The Challenge of Multiplicity in European Union Law in Common Market Law Review Common Market Law Review Vol 3 2012 available at SSRN httpssrncomabstract=2072255 5 Judit Saacutendor et al (2011) The Case of Biobanks J Med Ethics doi101136jme2010041632 Law ethics and medicine The case of biobank with the law between a legal and scientific fiction in Journal of Medical Ethics 6 Judit Saacutendor with Graeme Laurie Pierre Mallia et als (2010) Managing Access to Biobanks How Can we Reconcile Individual Privacy and Public Interests in Genetic Research in Medical Law International 2010 Vol 10 pp 315ndash337 httpwwwmedlicoukContents_Vol10No42010html 7 Judit Saacutendor (2010) Biobankok Sikeres fikcioacute a tudomaacuteny szolgaacutelataacuteban (Biobanks A Successful Fiction in the Service of Science) JURA vol 16 no 1 116ndash126 httpjuraajkptehuJURA_2010_1pdf 8 Judit Saacutendor (2008) Kutataacutesi alanyboacutel alkotoacutetaacuters (From Research Subject to Coauthor) In Lege Artis Medicinae vol 8 no 4 338ndash342 httpwebceuhucelab338-341apdf 9 Judit Saacutendor (2008) Human Rights and Bioethics Competitors or Allies The Role of International Law in Shaping the Contours of a New Discipline Medicine and Law vol 27 15ndash28

11

10 Judit Saacutendor with Guido van Steendam Andraacutes Dinnyeacutes Jacques Mallet et al (2006) Report of the Budapest Meeting 2005 ldquoIntensified Networking on Ethics of Science The Case of Reproductive Cloning Germline Gene Therapy and Human Dignityrdquo Science and Engineering Ethics vol 12 no 4 pp 731ndash793 httpwwwspringerlinkcomcontenta252517v63566213fulltextpdf 11 Judit Saacutendor (2006) Body that Matters Journal de meacutedecine legale droit medical victimiologie dommage corporel vol 49 no 2ndash3 (MarsndashMai 2006) p 59 12 Judit Saacutendor (2006) A test halhatatlansaacutega Bioetikai eacutes jogi dilemmaacutek a XXI szaacutezadban (The Immortability of the Body Bioethical and Legal Dilemmas in the 21st Century) Fundamentum vol 10 no 1 pp 32ndash45 http15718118113dokuk06-01-03pdf 13 Judit Saacutendor (2006) Bioetika eacutes emberi jogok Az emberi jogok uacutej generaacutecioacuteja (Bioethics and Human Rights Towards a New Generation of Human Rights) Acta Humana vol 17 no 1 pp 17ndash29 14 Judit Saacutendor Laacuteszloacute Majtheacutenyi Andraacutes Juhos and Andraacutes Vaacuteradi (2006) Kerekasztal-beszeacutelgeteacutes a genetikai kutataacutes eacutes a biztosiacutetaacutes viszonyaacuteroacutel (Round-Table Talk on Genetic Research and Insurance) In Istvaacuten Hajduacute (ed) Biztosiacutetaacutesi Szemle vol 52 no 9 pp 15ndash34 15 Judit Saacutendor (2005) A teraacutepiaacutetoacutel a szelekcioacuteig Jogi eacutes etikai vitaacutek a reprodukcioacutes beavatkozaacutesok uacutej moacutedszereiről (From Therapy to Selection Legal and Ethical Debates on the New Methods of Assisted Reproduction) Acta Humana vol 16 no 4 pp 3ndash20 16 Judit Saacutendor (2003) A genetikai adatok veacutedelme (Protection of Human Genetic Data) Acta Humana vol 14 no 3 pp 3ndash21 17 Judit Saacutendor (2002) Reproduction Self and State Social Research vol 69 no 1 (Spring 2002) pp 115ndash142 18 Judit Saacutendor (2002) Genomika eacutes jog (Genomics and Law) Magyar Tudomaacuteny (Journal of the Hungarian Academy of Sciences) vol 47 no 5 pp 616ndash626 19 Judit Saacutendor (2001) XXI szaacutezadi emberreceptek jogi szemmel (Recipes for Humans from a Legal Perspective in 21st Century) Eacutelet eacutes Irodalom December 2001 20 Judit Saacutendor (2001) Nederland door Hongaaerse ogen Studiebezoek aan Nederland Intermezzo 62001 Utrecht 21 Judit Saacutendor (2000) Geacutenkeacuteszletuumlnkkel magunk is fontos titokhordozoacutekkaacute vaacuteltunk (Does Our Human Genome Carry Secrets) Replika 41ndash42 (2000 november) pp 50ndash52 22 Judit Saacutendor (2000) Lombikbeacutebik eacutes Dolly utaacuten Felfedhetjuumlk-e genetikai szerencskaacutertyaacuteinkat a biztosiacutetaacutesi piacon (After Test-Tube Babies and Dolly Can We

12

Reveal Our Genetic Lottery) Neacutepszabadsaacuteg December 9 2000 (Heacutetveacutege melleacuteklet Weekend Edition) 23 Judit Saacutendor (2000) A leacutet elviselhetetlen neheacutezseacutege A ldquokoumlnnyűrdquo halaacutel eacutes a jog (The Unbearable Heaviness of Being Euthanasia and the Law) Magyar Narancs December 21 2000 pp 74ndash76 24 Judit Saacutendor (2000) Reproductive Rights in Hungarian Law A New Right to Assisted Procreation Health and Human Rights vol 4 no 2 pp 196ndash219 (Harvard School of Public Health Center for Health and Human Rights) 25 Judit Saacutendor (1999) Megrengetik-e a genetika uacutej felfedezeacutesei hagyomaacutenyos emberi jogi szemleacuteletuumlnket (Do We Need to Reexamine the Traditional Human Rights Perspectives in Light of New Discoveries in Genetics) Vilaacutegossaacuteg vol 40 no 2 pp 42ndash59 26 Judit Saacutendor (1999) From Ministry Orders towards the Constitutional Debate Lessons drawn from the Past 50 Years of Abortion Laws in Hungary In Rebecca J Cook and Bernard M Dickens (eds) Legal and Ethical Aspects of Reproductive and Sexual Health in Central Eastern Europe Medicine and Law special issue vol 18 pp 389ndash409 27 Judit Saacutendor (1998) Uacutejabb eacutervek a terhesseacutegmegszakiacutetaacutes alkotmaacutenyossaacutegaacuteroacutel (New Arguments for the Constitutionality of Abortion) Fundamentum vol 2 no 3 pp 121ndash135 28 Judit Saacutendor (1997) A betegek jogainak kodifikaacutelaacutesaacuteroacutel (On Codifying Patientsrsquo Rights) Fundamentum vol 1 no 1 pp 87ndash100 29 Judit Saacutendor (1996) A szemeacutelyhez fűződő jogok veacutedelme az egeacuteszseacuteguumlgyi ellaacutetaacutesban (Protecting the Rights of the Person in Health Care Service) Lege Artis Medicinae vol 6 no 9ndash10 pp 592ndash596 30 Judit Saacutendor (with Andraacutes Sajoacute) (1996) A gyoacutegyiacutethatatlannak veacutelt lsquohalaacutelosrsquo beteg jogi helyzete a teacuteteles jog tuumlkreacuteben (The Legal Status of the lsquoTerminally Illrsquo under Hungarian law) Magyar Tudomaacuteny no 7 pp 771ndash790 31 Judit Saacutendor (with Andraacutes Sajoacute) (1996) The Legal Status of the lsquoTerminally Illrsquo under Hungarian law Acta Juridica Hungarica vol 37 no 1ndash2 pp 1ndash21 32 Judit Saacutendor (1996) Veszeacutelyes munkahelyi viszonyok avagy női ldquofoglalkozaacutesi aacutertalmakrdquo (Dangerous Liaisons at the Workplace or the Harmful Professional Relations of Women) Lege Atis Medicinae vol 6 no 5ndash6 pp 380ndash384 33 Judit Saacutendor (1996) A humaacuten reprodukcioacutes orvosi eljaacuteraacutesok jogi szabaacutelyozaacutesaacuteroacutel (Regulating Assisted Procreation) Acta Humana vol 25 pp 29ndash46 34 Judit Saacutendor (1995) Az eacutelet vagy az emberi meacuteltoacutesaacuteg (Life or Human Dignity) Vilaacutegossaacuteg vol36 no7 pp 41ff

13

35 Judit Saacutendor (1995) A gyermekek vagy felnőttek jogai (The Rights of Children or the Rights of Adults) Lege Artis Medicinae vol5 no8 36 Judit Saacutendor (1995) Judicial Monitoring of Psychiatric Confinement and Therapy East European Constitutional Review vol 4 no 4 pp 83 37 Judit Saacutendor (1994) Rights to Health Care A Review European Philosophy of Medicine and Health Care vol 2 p 3 38 Judit Saacutendor (1994) Mentegetőzeacutes helyett (Instead of Excuses The Legal Concept of Medical Malpractice) Magyar Orvos vol 2 no 3 (March 1994) pp 25ff 39 Judit Saacutendor (1994) Az oumlnrendelkezeacutesi jog korlaacutetozaacutesa a gyoacutegyiacutetaacutesban (Limitations on the Right to Self-Determination in Medicine) Lege Artis Medicinae vol 4 no 8 pp 798ff 40 Judit Saacutendor (1994) Hogyan eacuterveacutenyesuumllhet a hozzaacutejaacuterulaacutes elve a magyar egeacuteszseacuteguumlgyi rendszerben (How Could Be the Principle of Self-Determination Enforced in the Hungarian Health Care System) Lege Artis Medicinae vol 4 no 1 pp 84ndash87 41 Judit Saacutendor (1994) Kockaacutezatvaacutellalaacutes A szokaacutesos műteacuteti kockaacutezat minősiacuteteacutese az igazsaacuteguumlgyi orvosszakeacutertők eacutes a biacuteroacutesaacuteg iacuteteacutelekezeacutesi gyakorlataacuteban I-II-III reacutesz (Taking Risks The Legal Evaluation of Material Risk in Medical Interventions) Magyar Orvos AugustndashSeptemberndashOctoberndashNovember 42 Judit Saacutendor (1993) Van-e jogunk a halaacutelhoz Koumlzeacutep-euroacutepai koumlrkeacutep (Do we Have a Right to Die Central European Overview) Lege Artis Medicinae vol 3 no 9 pp 900ff 43 Judit Saacutendor (1993) Abortion New Law in Hungary Bulletin of Medical Ethics 85 (February 1993) pp 24ndash25 44 Judit Saacutendor (1992) Gyoacutegyiacutetaacutes eacutes igazsaacutegszolgaacuteltataacutes (Health Care and Justice) Lege Artis Medicinae vol 2 no 8 pp 795ndash797 45 Judit Saacutendor (1992) A WHO Regionaacutelis Irodaacutejaacutenak szimpoacuteziuma beszaacutemoloacute (Report on the Symposium of the WHO Regional Office) Lege Artis Medicinae vol 2 no 3 p 298 46 Judit Saacutendor (1991) Az alternatiacutev gyoacutegyaacuteszat jogi szabaacutelyozaacutesaacuteroacutel (On Regulating Alternative Medicine) Lege Artis Medicinae vol 1 no 5 pp 1066ndash1068 47 Judit Saacutendor (1991) Az egeacuteszseacuteguumlgyi inteacutezmeacuteny felelősseacutege a gyoacutegyiacutetaacutes minőseacutegeacuteeacutert (Liability of the Hospitals for Quality of Health Care) Lege Artis Medicinae vol 1 no 4 pp 269ndash271 48 Judit Saacutendor (1991) A Missing Sentence Bulletin of Medical Ethics March 1991

14

49 Judit Saacutendor (1990) Leacuteteznek-e beteg-jogok (Do Patients Have Specific Rights) Medjuris-fuumlzetek 50 Judit Saacutendor (1988) Ceacutelszerűseacuteg vagy toumlrveacutenyesseacuteg (Utility or Legality) Orvosegyetemcedil vol 32 no11

CELAB PUBLICATIONS

Saacutendor Judit and Petra Baacuterd (2009) The Legal Regulation of Biobanks National Report Hungary CELAB Paper Series No 1 Budapest CEU CELAB

Saacutendor Judit Aikaterini Drakopoulou and Petra Baacuterd (2009) The Legal Regulation of Biobanks National Report Greece CELAB Paper Series No 2 Budapest CEU CELAB

Saacutendor Judit Enikő Demeacuteny and Petra Baacuterd (2009) The Legal Regulation of Biobanks National Report Lithuania CELAB Paper Series No 3 Budapest CEU CELAB

Saacutendor Judit and Petra Baacuterd (2009) The Legal Regulation of Biobanks National Report Latvia CELAB Paper Series No 4 Budapest CEU CELAB

Saacutendor Judit and Petra Baacuterd (2009) The Legal Regulation of Biobanks National Report Estonia CELAB Paper Series No 5 Budapest CEU CELAB

Saacutendor Judit Judit Schveacuteger and Petra Baacuterd (2009) The Legal Regulation of Biobanks National Report Malta CELAB Paper Series No 6 Budapest CEU CELAB

Saacutendor Judit and Petra Baacuterd (2009) The Legal Regulation of Biobanks National Report Cyprus CELAB Paper Series No 7 Budapest CEU CELAB

Saacutendor Judit Marcin Sliwka and Petra Baacuterd (2009) The Legal Regulation of Biobanks National Report Poland CELAB Paper Series No 8 Budapest CEU CELAB

Saacutendor Judit Enikő Demeacuteny and Petra Baacuterd (2009) The Legal Regulation of Biobanks National Report Romania CELAB Paper Series No 9 Budapest CEU CELAB

Saacutendor Judit Christiana Mauro and Petra Baacuterd (2009) The Legal Regulation of Biobanks National Report Italy CELAB Paper Series No 10 Budapest CEU CELAB

Saacutendor Judit and Petra Baacuterd (2009) The Legal Regulation of Biobanks National Report Czech Republic CELAB Paper Series No 11 Budapest CEU CELAB

Saacutendor Judit Petra Baacuterd (2010) The Legal Regulation of Biobanks National Report Slovenia CELAB Paper Series No 12 Budapest CEU CELAB

Saacutendor Judit Judit Schveacuteger and Petra Baacuterd (2010) The Legal Regulation of Biobanks National Report Slovakia CELAB Paper Series No 13 Budapest CEU CELAB 1 CELAB Annual Report 2005-2006 Editor Judit Sandor Executive editor Eniko Demeny Budapest AduPrint kft ISSN 1992-4038 Annual Report 2005-2006pdf 2 CELAB Annual Report 2006-2007 Editor Judit Sandor Executive editor Eniko Demeny Budapest AduPrint kft ISSN 1992-4038 Annual_Report_2006-2007pdf

15

3 CELAB Annual Report 2007-2008 Editor Judit Sandor Executive editor Eniko Demeny Budapest AduPrint kft ISSN 1992-4038 Annual_Report_2007-2008pdf 4 CELAB Annual Report 2008-2009 Editor Judit Sandor Executive editor Eniko Demeny Budapest AduPrint kft ISSN 1992-4038 Celab_Report_2008-2009pdf 5 CELAB Annual Report 2008-2009 Editor Judit Sandor Executive editor Eniko Demeny Budapest AduPrint kft ISSN 1992-4038 Celab_Report_2009-2010pdf 6 CELAB Annual Report 2009-2010 Editor Judit Sandor Executive editor Eniko Demeny Budapest AduPrint kft ISSN 1992-4038 7 CELAB Annual Report 2010-2011 Editor Judit Sandor Executive editor Eniko Demeny Budapest AduPrint kft ISSN 1992-4038 8 CELAB Annual Report 2011-2012 Editor Judit Sandor Executive editor Eniko Demeny Budapest AduPrint kft ISSN 1992-4038 9 CELAB Annual Report 2012-2013 Editor Judit Sandor Executive editor Eniko Demeny Budapest AduPrint kft ISSN 1992-4038 10 CELAB Annual Report 2013-2014 Editor Judit Sandor Executive editor Eniko Demeny

16

Budapest AduPrint kft ISSN 1992-4038 11 Bioetika az UNESCO-ban Szoumlveggyűjtemeacuteny Center for Ethics and Law in Biomedicine Budapest 2008 ISSN 978-963-97714-3-8 pp 1-28 in Hungarian 12 UNESCO i bioetika Zbirka Osnovnih dokumenta Center for Ethics and Law in Biomedicine Budapest 2008 ISBN 978-96387714-6-9 pp 1-28in Croatian 13 Bioetika v UNESCO Zaacutekladniacute Texty Center for Ethics and Law in Biomedicine Budapest 2008 pp 1-16 in Czech 14 Lrsquo UNESCO e la BioeticaI testi fondamentali Center for Ethics and Law in Biomedicine Budapest 2008 pp 1-28 In Italian 15 УНЕСКО И БИОЕТИКΑ ЗИРКΆ ОСНОВИХ ДОКУМЕНАТА Center for Ethics and Law in Biomedicine Budapest 2008 pp 1-28 In Serbian CONFERENCES LECTURES PAPERS DELIVERED AT CONFERENCES AND WORKSHOP MEETINGS IN

2001ndash2015 (NOT A FULL LIST) Approximately 200 papers were presented in different workshops and conferences on health care on medical law and on human rights (Barcelona Bonn Bratislava Brussels Budapest Dubrovnik Hamburg Helsinki Jerusalem Kyoto Maceioacute Manchester Montreal New York Oslo Oviedo Oxford Palo Alto Paphos Prague Paris Pretoria Rio de Janeiro Saint-Vincent Strasbourg Sigulda Stockholm Sydney Vilnius Verona Warsaw York) See some recent conference papers listed (not a full is) Prohibition of Financial Gain in HELP28 Seminar on ldquoRight to Integrity of the Personrdquo Judicial Training Institute in Belgium Brussels 6-7 October 2016 Embryonic Stem Cells in Biomedicine The Regulatory Tango EuCelLEx Final Conference Paris Marie Curie Institute 22 September 2016 Frozen Mothers and the Bioethical Questions in the New Reproductive Technologies International Bioethics Summer School Dubrovnik 13 August 2016 A geacutenszerkeszteacutes etikai eacutes jogi aspektusai A genetika szoacutebeliseacutege Straub Napok MTA Szeged 2016 maacutejus 25 Personalized medicine ethical and legal aspects (Conference on Patientrsquos Safety) Betegbiztonsaacutegi Konferencia Budapest 31 March-2 of April 2016

17

The Art of Medical Communication From the Medical Anamnesis to the Information given to the Relatives of the dying patient May 3 2016 Budapest

A Clockwork Brain How can art deepen the social discourse of science such as Nero-enhancement 13 February 2016 Reykjaviacutek

Stem cells sources for research What are the legal and ethical issues 29-30 June 2015 Conferencerdquo Recherche et innovation en meacutedecinerdquo Universiteacute Toulouse III Who should benefit from the contemporary techniques of assisted reproduction International Conference ldquo(In)Fertile Citizens Anthropological and Legal Challenges of Assisted Reproduction technologiesrdquo 28-30 May 2015 Mytilene Lesvos Greece New Perspectives on Gamete and Embryo Donation Ethics Kinship and Citizenship in a Globalized World European Science Foundation Exploratory Workshop Presentation by Judit Saacutendor ldquoKinship and Gamete Donation How Far Can Courts Gordquo September 11-12 2012 Essex UK Comparative embryonic stem cell research in mammalians Yearly Open Workshop of the Partners in FP7 project Judit Saacutendor September 25 2012 Budapest Hungary Bioehics amp Genetics Dilemmas of Genetic Diagnosis and Consultation Conference organized by The Bioethics Committee of the Polish Academy of Sciences The Institute of Philosophy of the University of Warsaw and The Editorial Board of a Scientific Journal ldquoEthicsrdquo Keynote Speakers Judit Saacutendor Central European University Budapest Hungary December 7-8 2012 Warsaw Poland Ethical Aspects of Exome and Whole Genome Sequencing Studies in Rare Diseases Workshop Presentation by Judit Saacutendor on ldquoEthical Aspects of Informed Consentrdquo January 14 2013 Tel Aviv Israel Summer Course on European Health Law amp Ethics ERASMUS Lifelong Learning Programme Lectures by Judit Saacutendor June 17-28 2013 Riga Latvia Galilee Colloquium VII on Social Moral and Legal Philosophy Established by the Swiss-Israel Philosophy Foundation Presentation by Judit Saacutendor on ldquoNovel Rights-Based Approaches to Selective Reproductionrdquo June 19-23 2013 Kibbutz Kfar Blum Israel Fourth European Conference on Health Law Presentation by Judit Saacutendor Access to Personalized Medicine and the Case of Angelina Jolie with the Genetic Test October 9-11 2013 Coimbra Portugal

18

Keynote speaker Genetics and Privacy paper presented at the conference on Bioethics amp Genetics Dilemmas of genetic diagnosis and consultation organized by the Bioethics Committee of the Polish Academy of Sciences The Institute of Philosophy of the University of Warsaw and the Editorial Board of a Scientific Journal ldquo Ethicsrdquo held on 7-8 December 2012 Warsaw ldquoEmbryos and Genes on Trialrdquo paper presented at 19th World Congress on Medical Law at Maceioacute in Brazil August 7-10 and 10 2012 The Right to Health and the Human Organ A Rights by Consequence paper presented at the 19th Annual Conference on The Individual vs the State An Enforceable Right to Health Central European University 10-11 June 2011 Budapest Judit Saacutendor ldquoBody Shoppingrdquo From Cells to Organs Prohibitionist legal Strategy and Its Challengesrdquo paper presented at the EULOD-ELPAT Workshop 8-10 October 2010 Sofia Bulgaria Judit Saacutendor ldquoEthics of animal and human stem cell research paper presented in Eger at the PartnErS Project workshop on lsquoComparative embryonic stem cell research in mammaliansrsquo FP7 project on 14-15 September 2010 Judit Saacutendor ldquoHuman Rights and Biopolitics Parens Patriae Politics of Birth in Hungaryrdquo Paper presented at the ESFCOST Workshop on Biopolitics Biosociality and the Body - 30 August 2010 St Gallen Switzerland Judit Saacutendor ldquoLost in Translation minusRelevance of Scientific Terms in Shaping Contemporary Medical Lawrdquo paper presented in English on the 18th World Congress on Medical Law 8-12 of August 2010 Zagreb Croatia Judit Saacutendor ldquoDelineation Problems in Contemporary Bioethics and Lawrdquo keynote Speech on 5 of July 2010 Budapest Hungary NICLAS Summer School Budapest CEU Judit Saacutendor ldquoLes regravegles de la digniteacute raquoDeacutebats juridiques et eacutethiques sur lrsquointerruption digne de la vie et de lrsquoeuthanasie en Hongrie (Paper presented in French 7-28 May 2010 Rennes France on the 4th Meeting of the Francophone Network of Lawyers in Biomedicine The title of the workshop was Dying Patients and Their Relatives Judit Saacutendor ldquoHuman Rights and Biotechnologyrdquo guest lecture on 18-21 May 2010 Skopje Macedonia at OSIrsquos Law and Health Initiative Developing Post-Graduate Education in Law Human Rights and Patient Care in Armenia Georgia Kazakhstan Kyrgyzstan Macedonia Russia and Ukraine Judit Saacutendor bdquoChallenges of the Politics of Life in the Twenty First Century Clones Chimeras Supermen and the World of the Human DNA Az eacutelet-politika XXI szaacutezadi etikai kihiacutevaacutesai kloacutenok kimeacuteraacutek szuperemberek eacutes az emberi DNS vilaacutega Lecture presented at Radnoacuteti Mikloacutes Secondary School (Teaching School of the Eoumltvoumls Loraacutend University)

19

Judit Saacutendor ldquoEthical Legal and Psychosocial Aspects of Organ Transplantationrdquo Expanding the European Platform7-20 April 2010 Rotterdam The Netherlands World Trade Center in Rotterdam (Paper presented via skype) Judit Saacutendor ldquoEthical and Legal Aspects of Home Child Birthrdquo Reflections on the Book written by Marsden Wagner Born in the USA How a Broken Maternity System Must Be Fixed to Put Women and Children First on 7 April 2010 Budapest Hungary workshop at Corvinus University Book Launch and Discussion on the Maternity System Marsden Wagner Born in the USA How a Broken Maternity System Must Be Fixed to Put Women and Children First Judit Saacutendorrdquo Vaacuteltozatok az orvos-beteg kapcsolatra a posztgenomikai korszakbanrdquo paper presented in Hungarian) on 28 February 2010 Budapest Day of Rare Diseases Venue Hungarian Museum of Agriculture Judit Saacutendor ldquoAz eutanaacutezia mint politikai keacuterdeacutesrdquo (paper in Hungarian) on 22 January 2010 Budapest Hungary Conference on Dying with Dignity bdquoAz emberhez meacuteltoacute halaacutelrdquoELTE Faculty of Law Judit Saacutendor ldquoDestiny Lost Ethical and Legal Implications of Genetic Testing for Neurodegenerative Diseasesrdquo lecture on 28 January 2010 Trieste Italy at the conference on Health and DNA My Life My genes Judit Saacutendor ldquoHuman Enhancement Tools for Ethical and Legal Assessmentrdquo paper presented on 9-13 October 2009 Linkoumlping Sweden at the Conference The Perfect Body Between Normativity and Consumerism Organized by the European Science Foundation Judit Saacutendor ldquoEtika eacutes jog a korszerű betegellaacutetaacutesbanrdquo (paper presented in Hungarian) on 2 October 2009 Kaposvaacuter Hungary ldquoEthics and law in the contemporary health carerdquo -Post-graduate training for medical doctors Judit Saacutendor A regeneratiacutev orvoslaacutes etikai eacutes jogi kihiacutevaacutesai (Ethical and Legal Challenges of Regenerative Medicine) Judit Saacutendor ldquoPrivate Tissuesrdquo Paper presented on 16-18 July 2009 Goumlttingen Germany at the Second International Conference of the TissEU project Privacy Confidentiality and Personality Rights in Biobanking and Genetic Research with Human Tissue organised by Department for Medical Ethics and History of Medicine Goumlttingen University Judit Saacutendor ldquoAre There Any Recipes for Making a Good Law on Biobanks- Lessons Drawn from the Previous Law-Making Projectsrdquo keyonote speech delivered on 8-9 July 2009 Graz Austria Joint Biobank Symposium

20

Judit Saacutendor ldquoFrom Private to Public Legal Concepts of the Rights to Privacy and Ownership in the Legal Regulation of Biobanksrdquo paper presented on 18 of May 2009 Leuven Belgium GeneBanC Final Workshop Judit Saacutendor ldquoHow to make a good law on biobanksrdquo Paper presented in on 19 of May 2009 Brussels Belgium at the GeneBanC Stakeholders Conference Judit Saacutendor ldquoAnonymity and the Human Tissuerdquo EU Project workshop 6-8 April 2009 Budapest Judit Saacutendor bdquoDNA in Bank Fallacies and Art of Regulating Biobanksrdquo Visiting the International Hereditary Cancer Center (IHCC) and Biobank at the Department of Genetics and Pathology Pomeranian Medical University Read-Gene SA Chaired by Prof Jan Lubinski 20 February 2009 Szczecin Poland Judit Saacutendor ldquoAdolescents and Medical Treatment paper presented in French on 5-5 January 2009 in Kyoto Japan at the 3rd Meeting of the Francophone Network of Lawyers in the field of Biomedicine presentation in French 3rd Meeting of the Francophone Network of Lawyers in the field of Biomedicine Adolescents and Medical Treatment Paper submitted by Judit Saacutendor ( in French) ldquoConstitutional Axiology or Is there anything behind above Constitutions Judit Saacutendor ldquoCentaur laws International Norms Between Law and Ethicsrdquo 6-8 June 2008 Budapest Hungary 19-21 June 2008 Zurich Switzerland Advance Directives Towards a Coordinated European Perspective Workshop funded by the European Science Foundation and Research Priority Program of the University of Zurich Updated Country Reports on advance directives are available at httpwwwethikuzhchibmeen 7-8 May 2008 Leeds UK GeneBanC Project workshop Genetic Data and Biobanks in Hungary -Legislative attempts in Hungary- 18-20 March 2008 Strasbourg France CDBI Exploratory Group Meeting on Predictivity Genetic Tests and Insurance 29 February 2008 Szeged Hungary Az őssejtkutataacutes etikai eacutes jogi dilemmaacutei (Ethical and Legal Dilemmas of Stem Cell Research) Presentation by Judit Saacutendor

21

23 January 2008 Budapest Hungary 1000-1200 presentation by Judit Sandor on Ethics and Law of Biotechnology Venue National Institute of Criminology 9 - 11 January 2008 Sheffield United Kingdom Privileged Project Conference Participant Prof Judit Saacutendor Project Bulletin No 1 6-7 December 2007 Rennes France Medically Assisted Reproduction and the Concept of Anonymity 2nd Meeting of European Francophone Network of Lawyers in the field of Biomedicine Faculteacute de Droit de Rennes 9 November 2007 Budapest Hungary Venue Budapest Congress Center Co-organized by the Hungarian Association for Biotechnology Hungarian Society for Oncology in the framework of the FP 6 Project ldquoGood Bioethical Practicesrdquo Presentations by Judit Saacutendor 1-3 November 2007 Brno Czech Republic The Global Governance of Genomics Testing genes profiling DNA Medicine forensics and ethics Venue Mendel Museum Museum of Genetics Judit Sandor Therapy or Enhancement Ethical and legal issues in reprogenetics 25 October 2007 Porto Portugal Judit Saacutendor ldquoReproductive technologies uses and representations International Conference hosted by the Sociology Institute University of Porto 13-15 July 2007 Siena Italy School for Biotech Industrial Innovation Management Seminar 2 Securing the Competitive Advantage Closing remarks by Judit Sandor 24-25 May 2007 Budapest ldquoInternal and External Challengesrdquo Conference organized by Centre for Social Science in co-operation with Hungarian Academy of Sciences Institute for Ethnic and National Minorities StudiesGenetic data and bioethical challenges presented by Judit Saacutendor Venue Budapest I Orszaacuteghaacutez utca ndash Uri utca 5-7 May 2007 Cairo Egypt Regional Meeting of National Bioethics and other Ethics Committees Organized by the regional office of UNESCO and WHO Participant Judit Saacutendor

22

March 1ndash2 2007 Budapest Hungary Perfect Copy Comparative and Interdisciplinary Approaches to Reproductive Cloning and Stem Cell Research Workshop held by the Center for Ethics and Law in Biomedicine at the CEU Senate Room Organized hosted and introduced by Judit Saacutendor Director of CELAB December 1ndash2 2006 Leuven Belgium GeneBanc (STREP) Project Kick-off meeting of the Research Project wwwgenebanceu November 22 2006 Budapest Hungary Immortal body Contemporary Legal Issues of the Human Tissues Organized by the ELTE Scientific Council of Students on Criminal Law Venue Eoumltvoumls Loraacutend University Faculty of Law Presentation by Judit Saacutendor October 19 2006 Paris France Meeting of the European Lawyers Specialized in Biomedicine Cabinet drsquoAvocats Paris France Participant Judit Saacutendor CELAB October 8ndash12 2006 Budapest Hungary Tissue-Issue Ethics and Law of the Stored Human Tissues International Conference ldquoImmunogenomics amp Immunomics Biobanks Networking and Informatics Tutorialrdquo Lecture by Judit Saacutendor September 28ndash30 2006 Leuven Belgium New Pathways for European Bioethics Congress The Center for Biomedical Ethics and Law at the Catholic University of Leuven Belgium and the European Association of Centers of Medical Ethics (EACME)rsquos annual conference on the occasion of their 20th anniversary Commentator of the session on bioethics politics and law Judit Saacutendor September 4ndash6 2006 Stockholm Sweden Science and Democracy A New Frontier between Eastern and Western Europe Workshop at the The Nobel Museum and Soumldertoumlrn University College Stockholm Participants Judit Saacutendor and Teresa Kulawik August 7ndash11 2006 Toulouse France Body that Matters Legal Dilemmas in the Realm of Biotechnology Presentation at the 16th World Congress on Medical Law by Judit Saacutendor Chief of the Council of Presidents World Association for Medical Law June 29 to July 6 2006 Brno Czech Republic Privacy and Genetic Information European Course on Biotechnology Ethics

23

Lecture by Judit Saacutendor May 17 2006 Budapest Hungary Round-Table Discussion Genetic Research and Insurance Organized by the Hungarian Law Association and the Hungarian Bar Association Speakers Judit Saacutendor Andraacutes Juhos Laacuteszloacute Majteacutenyi Andraacutes Vaacuteradi Presentations were published in Biztositaacutesi Szemle vol 52 no 9 pp 15ndash34 May 12ndash13 2006 Oslo Norway Bioethics and Human Rights Follow-Up Meeting to the CELAB Scandinavian Workshop (see February 17 2006) Presentation by Judit Saacutendor May 9 2006 Budapest Hungary Szemeacutelyiseacuteg eacutes tulajdon a biotechnologiaacuteban (Person and Property in Biotechnology) Lecture Series organized by the Hungarian Patent Office at the Garibaldi Club Budapest Presentation by Judit Saacutendor April 7 2006 Budapest Hungary Avian Flu Ethical Social and Economic Implications CELAB Workshop organized in cooperation with the Department of Economics at CEU Organized and hosted by Judit Saacutendor March 28 2006 Budapest Hungary Death and Dying Legal Aspects Lecture at the Hungarian Academy of Sciences Jakobinus Room Lecture by Judit Saacutendor Director of CELAB March 24 2006 Budapest Hungary From International to National Implementation of the Universal Declaration of Bioethics and Human Rights Regional Meeting of the UNESCO National Commissions Lecture by Judit Saacutendor Director of CELAB March 20 2006 Budapest Hungary Trusts in the Family Property Law and Reproduction in the Arab Southeast Asian Diaspora since 1880 Presentation by Michael Gilsenan (New York University USA) at the CEU Popper Room Session co-organized and chaired by Judit Saacutendor Director of CELAB February 17 2006 Budapest Hungary Bioethics in Scandinavia CELAB Public Lecture Series Bioethics and Law around the World I Organized and hosted by Judit Saacutendor

24

February 16 2006 Budapest Hungary Stealth Seeds Bioproperty Biosafety Biopolitics Lecture by Ronald Herring (Cornell University USA) at the CEU Gellner Room Discussant Judit Saacutendor January 23 2006 Brussels Belgium Science in Society Seminar Organized by the European Commission Research Directorate-General Key-note speaker Judit Saacutendor December 5 2005 Paris France First Meeting of the Review Committee for the GEO-law database Meeting organized by UNESCO SHSEST Legal expert Judit Saacutendor November 26 2005 Budapest Hungary Changing SocietymdashChanging Family Assisted Reproduction and the Law ldquoLaw Ethics and Regulation of Assisted Procreationrdquo conference held at the Hotel Normafa Presentation by Judit Saacutendor November 6ndash9 2005 Budapest Hungary Embedding Ethics in Scientific Practice Expert Meeting at the Hungarian Academy of Sciences Presentation by Judit Saacutendor November 5 2005 Budapest Hungary Single and Single Infertile Womenrsquos Access to Assisted Reproduction Public debate at the International Business School Budapest Guest speaker Judit Saacutendor November 3 2005 Budapest Hungary A test halhatatlansaacutega a bioetika joumlvője a XXI szaacutezadban (Immortality of the Human Body Future of Bioethics in the 21st Century) Talks at the Hauer Pastry-shop organized by the Club of Scientific Journalists Guest Judit Saacutendor October 26 2005 Budapest Hungary Emberi jogok eacutes bioetika a XXI szaacutezadban (Human Rights and Bioethics in the 21st Century) Meeting with the Swiss-Hungarian Studentsrsquo Association Invited guest Judit Saacutendor October 21 2005 Budapest Hungary A Bioetika eacutes Emberi Jogok Egyetemes Nyilatkozata (Universal Declaration on Bioethics and Human Rights) Hungarian COMEST Session at the Hungarian Academy of Sciences Presentation by Judit Saacutendor

25

October 13 2005 Budapest Hungary A biotechnoloacutegia etikai eacutes jogi dilemmaacutei (Ethical and Legal Questions of Biotechnology) Conference organized by the Hungarian Academy of Sciences at the Department of Research on Law and Governance at the Kaacuteroli Gaacutespaacuter University Faculty of Law Presentation by Judit Saacutendor October 6ndash9 2005 Tenerife Spain Biobank Case Study EURECA Project Presentation by Judit Saacutendor September 8 2005 Brussels Belgium European Standards on Confidentiality and Privacy in Healthcare among Vulnerable Patient Population (EuroSOCAP) Comments by Judit Saacutendor January 9ndash11 2003 Sheffield United Kingdom Implementation of the Data Protection Directive 9546EC in relation to medical research and the role of ethics committees Conference discussant Judit Saacutendor December 11ndash15 2002 Oslo Norway Race Ethnicity and Eugenism Paper delivered at the University of Oslo Department of Social Anthropology November 25ndash30 2002 Montreal Canada Drafting group International Declaration on the Protection of Genetic Data September 30 to October 1 Paris France The Role of Medical Abortion in Eastern and Central Europe Policy Perspectives Organized by the Population Council Open Society Institute Law-making in Central and Eastern Europe session chaired by Judit Saacutendor September 19 2002 Budapest Hungary Our ldquoSequenced Futurerdquo Using Genetic Data beyond the Medical Domain Paper presented by Judit Saacutendor September 5ndash8 Riga-Sigulda Latvia Data Protection in Biomedical and Genetic Research ldquoEthics in Researchrdquo Conference organized by the Norwegian Committee for Medical Research Ethics Paper presented by Judit Saacutendor August 28ndash31 Bonn Germany Regulation of New Technologies in Hungary Invitation by the German Federal Ministry for Education and Research (BMBF) Visiting the Centre of DRZE (Deutsches Referenzzentrum fuumlr Ethik in den Biowisissenschaften) Paper presented by Judit Saacutendor

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June 27ndash30 2002 Vilnius Lithuania Public Understanding of Genetics Project Research Discussion at the University of Vilnius May 9ndash11 2002 Debrecen Hungary Koumlzoumls olvasat genetikai aacutebeacuteceacuteskoumlnyvuumlnk taacutersadalmi eacutes kulturaacutelis eacutertelmezhetőseacutege (Common Reading Interpreting the Genetic Alphabet Socially and Culturally) Medical School Institute for Behavior Sciences Keynote speaker Judit Saacutendor April 21ndash22 2002 Paris France Second Meeting of the Drafting Group of the IBC for the Elaboration of an International Instrument on Genetic Data April 5ndash6 2002 Warsaw Poland Legal Remedies for the Conflict of Interest in Biomedical Science International Bioethical Conference on ldquoConflict of Interest and its Significance in Science and Medicinerdquo Paper presented by Judit Saacutendor March 17ndash19 2002 Bratislava Slovakia Conference on Ethics of Research and Science Situation and perspective in the Countries in Pre-Accession EU Commission DG Research the Unit on Ethical issues in Science and Research February 11ndash12 2002 Paris France UNESCO Member of the working group on Genetic Data drafting the International Declaration on Human Genetic Data January 26 2002 Budapest Hungary First Hungarian Conference on Reproduction Budapest Hospital Nyirő Gyula Lecture on Ethical dilemmas in the regulation of the medically assisted procreation January 17ndash20 2002 Manchester United Kingdom Public Understanding of Genetics Project Research Discussion at the University of Manchester UK December 14ndash16 2001 Helsinki Finland An expert meeting in Helsinki Patient Advocacy and Patient Ombudsman Different European Approaches November 11ndash13 2001 Paphos Cyprus Sixth European Conference of National Ethics Committees Genetic Information From Knowledge to Risk Paper presented on Genetics and society opportunities and threats

27

October 15ndash17 2001 Strasbourg France Meeting of the CDBI BIOTECH Working Group The Working Group has been established in 2000 The Parliamentary Assembly has also adopted Recommendations 1425 (1999) on biotechnology and intellectual Property and 1468 (2000) on biotechnology October 3ndash7 2001 The HaguendashAmsterdam The Netherlands Study tour in Netherlands Invited by the Dutch Parliamentary Committee on Health September 19ndash21 2001 Budapest Hungary Informed Consent in Medical Research Fifth meeting of the European Partnership on Patientrsquos Rights and Citizensrsquo Empowerment Paper presented by Judit Saacutendor September 12ndash14 2001 Paris France Eighth Session of the International Bioethics Committee of UNESCO Extensive discussion took place of the criteria and conditions for patentability of the human genome

2

1986 JD (Faculty of Political Sciences and Law Eoumltvoumls Loraacutend University Budapest) OTHER PROFESSIONAL ACTIVITIES

2005ndash Director of the CEU Center for Ethics and Law in Biomedicine (CELAB) 2011ndash Member of the International Advisory Board of DRZE (German Reference Center for

Ethics in the Life Sciences) 2007ndash Member of the Advisory Committee of the European Privacy Institute 1995ndash2011 Member of the National Health Science Council of Hungary (Advisory Board to the

Minister of Health) 2008ndash2009 Member of the Hungarian Genetechnology Commission 2005ndash2009 Chief of the Council of Presidents World Association for Medical Law 2004ndash2005 Chief of Bioethics Section UNESCO Social and Human Sciences Sector 2003ndash2004 Expert on genetics and law at the Advisory Group of the Hungarian Prime Minister 2002ndash2003 Member of the Drafting Group of the IBC on the preparation of an international

instrument on genetic data (Paris UNESCO) 1996ndash2000 Representative and one of the founders of the Hungarian Patientsrsquo Rights Foundation

ldquoSzoacuteszoacuteloacuterdquo 1996ndash1998 Participating as a consultant at the Health Care Legislation Process in Hungary 1991ndash2013 Member of the editorial board of the Lege Artis Medicinae (a medical journal)

Budapest 1991ndash1992 Advisor on bioethics to the Parliamentary Committee on medical law and ethics

FELLOWSHIPS

2013-2014 Global Research Fellow at the NYU New York Law School 2000 Visiting Fellow at the University of Chicago Department of Anthropology and

Department of Law (OctoberndashDecember) 1998 Visiting Fellow at Center for Biomedical Ethics Stanford University California

Program in Genomics Ethics and Society (November) 1993ndash2000 Member of the editorial board of Health Care Analysis (An international journal of

health philosophy and policy Ed David Seedhouse) ISSN 1065-3058 1996 Fall Visiting Fellow at the Maison des Sciences de lHomme Paris France and visiting the

Comiteacute consultatif national deacutethique pour les sciences de la vie et de la santeacute (Mellon Fellowship)

1994ndash1997 Course Director on Human Rights and Medicine at Inter-University Centre Dubrovnik Croatia

1993 Visiting scholar at the Hastings Center (New York) LANGUAGES Hungarian (native) English (highest level state exam) French (upper-intermediate) Italian (intermediate) Spanish (basic) Russian (intermediate passive)

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Judit Sándor JD. LLM. Ph.D. C VITAEdsps.ceu.edu/sites/pds.ceu.hu/files/profile/field... · 1 Judit...

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Transcript of Judit Sándor JD. LLM. Ph.D. C VITAEdsps.ceu.edu/sites/pds.ceu.hu/files/profile/field... · 1 Judit...