Integrating Equal Access Throughout Training and Exercises

May 2014

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

“It is time children, people with disabilities or any other segment of our communities who have traditionally been underserved, to be more fully and consistently integrated into preparedness and planning efforts at every level of government.“

“My experience tells me if we waitand plan for people with disabilitiesafter we write the basic plan, we fail.”

Craig Fugate

FEMA Administrator

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Office of Disability Integration and Coordination

Mission Statement

The Office of Disability Integration and Coordination leads FEMA’s commitment to achieving universally accessible, survivor centric, fully inclusive emergency management.

This requires integrating the whole community inclusive of people with disabilities, people with access and functional needs, first responders, community partners and across government to achieve program, physical, and effective communication access throughout all FEMA programs, services, activities and functions before, during, and after disasters.

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Our motto: “Baking it in, not layering it on”

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Disability Inclusive Emergency Management Timeline:

2004 Executive Order 13347 establishing the Interagency Coordinating Council on Emergency

Preparedness and Individuals with Disabilities2006 PKEMRA disability requirements established2007 Disability Coordinator hired2009 Senior Advisor to the Administrator appointed2010 Office of Disability Integration and Coordination

established2010 First RDISs hired2011 First deployments

Total deployments 2011-2014: 652013 Disability Integration Advisor (DIA) Cadre

established

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Disability Integration Advisor Cadre Total: 75+ 30 DIA FTE

13 PFT (1 HQ, 10 RDIS, 2 other) 9 HQ CORE 5 IM CORE 3 IMAT CORE

45 DIA Reservists 5 Lead Advisors 25 Advisors 15 Sign Language Interpreters

Disaster Specific Local Hires Federal partners surge force

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Rehabilitation Act of 1973 Americans with Disabilities Act of 1990 Stafford Act of 1988 Post Katrina Emergency Management Reform Act of 2006 Fair Housing Act Amendments of 1988 Architectural Barriers Act of 1968 Individuals with Disabilities Education Act (EHA) of 1975 Telecommunications Act of 1996 Twenty-first Century Communications and Video

Accessibility Act of 2010

Federal Laws Prohibiting Discrimination in Emergency Programs

on the Basis of Disability

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Americans with Disabilities Act of 1990

The ADA prohibits discrimination on the basis of disability in employment, State and local government, public accommodations, commercial facilities, transportation, and telecommunications. It also applies to the United States Congress.

To be protected by the ADA, one must have a disability or have a relationship or association with an individual with a disability.

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Definition of Disability

A physical or mental impairment that substantially limits one or more major life activities of such individual;

A record of such an impairment; or

Being regarded as having such an impairment

This does not apply to impairments that are transitory and minor. A transitory impairment is an impairment with an actual or expected duration of 6 months or less.

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Definition of Disability (continued)

Major life activities:

Include but are not limited to, caring for oneself, performing manual tasks, seeing, hearing, eating, sleeping, walking, standing, lifting, bending, speaking, breathing, learning, reading, concentrating, thinking, communicating, and working.

Major bodily functions :

Include but not limited to, functions of the immune system, normal cell growth, digestive, bowel, bladder, neurological, brain, respiratory, circulatory, endocrine, and reproductive functions.

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014 11

Disability Facts US Census reports from 2010 identify 303,858,000 civilians

living in the community, 56,672,000 of which were individuals with disabilities-a prevalence rate of 18.7 percent. Among individuals with disabilities, 38,284,000 had severe disabilities

There are an additional 2 million people with disabilities living in nursing homes and institutions, for a total of 59 million Americans with disabilities, or 20% of the US population.

There are one billion people with disabilities globally

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

NMSZ Percentage of People With Disabilities

Mid-America Earthquake Center

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

The Rehabilitation Act of 1973 The Rehabilitation Act of 1973 protects the civil rights of

persons with disabilities. It prohibits discrimination on the basis of disability by the federal government, federal contractors, and by recipients of federal financial assistance.

Any recipient or sub-recipient of federal funds is required to make their programs accessible to individuals with disabilities. Its protections apply to ALL programs and businesses that receive ANY federal funds.

This applies to all elements of physical/architectural, programmatic and communication accessibility in all services and activities conducted by or funded by FEMA.

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

The Rehabilitation Act of 1973Section 504

Section 504 states that "no qualified individual with a disability in the United States shall be excluded from, denied the benefits of, or be subjected to discrimination under" any program or activity that either receives Federal financial assistance or is conducted by any Executive agency or the United States Postal Service.

Requirements include reasonable accommodation for employees with disabilities; program accessibility; effective communication with people who have hearing or vision disabilities; and accessible new construction and alterations.

Each agency is responsible for enforcing its own regulations. Section 504 may also be enforced through private lawsuits.

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

The Rehabilitation Act of 1973Section 508

Section 508 requires that employees and and individuals with disabilities who are members of the public seeking information or services from a Federal agency, have access to and use of information and data that is comparable to that provided to the public who are not individuals with disabilities.

Section 508 also requires federal agencies to ensure that all electronic and information technology they procure, develop, maintain, or use complies with the accessibility standards

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Preparation Training Exercises Notification Evacuation and transportation Sheltering First aid and medical services Temporary lodging and housing Transition back to the community Clean up Recovery Mitigation Other emergency- and disaster-related programs, services, and activities

The Rehabilitation Act, Americans with Disabilities Act and other laws apply in:

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Access and Functional Needs Children and adults with physical, mobility, sensory,

intellectual, developmental, cognitive or mental health disabilities

Older Adults People with chronic or temporary health conditions Women in late stages of pregnancy People needing bariatric equipment People with Limited English Proficiency, low literacy or

additional communication needs People with very low incomes People without access to transportation People experiencing homelessness Others

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Whole Community:Participation of the whole community requires:

Equal access to preparedness and recovery activities and programs

Meeting the access and functional needs of all individuals

Consistent and active engagement and involvement in all aspects of planning and recovery.

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

NOTHING ABOUT US, WITHOUT US

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Language Influences Behavior “Access and functional needs” NOT “special

needs”

“Whole community” NOT “special populations”

“Disproportionate impact” NOT “vulnerable or at-risk populations”

“Individuals” NOT “special populations”

Planning “with” NOT planning “for”

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Assets Not Liabilities

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

EXERCISES

Whole community practice for disasters

People with a variety of disabilities must be included

Actors should not be used

People with disabilities should pose real life challenges

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Disability and Access and Functional Needs Specific Training:

Independent Study IS-368: Including People With Disabilities & Others With Access & Functional Needs in Disaster Operations

Instructor Led L-197: Integrating Access and Functional Needs into Emergency Management

Instructor Led E-692: Disability Integration Advisor

Functional Needs Support Services in General Population Shelters Curriculum

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Disability and Access and Functional Needs Specific Training:

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Have we covered all of the bases?

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014 25

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014 3

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014 3

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Ask yourself every time:

Did I include equal access: Physical accessibility Program accessibility Effective communication access Reasonable accommodations

Is my inclusion of equal access explicit or implicit?

Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Helpful Links: Office of Disability Integration and Coordination www.fema.gov/about/odicGetting Real- Promising Practices in Inclusive Emergency Management gettingreal-ii.webcaston.tv/home/homepage.php Guidance on Planning for Integration of Functional Needs Support Services in General Population Shelters http://www.fema.gov/pdf/about/odic/fnss_guidance.pdf Personal Assistance Services Contract FAQhttp://www.pascenter.org/publications/publication_home.php?id=1324&focus= Planning for the Whole Community http://terrorism.spcollege.edu/Broadcasts/LRBroadcast0611.aspx

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Helpful Links: First Responder Guide http://terrorism.spcollege.edu/SPAWARAFN/index.html CAL EMA Office for Access and Functional Needshttp://www.calema.ca.gov/ChiefofStaff/Pages/Access-and-Functional-Needs.aspx Disaster Resources for People with Disabilities and Others with Access and Functional Needs http://www.jik.com/disaster.html PAS Center Emergency Preparedness http://www.pascenter.org/emergency/index.php#promise DOJ www.ada.gov Project Civic Access http://www.ada.gov/civicac.htm

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Helpful Links: PCA Tool Kit:

Chapter 3- General Effective Communication Requirements Under Title II of the ADAhttp://www.ada.gov/pcatoolkit/chap3toolkit.htm

Chapter 7- Emergency Management Under Title II of the ADA

http://www.ada.gov/pcatoolkit/toolkitmain.htm#pcatoolkitch7 ADA Checklist for Emergency Sheltershttp://www.ada.gov/shleterck.htm An ADA Guide for Local Governments: Making CommunityEmergency Preparedness and Response Programs Accessible to People with Disabilities

http://www.ada.gov/emergencyprep.htm

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

When communities integrate the access and functional needs of children and adults with and without disabilities in all phases of community-wide emergency management, they strengthen their ability to prepare for, protect against, respond to, recover from, and mitigate all hazards.

INTEGRATION AND COORDINATION

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Marcie Roth, Director, Office of Disability Integration and Coordination May, 2014

Office of Disability Integration and Coordination

Marcie Roth, Director marcie.roth@fema.dhs.gov

202.285.9231www.fema.gov/about/odic

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End of presentation